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--- In , " Maxine " <motherswithangels@...>

wrote:

>

> I am curious how many on this board smoke. Thanks for your reply.

>

You must be kidding right? Most of us can barely breathe as it is.

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--- uca79iii <uca79iii@...> wrote:

>

> >

> > I am curious how many on this board smoke. Thanks for

> your reply.

> >

>

> You must be kidding right? Most of us can barely breathe

> as it is.

I have seen folks smoke from tracheostomies. They had

head/lung/larynx cancer, needing oxygen and sometimes

smoked with oxygen on (not cool in the hospital).

I had a patient that had his whole left lung removed. The

only thing that motivated this guy to get up after surgery

was a promised trip to the smoking room. This was back in

the mid 80's, when there were smoking rooms for patients

who could crawl to get there nic fix.

This guy dragged two electronic IV pole gizmos and an old

school style chest tube set up to get his smokey treat.

The chest tube set up was the kind that had those huge

glass jugs. That thing was like moving a small filing

cabinet.

He was full of lung cancer. Didn't give a sh#t. Had to

have a few puffs of his unfilter sticks. Walked backed to

the room, and asked for his breathing treatment. (shrug)

Almost all my doctors asked how long I've been smoking.

Interesting, since I've never smoked EVER. Really, how

come your lungs are so bad? (bad karma??? who knows)

I don't think smoking excludes one from getting Xolair. My

pulmonary doctor says about 50% of his patients with

serious lung diseases still smoke. I don't know how he

keeps his sanity.

So...I wouldn't be shocked if some smoke while on Xolair.

Wise? Probably not. Smokey treats were never my vice of

choice. I don't understand it, but I do know that the Nic

Monkey is one mean beast.

Nan-->nebbing as I type...ohhhh...multi-tasking!

****Ordinary life is pretty complex stuff***

-=Harvey Pekar=-

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I've often wondered how people could keep smoking after developing lung cancer,

or with asthma, or COPD, but then my husband (who has never smoked, but his dad

did) reminds me of how hard it is for people to quit smoking. Just look at the

ads on TV for gimmicks and even clinics to help people quit--that's a clue as to

how hard it is to stop. I never wanted to smoke--no one in my immediate family

smoked, although I had two uncles who smoked. One of them died early (from a

severe case of tetanus), the other one gave it up and lived to be 91! Soooo--go

figure. Everytime I see the pulmonologist she asks me again if I ever

smoked--my lungs are very bad, too, but my asthma is kept under control by the

med regimen. I am also taking xolair once a month.

Bat and Pup <lilbatz@...> wrote:

--- uca79iii <uca79iii@...> wrote:

>

> >

> > I am curious how many on this board smoke. Thanks for

> your reply.

> >

>

> You must be kidding right? Most of us can barely breathe

> as it is.

I have seen folks smoke from tracheostomies. They had

head/lung/larynx cancer, needing oxygen and sometimes

smoked with oxygen on (not cool in the hospital).

I had a patient that had his whole left lung removed. The

only thing that motivated this guy to get up after surgery

was a promised trip to the smoking room. This was back in

the mid 80's, when there were smoking rooms for patients

who could crawl to get there nic fix.

This guy dragged two electronic IV pole gizmos and an old

school style chest tube set up to get his smokey treat.

The chest tube set up was the kind that had those huge

glass jugs. That thing was like moving a small filing

cabinet.

He was full of lung cancer. Didn't give a sh#t. Had to

have a few puffs of his unfilter sticks. Walked backed to

the room, and asked for his breathing treatment. (shrug)

Almost all my doctors asked how long I've been smoking.

Interesting, since I've never smoked EVER. Really, how

come your lungs are so bad? (bad karma??? who knows)

I don't think smoking excludes one from getting Xolair. My

pulmonary doctor says about 50% of his patients with

serious lung diseases still smoke. I don't know how he

keeps his sanity.

So...I wouldn't be shocked if some smoke while on Xolair.

Wise? Probably not. Smokey treats were never my vice of

choice. I don't understand it, but I do know that the Nic

Monkey is one mean beast.

Nan-->nebbing as I type...ohhhh...multi-tasking!

****Ordinary life is pretty complex stuff***

-=Harvey Pekar=-

__________________________________________________________

Never Miss an Email

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>

> Nan-->nebbing as I type...ohhhh...multi-tasking!

>

LOL! Nice to know I am not the only one that can Neb and type at the

same time...

