Re: home injection (xolair) - use the poll - doc wants it at home ins ok w/it

[Guest guest]

I can't really answer the poll since I haven't started xolair yet.

In fact, this is about the heart of the problem. I have the xolair

med at home - been there 3 weeks. My doc wanted me to self inject at

home w/a nurse coming out to show me how and explain things. (I

could figure it out myself with instructions - am well educated)

Insurance agreed to pay for nurse. However, Genentech and SPOC

seemed to flip out over the idea and no nurse has been scheduled. I

am FURIOUS. The insurance said they would pay for a nurse so that's

not really the problem. I've talked to all kinds of nurses groups

and pharmaceuticals and even a semi-sales rep from Genentech and they

all freak out and tell me to call my doc and shots are in doc's

office. All I'm doing is going in circles This NOT AN INSURANCE

PROBLEM!!!

My doc's office is not set up to give xolair shots - staff not

trained in it. It's $45 copay for one month of Xolair Rx. Then it's

$45.00 co-pay for doc's office each time (twice a month). So, in one

month I could easily rack up $135 going to a doc's office when I

could do it at home with my doc's blessings for only $45. !!!! I

am rather seething over this. I also cannot spend 4 to 6 hours twice

a month getting shots across town.

I keep getting phone calls from some nurse group in IL (I live on the

other side of the country) called " Informed Consent " and totally went

in circles w/them while at work yesterday. They kept telling me to

call my doc and I have - almost every day! They've called before and

by the time I get home at night they're closed. I finally said I

didn't want to hear from them and I would file a complaint. Which

part of " no " don't they understand? Not getting anywhere.

[Guest guest]

>

> I can't really answer the poll since I haven't started xolair yet.

> In fact, this is about the heart of the problem. I have the xolair

> med at home - been there 3 weeks. My doc wanted me to self inject at

> home w/a nurse coming out to show me how and explain things. (I

> could figure it out myself with instructions - am well educated)

> Insurance agreed to pay for nurse. However, Genentech and SPOC

> seemed to flip out over the idea and no nurse has been scheduled. I

> am FURIOUS. The insurance said they would pay for a nurse so that's

> not really the problem. I've talked to all kinds of nurses groups

> and pharmaceuticals and even a semi-sales rep from Genentech and they

> all freak out and tell me to call my doc and shots are in doc's

> office. All I'm doing is going in circles This NOT AN INSURANCE

> PROBLEM!!!

>

> My doc's office is not set up to give xolair shots - staff not

> trained in it. It's $45 copay for one month of Xolair Rx. Then it's

> $45.00 co-pay for doc's office each time (twice a month). So, in one

> month I could easily rack up $135 going to a doc's office when I

> could do it at home with my doc's blessings for only $45. !!!! I

> am rather seething over this. I also cannot spend 4 to 6 hours twice

> a month getting shots across town.

>

> I keep getting phone calls from some nurse group in IL (I live on the

> other side of the country) called " Informed Consent " and totally went

> in circles w/them while at work yesterday. They kept telling me to

> call my doc and I have - almost every day! They've called before and

> by the time I get home at night they're closed. I finally said I

> didn't want to hear from them and I would file a complaint. Which

> part of " no " don't they understand? Not getting anywhere.

Good grief! Red tape like this really upsets me. Hang in there.

We are behind you and feel your pain!

Doug

Group owner

[Guest guest]

My pulmonologist (I think he's being a bit of a father-figure on this

issue) will not let me self-inject. He says the reason is because I

have a history of anaphlactic reactions that tend to occur very

quickly. So I have to continue going to my primary (my pulmo is about

2 hrs. away from my home and he WILL allow my primary to inject

Xolair) every 2 weeks, it's oh so much fun - but it's a little game I

play with my doctors - my pulmo makes everyone of his other Xolair

patients who go to him for the injections wait for at least an hour,

and my primary doesn't know of this, and doesn't make me wait (I

cheat the system ). As far as I'm concerned, I have 3 epi-pens,

and my neb and inhalers with me at all times, so if I were to have

some random reaction to Xolair, I would be able to handle it. I

already wait before I get my Xolair injections, so I don't really see

the point in waiting after them. Just thought I'd share .

