Re: Does xolair really work?

[Guest guest]

Go back through past posts. Also, there are several word files

under " Files' to the left that you may want to read, including some

success stories.

Welcome through the Group

Addy

Co-owner/moderator

Severe persistent allergic asthma

Happy Xolair patient with much fewer episodes of asthma every year.

>

> My doctor suggests that I try xolair. Nothing has worked so far in

> controlling my severe allergic asthma. I am excited that this may be

> the answer.

>

[Guest guest]

>

> My doctor suggests that I try xolair. Nothing has worked so far in

> controlling my severe allergic asthma. I am excited that this may be

> the answer.

>

I have had severe asthma for twenty years. I have been hospitalized

several times for asthma and other respiratory diseases. I began

Xolair injections 11 months ago. I rarely use albuterol anymore. I

have not been to an emergency room either. My life has changed. For me

Xolair has made a tremendous difference.

[Guest guest]

It's working for me. I saw my routine peak flow readings raise from

around 80% of normal to around 100% of normal. Dust, pollens and molds

no longer seem to kick off an allergic reaction and most of the time I

feel like a normal person. Prior to Xolair, I had accepted compromised

breathing as normal from not really knowing any better (except when

things really got bad and I took that troubled wonder drug, prednisone).

I can now even run short distances when before Xolair I was past the

point of even trying.

My untreated breathing problems have left me dealing with permanent

pulmonary problems but the best I can tell, I'm no longer sliding down

that slippery slope to pulmonary failure and am planning on a normal

life expectancy.

Xolair has not helped so much in asthma attacks from odors (especially

perfumes) but at around six months into the Xolair program I'm slowly

starting to find myself more tolerant of odors. My last predisone

rescue was four months ago and that was kicked off by perfumes, not

allergens.

I still take an occasional hit or two of albuterol when my airways

start to close up but again the trigger is odors and maybe winter

chills. But now albuterol is all it's taking to quickly get sustained

relief.

I do still take a suite of other long-acting asthma medications but

hope to be dropping many of them in due time.

>

> My doctor suggests that I try xolair. Nothing has worked so far in

> controlling my severe allergic asthma. I am excited that this may be

> the answer.

>

[Guest guest]

I am so happy to find this group! I was told I need to start xolair

last March after incontrollable asthma and a blood test. I am

extremely strong willed and decided there was not enough info on the

drug. I started going to a natural doctor and taking all kinds of

vitamins and minerals, and other ingredients I just learned about.

The other ingredients could be counted as a low dosage of steroids

since March. I was 99% better until I quit taking these. Now after

talking to my doctor I am about ready to start the shot.

Does it really work???? How long has everyone been taking it?

Thanks, I am hopeful.

ftballmom

[Guest guest]

--- In , " ftballmom777 " <ftballmom777@...>

wrote:

>

> I am so happy to find this group! I was told I need to start xolair

> last March after incontrollable asthma and a blood test. I am

> extremely strong willed and decided there was not enough info on the

> drug. I started going to a natural doctor and taking all kinds of

> vitamins and minerals, and other ingredients I just learned about.

> The other ingredients could be counted as a low dosage of steroids

> since March. I was 99% better until I quit taking these. Now after

> talking to my doctor I am about ready to start the shot.

>

> Does it really work???? How long has everyone been taking it?

>

> Thanks, I am hopeful.

>

> ftballmom

Welcome ftballmom,

We are glad you found us too. You might want to look through previous

posts or go to the files section of the group and look at the " xolair

success stories " file.

I have been on it since september 2003. There was nothing then at all

on the web about it because it had just become available a month earler.

Does it work? YES! Read that file

Doug

Group founder

Co-owner-moderator

[Guest guest]

I can only tell you that everybody feared for my life before I started and after

my 6th go round I am not 100 per cent but now I have some good days despite

still living in the apartment where a cat was (16500 ige to cats). I could not

talk beforehand and there are still times I can not but I am no longer as

panciky.

uca79iii <uca79iii@...> wrote: --- In

, " ftballmom777 " <ftballmom777@...>

wrote:

>

> I am so happy to find this group! I was told I need to start xolair

> last March after incontrollable asthma and a blood test. I am

> extremely strong willed and decided there was not enough info on the

> drug. I started going to a natural doctor and taking all kinds of

> vitamins and minerals, and other ingredients I just learned about.

