Re: started xolair two days ago

[Guest guest]

>

> Started xolair two days ago. Boy I really hope this works for me.

> Thanks to this wonderful group. I have been very sick and on many

> meds, prednisone, and everything else, trying to get better. My

IGE

> is very very High. Was diagnosed with Asthma 10 years ago, Drs

> telling me my asthma is set off by an asperin alergy. I don't take

> asperin. I really can't figure it all out. Tired of being tired.

I

> have the tightness and wheezing caused by asthma I believe. I am

very

> short of breath. Very very short of breath. Can't do much like

walk a

> flight of stairs, or sometimes just turning over in bed. Does

anyone

> know if this is a symptom of asthma too? shortness of breath. Just

my

> asthma getting worse?

>

> Other lungs diseases have been ruled out.

>

> I had a heart attack a couple of years ago. I don't have high

blood

> pressure, or colestrol, They say it was caused by stress. If you

> can't breath that is also added stress I would think If someone

is

> straining to breath all the time wouldn't you think that could

cause a

> heart attack.

>

> Anyway I am very happy that I found this group. Thank you all for

> letting me get some of this out. I too, try to hide my asthma

because

> of embarressment of coughing and not being able to breath. It

seems

> that people that don't experience it, don't really understand.

>

> Thank You

> I prey that I will be able to take walks and have more activity in

my

> life as I did before. In 10 years it has just gotten worse and

worse.

> I have read many stories and I hope I am one of the ones that will

see

> an improvement in my breathing.

>

I am so sorry did not mean to say in my first paragraph thanks to

this wonderful group and then went on to share how sick I am.

sounding like the group made me sick.

Sorry, I am very new at this and do not even know if I am

correcting this right.

Moderators note:

You did fine. Nothing to apologise for. No one took it that way.

Thanks for being a part of our group. )

[Guest guest]

FYI aspirin is in the class of drugs known as non steroidal antianflammatory

drugs. never take those.

keep your room as clean as you can and get a good room filter.

if you can't exercise start out by wiggling your toes and fingers to keep

circulation going.

there is ALWAYS HOPE and I am praying for you.

Jane

<filli474@...> wrote:

>

> Started xolair two days ago. Boy I really hope this works for me.

> Thanks to this wonderful group. I have been very sick and on many

> meds, prednisone, and everything else, trying to get better. My

IGE

> is very very High. Was diagnosed with Asthma 10 years ago, Drs

> telling me my asthma is set off by an asperin alergy. I don't take

> asperin. I really can't figure it all out. Tired of being tired.

I

> have the tightness and wheezing caused by asthma I believe. I am

very

> short of breath. Very very short of breath. Can't do much like

walk a

> flight of stairs, or sometimes just turning over in bed. Does

anyone

> know if this is a symptom of asthma too? shortness of breath. Just

my

> asthma getting worse?

>

> Other lungs diseases have been ruled out.

>

> I had a heart attack a couple of years ago. I don't have high

blood

> pressure, or colestrol, They say it was caused by stress. If you

> can't breath that is also added stress I would think If someone

is

> straining to breath all the time wouldn't you think that could

cause a

> heart attack.

>

> Anyway I am very happy that I found this group. Thank you all for

> letting me get some of this out. I too, try to hide my asthma

because

> of embarressment of coughing and not being able to breath. It

seems

> that people that don't experience it, don't really understand.

>

> Thank You

> I prey that I will be able to take walks and have more activity in

my

> life as I did before. In 10 years it has just gotten worse and

worse.

> I have read many stories and I hope I am one of the ones that will

see

> an improvement in my breathing.

>

I am so sorry did not mean to say in my first paragraph thanks to

this wonderful group and then went on to share how sick I am.

sounding like the group made me sick.

Sorry, I am very new at this and do not even know if I am

correcting this right.

Moderators note:

You did fine. Nothing to apologise for. No one took it that way.

Thanks for being a part of our group. )

---------------------------------

Food fight? Enjoy some healthy debate

in the Answers Food & Drink Q & A.

