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Hi Liz,

I just wrote to the list :-) But saw this and will answer you right quick. I feel a lot better than the other day. You are SO sweet for thinking of me. That's what I was talking about in my post you'll read. You and others are so sweet and I love you so much. I p hope you have a GREAT weekend and I'll do a couple of breaths just for you BIG :-)

{{{HUGS}}} & God bless, Bonnie

*****************************With God, ALL things are possible.*****************************

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  • 3 years later...
Guest guest

Hi Jerry,

I emailed you about 2 or 3 days ago. I must have used the old msn

addy from hotmail account. The new addy was sent by you to my

account .

Sorry.

I am close to making 'the' announcement.

I have sent you a private email.

Love ya,

Jeanetta

> Hi Jeanetta:

>

> Long time no hear

>

> Jerry

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  • 4 years later...
Guest guest

Dawn,

I'm doing about the same!! I actually go in tomorrow for a colonoscopy OH

BOY!!!! How I love drinking HalfLytely!! NOT!!! I did go see a new doctor

this last week, he is an internal med doc. He suspects that I have a

malabsorption issue. So they are testing me for celiac and some other ones,

he told me that those can cause a whole host of issues and you won't find it

unless you look for it! So I'm waiting on those tests to come back. I still

have had the fever and side pain and all the other lovely things!!

I guess I wasn't posting much cuz no one was finding much!! They do actually

know that something is up!!! Just not sure what it is that's causing it!! My

immune system is shot and they are trying to figure out why!!

Thanks for asking about me!!

I will keep you posted!!

From: achalasia [mailto:achalasia ] On Behalf

Of sickoffat

Sent: Monday, July 14, 2008 9:04 PM

achalasia

Subject: how are you?

Hey Warren-

How are you? I noticed your recent post stating that you aren't

posting much anymore.... Are you okay? Feel free to email me privately

dawnbatchelder@... <mailto:dawnbatchelder%40msn.com>

worried about you!!

Dawn

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Hi

I have been off email for a couple of days again (work has been nuts). I am so

glad you replied and I am sorry that things are still frustrating and even

sorrier that you got blasted for sharing about your troubles. I will keep

thinking about you and hoping you get some answers. I remember how vindicated I

felt when they finally diagnosed me with achalasia and I could prove to the

doubters and the skeptics that there was something the matter with me...... your

moment will come and when it does we will all cheer!!

all my best

dawn

how are you?

Hey Warren-

How are you? I noticed your recent post stating that you aren't

posting much anymore.... Are you okay? Feel free to email me privately

dawnbatchelder@...<mailto:dawnbatchelder%40msn.com>

<mailto:dawnbatchelder%40msn.com>

worried about you!!

Dawn

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Guest guest

Dawn,

Thanks!! All I can keep telling myself is " I'm not nuts, I'm not nuts, there

is something wrong " LOL!!!

Hopefully it won't be much longer!

On the E side of things.I did go to Cleveland and had a dilation done, but

I'm still having some issues in that area and I'm considering an E ectomy

when I'm healthier!!

From: achalasia [mailto:achalasia ] On Behalf

Of Dawn Batchelder

Sent: Wednesday, July 16, 2008 8:36 PM

achalasia

Subject: Re: how are you?

Hi

I have been off email for a couple of days again (work has been nuts). I am

so glad you replied and I am sorry that things are still frustrating and

even sorrier that you got blasted for sharing about your troubles. I will

keep thinking about you and hoping you get some answers. I remember how

vindicated I felt when they finally diagnosed me with achalasia and I could

prove to the doubters and the skeptics that there was something the matter

with me...... your moment will come and when it does we will all

cheer!!

all my best

dawn

how are you?

Hey Warren-

How are you? I noticed your recent post stating that you aren't

posting much anymore.... Are you okay? Feel free to email me privately

dawnbatchelder@... <mailto:dawnbatchelder%40msn.com>

<mailto:dawnbatchelder%40msn.com> <mailto:dawnbatchelder%40msn.com>

worried about you!!

Dawn

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  • 2 years later...