<3

Meagan

(375mg/2 wks. & STUCK on 15mg of pred every other day)

>

> --- In , " instdesgn1 " <instdesgn1@>

wrote:

> >

> > I can't really answer the poll since I haven't started xolair yet.

> > In fact, this is about the heart of the problem. I have the

xolair

> > med at home - been there 3 weeks. My doc wanted me to self

inject at

> > home w/a nurse coming out to show me how and explain things. (I

> > could figure it out myself with instructions - am well educated)

> > Insurance agreed to pay for nurse. However, Genentech and SPOC

> > seemed to flip out over the idea and no nurse has been

scheduled. I

> > am FURIOUS. The insurance said they would pay for a nurse so

that's

> > not really the problem. I've talked to all kinds of nurses groups

> > and pharmaceuticals and even a semi-sales rep from Genentech and

they

> > all freak out and tell me to call my doc and shots are in doc's

> > office. All I'm doing is going in circles This NOT AN INSURANCE

> > PROBLEM!!!

> >

> > My doc's office is not set up to give xolair shots - staff not

> > trained in it. It's $45 copay for one month of Xolair Rx. Then

it's

> > $45.00 co-pay for doc's office each time (twice a month). So, in

one

> > month I could easily rack up $135 going to a doc's office when I

> > could do it at home with my doc's blessings for only $45. !!!!

I

> > am rather seething over this. I also cannot spend 4 to 6 hours

twice

> > a month getting shots across town.

> >

> > I keep getting phone calls from some nurse group in IL (I live on

the

> > other side of the country) called " Informed Consent " and totally

went

> > in circles w/them while at work yesterday. They kept telling me

to

> > call my doc and I have - almost every day! They've called before

and

> > by the time I get home at night they're closed. I finally said I

> > didn't want to hear from them and I would file a complaint. Which

> > part of " no " don't they understand? Not getting anywhere.

>

>

> Good grief! Red tape like this really upsets me. Hang in there.

> We are behind you and feel your pain!

>

> Doug

> Group owner

>

[Guest guest]

there is a reason for the warning and I think we would all do well to behoove

it. what drug ever had a warning which was not warranted?

instdesgn1 <instdesgn1@...> wrote: I

can't really answer the poll since I haven't started xolair yet.

In fact, this is about the heart of the problem. I have the xolair

med at home - been there 3 weeks. My doc wanted me to self inject at

home w/a nurse coming out to show me how and explain things. (I

could figure it out myself with instructions - am well educated)

Insurance agreed to pay for nurse. However, Genentech and SPOC

seemed to flip out over the idea and no nurse has been scheduled. I

am FURIOUS. The insurance said they would pay for a nurse so that's

not really the problem. I've talked to all kinds of nurses groups

and pharmaceuticals and even a semi-sales rep from Genentech and they

all freak out and tell me to call my doc and shots are in doc's

office. All I'm doing is going in circles This NOT AN INSURANCE

PROBLEM!!!

My doc's office is not set up to give xolair shots - staff not

trained in it. It's $45 copay for one month of Xolair Rx. Then it's

$45.00 co-pay for doc's office each time (twice a month). So, in one

month I could easily rack up $135 going to a doc's office when I

could do it at home with my doc's blessings for only $45. !!!! I

am rather seething over this. I also cannot spend 4 to 6 hours twice

a month getting shots across town.

I keep getting phone calls from some nurse group in IL (I live on the

other side of the country) called " Informed Consent " and totally went

in circles w/them while at work yesterday. They kept telling me to

call my doc and I have - almost every day! They've called before and

by the time I get home at night they're closed. I finally said I

didn't want to hear from them and I would file a complaint. Which

part of " no " don't they understand? Not getting anywhere.

---------------------------------

Don't get soaked. Take a quick peek at the forecast

with the Search weather shortcut.

[Guest guest]

IMHO, you are playing with fire by " cheating the system " , especially

since you have already had anaphylactic reactions in the past. Your 3

epipens, neb and inhalers will work only briefly if you ever have a

full-blown anaphylactic reaction. If you are not in a doctor's office

or short minutes from a hospital, the very temporary effect of the

meds you have would not be enough to save your life. Please, please,

please just take a good book and sit out the full waiting period.

