RE: Adult onset asthma???

[Guest guest]

Hi Jane

My asthma wasn't " adult " onset, but was more " adolescent " onset. I was

diagnosed with asthma at age 14. My brother had very mild asthma diagnosed

at about the same age, although his never bothered him much at all. Four

years ago, my baby sister was diagnosed with asthma, again at age 14. Must

be something in my family that triggers at adolescence.

My mother was recently diagnosed with adult onset allergies and asthma. She

s furious with me because I was the one that figured it out, and she tested

positive to chocolate and nut allergies among many others. I told her what

she told me several years back, " better to know and avoid, than not know and

drop one day. " Vengeance is a TINY bit sweet, I must admit. Her asthma is

not severe at all, so Xolair is not right for her, she is going the route of

allergy shots, as her sinusitis is quite severe, and her immune system is

compromised due to multiple sclerosis.

I'm also interested to see how many of our number have had asthma all their

lives or got it as adults. I've been keeping track as I hear stories from

the other Xolair patients at my doctor's office.

Good luck to you with your treatment!

~

-------Original Message-------

From: jane mosher

Date: 01/03/07 19:00:29

Subject: [ ] Adult onset asthma???

I am very curious to ask if many of us developed adult onset asthma or have

been asthmatic all of our lives. Personally, I have recent adult onset

asthma.

[Guest guest]

for me, i've had asthma since i was a toddler, although it wasn't diagnosed

until i was 5 ( i think).

i started with eczema at 36 hours (so i'm told) and allergies followed

along....all i can say is " my poor parents " !!! i'm surprised that after a week

of me, they didn't try to paun me off on some gypsy! LOL

heather

jane mosher <janeannmosher@...> wrote:

I am very curious to ask if many of us developed adult onset asthma or have

been asthmatic all of our lives. Personally, I have recent adult onset asthma.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Check out pics of cape the wonder dog

(because we always wonder what we'll pull out of his mouth next!)

http://snipurl.com/z18j (updated 10/06 )

If you can find a path with no obstacles, it probably doesn't lead anywhere.

~ A.

__________________________________________________

[Guest guest]

--what have you discovered so far as to whether it is adult onset or

childhood asthma? have you noticed any patterns at all? Jane

Currier <redsoxkitten@...> wrote: Hi Jane

My asthma wasn't " adult " onset, but was more " adolescent " onset. I was

diagnosed with asthma at age 14. My brother had very mild asthma diagnosed

at about the same age, although his never bothered him much at all. Four

years ago, my baby sister was diagnosed with asthma, again at age 14. Must

be something in my family that triggers at adolescence.

My mother was recently diagnosed with adult onset allergies and asthma. She

s furious with me because I was the one that figured it out, and she tested

positive to chocolate and nut allergies among many others. I told her what

she told me several years back, " better to know and avoid, than not know and

drop one day. " Vengeance is a TINY bit sweet, I must admit. Her asthma is

not severe at all, so Xolair is not right for her, she is going the route of

allergy shots, as her sinusitis is quite severe, and her immune system is

compromised due to multiple sclerosis.

I'm also interested to see how many of our number have had asthma all their

lives or got it as adults. I've been keeping track as I hear stories from

the other Xolair patients at my doctor's office.

Good luck to you with your treatment!

~

-------Original Message-------

From: jane mosher

Date: 01/03/07 19:00:29

Subject: [ ] Adult onset asthma???

I am very curious to ask if many of us developed adult onset asthma or have

been asthmatic all of our lives. Personally, I have recent adult onset

asthma.

[Guest guest]

adult onset here! (do I get a prize?) Age 40, cough variant -- started with

a vengeance back in September hope to be on Xolair by the end of January.

Found allergies (lucky me...) and have just found out the nasal and inhaled

steroids are causing a rapid rise in eye pressure and still have fungus on

vocal cords so Dr's want me off the inhaled steroids asap.

Funny thing is that after learning about asthma I realized that I must

have had it mildly for years but it took a home remodel to bring it on full

force. To be honest; I just want to be off meds and have that awful burning

feeling in my bronchi tubes (like sucking in cold air) to disappear.... I

am new to this and I am already fed up and tired of it! I am tired all the

time now and just want my old life back... I feel bad for those of you that

have had this for years (all your lives...).

