RE: Fresh Perspective

[Guest guest]

Hi !

You sound like me and about 200 people I met at a

Xolair meeting a month ago! I've been on Xolair for

almost 2 years now. I had problems with sulphites,

tomatoes and soy. No to red wine, no to home made

sauce, and a BIG NO to using Combivent-it has a soy

based propellant in it,that replaced the CF-C's.

Things have totally changed since going on the Xolair.

Only thing I have not tried is the Combivent.

As for your insurance covering the Xolair....if you

run into problems...Genentec and Novartist have

started a program for Xolair Patients called

Xpansions. They have a thing called SPOC (single point

of contact) where you can get assistance getting your

meds.

You can either enroll on line at www.xpansions.com or

have your doctor enroll you on the Xolair paperwork

he/she has to fill out. (There is a box to check at

the bottom of the form that says " enroll in

Xpansions " .)

Good luck!

Kate

--- yorkiematilda <yorkiematilda@...> wrote:

> Hi, I'm new.

>

> Today I went to a new allergist, because I seemed to

> be developing more food sensitivities.

>

> But first a little history: I'm 32, have had asthma

> since age 16, it has been under control

> for 10 years by use of flovent. I have had allergies

> for as long as I remember, they were all

> of the airborne-type variety until about six years

> ago. I became very seriously allergic to

> eggs. I also developed acid reflux in the same time

> period. About three years later, I

> developed allergies to: cabbage, citrus, tomatoes,

> beef, soy, peanut, hazelnut, and pecans.

> None are as bad as eggs, and I've had to exclude soy

> and the nuts from my diet.

>

> I have been having trouble with the following foods

> lately: wheat, corn, other nuts. This

> prompted my visit to the allergist. It's hard to

> play detective if you think any/all of these

> foods may be causing issues. Also, my allergy

> shiners are darker than ever...getting worse

> all the time.

>

> Today he told me about Xolair, I'm a perfect

> candidate...I'll be finding out in a month or so

> whether or not my insurance will allow it. He told

> me that there's a good chance I will be

> symptom free for many of my complaints and I'll even

> be able to eat eggs! Has any one

> else had this much good " luck " ?

>

> Giddy with excitement,

>

>

>

________________________________________________________________________________\

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[Guest guest]

,

I too am named and also have a severe allergy to eggs, along with

other food allergies. Our preschool was making hardboiled eggs on Wednesday

for a model Seder and I did not know. I walked through the room, smelled

'something', felt nauseous and dizzy, and then saw the cut eggs (about 50 of

them!) I exited quickly and was ready for the asthma attack to really kick

in along with possibly anaphylaxis, but thankfully I never even needed my

inhaler. Now, mind you, I did not go near that room on Thursday and had all

the windows wide open in the rest of the building, but this is much better

than two years ago when I did have an airborne egg reaction that needed

benadryl and prednisone. So it is progress! It will be a while yet before I

ingest anything with egg, but to know that my reaction might not be as

dangerous feels better.

I started Xolair 6 months ago. I get 150 mg once a month and I think it

makes a difference. I am still having some asthma issues but I have been

fighting a chronic sinus issues (since November) and will be having nasal

surgery next Tuesday. I hope this reduces the post nasal drip and the fact

that I can't breathe through my nose. My deviated septum is being fixed

along with a turbinate resection to reduce the dramatic inflammation.

The pollen which is very high right now in my area doesn't seem to be

bothering me and I am getting allergy shots without reactions which is a

first for me. So I think the Xolair is making a difference here too.

My allergist was doubting whether the Xolair was working as I haven't

dropped much on asthma meds but the pulmnologist feels that once I recover

from my surgery, I should see a dramatic improvement in my asthma and will

be able to drop my inhalers first and stay on Singulair and Uniphyl. He said

there is a study just released that showed that theophylline (Uniphyl in my

case) has some anti-inflammation properties and is a good choice for me to

retain while dropping Advair first. I have developed glaucoma in my left eye

so everyone wants me off all steroids if possible. (I am 43 with no family

history of glaucoma.)

Anyways, welcome to the list! Best wishes with the Xolair and I hope you too

will see a reduction in your egg reaction.

B.

Northern Virginia