Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 I am so sorry you had such a terrible experience at the ER. That said, I have not talked to anyone whose gone to the ER for an allergic response of ANY kind who hasn't had a terrible time at the ER. It seems they are not equipped to do anything for you unless you have already started going into shock; unless you have already stopped breathing; or unless you are bleeding out. I doubt it is the Xolair that caused your allergic reaction - it just doesn't have a mechanism to do that - allergic responses to Xolair itself are very rare. That said, you need to talk to your prescribing physician's office Monday morning about it. Also, go ahead and write down everything you did, were exposed to, and ate in the 24 hours prior to your attack, so that you have that ready for your doctor on Monday. I hope you're feeling better soon. Addy Group co-owner --- In , " Misty Lynn " <mistylynnm@...> wrote: > > Last night was absolutely the worst trip to the hospital I've ever > ever had! > Around 9 last night I broke out in hives really bad and was itching > like crazy, so I took benadryl and tried to relax, by 10 it felt like > my throat was closing up and I was having problems breathing so I did > a breathing treatment and tried to relax the treatment didn't work at > all and in fact it was getting worse so my husband made me go to the > ER. > > Anyways the nurse and doctor were idiots. I get there and the > breathing stuff was getting worse and all and so they take me back > pretty much as soon as I get there. First the triage nurse says oh > your just hyperventilating and gives me a bag to breathe into. So > they gave me a couple shots of an antihistamine as soon as I get back > there. The doctor walked in a couple minutes later and asks in a > really rude tone " so what makes you think your having an allergic > reaction " I showed him the hives and all and the breathing stuff had > finally started to calm down. He says " have you ever had this before > when you were stressed " to which i replied no and had told him that I > wasnt even stressed or anything at the moment and yada yada. So he > orders a regular blood workup and an ABG (blood gasses and they have > to take these from arteries not veins and it hurts like hell) so > anyways the do all this then take me for a chest xray. Keep in mind I > never once said my chest hurt or anything, but I was coughing a lot. > After I could get some decent breathes and everything started calming > down I told them I knew it wasn't the asthma necessarily that it had > felt like my throat was closing up. Anyways after watching/monitoring > me for a few the doc came back in and said " all your blood work came > back normal except your ABG that came back elevated, which is from > you having problems breathing " then he said something like " Its not > an allergic reaction or an asthma attack I think you had an anxiety > attack " . Then proceeded to make feel stupid for even going in because > my O2 sats were okay and all. > I didn't go into with him because it was pointless he was a mean old > hag with horrible bedside manner, didn't ask or speak to me except to > say his part and walk out the door. The only person I ever got to > speak to was the respiratory therapist and the nurse. > So then the nurse came in and basically said the same thing as the > doctor (again in a condescending tone which made me feel absolutely > stupid) so by this time I'm fighting back tears because I was > miserable, covered in hives and being made feel like an absolute > idiot. Then I got a little pissed and I asked the nurse flat out to > tell me when then can I tell the difference between an allergic > reaction thats causing my throat to close (there was obvious some > type of reaction going on and I'm still covered in hives) and > an " anxiety attack " which is what the ultimate diagnosis was. To > which he replied " well you know your body better than anyone and if > you start having problems like this again, take this pill as soon as > you start itching(it's an antihistamine but treats anxiety issues too > according to the paper) and wait a few minutes and see if it helps > then come to the ER if it doesn't " > > Okay so basically what he told me was to wait the 30 minutes after > taking this pill (while feeling like my throat was closing up and in > a major allergic reaction I'd be completely closed up by now and dead) > and if I don't feel better or whatever to come to the ER. > Anyways I was just ready to go I wasn't going to argue with him, but > last time I had my anaphylaxic shock my o2 sats were better than what > they were when I got to the ER this time and then all of the sudden > they plummetted and I quit breathing and they were having to shove a > tube down my throat. All that happened in the matter of 5 minutes or > less and I had had numerous shots of Epinedrine and everything. The > doc was one I had never seen before and never seen him at that > hospital and was an old man had to be like 70 or 80 and as I said > just completely rude and basically in not so many words told me that > he was the doctor and I was stupid for thinking I could diagnose > myself. It was treated as an allergic reaction with antihistamines > but it wasn't an allergic reaction LOL > Anyways I just had to get this out, I guess if it happens again I > will just have to be dead before I get to the ER. > > I am figuring my hives and itchiness is from my XOLAIR I got it > yesterday morning but I was unsure because it didnt start happening > til later in the day. I do carry an Epi Pen but it just expired and I > live a couple blocks from ER so I went in there, even if I had used > it I'd had to go to the ER anyways. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 Misty, If you have a reaction like this again go to the ER immediately. It's unfortunate that you ran into an old hag but remember, there is a bad apple on every tree. It's unlikely you'll get the bad apple the next time. Your next experience will be a better one. Misty Lynn <mistylynnm@...> wrote: Last night was absolutely the worst trip to the hospital I've ever ever had! Around 9 last night I broke out in hives really bad and was itching like crazy, so I took benadryl and tried to relax, by 10 it felt like my throat was closing up and I was having problems breathing so I did a breathing treatment and tried to relax the treatment didn't work at all and in fact it was getting worse so my husband made me go to the ER. Anyways the nurse and doctor were idiots. I get there and the breathing stuff was getting worse and all and so they take me back pretty much as soon as I get there. First the triage nurse says oh your just hyperventilating and gives me a bag to breathe into. So they gave me a couple shots of an antihistamine as soon as I get back there. The doctor walked in a couple minutes later and asks in a really rude tone " so what makes you think your having an allergic reaction " I showed him the hives and all and the breathing stuff had finally started to calm down. He says " have you ever had this before when you were stressed " to which i replied no