-sd

[Guest guest]

I agree with you. I hate the stuff and want my old life back also. I

was diagonsed with asthma in 2003. It went from mild to severe in 3

years. What I hate most is not knowing when an asthma attack will show

up (which is quite frightning when it happens) and all the coughing

associated with trying to remove the increased nasal drainage from my

lungs.

Have a Good Day

Steve Zimmerman

________________________________

From: [mailto: ]

On Behalf Of Suzanne DePaolis

Sent: Thursday, January 04, 2007 8:47 AM

Subject: Re: [ ] Adult onset asthma???

adult onset here! (do I get a prize?) Age 40, cough variant -- started

with

a vengeance back in September hope to be on Xolair by the end of

January.

Found allergies (lucky me...) and have just found out the nasal and

inhaled

steroids are causing a rapid rise in eye pressure and still have fungus

on

vocal cords so Dr's want me off the inhaled steroids asap.

Funny thing is that after learning about asthma I realized that I must

have had it mildly for years but it took a home remodel to bring it on

full

force. To be honest; I just want to be off meds and have that awful

burning

feeling in my bronchi tubes (like sucking in cold air) to disappear....

I

am new to this and I am already fed up and tired of it! I am tired all

the

time now and just want my old life back... I feel bad for those of you

that

have had this for years (all your lives...).

-sd

[Guest guest]

Steve--Have they put you on sinus rinse or the grossan nasal irrigator. do you

have a clean clean bedroom and a room air filter for it? pets? mine cat had to

go--16500 on the rast to him. Have you seen a sinus specialist/allergist, etc?

Did they do a chest ct? Do you have something like bronchiactesis? I am

determined to get a life back. This URI caused pus like stuff to come up and

the wheezing was horizonal in my bronchea. I kept a 100 degree fever for about

week and did not sleep much. The fever broke today. I feel like a new woman.

Jane

Steve Zimmerman <steve@...> wrote: I agree with you. I hate the

stuff and want my old life back also. I

was diagonsed with asthma in 2003. It went from mild to severe in 3

years. What I hate most is not knowing when an asthma attack will show

up (which is quite frightning when it happens) and all the coughing

associated with trying to remove the increased nasal drainage from my

lungs.

Have a Good Day

Steve Zimmerman

________________________________

From: [mailto: ]

On Behalf Of Suzanne DePaolis

Sent: Thursday, January 04, 2007 8:47 AM

Subject: Re: [ ] Adult onset asthma???

adult onset here! (do I get a prize?) Age 40, cough variant -- started

with

a vengeance back in September hope to be on Xolair by the end of

January.

Found allergies (lucky me...) and have just found out the nasal and

inhaled

steroids are causing a rapid rise in eye pressure and still have fungus

on

vocal cords so Dr's want me off the inhaled steroids asap.

Funny thing is that after learning about asthma I realized that I must

have had it mildly for years but it took a home remodel to bring it on

full

force. To be honest; I just want to be off meds and have that awful

burning

feeling in my bronchi tubes (like sucking in cold air) to disappear....

I

am new to this and I am already fed up and tired of it! I am tired all

the

time now and just want my old life back... I feel bad for those of you

that

have had this for years (all your lives...).

-sd

[Guest guest]

Jane,

I have an allergist who seems to be doing a good job. I was sent to the

National Jewish Hospital in Denver, Colorado last August for a week long

stay to determine the cause of the asthma and recommend treatment. The

doctors at the center did everything from drawing blood many times to

multiple breathing tests. At the end of the evaluation, I was able to

be removed from three medications I also found out that I did not have

the lung diseases that affects most asthmatics.

I have a endocrinologist and a EENT specialist that I see routinely. I

use a nasal rinse every time I shower which clears up the nasal passages

but only for about 4 hours. I also have a nebuolizer and use it on

those days when the tightness in my chest is quite apparent; which

lately has been quite often. This is when the chest and nasal

congestion and persistent coughing seems to return. I have to use an

Albuterol inhaler until I can get home to use the longer lasting

medication (Foradil).

Since I found out I was allergic to cats, my allergist has been

demanding that I remove the cat from the house. The concern I have with

removing the cat from the house is that we adopted my son (Cody) at the

age of 7; he is now 15. He was abused extensively by the boyfriend of

his mother and has ADHD. Since the adoption, Cody has developed quite

an attachment to the cat. I am afraid abandoning it now will cause him

to regress in his treatments. He is doing very well and I don't want to

jeopardize his progress.

