another person with itchy rash after Xolair...

[Guest guest]

Hi All

I have been on Xolair on and off for about 18 months - without much success, but

I will be persisting as it is better than relying on prednisone.

I have had a couple of stops and starts over this time though. The gaps were

caused by severe ER visits which curtailed any further participation somewhat,

including having a really bad one whilst having the Xolair administered.

I have suffered badly with the itchy rashes for most of the period I have been

on the treatment and tried everything to relieve the itching - the hospital also

tried a range of options. Although this might sound simplistic the only relief I

have received was by using Calamine Lotion - made me look very white but it

works - takes the sting out of the little lumps and helps with the scratching. I

had sunk to the stage where I was wearing gloves at night to stop the

scratching.

Hope this might help someone else experiencing the Xolair scratch.

E

[Guest guest]

I've been surprised that so many folks have posted that they are

having itchy rashes either since starting Xolair or coincidental to

their injections.

I am three weeks late getting my Xolair due to a bureaucratic snafu

with getting reapproved with insurance. My next dose arrives

tomorrow, thank goodness. Funny thing is, I am itchy WITHOUT my

Xolair - my allergic eczema is coming back. I didn't have any

problems with it when I was taking all that pred prior to Xolair

(pred needed to make my lungs work). Now without pred and Xolair my

sinuses have started up, my eczema's back, and my reflux is back

thanks to the mucus in my sinuses. Worse than that, I am SO TIRED

from my allergic fatigue.

I LOVE XOLAIR.

Addy

Group co-owner

insert standard disclaimer about talking to your own doctor about

anything posted here.

>

> Hi All

>

> I have been on Xolair on and off for about 18 months - without much

success, but I will be persisting as it is better than relying on

prednisone.

>

> I have had a couple of stops and starts over this time though. The

gaps were caused by severe ER visits which curtailed any further

participation somewhat, including having a really bad one whilst

having the Xolair administered.

>

> I have suffered badly with the itchy rashes for most of the period

I have been on the treatment and tried everything to relieve the

itching - the hospital also tried a range of options. Although this

might sound simplistic the only relief I have received was by using

Calamine Lotion - made me look very white but it works - takes the

sting out of the little lumps and helps with the scratching. I had

sunk to the stage where I was wearing gloves at night to stop the

scratching.

>

> Hope this might help someone else experiencing the Xolair scratch.

>

> E

>

>

[Guest guest]

I finally received word from my xolair doctor about the warnings that are being

considered for xolair. He is having a meeting for all of his xolair patients

and I cannot go to either meeting! But my husband is going for me. The doctor

presently has 80 xolair patients and none of them have had an anaphylactic

reaction. One had a bump on her arm but that went away after a few days. I

don't think he mentioned rashes either, although JoAnn could probably speak to

that. He was also very interested in this forum and the responses to xolair as

his clinic is also a research clinic for xolair and other asthma and diabetic

meds. I guess we will find out if we have to wait two hours in his office.

I'll just take a good book, my husband can do his walks, or I'll take some

needlework to do. That will really ruin a morning. I can understand the

concern for those of you who get the shots twice a month--that's a lot of hours

in the doctors office that could be used in some other

more meaningful way. But then I guess it is always better to err on the side

of caution?????

Have a great weekend--breathe easy--

Adah

pyle456 <coachmac@...> wrote:

I've been surprised that so many folks have posted that they are

having itchy rashes either since starting Xolair or coincidental to

their injections.

I am three weeks late getting my Xolair due to a bureaucratic snafu

with getting reapproved with insurance. My next dose arrives

tomorrow, thank goodness. Funny thing is, I am itchy WITHOUT my

Xolair - my allergic eczema is coming back. I didn't have any

problems with it when I was taking all that pred prior to Xolair

(pred needed to make my lungs work). Now without pred and Xolair my

sinuses have started up, my eczema's back, and my reflux is back

thanks to the mucus in my sinuses. Worse than that, I am SO TIRED

from my allergic fatigue.

I LOVE XOLAIR.

Addy

Group co-owner

insert standard disclaimer about talking to your own doctor about

anything posted here.

>

> Hi All

>

> I have been on Xolair on and off for about 18 months - without much

success, but I will be persisting as it is better than relying on

prednisone.

>

> I have had a couple of stops and starts over this time though. The

gaps were caused by severe ER visits which curtailed any further

participation somewhat, including having a really bad one whilst

having the Xolair administered.

>

> I have suffered badly with the itchy rashes for most of the period

I have been on the treatment and tried everything to relieve the

itching - the hospital also tried a range of options. Although this

might sound simplistic the only relief I have received was by using

Calamine Lotion - made me look very white but it works - takes the

sting out of the little lumps and helps with the scratching. I had

sunk to the stage where I was wearing gloves at night to stop the

scratching.

>

> Hope this might help someone else experiencing the Xolair scratch.

>

> E

>

>

[Guest guest]

> ]

> >

>

> Hi Adah

I heard yesterday that you will not be attending the class/meeting on

Xolair updated, but I am happy to hear and read that your husband

will be attending. Don't worry things will be ok. I will see at your

next Xolair treatment.

Love

Jo Ann

>

>

>

>

> ---------------------------------

> Get your own web address.