and had told him that I wasnt even stressed or anything at the moment and yada yada. So he orders a regular blood workup and an ABG (blood gasses and they have to take these from arteries not veins and it hurts like hell) so anyways the do all this then take me for a chest xray. Keep in mind I never once said my chest hurt or anything, but I was coughing a lot. After I could get some decent breathes and everything started calming down I told them I knew it wasn't the asthma necessarily that it had felt like my throat was closing up. Anyways after watching/monitoring me for a few the doc came back in and said " all your blood work came back normal except your ABG that came back elevated, which is from you having problems breathing " then he said something like " Its not an allergic reaction or an asthma attack I think you had an anxiety attack " . Then proceeded to make feel stupid for even going in because my O2 sats were okay and all. I didn't go into with him because it was pointless he was a mean old hag with horrible bedside manner, didn't ask or speak to me except to say his part and walk out the door. The only person I ever got to speak to was the respiratory therapist and the nurse. So then the nurse came in and basically said the same thing as the doctor (again in a condescending tone which made me feel absolutely stupid) so by this time I'm fighting back tears because I was miserable, covered in hives and being made feel like an absolute idiot. Then I got a little pissed and I asked the nurse flat out to tell me when then can I tell the difference between an allergic reaction thats causing my throat to close (there was obvious some type of reaction going on and I'm still covered in hives) and an " anxiety attack " which is what the ultimate diagnosis was. To which he replied " well you know your body better than anyone and if you start having problems like this again, take this pill as soon as you start itching(it's an antihistamine but treats anxiety issues too according to the paper) and wait a few minutes and see if it helps then come to the ER if it doesn't " Okay so basically what he told me was to wait the 30 minutes after taking this pill (while feeling like my throat was closing up and in a major allergic reaction I'd be completely closed up by now and dead) and if I don't feel better or whatever to come to the ER. Anyways I was just ready to go I wasn't going to argue with him, but last time I had my anaphylaxic shock my o2 sats were better than what they were when I got to the ER this time and then all of the sudden they plummetted and I quit breathing and they were having to shove a tube down my throat. All that happened in the matter of 5 minutes or less and I had had numerous shots of Epinedrine and everything. The doc was one I had never seen before and never seen him at that hospital and was an old man had to be like 70 or 80 and as I said just completely rude and basically in not so many words told me that he was the doctor and I was stupid for thinking I could diagnose myself. It was treated as an allergic reaction with antihistamines but it wasn't an allergic reaction LOL Anyways I just had to get this out, I guess if it happens again I will just have to be dead before I get to the ER. I am figuring my hives and itchiness is from my XOLAIR I got it yesterday morning but I was unsure because it didnt start happening til later in the day. I do carry an Epi Pen but it just expired and I live a couple blocks from ER so I went in there, even if I had used it I'd had to go to the ER anyways. --------------------------------- Looking for earth-friendly autos? Browse Top Cars by " Green Rating " at Autos' Green Center. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 Almost forgot....when I 1st experienced asthma symptoms and made multiple trips to the ER I was diagnosed with anxiety and prescribed benzodiazapines (sp?). Oddly enough, they worked but only for a short while. I had to go to a specialist before I was correctly diagnosed. Doctors are very quick to label people as " anxious " when they have breathing problems that are not comfirmed with tests. It's takes simple logic to realize that people who can't breathe will be anxious. Misty Lynn <mistylynnm@...> wrote: Last night was absolutely the worst trip to the hospital I've ever ever had! Around 9 last night I broke out in hives really bad and was itching like crazy, so I took benadryl and tried to relax, by 10 it felt like my throat was closing up and I was having problems breathing so I did a breathing treatment and tried to relax the treatment didn't work at all and in fact it was getting worse so my husband made me go to the ER. Anyways the nurse and doctor were idiots. I get there and the breathing stuff was getting worse and all and so they take me back pretty much as soon as I get there. First the triage nurse says oh your just hyperventilating and gives me a bag to breathe into. So they gave me a couple shots of an antihistamine as soon as I get back there. The doctor walked in a couple minutes later and asks in a really rude tone " so what makes you think your having an allergic reaction " I showed him the hives and all and the breathing stuff had finally started to calm down. He says " have you ever had this before when you were stressed " to which i replied no and had told him that I wasnt even stressed or anything at the moment and yada yada. So he orders a regular blood workup and an ABG (blood gasses and they have to take these from arteries not veins and it hurts like hell) so anyways the do all this then take me for a chest xray. Keep in mind I never once said my chest hurt or anything, but I was coughing a lot. After I could get some decent breathes and everything started calming down I told them I knew it wasn't the asthma necessarily that it had felt like my throat was closing up. Anyways after watching/monitoring me for a few the doc came back in and said " all your blood work came back normal except your ABG that came back elevated, which is from you having problems breathing " then he said something like " Its not an allergic reaction or an asthma attack I think you had an anxiety attack " . Then proceeded to make feel stupid for even going in because my O2 sats were okay and all. I didn't go into with him because it was pointless he was a mean old hag with horrible bedside manner, didn't ask or speak to me except to say his part and walk out the door. The only person I ever got to speak to was the respiratory therapist and the nurse. So then the nurse came in and basically said the same thing as the doctor (again in a condescending tone which made me feel absolutely stupid) so by this time I'm fighting back tears because I was miserable, covered in hives and being made feel like an absolute idiot. Then I got a little pissed and I asked the nurse flat out to tell me when then can I tell the difference between an allergic reaction thats causing my throat to close (there was obvious some type of reaction going on and I'm still covered in hives) and an " anxiety attack " which is what the ultimate diagnosis was. To which he replied " well you know your body better