[Guest guest]

Hi,

Thank you so much for responding to my posting. I

haven't given up hope, but not feeling good at all.

How long do you think it takes before you know if

Xolair is helping or not?

Today don't know if I am getting a cold or not.

Coughing all night and day. Maybe neubulizer or call

the dr and receive another series of prednizone. I am

doing my peak flow to see if zolair improves it. Not

yet it is at 250. My IGE is in the thousands.

--- jane mosher <janeannmosher@...> wrote:

> FYI aspirin is in the class of drugs known as non

> steroidal antianflammatory drugs. never take those.

>

> keep your room as clean as you can and get a good

> room filter.

> if you can't exercise start out by wiggling your

> toes and fingers to keep circulation going.

> there is ALWAYS HOPE and I am praying for you.

> Jane

>

> <filli474@...> wrote:

>

> >

> > Started xolair two days ago. Boy I really hope

> this works for me.

> > Thanks to this wonderful group. I have been very

> sick and on many

> > meds, prednisone, and everything else, trying to

> get better. My

> IGE

> > is very very High. Was diagnosed with Asthma 10

> years ago, Drs

> > telling me my asthma is set off by an asperin

> alergy. I don't take

> > asperin. I really can't figure it all out. Tired

> of being tired.

> I

> > have the tightness and wheezing caused by asthma

> I believe. I am

> very

> > short of breath. Very very short of breath.

> Can't do much like

> walk a

> > flight of stairs, or sometimes just turning over

> in bed. Does

> anyone

> > know if this is a symptom of asthma too?

> shortness of breath. Just

> my

> > asthma getting worse?

> >

> > Other lungs diseases have been ruled out.

> >

> > I had a heart attack a couple of years ago. I

> don't have high

> blood

> > pressure, or colestrol, They say it was caused

> by stress. If you

> > can't breath that is also added stress I would

> think If someone

> is

> > straining to breath all the time wouldn't you

> think that could

> cause a

> > heart attack.

> >

> > Anyway I am very happy that I found this group.

> Thank you all for

> > letting me get some of this out. I too, try to

> hide my asthma

> because

> > of embarressment of coughing and not being able

> to breath. It

> seems

> > that people that don't experience it, don't

> really understand.

> >

> > Thank You

> > I prey that I will be able to take walks and have

> more activity in

> my

> > life as I did before. In 10 years it has just

> gotten worse and

> worse.

> > I have read many stories and I hope I am one of

> the ones that will

> see

> > an improvement in my breathing.

> >

> I am so sorry did not mean to say in my first

> paragraph thanks to

> this wonderful group and then went on to share how

> sick I am.

> sounding like the group made me sick.

>

> Sorry, I am very new at this and do not even know

> if I am

> correcting this right.

>

> Moderators note:

>

> You did fine. Nothing to apologise for. No one took

> it that way.

> Thanks for being a part of our group. )

>

>

>

>

>

>

> ---------------------------------

> Food fight? Enjoy some healthy debate

> in the Answers Food & Drink Q & A.

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

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[Guest guest]

Hi,

I don't know what your doctor told you, but Xolair can take up to

several months to start working. We've had about 1/3 of the folks

posting here see improvement within three months (and 2 or 3 people

saw improvement within three weeks). Another third (more or less)

took around 4-6 months to see improvement and the rest as much as a

year.

Hang in there. We've all been miserable. This is the group that

sets the standard in feeling miserable. You are not alone.

Addy

Group Co-owner

> > >

> > > Started xolair two days ago. Boy I really hope

> > this works for me.

> > > Thanks to this wonderful group. I have been very

> > sick and on many

> > > meds, prednisone, and everything else, trying to

> > get better. My

> > IGE

> > > is very very High. Was diagnosed with Asthma 10

> > years ago, Drs

> > > telling me my asthma is set off by an asperin

> > alergy. I don't take

> > > asperin. I really can't figure it all out. Tired

> > of being tired.

> > I

> > > have the tightness and wheezing caused by asthma

> > I believe. I am

> > very

> > > short of breath. Very very short of breath.

