RE: There is HOPE!

[Guest guest]

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What wonderful news! I hope has indeed "outgrown" the jra. If not, I hope she enjoys a very long remission.

Diane (, 4, pauci)

[Guest guest]

Hi :

What wonderful news. I pray the doctors are right and she has outgrown the

disease, what a blessing! I hope she continues to do well and enjoys

cheerleading.

Take care.

Patty

[Guest guest]

That is awesome news!! Thank you for sharing with us. It is great to see that there may indeed be a light at the end of the long tunnel!!

Therese

There is hope!

Hello everyone!Although I don't post often, I do read every email and I feel like you all are a part of my life. For those of you who don't know me, I am mom to , 10 yrs. old and dx at 3 yrs. old with systemic. There were times I thought I would lose my mind but having the support from this group has been unbelievable! has been in remission for quiet some time and has been doing so good. For the first time in her life, she is able to participate in things that she was never able to do (she just joined cheerleading). This past Friday she went to the rheumy for a routine visit. The doctor informed us that it looks as if is "outgrowing" the disease. Her pain is gone, no rashes, no fatigue and the labs are "perfect". I believe the battle is over and we have won.There's a 1:3 ratio that the disease could come back, but the rheumy said that she really doubts that it would. Needless to say, is so happy and we are so happy for her. Just as your children, she has had to go through so much and as a mom it has been hard to watch her go through all of the things that she has. I'm so proud of her.I want to say thanks to all of you for your support and for being with me through some real difficult times. Georgina, thank you for heading up this group...it's a life line. I wish the best for all of these kids...they are such fighters!Sincerely,

[Guest guest]

,

I'm glad to hear you are doing so well. I hope you are able to get rid of ALL

the numbness and tingling. The surgeons I work with who have also treated me say

that exercize and keeping a strong core is so widely underestimated in keeping

back pain at bay. A few of the surgeons have bad backs themselves and have had

surgery. They all swim and keep fit, keep their weight down and don't do stupid

things that risk reinjury. With your current outlook, I'd say you have a pretty

good chance at not becoming riddled with pain the rest of your life...IF you

continue to take care of your body. They say you have to do the physical therapy

exercises the rest of your life...not just during recovery.

I am curious about this MP3 player you have. How do the headphones work without

getting soggy?

--

There is HOPE!

I just thought I would publish something positive. I am 53 and have

had 3 surgeries. This last disc herniation really knocked the wind out

of my sails since it went past pain to a lot of numbness and weakness.

Needless to say, like many people going through these types of

injuries, I was depressed and could not see the light at the end of

this tunnel. It has been about two months since my surgery. I have

gotten a lot of my feeling back but certainly not all. I have been

pushing myself to exercise " safely " which means mostly in water and

doing walks. I was just recently given the green light to do some

light bicycle riding. I am certainly not without pain and weakness in

my left leg but it is SLOWLY getting better. Part of it is just

accepting what I have and working with it. Of course, I would like to

feel all my foot and back of my leg and wish it never happened but the

reality is it did an so I am learning to move on and try to get the

other muscles to pick up the slack. I finally am finding some joy in

life which I wasn't sure I ever was going to again. One side note..

since I swim almost every day now. .I found a very cool water proof MP3

player on the web so now when I ocean swim I can listen to music. In

the water I almost feel " normal " and the sound quality is great! If

you want more information on the unit I purchase just email me.

Stay Well and there is Hope!

-

[Guest guest]

,

I got my MP3 player from swim2000.com and the model number was " Waterproof MP3

Player Dolphin " . The ear plugs are specially designed of a soft plastic so they

serve two functions.. keep the water out of your ears and transmit the sound.

Yes, I know I will have to stay in shape. Besides all my neurological

deficits I am probably in very good shape. My weight is low, my core strong and

I have good cardio. The one area I am really weak and need to work on is

" stretching " . My hamstrings are so tight and every time I stretch them it

irritates the nerve, so I have to do it a little at a time.

Stay Well

-

spinal problems@...: tpowell1977@...:

Tue, 22 Jul 2008 20:37:02 -0700Subject: Re: There is

HOPE!