> The other ingredients could be counted as a low dosage of steroids

> since March. I was 99% better until I quit taking these. Now after

> talking to my doctor I am about ready to start the shot.

>

> Does it really work???? How long has everyone been taking it?

>

> Thanks, I am hopeful.

>

> ftballmom

Welcome ftballmom,

We are glad you found us too. You might want to look through previous

posts or go to the files section of the group and look at the " xolair

success stories " file.

I have been on it since september 2003. There was nothing then at all

on the web about it because it had just become available a month earler.

Does it work? YES! Read that file

Doug

Group founder

Co-owner-moderator

---------------------------------

Cheap Talk? Check out Messenger's low PC-to-Phone call rates.

[Guest guest]

Thanks so much! I was wondering where to look, so you have pointed me

to the right direction. I hope that one day my success story can be

under this heading.

I do know one thing, sometimes surfing the net can make one leary of

about any kind of treatment. Mention of the word " cancer link " is

very intimidating! Yet, with all the medicine I am on now...what

medicine is perfect?

Again, thank you!

Blessings,

ftballmom777

[Guest guest]

WElcome!!! We answer this question every 2-3 weeks, so please feel

free to look past through previous posts.

Let us know how you do!

Addy

Group co-owner

On Xolair 3+ years and love it.

--- In , " ftballmom777 " <ftballmom777@...>

wrote:

>

> I am so happy to find this group! I was told I need to start xolair

> last March after incontrollable asthma and a blood test. I am

> extremely strong willed and decided there was not enough info on the

> drug. I started going to a natural doctor and taking all kinds of

> vitamins and minerals, and other ingredients I just learned about.

> The other ingredients could be counted as a low dosage of steroids

> since March. I was 99% better until I quit taking these. Now after

> talking to my doctor I am about ready to start the shot.

>

> Does it really work???? How long has everyone been taking it?

>

> Thanks, I am hopeful.

>

> ftballmom

>

[Guest guest]

Jane,

Thank you for the quick reply and encouragement. My symptons get

worse during the cold winter months, and in the springtime. Last

year was the first time that I felt hopeless and scared. My precious

doctor tried all that he knew. I started the nebulizer, while still

on zrytec, advair, albuterol, predinsone. He tested me and although

I cannot remember my ige blood level, he told me it was off the

charts and he called the company to find out if it would work and the

exact dosage. Then of course I tried something else when I read of

the caner scare. I knew that my immune system was shot. I teach in

an elementary school, so you can imagine the exposure.

At any rate, when I went about 3 weeks ago I told him what I had been

doing. He thought the reason he had not seen me was the shot, and

found out otherwise when my chart was pulled. I took in my

supplements and it appears as though his only problem with them was

the " animal organs " which there is not a whole lot of good things

known... " could you better because your body has been on a type of

prednisone for 8 months? " Well, I stopped them, and here I am. Like

always! So, I told him that two more rounds of prednisone would most

likely convince me. How scary it is to not be able to breathe!

So that is pretty much my story. Looks like I will be calling him

Monday!

Again, thanks!

Blessings,

ftballmom777

> >

> > I am so happy to find this group! I was told I need to start

xolair

> > last March after incontrollable asthma and a blood test. I am

> > extremely strong willed and decided there was not enough info on

the

> > drug. I started going to a natural doctor and taking all kinds of

> > vitamins and minerals, and other ingredients I just learned

about.

> > The other ingredients could be counted as a low dosage of

steroids

> > since March. I was 99% better until I quit taking these. Now

after

> > talking to my doctor I am about ready to start the shot.

> >

> > Does it really work???? How long has everyone been taking it?

> >

> > Thanks, I am hopeful.

> >

> > ftballmom

>

> Welcome ftballmom,

>

> We are glad you found us too. You might want to look through

previous

> posts or go to the files section of the group and look at

the " xolair

> success stories " file.

