Re: Inhaled Bronchodilator Sensitivity

[Guest guest]

I'm so sorry you're having such a tough time. You don't mention any

steroids - are you receiving them?

--- In , " meagainbenny " <bennetme@...>

wrote:

>

> Hi,

>

> My pulmo and I (using trial & error) have dicovered that

inhaled

> beta-agonists work for me short term, but they end up making me

even

> tighter long term. As he puts it " it comes back and hits you in the

> head. " We discovered this when I was hospitalized at 3 differnt

> hospitals from the very beginning of June - the end of July 2006

(for

> a non-asthma related illness, basically due to the steroids for my

> asthma a stomach virus went to my brain) and I didn't use any

inhaled

> bronchodilators. I take Theo-24, do Atrovent nebs, and use Spiriva

> (so I can lay down and sleep at night) and they do not affect me

> adversely, but I currently have Acute Bronchitis and the standard

> treatment would be a beta-agonist, but my pulmo is so afraid, that

he

> had me increase my Atrovent nebs instead. So I'm doing nebs every 2

> hrs (fun stuff) and waking up multiple times during the night to do

> nebs, but my pulmo's happy with that. He says that he's afraid that

> I'll get so clamped down if I do any bronchodilators that he won't

be

> able to open me back up. So, I was wondering if anybody else is

> sensitive to inhaled bronchodilators? It is apparently very rare,

my

> pulmo says that I do this kind of thing on purpose, just to make my

> case more complicated . Thanks.

>

> Meagan

>

[Guest guest]

I'm sorry, I failed to mention, I am on 15mg of Pred every other day

(down from 90mg 3x/day about a year and a half ago - but my pulmo and

I are tapering VERY slowly), Clindamycin 300mg 4x/day for the sinus

infection turned bronchitis, Pulmicort 600 mcg 2x/day, Prevacid (for

the GERD the pred gave me) 30mg 2x/day, Pseudovent 120mg

pseudoephedrine/ 400mg guiafenesin 2x/day, Zyrtec 10mg 1x/day, Atarax

25mg 1x/day (more if I have an allergic rxn), Singulair 10mg 1x/day,

Astelin 37mcg 3x/day, and Atrovent Nasal 2x/day. I also went to my

pulmo yesterday afternoon, and he says that since switching me from

Vantin (like Omnicef) to Clindamycin almost 2 weeks ago, the

bronchitis is gone (yay!), but the sinus infection in still there,

which means it is resistant to Clindamycin, which is VERY rare (I

win!). He says that it's probably Pseudomonas which is a bacteria

that requires a specific combo of IV antibiotics, or allergic fungal

sinusitis which would reuire bumping the pred, which we don't want,

because my body freaks out on me everytime my pulmo lowers the pred.

So basically I have to see an ENT ASAP and stay on the Clinda until I

see one because my pulmo says the Clinda is keeping whatever's in my

sinuses from going back into my chest (I hadn't been seeing one for

the past year or so, because the one I was seeing did an irrigation

procedure in office, and I ended up with severe pneumonia), and see

what the ENT wants to do, then go back to my pulmo and see what he'll

agree too (he said yesterday that he isn't thrilled about my having a

surgery (because I also have Vocal Cord Dysfunction) but that surgery

may be the only option). As you can tell, I am quite complicated ,

(my primary calls me Meagan the Medical Mystery), and my pulmo

promises we'll get me better, so hopefully, we'll get this all

straight soon.

Meagan

> >

> > Hi,

> >

> > My pulmo and I (using trial & error) have dicovered that

> inhaled

> > beta-agonists work for me short term, but they end up making me

> even

> > tighter long term. As he puts it " it comes back and hits you in

the

> > head. " We discovered this when I was hospitalized at 3 differnt

> > hospitals from the very beginning of June - the end of July 2006

> (for

> > a non-asthma related illness, basically due to the steroids for

my

> > asthma a stomach virus went to my brain) and I didn't use any

> inhaled

> > bronchodilators. I take Theo-24, do Atrovent nebs, and use

Spiriva

> > (so I can lay down and sleep at night) and they do not affect me

> > adversely, but I currently have Acute Bronchitis and the standard

> > treatment would be a beta-agonist, but my pulmo is so afraid,

that

> he

> > had me increase my Atrovent nebs instead. So I'm doing nebs every

2

> > hrs (fun stuff) and waking up multiple times during the night to

do

> > nebs, but my pulmo's happy with that. He says that he's afraid

that

> > I'll get so clamped down if I do any bronchodilators that he

won't

> be

> > able to open me back up. So, I was wondering if anybody else is

> > sensitive to inhaled bronchodilators? It is apparently very rare,

> my

> > pulmo says that I do this kind of thing on purpose, just to make

my

> > case more complicated . Thanks.

