New Member Here

[Guest guest]

Hi Zoey,

thanks for sharing, I thought maybe you were one of the people using alternative treatments, i.e. bugleweed, lemon balm or other remedies.

thanks,

Jane

[Guest guest]

Hi Jane,

In answer to your question; am curious how you got your bloodwork in normal range so quickly? What treatment's were you using? All I really did was to take tapazole (and beta blockers for the 1st couple weeks). I think I started with 15 mgs tapazole and after 2 or 3 weeks reduced it by 2.5 mgs every 2 weeks. I stopped taking all my vitamins that had zinc or iodine in them, stopped using tamari soy sauce (I do not use salt), and ate well. The worst part of it was going sort of hypo on the tapazole. If I had to do it again, I would probably take less tapazole and begin reducing my dose within the first week. But that's just me. Everyone is different. I should mention that I've always eaten well and don't eat junk food, sodas, fast food, and that kind of stuff. Hope this helps. If not, ask more. I'm away from my computer a lot but will try to answer. Best, Zoey

Re: new member here

In a message dated 4/8/2002 1:20:56 AM Central Daylight Time, tarbi@... writes:

I refused and within about 4 months or so I was off all anti-thyroid medicine with normal bloodwork. Hi Zoey,I am curious how you got your bloodwork in normal range so quickly? What treatment's were you using?Thanks,Jane

[Guest guest]

Welcome to the group )

[Guest guest]

I have had the same good luck with lexapro. Ive been on it about 5 weeks, and I'm at the point now where I dont need any xanax at all. I was on celexa, effexor, and paxil and none worked as good as lex for anxiety!

[Guest guest]

Hi and welcome Aleah,

I'm stage 3 too and I've done combo with no response as well. The new

treatment is called PegIntron, or Pegasys. These are 2 different

forms of the drug. Both are used in conjunction with the Ribavirin

but you only take 1 shot a week. From what I have been hearing and

reading, the Pegasys (by Roche Labs) has a better response rate and

is a bit easier on the side effects.

Keep in mind that responding to treatment doesn't necessarily mean

that the viral load disappeared. Treatment will slow down the

progression to further liver disease. Lots of people who didn't

respond to the Combo ARE responding to the Peg treatment. Even if you

don't get rid of the virus, you will be helping your liver condition

by doing treatment again.

If you didn't have a liver biopsy when you ended your treatment in

2000, ask your dr to give you another one before you decide on

treatment.

We all go through the denial thing more than once. When we are on

treatment, it's like that is the center of our lives and all we think

about. Once treatment is over, we want to go hide from the disease.

But you are right, you need to do something, because like me, you are

crawling close to cirrhosis. You don't want to go there.

Talk to your dr about it and once you get your labs and anything else

he feels you need, read all you can about both drugs before taking

it. As I said, Roche's Pegasys seems to be easier on the side effects

and has a better response rate than the PegIntron by Schering.

LeighAnn

[Guest guest]

Hi Aleah, welcome to the group. It's a great bunch of people. I've never done

treatment, but there are a lot of people here who can explain what's out there

now, so ask any questions you have.

Marilyn

New Member here

Hello everyone. My name is Aleah. I have hep c also. I'm in the 3rd

stage and have tried combo back in 2000 but didn't respond. Ever

since then I've been like in denial of even having this disease but

resently realized that I can't just keep ignoring this. I hear

there's a new treatment out but don't know too much about it. Any

info would be appreciated. Hope everyone is doing well. Take care..

Aleah

[Guest guest]

Thanks for the warm welcome and the info on the new peg. I really

haven't heard much about it and didn't even know about it until just

resently.One day soon I hope I can get on that new tx and from what

you wrote, maybe this time it'll work :-). No I didn't have a biopsy

done after tx and really don't want another one. That hurts,lol..