Since learning of my allergy to cats, my allergist insists the cat is

the cause of the congestion, asthma flare-ups and the coughing. When we

adopted Cody, the cat was part of the family. I was doing very well and

had no asthmatic symptoms. I could do anything. Now, I find the minor

exercize causes difficulty and chest tightness. As a result, I don't

get much exercise other than the walking I do every day. I have owned

the cat long before I was diagnosed with asthma and did fine with none

of the symptoms I have now. I can't believe simply being diagonsed with

asthma would mean removing the cat from the house. I can't believe one

day I can do well with the cat and the next day have to get rid of it.

Have a Good Day

Steve Zimmerman

________________________________

From: [mailto: ]

On Behalf Of jane mosher

Sent: Thursday, January 04, 2007 12:01 PM

Subject: RE: [ ] Adult onset asthma???

Steve--Have they put you on sinus rinse or the grossan nasal irrigator.

do you have a clean clean bedroom and a room air filter for it? pets?

mine cat had to go--16500 on the rast to him. Have you seen a sinus

specialist/allergist, etc? Did they do a chest ct? Do you have something

like bronchiactesis? I am determined to get a life back. This URI caused

pus like stuff to come up and the wheezing was horizonal in my bronchea.

I kept a 100 degree fever for about week and did not sleep much. The

fever broke today. I feel like a new woman. Jane

Steve Zimmerman <steve@... <mailto:steve%40ksdot.org> > wrote: I

agree with you. I hate the stuff and want my old life back also. I

was diagonsed with asthma in 2003. It went from mild to severe in 3

years. What I hate most is not knowing when an asthma attack will show

up (which is quite frightning when it happens) and all the coughing

associated with trying to remove the increased nasal drainage from my

lungs.

Have a Good Day

Steve Zimmerman

________________________________

From:

<mailto: %40>

[mailto:

<mailto: %40> ]

On Behalf Of Suzanne DePaolis

Sent: Thursday, January 04, 2007 8:47 AM

<mailto: %40>

Subject: Re: [ ] Adult onset asthma???

adult onset here! (do I get a prize?) Age 40, cough variant -- started

with

a vengeance back in September hope to be on Xolair by the end of

January.

Found allergies (lucky me...) and have just found out the nasal and

inhaled

steroids are causing a rapid rise in eye pressure and still have fungus

on

vocal cords so Dr's want me off the inhaled steroids asap.

Funny thing is that after learning about asthma I realized that I must

have had it mildly for years but it took a home remodel to bring it on

full

force. To be honest; I just want to be off meds and have that awful

burning

feeling in my bronchi tubes (like sucking in cold air) to disappear....

I

am new to this and I am already fed up and tired of it! I am tired all

the

time now and just want my old life back... I feel bad for those of you

that

have had this for years (all your lives...).

-sd

[Guest guest]

Did you see Alam at National Jewish? He is head of allergy and immunolgy and he

missed my issues. He told me my ige was too low for xolair. I came home and

looked up the prescribing directions for xolair and I was midrange. As it turns

out, my ige rast to cats was 16500 and that's artifically low since I have been

on prednisone for a year and a half. When I showed my pulmonologist my inhalant

rast results to pollens, my iga, my low igg3 count, t and b, my iga, igm igg to

toxic molds, my tricothecenes, etc. suddenly there was vindication and guess

what? I am not imagining my asthma.

Have they done a rast for inhalants, danders, etc. I begged them to at NJ. I

had to come back home and spend 20000 dollars of my own money on tests to prove

everything to my doctors and my significant other.

If you can, get the cat out of there. It usually takes about to 2 years for

cat induced asthma to manifest to the point I have it and you may. Conversely,

getting rid of the dander once the animal is removed is almost impossible and

takes 2 years at least for the proteins to deteriorate. I replaced my HVAC

systems and all the ducting and got new mattresses and upholstery. Cat dander

is very sticky. The doctor told me to move to a newer pet free house. When the

cat was in the house, they thought I was dying--couldn't blow over 200 on the

flowmeter and now a year after he departed I am beginning to improve.

I use sinus rinse twice a day as they told me to do at NJ and also gargle with

it as well. When I am sick, I use it 3 times a day.

Steve Zimmerman <steve@...> wrote:

Jane,

I have an allergist who seems to be doing a good job. I was sent to the

National Jewish Hospital in Denver, Colorado last August for a week long

stay to determine the cause of the asthma and recommend treatment. The

doctors at the center did everything from drawing blood many times to

multiple breathing tests. At the end of the evaluation, I was able to

be removed from three medications I also found out that I did not have

the lung diseases that affects most asthmatics.