> >

> > Meagan

> >

>

[Guest guest]

Meagan - I'm so glad your bronchitis has cleared. The only suggestion

I have is if your sinusitis turns out to be due to Pseudomonas, just

ask your doc why you couldn't take Cipro or Levoquin or other similar

oral antibiotic. Years ago, I had many episodes of Pseudomonas

sinusitis and initially had to be treated with IV antibiotics each

time because there were no oral antibiotics that were effective

against Pseudomonas. Then Cipro came out, and later Levoquin and

other related oral antibiotics that were effective against

Pseudomonas and I had far fewer courses of IV antibiotics after that.

Good luck with the ENT -

Fran

> > >

> > > Hi,

> > >

> > > My pulmo and I (using trial & error) have dicovered that

> > inhaled

> > > beta-agonists work for me short term, but they end up making me

> > even

> > > tighter long term. As he puts it " it comes back and hits you in

> the

> > > head. " We discovered this when I was hospitalized at 3 differnt

> > > hospitals from the very beginning of June - the end of July

2006

> > (for

> > > a non-asthma related illness, basically due to the steroids for

> my

> > > asthma a stomach virus went to my brain) and I didn't use any

> > inhaled

> > > bronchodilators. I take Theo-24, do Atrovent nebs, and use

> Spiriva

> > > (so I can lay down and sleep at night) and they do not affect

me

> > > adversely, but I currently have Acute Bronchitis and the

standard

> > > treatment would be a beta-agonist, but my pulmo is so afraid,

> that

> > he

> > > had me increase my Atrovent nebs instead. So I'm doing nebs

every

> 2

> > > hrs (fun stuff) and waking up multiple times during the night

to

> do

> > > nebs, but my pulmo's happy with that. He says that he's afraid

> that

> > > I'll get so clamped down if I do any bronchodilators that he

> won't

> > be

> > > able to open me back up. So, I was wondering if anybody else is

> > > sensitive to inhaled bronchodilators? It is apparently very

rare,

> > my

> > > pulmo says that I do this kind of thing on purpose, just to

make

> my

> > > case more complicated . Thanks.

> > >

> > > Meagan

> > >

> >

>

[Guest guest]

At national jewisj i got worse on pfts using albuterol. until xolair i could

never use an albuterol inhaler but now I can go figure. there are times though

that flovent makes me worse and I wonder if that is not yeast related responses.

using flovent or flonase, we are told to rinse our mouths out with water,

listerine, or nystatin. be careful with the floxins and do not use them with

prednisone as it is contraindicated. honey jmho but it is best to take fewer

meds than more. get yourself a tiled bedroom with a good airfilter and stay in

it. keep it really clean and god bless you. i have u n my prayers.

tiredofsteroids <sitesee@...> wrote:

Meagan - I'm so glad your bronchitis has cleared. The only suggestion

I have is if your sinusitis turns out to be due to Pseudomonas, just

ask your doc why you couldn't take Cipro or Levoquin or other similar

oral antibiotic. Years ago, I had many episodes of Pseudomonas

sinusitis and initially had to be treated with IV antibiotics each

time because there were no oral antibiotics that were effective

against Pseudomonas. Then Cipro came out, and later Levoquin and

other related oral antibiotics that were effective against

Pseudomonas and I had far fewer courses of IV antibiotics after that.