But if he really recommends one, I'll do not only for my family but

also myself. I wanna live like 50 some more years and meet my great

grandkids.. Hope you are well and take care

> Hi and welcome Aleah,

>

> I'm stage 3 too and I've done combo with no response as well. The

new

> treatment is called PegIntron, or Pegasys. These are 2 different

> forms of the drug. Both are used in conjunction with the Ribavirin

> but you only take 1 shot a week. From what I have been hearing and

> reading, the Pegasys (by Roche Labs) has a better response rate

and

> is a bit easier on the side effects.

>

> Keep in mind that responding to treatment doesn't necessarily mean

> that the viral load disappeared. Treatment will slow down the

> progression to further liver disease. Lots of people who didn't

> respond to the Combo ARE responding to the Peg treatment. Even if

you

> don't get rid of the virus, you will be helping your liver

condition

> by doing treatment again.

>

> If you didn't have a liver biopsy when you ended your treatment in

> 2000, ask your dr to give you another one before you decide on

> treatment.

>

> We all go through the denial thing more than once. When we are on

> treatment, it's like that is the center of our lives and all we

think

> about. Once treatment is over, we want to go hide from the

disease.

> But you are right, you need to do something, because like me, you

are

> crawling close to cirrhosis. You don't want to go there.

>

> Talk to your dr about it and once you get your labs and anything

else

> he feels you need, read all you can about both drugs before taking

> it. As I said, Roche's Pegasys seems to be easier on the side

effects

> and has a better response rate than the PegIntron by Schering.

>

> LeighAnn

[Guest guest]

Oh, Aleah, I had to reply to this! Arghhh! This is a discussion we have had

*so* many times on this list! The biopsy *should not hurt*!! So many doctors

are still so ignorant! They will tell you the biopsy is " nothing " and that you

don't need anything for pain. Oh, yes, you do! I had one done a year ago, I

had a lidocaine drip and never felt a thing. Other people have had other

things, which escape my mind now, but it *should not hurt*!

The biopsy is important, because it is the only true gauge of what the Hep C is

doing to your body. Ask for another one, but demand that you be given something

for the pain of the procedure. I keep saying, every doctor that performs liver

biopsies should undergo one themselves, to see what it's like for us. I don't

know where some of them get their information, but I'm sure a lot of people turn

away from treatment because they don't want to have to suffer for a cure.

Best to you,

Marilyn

Re: New Member here

Thanks for the warm welcome and the info on the new peg. I really

haven't heard much about it and didn't even know about it until just

resently.One day soon I hope I can get on that new tx and from what

you wrote, maybe this time it'll work :-). No I didn't have a biopsy

done after tx and really don't want another one. That hurts,lol..

But if he really recommends one, I'll do not only for my family but

also myself. I wanna live like 50 some more years and meet my great

grandkids.. Hope you are well and take care

> Hi and welcome Aleah,

>

> I'm stage 3 too and I've done combo with no response as well. The

new

> treatment is called PegIntron, or Pegasys. These are 2 different

> forms of the drug. Both are used in conjunction with the Ribavirin

> but you only take 1 shot a week. From what I have been hearing and

> reading, the Pegasys (by Roche Labs) has a better response rate

and

> is a bit easier on the side effects.

>

> Keep in mind that responding to treatment doesn't necessarily mean

> that the viral load disappeared. Treatment will slow down the

> progression to further liver disease. Lots of people who didn't

> respond to the Combo ARE responding to the Peg treatment. Even if

you

> don't get rid of the virus, you will be helping your liver

condition

> by doing treatment again.

>

> If you didn't have a liver biopsy when you ended your treatment in

> 2000, ask your dr to give you another one before you decide on

> treatment.

>

> We all go through the denial thing more than once. When we are on

> treatment, it's like that is the center of our lives and all we

think

> about. Once treatment is over, we want to go hide from the

disease.

> But you are right, you need to do something, because like me, you

are

> crawling close to cirrhosis. You don't want to go there.

