RE: Re: the endless circle....

[Guest guest]

Addy, when you get sinus infections does the mucus accumulate in your

lungs causing you to cough quite a bit and afterwards develop short

symptoms of shortness of breath and light headiness?

I ask this because I was wondering if some of the medications I am

taking, i.e Singulair might be giving me a respiratory infection and

causing all the mucus to accumulate in my lungs. If this is the case, I

would think there should be some medication my allergist could prescribe

that would correct this problem. I am really tired of taking pulse doses

of Prednisone to provide temporary relief and afterwards having all the

crap come back within a week. Any suggestions anyone would have in

this regard would be benefical to me.

Does anyone get the aches and pains to joints and legs after being off

of Prednisone for a week or so? I do and during this time I can hardly

walk.

Have a Good Day

Steve Zimmerman

________________________________

From: [mailto: ]

On Behalf Of pyle456

Sent: Friday, January 12, 2007 5:35 AM

Subject: [ ] Re: the endless circle....

FYI My BP often goes up when I am in a full-on asthma episode.

Neither my pulmo nor my family doc are too worried about it in terms

of the long-term. They say b/c my lungs aren't pushing the air m y

blood has to do it for me.

FYI 2 - Xolair has improved my allergic sinus issues tremendously. I

am not a candidate for surgery b/c there is nothing they can do that

might help - I have severe allergic sinus disease or something.

While Xolair hasn't solved the problem completely, I get about 3

sinus infections a year as opposed to 8 or 9, and often I can keep

one from coming on by rinsing and taking an anticholinergic in

addition to sudafed.

FYI 3 - I have seen 9 allergists/pulmos in my life, and if I had a

quarter for every doctor's visit I wouldn't need health isnurance, so

I understand your frustration completely. I finally have a competent

pulmo that I like and I still get " I'm sorry I can't do any more for

you - you're already on maximum medical therapy. "

Oh, well,

Take care,

Addy

> >

> > Just a little asthma rant...

> > Don't you just get tired of all the medications and then all the

> other

> > drugs you have to take to deal with the first medications side

> > effects? I know I am 'new' to all this but I am getting tired of

> the

> > endless dr's appt and such (I used to have a life :-) ).

> >

> > Over the past week I have found out that the pressure in my eyes

> are

> > increasing at a high rate so I go back for another reading on

> Friday

> > -- If the pressure is still up then the recommendation is either

no

> > inhaled or nasal steroids OR go on glaucoma medications.

> >

> > Yesterday, during a routine blood pressure check up my family

> > physician got all alarmed -- he has been out of the loop of the

> asthma

> > problems since he was away on paternity leave and I didn't like

his

> > covering Dr -- so now, all of a sudden, he gets concerned. Seems

> my

> > BP is up (no fake!) and my heart like to race -- still no surprise

> > since I complained to his covering Dr about this six weeks ago

and

> she

> > 'blew me off'. Now all of a sudden, he is concerned and

scheduled

> me

> > for a bunch of heart tests and increased my BP meds. He is now

> saying

> > that I am on too much asthma meds (advair 500/50, spiriva,

> singulair,

> > claritin, albuturel inhaler, duoneb(when needed),an antacid,

> nasonex)

> > and I should not be taking albuterol. Joke is he has no idea

> about

> > how sick I was... He has no ideas of the weeks I spent not

> sleeping

> > and coughing through the night, or the cracked ribs I still have

to

> > show for it. He doesn't realize that we finally have me on enough

> > medications so I can take care of my kids again without outside

> help

> > -- that doesn't seem to mattter to him (OHHHHH! SO

> MAD!!!!!!!!!!!!)

> >

> > He suddenly wants to manage my care -- where was he months ago

> when I

> > could hardly function and the nurses in his office would make me

> wait

> > three days for an appt to see a covering dr? because my regular

> dr's

> > schedule was 'too full'. Just angry here! Wish I could have

> vented

> > to the Dr but he tends to make you always feel like he's late for

> > something else. And YES, I want to change family physicians but

> now I

> > need to wait until I get the BP and heart thing settled --

> otherwise

> > it's back to square one.

> >

> > Tired of Dr's, tests and meds...

> >

> > SO... I call my asthma guy to find out how the insurance

paperwork

> is

> > going for Xolair -- (it still in the process.... but should be

> > approved due to meeting all critera and the problems I am having

> with

> > my other medications) but he offered to changed my meds (from

> Advair

> > to Asmanex -- still an inhaled steroid so I don't think that will

> > help) and an albuterol alternative... Problem is I am hesitant to

> > change medication right now -- things are semi working and I never

> > want to return to my status of a few months ago.... Quandry....