About the smoking.... maybe 10 in total in my whole life -- I just

keep thinking of how worse things could be if I was a smoker....

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> >

> > Nan-->nebbing as I type...ohhhh...multi-tasking!

> >

>

> LOL! Nice to know I am not the only one that can Neb and type at the

> same time...

>

> About the smoking.... maybe 10 in total in my whole life -- I just

> keep thinking of how worse things could be if I was a smoker....

>

I neb and type all the time. It passes the time. I use a Pari LP Plus

neb cub that I don't have to hold so my typin fangerz iz alwayz

avaluble . Now, iffin ah kin gett mu spellin rite. hahahah

As for smoking..... I outgrew my astma at age 14. Started smoking and

quit at age 27 COLD TURKEY. Yes it CAN be done!!! I can count on one

hand how many asthma attacks I had during those 13 years.

Three years after I quit smoking, my asthma came back and with a

vengance. Ever since 1985, it has been getting gradually worse. Every

few years, the doctor would have to add another drug to keep my lungs

open.

I have seen 5 allergists and 2 Plumo's since 1985. ALL of them tell me

that my past smoking is NOT the cause of my persistant asthma. Wierd huh?

After being on Xolair for over 3 years, I now only neb once or twice a

day. I could use a small hand held inhaler, but can you believe that

I am allergic to the propellent? LOL, it makes my asthma worse.

I remember going straight from my doctors office after getting my 2

xolair shots to a restraunt to meet my wife for lunch. I had also

that very day paid around 400.00 for co payments for 3 month supplies

of Xopenex, Atrovent, Pulmicort and Advair.

Upon entering the restraunt, I was bombarded with a room full of

cigarette smoke. Immediately, my lungs tighened up and I couldn't

breathe. I had just nebbed at the doctor's office and couldn't neb

again for another 4 hours. I had to tough it out.

You ask if I smoke? NO WAY! I couldn't even if I wanted to.

Doug

Group founder

Co-owner-moderator

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Interesting that of the 341 members here, only a very few (five) said

they did not smoke. Are the others covering up, or not available to

reply? Knowing that nicotine is more addictive than heroin, the

scientists have now found a part of the brain, the insula, that is the

area rewarded in smokers. It just seems strange that more people didn't

answer in this topic. Wonder why.

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--- In , " Maxine " <motherswithangels@...>

wrote:

>

> Interesting that of the 341 members here, only a very few (five) said

> they did not smoke. Are the others covering up, or not available to

> reply? Knowing that nicotine is more addictive than heroin, the

> scientists have now found a part of the brain, the insula, that is the

> area rewarded in smokers. It just seems strange that more people didn't

> answer in this topic. Wonder why.

>

Unfortunately, not everyone participates in the discussions. If I was

a smoker, I wouldn't have answered.

After over 3 years of having this board not once has anyone mentioned

asthmatics who are this bad continuing to smoke. These group members

are struggling just to breathe as it is.

Yes, I have seen people with terrible respitory problems continue to

smoke. I personally QUIT cold turkey BEFORE my asthma came back.

(read my former post)

Yes, quiting CAN BE DONE. I am a living BREATHING example.

Doug

Group founder

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Hi, I'll bet people did not respond because they don't smoke. Your

question was how many people smoke, not how many don't smoke. So your

question tend to eliminate a response from non-smokers.

Have you read any of our back posts? Are you aware this is a group

for people who have moderate to severe allergic asthma? We might have

a few people who used to smoke, but I doubt we have more than five in

this group who still smoke.

Addy

Group co-owner

--- In , " Maxine " <motherswithangels@...>

wrote:

>

> Interesting that of the 341 members here, only a very few (five) said

> they did not smoke. Are the others covering up, or not available to

> reply? Knowing that nicotine is more addictive than heroin, the

> scientists have now found a part of the brain, the insula, that is the

> area rewarded in smokers. It just seems strange that more people didn't

> answer in this topic. Wonder why.

>

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I didn't reply because I tried several different responses and they

just kept getting nastier and nastier.

No, I don't smoke. I never have. And to be asked in this group if I

smoke, while I am doing everything I can just to live was galling

beyond belief.

Who are you that you expect that out of a group of over 340 people,

some number owes you a response? Who are you to make implications? I

signed up with this group in hopes of getting more information about

my last chance. I am now living on shots of Epinephrine. Asthma has

become my whole life. I did not sign up with this group to

participate in mandatory surveys or provide you with information.

