Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 I go to to play spades. NEver heard of pogo. can one play spades there? MSN has good free games as well. shelley Sandy Booton <ibsandy77@...> wrote: DANA I NEVER THOUGHT THERE WOULD BE A DAY THAT I REALLY NEEDED MY GLASSES...BOY WAS I WRONG...LOL...JUST FOR THE HECK OF IT DO YOU PLAY ANY GAMES ON THE NET? FOR THAT MATTER DOES ANYONE OUT THERE PLAY AT POGO OR ANY OTHER GAME SITE..FREE THAT IS...I WONT PAY TO PLAY. I ALSO WANTED TO SAY THAT I GOT A LETTER FROM THE DOCTOR WHO INVENTED MICROHYDRIN AND IT ISNT AS GOOD AS ITS SUPPOSED TO BE....IT RAISED MY VIRAL LODE FROM JUST OVER A MILLION TO 1,650,000. NOT A GOOD THING. SO ITS SAFE TO SAY THAT IT DOESNT DO WHAT IT SAID IT WOULD DO. GLAD I ONLY SPENT $30 ON IT ONCE. I HOPE EVERYONE HAS A GREAT WEEK. LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2002 Report Share Posted June 18, 2002 Sandy, I wear glasses at the computer too. heheh! Should probably wear everywhere. I noticed with change in meds and viral levals my eyesight changes. I would be getting new perscription all the time. Can't afford that!! Don't have vision and dental! But I definantly can relate to the vision thing. As far as Games. I never play. I probably should, but I have trouble keeping up with the things I need to do. My relaxation seems to be yard work and my animals. My Sweetie plays games alot! Not sure what kind. I have so much paper work with my fathers estate to keep up with and emails and faxes, not to mention keeping 3 copies of each dime I spend on his bills. Never thought there would be a day I would be the one responsible for all this. And my brother is fighting every step of the way. Funny what greed and money does. Funny thing, there is not really that much left once everything is paid. Kind of silly. Oh well! Don't worry about the typing thing. If we want to read it, we CAN SEE IT! Hugs and best to ya Dana --- Sandy Booton <ibsandy77@...> wrote: > > DANA I NEVER THOUGHT THERE WOULD BE A DAY THAT I > REALLY NEEDED MY GLASSES...BOY WAS I > WRONG...LOL...JUST FOR THE HECK OF IT DO YOU PLAY > ANY GAMES ON THE NET? FOR THAT MATTER DOES ANYONE > OUT THERE PLAY AT POGO OR ANY OTHER GAME SITE..FREE > THAT IS...I WONT PAY TO PLAY. I ALSO WANTED TO SAY > THAT I GOT A LETTER FROM THE DOCTOR WHO INVENTED > MICROHYDRIN AND IT ISNT AS GOOD AS ITS SUPPOSED TO > BE....IT RAISED MY VIRAL LODE FROM JUST OVER A > MILLION TO 1,650,000. NOT A GOOD THING. SO ITS SAFE > TO SAY THAT IT DOESNT DO WHAT IT SAID IT WOULD DO. > GLAD I ONLY SPENT $30 ON IT ONCE. I HOPE EVERYONE > HAS A GREAT WEEK. > > LOVE IN HIS LIGHT > > SANDY > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2002 Report Share Posted June 18, 2002 Sandy, I wear glasses at the computer too. heheh! Should probably wear everywhere. I noticed with change in meds and viral levals my eyesight changes. I would be getting new perscription all the time. Can't afford that!! Don't have vision and dental! But I definantly can relate to the vision thing. As far as Games. I never play. I probably should, but I have trouble keeping up with the things I need to do. My relaxation seems to be yard work and my animals. My Sweetie plays games alot! Not sure what kind. I have so much paper work with my fathers estate to keep up with and emails and faxes, not to mention keeping 3 copies of each dime I spend on his bills. Never thought there would be a day I would be the one responsible for all this. And my brother is fighting every step of the way. Funny what greed and money does. Funny thing, there is not really that much left once everything is paid. Kind of silly. Oh well! Don't worry about the typing thing. If we want to read it, we CAN SEE IT! Hugs and best to ya Dana --- Sandy Booton <ibsandy77@...> wrote: > > DANA I NEVER THOUGHT THERE WOULD BE A DAY THAT I > REALLY NEEDED MY GLASSES...BOY WAS I > WRONG...LOL...JUST FOR THE HECK OF IT DO YOU PLAY > ANY GAMES ON THE NET? FOR THAT MATTER DOES ANYONE > OUT THERE PLAY AT POGO OR ANY OTHER GAME SITE..FREE > THAT IS...I WONT PAY TO PLAY. I ALSO WANTED TO SAY > THAT I GOT A LETTER FROM THE DOCTOR WHO INVENTED > MICROHYDRIN AND IT ISNT AS GOOD AS ITS SUPPOSED TO > BE....IT RAISED MY VIRAL LODE FROM JUST OVER A > MILLION TO 1,650,000. NOT A GOOD THING. SO ITS SAFE > TO SAY THAT IT DOESNT DO WHAT IT SAID IT WOULD DO. > GLAD I ONLY SPENT $30 ON IT ONCE. I HOPE EVERYONE > HAS A GREAT WEEK. > > LOVE IN HIS LIGHT > > SANDY > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2002 Report Share Posted June 18, 2002 Hey, I used to play Spades and like that card game. Wonder if I could learn on the computer? Let me know? Dana --- shelley iverson <shellster_i@...