>

> Talk to your dr about it and once you get your labs and anything

else

> he feels you need, read all you can about both drugs before taking

> it. As I said, Roche's Pegasys seems to be easier on the side

effects

> and has a better response rate than the PegIntron by Schering.

>

> LeighAnn

[Guest guest]

Thanks for replying back Marilyn. I sure will remember what ya said

because if I don't have to go through anymore pain with this I sure

will jump into that hosp. to get it done. I've not taken care of

myself for almost 4 yrs now, so I need to get a move on. If ya ever

need someone to talk too, I'll be here and you can add me to

messenger if ya have . Take care.. Aleah

> > Hi and welcome Aleah,

> >

> > I'm stage 3 too and I've done combo with no response as well.

The

> new

> > treatment is called PegIntron, or Pegasys. These are 2

different

> > forms of the drug. Both are used in conjunction with the

Ribavirin

> > but you only take 1 shot a week. From what I have been hearing

and

> > reading, the Pegasys (by Roche Labs) has a better response

rate

> and

> > is a bit easier on the side effects.

> >

> > Keep in mind that responding to treatment doesn't necessarily

mean

> > that the viral load disappeared. Treatment will slow down the

> > progression to further liver disease. Lots of people who

didn't

> > respond to the Combo ARE responding to the Peg treatment. Even

if

> you

> > don't get rid of the virus, you will be helping your liver

> condition

> > by doing treatment again.

> >

> > If you didn't have a liver biopsy when you ended your

treatment in

> > 2000, ask your dr to give you another one before you decide on

> > treatment.

> >

> > We all go through the denial thing more than once. When we are

on

> > treatment, it's like that is the center of our lives and all

we

> think

> > about. Once treatment is over, we want to go hide from the

> disease.

> > But you are right, you need to do something, because like me,

you

> are

> > crawling close to cirrhosis. You don't want to go there.

> >

> > Talk to your dr about it and once you get your labs and

anything

> else

> > he feels you need, read all you can about both drugs before

taking

> > it. As I said, Roche's Pegasys seems to be easier on the side

> effects

> > and has a better response rate than the PegIntron by Schering.

> >

> > LeighAnn

>

>

>

[Guest guest]

Hi ,

I as well have had 3 surgeries all in my left year - each about 2

years apart. What sort of proceedures have you had done?

Jodie

> Hello all, I am a 30 yr old male that has just found out he has

his

> THIRD Cholesteatoma. They have all been in my left here. We will

see

> what happens this time.Anyone else have multples in the same ear,

> would like to hear from you.

[Guest guest]

Hi Darin,

Welcome to the group, sorry you have a need to be here. It sounds as if you have a very qualified Doctor and any questions you forget to ask him, or he doesnt answer, ask anyone here. This is a wonderful place to learn about C-toma and all it entails. Best of luck on the quitting smoking. Good for you! Keep us posted on how things are going..

Sincerely,

Renonda(from Michigan too!)

(s Mom)

[Guest guest]

Yes, An otologist is an ear specialist. Kara also never really had ear

infections. Shfe did have no hearing in left eear from the start. It

seems to be differnt in all people. The common factor though is it needs

to come out because it will grow and spread. Welcome! Sallie, mom to

Kara, 10 with c-toma

________________________________________________________________

The best thing to hit the internet in years - Juno SpeedBand!

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[Guest guest]

Hi Darin,

Yes, your doctor is an Otologist. My doctor has those same credentials. Unlike you, I have had problems with my ears since I was a kid ( am now 42 ). Good luck to you and welcome to the group.