Did you have something to share about Xolair? Can you tell me how to

speed up the approval process? Can you give me advice on how to keep

going until then? No? Well that's what I'm here for.

Hannah

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Maybe the biggest surprise is to have never smoked and to still have lung damage

equal to someone who has smoked and maybe that is why only those of us who never

smoked, or who quit smoking are the ones who answered. Although I can't imagine

someone with asthma still smoking since most of us choke just at the hint of

someone else's smoke. Just a thought.

uca79iii <uca79iii@...> wrote:

--- In , " Maxine " <motherswithangels@...>

wrote:

>

> Interesting that of the 341 members here, only a very few (five) said

> they did not smoke. Are the others covering up, or not available to

> reply? Knowing that nicotine is more addictive than heroin, the

> scientists have now found a part of the brain, the insula, that is the

> area rewarded in smokers. It just seems strange that more people didn't

> answer in this topic. Wonder why.

>

Unfortunately, not everyone participates in the discussions. If I was

a smoker, I wouldn't have answered.

After over 3 years of having this board not once has anyone mentioned

asthmatics who are this bad continuing to smoke. These group members

are struggling just to breathe as it is.

Yes, I have seen people with terrible respitory problems continue to

smoke. I personally QUIT cold turkey BEFORE my asthma came back.

(read my former post)

Yes, quiting CAN BE DONE. I am a living BREATHING example.

Doug

Group founder

---------------------------------

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I also wanted to say " yes! " to what Doug said about most of these members just

struggling to breathe----Reading about the problems that so many of this group

have, I feel very blessed that my asthma is under pretty good control and I am

certain the xolair is going to help even more--I think it already has.

uca79iii <uca79iii@...> wrote: --- In

, " Maxine " <motherswithangels@...>

wrote:

>

> Interesting that of the 341 members here, only a very few (five) said

> they did not smoke. Are the others covering up, or not available to

> reply? Knowing that nicotine is more addictive than heroin, the

> scientists have now found a part of the brain, the insula, that is the

> area rewarded in smokers. It just seems strange that more people didn't

> answer in this topic. Wonder why.

>

Unfortunately, not everyone participates in the discussions. If I was

a smoker, I wouldn't have answered.

After over 3 years of having this board not once has anyone mentioned

asthmatics who are this bad continuing to smoke. These group members

are struggling just to breathe as it is.

Yes, I have seen people with terrible respitory problems continue to

smoke. I personally QUIT cold turkey BEFORE my asthma came back.

(read my former post)

Yes, quiting CAN BE DONE. I am a living BREATHING example.

Doug

Group founder

---------------------------------

Be a PS3 game guru.

Get your game face on with the latest PS3 news and previews at Games.

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--- In , " Maxine " <motherswithangels@...>

wrote:

>

> Interesting that of the 341 members here, only a very few (five)

said

> they did not smoke. Are the others covering up, or not available to

> reply? Knowing that nicotine is more addictive than heroin, the

> scientists have now found a part of the brain, the insula, that is

the

> area rewarded in smokers. It just seems strange that more people

didn't

> answer in this topic. Wonder why.

>

Put me on the list that DO NOT smoke. My parents did, even after my

drs. told them it could worsen MY asthma. I can't stand anything

associated with it. My lungs have been messed up enough as it is; why

would I do that to myself or my family

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I do not smoke either, my paternal Grandmother died of a smoking-

related illness, and she is the reason that I have asthma. I am so

allergic to nicotene as a matter of fact, that my prior allergist

said that I would most likely go into anaphylactic shock if I ever

attempted to smoke. My lungs like to be rebels as it is (I have to

keep them in line by doing Atrovent nebs every 3 hours, I can't use

Xopenex/Albuterol anymore because it makes me even tighter, pred 15mg

every other day which is down from 60mg three times a day, pulmicort

600mcg twice daily, singulair, spiriva (to let me sleep a little),

astelin, atrovent nasal, pseudovent (generic form of Entex), prevacid

(for the reflux from the pred), atarax, zyrtec, xolair and usually an

antibiotic too), I do not want to give them another reason to act up.

- Meagan (who's 20 years old and just got back from getting Xolair,

despite which, my Dr. just listened to me and says she's out of

ideas, I'm probably reacting to the cold-air but if I don't start

feeling better soon I'll have to call my pulmo b/c this shouldn't be

happening)

> >

> > Interesting that of the 341 members here, only a very few (five)

> said

> > they did not smoke. Are the others covering up, or not available

to

> > reply? Knowing that nicotine is more addictive than heroin, the

> > scientists have now found a part of the brain, the insula, that

is

> the

> > area rewarded in smokers. It just seems strange that more people

> didn't

> > answer in this topic. Wonder why.