> wrote: > > I go to to play spades. NEver heard of pogo. > can one play spades there? MSN has good free games > as well. > shelley > Sandy Booton <ibsandy77@...> wrote: > DANA I NEVER THOUGHT THERE WOULD BE A DAY THAT I > REALLY NEEDED MY GLASSES...BOY WAS I > WRONG...LOL...JUST FOR THE HECK OF IT DO YOU PLAY > ANY GAMES ON THE NET? FOR THAT MATTER DOES ANYONE > OUT THERE PLAY AT POGO OR ANY OTHER GAME SITE..FREE > THAT IS...I WONT PAY TO PLAY. I ALSO WANTED TO SAY > THAT I GOT A LETTER FROM THE DOCTOR WHO INVENTED > MICROHYDRIN AND IT ISNT AS GOOD AS ITS SUPPOSED TO > BE....IT RAISED MY VIRAL LODE FROM JUST OVER A > MILLION TO 1,650,000. NOT A GOOD THING. SO ITS SAFE > TO SAY THAT IT DOESNT DO WHAT IT SAID IT WOULD DO. > GLAD I ONLY SPENT $30 ON IT ONCE. I HOPE EVERYONE > HAS A GREAT WEEK. > > LOVE IN HIS LIGHT > > SANDY > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2002 Report Share Posted June 18, 2002 Hey, I used to play Spades and like that card game. Wonder if I could learn on the computer? Let me know? Dana --- shelley iverson <shellster_i@...> wrote: > > I go to to play spades. NEver heard of pogo. > can one play spades there? MSN has good free games > as well. > shelley > Sandy Booton <ibsandy77@...> wrote: > DANA I NEVER THOUGHT THERE WOULD BE A DAY THAT I > REALLY NEEDED MY GLASSES...BOY WAS I > WRONG...LOL...JUST FOR THE HECK OF IT DO YOU PLAY > ANY GAMES ON THE NET? FOR THAT MATTER DOES ANYONE > OUT THERE PLAY AT POGO OR ANY OTHER GAME SITE..FREE > THAT IS...I WONT PAY TO PLAY. I ALSO WANTED TO SAY > THAT I GOT A LETTER FROM THE DOCTOR WHO INVENTED > MICROHYDRIN AND IT ISNT AS GOOD AS ITS SUPPOSED TO > BE....IT RAISED MY VIRAL LODE FROM JUST OVER A > MILLION TO 1,650,000. NOT A GOOD THING. SO ITS SAFE > TO SAY THAT IT DOESNT DO WHAT IT SAID IT WOULD DO. > GLAD I ONLY SPENT $30 ON IT ONCE. I HOPE EVERYONE > HAS A GREAT WEEK. > > LOVE IN HIS LIGHT > > SANDY > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 Thank you Carrol. I had a feeling this might be...but wasn't quite sure. The info has put my mind to rest. And thank you Kathy and Marilyn for the tips...always appreciated. Lamar...thanks to you, the s/Reiter Clinic is a goal of mine should what I'm trying to do fail. I have gone to Dr Ray Peat's site, thanks to you, to read what he has to say about Progesterone, since one of my major triggers is Estrogen. Thanks to what I found there, I took what Zoe had to say about Dental Revision and went to Dr. Huggins site. I am silent most of the time ;> but I have been paying attention. I go through the archives and have used the book mark section. In fact, I am using the Epilepsy Foundation to find insurance. This group has helped me more than any of you realize...and I thank you all very much, Lorinda Carrol Showalter <ColoradoCarrol@...> wrote: Dear Lorinda, Blood levels of many things may fall within the " normal " range, but your body may still not be utilizing the nutrients effectively. It's really difficult to tell whether or not your tissues have an appropriate level of something with a blood test. In addition, at times I've found that, even though my blood tests come back within the normal range, I still benefit from additional nutrients. My body seems to need more than the " normal " amount of some things to function well. One thought I had related to your magnesium and calcium levels pertains to Vitamin D. Your body needs magnesium and Vitamin D to process calcium effectively. A few minutes in the sunshine every day will help your body get enough " D. " My doctor told me NOT to wear sunglasses for about ten minutes, because the naked eye absorbs " D " best. (Of course, you should never look directly at the sun.) If medications have made you " sun-sensitive, " you can find a good " D " supplement. Often the formulation of a nutrient can make a difference, too. My body is particular about the source and type of calcium and magnesium formulas. There