Re: Itchy rash

January 21, 2002

--,

My son gets an itchy rash around his mouth and he gets really agitated

and more defiant when we have a yeast die-off. It was intolerable when

we put him on Nystatin and so after 3 weeks on it (and enzymes) even

at a really low dose we stopped it and are now using 3 different

pro-biotics to see if we can take care of it this way. I would suspect

the culturelle. We just put Elijah on Pro-bio Gold and we are seeing a

return to the mouth rash and attitude. Not as bad as the Nystatin but

not as good as when we are not having a yeast flare up and on enzymes.

The yeast definately messes with our success. We are hoping to get

some of theese nasty buggers with the 3 different pro-biotics, but if

this does not work we will have to try Diflucan. Although Dana has had

reaally good success with GSE (grapefruit seed extract) and I may

possibly try this first. Good luck Patti

- In @y..., Thorpeheather@a... wrote:

> I don't know, as soon as we have a good spell we seem to go down

hill again

> just as quickly!

>

> has an itchy rash over parts of his back and a few on his

stomach.

> They are quite large and red, and look a little dry and he has had

them for

> about four days. We have just had to give him epsom baths etc as

his phenol

> level seemed to be high again. We also started him on Culturelle a

couple of

> weeks ago. He seems pretty aggitated at the moment and easy to

upset (you

> know, the eggshell situation!) plus quite aggressive. We haven't

seen a

> reaction like this in a long time. Does anyone recognise this at

all? Can

> you get a rash from yeast die off? Or phenol reactions? I am really

> disappointed just now as Christmas went so well and we have just had

some

> fantastic results at preschool. This will set him back unless I can

sort it.

>

January 21, 2002

Hi ,

First, I have to say how sorry I am... I really hope things will start

working better for your son. I'm sure you will find what's causing his

distress and will " fix " him quickly

I do recognize all these symptoms

Do you happen to know if your son is low sulfur? I had a similar

problem very recently and all the symptoms that you described sound so

similar... They all vanished the minute I took NAC.

First I thought it's yeast or phenol, so I tried the Epsom salts, and

they did help some, but not really...

Maybe your son has a low cysteine problem?

I don't want to suggest you to try feeding him sulfur foods, because I

know how bad I react to them, no matter how low sulfur I am, so... I

don't know...

Hope this helps....

Valentina

> has an itchy rash over parts of his back and a few on his

stomach.

> They are quite large and red, and look a little dry and he has had

them for

> about four days. We have just had to give him epsom baths etc as

his phenol

> level seemed to be high again. We also started him on Culturelle a

couple of

> weeks ago. He seems pretty aggitated at the moment and easy to

upset (you

> know, the eggshell situation!) plus quite aggressive. We haven't

seen a

> reaction like this in a long time. Does anyone recognise this at

all? Can

> you get a rash from yeast die off? Or phenol reactions? I am

really

> disappointed just now as Christmas went so well and we have just had

some

> fantastic results at preschool. This will set him back unless I can

sort it.

>

January 21, 2002

,

Is he on any products that contain vitamin B? I put my son on a B

vitamin product a few weeks ago and after a few days he developed a

rash all over his body and was stimming more, even after I reduced to

a low dose. I don't recall that the rash itched, though.

Does your son have celiac disease? If he does and has any gluten, a

rash can be a possible reaction.

I don't recall anyone saying they developed a rash from Culturelle,

especially after a few weeks, but after investigating other

possibilities, I would consider lowering the dose or dropping it for

a few days. Perhaps it is a die-off effect - in that case, the rash

is a good thing and you could just reduce the dose, then build up

gradually.

> I don't know, as soon as we have a good spell we seem to go down

hill again

> just as quickly!

>

> has an itchy rash over parts of his back and a few on his

stomach.

> They are quite large and red, and look a little dry and he has had

them for

> about four days. We have just had to give him epsom baths etc as

his phenol

> level seemed to be high again. We also started him on Culturelle a

couple of

> weeks ago. He seems pretty aggitated at the moment and easy to

upset (you

> know, the eggshell situation!) plus quite aggressive. We haven't

seen a

> reaction like this in a long time. Does anyone recognise this at

all? Can

> you get a rash from yeast die off? Or phenol reactions? I am

really

> disappointed just now as Christmas went so well and we have just

had some

> fantastic results at preschool. This will set him back unless I

can sort it.

