Guest guest Posted June 30, 2008 Report Share Posted June 30, 2008 I had my 2nd seizure last Monday. Was at Univ of Iowa Hosp they couldn't find anything wrong. My 1st seizure was while driving luckily a friend was with me and controlled van. No one saw this one, just found myself on the floor? Those who have read my posts know my battles with SS Dis after my spine surgeries and many other issues. Knowing I will be homeless soon and not getting a hearing with ALJ soon enough is causing these seizures I KNOW IT! The Dr SS set me up with even backed my claim?? What a way to run a railroad! Everyone has a breaking point. It might be different if I wasn't a single parent. Hope has left the room. I can't even drive if I could work! Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2008 Report Share Posted June 30, 2008 Dear Bill, I haven't been able to keep up with you lately due to constant storms knocking out my internet. sounds like you're having provoked siezures. Being in constant pain and then getting jerked around at every turn kind of short circuts your head. Like some one I heard say one time, every time I see a light at the end of a tunnel it's another train. I keep telling myself to quit the pity parties for myself and stop whinning but it's hard not too. none of us here planned or wanted to spend our lives like this. I wish I could say this has made me stronger but all it's made me is teribly aware of how much I control nothing in my life. Today after pulling a 32 hour shift this weekend, I spent thirty minutes at least making myself step up and down my back door steps trying to get it right, not a big acomplishment for some but my self expectations have dwindled down to making into the back door without falling. Today I fell right on my butt when I got out at the eye clinic and embarressed my daugther to pieces. My battle for disability is coming. I can't keep working like I have been. Sunday night I sat in the parking lot at work and cried I hurt so bad. I took way too many pain pills and can't work like that and shouldn't work like that. I'm schedualed for a new MRI the elventh and then go to my general Md the 25th and he promised to refer me to UMAS to a specilist so I'm holding on to that hope with all I've got. I'm praying I can work just a few more months to finish off my house payments. Can you or have you put a letter together about your medical conditions and battles to send into all your surrounding newspapers? Seend them to letters to the editor. I had a problem a while back and doing that paid off big time. It like I mentioned earlier even made it to nationsl news, it's worth a try. I've had three siezures which at first was passed off as migrains, but later my doctor said they were provoked siezures because of my chronic pain and stress that I've been under. Xanax and trying to work on my anger issues has helped some but I still get massive headaches. Keep raising hell somebody will eventually listen and do something. Terry > > I had my 2nd seizure last Monday. Was at Univ of Iowa Hosp they > couldn't find anything wrong. My 1st seizure was while driving luckily > a friend was with me and controlled van. No one saw this one, just > found myself on the floor? Those who have read my posts know my battles > with SS Dis after my spine surgeries and many other issues. Knowing I > will be homeless soon and not getting a hearing with ALJ soon enough is > causing these seizures I KNOW IT! The Dr SS set me up with even backed > my claim?? What a way to run a railroad! Everyone has a breaking point. > It might be different if I wasn't a single parent. Hope has left the > room. I can't even drive if I could work! Bill > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2008 Report Share Posted July 1, 2008 Terry, I have been so consumed by stuff It's hard for me to function at all. Last night was 1st night home by myself, I have been staying with " Laurie " an angel in my life! I just hope I get well enough to be able to spend what I have left with her? I kinda came to terms with my OLD pain? I can't handle any new pain! Since my 1st seizure in April my left shoulder has KILLED me. I can't hardly use my left arm. If I do it makes a terrible sound and brings tears to my eyes. I maybe slept 3 hrs last night. Even my dog was upset knowing how bad it was for me. Got a new lawyer, she is very positive about things. She said Dr. that SS set me up with to determine my dis was very helpfull in his report. She said his comments support my claim? So why didn't SS listen? They don't want to admit they screwed up the system and can't afford anymore reciepients. Is that MY fault? It was my money, right? With my mortg co hounding me and great potential for being homless I have SOME chance of an expidited hearing. With my luck, yeah right! My Senators have my file and haven't really done much. I really have thought of writting some letters, " papers " etc. We really got hit here in Iowa with the floods. My ex-father-in law Cabin got destroyed. He lives 50ft from the Cedar River, you prob heard about that river here, nasty! But he got FEMA to pay for total rebuild of his cabin in 1993. Now FEMA is going to rebuild it again!!!!!!!!!! That's my money!! Why shoud the gov't pay twice for a building that is on the river? How many chances does he have to get his mind right and move the damn thing? Sorry so long just not doing well at all. Gotta get better soon cause it's killing me, literally. Thanks for listening. Bill From: Terry <tjking71730@...