> Have a HUGE year through Small Business.

>

>

[Guest guest]

My hemmorhoids have been itching since starting on Xolair and I fear

that sitting in the Doctor's office for two hours is going to cause

a lot of discomfort. I wonder if the FDA might grant an exemption

from their new regs for people who find sitting too long to be a

pain in the butt.

> >

> > Hi All

> >

> > I have been on Xolair on and off for about 18 months - without

much

> success, but I will be persisting as it is better than relying on

> prednisone.

> >

> > I have had a couple of stops and starts over this time though.

The

> gaps were caused by severe ER visits which curtailed any further

> participation somewhat, including having a really bad one whilst

> having the Xolair administered.

> >

> > I have suffered badly with the itchy rashes for most of the

period

> I have been on the treatment and tried everything to relieve the

> itching - the hospital also tried a range of options. Although

this

> might sound simplistic the only relief I have received was by

using

> Calamine Lotion - made me look very white but it works - takes the

> sting out of the little lumps and helps with the scratching. I had

> sunk to the stage where I was wearing gloves at night to stop the

> scratching.

> >

> > Hope this might help someone else experiencing the Xolair

scratch.

> >

> > E

> >

> >

[Guest guest]

Dear Jo Ann:

My husband did not make the xolair meeting, but maybe you could write me a

little bit about it and what was said. That would be helpful. Thanks.

Otherwise I'll see you in a week for my next shot.

Adah

joannnana <joannnana@...> wrote:

> ]

> >

>

> Hi Adah

I heard yesterday that you will not be attending the class/meeting on

Xolair updated, but I am happy to hear and read that your husband

will be attending. Don't worry things will be ok. I will see at your

next Xolair treatment.

Love

Jo Ann

>

>

>

>

> ---------------------------------

> Get your own web address.

> Have a HUGE year through Small Business.

>

>

[Guest guest]

Dear group members,

I am wondering if I should stop taking xolair. I have been getting total body

itchiness which I have never had prior to xolair, sinusitus like I have never

had prior to taking xolair and am beginning to wonder if these are side-effects

of xolair. This tends to happen when I gert delayed taking my xolair and am

wondering if it is a rebound effect of taking the xolair, in between shots,

particularly if I am delayed.

I have never had any eczema type rash or itching prior to taking xolair and

although I have had sinus problems, this one is a doozy. so much so that I am

beginning to wonder if this is a rebound from xolair. wondering if I should stop

for a while and see if I am ok from these. any thoughts?

somewhat concerned that if I get off it, my asthma will come back, and that it

may be difficult to convince my insurance co to pay for it again. would love

your input on it.'

Elle

pyle456 <coachmac@...> wrote:

I've been surprised that so many folks have posted that they are

having itchy rashes either since starting Xolair or coincidental to

their injections.

I am three weeks late getting my Xolair due to a bureaucratic snafu

with getting reapproved with insurance. My next dose arrives

tomorrow, thank goodness. Funny thing is, I am itchy WITHOUT my

Xolair - my allergic eczema is coming back. I didn't have any

problems with it when I was taking all that pred prior to Xolair

(pred needed to make my lungs work). Now without pred and Xolair my

sinuses have started up, my eczema's back, and my reflux is back

thanks to the mucus in my sinuses. Worse than that, I am SO TIRED

from my allergic fatigue.

I LOVE XOLAIR.

Addy

Group co-owner

insert standard disclaimer about talking to your own doctor about

anything posted here.

>

> Hi All

>

> I have been on Xolair on and off for about 18 months - without much

success, but I will be persisting as it is better than relying on

prednisone.

>

> I have had a couple of stops and starts over this time though. The

gaps were caused by severe ER visits which curtailed any further

participation somewhat, including having a really bad one whilst

having the Xolair administered.

>

> I have suffered badly with the itchy rashes for most of the period

I have been on the treatment and tried everything to relieve the

itching - the hospital also tried a range of options. Although this

might sound simplistic the only relief I have received was by using

Calamine Lotion - made me look very white but it works - takes the

sting out of the little lumps and helps with the scratching. I had

sunk to the stage where I was wearing gloves at night to stop the

scratching.

>

> Hope this might help someone else experiencing the Xolair scratch.

>

> E

>

>

[Guest guest]

>

> Dear group members,

> I am wondering if I should stop taking xolair. I have been getting

total body itchiness which I have never had prior to xolair, sinusitus

like I have never had prior to taking xolair and am beginning to

wonder if these are side-effects of xolair. This tends to happen when

I gert delayed taking my xolair and am wondering if it is a rebound

effect of taking the xolair, in between shots, particularly if I am

delayed.

>

> I have never had any eczema type rash or itching prior to taking

xolair and although I have had sinus problems, this one is a doozy. so

much so that I am beginning to wonder if this is a rebound from

xolair. wondering if I should stop for a while and see if I am ok from

these. any thoughts?

>

> somewhat concerned that if I get off it, my asthma will come back,

and that it may be difficult to convince my insurance co to pay for it

again. would love your input on it.'

>

> Elle

>

Elle, speak with your doctor about this in length. Most people who

have experienced this usually find it is another source causing the

itching. Also, coming off Prednisone causes this and with time it will go away.

Again, follow your doctors advice!

Doug

Group founder