Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 Hi Misty I have lost 3 pregnancies, so I know what you are feeling right now. My daughters are now 11 + 8 and " back then " when I was pregnant, I wasn't allowed to take Flovent or any other " new-fangled " drugs. I was on Becloforte 16 puffs a day (hence the cataracts etc!), as well as NUMBEROUS others meds, which I can't remember right now! I do know after my pregnancies I was switched to Flovent and whatever was new on the market at that time. During both of my successful pregnancies, I was on predinsone for a least the first tri-memster, if not longer, for asthma flares. As I was told by my doctors, if I wasn't getting any oxygen, neither were the babies. Good luck, and if you want to email me off-list to discuss anything, please go right ahead! Pamela (who is very excited that is coming to visit me in Kingston next week!!! YIPPEEEE!!!!) --- In , " Misty Lynn " <mistylynnm@...> wrote: > > My husband and I were wanting to think about having children toward > the end of the year. Does anyone know if Xolair is safe during > pregnancy? The nurse at the pharmacy told me that most people quit > taking it during pregnancy and soo they don't really know but when > they tried it in animals it didnt affect the unborn baby. > I'm just curious because I've lost 4 babies and I don't know that I > want to take a chance, BUT I am going to need to be able to breathe > during pregnancy as well. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 Disclaimer - I've never been pregnant However, I had a long talk with a high risk OBGYN several years ago. This was pre-Xolair. She said that they had LOADS of information on the asthma meds available at that time and how they affect babies. She said that by and large her practice (a high risk practice) was very successful at delivering healthy babies to asthmatic mothers b/c their moms took their meds and got sufficient oxygen for mom and baby. Like you said, She said the worst risk was mom not taking the meds and not getting enough oxygen. I had to come off Xolair for a while due to insurance changes and got some benefit from it for 5-6 months after the last dose. I would ask your doc to call the local Xolair rep and see if there are any new stats on Xolair and pregnancy. I know GEnentech has been doing follow up studies with Xolair patients. I would also talk to an OB-GYN. Good luck!!!! Addy Group co owner > > My husband and I were wanting to think about having children toward > the end of the year. Does anyone know if Xolair is safe during > pregnancy? The nurse at the pharmacy told me that most people quit > taking it during pregnancy and soo they don't really know but when > they tried it in animals it didnt affect the unborn baby. > I'm just curious because I've lost 4 babies and I don't know that I > want to take a chance, BUT I am going to need to be able to breathe > during pregnancy as well. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 Thanks for the replies. I plan on bringing it up with my GYN (she specializes in high risk. I've also seen a Perinatologist because of my losses, and gone through " pre conception counceling " but this was all before Xolair was in the picture or even mentioned and it was mostly because of the diabetes factor (even though the only time that is uncontrolled is witht he asthma is acting up). I just am a worry wart I guess. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 I took Xolair during my last pregnancy. I'd be happy to tell you all about it. Because of my asthma and other medical conditions I saw a neonatologist instead of a regular OB/GYN. My pregnancy was not completely smooth sailing, but it's hard to separate the effects from other medications I took from Xolair. I'll give you the details if you like. I tried desperately to find someone who had taken Xolair while they were pregnant when I was trying to get pregnant and couldn't find anyone else. I personally don't think Xolair caused any of my problems. And I now have a healthy, happy (wild) 18 month old! Peggy --- In , " Misty Lynn " <mistylynnm@...> wrote: > > My husband and I were wanting to think about having children toward > the end of the year. Does anyone know if Xolair is safe during > pregnancy? The nurse at the pharmacy told me that most people quit > taking it during pregnancy and soo they don't really know but when > they tried it in animals it didnt affect the unborn baby. > I'm just curious because I've lost 4 babies and I don't know that I > want to take a chance, BUT I am going to need to be able to breathe > during pregnancy as well. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 NOW THAT's GREAT NEWS! Congrats on delivering a happy, healthy, and now wild toddler! > > > > My husband and I were wanting to think about having children toward > > the end of the year. Does anyone know if Xolair is safe during > > pregnancy? The nurse at the pharmacy told me that most people quit > > taking it during pregnancy and soo they don't really know but when > > they tried it in animals it didnt affect the unborn baby. > > I'm just curious because I've lost 4 babies and I don't know that I > > want to take a chance, BUT I am going to need to be able to breathe > > during pregnancy as well. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 Congratulations. My sister had two successful pregnancies during the 60's when there were not as many meds for asthma, and she actually felt better during her pregnancies, but she took the meds that she normally took for asthma. I must also add that her asthma was extremely severe at times and she did have several stays in the hospital.Both of her children are healthy adults and each of them has had children (her girl has two children and her boy has one child--all also doing well.) paroof <Peggy.@...> wrote: I took Xolair during my last pregnancy. I'd be happy to tell you all about it. Because of my asthma and other medical conditions I saw a neonatologist instead of a regular OB/GYN. My pregnancy was not completely smooth sailing, but it's hard to separate the effects from other medications I took from Xolair. I'll give you the details if you like. I tried desperately to find someone who had taken Xolair while they were pregnant when I was trying to get pregnant and couldn't find anyone else. I personally don't think Xolair caused any of my problems. And I now have a healthy, happy (wild) 18 month old! Peggy --- In , " Misty Lynn " <mistylynnm@...