are only a few vitamin supplements you need to watch to be sure you are not overdosing. Vitamins A, B-6 and E, are three that it pays to keep track of. You should also monitor the balance between magnesium and calcium, and zinc and copper. This is not, in any way, a complete list of considerations, but since you may be venturing outside of the recommendations of Western medicine, I hope these will help you. One final thought is this: your blood levels of nutrients change constantly throughout the day and week. I have had blood tests one week apart with dramatically different results. If you sense that your body needs something, you are probably right! Best wishes, Carrol Lorinda wrote: Many of you are taking vitamins and other supplements. I am headed in that direction and curious. I have taken herbs to clean out my system and curb my migraines. Not only did it curb the migraines, which I used to have a couple of times a month, but it stopped them. Now, I'm going back to the nervines to curb my valium intake. But for the last couple of years I've been getting bad cramps in my legs and I know I'm about ready for another seizure episode when this happens. Also since taking myself off of Dilantin, I have been twitching. Last month I ended up in the ER and I asked them to please check my calcium and magnesium levels. They, along with other tests they ran, came back A.O.K. In fact they said I was really healthy. I just smiled at them...if I'm so healthy what am I doing in the ER room getting ripped to pieces by seizures. My question is this... If your tests come back o.k. and your levels are within the normal range, will supplementation still help? Lorinda --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Hi!! congrats on continuing school I think is great. The energy comes from the heart and the mind. (mind over body) I also feel lousy all the time, lbut no one will think of how I feel by looking at me. I keep a demanding job(many hours and traveling), a teen age daughter and her 21 friends,my sister and her 13 yr old, my husband and if time left I may do something I like. All of this keep my mind busy. I discover that the more I stayed home and " supposevely rest " the worst I felt. So continue with all your plans and aspirations. This is very helpful. Have dreams and go after them. LIZI Sandy Booton <ibsandy77@...> wrote: SHELLEY, LEIGHANNE, JUDY, EMO AND ALL WHO TOOK THE TIME TO RESPOND TO MY VENTING. THANK YOU SO MUCH. LETS SEE IF THE BRAIN FOG WILL LET ME REMEMBER EVERYTHING THAT WAS ASKED OR SAID...DUH...LOL...FIRST, I LIVE IN CALIFORNIA..CENTRAL TO BE MORE PRECISE. I WAS HOPING FOR THE TREATMENTS TO START IN THE SUMMER BECAUSE I ATTEND COLLEGE..YES...AT THE AGE OF 53..I WILL BE IN MY THIRD SEMESTER IN THE FALL. I AM MAJORING IN HUMAN SERVICES AND HOPE TO BE A REHAB COUNSELOR FOR SICK AND INJURED INDIVIDUALS LIKE MYSELF. I DIDNT WANT THE TREATMENTS TO INTERFER WITH SCHOOL SO I WAS HOPING TO START THEM BUT...OH WELL...GOD KNOWS BEST. DOES ANYONE ELSE SUFFER FROM BRAIN FOG LIKE I DO??? THANKS FOR ALL THE PRAYERS AND CONCERN AND I WILL TRY TO DO WHAT I HAVE BEEN PUTTING OFF...LIKE BIKE RIDING...WHERE DO YOU GET THE ENERGY?? I FEEL SICK MOST OF THE TIME. OH WELL, BETTER DAYS AHEAD. LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Hi!! congrats on continuing school I think is great. The energy comes from the heart and the mind. (mind over body) I also feel lousy all the time, lbut no one will think of how I feel by looking at me. I keep a demanding job(many hours and traveling), a teen age daughter and her 21 friends,my sister and her 13 yr old, my husband and if time left I may do something I like. All of this keep my mind busy. I discover that the more I stayed home and " supposevely rest " the worst I felt. So continue with all your plans and aspirations. This is very helpful. Have dreams and go after them. LIZI Sandy Booton <ibsandy77@...