Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Hi Tramav, I answered youright after your post but somehow it was not posted so I will try again. I know just what youmean by wanting some thing more specific than any of them will be good. While that is more than likely true I found I benefitte most when people were willing to share with me just how theyarrived at their final decision and luckily many did though none tried to 'sell' me on their brand. If youcare to contact me privately I will tell you how and why I selected my implnat. I was implanted last December and activated in Jan of this year and am doing extremely well. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2005 Report Share Posted May 20, 2005 Welcome! We have one listing in our database for Coventry insurance out of Nebraska. After three appeals they believed it would be 100%, but they did not update and say if that happened. The band is definitely worth it. The positives are you're child has better chance of receiving correction than without one. Untreated plagio can lead to a host of other medical conditions. The drawbacks are really nothing compared to the benefits, but if you count taking time for appointments and cleaning the band once a day a drawback you can count them. The babies adjust fairly quickly to the bands and aren't bothered by them after that. My Dominick is being treated by Cranial Technologies with a Doc Band and we have really had no drawbacks, only excellent correction so far. It was really a no choice situation for me, I was lucky enough to have the opportunity to correct his problem and took it, just as I would have casted a broken arm, or fixed a cleft palate. Let me know if you need me to walk you through the process and I will or you can e-mail me anytime. CAROLG > Hi - has anyone had any luck with Coventry Insurance? Also I would > love to hear parents feedback on if they think the helmet has been > worth it - did it really help? Are you glad you used the helmet? What > are the negatives and the positives for you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2005 Report Share Posted May 20, 2005 Welcome! We have one listing in our database for Coventry insurance out of Nebraska. After three appeals they believed it would be 100%, but they did not update and say if that happened. The band is definitely worth it. The positives are you're child has better chance of receiving correction than without one. Untreated plagio can lead to a host of other medical conditions. The drawbacks are really nothing compared to the benefits, but if you count taking time for appointments and cleaning the band once a day a drawback you can count them. The babies adjust fairly quickly to the bands and aren't bothered by them after that. My Dominick is being treated by Cranial Technologies with a Doc Band and we have really had no drawbacks, only excellent correction so far. It was really a no choice situation for me, I was lucky enough to have the opportunity to correct his problem and took it, just as I would have casted a broken arm, or fixed a cleft palate. Let me know if you need me to walk you through the process and I will or you can e-mail me anytime. CAROLG > Hi - has anyone had any luck with Coventry Insurance? Also I would > love to hear parents feedback on if they think the helmet has been > worth it - did it really help? Are you glad you used the helmet? What > are the negatives and the positives for you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2005 Report Share Posted May 20, 2005 Worth it? OMG yes! Absolutely. Every day spending six hours in the car for adjustment for about 14 mos, scrubbing the helmet every day, loss of head cuddle time, fighting w/my insurance company, having people stare at us--all more than worth it to have my daughter's head fixed and I'd do it all over again in an instant. Worrying about it and wondering if it would fix itself, if she'd have any longterm effects from untreated plagio, etc, just wasn't for me! I'd much rather take action and know I'm doing all I can to fix it. I'm not sure abuot your insurance, but we have an insurance database that you could check. Goodluck with your decision. , mom to Hannah, DOCgrad Cape Cod, Ma http://hannahsnoggin.typepad.com > Hi - has anyone had any luck with Coventry Insurance? Also I would > love to hear parents feedback on if they think the helmet has been > worth it - did it really help? Are you glad you used the helmet? What > are the negatives and the positives for you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2005 Report Share Posted May 20, 2005 Worth it? OMG yes! Absolutely. Every day spending six hours in the car for adjustment for about 14 mos, scrubbing the helmet every day, loss of head cuddle time, fighting w/my insurance company, having people stare at us--all more than worth it to have my daughter's head fixed and I'd do it all over again in an instant. Worrying about it and wondering if it would fix itself, if she'd have any longterm effects from untreated plagio, etc, just wasn't for me! I'd much rather take action and know I'm doing all I can to fix it. I'm not sure abuot your insurance, but we have an insurance database that you could check. Goodluck with your decision. , mom to Hannah, DOCgrad Cape Cod, Ma http://hannahsnoggin.typepad.com > Hi - has anyone had any luck with Coventry Insurance? Also