Ilona

Darin <dcdalton2320@...> wrote:

Hello everyone,My name is Darin. I am 29 and live in Michigan. I have recently been diagnosed with a c-toma. I have had hearing loss in my right ear for about two years but never went to the doctor (macho guy thing). When I started having discharge from my ear, I got worried and finally went to a doctor. That was about 5 weeks ago. My ear was pretty badly infected and was quite swollen, so the doctor has had me use Ciprodex (antibiotic) drops, Nasonex, and vinegar and water irrigation for about a month to calm the infection so he could get a better look. I went back for my third visit today. The infection has improved a lot. Part of the ear drum is gone, which allowed my doctor to see into the middle ear a bit. He can see that at least part of the Incus bone has deen

destroyed. Of course, he can't say exactly how bad it is until he gets in there.He wants to wait two months to give me time to quit smoking before scheduling surgery. He said that smoking greatly reduces the sucess rate of of any reconstruction, and since the infection has stabilized, it is better to wait until I quit. Too bad it takes something like this to get me to quit!It seems strange that I never had any problems with my ears as a kid. No infections, no tubes, nothing. From what I've read here, it seems that most of the adults with this condition had problems earlier in life. I have also never had any pain. Maybe just an occasional full feeling. Has anyone else had a case like this?One last question. I checked my doctors credentials and it said that he is board certified in Otology, Neurotology, and Skull Base Surgery. Is this an otologist? He seems

to be very qualified and I feel very comfortable with him.Thanks for listening. Any comments are appreciated.Darin

[Guest guest]

Hi Darin,

Sounds like you have a good doctor working on you. I too was a

smoker before I was diagnosed with the C'toma... I quit a month

before my first surgery and didnt smoke for around 5 months after

that. Unfortunately I started again and then quit again before my

last surgery I just had on Monday. Smoking apparently does have an

impact on recovery and also promotoes fluid in the ear, that's why

it's not recommended you smoke. Good Luck with it all, and feel free

to ask as many questions as you want. Prior to joining this forum I

had a limited knowledge on the disease, however after I felt more

confident with all the questions I had answered...

Welcome

Nick (Aussie from Down Under..)

[Guest guest]

Welcome Darin! Nice to have you aboard! I am a ctoma surviver also. I

did not know smoking causes problems with the recovery. There is

another lesson learned for me. I know smoking is very bad for you.

But I had no idea it would interfere with recovery from the ear

surgery. I am a lifer with ear problems. I love this group, there

very wise! It is so nice to have this support here.

-- In cholesteatoma , " Darin " <dcdalton2320@m...>

wrote:

> Hello everyone,

>

> My name is Darin. I am 29 and live in Michigan. I have recently

> been diagnosed with a c-toma. I have had hearing loss in my right

> ear for about two years but never went to the doctor (macho guy

> thing). When I started having discharge from my ear, I got worried

> and finally went to a doctor. That was about 5 weeks ago.

>

> My ear was pretty badly infected and was quite swollen, so the

doctor

> has had me use Ciprodex (antibiotic) drops, Nasonex, and vinegar

and

> water irrigation for about a month to calm the infection so he

could

> get a better look. I went back for my third visit today. The

> infection has improved a lot. Part of the ear drum is gone, which

> allowed my doctor to see into the middle ear a bit. He can see

that

> at least part of the Incus bone has deen destroyed. Of course, he

> can't say exactly how bad it is until he gets in there.

>

> He wants to wait two months to give me time to quit smoking before

> scheduling surgery. He said that smoking greatly reduces the

sucess

> rate of of any reconstruction, and since the infection has

> stabilized, it is better to wait until I quit. Too bad it takes

> something like this to get me to quit!

>

> It seems strange that I never had any problems with my ears as a

> kid. No infections, no tubes, nothing. From what I've read here,

it

> seems that most of the adults with this condition had problems

> earlier in life. I have also never had any pain. Maybe just an

> occasional full feeling. Has anyone else had a case like this?

>

> One last question. I checked my doctors credentials and it said

that

> he is board certified in Otology, Neurotology, and Skull Base

> Surgery. Is this an otologist? He seems to be very qualified and

I

> feel very comfortable with him.

>

> Thanks for listening. Any comments are appreciated.