> wrote: SHELLEY, LEIGHANNE, JUDY, EMO AND ALL WHO TOOK THE TIME TO RESPOND TO MY VENTING. THANK YOU SO MUCH. LETS SEE IF THE BRAIN FOG WILL LET ME REMEMBER EVERYTHING THAT WAS ASKED OR SAID...DUH...LOL...FIRST, I LIVE IN CALIFORNIA..CENTRAL TO BE MORE PRECISE. I WAS HOPING FOR THE TREATMENTS TO START IN THE SUMMER BECAUSE I ATTEND COLLEGE..YES...AT THE AGE OF 53..I WILL BE IN MY THIRD SEMESTER IN THE FALL. I AM MAJORING IN HUMAN SERVICES AND HOPE TO BE A REHAB COUNSELOR FOR SICK AND INJURED INDIVIDUALS LIKE MYSELF. I DIDNT WANT THE TREATMENTS TO INTERFER WITH SCHOOL SO I WAS HOPING TO START THEM BUT...OH WELL...GOD KNOWS BEST. DOES ANYONE ELSE SUFFER FROM BRAIN FOG LIKE I DO??? THANKS FOR ALL THE PRAYERS AND CONCERN AND I WILL TRY TO DO WHAT I HAVE BEEN PUTTING OFF...LIKE BIKE RIDING...WHERE DO YOU GET THE ENERGY?? I FEEL SICK MOST OF THE TIME. OH WELL, BETTER DAYS AHEAD. LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 You're welcome! Suzy, if you know your attorney's email address, just send him this link: http://www.justiceseekers.com/files/NLPP00000/060.PDF Love, Dawn >From: " suzy nakauchi " Reply-SSRI medications To: >SSRI medications Subject: Thank you Date: >Wed, 21 Aug 2002 18:38:10 +0000 > > > >Dear Dawn, > >Thank you for the entire copy of the new action v. E. Lilly. I'm sending a >copy to my son's lawyer asap. > >Love, Suzy > >_________________________________________________________________ Send and >receive Hotmail on your mobile device: http://mobile.msn.com > _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2002 Report Share Posted October 3, 2002 > Thank you for the info . > The number you gave me is not the number I called. Although, I did ask if Dr > Weiss works there and she said, " Yes. " > I'll call the number you gave me. > Will the doctors there do a fill 5-6 weeks post-op? > Thanks you again, > Donna You can get a fill usualy anytime after 4 weeks. You should be fine . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2002 Report Share Posted October 10, 2002 Dear a, Thank you for your response and feedback. If you play with them and still can not get it, feel free to post again or emailme privately, which ever makes you fel more comfortable. Take care and hope the computer gets better! Hee! Love ya Jeanetta > Hi, I have been having some computers problesms and haven't been able > to get on line. I do want to thank you for answering the questions. > I have printed them out and will try working them and see if I can do > it. I will let you know after I have played with them for a while. > a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2002 Report Share Posted October 10, 2002 Dear a , You are most welcome! It is always good to get feedback from the study group users to know if we are helping or to know if there is anything more we can do. Thank you, Jeanetta > Hi, I have been having some computers problesms and haven't been able > to get on line. I do want to thank you for answering the questions. > I have printed them out and will try working them and see if I can do > it. I will let you know after I have played with them for a while. > a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 Hi , My name is Becki and I live in Murfreesboro Tn.You tried to get in touch with me a few months back right before we left to take to Cincy to begin an Enbrel study.I tried to find you but was changing internet services and lost everything.Now my stupid computer keeps locking up and having trouble posting.Someone has beaten me to finding more rheumys.I thought there had to be more then one in Knoxville,I knew there had to be someone in Chatanooga.It's not on the list but I think there is someone in the tri-city area,mayby City but I don't know if they are ped or not.You can take I75 straight to Lexington which is our closest Shriners but it's a 3 hour drive for you.Ashville is a close city,but don't know about ped rheumys.We see Hummal and Lawton,the first two on the list,but they aren't real familiar with Remicade.They put one teenager on it and she had a severe allergic reaction.You seem to trust your ped,mayby you can see a rheumy in a differant city and go mayby every 3 months and have them and your ped keep in close contact with each other.Early agressive treatment is so imperative to maintain joint function.I better send this before it locks up,but have so much more to say. Hugs Becki and 4systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 Hi , My name is Becki and I live in Murfreesboro Tn.You tried to get in touch with me a few months back right before we left to take to Cincy to begin an Enbrel study.I tried to find you but was changing internet services and lost everything.Now