> Subject: Re: 2nd Seizure spinal problems Date: Tuesday, July 1, 2008, 12:26 AM Dear Bill, I haven't been able to keep up with you lately due to constant storms knocking out my internet. sounds like you're having provoked siezures. Being in constant pain and then getting jerked around at every turn kind of short circuts your head. Like some one I heard say one time, every time I see a light at the end of a tunnel it's another train. I keep telling myself to quit the pity parties for myself and stop whinning but it's hard not too. none of us here planned or wanted to spend our lives like this. I wish I could say this has made me stronger but all it's made me is teribly aware of how much I control nothing in my life. Today after pulling a 32 hour shift this weekend, I spent thirty minutes at least making myself step up and down my back door steps trying to get it right, not a big acomplishment for some but my self expectations have dwindled down to making into the back door without falling. Today I fell right on my butt when I got out at the eye clinic and embarressed my daugther to pieces. My battle for disability is coming. I can't keep working like I have been. Sunday night I sat in the parking lot at work and cried I hurt so bad. I took way too many pain pills and can't work like that and shouldn't work like that. I'm schedualed for a new MRI the elventh and then go to my general Md the 25th and he promised to refer me to UMAS to a specilist so I'm holding on to that hope with all I've got. I'm praying I can work just a few more months to finish off my house payments. Can you or have you put a letter together about your medical conditions and battles to send into all your surrounding newspapers? Seend them to letters to the editor. I had a problem a while back and doing that paid off big time. It like I mentioned earlier even made it to nationsl news, it's worth a try. I've had three siezures which at first was passed off as migrains, but later my doctor said they were provoked siezures because of my chronic pain and stress that I've been under. Xanax and trying to work on my anger issues has helped some but I still get massive headaches. Keep raising hell somebody will eventually listen and do something. Terry > > I had my 2nd seizure last Monday. Was at Univ of Iowa Hosp they > couldn't find anything wrong. My 1st seizure was while driving luckily > a friend was with me and controlled van. No one saw this one, just > found myself on the floor? Those who have read my posts know my battles > with SS Dis after my spine surgeries and many other issues. Knowing I > will be homeless soon and not getting a hearing with ALJ soon enough is > causing these seizures I KNOW IT! The Dr SS set me up with even backed > my claim?? What a way to run a railroad! Everyone has a breaking point. > It might be different if I wasn't a single parent. Hope has left the > room. I can't even drive if I could work! Bill > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2008 Report Share Posted July 1, 2008 Dear Bill, Sounds like you could have messed up discs in your neck now. With you hearing a sound and all, it's got to be bone related. A horse tore my rotator cuff a while back and my arm hurt like heck, couldn't hardly sleep. Did you maybe fall in such a way as to twist your shoulder? But my rotar cuff didn't make any sounds other than me swearing a lot. My husband moved furniture again, LOL, so around three am this morning I got my " good " leg tripped up in the gas line to the bedroom heater. But all and all I don't know how in the world I'd make it without him. Although at 3 this am I wanted to hit him. It's funny how our animals know when we are not right. My oldest dog, I call her mommy sometimes cause she gets so concerned. I can always count on her to stay up with me the nights I'm hurting too bad to sleep. I got her at an animal shelter many years ago and she has paid me back in full many times over. I'm glad you have an angel in your life. My angels are my animals. I have a dozen cats, a horse, and my dogs. They are always very forgiving of my bad moods and love me anyway. I'm going to start walking out on the power lines in the woods with the horse this evening. Not ridiing, just me and the horse walking.I've gotten so out of shape. In the am I'm gona borrow a friends really old horse and try to ride again. At this point I can't see it making me hurt anymore than I already am. It will help with my balance and build up my thiigh muscles, that's my theory anyway. I'm going to reinstall my chat so maybe if we are up at the same time at night hurting we could compare notes. terry From: Terry <tjking71730> Subject: Re: 2nd Seizure spinedisorderssuppo rtgroup@gro ups.com Date: Tuesday, July 1, 2008, 12:26 AM Dear Bill, I haven't been able to keep up with you lately due to constant storms knocking out my internet. sounds like you're having provoked siezures. Being in constant pain and then getting jerked around at every turn kind of short circuts your