than anyone and if you start having problems like this again, take this pill as soon as you start itching(it's an antihistamine but treats anxiety issues too according to the paper) and wait a few minutes and see if it helps then come to the ER if it doesn't " Okay so basically what he told me was to wait the 30 minutes after taking this pill (while feeling like my throat was closing up and in a major allergic reaction I'd be completely closed up by now and dead) and if I don't feel better or whatever to come to the ER. Anyways I was just ready to go I wasn't going to argue with him, but last time I had my anaphylaxic shock my o2 sats were better than what they were when I got to the ER this time and then all of the sudden they plummetted and I quit breathing and they were having to shove a tube down my throat. All that happened in the matter of 5 minutes or less and I had had numerous shots of Epinedrine and everything. The doc was one I had never seen before and never seen him at that hospital and was an old man had to be like 70 or 80 and as I said just completely rude and basically in not so many words told me that he was the doctor and I was stupid for thinking I could diagnose myself. It was treated as an allergic reaction with antihistamines but it wasn't an allergic reaction LOL Anyways I just had to get this out, I guess if it happens again I will just have to be dead before I get to the ER. I am figuring my hives and itchiness is from my XOLAIR I got it yesterday morning but I was unsure because it didnt start happening til later in the day. I do carry an Epi Pen but it just expired and I live a couple blocks from ER so I went in there, even if I had used it I'd had to go to the ER anyways. --------------------------------- Access over 1 million songs - Music Unlimited. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2007 Report Share Posted March 4, 2007 Hid Misty - conversely, when I went to ER, the doc pumped me up with 150 mg of prednisone and a big bunch of antihistamine. Worked fine. No questions, no hesitation - just a three-hour wait to see the dude. Terry ----- Original Message ----- From: Misty Lynn Sent: Saturday, March 03, 2007 1:56 PM Subject: [ ] Ugh my trip to the ER Last night was absolutely the worst trip to the hospital I've ever ever had! Around 9 last night I broke out in hives really bad and was itching like crazy, so I took benadryl and tried to relax, by 10 it felt like my throat was closing up and I was having problems breathing so I did a breathing treatment and tried to relax the treatment didn't work at all and in fact it was getting worse so my husband made me go to the ER. Anyways the nurse and doctor were idiots. I get there and the breathing stuff was getting worse and all and so they take me back pretty much as soon as I get there. First the triage nurse says oh your just hyperventilating and gives me a bag to breathe into. So they gave me a couple shots of an antihistamine as soon as I get back there. The doctor walked in a couple minutes later and asks in a really rude tone " so what makes you think your having an allergic reaction " I showed him the hives and all and the breathing stuff had finally started to calm down. He says " have you ever had this before when you were stressed " to which i replied no and had told him that I wasnt even stressed or anything at the moment and yada yada. So he orders a regular blood workup and an ABG (blood gasses and they have to take these from arteries not veins and it hurts like hell) so anyways the do all this then take me for a chest xray. Keep in mind I never once said my chest hurt or anything, but I was coughing a lot. After I could get some decent breathes and everything started calming down I told them I knew it wasn't the asthma necessarily that it had felt like my throat was closing up. Anyways after watching/monitoring me for a few the doc came back in and said " all your blood work came back normal except your ABG that came back elevated, which is from you having problems breathing " then he said something like " Its not an allergic reaction or an asthma attack I think you had an anxiety attack " . Then proceeded to make feel stupid for even going in because my O2 sats were okay and all. I didn't go into with him because it was pointless he was a mean old hag with horrible bedside manner, didn't ask or speak to me except to say his part and walk out the door. The only person I ever got to speak to was the respiratory therapist and the nurse. So then the nurse came in and basically said the same thing as the doctor (again in a condescending tone which made me feel absolutely stupid) so by this time I'm fighting back tears because I was miserable, covered in hives and being made feel like an absolute idiot. Then I got a little pissed and I asked the nurse flat out to tell me when then can I tell the difference between an allergic reaction thats causing my throat to close (there was obvious some type of reaction going on and I'm still covered in hives) and an " anxiety attack " which is what the ultimate diagnosis was. To which he replied " well you know your body better than anyone and if you start having problems like this again, take this pill as soon as you start itching(it's an antihistamine but treats anxiety issues too according to the paper) and wait a few minutes and see if it helps then come to the ER if it doesn't " Okay so basically what he told me was to wait the 30 minutes after taking this pill (while feeling like my throat was closing up and in a major allergic reaction I'd be completely closed up by now and dead) and if I don't feel better or whatever to come to the ER. Anyways I was just ready to go I wasn't going to argue with him, but last time I had my anaphylaxic shock my o2 sats were better than what they were when I got to the ER this time and then all of the sudden they plummetted and I quit breathing and they were having to shove a tube down my throat. All that happened in the matter of 5 minutes or less and I had had numerous shots of Epinedrine and everything. The doc was one I had never seen before and never seen him at that hospital and was an old man had to be like 70 or 80 and as I said just completely rude and basically in not so many words told me that he was the doctor and I was stupid for thinking I could diagnose myself. It was treated as an allergic reaction with antihistamines but it wasn't an allergic reaction LOL Anyways I just had to get this out, I guess if it happens again I will just have to be dead before I get to the ER. I am figuring my hives and itchiness is from my XOLAIR I got it yesterday morning but I was unsure because it didnt start happening til later in the day. I do carry an Epi Pen but it just expired and I live a couple blocks from ER so I went in there, even if I had used it I'd had to go to the ER anyways. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2007 Report Share Posted March 4, 2007 Addy, The medical depart of Genetic had a lengthy conversation with me this Friday regarding me reactions to xolair that Dr really feels more people are reacting to the medication. Something that would only show on post marketing. Yes Xolair can cause reaction the thing That concerned the Dr I spoke with as because xolair can work for up to 30 days the reaction so are sometimes not happening to latter. ----- Original Message ----- From: pyle456 Sent: Saturday, March 03, 2007 3:29 PM Subject: [ ] Re: Ugh my trip to the ER I am so sorry you had such a terrible experience at the ER. That said, I have not talked to anyone whose gone to the ER for an allergic response of ANY kind who hasn't had a terrible time at the ER. It seems they are not equipped to do anything for you unless you have already started going into shock; unless you have already stopped breathing; or unless you are bleeding out. I doubt it is the Xolair that caused your allergic reaction - it just doesn't have a mechanism to do that - allergic responses to Xolair itself are very rare. That said, you need to talk to your prescribing physician's office Monday morning about it. Also, go ahead and write down everything you did, were exposed to, and ate in the 24 hours prior to your attack, so that you have that ready for your doctor on Monday. I hope you're feeling better soon. Addy Group co-owner > > Last night was absolutely the worst trip to the hospital I've ever > ever had! > Around 9 last night I broke out in hives really bad and was itching > like crazy, so I took benadryl and tried to relax, by 10 it felt like > my throat was closing up and I was having problems breathing so I did > a breathing treatment and tried to relax the treatment didn't work at > all and in fact it was getting worse so my husband made me go to the > ER. > > Anyways the nurse and doctor were idiots. I get there and the > breathing stuff was getting worse and all and so they take me back > pretty much as soon as I get there. First the triage nurse says oh > your just hyperventilating and gives me a bag to breathe into. So > they gave me a couple shots of an antihistamine as soon as I get back > there. The doctor walked in a couple minutes later and asks in a > really rude tone " so what makes you think your having an allergic > reaction " I showed him the hives and all and the breathing stuff had > finally started to calm down. He says " have you ever had this before > when you were stressed " to which i replied no and had told him that I > wasnt even stressed or anything at the moment and yada yada. So he > orders a regular blood workup and an ABG (blood gasses and they have > to take these from arteries not veins and it hurts like hell) so > anyways the do all this then take me for a chest xray. Keep in mind I > never once said my chest hurt or anything, but I was coughing a lot. > After I could get some decent breathes and everything started calming > down I told them I knew it wasn't the asthma necessarily that it had > felt like my throat was closing up. Anyways after watching/monitoring > me for a few the doc came back in and said " all your blood work came > back normal except your ABG that came back elevated, which is from > you having problems breathing " then he said something like " Its not > an allergic reaction or an asthma attack I think you had an anxiety > attack " . Then proceeded to make feel stupid for even going in because > my O2 sats were okay and all. > I didn't go into with him because it was pointless he was a mean old > hag with horrible bedside manner, didn't ask or speak to me except to > say his part and walk out the door. The only person I ever got to > speak to was the respiratory therapist and the nurse. > So then the nurse came in and basically said the same thing as the > doctor (again in a condescending tone which made me feel absolutely > stupid) so by this time I'm fighting back tears because I was > miserable, covered in hives and being made feel like an absolute > idiot. Then I got a little pissed and I asked the nurse flat out to > tell me when then can I tell the difference between an allergic > reaction thats causing my throat to close (there was obvious some > type of reaction going on and I'm still covered in hives) and > an " anxiety attack " which is what the ultimate diagnosis was. To > which he replied " well you know your body better than anyone and if > you start having problems like this again, take this pill as soon as > you start itching(it's an antihistamine but treats anxiety issues too > according to the paper) and wait a few minutes and see if it helps > then come to the ER if it doesn't " > > Okay so basically what he told me was to wait the 30 minutes after > taking this pill (while feeling like my throat was closing up and in > a major allergic reaction I'd be completely closed up by now and dead) > and if I don't feel better or whatever to come to the ER. > Anyways I was just ready to go I wasn't going to argue with him, but > last time I had my anaphylaxic shock my o2 sats were better than what > they were when I got to the ER this time and then all of the sudden > they plummetted and I quit breathing and they were having to shove a > tube down my throat. All that happened in the matter of 5 minutes or > less and I had had numerous shots of Epinedrine and everything. The > doc was one I had never seen before and never seen him at that > hospital and was an old man had to be like 70 or 80 and as I said > just completely rude and basically in not so many words told me that > he was the doctor and I was stupid for thinking I could diagnose > myself. It was treated as an allergic reaction with antihistamines > but it wasn't an allergic reaction LOL > Anyways I just had to get this out, I guess if it happens again I > will just have to be dead before I get to the ER. > > I am figuring my hives and itchiness is from my XOLAIR I got it > yesterday morning but I was unsure because it didnt start happening > til later in the day. I do carry an Epi Pen but it just expired and I > live a couple blocks from ER so I went in there, even if I had used > it I'd had to go to the ER anyways. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2007 Report Share Posted March 4, 2007 That is my biggest complaint with DRs that are not allergists. They do not understand air with swollen bronchial tubes the air gets in and cannot get out. Also please call the admisatration at that hospital they cant change anything they do not know about. ----- Original Message ----- From: Misty Lynn Sent: Saturday, March 03, 2007 1:56 PM Subject: [ ] Ugh my trip to the ER Last night was absolutely the worst trip to the hospital I've ever ever had! Around 9 last night I broke out in hives really bad and was itching like crazy, so I took benadryl and tried to relax, by 10 it felt like my throat was closing up and I was having problems breathing so I did a breathing treatment and tried to relax the treatment didn't work at all and in fact it was getting worse so my husband made me go to the ER. Anyways the nurse and doctor were idiots. I get there and the breathing stuff was getting worse and all and so they take me back pretty much as soon as I get there. First the triage nurse says oh your just hyperventilating and gives me a bag to breathe into. So they gave me a couple shots of an antihistamine as soon as I get back