I have a endocrinologist and a EENT specialist that I see routinely. I

use a nasal rinse every time I shower which clears up the nasal passages

but only for about 4 hours. I also have a nebuolizer and use it on

those days when the tightness in my chest is quite apparent; which

lately has been quite often. This is when the chest and nasal

congestion and persistent coughing seems to return. I have to use an

Albuterol inhaler until I can get home to use the longer lasting

medication (Foradil).

Since I found out I was allergic to cats, my allergist has been

demanding that I remove the cat from the house. The concern I have with

removing the cat from the house is that we adopted my son (Cody) at the

age of 7; he is now 15. He was abused extensively by the boyfriend of

his mother and has ADHD. Since the adoption, Cody has developed quite

an attachment to the cat. I am afraid abandoning it now will cause him

to regress in his treatments. He is doing very well and I don't want to

jeopardize his progress.

Since learning of my allergy to cats, my allergist insists the cat is

the cause of the congestion, asthma flare-ups and the coughing. When we

adopted Cody, the cat was part of the family. I was doing very well and

had no asthmatic symptoms. I could do anything. Now, I find the minor

exercize causes difficulty and chest tightness. As a result, I don't

get much exercise other than the walking I do every day. I have owned

the cat long before I was diagnosed with asthma and did fine with none

of the symptoms I have now. I can't believe simply being diagonsed with

asthma would mean removing the cat from the house. I can't believe one

day I can do well with the cat and the next day have to get rid of it.

Have a Good Day

Steve Zimmerman

________________________________

From: [mailto: ]

On Behalf Of jane mosher

Sent: Thursday, January 04, 2007 12:01 PM

Subject: RE: [ ] Adult onset asthma???

Steve--Have they put you on sinus rinse or the grossan nasal irrigator.

do you have a clean clean bedroom and a room air filter for it? pets?

mine cat had to go--16500 on the rast to him. Have you seen a sinus

specialist/allergist, etc? Did they do a chest ct? Do you have something

like bronchiactesis? I am determined to get a life back. This URI caused

pus like stuff to come up and the wheezing was horizonal in my bronchea.

I kept a 100 degree fever for about week and did not sleep much. The

fever broke today. I feel like a new woman. Jane

Steve Zimmerman <steve@... <mailto:steve%40ksdot.org> > wrote: I

agree with you. I hate the stuff and want my old life back also. I

was diagonsed with asthma in 2003. It went from mild to severe in 3

years. What I hate most is not knowing when an asthma attack will show

up (which is quite frightning when it happens) and all the coughing

associated with trying to remove the increased nasal drainage from my

lungs.

Have a Good Day

Steve Zimmerman

________________________________

From:

<mailto: %40>

[mailto:

<mailto: %40> ]

On Behalf Of Suzanne DePaolis

Sent: Thursday, January 04, 2007 8:47 AM

<mailto: %40>

Subject: Re: [ ] Adult onset asthma???

adult onset here! (do I get a prize?) Age 40, cough variant -- started

with

a vengeance back in September hope to be on Xolair by the end of

January.

Found allergies (lucky me...) and have just found out the nasal and

inhaled

steroids are causing a rapid rise in eye pressure and still have fungus

on

vocal cords so Dr's want me off the inhaled steroids asap.

Funny thing is that after learning about asthma I realized that I must

have had it mildly for years but it took a home remodel to bring it on

full

force. To be honest; I just want to be off meds and have that awful

burning

feeling in my bronchi tubes (like sucking in cold air) to disappear....

I

am new to this and I am already fed up and tired of it! I am tired all

the

time now and just want my old life back... I feel bad for those of you

that

have had this for years (all your lives...).

-sd

[Guest guest]

Adah, what does this mean:

" Because of lung damage from untreated reflux and asthma, I will always have

some sob... " ---- the " sob " part?

My story:

Diagnosed as a young child (6 or 7) and had quite bad bronchial asthma that

put me in bed 2 or 3 weeks at least every winter season. But it didn't

affect me much at other times and no hospital trips.