> >

> > So, I guess I get to just wait for the eye test (friday) and the

> > echocardiogram(wed) and then I see the asthma guy (wed) so we can

> come

> > up with a plan until my Xolair paperwork goes through -- My

> insurance

> > company already said it takes 3 months to be approved -- so here

I

> sit

> > and wait....

> > I just needed to vent -- and it's hard to vent to friends if they

> have

> > never gone through this awful circle. Somedays I just want to

stop

> > taking 'all' the asthma meds and see if I miracously get better (I

> > know bad idea....) Just tired... and since my lung test are now

> good

> > and other than the coughing all I have is the endless tiredness

and

> > the burning feeling in my bronchi tubes.. OK, and maybe the

> > Bacall voice (that began 3 months ago and will linger until all

> > inhaled stuff is stopped -- so says the ENT)....

> >

> > end of rant -- thanks for listening -- it's just good therapy to

> type

> > and send this :-)

> >

> > suzanne

> >

>

[Guest guest]

--- Steve Zimmerman <steve@...> wrote:

*snip!*

I am really tired of

> taking pulse doses

> of Prednisone to provide temporary relief and afterwards

> having all the

> crap come back within a week. Any suggestions anyone

> would have in

> this regard would be benefical to me.

Welcome to my world. I have Oral Allergy Syndrome, and had

a reaction to Tomatos last week. I LOATHE pulse dosing,

but am rather fond of breathing and avoiding an escalating

allergic reaction.

> Does anyone get the aches and pains to joints and legs

> after being off

> of Prednisone for a week or so? I do and during this

> time I can hardly

> walk.

I feel like total hell today, since this is day 5 from my

taper. Started on 40mgs and down to 5mgs today. I have

felt better from being in a car accident. There is not one

muscle that isn't just throbbing.

FWIW....If I'm on a Pred for a month, it takes me a good

two months before I totally feel 100%.

Oh, and the " bloat " . Gotta love that Pred bloat.

BLAH....

Wish I could give you a med suggestion...One friend ordered

me the book " Coping With Prednisone " . Is it any good? I

hope she didn't waste her money.

Nan

****Ordinary life is pretty complex stuff***

-=Harvey Pekar=-

________________________________________________________________________________\

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[Guest guest]

i'm with addy on this. most of my asthma issues start in my sinuses...as soon

as i start getting gunky, i know its going to be a rough couple of weeks.

at the first sign of congestion (sinus or lungs) my allergist has me take

entex in the morning and mucinex at night. i only take the entex in the morning

b/c it has a decongestant in it, and she is afraid that will make me hvae

trouble sleeping (HA! i'm an insomniac) if i take it at night. if i run out of

entex or whatever, she wants me to take mucinexD in the mornings and regular

mucinex at night....and drink TONS of water.

by catching the gunk early, i've been able to avoid most of the bigger asthma

issues and have been predFREE for over a year!! that's not to say that i don't

have any issues, but they're able to be controlled without the use of pred.

heather

(insert your own disclaimer here - remember, i'm a blond - us the info at your

own risk!)

pyle456 <coachmac@...> wrote:

Steve, I have had trouble with muscle aches coming off pred, but my

biggest problem coming off pred is FATIGUE - almost like a wall of

fatigue that comes out of nowhere.

85% of the time, any lung symptoms I have are caused by mucus and/or

inflammation that started in my sinuses. If I start having mucus

build up in my lungs, my doc wants me to start on mucinex, two at the

first dose with a full glass of water and then one each dose

thereafter. You might want to ask your doc about it. Meds shouldn't

be causing you to have mucus build up.

Addy

Group co-owner

Remember to talk to your own doc about any changes to your treatment

plan.

> > >

> > > Just a little asthma rant...

> > > Don't you just get tired of all the medications and then all

the

> > other

> > > drugs you have to take to deal with the first medications side

> > > effects? I know I am 'new' to all this but I am getting tired

of

> > the

> > > endless dr's appt and such (I used to have a life :-) ).

> > >

> > > Over the past week I have found out that the pressure in my

eyes

> > are

> > > increasing at a high rate so I go back for another reading on

> > Friday

> > > -- If the pressure is still up then the recommendation is

either

> no

> > > inhaled or nasal steroids OR go on glaucoma medications.

> > >

> > > Yesterday, during a routine blood pressure check up my family

> > > physician got all alarmed -- he has been out of the loop of the

> > asthma

> > > problems since he was away on paternity leave and I didn't like

> his

> > > covering Dr -- so now, all of a sudden, he gets concerned.