there. The doctor walked in a couple minutes later and asks in a really rude tone " so what makes you think your having an allergic reaction " I showed him the hives and all and the breathing stuff had finally started to calm down. He says " have you ever had this before when you were stressed " to which i replied no and had told him that I wasnt even stressed or anything at the moment and yada yada. So he orders a regular blood workup and an ABG (blood gasses and they have to take these from arteries not veins and it hurts like hell) so anyways the do all this then take me for a chest xray. Keep in mind I never once said my chest hurt or anything, but I was coughing a lot. After I could get some decent breathes and everything started calming down I told them I knew it wasn't the asthma necessarily that it had felt like my throat was closing up. Anyways after watching/monitoring me for a few the doc came back in and said " all your blood work came back normal except your ABG that came back elevated, which is from you having problems breathing " then he said something like " Its not an allergic reaction or an asthma attack I think you had an anxiety attack " . Then proceeded to make feel stupid for even going in because my O2 sats were okay and all. I didn't go into with him because it was pointless he was a mean old hag with horrible bedside manner, didn't ask or speak to me except to say his part and walk out the door. The only person I ever got to speak to was the respiratory therapist and the nurse. So then the nurse came in and basically said the same thing as the doctor (again in a condescending tone which made me feel absolutely stupid) so by this time I'm fighting back tears because I was miserable, covered in hives and being made feel like an absolute idiot. Then I got a little pissed and I asked the nurse flat out to tell me when then can I tell the difference between an allergic reaction thats causing my throat to close (there was obvious some type of reaction going on and I'm still covered in hives) and an " anxiety attack " which is what the ultimate diagnosis was. To which he replied " well you know your body better than anyone and if you start having problems like this again, take this pill as soon as you start itching(it's an antihistamine but treats anxiety issues too according to the paper) and wait a few minutes and see if it helps then come to the ER if it doesn't " Okay so basically what he told me was to wait the 30 minutes after taking this pill (while feeling like my throat was closing up and in a major allergic reaction I'd be completely closed up by now and dead) and if I don't feel better or whatever to come to the ER. Anyways I was just ready to go I wasn't going to argue with him, but last time I had my anaphylaxic shock my o2 sats were better than what they were when I got to the ER this time and then all of the sudden they plummetted and I quit breathing and they were having to shove a tube down my throat. All that happened in the matter of 5 minutes or less and I had had numerous shots of Epinedrine and everything. The doc was one I had never seen before and never seen him at that hospital and was an old man had to be like 70 or 80 and as I said just completely rude and basically in not so many words told me that he was the doctor and I was stupid for thinking I could diagnose myself. It was treated as an allergic reaction with antihistamines but it wasn't an allergic reaction LOL Anyways I just had to get this out, I guess if it happens again I will just have to be dead before I get to the ER. I am figuring my hives and itchiness is from my XOLAIR I got it yesterday morning but I was unsure because it didnt start happening til later in the day. I do carry an Epi Pen but it just expired and I live a couple blocks from ER so I went in there, even if I had used it I'd had to go to the ER anyways. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2007 Report Share Posted March 4, 2007 Terry, Tha is unacceptabe 3 hour waits for breathing problems . Karin ----- Original Message ----- From: Terry Sent: Sunday, March 04, 2007 3:01 AM Subject: Re: [ ] Ugh my trip to the ER Hid Misty - conversely, when I went to ER, the doc pumped me up with 150 mg of prednisone and a big bunch of antihistamine. Worked fine. No questions, no hesitation - just a three-hour wait to see the dude. Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2007 Report Share Posted March 4, 2007 I think we may have figured out what MAY have been the cause of my allergic reaction. Some of the itchiness and all could have been from the Xolair but we ordered pizza friday evening and I'm highly allergic to mushrooms. Even though there wasn't mushrooms on the pizza I'm thinking it's possible one could have snuck on or something. Or if the foods somehow got mixed or prepared together or something. I'm really grasping at straws. The doc gave me the antihistamine Visteril and put on the bottle to take it every 4 hours for Anxiety as needed. My sister in law who is going to school for pharmacy thought that was funny. It is listed in the patient pamphlet with the Visteril that it can be used for some Anxiety or mood disorders but it's just funnier and funnier. Definately will call the doc on Monday --- In , " Karin Melvin " <nnmfam@...> wrote: > > Terry, > Tha is unacceptabe 3 hour waits for breathing problems . > Karin > ----- Original Message ----- > From: Terry > > Sent: Sunday, March 04, 2007 3:01 AM > Subject: Re: [ ] Ugh my trip to the ER > > > Hid Misty - conversely, when I went to ER, the doc pumped me up with 150 mg of prednisone and a big bunch of antihistamine. Worked fine. No questions, no hesitation - just a three-hour wait to see the dude. > > Terry > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2007 Report Share Posted March 4, 2007 This was an outrageous response to your problem and should never have happened to you - I am so sympathetic! It's also somewhat along the lines of problems I've experienced at points in my life so of course I'm ready to slay the dragon here and now! When you see your doctor the next time, or even call and talk to your doc's nurse, tell them what happened and ask them to write a note/letter that you can carry with you. That will at least give you a little more clout. If possible, call your doc before going to the ER. Do NOT risk your life due to an incompetent buffoon. Also, if you have a supportive person with you (husband, friend, relative, neighbor), talk to them when you're not sick about how they should take an ascertive stand on your behalf and be sure they're informed about your meds and symptoms and your doctor's treatment plan - two against 1 or 2 is better. The thing about the benzodiazapine (I take Tranxene from time-to-time) I found interesting as it briefly causes me less distress too w/breathing but doesn't really solve anything. I'm a little bit afraid that I'll get too much into a deep sleep and stop breathing. I mainly take it to offset side effects of pseudoephedrine (for chronic sinusitis) and " excitement " that asthma inhalers can cause in me. ly, I'd ask the you-know-what doctor at the hospital if the Joint Commission has checked him out lately because that type of bed side manner doesn't fly any more. Take care and don't let them run you over. --- In , " Misty Lynn " <mistylynnm@...