>

> Darin

[Guest guest]

Hi Nick

Welcome...Im 46 and live in Queensland aus..I have had 2 ops this

year .. one on each ear for c-tomas..I currently have a hearing aid

for the left and awaiting the healing process of the right one...i

was a smoker for over 20yrs and no one ever told me that it could be

a problem..but I shouldnt be suprised..anyway keep us informed of

when you go in and all the best

Lorna

> Hello everyone,

>

> My name is Darin. I am 29 and live in Michigan. I have recently

> been diagnosed with a c-toma. I have had hearing loss in my right

> ear for about two years but never went to the doctor (macho guy

> thing). When I started having discharge from my ear, I got worried

> and finally went to a doctor. That was about 5 weeks ago.

>

> My ear was pretty badly infected and was quite swollen, so the

doctor

> has had me use Ciprodex (antibiotic) drops, Nasonex, and vinegar

and

> water irrigation for about a month to calm the infection so he

could

> get a better look. I went back for my third visit today. The

> infection has improved a lot. Part of the ear drum is gone, which

> allowed my doctor to see into the middle ear a bit. He can see

that

> at least part of the Incus bone has deen destroyed. Of course, he

> can't say exactly how bad it is until he gets in there.

>

> He wants to wait two months to give me time to quit smoking before

> scheduling surgery. He said that smoking greatly reduces the

sucess

> rate of of any reconstruction, and since the infection has

> stabilized, it is better to wait until I quit. Too bad it takes

> something like this to get me to quit!

>

> It seems strange that I never had any problems with my ears as a

> kid. No infections, no tubes, nothing. From what I've read here,

it

> seems that most of the adults with this condition had problems

> earlier in life. I have also never had any pain. Maybe just an

> occasional full feeling. Has anyone else had a case like this?

>

> One last question. I checked my doctors credentials and it said

that

> he is board certified in Otology, Neurotology, and Skull Base

> Surgery. Is this an otologist? He seems to be very qualified and

I

> feel very comfortable with him.

>

> Thanks for listening. Any comments are appreciated.

>

> Darin

[Guest guest]

Hi,

Just some info I gleaned from one of my docs.

Before my op - i was asked all the usual questions. Two of them been - do you smoke, do you drink. I asked why they always asked me these questions. The doc said it is the anesthetic. If you don't smoke / don't drink - you will need a lighter anesthetic.

ann.Glenda Harper <mountainmama07@...> wrote:

Welcome Darin! Nice to have you aboard! I am a ctoma surviver also. I did not know smoking causes problems with the recovery. There is another lesson learned for me. I know smoking is very bad for you. But I had no idea it would interfere with recovery from the ear surgery. I am a lifer with ear problems. I love this group, there very wise! It is so nice to have this support here. -- In cholesteatoma , "Darin" <dcdalton2320@m...> wrote:> Hello everyone,> > My name is Darin. I am 29 and live in Michigan. I have recently > been diagnosed with a c-toma. I have had hearing loss in my right > ear for about two years but never went to the doctor (macho guy > thing). When I started having discharge from my ear, I got worried > and finally went to

a doctor. That was about 5 weeks ago. > > My ear was pretty badly infected and was quite swollen, so the doctor > has had me use Ciprodex (antibiotic) drops, Nasonex, and vinegar and > water irrigation for about a month to calm the infection so he could > get a better look. I went back for my third visit today. The > infection has improved a lot. Part of the ear drum is gone, which > allowed my doctor to see into the middle ear a bit. He can see that > at least part of the Incus bone has deen destroyed. Of course, he > can't say exactly how bad it is until he gets in there.> > He wants to wait two months to give me time to quit smoking before > scheduling surgery. He said that smoking greatly reduces the sucess > rate of of any reconstruction, and since the infection has > stabilized, it is better to wait until I quit. Too

bad it takes > something like this to get me to quit!> > It seems strange that I never had any problems with my ears as a > kid. No infections, no tubes, nothing. From what I've read here, it > seems that most of the adults with this condition had problems > earlier in life. I have also never had any pain. Maybe just an > occasional full feeling. Has anyone else had a case like this?> > One last question. I checked my doctors credentials and it said that > he is board certified in Otology, Neurotology, and Skull Base > Surgery. Is this an otologist? He seems to be very qualified and I > feel very comfortable with him.> > Thanks for listening. Any comments are appreciated.> > Darin