>

January 21, 2002

Thanks to everyone who replied to my email. I am glad to report that

has calmed down a lot since I wrote. On Saturday he was screaming and

aggressive for 21/2hrs. This is the first time I had seen him this bad since

pre enzymes. Anyway, it is looking as though it is a phenol problem again as

he had epsom salt baths, milk thistle etc and seems to be getting calmer by

the day. Still has his itchy spots though but I don't think they are so

angry. I'll keep an eye on them and see if there is a difference when I next

use Culturelle, just in case there is a problem or die off.

Now that it seems as though has a permenant phenol problem I have a

dilemma. B6 appears to help his speech a lot but although we were giving it

to him in very small doses as a multi vitamin with P5P we are now thinking

that this is going to have to go. Trouble is, I am afraid that we may lose

some of his emerging speech too.

Valentina - could you please let me know what NAC stands for? Probably

something really obvious but doesn't come to mind. Ta.

January 22, 2002

,

Some parents (including myself) report reasonably good results

reducing phenol problem by adding molybdenium to the diet.

Lenny.

> Thanks to everyone who replied to my email. I am glad to report

that

> has calmed down a lot since I wrote. On Saturday he was screaming

and

> aggressive for 21/2hrs. This is the first time I had seen him this

bad since

> pre enzymes. Anyway, it is looking as though it is a phenol

problem again as

> he had epsom salt baths, milk thistle etc and seems to be getting

calmer by

> the day. Still has his itchy spots though but I don't think they

are so

> angry. I'll keep an eye on them and see if there is a difference

when I next

> use Culturelle, just in case there is a problem or die off.

>

> Now that it seems as though has a permenant phenol problem I

have a

> dilemma. B6 appears to help his speech a lot but although we were

giving it

> to him in very small doses as a multi vitamin with P5P we are now

thinking

> that this is going to have to go. Trouble is, I am afraid that we

may lose

> some of his emerging speech too.

>

> Valentina - could you please let me know what NAC stands for?

Probably

> something really obvious but doesn't come to mind. Ta.

>

January 22, 2002

> Could you please let me know what NAC stands for?

Check this on NAC:

http://www.ivillagehealth.com/library/onemed/content/0,7064,241012_248

526,00.html

January 22, 2002

> Now that it seems as though has a permenant phenol problem I

have a

> dilemma. B6 appears to help his speech a lot but although we were

giving it

> to him in very small doses as a multi vitamin with P5P we are now

thinking

> that this is going to have to go. Trouble is, I am afraid that we

may lose

> some of his emerging speech too.

You can consider a product with B6 but not in the P5P form, because I

believe it is the P5P form of B6 that aggravates phenol issues.

http://www.autismchannel.net/dana/phenol.htm

Dana

January 25, 2002

Hi ,

I just wanted to mention that my daughter's eczema always flares up with the

epsom salt baths. I started putting a little bit of glycerin in the bath

with the salts and that has helped to prevent the dry itchy rashes. I am way

behind on reading my e.mail so if this has already been addressed, I

apologize for the repeat.

Tana

In a message dated 1/22/02 11:07:30 AM,

writes:

<<Anyway, it is looking as though it is a phenol problem again as

he had epsom salt baths, milk thistle etc and seems to be getting calmer by

the day. Still has his itchy spots though but I don't think they are so

angry. >>

March 29, 2006

Hi Pam,

I don't get an actual rash, but I get very, very itchy every few weeks for a

week or so. Mine is usually on my abdomen and scalp and arms.

chris in minn

[ ] itchy rash

Has anyone experienced a itchy rasy with CML. As a few of you know I

was dx'd with CML a few weeks ago. Approx 4 months prior I noticed a

itchy rash in the middle of my back and right shoulder (very

irratating!). Any comments? Thank you Pam

March 29, 2006

yes, the same happened to my mother, but her itchy rash was in her legs

[ ] itchy rash

Has anyone experienced a itchy rasy with CML. As a few of you know I

was dx'd with CML a few weeks ago. Approx 4 months prior I noticed a

itchy rash in the middle of my back and right shoulder (very

irratating!). Any comments? Thank you Pam

March 29, 2006

This topic comes up often - -Rashes.

However the key here is that you said you noticed it prior to diagnosis.

After being a group member for almost 6 years I can tell you that previously

this Rash topic prior to dx has been around before too.

I personally had a the same experience which later was considered to

possibly have been

A slight case of shingles.

I had several episodes of a rash appearing on my right leg and arm only.

Have not had any since but I really think that this had to do with my immune

system being weak.