Seems

> > my

> > > BP is up (no fake!) and my heart like to race -- still no

surprise

> > > since I complained to his covering Dr about this six weeks ago

> and

> > she

> > > 'blew me off'. Now all of a sudden, he is concerned and

> scheduled

> > me

> > > for a bunch of heart tests and increased my BP meds. He is now

> > saying

> > > that I am on too much asthma meds (advair 500/50, spiriva,

> > singulair,

> > > claritin, albuturel inhaler, duoneb(when needed),an antacid,

> > nasonex)

> > > and I should not be taking albuterol. Joke is he has no idea

> > about

> > > how sick I was... He has no ideas of the weeks I spent not

> > sleeping

> > > and coughing through the night, or the cracked ribs I still

have

> to

> > > show for it. He doesn't realize that we finally have me on

enough

> > > medications so I can take care of my kids again without outside

> > help

> > > -- that doesn't seem to mattter to him (OHHHHH! SO

> > MAD!!!!!!!!!!!!)

> > >

> > > He suddenly wants to manage my care -- where was he months ago

> > when I

> > > could hardly function and the nurses in his office would make

me

> > wait

> > > three days for an appt to see a covering dr? because my regular

> > dr's

> > > schedule was 'too full'. Just angry here! Wish I could have

> > vented

> > > to the Dr but he tends to make you always feel like he's late

for

> > > something else. And YES, I want to change family physicians but

> > now I

> > > need to wait until I get the BP and heart thing settled --

> > otherwise

> > > it's back to square one.

> > >

> > > Tired of Dr's, tests and meds...

> > >

> > > SO... I call my asthma guy to find out how the insurance

> paperwork

> > is

> > > going for Xolair -- (it still in the process.... but should be

> > > approved due to meeting all critera and the problems I am

having

> > with

> > > my other medications) but he offered to changed my meds (from

> > Advair

> > > to Asmanex -- still an inhaled steroid so I don't think that

will

> > > help) and an albuterol alternative... Problem is I am hesitant

to

> > > change medication right now -- things are semi working and I

never

> > > want to return to my status of a few months ago.... Quandry....

> > >

> > > So, I guess I get to just wait for the eye test (friday) and the

> > > echocardiogram(wed) and then I see the asthma guy (wed) so we

can

> > come

> > > up with a plan until my Xolair paperwork goes through -- My

> > insurance

> > > company already said it takes 3 months to be approved -- so

here

> I

> > sit

> > > and wait....

> > > I just needed to vent -- and it's hard to vent to friends if

they

> > have

> > > never gone through this awful circle. Somedays I just want to

> stop

> > > taking 'all' the asthma meds and see if I miracously get better

(I

> > > know bad idea....) Just tired... and since my lung test are now

> > good

> > > and other than the coughing all I have is the endless tiredness

> and

> > > the burning feeling in my bronchi tubes.. OK, and maybe the

> > > Bacall voice (that began 3 months ago and will linger until all

> > > inhaled stuff is stopped -- so says the ENT)....

> > >

> > > end of rant -- thanks for listening -- it's just good therapy

to

> > type

> > > and send this :-)

> > >

> > > suzanne

> > >

> >

>

>

>

>

>

>

>

[Guest guest]

Coping with pred is an EXCELLENT book. It may not teach you anything new if you

have been doing this for years but it makes you feel normal as other ppl have

gone through the same thing. I highly recommend it.

co-moderator hating the pred since 2001.....

__________________________________________________

[Guest guest]

I discussed this mucus problem with my allergist last Friday and she too

recommended Mucinex 1200 mgm dosages am and pm. I started this over the

weekend and the mucus seems to have disappeared. How long? I am

currently on a tapered dose of Prednisione which should end toward the

end of next week. The questions are, will the mucus buildup in my lungs

come back in a week or so after being off Pednisone? Is the clearing up

of the mucus the Prednisone or the Mucinex? Past experiience has shown

the mucus buildup in my lungs has returned in every case after ending

the Prednisone. I tried MusinexDM at night but I don't believe it works

as well as the regular stuff.

I mentioned this to the doctors at the training hospital in Denver last

August. They indicated I was not being left on the pulse dose long

enough. My allergist listened to my report but so far has not seemed to

adjust her recommendations. Oh well....

Fatigue was not a problem for me. It was definately the increase pain

in my joings that was evident.

Have a Good Day

Steve Zimmerman

________________________________

From: [mailto: ]

On Behalf Of pyle456

Sent: Saturday, January 13, 2007 6:48 AM

Subject: [ ] Re: the endless circle....