Like Doug, the group co-founder, mine more or less disappeared in my late

teens but came back in my late 30s. I also smoked for 7 yrs (16-23yrs) and

had worse colds than most others but wasn't treating for asthma all

throughout that time. In my late 30s, I'd had a bad URI and after it healed,

I had a very small pain in the upper right lung that " pulled " when I took a

breath so I saw an asthma specialist on instinct. Dx: Mild asthma and I went

on with albuterol inhaler for several years, using it only as needed 2x to

0x per month. Truly mild. But I always had a lot of morning nasal discharge

(I thought it was normal and everyone got it) and a few weeks each year of

pretty severe hayfever.

Then in my 40s I got a terrible flu at the start of the school year and was

very sick, on and off/tapering steroids until the following May. Small break

during the summer and the next fall I had a repeat school season. I've never

been the same since and have moderate to severe cough variant with some

closing up/wheezing incidents occurring daily more or less. My food

sensitivity increased in a lot after this and I became a LOT more sensitive

to smells and anything airborne. This is a hard season for me as everyone is

burning in their fireplace .... Funny thing is that my morning nasal

issues are less now and I no longer have much hayfever symptoms in spring

and fall.

Since then I've been on Serevent, albuterol inhaler and pills, nebulized

albuterol, Advair, Qvair, Flovent, Flonase, Allegra, a codeine cough med,

Accolate, Singular, theophylline, prednisone, prednisolone (including IV)

and numerous OTC meds for coughing, phlegm and allergies. I began Xolair

over a year ago as Singulair, Flovent and albuterol and allergy meds as

needed weren't stopping it from occurring daily and the coughing is bad.

On " outgrowing " childhood asthma, I've been told by 3 pulmonary docs that

there is no such thing - you have it and it lessens in severity in the

teens/20s, coming on more strongly later which is when people get dx'd.

Seems logical that during teens/20s you are at your most vital so the

symptoms and affects would be the least then come on stronger as you get

older and the body begins degrading...

[Guest guest]

It's the abbreviation for shortness of breath. My pulmonologist and allergist

both agree that the xolair will not completely cure the asthma, but it will

lessen the severe attacks from allergies and eventually I may be able to

dispense with all meds but the albuterol/neb. That is the goal.

Thanks for asking.

Adah

Leena Grace <leenagrace@...> wrote:

Adah, what does this mean:

" Because of lung damage from untreated reflux and asthma, I will always have

some sob... " ---- the " sob " part?

My story:

Diagnosed as a young child (6 or 7) and had quite bad bronchial asthma that

put me in bed 2 or 3 weeks at least every winter season. But it didn't

affect me much at other times and no hospital trips.

Like Doug, the group co-founder, mine more or less disappeared in my late

teens but came back in my late 30s. I also smoked for 7 yrs (16-23yrs) and

had worse colds than most others but wasn't treating for asthma all

throughout that time. In my late 30s, I'd had a bad URI and after it healed,

I had a very small pain in the upper right lung that " pulled " when I took a

breath so I saw an asthma specialist on instinct. Dx: Mild asthma and I went

on with albuterol inhaler for several years, using it only as needed 2x to

0x per month. Truly mild. But I always had a lot of morning nasal discharge

(I thought it was normal and everyone got it) and a few weeks each year of

pretty severe hayfever.

Then in my 40s I got a terrible flu at the start of the school year and was

very sick, on and off/tapering steroids until the following May. Small break

during the summer and the next fall I had a repeat school season. I've never

been the same since and have moderate to severe cough variant with some

closing up/wheezing incidents occurring daily more or less. My food

sensitivity increased in a lot after this and I became a LOT more sensitive

to smells and anything airborne. This is a hard season for me as everyone is

burning in their fireplace .... Funny thing is that my morning nasal

issues are less now and I no longer have much hayfever symptoms in spring

and fall.

Since then I've been on Serevent, albuterol inhaler and pills, nebulized

albuterol, Advair, Qvair, Flovent, Flonase, Allegra, a codeine cough med,

Accolate, Singular, theophylline, prednisone, prednisolone (including IV)

and numerous OTC meds for coughing, phlegm and allergies. I began Xolair

over a year ago as Singulair, Flovent and albuterol and allergy meds as

needed weren't stopping it from occurring daily and the coughing is bad.

On " outgrowing " childhood asthma, I've been told by 3 pulmonary docs that

there is no such thing - you have it and it lessens in severity in the

teens/20s, coming on more strongly later which is when people get dx'd.

Seems logical that during teens/20s you are at your most vital so the

symptoms and affects would be the least then come on stronger as you get

older and the body begins degrading...