head. Like some one I heard say one time, every time I see a light at the end of a tunnel it's another train. I keep telling myself to quit the pity parties for myself and stop whinning but it's hard not too. none of us here planned or wanted to spend our lives like this. I wish I could say this has made me stronger but all it's made me is teribly aware of how much I control nothing in my life. Today after pulling a 32 hour shift this weekend, I spent thirty minutes at least making myself step up and down my back door steps trying to get it right, not a big acomplishment for some but my self expectations have dwindled down to making into the back door without falling. Today I fell right on my butt when I got out at the eye clinic and embarressed my daugther to pieces. My battle for disability is coming. I can't keep working like I have been. Sunday night I sat in the parking lot at work and cried I hurt so bad. I took way too many pain pills and can't work like that and shouldn't work like that. I'm schedualed for a new MRI the elventh and then go to my general Md the 25th and he promised to refer me to UMAS to a specilist so I'm holding on to that hope with all I've got. I'm praying I can work just a few more months to finish off my house payments. Can you or have you put a letter together about your medical conditions and battles to send into all your surrounding newspapers? Seend them to letters to the editor. I had a problem a while back and doing that paid off big time. It like I mentioned earlier even made it to nationsl news, it's worth a try. I've had three siezures which at first was passed off as migrains, but later my doctor said they were provoked siezures because of my chronic pain and stress that I've been under. Xanax and trying to work on my anger issues has helped some but I still get massive headaches. Keep raising hell somebody will eventually listen and do something. Terry > > I had my 2nd seizure last Monday. Was at Univ of Iowa Hosp they > couldn't find anything wrong. My 1st seizure was while driving luckily > a friend was with me and controlled van. No one saw this one, just > found myself on the floor? Those who have read my posts know my battles > with SS Dis after my spine surgeries and many other issues. Knowing I > will be homeless soon and not getting a hearing with ALJ soon enough is > causing these seizures I KNOW IT! The Dr SS set me up with even backed > my claim?? What a way to run a railroad! Everyone has a breaking point. > It might be different if I wasn't a single parent. Hope has left the > room. I can't even drive if I could work! Bill > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 Bill, How's it going? Leaving town for the day and though about you. Any news about your SS Dis? Terry -- In spinal problems , " bhut_52761 " <bhut_52761@...> wrote: > > I had my 2nd seizure last Monday. Was at Univ of Iowa Hosp they > couldn't find anything wrong. My 1st seizure was while driving luckily > a friend was with me and controlled van. No one saw this one, just > found myself on the floor? Those who have read my posts know my battles > with SS Dis after my spine surgeries and many other issues. Knowing I > will be homeless soon and not getting a hearing with ALJ soon enough is > causing these seizures I KNOW IT! The Dr SS set me up with even backed > my claim?? What a way to run a railroad! Everyone has a breaking point. > It might be different if I wasn't a single parent. Hope has left the > room. I can't even drive if I could work! Bill > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 None yet, I got a letter from new lawyer sounds positive for expedited hearing?? Sent emails to Senators Tuesday and no answer yet does not surprise me, both running for re-election this time around. Maybe I could use that as leverage. Threaten to go to the media about there non-action and response and not caring about the people. Especially ones to become homeless due to no fault of their own?? Thanks for keeping in touch! Bill > > I had my 2nd seizure last Monday. Was at Univ of Iowa Hosp they > couldn't find anything wrong. My 1st seizure was while driving luckily > a friend was with me and controlled van. No one saw this one, just > found myself on the floor? Those who have read my posts know my battles > with SS Dis after my spine surgeries and many other issues. Knowing I > will be homeless soon and not getting a hearing with ALJ soon enough is > causing these seizures I KNOW IT! The Dr SS set me up with even backed > my claim?? What a way to run a railroad! Everyone has a breaking point. > It might be different if I wasn't a single parent. Hope has left the > room. I can't even drive if I could work! Bill > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 Bill, Lawmakers and politicans ae like children, don't threaten, just do it. They hear threats all the time. Write a letter to your local editor, along with all the important dates and events, then send it in. Mail that newspaper clipping to your represenative. Then keep on and on. You can do it, GET EM. Terry > > I had my 2nd seizure last Monday. Was at Univ of Iowa Hosp they > couldn't find anything wrong. My 1st seizure was while driving luckily > a friend was with me and controlled van. No one saw this