my stupid computer keeps locking up and having trouble posting.Someone has beaten me to finding more rheumys.I thought there had to be more then one in Knoxville,I knew there had to be someone in Chatanooga.It's not on the list but I think there is someone in the tri-city area,mayby City but I don't know if they are ped or not.You can take I75 straight to Lexington which is our closest Shriners but it's a 3 hour drive for you.Ashville is a close city,but don't know about ped rheumys.We see Hummal and Lawton,the first two on the list,but they aren't real familiar with Remicade.They put one teenager on it and she had a severe allergic reaction.You seem to trust your ped,mayby you can see a rheumy in a differant city and go mayby every 3 months and have them and your ped keep in close contact with each other.Early agressive treatment is so imperative to maintain joint function.I better send this before it locks up,but have so much more to say. Hugs Becki and 4systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 From the list of doctors on the web page: Donna Hummell MD Div Pediatric Immunology Vanderbilt University 311 Oxford House Nashville , TN 372324144 Ofc: 615-322-4397 Fax: 615-322-4399 Lawton MD Div Pediatric Immunology Vanderbilt University 311 Oxford House Nashville , TN 37232-4144 Ofc: 615-322-4397 Fax: 615-322-4399 Email: alexander.r.lawton@... Dr. LeBonhuer Memphis, TN Dr. Myers Memphis, TN Indravadan Shah MD 2339 McCallie Avenue #203 Chattanooga , TN 37404 Ofc: 423-624-3406 Fax: 423-624-7657 Kenny Sizemore MD 324 Park 40 N Blvd Knoxville , TN 37923 Ofc: 865-691-4100 Fax: 865-691-6178 Email: kennysiz@... Donna Winn MD Rheumatology Consultants St s West 1120 Weisgarber Rd Knoxville , TN 37909 Ofc: 865-602-7983 Fax: 865-602-7984 Frederick Wolfe MD Department of Rheumatology St s Professional Bldg 1120 Weisbarber Rd Ste 201 Knoxville , TN 37909-3606 Ofc: 865-602-7983 Fax: 865-602-7984 At 07:57 AM 1/9/03 , you wrote: I can not begin to thank you all for all the information and for how much I appreciate you taking the time to write me back. I have been going through this for so long, I have just quit trying to find someone who understands. And in one posting, it seems that I have found many people who understand and are so kind. I know we need to find a new rhem. doctor. That is the main problem. The doctor she sees does not specialize in children, he treats children and adults too. He treats at the Children's Hospital here, in a rhematology clinic they have once a month. He has an office too, but he mainly treats adults out of it. I just don't understand him. He was really MAD that I wrote her journal down, instead of her. I was so mad when I came home from that visit. I called her pediatrician crying, and told her I wanted a new doctor immediately. Since there are no other doctors in this area, she told me to try to hang in there with him a little longer. I am going to check out the shriner's website later this afternoon, to see if I can find any info there. We have good insurance, but trying to drive for very far is hard for us. On good days we are fine, but on days she is hurting it would be impossible. Thanks again for all the information. I look forward to getting to know all of you better. love, PS. By the way, I live in Knoxville, Tennessee. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 From the list of doctors on the web page: Donna Hummell MD Div Pediatric Immunology Vanderbilt University 311 Oxford House Nashville , TN 372324144 Ofc: 615-322-4397 Fax: 615-322-4399 Lawton MD Div Pediatric Immunology Vanderbilt University 311 Oxford House Nashville , TN 37232-4144 Ofc: 615-322-4397 Fax: 615-322-4399 Email: alexander.r.lawton@... Dr. LeBonhuer Memphis, TN Dr. Myers Memphis, TN Indravadan Shah MD 2339 McCallie Avenue #203 Chattanooga , TN 37404 Ofc: 423-624-3406 Fax: 423-624-7657 Kenny Sizemore MD 324 Park 40 N Blvd Knoxville , TN 37923 Ofc: 865-691-4100 Fax: 865-691-6178 Email: kennysiz@... Donna Winn MD Rheumatology Consultants St s West 1120 Weisgarber Rd Knoxville , TN 37909 Ofc: 865-602-7983 Fax: 865-602-7984 Frederick Wolfe MD Department of Rheumatology St s Professional Bldg 1120 Weisbarber Rd Ste 201 Knoxville , TN 37909-3606 Ofc: 865-602-7983 Fax: 865-602-7984 At 07:57 AM 1/9/03 , you wrote: I can not begin to