Fran

> > >

> > > I can't really answer the poll since I haven't started xolair

yet.

> > > In fact, this is about the heart of the problem. I have the

> xolair

> > > med at home - been there 3 weeks. My doc wanted me to self

> inject at

> > > home w/a nurse coming out to show me how and explain things. (I

> > > could figure it out myself with instructions - am well educated)

> > > Insurance agreed to pay for nurse. However, Genentech and SPOC

> > > seemed to flip out over the idea and no nurse has been

> scheduled. I

> > > am FURIOUS. The insurance said they would pay for a nurse so

> that's

> > > not really the problem. I've talked to all kinds of nurses

groups

> > > and pharmaceuticals and even a semi-sales rep from Genentech

and

> they

> > > all freak out and tell me to call my doc and shots are in doc's

> > > office. All I'm doing is going in circles This NOT AN INSURANCE

> > > PROBLEM!!!

> > >

> > > My doc's office is not set up to give xolair shots - staff not

> > > trained in it. It's $45 copay for one month of Xolair Rx.

Then

> it's

> > > $45.00 co-pay for doc's office each time (twice a month). So,

in

> one

> > > month I could easily rack up $135 going to a doc's office when I

> > > could do it at home with my doc's blessings for only

$45. !!!!

> I

> > > am rather seething over this. I also cannot spend 4 to 6 hours

> twice

> > > a month getting shots across town.

> > >

> > > I keep getting phone calls from some nurse group in IL (I live

on

> the

> > > other side of the country) called " Informed Consent " and

totally

> went

> > > in circles w/them while at work yesterday. They kept telling

me

> to

> > > call my doc and I have - almost every day! They've called

before

> and

> > > by the time I get home at night they're closed. I finally said

I

> > > didn't want to hear from them and I would file a complaint.

Which

> > > part of " no " don't they understand? Not getting anywhere.

> >

> >

> > Good grief! Red tape like this really upsets me. Hang in there.

> > We are behind you and feel your pain!

> >

> > Doug

> > Group owner

> >

>

[Guest guest]

Fran and others,

I am so sorry if I gave the impression that I do not care about

reactions or anything like that, I do. My primary's office is

literally right down the street from my house, and epi-pens DO last

the 5 or so min. until I get there (I know this for sure) and at her

office my primary has more epi, benadryl, steroids, nebs, O2, etc,

and she knows my history unlike an ER doc would in that situation

(I've had numerous bad ER experiences at various ER's). She would

also be able to call for EMS transport right away, to be there in

minutes, if needed. As she says whenever I ask if I should wait, I

know what to do in case of a reaction, and if I lived any farther

away from her office, I would wait after Xolair. I always stay at

home with someone else watching me who can/ will drive if needed, for

the rest of the day after my Xolair, so that I am close to her

office, just in case. Again, I am sorry if I gave the impression that

I'm not careful, in fact I'm quite paranoid about Xolair.

On an unrelated topic when I went to my primary's for my Xolair

this Monday because apparently the Xolair rep. for my area found out

about me and gave my primary something that she's very excited about.

Its apparently a machine (I haven't seen it) that you put the Xolair

vials in after you add the SWFI to mix them, so that you don't have

to keep swirling them. I was wondering if this was a new thing, and

if anyone else has it or has heard about it.

<3

Meagan

> > > >

> > > > I can't really answer the poll since I haven't started xolair

> yet.

> > > > In fact, this is about the heart of the problem. I have the

> > xolair

> > > > med at home - been there 3 weeks. My doc wanted me to self

> > inject at

> > > > home w/a nurse coming out to show me how and explain things.

(I

> > > > could figure it out myself with instructions - am well

educated)

> > > > Insurance agreed to pay for nurse. However, Genentech and

SPOC

> > > > seemed to flip out over the idea and no nurse has been

> > scheduled. I

> > > > am FURIOUS. The insurance said they would pay for a nurse so

> > that's

> > > > not really the problem. I've talked to all kinds of nurses

> groups

> > > > and pharmaceuticals and even a semi-sales rep from Genentech

> and

> > they

> > > > all freak out and tell me to call my doc and shots are in

doc's

> > > > office. All I'm doing is going in circles This NOT AN

INSURANCE

> > > > PROBLEM!!!