one, just > found myself on the floor? Those who have read my posts know my battles > with SS Dis after my spine surgeries and many other issues. Knowing I > will be homeless soon and not getting a hearing with ALJ soon enough is > causing these seizures I KNOW IT! The Dr SS set me up with even backed > my claim?? What a way to run a railroad! Everyone has a breaking point. > It might be different if I wasn't a single parent. Hope has left the > room. I can't even drive if I could work! Bill > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 Terry's right, it's the only way to get anything done anymore. Since they are up for re-election, they will be anxious to be seen stepping in to help one of their constituents. Too bad it has to go this way but you do what you have to do. Getting the help you need is far more important than playing nice or being courteous. They certainly won't be homeless even if they lose their government seats! You gotta keep perspective here Bill. Re: Re: 2nd Seizure Bill, Lawmakers and politicans ae like children, don't threaten, just do it. They hear threats all the time. Write a letter to your local editor, along with all the important dates and events, then send it in. Mail that newspaper clipping to your represenative. Then keep on and on. You can do it, GET EM. Terry > > I had my 2nd seizure last Monday. Was at Univ of Iowa Hosp they > couldn't find anything wrong. My 1st seizure was while driving luckily > a friend was with me and controlled van. No one saw this one, just > found myself on the floor? Those who have read my posts know my battles > with SS Dis after my spine surgeries and many other issues. Knowing I > will be homeless soon and not getting a hearing with ALJ soon enough is > causing these seizures I KNOW IT! The Dr SS set me up with even backed > my claim?? What a way to run a railroad! Everyone has a breaking point. > It might be different if I wasn't a single parent. Hope has left the > room. I can't even drive if I could work! Bill > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 I should but I have to determine how much fight I have left in me? I need to use what I have left for the most bang for my pain, if ya know what I mean? It's to the point I can't even open my mail hardly. Bill > > I had my 2nd seizure last Monday. Was at Univ of Iowa Hosp they > couldn't find anything wrong. My 1st seizure was while driving luckily > a friend was with me and controlled van. No one saw this one, just > found myself on the floor? Those who have read my posts know my battles > with SS Dis after my spine surgeries and many other issues. Knowing I > will be homeless soon and not getting a hearing with ALJ soon enough is > causing these seizures I KNOW IT! The Dr SS set me up with even backed > my claim?? What a way to run a railroad! Everyone has a breaking point. > It might be different if I wasn't a single parent. Hope has left the > room. I can't even drive if I could work! Bill > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 Bill, Send me a copy and I'll print it out and put it in my local paper and in a couple of Arkansas' major papers. The last thing your state wants is their bussiness getting out in the streets so to speak, lets get em together. Terry > > I had my 2nd seizure last Monday. Was at Univ of Iowa Hosp they > couldn't find anything wrong. My 1st seizure was while driving luckily > a friend was with me and controlled van. No one saw this one, just > found myself on the floor? Those who have read my posts know my battles > with SS Dis after my spine surgeries and many other issues. Knowing I > will be homeless soon and not getting a hearing with ALJ soon enough is > causing these seizures I KNOW IT! The Dr SS set me up with even backed > my claim?? What a way to run a railroad! Everyone has a breaking point. > It might be different if I wasn't a single parent. Hope has left the > room. I can't even drive if I could work! Bill > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 Upload your letter on here to file and I'll print it out, lets air their dirty laundry and see how they like it. A picture of you and your child and dog would be nice too. The public needs to see the human being whose life is hanging in limbo. Terry > > I had my 2nd seizure last Monday. Was at Univ of Iowa Hosp they > couldn't find anything wrong. My 1st seizure was while driving luckily > a friend was with me and controlled van. No one saw this one, just > found myself on the floor? Those who have read my posts know my battles > with SS Dis after my spine surgeries and many other issues. Knowing I > will be homeless soon and not getting a hearing with ALJ soon enough is > causing these seizures I KNOW IT! The Dr SS set me up with even backed > my claim?? What a way to run a railroad! Everyone has a breaking point. > It might be different if I wasn't a single parent. Hope has left the > room. I can't even drive if I could work! Bill > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 Terry & , thanks I think I really need to go this route. Terry I will in the next couple days get a comprehensive letter together and send it to you. I want to tie in all the flooding up here in Iowa. So many people homeless from the flood and FED money pouring in