Good luck with the ENT -

Fran

> > >

> > > Hi,

> > >

> > > My pulmo and I (using trial & error) have dicovered that

> > inhaled

> > > beta-agonists work for me short term, but they end up making me

> > even

> > > tighter long term. As he puts it " it comes back and hits you in

> the

> > > head. " We discovered this when I was hospitalized at 3 differnt

> > > hospitals from the very beginning of June - the end of July

2006

> > (for

> > > a non-asthma related illness, basically due to the steroids for

> my

> > > asthma a stomach virus went to my brain) and I didn't use any

> > inhaled

> > > bronchodilators. I take Theo-24, do Atrovent nebs, and use

> Spiriva

> > > (so I can lay down and sleep at night) and they do not affect

me

> > > adversely, but I currently have Acute Bronchitis and the

standard

> > > treatment would be a beta-agonist, but my pulmo is so afraid,

> that

> > he

> > > had me increase my Atrovent nebs instead. So I'm doing nebs

every

> 2

> > > hrs (fun stuff) and waking up multiple times during the night

to

> do

> > > nebs, but my pulmo's happy with that. He says that he's afraid

> that

> > > I'll get so clamped down if I do any bronchodilators that he

> won't

> > be

> > > able to open me back up. So, I was wondering if anybody else is

> > > sensitive to inhaled bronchodilators? It is apparently very

rare,

> > my

> > > pulmo says that I do this kind of thing on purpose, just to

make

> my

> > > case more complicated . Thanks.

> > >

> > > Meagan

> > >

> >

>

---------------------------------

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[Guest guest]

Thanks Fran & Jane for your replies. I'm actually about 1/3 less

medication since being hospitalized in June (at first because I was

so dehydrated, the docs thought that a lot of the meds went toxic in

my system - it turns out they didn't but I am on a lot less

medication than I was). I rinse after using Pulmicort (I always have

my pulmo told me to do it when he first showed me how to use the

Turbuhaler, so thats part of my routine). As you all probably do, I

do my best to keep my trigger exposure as low as possible (my docs

tell me I should write a book on how to do it ). I see an ENT this

coming Tues. AM, so hopefully, he'll get right on it and not waste

time with the usual " get a CT, the radiologist will write the report,

then make another appointment, " but I know my pulmo will go ballistic

on the ENT if he takes a long time - so that's good - it's so nice to

have someone so powerful (he's the chief of pulmo and allergy at a

major hospital in NYC) who is willing to fight for you. Anyway,

thanks again (the oral antibiotic thing is DEF good to know) and I'll

try to keep you updated.

Meagan

> > > >

> > > > Hi,

> > > >

> > > > My pulmo and I (using trial & error) have dicovered that

> > > inhaled

> > > > beta-agonists work for me short term, but they end up making

me

> > > even

> > > > tighter long term. As he puts it " it comes back and hits you

in

> > the

> > > > head. " We discovered this when I was hospitalized at 3

differnt

> > > > hospitals from the very beginning of June - the end of July

> 2006

> > > (for

> > > > a non-asthma related illness, basically due to the steroids

for

> > my

> > > > asthma a stomach virus went to my brain) and I didn't use

any

> > > inhaled

> > > > bronchodilators. I take Theo-24, do Atrovent nebs, and use

> > Spiriva

> > > > (so I can lay down and sleep at night) and they do not

affect

> me

> > > > adversely, but I currently have Acute Bronchitis and the

> standard

> > > > treatment would be a beta-agonist, but my pulmo is so

afraid,

> > that

> > > he

> > > > had me increase my Atrovent nebs instead. So I'm doing nebs

> every

> > 2

> > > > hrs (fun stuff) and waking up multiple times during the

night

> to

> > do

> > > > nebs, but my pulmo's happy with that. He says that he's

afraid

> > that

> > > > I'll get so clamped down if I do any bronchodilators that he

> > won't

> > > be

> > > > able to open me back up. So, I was wondering if anybody else

is

> > > > sensitive to inhaled bronchodilators? It is apparently very

> rare,

> > > my

> > > > pulmo says that I do this kind of thing on purpose, just to

> make

> > my

> > > > case more complicated . Thanks.

> > > >

> > > > Meagan

> > > >

> > >

> >

>

>

>

>

>

>

> ---------------------------------

> Bored stiff? Loosen up...

> Download and play hundreds of games for free on Games.

>

>

[Guest guest]

My pulmo has had me on fluoroquinolones (Avelox/LEvaquin/etc) and pred

simultaneously with no ill effects from the combination.