>

> Thinking of you and wondering how your swallowing is. Any better? Any

progress? What does your diet consist of right now? Are you going back to UPMC

for further analysis? Maybe an endoscopic dilatation is all you need?

>

> Keep us posted.

> Cara

>

Cara,

From what I see on your posts you will be getting another a new wrap done by

Dr. Luketich.If things don't work out for me I think I will probably go with the

Ectomy before I retire and lose my insurance.I'm 55 now so I'm looking at less

than 10 years and I think I would want Dr. L doing mine.That would be a major

decision and I would look at all other avenues before heading down that

road.Overall I don't think i'm in that bad of shape ,but my esophagus must be

from what Dr. Jobe says.I will find out more Tuesday.Later!

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Hey ,

I am going for my 1st myotomy. No new wrap for me. Completely the 1st time i

have ever gotten anything done except for a dilatation 14 years ago. That is why

Dr. L is even attempting to do this for me. Its because of no prior surgeries.

i wonder why Dr. Jobe thinks your E is in such bad shape? I don't recall you

saying that you suffered from Achalasia for that long? Could your E be stretched

out in a short period of time?

When you go in on Tuesday , ask some important questions about your anatomy.

Get these answers if you can:

1) The diameter of your E at the largest point.

2) Does your E turn? If so, where and how? Does it fight gravity to get food

down?

3) What is your resting LES pressure (before and after surgery)?

4) What type of wrap did you get (Dor or Toupet)?

5) What is your emptying time for the barium?

The answers to these can give a better picture of the state of your E. I

wouldn't rush into the mindset of the ectomy just yet. However, you do want to

make sure that you are in good enough health should you need it.

But you say your swalowing is bearable right now? What are you eating? Can you

get it all down? Has it improved since you first posted here?

i will pray for a good outcome on your visit Tuesday.

Cara

> >

> > Thinking of you and wondering how your swallowing is. Any better? Any

progress? What does your diet consist of right now? Are you going back to UPMC

for further analysis? Maybe an endoscopic dilatation is all you need?

> >

> > Keep us posted.

> > Cara

> >

> Cara,

> From what I see on your posts you will be getting another a new wrap done

by Dr. Luketich.If things don't work out for me I think I will probably go with

the Ectomy before I retire and lose my insurance.I'm 55 now so I'm looking at

less than 10 years and I think I would want Dr. L doing mine.That would be a

major decision and I would look at all other avenues before heading down that

road.Overall I don't think i'm in that bad of shape ,but my esophagus must be

from what Dr. Jobe says.I will find out more Tuesday.Later!

>

>

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Cara,

I thought that you had already had one myotomy for some reason.I hope it

works well for you.With Dr. L doing it you should have a fine outcome.

Dr Jobe said that my E was spiral shaped and that it was in the advanced

stages of Achalasia.It seems to still work pretty good though I think.Things

don't go down right away sometimes but it just takes a little more time.I really

don't remember when I first noticed swallowing problems.Maybe a couple of years

ago.I do want to discuss this in more detail with my Doc next week.I think maybe

he was exagerrating a little the last time, because things weren't going so well

then.Thank you for the list of Questions.I've never seen some of them.Take Care.

> > >

> > > Thinking of you and wondering how your swallowing is. Any better? Any

progress? What does your diet consist of right now? Are you going back to UPMC

for further analysis? Maybe an endoscopic dilatation is all you need?

> > >

> > > Keep us posted.

> > > Cara

> > >

> > Cara,

> > From what I see on your posts you will be getting another a new wrap

done by Dr. Luketich.If things don't work out for me I think I will probably go

with the Ectomy before I retire and lose my insurance.I'm 55 now so I'm looking

at less than 10 years and I think I would want Dr. L doing mine.That would be a

major decision and I would look at all other avenues before heading down that

road.Overall I don't think i'm in that bad of shape ,but my esophagus must be

from what Dr. Jobe says.I will find out more Tuesday.Later!

> >

> >

>

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  • 5 months later...
Guest guest

How are you?

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