to help. I guess I'm no different I couldn't prevent my back surgeries, blood clots, arthritus, seizures etc. Anymore than flood victims could not control or avoid mother nature? How was Arkansas with all the water we sent to you? Bill > > I had my 2nd seizure last Monday. Was at Univ of Iowa Hosp they > couldn't find anything wrong. My 1st seizure was while driving luckily > a friend was with me and controlled van. No one saw this one, just > found myself on the floor? Those who have read my posts know my battles > with SS Dis after my spine surgeries and many other issues. Knowing I > will be homeless soon and not getting a hearing with ALJ soon enough is > causing these seizures I KNOW IT! The Dr SS set me up with even backed > my claim?? What a way to run a railroad! Everyone has a breaking point. > It might be different if I wasn't a single parent. Hope has left the > room. I can't even drive if I could work! Bill > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 Dear Bill, We made it fine here in Arkansas. I feel your compassion for the homeless due to the flooding but...Bill, you and hopefully many in this group are going into a battle for you. Focus only on you. I love a good fight and beleive me, I live to start fires under polticians. We must only focus on your plight. I'm sorry about the homeless from the floods but there are agencies to care for them, lets take care of you. People know about the flood victims and we can't come off like we begrude them anything, and of course we don't but if you tie in your story with the flooding, it will be a distraction from the mission. Like in one of those old cops...I want the facts and only the facts. When did this start, who have you talked to, what is exactly your medical condition, and how has it affected your child and yourself. We can't tie this in with anything or anyone but you, o.k.? I want you taken care of. I want america to know you and the run around your getting while you're loosing everything you have. This is a fight for us all really. Bill, just give me a time line of events, who when where and when. Tell me about the daily stuggles you face personally, emotionally, spiritually, finacially, the works, o.k. Write it from your heart but remeber there are a thousand and one sob stories out there, I want your to stand out and with the help of a few in this group, you will have your day. Like I said, I love to start a fire, I'm not good with putting one out, that somebody elses job. Try to get me something togther by Monday. I'm hitting the floor at work for a 32 hour shift Sat. Please, I don't think the money spent on the flood will be relevent in this war. I know it sucks that they keep rebuilding houses for people that won't move out of the flood zones but everyone else knows it too, but they need to know you and about you alone. LETS GET EM! Terry -- In spinal problems , bill hutton <bhut_52761@...> wrote: > > Terry & , thanks I think I really need to go this route. Terry I will in the next couple days get a comprehensive letter together and send it to you. I want to tie in all the flooding up here in Iowa. So many people homeless from the flood and FED money pouring in to help. I guess I'm no different I couldn't prevent my back surgeries, blood clots, arthritus, seizures etc. Anymore than flood victims could not control or avoid mother nature? How was Arkansas with all the water we sent to you? > Bill > > > > > I had my 2nd seizure last Monday. Was at Univ of Iowa Hosp they > > couldn't find anything wrong. My 1st seizure was while driving > luckily > > a friend was with me and controlled van. No one saw this one, just > > found myself on the floor? Those who have read my posts know my > battles > > with SS Dis after my spine surgeries and many other issues. > Knowing I > > will be homeless soon and not getting a hearing with ALJ soon > enough is > > causing these seizures I KNOW IT! The Dr SS set me up with even > backed > > my claim?? What a way to run a railroad! Everyone has a breaking > point. > > It might be different if I wasn't a single parent. Hope has left > the > > room. I can't even drive if I could work! Bill > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2008 Report Share Posted July 22, 2008 Terry, today and yesterday I sent my Senator all my stuff. A Dr statement that my return to work was an unknown timeframe. The mortgage company letter telling me I could lose my home. That I'm 2 months behind now and next month they will demand payment. The senators office thinks they can get an emergency hearing soon to save my house? I threatened to go to the media if I didn't get some movement on this issue. You have helped me find a little fight that was left in me. I stopped taking the dilantin, I was depressed and really close to ending it all. Some people don't understnd that kind of statement, but over 5 yrs of constant pain and no chance of winning the war can do that to a person. All my tests for seizures were negative, catscan, mri, eeg. So I'm playing DR and not taking anything for them. I'm positive that once I get some stress relief they will stop? I'm not going to have my neck fused but I will have surgery on my left shoulder so I can at least get back to my normal pain. You and all on this board