Re: Re: Sinus surgery - xolair reactions, infusion centers

[Guest guest]

SD - the reaction was unlike anything I have ever experienced in all my years of

allergies and recent and childhood asthma. About 19 hours after my initial 375

mg injections, I awoke sneezing. Immediately an enormous pressure developed in

my nasal and surrounding area - felt like it were going to explode. My throat

became somewhat swollen, swallowing a bit difficult and breathing a bit labored.

Like a good boy, I called the hospital dept. where the drug had been

administered and they told me to hotfoot it to emergency. I did so, and about

three hours later they got around to giving me 150 mg. of liquid prednisone

injection and, I think, an antihistamine. The pulm. doc says the event had

nothing to do with the Xolair. However, I'm convinced the reaction was directly

related to my going off prednisone a few days prior - or the possibility that I

might have forgotten to take an Allegra the day of the injection - or both. I

had a reaction a few weeks before when I had decided to discontinue Allegra to

see what would happen. I started itching all over - it was unreal - intense

itching on every part of my body. It stopped when I took an Allegra. Waited a

few days and tried it again to see if it would happen again. It did. I'm an

Allegra junkie. Alas.

Terry a.k.a. Ohldepharte

----- Original Message -----

From: SD Designer

Sent: Wednesday, February 21, 2007 10:38 PM

Subject: [ ] Re: Sinus surgery - xolair reactions, infusion centers

Terry,

I read your message, below, and was wondering just what happened the first

time? Theoretically xolair shouldn't cause reactions but I'm hearing more and

more that it can in some people - and apparently rather significantly so as you

experienced. What do they do for you in the hospital? Is the reaction a sort've

flu-like reaction? How much are you on (if it's ok to ask)? Has anyone explained

to you why you had such a reaction?

I have Xolair in my house and am waiting for a nurse to show me how to self

inject at home. That was the original agreement (Pulmo thought it would work

fine). The doc assistant suggested I could go to some place (not the doc's

office) for the injection as it would be safer. However, my opinion is, that if

it's that bad, then maybe it's best not to take it. I'm the

reactor-to-everything person! Also, don't want to get sick all over myself in a

public infusion center with other people around me and then be expected to drive

home half dead. My impression is that at pharmacies with infusion centers or

other infusion centers that people are all together in one big room - there's no

privacy. Absolutely will not put up with that.

Thanks for sharing - when there is a down side to a med I think it needs to be

put out there.

" I had my second set of shots of xolair yesterday, and didn't experience the

violent reaction my first set precipitated. Just headache, stomach ache and

joint ache this time - but I made sure I took some prednisone and allegra with

the shots. I ended up in the emergency room after the first shots. "

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