[Guest guest]

I had my operation to remove my cholesteatoma back in 1999. When the dr asked, I told him the truth - that I still smoked - and he said I would need oxygen to clear my lungs out. At the time of the operation, the anaesthetist gave me a few lungs full of oxygen, before putting me to sleep. It's apparently so that you don't have such a bad reaction to the medicines they give you.

However, I was also informed that surveys have shown that those who smoke and drink have slower healing in matters relating to bone (and blood) as oxygen is carried around the body is lower amounts in smokers than in non-smokers.

This is the rule, though not always the case - there will be exceptions.

Kazz - now a non-smoker for the past 11 months! :-)

xx

-----Original Message-----From: ann [mailto:ann_stargazer@...]Sent: 03 December 2003 15:31cholesteatoma Subject: Re: Re: New member here

Hi,

Just some info I gleaned from one of my docs.

Before my op - i was asked all the usual questions. Two of them been - do you smoke, do you drink. I asked why they always asked me these questions. The doc said it is the anesthetic. If you don't smoke / don't drink - you will need a lighter anesthetic.

ann.Glenda Harper <mountainmama07@...> wrote:

Welcome Darin! Nice to have you aboard! I am a ctoma surviver also. I did not know smoking causes problems with the recovery. There is another lesson learned for me. I know smoking is very bad for you. But I had no idea it would interfere with recovery from the ear surgery. I am a lifer with ear problems. I love this group, there very wise! It is so nice to have this support here. -- In cholesteatoma , "Darin" <dcdalton2320@m...> wrote:> Hello everyone,> > My name is Darin. I am 29 and live in Michigan. I have recently > been diagnosed with a c-toma. I have had hearing loss in my right > ear for about two years but never went to the doctor (macho guy > thing). When I started having discharge from my ear, I got worried > and finally went to a doctor. That was about 5 weeks ago. > > My ear was pretty badly infected and was quite swollen, so the doctor > has had me use Ciprodex (antibiotic) drops, Nasonex, and vinegar and > water irrigation for about a month to calm the infection so he could > get a better look. I went back for my third visit today. The > infection has improved a lot. Part of the ear drum is gone, which > allowed my doctor to see into the middle ear a bit. He can see that > at least part of the Incus bone has deen destroyed. Of course, he > can't say exactly how bad it is until he gets in there.> > He wants to wait two months to give me time to quit smoking before > scheduling surgery. He said that smoking greatly reduces the sucess > rate of of any reconstruction, and since the infection has > stabilized, it is better to wait until I quit. Too bad it takes > something like this to get me to quit!> > It seems strange that I never had any problems with my ears as a > kid. No infections, no tubes, nothing. From what I've read here, it > seems that most of the adults with this condition had problems > earlier in life. I have also never had any pain. Maybe just an > occasional full feeling. Has anyone else had a case like this?> > One last question. I checked my doctors credentials and it said that > he is board certified in Otology, Neurotology, and Skull Base > Surgery. Is this an otologist? He seems to be very qualified and I > feel very comfortable with him.> > Thanks for listening. Any comments are appreciated.> > Darin

[Guest guest]

just a quick one on the smoking theory.....from what i remember, smoking

destroys the cilia, which are small hairs that line your mucous membranes.

these

small hairs work to move mucous along, which traps dust and other air

polutants. from what's been said before here, trying to cut down on mucous

production

is helpful, hence some people cutting out or reducing their intake of dairy

products. i would guess that if mucous isnt moving along as it should, and is

accumulating it would only hinder any ent problems/recovery.

besides which, smoking effects the lungs. it makes gaseous exchange less

effective and the heart and lungs have to work harder to compensate to keep

optimum blood oxygen levels up.

well done you for giving up, even if only in shorts bursts for the moment,

guaranteed from an anaesthetic point of view it was an advantage!

good luck.

julie

[Guest guest]

Hi Stan,

I think the tingling can happen from stenosis alone. I have

stenosis in all three levels and get foot and arm tingling.