have kept me alive the last many months. I don't know if I have helped anyone else but I pray I have. I just want to live out what I have left and be able to control my pain as best that I can. Nothing more nothing less. I'm 50 and at times I feel a hundred. I'm so glad you are able to do as much as you can! I know that feeling needed and useful is a huge lift in our situations. I spent time with my grandson tonight and that alone gave me an escape for awhile. God bless and thanks again!!! Bill > > > > I had my 2nd seizure last Monday. Was at Univ of Iowa Hosp they > > couldn't find anything wrong. My 1st seizure was while driving > luckily > > a friend was with me and controlled van. No one saw this one, just > > found myself on the floor? Those who have read my posts know my > battles > > with SS Dis after my spine surgeries and many other issues. > Knowing I > > will be homeless soon and not getting a hearing with ALJ soon > enough is > > causing these seizures I KNOW IT! The Dr SS set me up with even > backed > > my claim?? What a way to run a railroad! Everyone has a breaking > point. > > It might be different if I wasn't a single parent. Hope has left > the > > room. I can't even drive if I could work! Bill > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2008 Report Share Posted July 22, 2008 God Bless You Bill! I'm glad you have found a bit of fight in you. As chronic pain sufferers, we should be able to live out the rest of our days with the least amount of pain as possible. I believe that they should pull out all the stops...we should at least be comfortable. I have a long road ahead of me and I'm frightened that I will spend the rest of my life in agony, without good meds from the pain docs. I'm 30 years old and having surgery #6 in less than 2 weeks. I have been dealing with this pain for 15 years now, since I was 15 years old! I almost don't remember what it feels like to feel...nothing. No pain. I just graduated college almost 4 years ago now, after I finally got the guts to leave my abusive husband. I was 24 with three kids under the age of 5. It was the bravest thing I ever did and it was so hard going through college during those circumstances. now, I don't know that I'll ever be able to do my favorite job, which I still have many years left to pay off. The docs tell me there is nothing else to do for me. I have to try to get through perhaps the next 60 years with this back! How can I? I won't make it. This back will kill me. --- Re: Re: 2nd Seizure Terry, today and yesterday I sent my Senator all my stuff. A Dr statement that my return to work was an unknown timeframe. The mortgage company letter telling me I could lose my home. That I'm 2 months behind now and next month they will demand payment. The senators office thinks they can get an emergency hearing soon to save my house? I threatened to go to the media if I didn't get some movement on this issue. You have helped me find a little fight that was left in me. I stopped taking the dilantin, I was depressed and really close to ending it all. Some people don't understnd that kind of statement, but over 5 yrs of constant pain and no chance of winning the war can do that to a person. All my tests for seizures were negative, catscan, mri, eeg. So I'm playing DR and not taking anything for them. I'm positive that once I get some stress relief they will stop? I'm not going to have my neck fused but I will have surgery on my left shoulder so I can at least get back to my normal pain. You and all on this board have kept me alive the last many months. I don't know if I have helped anyone else but I pray I have. I just want to live out what I have left and be able to control my pain as best that I can. Nothing more nothing less. I'm 50 and at times I feel a hundred. I'm so glad you are able to do as much as you can! I know that feeling needed and useful is a huge lift in our situations. I spent time with my grandson tonight and that alone gave me an escape for awhile. God bless and thanks again!!! Bill > > > > I had my 2nd seizure last Monday. Was at Univ of Iowa Hosp they > > couldn't find anything wrong. My 1st seizure was while driving > luckily > > a friend was with me and controlled van. No one saw this one, just > > found myself on the floor? Those who have read my posts know my > battles > > with SS Dis after my spine surgeries and many other issues. > Knowing I > > will be homeless soon and not getting a hearing with ALJ soon > enough is > > causing these seizures I KNOW IT! The Dr SS set me up with even > backed > > my claim?? What a way to run a railroad! Everyone has a breaking > point. > > It might be different if I wasn't a single parent. Hope has left > the > > room. I can't even drive if I could work! Bill > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2008 Report Share Posted July 23, 2008 Hey ! I've been living with chronic pain in my back since 1989. It's very difficult to live thru and I wish that I could tell you that it gets better as far as the pain goes, but so far I can't truthfully tell you that. Surgery is no longer an option for me according to the doctors that I've consulted. I do believe that chronic pain would be much easier to deal with if doctors were not afraid to address the issue of