> >

>

> Put me on the list that DO NOT smoke. My parents did, even after my

> drs. told them it could worsen MY asthma. I can't stand anything

> associated with it. My lungs have been messed up enough as it is;

why

> would I do that to myself or my family

>

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Oh I forgot I'm also on 700mg of Theophylline/day, so the fact that I

have to take so much medicine daily and I am a non-smoker - I can

only imagine how much more I'd have to take if I smoked. I just don't

think smoking is worth it for me. - Meagan

> >

> > Interesting that of the 341 members here, only a very few (five)

> said

> > they did not smoke. Are the others covering up, or not available

to

> > reply? Knowing that nicotine is more addictive than heroin, the

> > scientists have now found a part of the brain, the insula, that

is

> the

> > area rewarded in smokers. It just seems strange that more people

> didn't

> > answer in this topic. Wonder why.

> >

>

> Put me on the list that DO NOT smoke. My parents did, even after my

> drs. told them it could worsen MY asthma. I can't stand anything

> associated with it. My lungs have been messed up enough as it is;

why

> would I do that to myself or my family

>

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Sharon, you crack me up. Can I take the red shoes with me?

Addy

>

> Personally, I don't think it is anybody's business. If someone wants

to

> answer they will. Sharon who has smoked in the past.

>

> GoGo away, before I drop a house on you!!!!

>

>

>

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Hi, I am in or on the same thought wave as Addy. I do not smoke so I would not

answer the question. I have not smoked but have friends who do and ask them not

to when I am around. I have enough problem breathing with out that habit.

Sr. Volz, C.R.

pyle456 <coachmac@...> wrote:

Hi, I'll bet people did not respond because they don't smoke. Your

question was how many people smoke, not how many don't smoke. So your

question tend to eliminate a response from non-smokers.

Have you read any of our back posts? Are you aware this is a group

for people who have moderate to severe allergic asthma? We might have

a few people who used to smoke, but I doubt we have more than five in

this group who still smoke.

Addy

Group co-owner

--- In , " Maxine " <motherswithangels@...>

wrote:

>

> Interesting that of the 341 members here, only a very few (five) said

> they did not smoke. Are the others covering up, or not available to

> reply? Knowing that nicotine is more addictive than heroin, the

> scientists have now found a part of the brain, the insula, that is the

> area rewarded in smokers. It just seems strange that more people didn't

> answer in this topic. Wonder why.

>

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Never ever can't stand the sight or smell of them.

psychoratzilla@... wrote: Personally, I

don't think it is anybody's business. If someone wants to

answer they will. Sharon who has smoked in the past.

GoGo away, before I drop a house on you!!!!

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The thing about smoking always sets me off !!! Like you, I've never

smoked anything of any kind at any time in my entire life. My

parents did not smoke and my husband does not smoke yet I've got lung

disease. I was infuriated with the pulmo doc who asked me at least 4

times if I had ever smoked. (Is there some old Native American thing

about being asked a question 4 times - north, east, south, and west

and if the answer is the same every time it's true?) On a subsequent

visit he asked if I had been able to cut back on smoking any. I did

not view the comment as funny and let him know very loudly AGAIN -

never smoked anything in my life. The bottom line is, they're

helpless in treating the disease and it's an affront to their last

vestiges (sp?) of power. The wife of the man who played Superman

(Reese?) died from lung cancer in her forties yet I've heard she

never smoked. Have heard the same from others. It might be unusual

but it does happen. Thankfully, I don't have the big Ca though. I

do have allergic bronchopulmonary aspergillosis and asthma and copd.

Still waiting for SPOC to get their act together and call the

insurance for approval .......

> > >

> > > I am curious how many on this board smoke. Thanks for

> > your reply.

> > >

> >

> > You must be kidding right? Most of us can barely breathe

> > as it is.

>

> I have seen folks smoke from tracheostomies. They had

> head/lung/larynx cancer, needing oxygen and sometimes

> smoked with oxygen on (not cool in the hospital).

>

> I had a patient that had his whole left lung removed. The

> only thing that motivated this guy to get up after surgery

> was a promised trip to the smoking room. This was back in

> the mid 80's, when there were smoking rooms for patients

> who could crawl to get there nic fix.