Steve, I have had trouble with muscle aches coming off pred, but my

biggest problem coming off pred is FATIGUE - almost like a wall of

fatigue that comes out of nowhere.

85% of the time, any lung symptoms I have are caused by mucus and/or

inflammation that started in my sinuses. If I start having mucus

build up in my lungs, my doc wants me to start on mucinex, two at the

first dose with a full glass of water and then one each dose

thereafter. You might want to ask your doc about it. Meds shouldn't

be causing you to have mucus build up.

Addy

Group co-owner

Remember to talk to your own doc about any changes to your treatment

plan.

> > >

> > > Just a little asthma rant...

> > > Don't you just get tired of all the medications and then all

the

> > other

> > > drugs you have to take to deal with the first medications side

> > > effects? I know I am 'new' to all this but I am getting tired

of

> > the

> > > endless dr's appt and such (I used to have a life :-) ).

> > >

> > > Over the past week I have found out that the pressure in my

eyes

> > are

> > > increasing at a high rate so I go back for another reading on

> > Friday

> > > -- If the pressure is still up then the recommendation is

either

> no

> > > inhaled or nasal steroids OR go on glaucoma medications.

> > >

> > > Yesterday, during a routine blood pressure check up my family

> > > physician got all alarmed -- he has been out of the loop of the

> > asthma

> > > problems since he was away on paternity leave and I didn't like

> his

> > > covering Dr -- so now, all of a sudden, he gets concerned.

Seems

> > my

> > > BP is up (no fake!) and my heart like to race -- still no

surprise

> > > since I complained to his covering Dr about this six weeks ago

> and

> > she

> > > 'blew me off'. Now all of a sudden, he is concerned and

> scheduled

> > me

> > > for a bunch of heart tests and increased my BP meds. He is now

> > saying

> > > that I am on too much asthma meds (advair 500/50, spiriva,

> > singulair,

> > > claritin, albuturel inhaler, duoneb(when needed),an antacid,

> > nasonex)

> > > and I should not be taking albuterol. Joke is he has no idea

> > about

> > > how sick I was... He has no ideas of the weeks I spent not

> > sleeping

> > > and coughing through the night, or the cracked ribs I still

have

> to

> > > show for it. He doesn't realize that we finally have me on

enough

> > > medications so I can take care of my kids again without outside

> > help

> > > -- that doesn't seem to mattter to him (OHHHHH! SO

> > MAD!!!!!!!!!!!!)

> > >

> > > He suddenly wants to manage my care -- where was he months ago

> > when I

> > > could hardly function and the nurses in his office would make

me

> > wait

> > > three days for an appt to see a covering dr? because my regular

> > dr's

> > > schedule was 'too full'. Just angry here! Wish I could have

> > vented

> > > to the Dr but he tends to make you always feel like he's late

for

> > > something else. And YES, I want to change family physicians but

> > now I

> > > need to wait until I get the BP and heart thing settled --

> > otherwise

> > > it's back to square one.

> > >

> > > Tired of Dr's, tests and meds...

> > >

> > > SO... I call my asthma guy to find out how the insurance

> paperwork

> > is

> > > going for Xolair -- (it still in the process.... but should be

> > > approved due to meeting all critera and the problems I am

having

> > with

> > > my other medications) but he offered to changed my meds (from

> > Advair

> > > to Asmanex -- still an inhaled steroid so I don't think that

will

> > > help) and an albuterol alternative... Problem is I am hesitant

to

> > > change medication right now -- things are semi working and I

never

> > > want to return to my status of a few months ago.... Quandry....

> > >

> > > So, I guess I get to just wait for the eye test (friday) and the

> > > echocardiogram(wed) and then I see the asthma guy (wed) so we

can

> > come

> > > up with a plan until my Xolair paperwork goes through -- My

> > insurance

> > > company already said it takes 3 months to be approved -- so

here

> I

> > sit

> > > and wait....

> > > I just needed to vent -- and it's hard to vent to friends if

they

> > have

> > > never gone through this awful circle. Somedays I just want to

> stop

> > > taking 'all' the asthma meds and see if I miracously get better

(I

> > > know bad idea....) Just tired... and since my lung test are now

> > good

> > > and other than the coughing all I have is the endless tiredness

> and

> > > the burning feeling in my bronchi tubes.. OK, and maybe the

> > > Bacall voice (that began 3 months ago and will linger until all

> > > inhaled stuff is stopped -- so says the ENT)....

> > >

> > > end of rant -- thanks for listening -- it's just good therapy

to

> > type

> > > and send this :-)

> > >

> > > suzanne

> > >

> >

>

>

>

>

>

>

>