> wrote: > > Last night was absolutely the worst trip to the hospital I've ever > ever had! > Around 9 last night I broke out in hives really bad and was itching > like crazy, so I took benadryl and tried to relax, by 10 it felt like > my throat was closing up and I was having problems breathing so I did > a breathing treatment and tried to relax the treatment didn't work at > all and in fact it was getting worse so my husband made me go to the > ER. > > Anyways the nurse and doctor were idiots. I get there and the > breathing stuff was getting worse and all and so they take me back > pretty much as soon as I get there. First the triage nurse says oh > your just hyperventilating and gives me a bag to breathe into. So > they gave me a couple shots of an antihistamine as soon as I get back > there. The doctor walked in a couple minutes later and asks in a > really rude tone " so what makes you think your having an allergic > reaction " I showed him the hives and all and the breathing stuff had > finally started to calm down. He says " have you ever had this before > when you were stressed " to which i replied no and had told him that I > wasnt even stressed or anything at the moment and yada yada. So he > orders a regular blood workup and an ABG (blood gasses and they have > to take these from arteries not veins and it hurts like hell) so > anyways the do all this then take me for a chest xray. Keep in mind I > never once said my chest hurt or anything, but I was coughing a lot. > After I could get some decent breathes and everything started calming > down I told them I knew it wasn't the asthma necessarily that it had > felt like my throat was closing up. Anyways after watching/monitoring > me for a few the doc came back in and said " all your blood work came > back normal except your ABG that came back elevated, which is from > you having problems breathing " then he said something like " Its not > an allergic reaction or an asthma attack I think you had an anxiety > attack " . Then proceeded to make feel stupid for even going in because > my O2 sats were okay and all. > I didn't go into with him because it was pointless he was a mean old > hag with horrible bedside manner, didn't ask or speak to me except to > say his part and walk out the door. The only person I ever got to > speak to was the respiratory therapist and the nurse. > So then the nurse came in and basically said the same thing as the > doctor (again in a condescending tone which made me feel absolutely > stupid) so by this time I'm fighting back tears because I was > miserable, covered in hives and being made feel like an absolute > idiot. Then I got a little pissed and I asked the nurse flat out to > tell me when then can I tell the difference between an allergic > reaction thats causing my throat to close (there was obvious some > type of reaction going on and I'm still covered in hives) and > an " anxiety attack " which is what the ultimate diagnosis was. To > which he replied " well you know your body better than anyone and if > you start having problems like this again, take this pill as soon as > you start itching(it's an antihistamine but treats anxiety issues too > according to the paper) and wait a few minutes and see if it helps > then come to the ER if it doesn't " > > Okay so basically what he told me was to wait the 30 minutes after > taking this pill (while feeling like my throat was closing up and in > a major allergic reaction I'd be completely closed up by now and dead) > and if I don't feel better or whatever to come to the ER. > Anyways I was just ready to go I wasn't going to argue with him, but > last time I had my anaphylaxic shock my o2 sats were better than what > they were when I got to the ER this time and then all of the sudden > they plummetted and I quit breathing and they were having to shove a > tube down my throat. All that happened in the matter of 5 minutes or > less and I had had numerous shots of Epinedrine and everything. The > doc was one I had never seen before and never seen him at that > hospital and was an old man had to be like 70 or 80 and as I said > just completely rude and basically in not so many words told me that > he was the doctor and I was stupid for thinking I could diagnose > myself. It was treated as an allergic reaction with antihistamines > but it wasn't an allergic reaction LOL > Anyways I just had to get this out, I guess if it happens again I > will just have to be dead before I get to the ER. > > I am figuring my hives and itchiness is from my XOLAIR I got it > yesterday morning but I was unsure because it didnt start happening > til later in the day. I do carry an Epi Pen but it just expired and I > live a couple blocks from ER so I went in there, even if I had used > it I'd had to go to the ER anyways. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2007 Report Share Posted March 4, 2007 It really doesn't make any kind of sense that it would take someone thirty days to have an allergic reaction to anything. I found your post confusion. What EXACTLY did the doctor say. Again, my doctor's office is not worried about the " black box " warning and they're in frequent contact with Genentech. My doc goes to all the meetings in San Francisco, etc. Addy Group co-owner > > > > Last night was absolutely the worst trip to the hospital I've ever > > ever had! > > Around 9 last night I broke out in hives really bad and was itching > > like crazy, so I took benadryl and tried to relax, by 10 it felt > like > > my throat was closing up and I was having problems breathing so I > did > > a breathing treatment and tried to relax the treatment didn't work > at > > all and in fact it was getting worse so my husband made me go to > the > > ER. > > > > Anyways the nurse and doctor were idiots. I get there and the > > breathing stuff was getting worse and all and so they take me back > > pretty much as soon as I get there. First the triage nurse says oh > > your just hyperventilating and gives me a bag to breathe into. So > > they gave me a couple shots of an antihistamine as soon as I get > back > > there. The doctor walked in a couple minutes later and asks in a > > really rude tone " so what makes you think your having an allergic > > reaction " I showed him the hives and all and the breathing stuff > had > > finally started to calm down. He says " have you ever had this > before > > when you were stressed " to which i replied no and had told him that > I > > wasnt even stressed or anything at the moment and yada yada. So he > > orders a regular blood workup and an ABG (blood gasses and they > have > > to take these from arteries not veins and it hurts like hell) so > > anyways the do all this then take me for a chest xray. Keep in mind > I > > never once said my chest hurt or anything, but I was coughing a > lot. > > After I could get some decent breathes and everything started > calming > > down I told them I knew it wasn't the asthma necessarily that it > had > > felt like