> > Can't do much like

> > walk a

> > > flight of stairs, or sometimes just turning over

> > in bed. Does

> > anyone

> > > know if this is a symptom of asthma too?

> > shortness of breath. Just

> > my

> > > asthma getting worse?

> > >

> > > Other lungs diseases have been ruled out.

> > >

> > > I had a heart attack a couple of years ago. I

> > don't have high

> > blood

> > > pressure, or colestrol, They say it was caused

> > by stress. If you

> > > can't breath that is also added stress I would

> > think If someone

> > is

> > > straining to breath all the time wouldn't you

> > think that could

> > cause a

> > > heart attack.

> > >

> > > Anyway I am very happy that I found this group.

> > Thank you all for

> > > letting me get some of this out. I too, try to

> > hide my asthma

> > because

> > > of embarressment of coughing and not being able

> > to breath. It

> > seems

> > > that people that don't experience it, don't

> > really understand.

> > >

> > > Thank You

> > > I prey that I will be able to take walks and have

> > more activity in

> > my

> > > life as I did before. In 10 years it has just

> > gotten worse and

> > worse.

> > > I have read many stories and I hope I am one of

> > the ones that will

> > see

> > > an improvement in my breathing.

> > >

> > I am so sorry did not mean to say in my first

> > paragraph thanks to

> > this wonderful group and then went on to share how

> > sick I am.

> > sounding like the group made me sick.

> >

> > Sorry, I am very new at this and do not even know

> > if I am

> > correcting this right.

> >

> > Moderators note:

> >

> > You did fine. Nothing to apologise for. No one took

> > it that way.

> > Thanks for being a part of our group. )

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Food fight? Enjoy some healthy debate

> > in the Answers Food & Drink Q & A.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

>

>

>

______________________________________________________________________

______________

> Never Miss an Email

> Stay connected with on your mobile. Get started!

> http://mobile./services?promote=mail

>

[Guest guest]

>

> Hi,

>

> Thank you so much for responding to my posting. I

> haven't given up hope, but not feeling good at all.

> How long do you think it takes before you know if

> Xolair is helping or not?

>

> Today don't know if I am getting a cold or not.

> Coughing all night and day. Maybe neubulizer or call

> the dr and receive another series of prednizone. I am

> doing my peak flow to see if zolair improves it. Not

> yet it is at 250. My IGE is in the thousands.

>

>

I told my doctor I wanted to quit after 6 months of not seeing

results. He persuaded me to stay the course and I am glad I did. After

6 more months went by, I got that relief.

Now, I have been on xolair since September 2003. It is VERY RARE that

I ever have to use Prednisone anymore. I used to be on 40 mg of the

evil stuff every day.

Give it time! Trust your doctor!

Doug

Group Founder

Co-owner-moderator

[Guest guest]

I had the opposite experience. I wasn't seeing a difference after 6 months so my

dr refused to keep me on it. I told him that I had read about lots of people

that didn't see results until after a year but he wouldn't listen. So I am still

steroid dependent and he doesn't think I will ever be able to go below 40 a day.

I really can't stand him, but I don't have other choices so I have to keep

seeing him every month. Bummer.

uca79iii <uca79iii@...> wrote:

I told my doctor I wanted to quit after 6 months of not seeing

results. He persuaded me to stay the course and I am glad I did. After

6 more months went by, I got that relief.

Now, I have been on xolair since September 2003. It is VERY RARE that

I ever have to use Prednisone anymore. I used to be on 40 mg of the

evil stuff every day.

Give it time! Trust your doctor!

Doug

Group Founder

Co-owner-moderator

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[Guest guest]

>

> I had the opposite experience. I wasn't seeing a difference after 6

months so my dr refused to keep me on it. I told him that I had read

about lots of people that didn't see results until after a year but he

wouldn't listen. So I am still steroid dependent and he doesn't think

I will ever be able to go below 40 a day. I really can't stand him,

but I don't have other choices so I have to keep seeing him every

month. Bummer.

Getting a 2nd opinion is always an option. If both doctors say the

same thing, then you will know for sure.

Doug