>

> This guy dragged two electronic IV pole gizmos and an old

> school style chest tube set up to get his smokey treat.

> The chest tube set up was the kind that had those huge

> glass jugs. That thing was like moving a small filing

> cabinet.

> He was full of lung cancer. Didn't give a sh#t. Had to

> have a few puffs of his unfilter sticks. Walked backed to

> the room, and asked for his breathing treatment. (shrug)

>

> Almost all my doctors asked how long I've been smoking.

> Interesting, since I've never smoked EVER. Really, how

> come your lungs are so bad? (bad karma??? who knows)

>

> I don't think smoking excludes one from getting Xolair. My

> pulmonary doctor says about 50% of his patients with

> serious lung diseases still smoke. I don't know how he

> keeps his sanity.

>

> So...I wouldn't be shocked if some smoke while on Xolair.

> Wise? Probably not. Smokey treats were never my vice of

> choice. I don't understand it, but I do know that the Nic

> Monkey is one mean beast.

>

> Nan-->nebbing as I type...ohhhh...multi-tasking!

>

>

>

>

>

>

>

> ****Ordinary life is pretty complex stuff***

> -=Harvey Pekar=-

>

>

>

>

______________________________________________________________________

______________

> Never Miss an Email

> Stay connected with on your mobile. Get started!

> http://mobile./services?promote=mail

>

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I never have smoked, my parents never did smoke. My mom died of Pulmonary

MAC and bronchiectasis, her parents never smoked; but everyone would say her

lungs looked like a 2 pack a day smoker. Asthma was a small component of her

lung condition, and her asthma was intrinsic asthma so don't know if the Zolair

would have helped if it were available.

Debbie

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I never really post they are figuring houth ow to give me xolair latex free

right now. A sthat is why I was having trouble with it. Entirley huge story to

go into. ANyhow I do not smoke and never did. Yes it is making me mad that you

are stating that just because you do nto reply it means you smoke. Yes I am make

on predisone and am evil.

karin

----- Original Message -----

From: asperqu

Sent: Friday, February 02, 2007 12:38 PM

Subject: [ ] Re: How many smoke?

>

> Interesting that of the 341 members here, only a very few (five)

said

> they did not smoke. Are the others covering up, or not available to

> reply? Knowing that nicotine is more addictive than heroin, the

> scientists have now found a part of the brain, the insula, that is

the

> area rewarded in smokers. It just seems strange that more people

didn't

> answer in this topic. Wonder why.

>

Put me on the list that DO NOT smoke. My parents did, even after my

drs. told them it could worsen MY asthma. I can't stand anything

associated with it. My lungs have been messed up enough as it is; why

would I do that to myself or my family

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What's the latex part of Xolair??? Is it the rubbery stuff on the top

of the vials???

Addy

> >

> > Interesting that of the 341 members here, only a very few

(five)

> said

> > they did not smoke. Are the others covering up, or not

available to

> > reply? Knowing that nicotine is more addictive than heroin, the

> > scientists have now found a part of the brain, the insula, that

is

> the

> > area rewarded in smokers. It just seems strange that more

people

> didn't

> > answer in this topic. Wonder why.

> >

>

> Put me on the list that DO NOT smoke. My parents did, even after

my

> drs. told them it could worsen MY asthma. I can't stand anything

> associated with it. My lungs have been messed up enough as it is;

why

> would I do that to myself or my family

>

>

>

>

>

>

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Addy,

Yes and in the manufacturing they believe it is in contact.

Karin

----- Original Message -----

From: pyle456

Sent: Saturday, February 03, 2007 3:18 PM

Subject: [ ] Re: How many smoke?

What's the latex part of Xolair??? Is it the rubbery stuff on the top

of the vials???

Addy

> >

> > Interesting that of the 341 members here, only a very few

(five)

> said

> > they did not smoke. Are the others covering up, or not

available to

> > reply? Knowing that nicotine is more addictive than heroin, the

> > scientists have now found a part of the brain, the insula, that

is

> the

> > area rewarded in smokers. It just seems strange that more

people

> didn't

> > answer in this topic. Wonder why.

> >

>

> Put me on the list that DO NOT smoke. My parents did, even after

my

> drs. told them it could worsen MY asthma. I can't stand anything

> associated with it. My lungs have been messed up enough as it is;

why

> would I do that to myself or my family

>

>

>

>

>

>

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