>

> I have been on it since september 2003. There was nothing then at

all

> on the web about it because it had just become available a month

earler.

>

> Does it work? YES! Read that file

>

> Doug

> Group founder

> Co-owner-moderator

>

>

>

>

>

>

> ---------------------------------

> Cheap Talk? Check out Messenger's low PC-to-Phone call rates.

>

>

[Guest guest]

most of us like it so much we are addicted.

be careful with vitamins--some are toxic in high amounts.

I still take my various ones. Jane

ftballmom777 <ftballmom777@...> wrote: I

am so happy to find this group! I was told I need to start xolair

last March after incontrollable asthma and a blood test. I am

extremely strong willed and decided there was not enough info on the

drug. I started going to a natural doctor and taking all kinds of

vitamins and minerals, and other ingredients I just learned about.

The other ingredients could be counted as a low dosage of steroids

since March. I was 99% better until I quit taking these. Now after

talking to my doctor I am about ready to start the shot.

Does it really work???? How long has everyone been taking it?

Thanks, I am hopeful.

ftballmom

---------------------------------

Looking for earth-friendly autos?

Browse Top Cars by " Green Rating " at Autos' Green Center.

[Guest guest]

If you were 99% better, why did you quit taking the vitamins, etc.?

If ye love wealth greater than liberty, the tranquility of servitude

greater than the animating contest for freedom, go home from us in

peace. We seek not your counsel, nor your arms. Crouch down and lick

the hand that feeds you; May your chains set lightly upon you, and may

posterity forget that ye were our countrymen. " -

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Date: Sun, 11 Feb 2007 02:16:48 -0800 (PST)

Subject: Re: [ ] Re: Does xolair really work?

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[Guest guest]

Yes I do think this drug works. I do not receive the drug I administer the drug.

I have seen and heard from our patients how much better their lives are since

starting Xolair. Less steroids, ER visits, decrease meds, less abluterol

MDI/Nebulzier use. Now they are a little more physical playing sports exercise

with out having or having less asthma symptoms. It is a joy just to listen to

their stories, and most of all our patients are a big part of my life they are

a part of my family. I love every signal one of them.

Jo Ann

----- Original Message ----

From: jane mosher <janeannmosher@...>

Sent: Sunday, February 11, 2007 4:16:48 AM

Subject: Re: [ ] Re: Does xolair really work?

most of us like it so much we are addicted.

be careful with vitamins--some are toxic in high amounts.

I still take my various ones. Jane

ftballmom777 <ftballmom777> wrote: I am so happy to find this group!

I was told I need to start xolair

last March after incontrollable asthma and a blood test. I am

extremely strong willed and decided there was not enough info on the

drug. I started going to a natural doctor and taking all kinds of

vitamins and minerals, and other ingredients I just learned about.

The other ingredients could be counted as a low dosage of steroids

since March. I was 99% better until I quit taking these. Now after

talking to my doctor I am about ready to start the shot.

Does it really work???? How long has everyone been taking it?

Thanks, I am hopeful.

ftballmom

------------ --------- --------- ---

Looking for earth-friendly autos?

Browse Top Cars by " Green Rating " at Autos' Green Center.

[Guest guest]

I am still new at the " posting " aspect and who this was directed to,

but if pondfish lady is asking me why I quit the vitamins...I only

quit the supplements that were animal organs. There was a real

concern by my doctor about the validity and information known about

the organs. The rest I still take, but he recommends xolair for me.

I will be talking to him this week about setting up the appointment,

amd cross referencing the current vitamins and minerals.

thank you.

>

>

> If you were 99% better, why did you quit taking the vitamins,

etc.?

>

> If ye love wealth greater than liberty, the tranquility of servitude

> greater than the animating contest for freedom, go home from us in

> peace. We seek not your counsel, nor your arms. Crouch down and lick

> the hand that feeds you; May your chains set lightly upon you, and

may

> posterity forget that ye were our countrymen. " -

>

>

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> Feb 2007 10:55:32 -0000

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> Date: Sun, 11 Feb 2007 02:16:48 -0800 (PST)

> Subject: Re: [ ] Re: Does xolair really work?

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