Re: I may not qualify for Xolair

[Guest guest]

There are A LOT of people with other

illnesses/conditions that are on Xolair. Two weeks a

go I went to a conference with over 200 other Xolair

patients and you would not believe some of the stories

I have heard. I met a young woman who has no immune

system and another one who cant take prednisone,

because it just doesn't work for her.

The first thing I would suggest is that you talk to

your doctor.Communication is the biggest thing that

helps this situation. I met to many people who have a

hard time communicating with thier doctors. Have your

doctor get yor blood checked to see what your IgE

levels are, if you haven't already. One of the nurses

in here said that if the level is above 30, you just

might be a canditate for it! My doctor, who is a

pulmonologist told me that it was 114 or higher.

Good luck!! Please keep us all posted on how you do!

--- Maxine <motherswithangels@...> wrote:

> After reading the qualifications and exceptions in

> the Xolair clinical

> trials, it looks like I may not qualify. Can I start

> Xolair without

> being in a trial? I am about the approach my

> physician about using

> Xolair as my asthma is not under control and I have

> to resort to

> pednisone about every month. I am extremely allergic

> to many things as

> shown by my testing. Seems like I am allergic to

> " green " , meaning

> everything outdoors. One trip to a green house with

> flowers, resulted

> in my being on the vent for 12 hours after my lungs

> decided they were

> too tired to breathe.

> My FEV1 is not high enough to qualify for the

> studies, and I also have

> comorbid illnesses. Should I try to get on Xolair,

> or will I not be

> allowed? Who determines the elegibility? Thank you.

>

>

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[Guest guest]

Maxine,

You do NOT have to be in a study to get Xolair. Your FEV1 should be less than

80% but any Doctor worth his salt can make a good arguement that Prednisone

every month does more damage than it is worth and you should be given a 6 month

trial on Xolair at least, I'd push for 1 year. You have been intubated in the

past and this is something very important. You are in the group that should

have Xolair with no questions. If the Ins. Co. denies Xolair for you, I can

give you some key phrases to write to the Ins. CO. as an appeal. I'll help your

Physician also if he/she needs it.

Pat

MommaA@...

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