> > > >

> > > > My doc's office is not set up to give xolair shots - staff not

> > > > trained in it. It's $45 copay for one month of Xolair Rx.

> Then

> > it's

> > > > $45.00 co-pay for doc's office each time (twice a month).

So,

> in

> > one

> > > > month I could easily rack up $135 going to a doc's office

when I

> > > > could do it at home with my doc's blessings for only

> $45. !!!!

> > I

> > > > am rather seething over this. I also cannot spend 4 to 6

hours

> > twice

> > > > a month getting shots across town.

> > > >

> > > > I keep getting phone calls from some nurse group in IL (I

live

> on

> > the

> > > > other side of the country) called " Informed Consent " and

> totally

> > went

> > > > in circles w/them while at work yesterday. They kept telling

> me

> > to

> > > > call my doc and I have - almost every day! They've called

> before

> > and

> > > > by the time I get home at night they're closed. I finally

said

> I

> > > > didn't want to hear from them and I would file a complaint.

> Which

> > > > part of " no " don't they understand? Not getting anywhere.

> > >

> > >

> > > Good grief! Red tape like this really upsets me. Hang in there.

> > > We are behind you and feel your pain!

> > >

> > > Doug

> > > Group owner

> > >

> >

>

[Guest guest]

tired---you and i can not emphasize enough the necessity of waiting it out. If

the FDA deemed it necessary, believe it, there is risk.

tiredofsteroids <sitesee@...> wrote:

IMHO, you are playing with fire by " cheating the system " , especially

since you have already had anaphylactic reactions in the past. Your 3

epipens, neb and inhalers will work only briefly if you ever have a

full-blown anaphylactic reaction. If you are not in a doctor's office

or short minutes from a hospital, the very temporary effect of the

meds you have would not be enough to save your life. Please, please,

please just take a good book and sit out the full waiting period.

Fran

> > >

> > > I can't really answer the poll since I haven't started xolair

yet.

> > > In fact, this is about the heart of the problem. I have the

> xolair

> > > med at home - been there 3 weeks. My doc wanted me to self

> inject at

> > > home w/a nurse coming out to show me how and explain things. (I

> > > could figure it out myself with instructions - am well educated)

> > > Insurance agreed to pay for nurse. However, Genentech and SPOC

> > > seemed to flip out over the idea and no nurse has been

> scheduled. I

> > > am FURIOUS. The insurance said they would pay for a nurse so

> that's

> > > not really the problem. I've talked to all kinds of nurses

groups

> > > and pharmaceuticals and even a semi-sales rep from Genentech

and

> they

> > > all freak out and tell me to call my doc and shots are in doc's

> > > office. All I'm doing is going in circles This NOT AN INSURANCE

> > > PROBLEM!!!

> > >

> > > My doc's office is not set up to give xolair shots - staff not

> > > trained in it. It's $45 copay for one month of Xolair Rx.

Then

> it's

> > > $45.00 co-pay for doc's office each time (twice a month). So,

in

> one

> > > month I could easily rack up $135 going to a doc's office when I

> > > could do it at home with my doc's blessings for only

$45. !!!!

> I

> > > am rather seething over this. I also cannot spend 4 to 6 hours

> twice

> > > a month getting shots across town.

> > >

> > > I keep getting phone calls from some nurse group in IL (I live

on

> the

> > > other side of the country) called " Informed Consent " and

totally

> went

> > > in circles w/them while at work yesterday. They kept telling

me

> to

> > > call my doc and I have - almost every day! They've called

before

> and

> > > by the time I get home at night they're closed. I finally said

I

> > > didn't want to hear from them and I would file a complaint.

Which

> > > part of " no " don't they understand? Not getting anywhere.

> >

> >

> > Good grief! Red tape like this really upsets me. Hang in there.

> > We are behind you and feel your pain!

> >

> > Doug

> > Group owner

> >

>

---------------------------------

It's here! Your new message!

Get new email alerts with the free Toolbar.