Addy

Group co-owner

just my own experiences

> > > >

> > > > Hi,

> > > >

> > > > My pulmo and I (using trial & error) have dicovered that

> > > inhaled

> > > > beta-agonists work for me short term, but they end up making me

> > > even

> > > > tighter long term. As he puts it " it comes back and hits you in

> > the

> > > > head. " We discovered this when I was hospitalized at 3 differnt

> > > > hospitals from the very beginning of June - the end of July

> 2006

> > > (for

> > > > a non-asthma related illness, basically due to the steroids for

> > my

> > > > asthma a stomach virus went to my brain) and I didn't use any

> > > inhaled

> > > > bronchodilators. I take Theo-24, do Atrovent nebs, and use

> > Spiriva

> > > > (so I can lay down and sleep at night) and they do not affect

> me

> > > > adversely, but I currently have Acute Bronchitis and the

> standard

> > > > treatment would be a beta-agonist, but my pulmo is so afraid,

> > that

> > > he

> > > > had me increase my Atrovent nebs instead. So I'm doing nebs

> every

> > 2

> > > > hrs (fun stuff) and waking up multiple times during the night

> to

> > do

> > > > nebs, but my pulmo's happy with that. He says that he's afraid

> > that

> > > > I'll get so clamped down if I do any bronchodilators that he

> > won't

> > > be

> > > > able to open me back up. So, I was wondering if anybody else is

> > > > sensitive to inhaled bronchodilators? It is apparently very

> rare,

> > > my

> > > > pulmo says that I do this kind of thing on purpose, just to

> make

> > my

> > > > case more complicated . Thanks.

> > > >

> > > > Meagan

> > > >

> > >

> >

>

>

>

>

>

>

> ---------------------------------

> Bored stiff? Loosen up...

> Download and play hundreds of games for free on Games.

>

>

[Guest guest]

My pulmo just had me on Avelox in January (because I had a cpl

leftover from the last time he put me on it and my pharmacy had to

order the Vantin I was on before the Clinda). I'm so confused - I

didn't know Avelox and Levaquin were even related.

Meagan

> > > > >

> > > > > Hi,

> > > > >

> > > > > My pulmo and I (using trial & error) have dicovered

that

> > > > inhaled

> > > > > beta-agonists work for me short term, but they end up

making me

> > > > even

> > > > > tighter long term. As he puts it " it comes back and hits

you in

> > > the

> > > > > head. " We discovered this when I was hospitalized at 3

differnt

> > > > > hospitals from the very beginning of June - the end of

July

> > 2006

> > > > (for

> > > > > a non-asthma related illness, basically due to the

steroids for

> > > my

> > > > > asthma a stomach virus went to my brain) and I didn't use

any

> > > > inhaled

> > > > > bronchodilators. I take Theo-24, do Atrovent nebs, and use

> > > Spiriva

> > > > > (so I can lay down and sleep at night) and they do not

affect

> > me

> > > > > adversely, but I currently have Acute Bronchitis and the

> > standard

> > > > > treatment would be a beta-agonist, but my pulmo is so

afraid,

> > > that

> > > > he

> > > > > had me increase my Atrovent nebs instead. So I'm doing

nebs

> > every

> > > 2

> > > > > hrs (fun stuff) and waking up multiple times during the

night

> > to

> > > do

> > > > > nebs, but my pulmo's happy with that. He says that he's

afraid

> > > that

> > > > > I'll get so clamped down if I do any bronchodilators that

he

> > > won't

> > > > be

> > > > > able to open me back up. So, I was wondering if anybody

else is

> > > > > sensitive to inhaled bronchodilators? It is apparently

very

> > rare,

> > > > my

> > > > > pulmo says that I do this kind of thing on purpose, just

to

> > make

> > > my

> > > > > case more complicated . Thanks.

> > > > >

> > > > > Meagan

> > > > >

> > > >

> > >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Bored stiff? Loosen up...

> > Download and play hundreds of games for free on Games.

> >

> >

[Guest guest]

I just looked it up on medscape (I LOVE that site!), and there is

apparently a small risk for tendon rupture when you're on Quinolone

antibiotics and prednisone together - but the site siad that for most

patients the benefit of being on both far outweighs the risk of a

tendon rupture. It is similar to the Xolair 0.1% or whatever

increased risk of cancer.