I would > love to hear parents feedback on if they think the helmet has been > worth it - did it really help? Are you glad you used the helmet? What > are the negatives and the positives for you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2005 Report Share Posted May 20, 2005 Oh, and I forgot to answer the " did it really help " part of your question. Please look at this photo: http://img.photobucket.com/albums/v39/hannahsmom/11progress.jpg I had been repoing all along and you can see that didn't do much, but look at the difference between the second and third pictures--that was after only THREE WEEKS of banding! , mom to Hannah, DOCgrad Cape Cod, Ma http://hannahsnoggin.typepad.com > Hi - has anyone had any luck with Coventry Insurance? Also I would > love to hear parents feedback on if they think the helmet has been > worth it - did it really help? Are you glad you used the helmet? What > are the negatives and the positives for you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2005 Report Share Posted May 20, 2005 Oh, and I forgot to answer the " did it really help " part of your question. Please look at this photo: http://img.photobucket.com/albums/v39/hannahsmom/11progress.jpg I had been repoing all along and you can see that didn't do much, but look at the difference between the second and third pictures--that was after only THREE WEEKS of banding! , mom to Hannah, DOCgrad Cape Cod, Ma http://hannahsnoggin.typepad.com > Hi - has anyone had any luck with Coventry Insurance? Also I would > love to hear parents feedback on if they think the helmet has been > worth it - did it really help? Are you glad you used the helmet? What > are the negatives and the positives for you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2005 Report Share Posted May 20, 2005 Hi Yes, we'd do it all over again if we had to. The correction my son received out weighed any negatives (cleaning, people asking about it) I can think of. It does take some time to adjust to it for both parents and child, but usually it's a quick acceptance on both parts. I'd recommend doing it for anybody who asked me. Good luck, Crista-Grayslake, IL D-19 mo-brachy DOCgrad In Plagiocephaly , " jeanhoyt " <jeanhoyt@y...> wrote: > Hi - has anyone had any luck with Coventry Insurance? Also I would > love to hear parents feedback on if they think the helmet has been > worth it - did it really help? Are you glad you used the helmet? What > are the negatives and the positives for you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2005 Report Share Posted May 20, 2005 Hi Yes, we'd do it all over again if we had to. The correction my son received out weighed any negatives (cleaning, people asking about it) I can think of. It does take some time to adjust to it for both parents and child, but usually it's a quick acceptance on both parts. I'd recommend doing it for anybody who asked me. Good luck, Crista-Grayslake, IL D-19 mo-brachy DOCgrad In Plagiocephaly , " jeanhoyt " <jeanhoyt@y...> wrote: > Hi - has anyone had any luck with Coventry Insurance? Also I would > love to hear parents feedback on if they think the helmet has been > worth it - did it really help? Are you glad you used the helmet? What > are the negatives and the positives for you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2005 Report Share Posted May 20, 2005 Hi, Welcome to the group! I see you've received some really great replies already, so I won't bore you w/mine. :-) Please keep us posted. > Hi - has anyone had any luck with Coventry Insurance? Also I would > love to hear parents feedback on if they think the helmet has been > worth it - did it really help? Are you glad you used the helmet? What > are the negatives and the positives for you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2005 Report Share Posted May 20, 2005 Hi, Welcome to the group! I see you've received some really great replies already, so I won't bore you w/mine. :-) Please keep us posted. > Hi - has anyone had any luck with Coventry Insurance? Also I would > love to hear parents feedback on if they think the helmet has been > worth it - did it really help? Are you glad you used the helmet? What > are the negatives and the positives for you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 Hi, here are some ranges .... Plagio Severity: Oblique at 30 deg (US1 and US2) = Length of diagonal taken at 30° on each side (30° corresponds to the corner of the eye). The subtraction of US1 and US2 gives an indication of the asymmetry of the head. normal 0-3 mm very mild <6 mm mild - 6-10 mm moderate - 10-15 mm severe - 15+ mm Brachycephaly Severity: Cephalic Ratio = Cranial Breadth/Cranial Length ideal ratio - 78% normal - 73-83% moderate - 83.1% to 87.9% severe - 88% + Also a baby may be considered more severe if there is facial asymmetry or if the ears are off. take care. -christine mom to sydney/ 13 mo/ starband grad 10-06 > > Hi everyone. I'm new :-) > We took DS to Cranial Tech the other day because of the shape of his > head. Our ped said it was only cosmetic and we could helmet him if we > wanted but not necessary. He totally left it up to us. Because of > this, we figured getting another opinion from Cranial Tech was a good > idea. After we left there I kinda felt like the PT's and OT's there > could see room for improvement in almost everyone. I had a hard time > understanding if it was something DS really needed. > I have my measurements but I'm not sure what they mean. I was hoping > to find out what the " normal " range was to see how far off they are. > Can anyone help me out? > Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 Thanks . I'm still confused. My paper doesn't mention those readings... It says: Cranial Width Cranial Length Cephalic Index Circumference Traditional Cranial Vault Asym. Cranial Vault Asym. Mid-Face Asym. Skull-Base Asym. > > > > Hi everyone. I'm new :-) > > We took DS to Cranial Tech the other day because of the shape of his > > head. Our ped said it was only cosmetic and we could helmet him if we > > wanted but not necessary. He totally left it up to us. Because of > > this, we figured getting another opinion from Cranial Tech was a good > > idea. After we left there I kinda felt like the PT's and OT's there > > could see room for improvement in almost everyone. I had a hard time > > understanding if it was something DS really needed. > > I have my measurements but I'm not sure what they mean. I was hoping > > to find out what the " normal " range was to see how far off they are. > > Can anyone help me out? > > Thanks. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 you can use the plagio numbers for the asymmetry (Asym). the asym can be measured at various points. for the brachy measurement it would be Cranial Width / Cranial Length *100 (to get a percentage). -christine > > > > > > Hi everyone. I'm new :-) > > > We took DS to Cranial Tech the other day because of the shape of > his > > > head. Our ped said it was only cosmetic and we could helmet him > if we > > > wanted but not necessary. He totally left it up to us. Because > of > > > this, we figured getting another opinion from Cranial Tech was a > good > > > idea. After we left there I kinda felt like the PT's and OT's > there > > > could see room for improvement in almost everyone. I had a hard > time > > > understanding if it was something DS really needed. > > > I have my measurements but I'm not sure what they mean. I was > hoping > > > to find out what the " normal " range was to see how far off they > are. > > > Can anyone help me out? > > > Thanks. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 Hi ! That is so insane!!!! Do you HAVE to use their pharmacy or can you use Genentec's?! Also, if you have concerns about your " co-pay " maybe someone at SPOC can help you?! You can go to the Xolair support group www.xpansions.com or www.xolair.com to do a search for SPOC. They may be able to help you out. My co-pay is only $20 per month. I do home injections, but if I have to go back to the doc's to get the injections ( no thanks to the FDA's new black box warning) I'll have to pay an extra co pay for the injection. I think mine fall under allergy shots as well. GOOD LUCK!! --- <muirhejs@...> wrote: > Hello, > > My wife was on Xolair for about 2 months or so and > her condition > seemed to improve a fair but subjective amount. We > had to switch > insurance and we are finding out that our co-pay > will be $250 for a > 3-month supply ($83/month) or $150 for a 1-month > supply (regardless of > dosage). Our specialty pharmacy is Caremark. Not > sure what > additional costs may be for having the injections at > the doctor's > office; I think they were billed as allergy shot > injections under our > old insurance.. hopefully that won't change. > > We are trying to decide if it's worth nearly > $90/month for her to be > on Xolair. We certainly don't want her to be as > healthy as possible, > yet at the same time $90/month isn't " chump change " . > > I'd like any suggestions on how we should go about > making this decision. > > Best regards, > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 > > Hello, > > My wife was on Xolair for about 2 months or so and her condition > seemed to improve a fair but subjective amount. We had to switch > insurance and we are finding out that our co-pay will be $250 for a > 3-month supply ($83/month) or $150 for a 1-month supply (regardless of > dosage). Our specialty pharmacy is Caremark. Not sure what > additional costs may be for having the injections at the doctor's > office; I think they were billed as allergy shot injections under our > old insurance.. hopefully that won't change. > > We are trying to decide if it's worth nearly $90/month for her to be > on Xolair. We certainly don't want her to be as healthy as possible, > yet at the same time $90/month isn't " chump change " . > > I'd like any suggestions on how we should go about making this decision. > > Best regards, > > >Hi my name is Jo Ann have you asked your doctor if he will buy the drug, it just might save you money. We buy the drug for some of our patients. We check to see what will be best for the patient. We check to see what their pharmacy coverage is compared to if we buy the drug. Most of the time the patients benefit from us buying the drug with an office co payment of what ever it may be. Spoc can help with the drug co payment, it does take some time. We do have one patient that his drug is paid for 100%, and two patients that are being helped with their co payment of $250.00. I hope you can get some help. Jo Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 > > Hello, > > My wife was on Xolair for about 2 months or so and her condition > seemed