my throat was closing up. Anyways after > watching/monitoring > > me for a few the doc came back in and said " all your blood work > came > > back normal except your ABG that came back elevated, which is from > > you having problems breathing " then he said something like " Its not > > an allergic reaction or an asthma attack I think you had an anxiety > > attack " . Then proceeded to make feel stupid for even going in > because > > my O2 sats were okay and all. > > I didn't go into with him because it was pointless he was a mean > old > > hag with horrible bedside manner, didn't ask or speak to me except > to > > say his part and walk out the door. The only person I ever got to > > speak to was the respiratory therapist and the nurse. > > So then the nurse came in and basically said the same thing as the > > doctor (again in a condescending tone which made me feel absolutely > > stupid) so by this time I'm fighting back tears because I was > > miserable, covered in hives and being made feel like an absolute > > idiot. Then I got a little pissed and I asked the nurse flat out to > > tell me when then can I tell the difference between an allergic > > reaction thats causing my throat to close (there was obvious some > > type of reaction going on and I'm still covered in hives) and > > an " anxiety attack " which is what the ultimate diagnosis was. To > > which he replied " well you know your body better than anyone and if > > you start having problems like this again, take this pill as soon > as > > you start itching(it's an antihistamine but treats anxiety issues > too > > according to the paper) and wait a few minutes and see if it helps > > then come to the ER if it doesn't " > > > > Okay so basically what he told me was to wait the 30 minutes after > > taking this pill (while feeling like my throat was closing up and > in > > a major allergic reaction I'd be completely closed up by now and > dead) > > and if I don't feel better or whatever to come to the ER. > > Anyways I was just ready to go I wasn't going to argue with him, > but > > last time I had my anaphylaxic shock my o2 sats were better than > what > > they were when I got to the ER this time and then all of the sudden > > they plummetted and I quit breathing and they were having to shove > a > > tube down my throat. All that happened in the matter of 5 minutes > or > > less and I had had numerous shots of Epinedrine and everything. The > > doc was one I had never seen before and never seen him at that > > hospital and was an old man had to be like 70 or 80 and as I said > > just completely rude and basically in not so many words told me > that > > he was the doctor and I was stupid for thinking I could diagnose > > myself. It was treated as an allergic reaction with antihistamines > > but it wasn't an allergic reaction LOL > > Anyways I just had to get this out, I guess if it happens again I > > will just have to be dead before I get to the ER. > > > > I am figuring my hives and itchiness is from my XOLAIR I got it > > yesterday morning but I was unsure because it didnt start happening > > til later in the day. I do carry an Epi Pen but it just expired and > I > > live a couple blocks from ER so I went in there, even if I had used > > it I'd had to go to the ER anyways. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2007 Report Share Posted March 5, 2007 Hi Karin - Yes, I wasn't too happy with the delay, but they do triage when you get there, and the worstest goes the firstest. Since my problem wasn't severe and I wasn't having much trouble breathing, I had to wait. Actually, it was an hour between the time I had the reaction to the xolair and when I got to the ER. By then, symptoms had diminished a bit. Addressing what Addy said, I can't prove I had a reaction to xolair, but it was the morning after my first series of three shots, and it was the first time since I was a kid I'd had a breathing problem like that. And it was the first time in my life I'd had a feeling like my whole nasal and sinus areas were going to explode from pressure. However, I think starting xolair right after I came off prednisone had a lot to do with whatever it was. Terry ----- Original Message ----- From: Karin Melvin Sent: Sunday, March 04, 2007 11:05 AM Subject: Re: [ ] Ugh my trip to the ER Terry, Tha is unacceptabe 3 hour waits for breathing problems . Karin ----- Original Message ----- From: Terry Sent: Sunday, March 04, 2007 3:01 AM Subject: Re: [ ] Ugh my trip to the ER Hid Misty - conversely, when I went to ER, the doc pumped me up with 150 mg of prednisone and a big bunch of antihistamine. Worked fine. No questions, no hesitation - just a three-hour wait to see the dude. Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 ERs never cease to amaze me. I just wanted to briefly comment on sats. I had always thought they were a good predictor of acute asthma problems, and asked my doctor about getting one, since myself and two of my three kids have asthma (my daughter also has VCD which makes it almost impossible to tell what her problem is). My doc said during an asthma attack, a person's sats stay high and don't really fall until the attack is well past severe. I always contact my doc after an ER visit because he usually does his Pred burst differently then they do. Debbie <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 Debbie - what are sats and vcds? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 " And it was the first time in my life I'd had a feeling like my whole nasal and sinus areas were going to explode from pressure. " Terry, I am sorry to read about your ER visit. Some of the staff can be so stupid at times. I hope you will report them. I haven't been to ER for my asthma but I had an ER Dr tell me I had a " wry neck " (simple cramped muscle) once. I thought I was having a heart attack as the pain was all down my arm, my side, my back under the shoulder. Turns out I have a ruptured cervical disc which I had to instigate discovery on via a specialist as ER did basically nothing to figure out what was completely incapacitating me with severe pain when I turned up at ER. Anyway.... about your quote above. That is the first time I've heard someone else describe this phenomenon. I have experienced it too and I have no idea why it comes on when it does or what exactly is happening when it does. Usually it seems to happen to me when I lie down to go to sleep at night. I can feel the nasal passages and sinuses just seem to close up tight, almost like someone has poured concrete up into them. Then they feel like they are going explode. I have asthma coughing set in and usually a bad bout of getting past that after which I seem to get a release of the nasal and sinus " fill and pressure " feelings and sometimes they even drip a little once it's over. It's so strange and I'd never heard of anyone else experiencing this until now. This has happened to me at least a half dozen times. I haven't connected it to taking my Xolair shots or any other trigger though. Has anyone else ever experienced anything like this? Any insight? Leena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 I've felt like that any number of times, but much less now thanks to Xolair. Addy Severe Allergic Sinus Disease Sufferer --- In , " Leena Grace " <leenagrace@...