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Re:going off Xolair...

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I'm the same way, after my first two months (4 rounds of shots) the

accredo/novafactor stated that blue cross hadn't YET approved my Xolair, it was

still in process so they stopped sending me Xolair. The first week without the

shot wasn't so bad, a little ichier, a little more sneezing, but by the 2nd week

(now at the 4 wk after my last shot instead of getting them every 2 wks) i was

starting to have asthma problems again. And it got worse from there, not worse

than pre-Xolair, but after having what seemed like a miracle drug for me I

remember just how crappy i had been feeling. I honestly hadn't really noticed

the Xolair working the first two months until I wasn't on it anymore. I got to

start back two months later, and it was about 4 wks before I felt relief again.

I agree with you Addy, I'm content with taking this for the rest of my life so

long as I can live a semi-normal one with it. Long dr. office waits after or

not, I'm on it until insurance stops paying and

I'm dang near homeless paying out of pocket for it.

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My parents found out I went without Xolair for a while b/c of

insurance and were furious at me. They spent so many nights up with

me when I was sick as a child and so much time in doctor's offices

and ERs that I think they still fear that I'll die from an asthma

attack. I'm under strict instructions to tell them I need $$ for

Xolair if I need $ for Xolair, but they're retired, for pete's sake.

THank God for my insurance....

>

> I'm the same way, after my first two months (4 rounds of shots) the

accredo/novafactor stated that blue cross hadn't YET approved my

Xolair, it was still in process so they stopped sending me Xolair.

The first week without the shot wasn't so bad, a little ichier, a

little more sneezing, but by the 2nd week (now at the 4 wk after my

last shot instead of getting them every 2 wks) i was starting to have

asthma problems again. And it got worse from there, not worse than

pre-Xolair, but after having what seemed like a miracle drug for me I

remember just how crappy i had been feeling. I honestly hadn't

really noticed the Xolair working the first two months until I wasn't

on it anymore. I got to start back two months later, and it was

about 4 wks before I felt relief again. I agree with you Addy, I'm

content with taking this for the rest of my life so long as I can

live a semi-normal one with it. Long dr. office waits after or not,

I'm on it until insurance stops paying and

> I'm dang near homeless paying out of pocket for it.

>

>

>

>

>

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