pain. I've been told that I should not be having the pain that I have, of course, that was prior to MRI's that told them a different story! hee hee hee! They are still afraid to provide the meds that are needed to relieve or at least take the edge off!!! I'm happy with the edge off and would be ecstatic with no pain! Will be thinking about you during your next surgery. > > God Bless You Bill! I'm glad you have found a bit of fight in you. As chronic pain sufferers, we should be able to live out the rest of our days with the least amount of pain as possible. I believe that they should pull out all the stops...we should at least be comfortable. I have a long road ahead of me and I'm frightened that I will spend the rest of my life in agony, without good meds from the pain docs. > I'm 30 years old and having surgery #6 in less than 2 weeks. I have been dealing with this pain for 15 years now, since I was 15 years old! I almost don't remember what it feels like to feel...nothing. No pain. I just graduated college almost 4 years ago now, after I finally got the guts to leave my abusive husband. I was 24 with three kids under the age of 5. It was the bravest thing I ever did and it was so hard going through college during those circumstances. now, I don't know that I'll ever be able to do my favorite job, which I still have many years left to pay off. > The docs tell me there is nothing else to do for me. I have to try to get through perhaps the next 60 years with this back! How can I? I won't make it. This back will kill me. > --- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2008 Report Share Posted July 23, 2008 , during this whole time (till late 2005) I was married to an abusive woman. I know that women are not percieved as abusive , but she sure was. She attacked our oldest, hitting and choking and talk about control and narsassistic! She still tries to control me by anger even to this day. She sent me a pix message of her wedding dress burning on what would have been our 25th anniv. Along with a nasty note? Like I care? Leaving was a start to healing for you I'm sure. Maybe it doesn't seem that way now but it will, I promise! I was runover by a large farm machine when I was a teenager. I know this was the start of my back trouble. I have fought a bad back all my adult life. Now that I'm older I can't mend and recover like I used to, or at all? I'm lucky my Doc broke his back as a teen and isn't afraid to RX pain meds. I take Tramodol and up to 25 mg of hydrocodone a day, and have for years. It still takes the sharpness out of things. If I had not had that I'm not sure where I would be today? When I have gone to the emergency room for seizures etc They ask what meds I'm taking, when I say hyrdo one said " I wont write for that " I told her, a nuerologist that I didn't give a shit I just refilled my RX. They all think we are liars and drug seekers. I also told her the NON NARCOTIC tramodol seems to help more than the narcotic. Hang in there and try and be positive, I know it's hard. Hug the kids, I know that helps me. Bill From: L. <boom77boom@...> Subject: Re: 2nd Seizure spinal problems Date: Wednesday, July 23, 2008, 7:35 PM Hey ! I've been living with chronic pain in my back since 1989. It's very difficult to live thru and I wish that I could tell you that it gets better as far as the pain goes, but so far I can't truthfully tell you that. Surgery is no longer an option for me according to the doctors that I've consulted. I do believe that chronic pain would be much easier to deal with if doctors were not afraid to address the issue of pain. I've been told that I should not be having the pain that I have, of course, that was prior to MRI's that told them a different story! hee hee hee! They are still afraid to provide the meds that are needed to relieve or at least take the edge off!!! I'm happy with the edge off and would be ecstatic with no pain! Will be thinking about you during your next surgery. > > God Bless You Bill! I'm glad you have found a bit of fight in you. As chronic pain sufferers, we should be able to live out the rest of our days with the least amount of pain as possible. I believe that they should pull out all the stops...we should at least be comfortable. I have a long road ahead of me and I'm frightened that I will spend the rest of my life in agony, without good meds from the pain docs. > I'm 30 years old and having surgery #6 in less than 2 weeks. I have been dealing with this pain for 15 years now, since I was 15 years old! I almost don't remember what it feels like to feel...nothing. No pain. I just graduated college almost 4 years ago now, after I finally got the guts to leave my abusive husband. I was 24 with three kids under the age of 5. It was the bravest thing I ever did and it was so hard going through college during those circumstances. now, I don't know that I'll ever be able to do my favorite job, which I still have many years left to pay off. > The docs tell me there is nothing else to do for me. I have to try to get through perhaps the next 60 years with this back! How can I? I won't make it. This back will kill me. > --- > > > Quote Link to comment Share on other sites More sharing options...
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