Re: I did it! First Xolair shot & AT HOME - no problems!!!

[Guest guest]

Pretty pretty pictures here on preparation and administration:

http://www.xolair.com/hcp/preparation_administration.jsp

Hope this helps!

~Sheila

>

> Hey, everyone, I FINALLY got my first Xolar shot at mid day today,

Fri. Yes, and I did it MY way! (think back to the song from the late

60s or early 70s!!!) AT HOME!!!!

>

> Apparently CuraScript must contract with nurse-supplier companies.

They had refused to come out and my pulmo's office wasn't really set

up for a xolair clinic. I was between a rock and a hard spot. My

pulmo and I had agreed back in mid Jan that I would go on Xolair. It

took over a month to get Xolair, then 5-1/2 weeks to get a nurse to

get injected. It was a hassle all the way. Finally, an RN came to my

house this morning and showed me how to mix and administer the med.

>

> This was all done at home with an RN - not at a doctor's office!

So, take that and that Genentech and FDA and Curascript and all the

others who gave me such a hassle! You did your best to make life

miserable for me even acting in a very condescending if not rude

manner to me.

>

> Really and truly I'm in more danger of getting hurt on the freeway

and driving 50 - 120 miles to a doctor than I am in getting

anaphylactic shock from Xolair.

>

> For anyone out there who is squeamish, I swear that I never even

felt the needle go in. You can only press the plunger very slowly on

the syringe because it's such a small needle so there was no question

about injecting too fast. Of course, I was very eager to do

everything right in the process, too! It was sort've like inserting a

needle into a hot dog but then I have plenty of fat !!! <grin> The

preparation is somewhat complex and I wish they had written down each

little step with a sketch but it's not that hard. It doesn't even

itch - the most I've gotten from it is a little bruise - with my lack

of experince in injecting myself and vision problems I didn't notice

the blood vessels but it still doesn't hurt!

>

> I was a bit freaky about side effects but it's now 12 hours later

and nothing has happened. The nurse left immediately after the

injection (I assumed he would stick around the 2 hours) so I just

quietly hung around the house for 2 hours close to phone by myself

with an epi pen. I'm carrying the epi pen in my purse everywhere I go

for the first 24 hours as a precaution but so far I am SO GLAD!

>

> One thing to keep in mind when self injecting - give 30 seconds

for the alcohol wipe to dry before injecting as the alcohol itself is

irritating if it's injected inside the body.

>

> Can't wait to get some sort of relief from allergies - wish I knew

how long it will take but I guess everyone is different and they don't

have any data to predict it. My IgE was 350.

>

> Personally, I think that if I were forced to go to a doctor's

office for injections for a long time and it was really causing me

problems I would push the matter of home injection big time.

Obviously some of us are doing it successfully. It's not for everyone

but then people need to be treated as individuals instead of objects

for someone else's power trip.

>

> I hope I can either get a nurse one more time or talk to someone

on the phone as I go through the next injection mainly just to make

sure I do everything absolutely right. But, I still think home

injection is a good idea.

>

>

>

> ---------------------------------

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>

>

[Guest guest]

Thanks for this great post about self=injection caecilia1. I've

known diabetics giving themselves injections so why not us?

Actually, if all of us sat around in the doctors office for two

hours after each injection it could turn into standing room only at

some offices. The docs would have to up their injection charges to

get a bigger waiting room.

[Guest guest]

This is all actually the same information my doc's office gave me when

I began doing self-injection. No, he's not making me start coming

back in for the injections. Yes, he did prescribe an epi-pen at my

request. No, he really doesn't think I'll have a problem. The

results from clinicals just aren't there to suggest or support it.

~Sheila

>

> Thanks for this great post about self=injection caecilia1. I've

> known diabetics giving themselves injections so why not us?

> Actually, if all of us sat around in the doctors office for two

> hours after each injection it could turn into standing room only at

> some offices. The docs would have to up their injection charges to

> get a bigger waiting room.

>

[Guest guest]

Personally, I am asking for a big screen tv in front of the couch in the waiting

room.

(whose Canadian docs have jumped on the American bandwagon)

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[Guest guest]

Hi, ,

Let me know if you get the tv in the waiting room. Then everyone will want to

stay.

A fellow asthmatic,

Sr. Volz,C.R.

<carrie72583@...> wrote:

Personally, I am asking for a big screen tv in front of the couch in

the waiting room.

(whose Canadian docs have jumped on the American bandwagon)

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