thank you all for all the information and for how much I appreciate you taking the time to write me back. I have been going through this for so long, I have just quit trying to find someone who understands. And in one posting, it seems that I have found many people who understand and are so kind. I know we need to find a new rhem. doctor. That is the main problem. The doctor she sees does not specialize in children, he treats children and adults too. He treats at the Children's Hospital here, in a rhematology clinic they have once a month. He has an office too, but he mainly treats adults out of it. I just don't understand him. He was really MAD that I wrote her journal down, instead of her. I was so mad when I came home from that visit. I called her pediatrician crying, and told her I wanted a new doctor immediately. Since there are no other doctors in this area, she told me to try to hang in there with him a little longer. I am going to check out the shriner's website later this afternoon, to see if I can find any info there. We have good insurance, but trying to drive for very far is hard for us. On good days we are fine, but on days she is hurting it would be impossible. Thanks again for all the information. I look forward to getting to know all of you better. love, PS. By the way, I live in Knoxville, Tennessee. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 You are most welcome, . I was looking thru the list of drs. and putting them into the rand mcnally map. There are a few in North Carolina and one is about 2 hrs from you. I saw that Nashville is about 3 hrs. (according to their website). I think the idea of checking that list is a good one. You can determine which one is closest to you. If you haven't checked it, on the main jra list page, click on Files and you can click on it from that list. Another website to check out is www.rheumatology.org and click on find a rheumatologist. Just another idea to see if this could help you, Michele (mom to 15, pauci & spondy) -----Original Message-----From: dounoGod@... [mailto:dounoGod@...] Sent: Thursday, January 09, 2003 9:57 AM Subject: Thank youI can not begin to thank you all for all the information and for how much I appreciate you taking the time to write me back. I have been going through this for so long, I have just quit trying to find someone who understands. And in one posting, it seems that I have found many people who understand and are so kind. I know we need to find a new rhem. doctor. That is the main problem. The doctor she sees does not specialize in children, he treats children and adults too. He treats at the Children's Hospital here, in a rhematology clinic they have once a month. He has an office too, but he mainly treats adults out of it. I just don't understand him. He was really MAD that I wrote her journal down, instead of her. I was so mad when I came home from that visit. I called her pediatrician crying, and told her I wanted a new doctor immediately. Since there are no other doctors in this area, she told me to try to hang in there with him a little longer. I am going to check out the shriner's website later this afternoon, to see if I can find any info there. We have good insurance, but trying to drive for very far is hard for us. On good days we are fine, but on days she is hurting it would be impossible. Thanks again for all the information. I look forward to getting to know all of you better. love, PS. By the way, I live in Knoxville, Tennessee. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2003 Report Share Posted June 5, 2003 nne, If you are heading towards transplant I recommend you get evaluated by the liver transplant team sooner rather than later. Time on the list is good to have if you do have to get one. Believe me, you will not be rushed into a transplant if you don't need one. No one will whisk you away. My lft's keep dropping, not quite to normal but ~300 to ~250 to ~200 to ~175 , today they were about 160, but my ALPH was 1500! Oh well. Good luck with you fact finding mission! nne, I forget where you live, is there a transplant center close to you? Patty [ ] Thank you Patty and Jerry, Thanks for responding....I do appreciate it so much. Jerry, I know you have posted regarding the normal LFT/bad liver before, but always thinking " that'll