> wrote: > > " And it was the first time in my life I'd had a feeling like my whole nasal > and sinus areas were going to explode from pressure. " > > > Terry, I am sorry to read about your ER visit. Some of the staff can be so > stupid at times. I hope you will report them. I haven't been to ER for my > asthma but I had an ER Dr tell me I had a " wry neck " (simple cramped muscle) > once. I thought I was having a heart attack as the pain was all down my arm, > my side, my back under the shoulder. Turns out I have a ruptured cervical > disc which I had to instigate discovery on via a specialist as ER did > basically nothing to figure out what was completely incapacitating me with > severe pain when I turned up at ER. > > Anyway.... about your quote above. That is the first time I've heard someone > else describe this phenomenon. I have experienced it too and I have no idea > why it comes on when it does or what exactly is happening when it does. > Usually it seems to happen to me when I lie down to go to sleep at night. I > can feel the nasal passages and sinuses just seem to close up tight, almost > like someone has poured concrete up into them. Then they feel like they are > going explode. I have asthma coughing set in and usually a bad bout of > getting past that after which I seem to get a release of the nasal and sinus > " fill and pressure " feelings and sometimes they even drip a little once it's > over. It's so strange and I'd never heard of anyone else experiencing this > until now. > > This has happened to me at least a half dozen times. I haven't connected it > to taking my Xolair shots or any other trigger though. Has anyone else ever > experienced anything like this? Any insight? > > Leena > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 The nurses/doctors I have refer to the reading from the pulse oximetry as (sat). Not the arterial blood gases. Vocal Cord Dysfunction, at least from what my doctor has told me, is a very little know condition that can mimic asthma; because one of the primary symptoms is shortness of breath. The vocal cords somehow flutter/reposition in the throat to cause the shortness of breath symptom, but with none of the three asthma issues; mucus, swelling and constriction. There can be some symptoms that are usually VCD and not asthma; but he has told me to treat it as asthma because a spirometer or visual exam are the only reliable ways to be certain it is VCD and not asthma. ( IE my daughter comes to me, mom I am short of breath. Peak flow is a bit off but not lower that 75%. Her problem is on inhalation not exhalation; asthma is initially an exhalation problem, doc says. Maxair doesn't help then a breathing treatment with Xopenex doesn't help or helps minimally. At his office, her lungs are fine, PFT is fine except inhalation part of the graph is off.) He referred us to a speech therapist, who taught her breathing exercises, but they don't seem to help her. Debbie <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 Interesting. I have never heard of this but I get something similar. No wheezing or asthma symptoms just find it hard to catch my breath. If feels like I can not get oxygen in. It can last for days. I wonder if it is the same thing. Jeannie --- jsrcreation@... wrote: > The nurses/doctors I have refer to the reading from > the pulse oximetry as > (sat). Not the arterial blood gases. > Vocal Cord Dysfunction, at least from what my doctor > has told me, is a very > little know condition that can mimic asthma; because > one of the primary > symptoms is shortness of breath. The vocal cords > somehow flutter/reposition in the > throat to cause the shortness of breath symptom, but > with none of the three > asthma issues; mucus, swelling and constriction. > There can be some symptoms that > are usually VCD and not asthma; but he has told me > to treat it as asthma > because a spirometer or visual exam are the only > reliable ways to be certain it is > VCD and not asthma. ( IE my daughter comes to me, > mom I am short of breath. > Peak flow is a bit off but not lower that 75%. Her > problem is on inhalation > not exhalation; asthma is initially an exhalation > problem, doc says. Maxair > doesn't help then a breathing treatment with Xopenex > doesn't help or helps > minimally. At his office, her lungs are fine, PFT is > fine except inhalation part > of the graph is off.) He referred us to a speech > therapist, who taught her > breathing exercises, but they don't seem to help > her. > > Debbie > <BR><BR><BR>**************************************<BR> > AOL now offers free > email to everyone. Find out more about what's free > from AOL at > http://www.aol.com. > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Never miss an email again! Toolbar alerts you the instant new Mail arrives. http://tools.search./toolbar/features/mail/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 The ER had run my o2 sats and an ABG if your referring to my post. As far as the VCD I had been diagnosed with some pharyngeal wheezing I think is what its called but I do have more problems getting it out than I do getting it in. I've also been to a speech therapist and it didn't help at all. > --- jsrcreation@... wrote: > > > The nurses/doctors I have refer to the reading from > > the pulse oximetry as > > (sat). Not the arterial blood gases. > > Vocal Cord Dysfunction, at least from what my doctor > > has told me, is a very > > little know condition that can mimic asthma; because > > one of the primary > > symptoms is shortness of breath. The vocal cords > > somehow flutter/reposition in the > > throat to cause the shortness of breath symptom, but > > with none of the three > > asthma issues; mucus, swelling and constriction. > > There can be some symptoms that > > are usually VCD and not asthma; but he has told me > > to treat it as asthma > > because a spirometer or visual exam are the only > > reliable ways to be certain it is > > VCD and not asthma. ( IE my daughter comes to me, > > mom I am short of breath. > > Peak flow is a bit off but not lower that 75%. Her > > problem is on inhalation > > not exhalation; asthma is initially an exhalation > > problem, doc says. Maxair > > doesn't help then a breathing treatment with Xopenex > > doesn't help or helps > > minimally. At his office, her lungs are fine, PFT is > > fine except inhalation part > > of the graph is off.) He referred us to a speech > > therapist, who taught her > > breathing exercises, but they don't seem to help > > her. > > > > Debbie > > > <BR><BR><BR>**************************************<BR> > > AOL now offers free > > email to everyone. Find out more about what's free > > from AOL at > > http://www.aol.com. > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > ______________________________________________________________________ ______________ > Never miss an email again! > Toolbar alerts you the instant new Mail arrives. > http://tools.search./toolbar/features/mail/ > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.