Dx 5-2000

Int/arc/hydrea

Gleevec 6-2001

Pcru 8-2001

From: pmiller789<mailto:pmiller789@...>

<mailto: >

Sent: Wednesday, March 29, 2006 9:15 AM

Subject: [ ] itchy rash

Has anyone experienced a itchy rasy with CML. As a few of you know I

was dx'd with CML a few weeks ago. Approx 4 months prior I noticed a

itchy rash in the middle of my back and right shoulder (very

irratating!). Any comments? Thank you Pam

February 24, 2007

my last xolair shots left me itching as well. I thought it was possibly from

receiving antibiotic on the same day. Then I thought it was because of the

medicine not being mixed as well as it should, being around yarn in the

basement, using a different detergent etc. Next injection I will be careful to

make sure I take an allergy medication first. The itching ended up lasting for

about 4 days. I am not ruling out anything . I have been on xolair for a year

and my life has been wonderful because of it. Sharon

GoGo away, before I drop a house on you!!!!

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February 24, 2007

i get rashes all the time, not from the xolair, but b/c i have eczema. if you

do'nt mind me asking, how much atarax are you taking? when my itching is bad, i

have been " approved " to take up to 75mg (100 if i'm really desperate, but i try

not to), which usually helps. if you're not taking that much, maybe you can

call your dr and ask about increasing your dose? also, the elecon cream did

absolutely nothing for me. it must help someone, but it wasn't me. maybe you

need something stronger?

as i've said before, the only reaction i get from xolair is better breathing

and fewer eczema flares. =o)

here's a thought for you....because i know this is how it is for me.

is it possible that the xolair just isn't lasting the full two weeks (or

month, whatever your dosing is)? after three years, i'm still not lasting the

entire 2 weeks!!!! anyway, so, your first 7 days is great, and then by day 8

it starts to wear off (or some other scientific word). your body would be more

likely to react and have reactions if the xolair wasn't working in full force.

eventually, you get a good mix of assorted meds in you to control the skin

flare, and then its ok til your next dose. you stop the newer skin-related

meds, get your xolair, and then after a while, it starts to wear off....and you

flare....and you just go round and round. you can develop eczema at any time in

your life, so maybe?? its just a thought.

for me, i missed a dose of xolair (i'm on 375 every two weeks, and its not

enough) b/c i was in the hosp and my dr wasn't comfortable giving it to me with

the other meds from the hospital (cellulitis). so, i'm going into week FOUR of

no xolair. its safe to say i'm pretty unhappy. my skin is flaring, even with

the most potent cream i've been on in a long time (clobetesol). my lungs are

starting to complain more, and its further complicated by the increase in reflux

from the antibiotics for the cellulitis. i'm probably feeling about as

miserable as you - i'm one big itchy mess!!!! and it stinks!

as for your itching, you might get temporary relief from a soak in a bath with

aveeno bath stuff in it (as long as you're not allergic to oatmeal). for me, its

generally soothing, but unfortunately, it doesn't last forever once you get out

of the tub. i'm sure they told you this, but make sure you moisturize too - my

dr has me using eucerin - it feels similar to crisco, but lemme tell ya - its

the best thing to moisturize with!

anyway, i hope you find a solution and your recent eczema outbreaks (or

whatever they are) are not related to xolair!. feel better!!!!

heather

tiredofsteroids <sitesee@...> wrote:

I've been on Xolair for a year now and am tapering my steroids very

gradually, since my adrenals had quit making steroids due to what I've

been taking. I'm now down to 60% of what I was on when I started

Xolair. I haven't been having any adverse reactions to Xolair but now

I'm wondering about something that's been happening recently.

Last month, about a week after I received my Xolair shot, I became

extremely itchy all over and that lasted for about 5 days. The same

thing happened this month, but this time I have a wicked rash on my

trunk in addition to unrelenting severe itching. The timing is the

same - this time it started 8 days after my Xolair shot and today is

day 4 of the misery.

I've been living on benadryl around the clock with only partial relief

for short periods of time. Today I saw my doc's PA and she gave me a

steroid shot, Atarax and Elocon cream, which I started immediately.

It's 3 AM here in Florida and the itching is so bad I can't sleep. The

Atarax isn't working nearly as well as the Benadryl was, but I can't

take Benadryl now until the Atarax dose wears off. Aargh!!!

The timing of my symptoms after the Xolair shots may be coincidental as

pollen counts have been very high for weeks, but the rash is totally

new for me and raises my suspicion that it may be Xolair related. In

the past I've NEVER had rashes, no matter how much I itched.

I'm wondering if any of you have had a similar experience. Thanks -

Fran

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February 25, 2007

Fran - I am now absolutely convinced the reduction of steroids in conjunction

with the administration of Xolair can cause such reactions. It done happened to

me.

Ohldepharte

----- Original Message -----

From: tiredofsteroids

Sent: Saturday, February 24, 2007 3:23 AM

Subject: [ ] Itchy rash