never be me " the information never really sunk in. (I guess I forgot to tell ya'll that my other name is the Queen of D'enial)So I take it that means my liver had been working really hard to get better, but it isn't able to anymore...and the lowering LFT's were perhaps more indicative of its worsening? Is that a correct interpretation? The article on portal hypertension was very interesting. I just love it that my pressure gradient has reached the " clinically significant " stage...how very special....geeze. I have more questions for my hep now (after reading what he handed me and what I am learning here) than I did on Friday...I am dropping him a note to ask a few and see what the labs they drew on Friday show. I already know, based on the doc's notes he gave me, that my PTT is prolonged, so I need now to see if that is still the case and what the albumin serum is. Actually, the rheumy drew labs on Thursday and those results might be ready sooner. Well, least I know which additional markers to ask about. Thanks once again. Love yas nne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2003 Report Share Posted June 5, 2003 nne...Patty beat me to it... but with the info you gave us you should be having an evaluation to get listed for Tx. Ask your doc about that too.... I love you.......jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2003 Report Share Posted June 5, 2003 Patty, I am in North Carolina. My gastro referred me to a hepatologist @ Duke and I began seeing him in March.. He specializes in autoimmune hep and is with the transplant clinic. We've just started discussing transplant. In his notes from last week, he said unless we get my disease under control, transplnat is inevitible, but the timing is to be determined. Thanks for you info! Hope that call comes for you soon. nne > nne, > If you are heading towards transplant I recommend you get evaluated by the > liver transplant team sooner rather than later. Time on the list is good to > have if you do have to get one. Believe me, you will not be rushed into a > transplant if you don't need one. No one will whisk you away. My lft's keep > dropping, not quite to normal but ~300 to ~250 to ~200 to ~175 , today they > were about 160, but my ALPH was 1500! Oh well. > > Good luck with you fact finding mission! > nne, I forget where you live, is there a transplant center close to > you? > Patty > > [ ] Thank you > > > Patty and Jerry, > > Thanks for responding....I do appreciate it so much. > > Jerry, I know you have posted regarding the normal LFT/bad liver > before, but always thinking " that'll never be me " the information > never really sunk in. (I guess I forgot to tell ya'll that my other > name is the Queen of D'enial)So I take it that means my liver had > been working really hard to get better, but it isn't able to > anymore...and the lowering LFT's were perhaps more indicative of its > worsening? Is that a correct interpretation? > > The article on portal hypertension was very interesting. I just love > it that my pressure gradient has reached the " clinically significant " > stage...how very special....geeze. > > I have more questions for my hep now (after reading what he handed me > and what I am learning here) than I did on Friday...I am dropping him > a note to ask a few and see what the labs they drew on Friday show. I > already know, based on the doc's notes he gave me, that my PTT is > prolonged, so I need now to see if that is still the case and what > the albumin serum is. Actually, the rheumy drew labs on Thursday and > those results might be ready sooner. Well, least I know which > additional markers to ask about. > > Thanks once again. > > Love yas > > nne > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2003 Report Share Posted June 5, 2003 Thanks again, Jerry, <<Hugs>> Love, nne > nne...Patty beat me to it... but with the info you gave us you > should be having an evaluation to get listed for Tx. Ask your doc about > that too.... I love you.......jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2003 Report Share Posted July 31, 2003 Thanks Lori! You are a terrific young lady. I wish you much success. Dana Thank You Dear Dr. Rutledge, I just wanted to take a moment to thank you and the entire High Point staff for an incredible experience. I think