to improve a fair but subjective amount. We had to switch > insurance and we are finding out that our co-pay will be $250 for a > 3-month supply ($83/month) or $150 for a 1-month supply (regardless of > dosage). Our specialty pharmacy is Caremark. Not sure what > additional costs may be for having the injections at the doctor's > office; I think they were billed as allergy shot injections under our > old insurance.. hopefully that won't change. > > We are trying to decide if it's worth nearly $90/month for her to be > on Xolair. We certainly don't want her to be as healthy as possible, > yet at the same time $90/month isn't " chump change " . > > I'd like any suggestions on how we should go about making this decision. > > Best regards, > > > , welcome to the group. Just a reminder here.... it takes some people up to a FULL year to get any results from Xolair. It took me a year and I told my doctor that I was quitting. Fortunately, he talked me into staying on it. For a while, the medical group that owns his practice stopped cooperating with my insurance. I almost had to stop taking Xolsir then because of the " CAHING " $$$$$$$$$$$$ My doctor wanted me to stay on it so much, that he helped me with the finances to get the injections. Now, I am glad I stayed the course. Just my story, Doug Group founder On Xolair for 3.5 years and practically asthma free Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 On the other hand, , count your blessings. I received a bill from the hospital for more than $10,000 for my first two injection sessions. I have yet to hear from Medicare as to whether they are covering same - I think they're in shock. Terry ----- Original Message ----- From: Sent: Tuesday, April 17, 2007 4:39 PM Subject: [ ] Trying to decide Hello, My wife was on Xolair for about 2 months or so and her condition seemed to improve a fair but subjective amount. We had to switch insurance and we are finding out that our co-pay will be $250 for a 3-month supply ($83/month) or $150 for a 1-month supply (regardless of dosage). Our specialty pharmacy is Caremark. Not sure what additional costs may be for having the injections at the doctor's office; I think they were billed as allergy shot injections under our old insurance.. hopefully that won't change. We are trying to decide if it's worth nearly $90/month for her to be on Xolair. We certainly don't want her to be as healthy as possible, yet at the same time $90/month isn't " chump change " . I'd like any suggestions on how we should go about making this decision. Best regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2007 Report Share Posted April 24, 2007 $25 per week is the amount is soundslike you will be out of pocket... I am out of pocket about $200 a month which is a lot but for me it is cheap compared to living on antibiotics and prednisone and every other drug on the market. Whilst my lung function has not improved my life has- only you and your wife can decide how bad she was and how good she is or is not whilst on xolair. Good luck! (PS I was home in australia over christmas and was told it would be $36000 per annum if I lived there, so $200 p month suddnly seemed cheap!!) -- In , " " <muirhejs@...> wrote: > > Hello, > > My wife was on Xolair for about 2 months or so and her condition > seemed to improve a fair but subjective amount. We had to switch > insurance and we are finding out that our co-pay will be $250 for a > 3-month supply ($83/month) or $150 for a 1-month supply (regardless of > dosage). Our specialty pharmacy is Caremark. Not sure what > additional costs may be for having the injections at the doctor's > office; I think they were billed as allergy shot injections under our > old insurance.. hopefully that won't change. > > We are trying to decide if it's worth nearly $90/month for her to be > on Xolair. We certainly don't want her to be as healthy as possible, > yet at the same time $90/month isn't " chump change " . > > I'd like any suggestions on how we should go about making this decision. > > Best regards, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2007 Report Share Posted April 24, 2007 My copay is $150 per month (US dollars) and it's worth every penny. I have gone from being miserable 3-4 days per week with several infections per year to feeling good most days and only about 3 infections per year. Addy Group co-owner > > > > Hello, > > > > My wife was on Xolair for about 2 months or so and her condition > > seemed to improve a fair but subjective amount. We had to switch > > insurance and we are finding out that our co-pay will be $250 for a > > 3-month supply ($83/month) or $150 for a 1-month supply (regardless of > > dosage). Our specialty pharmacy is Caremark. Not sure what > > additional costs may be for having the injections at the doctor's > > office; I think they were billed as allergy shot injections under our > > old insurance.. hopefully that won't change. > > > > We are trying to decide if it's worth nearly $90/month for her to be > > on Xolair. We certainly don't want her to be as healthy as possible, > > yet at the same time $90/month isn't " chump change " . > > > > I'd like any suggestions on how we should go about making this decision. > > > > Best regards, > > > > > > > Quote Link to comment Share on other sites More sharing options...
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