Meagan

> > > > >

> > > > > Hi,

> > > > >

> > > > > My pulmo and I (using trial & error) have dicovered

that

> > > > inhaled

> > > > > beta-agonists work for me short term, but they end up

making me

> > > > even

> > > > > tighter long term. As he puts it " it comes back and hits

you in

> > > the

> > > > > head. " We discovered this when I was hospitalized at 3

differnt

> > > > > hospitals from the very beginning of June - the end of

July

> > 2006

> > > > (for

> > > > > a non-asthma related illness, basically due to the

steroids for

> > > my

> > > > > asthma a stomach virus went to my brain) and I didn't use

any

> > > > inhaled

> > > > > bronchodilators. I take Theo-24, do Atrovent nebs, and use

> > > Spiriva

> > > > > (so I can lay down and sleep at night) and they do not

affect

> > me

> > > > > adversely, but I currently have Acute Bronchitis and the

> > standard

> > > > > treatment would be a beta-agonist, but my pulmo is so

afraid,

> > > that

> > > > he

> > > > > had me increase my Atrovent nebs instead. So I'm doing

nebs

> > every

> > > 2

> > > > > hrs (fun stuff) and waking up multiple times during the

night

> > to

> > > do

> > > > > nebs, but my pulmo's happy with that. He says that he's

afraid

> > > that

> > > > > I'll get so clamped down if I do any bronchodilators that

he

> > > won't

> > > > be

> > > > > able to open me back up. So, I was wondering if anybody

else is

> > > > > sensitive to inhaled bronchodilators? It is apparently

very

> > rare,

> > > > my

> > > > > pulmo says that I do this kind of thing on purpose, just

to

> > make

> > > my

> > > > > case more complicated . Thanks.

> > > > >

> > > > > Meagan

> > > > >

> > > >

> > >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Bored stiff? Loosen up...

> > Download and play hundreds of games for free on Games.

> >

> >

[Guest guest]

Hi All,

I said in my last post that I'd try to update, so here goes . I

went to a new ENT yesterday, he did a VERY thorough exam and also did

sinus cultures (which is what my pulmo really wanted anyway). He said

that it looks like the Clinda (today is day 19) is starting to work,

but we'll see what the culture shows, he is testing for everything,

so he said the results could take a week or more to get back. In the

meantime, I am to get a sinus CT, and then once the culture results

are back, we'll schedule another appointment. The ENT said that it

was up to my pulmo (who started the Clinda) whether to stay on it for

21 days, or until the culture comes back, and we talked last night -

he wants me on it (to be safe) until the culture comes back. He also

wants the CT report when thats done faxed to him - he's staying very

on top of this which I'm a little surprised about, but it's

definitely a good thing! So I'm kinda in a holding pattern right now,

but we have a plan. I also got my Xolair yesterday, and my primary

says that my lungs sound totally different than when I had the

Bronchitis (the last time I saw her), aside from the obvious crackles

I had with the Bronchitis, I am moving air so much better, so all

good news! Anyway, just thought I'd share .

Meagan

> > > > >

> > > > > Hi,

> > > > >

> > > > > My pulmo and I (using trial & error) have dicovered

that

> > > > inhaled

> > > > > beta-agonists work for me short term, but they end up

making

> me

> > > > even

> > > > > tighter long term. As he puts it " it comes back and hits

you

> in

> > > the

> > > > > head. " We discovered this when I was hospitalized at 3

> differnt

> > > > > hospitals from the very beginning of June - the end of

July

> > 2006

> > > > (for

> > > > > a non-asthma related illness, basically due to the

steroids

> for

> > > my

> > > > > asthma a stomach virus went to my brain) and I didn't use

> any

> > > > inhaled

> > > > > bronchodilators. I take Theo-24, do Atrovent nebs, and use

> > > Spiriva

> > > > > (so I can lay down and sleep at night) and they do not

> affect

> > me

> > > > > adversely, but I currently have Acute Bronchitis and the

> > standard

> > > > > treatment would be a beta-agonist, but my pulmo is so

> afraid,

> > > that

> > > > he

> > > > > had me increase my Atrovent nebs instead. So I'm doing

nebs

> > every

> > > 2

> > > > > hrs (fun stuff) and waking up multiple times during the

> night

> > to

> > > do

> > > > > nebs, but my pulmo's happy with that. He says that he's

> afraid

> > > that

> > > > > I'll get so clamped down if I do any bronchodilators that

he

> > > won't

> > > > be

> > > > > able to open me back up. So, I was wondering if anybody

else

> is

> > > > > sensitive to inhaled bronchodilators? It is apparently

very

> > rare,

> > > > my

> > > > > pulmo says that I do this kind of thing on purpose, just

to

> > make

> > > my

> > > > > case more complicated . Thanks.

> > > > >

> > > > > Meagan

> > > > >

> > > >

> > >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Bored stiff? Loosen up...

> > Download and play hundreds of games for free on Games.

> >

> >