Dana is amazing and so very compassionate! She answered every little question or concern either myself or my Mom had. I am so thrilled that I was moved to High Point and had the opportunity to work with her. The entire nursing staff at the hospital was wonderful and very, very competent. I had the utmost confidence in their abilities because they were so very professional. Specifically, , Cedrick and Shane were amazing! As you are well aware, the decision to undergo weight loss surgery is a big one and not one I entered into lightly. I must admit, I was a little nervous going into the day of surgery, but after meeting you, Dr. Dasher, and Dana, I felt completely at ease and all nervousness vanished. Even through one bad spout of pain on Friday afternoon, Dana and Dr. Dasher were extremely quick to respond, knew exactly what I needed, and most importantly, they were also able to calm my fears that something might be wrong. Their experience and professionalism were unmatched, and I know I could not have received better care anywhere in the world. >From the moment I contacted your staff months ago to the present, I have been amazed at the level of respect, concern and utter compassion that I've felt from each and every CLOS person I've worked with. I commend you on your entire staff and thank you from the bottom of my heart. I know that my life has been changed for the better for having met and worked with all of you. I will stay in close touch and hope to attend the summer picnic later this year. I am doing well and feeling great. I know patients probably send you these letters all the time, but I just can't express to you how thankful I am and what an incredible gift you are giving to people through your work. I will be eternally grateful and if I can ever do anything to assist you, please don't hesitate to ask me. Thank you again! Lori Young Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 --- Hello Lee, It is never too late to have CI implant and not even too old to have it either. I had mine last October 2002 and am almost 66 in September. I was like you growing up pretending hearing but not hear at all. I am so pleased with my CI and felt like a new person. Good luck with your endeavor. Best regards, Jane Motrinec Med El 10/6/02 at Unv. of Miami In , spottedlee@a... wrote: > I want to thank all of you who tried to help me this past couple days. I > have read the 2, not 3 sites cuz one of them were wrong URL but the two site i > read was overwleming........ one say that their studies shows those with about > 10% understanding of communication skyrocketed to 80% at 3 months and 90% at 6 > months........ that is AMAZING! > > Am I seeing no more long cord to emabarass myself? Now it is all at ear > level? > > I spend 46 years with zero speech discrimination (speech undertsanding), its > scary but the thought of going though with it...... its overwhleming........ > may be too late to hear my children crazy music listening........ but...... not > too late for grandkids! > > It my future grandchildren that got me into thinking of it....... my own > kids, i understand them....... they will soon move out.....have children of their > own,,,,, i fear i won't understand them. I dont want family to fall apart. > > I am also soooooooo tired of being caught in " no man " land...... being deaf > yet i grew up brainwashed to be " hearing " when i am not hearing, yet i dont > feel belonging to deaf world. > > I do have a deaf sister, like me, she had thought of it for a long time. > > Thank you all for giving me a head start!...i will email my doc this morning > to make a referal to two places in Seattle that I was told about. > > Lee > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 So come over to Silverdale on Sunday! Jo > > To everyone who answered my questions. However, the > calendar does not show anything for Seattle through > October. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 BG, come on up to Everett for our next soup night. It is Tues, Sept 23rd at Providence Hospital in Everett. The calendar has the details (time, address, etc.) Hope to see you there. Barb S. in Monroe 4-11-02 Dr. Oh 300/187/150 barbooch@... Quote Link to comment Share on other sites More sharing options...
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