> wrote: > > My husband and I were wanting to think about having children toward > the end of the year. Does anyone know if Xolair is safe during > pregnancy? The nurse at the pharmacy told me that most people quit > taking it during pregnancy and soo they don't really know but when > they tried it in animals it didnt affect the unborn baby. > I'm just curious because I've lost 4 babies and I don't know that I > want to take a chance, BUT I am going to need to be able to breathe > during pregnancy as well. > --------------------------------- Sucker-punch spam with award-winning protection. Try the free Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 Ok, ok, ok - it is a bit of a stretch that I would see a NEONATOLOGIST. Guess, I had my " ologists " mixed up - don't know why, I hardly see any :0 Perinatologist would be the correct " ologist " - neonatologist was what my son had. Anyway, thanks! We couldn't be happier to have him! > > > > My husband and I were wanting to think about having children toward > > the end of the year. Does anyone know if Xolair is safe during > > pregnancy? The nurse at the pharmacy told me that most people quit > > taking it during pregnancy and soo they don't really know but when > > they tried it in animals it didnt affect the unborn baby. > > I'm just curious because I've lost 4 babies and I don't know that I > > want to take a chance, BUT I am going to need to be able to breathe > > during pregnancy as well. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 Thanks. Wow, I can't imagine how scary that had to be for your sister; she was very brave! I'm so glad she had a happy ending, too. I know when I was reading about asthma and pregnancy it said 1/3 of women experience improvement, 1/3 stay about the same, and 1/3 experience increased symptoms. I was in the unlucky 1/3 group, but everything worked out ok in the end. > > Congratulations. My sister had two successful pregnancies during the 60's when there were not as many meds for asthma, and she actually felt better during her pregnancies, but she took the meds that she normally took for asthma. I must also add that her asthma was extremely severe at times and she did have several stays in the hospital.Both of her children are healthy adults and each of them has had children (her girl has two children and her boy has one child--all also doing well.) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 I've always thought this was strange, but I had no increased symptoms during either of my pregnancies. Also, no significant improvement. But my asthma was much milder then. However, it was 4 months after my son was born that my asthma went out of control and I never fully recovered. Until I found Xolair that is. I went from having such a mild form of asthma, to being completely steroid dependant almost overnight. I'm still not 100%, and the doctor says I never will be. But, I'm not steroid dependant anymore and I'll take that! I'll never risk having another baby though. For me, the danger is just too great. I can't risk what would happen if my symptoms worsened again. If I hadn't experienced that, then I'd be willing to try again and take Xolair throughout. I think anyone that has the opportunity to have a baby in a healthy manner while battling asthma should go for it. If my doctor gave me the green light, I would. With all fo the information I have, and have read about the way Xolair works, there seems to be no way a baby could be harmed by taking the medcation. I say it's worth it. I know firsthand what it feels like to have trouble breathing during pregnancy! -------Original Message------- From: paroof Date: 02/01/07 11:31:49 Subject: [ ] Re: Xolair and pregnancy? Thanks. Wow, I can't imagine how scary that had to be for your sister; she was very brave! I'm so glad she had a happy ending, too. I know when I was reading about asthma and pregnancy it said 1/3 of women experience improvement, 1/3 stay about the same, and 1/3 experience increased symptoms. I was in the unlucky 1/3 group, but everything worked out ok in the end. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 I had a consult with a high-risk obgyn once. This was before Xolair. She said that normally they will continue to keep their asthmatic patients on drugs that they are already on and which work for them, the number one reason being is that the WORST thing for the foetus and the mom is lack of oxygen. I would ask your regular OBGYN for an opinion AND for a referral to a high risk OBGYN for an opinion. I would have them call National Jewish in Colorado - they've done a ton of the Xolair studies and they probably have had a few patients on Xolair get preggers and could probably give an informal but informed opinion. PERSONALLY, I would stay on Xolair if it were working for me, but I would not START Xolair during pregnancy. I do not know if we have had any group members become preggers on Xolair. You can do a search through past posts to check. Good luck and God bless, Addy Group co-owner Not a doctor. > > I have taken Xolair now for 2.5 years and my life has changed - I can > actually breathe. Now my husband and I are thinking about becoming > pregnant. I know that there are no studies on the effect Xolair has on > a baby and I know that they have a registry to collect data. I just > want to know if somebody else out there has taken Xolair and become > pregnant. Stopping Xolair could be a devastating mistake to me, not > trying to have a baby could be a devastating experience but not life > threatening. Any thoughts? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 i agree on everything addy said. i googled it and found this - http://www.xolairpregnancyregistry.com/patients.htm - its a study for patients who are on xolair and pregnant. i recall seeing something about xolair and pregnancy at my drs office, but i'm not sure the details. i'd ask your prescribing dr about it. keep us posted! heather --- In , " pyle456 " <jamcculloch2@...> wrote: > > I had a consult with a high-risk obgyn once. This was before Xolair. > She said that normally they will continue to keep their asthmatic > patients on drugs that they are already on and which work for them, > the number one reason being is that the WORST thing for the foetus and > the mom is lack of oxygen. > > I would ask your regular OBGYN for an opinion AND for a referral to a > high risk OBGYN for an opinion. I would have them call National Jewish > in Colorado - they've done a ton of the Xolair studies and they > probably have had a few patients on Xolair get preggers and could > probably give an informal but informed opinion. > > PERSONALLY, I would stay on Xolair if it were working for me, but I > would not START Xolair during pregnancy. > > I do not know if we have had any group members become preggers on > Xolair. You can do a search through past posts to check. > > Good luck and God bless, > > Addy > Group co-owner > Not a doctor. > > > > > > --- In , " domchancy " <domchancy@> wrote: > > > > I have taken Xolair now for 2.5 years and my life has changed - I can > > actually breathe. Now my husband and I are thinking about becoming > > pregnant. I know that there are no studies on the effect Xolair has > on > > a baby and I know that they have a registry to collect data. I just > > want to know if somebody else out there has taken Xolair and become > > pregnant. Stopping Xolair could be a devastating mistake to me, not > > trying to have a baby could be a devastating experience but not life > > threatening. Any thoughts? > > > Quote Link to comment Share on other sites More sharing options...
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