I'm glad to hear nerve root blocks help as that is what they will

try on me next. Although I feel worse for a few days after epidural

injections.

[Guest guest]

In a message dated 2/6/04 2:46:40 PM Eastern Standard Time, safegirl@... writes:

Hi Stan,

I think the tingling can happen from stenosis alone. I have

stenosis in all three levels and get foot and arm tingling.

I'm glad to hear nerve root blocks help as that is what they will

try on me next. Although I feel worse for a few days after epidural

injections.

Hello:

Thank you for writing me! I tried epidural injections last year, but, they did me no good--they were not "specific" enough apparently.

I'm taking injections right now right into the specific L4 and L5 locations and it seems to be helping me some. These are done by an anesthesiologist.

Best,

Stan

[Guest guest]

Hi, I used to live on the Mississippi too (St. Louis). Welcome to our group.

I know, taking all these medications is not fun, but as one Doctor recently

told me, " you suffer from a chronic incurable disease. " Getting a lot of

rest does seem to help. So if you are tired, don't be afraid to rest, it will

help lower the pain. Matt

[Guest guest]

Welcome Sassykat!!!!!

One of my kitties is named Sassy btw:)

Where on the mississippi are you from? I'm from Clinton, Iowa originally

and grew up there and around Davenport.

I have Reiter's and my sister has A.S. I take remmy too.. 500 mg every 8

weeks. Also 16 mg of Metho every week and mobic... i forget how much. two

tabs a day. And Nexium for Gerd and synthroid for thyroid and celexa for

depression and Depakote and neurontin for bipolar. OH yes and folic acid

too for my liver which doeson't seem to be helping.....

Isn't it fun having fun with all these meds. I have a pretty lilac caddy.

I couldn't live without my little friend.. otherwise i would forget which

ones I have taken.

Anyway Sassy a big welcome to you and I'm glad you joined our little

family here.

HUGS:)

Liz

~~~~~~

" Happiness comes of the capacity to feel deeply, to enjoy simply, to think

freely, to risk life, and to be needed. " **Storm on**

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

EMAIL: juliette@... **ICQ 49746198** MSN-LizKP1952@...

PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK

ADDult ADD GROUP PAGE: http://members.tripod.com/~LizK/addult.htm

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Guest guest]

Thanks for the warm welcome Liz. I have a kat named " Sassy " too.

I live in St., MN where it's buried in snow right now. Yuck!

Sassykat

[Guest guest]

How is your fatigue today, Sassy?

I also am just so tired and so weak it drives me nuts. Sometimes my mind

is nimble but it is locked inside a tired body that can't function like I

want it to. I think it is something about my liver because when I had

trouble with a drug last year that had my liver enzymes up, The fatigue

was so bad I couldn't even raise my arms.

I wish I could just fly fly fly.. Like the poem says--about fleeing the

bonds of earth and rising up high to touch the hand of God.. Well I don't

want to go up quite that far. I'm not ready to die YET by a long shot.

Swimming gives me a feeling of freedom and relief from fatigue too. I wish

i had a pool in my yard....or better yet a big house witha pool in a bak

room.... I would be in it till I shriveled up like a prune. And I'd be so

skinny!!!

Liz

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" Happiness comes of the capacity to feel deeply, to enjoy simply, to think

freely, to risk life, and to be needed. " **Storm on**

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EMAIL: juliette@... **ICQ 49746198** MSN-LizKP1952@...

PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK

ADDult ADD GROUP PAGE: http://members.tripod.com/~LizK/addult.htm

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