,I'm glad to hear you are doing so well. I hope you are able to get rid of

ALL the numbness and tingling. The surgeons I work with who have also treated me

say that exercize and keeping a strong core is so widely underestimated in

keeping back pain at bay. A few of the surgeons have bad backs themselves and

have had surgery. They all swim and keep fit, keep their weight down and don't

do stupid things that risk reinjury. With your current outlook, I'd say you have

a pretty good chance at not becoming riddled with pain the rest of your

life...IF you continue to take care of your body. They say you have to do the

physical therapy exercises the rest of your life...not just during recovery.I am

curious about this MP3 player you have. How do the headphones work without

getting soggy?-- There is HOPE!I

just thought I would publish something positive. I am 53 and have had 3

surgeries. This last disc herniation really knocked the wind out of my sails

since it went past pain to a lot of numbness and weakness. Needless to say, like

many people going through these types of injuries, I was depressed and could not

see the light at the end of this tunnel. It has been about two months since my

surgery. I have gotten a lot of my feeling back but certainly not all. I have

been pushing myself to exercise " safely " which means mostly in water and doing

walks. I was just recently given the green light to do some light bicycle

riding. I am certainly not without pain and weakness in my left leg but it is

SLOWLY getting better. Part of it is just accepting what I have and working with

it. Of course, I would like to feel all my foot and back of my leg and wish it

never happened but the reality is it did an so I am learning to move on and try

to get the other muscles to pick up the slack. I finally am finding some joy in

life which I wasn't sure I ever was going to again. One side note.. since I swim

almost every day now. .I found a very cool water proof MP3 player on the web so

now when I ocean swim I can listen to music. In the water I almost feel " normal "

and the sound quality is great! If you want more information on the unit I

purchase just email me.Stay Well and there is Hope!-[Non-text portions of

this message have been removed]

[Guest guest]

I look forward to your entries as they are always positive.

Im glad you are able to swim and bicycle now.

very glad you have the strenght to keep pushing.

wendy

There is HOPE!

I just thought I would publish something positive. I am 53 and have

had 3 surgeries. This last disc herniation really knocked the wind out

of my sails since it went past pain to a lot of numbness and weakness.

Needless to say, like many people going through these types of

injuries, I was depressed and could not see the light at the end of

this tunnel. It has been about two months since my surgery. I have

gotten a lot of my feeling back but certainly not all. I have been

pushing myself to exercise " safely " which means mostly in water and

doing walks. I was just recently given the green light to do some

light bicycle riding. I am certainly not without pain and weakness in

my left leg but it is SLOWLY getting better. Part of it is just

accepting what I have and working with it. Of course, I would like to

feel all my foot and back of my leg and wish it never happened but the

reality is it did an so I am learning to move on and try to get the

other muscles to pick up the slack. I finally am finding some joy in

life which I wasn't sure I ever was going to again. One side note..

since I swim almost every day now. .I found a very cool water proof MP3

player on the web so now when I ocean swim I can listen to music. In

the water I almost feel " normal " and the sound quality is great! If

you want more information on the unit I purchase just email me.

Stay Well and there is Hope!

-

[Guest guest]

I have that same issue with my hamstrings too! Stretching them hurts so bad!

After my last surgery when I was in PT, I started working on stretching it

out...it was the most painful aspect of rehab. I was doing it in the pool a lot

and during the day whenever I thought of it. My PT said that scar tissue forms

around the nerve and when you flex or stretch it doesn't allow the nerve to

stretch or " glide " . They had me doing " nerve gliding " exercizes. They helped a

little, but it was never not painful. Once I went back to work and stopped PT, I

never did it again and I have no flexibility at all.

I was so tired from working and then working in pain...I never started my gym

regime back up and I have no muscle tome now, nor do I have any core strength.

I've found that the longer you go without  the exercize, the more pain you are

in and the excuse that you can't work out because you are sore, really becomes

the truth. Now I hurt so bad I can't do much at all! I hate myself for getting

so far gone.

I'm glad you are in such good shape. It will save you so much pain and may well

help you avoid another surgery. It makes me sad when I see so many people with

bad backs and they don't take their physical condition seriously, as I know it

makes all the difference in the world!

---

There is HOPE!I just thought I would publish

something positive. I am 53 and have had 3 surgeries. This last disc herniation

really knocked the wind out of my sails since it went past pain to a lot of

numbness and weakness. Needless to say, like many people going through these

types of injuries, I was depressed and could not see the light at the end of

this tunnel. It has been about two months since my surgery. I have gotten a lot

of my feeling back but certainly not all. I have been pushing myself to exercise

" safely " which means mostly in water and doing walks. I was just recently given

the green light to do some light bicycle riding. I am certainly not without pain

and weakness in my left leg but it is SLOWLY getting better. Part of it is just

accepting what I have and working with it. Of course, I would like to feel all

my foot and back of my leg and wish it never happened but the reality is it did

an so I am learning to

move on and try to get the other muscles to pick up the slack. I finally am

finding some joy in life which I wasn't sure I ever was going to again. One side

note.. since I swim almost every day now. .I found a very cool water proof MP3

player on the web so now when I ocean swim I can listen to music. In the water I

almost feel " normal " and the sound quality is great! If you want more

information on the unit I purchase just email me.Stay Well and there is

Hope!-[Non- text portions of this message have been removed]