Arachnoiditis

[Guest guest]

Inflammation can be reduced remarkably with BlockBuster All Clear

metabolic enzymes. I chose to represent it; here's my site:

http://www.goodhealth.nu/us/1400

Compare BlockBuster All Clear ingredients to any other enzyme

blend on the market:

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Also, injecting ozone along the spinal cord should help, like 80%

relief; sorry I don't know who does it, probably a naturopath.

Duncan

On 28 Dec 2006 at 9:20, Coconut Oil

wrote:

> arachnoiditis

[Guest guest]

I have met so many people with this disease. I have had 5 back surgeries. I am

60 and it all started when I was 20 so it's been 40 years of hell. I am pain

free 99% of the time and I feel so guilty sometimes because I don't have the

pain that some people have. I had 3 daughters all natural and when the last one

was only 5 months old I had my first surgery. Mine came from a back injury

although I have never been able to determine what happened to me.I really feel

for everyone here I know it's not a party.

Janice

arachnoiditis

Hi Janice. You took the words right out of my mouth. I was wondering the same

thing just the other day and planned on posting the same question. Although I

did have surgery on my cervical spine about 17 years ago the arachnoiditis is in

the lumbar spine. I suspect it is a result of the two epidurals I had during

childbirth 20 and 22 years ago, luckily I had my first child the good old

fashioned way, natural, the way God intended. Unfortunately I read of a lot of

women on these sites in the same boat but who knew? I met a gal on the Life with

Arachnoiditis group on Facebook that is going to sue her doctor regarding the

epidurals given during childbirth, I have no interest in going down that road.

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23:34:00

[Guest guest]

I had the first of 3 surgeries 11 years ago. Yesterday was the 11th

anniversary of my 2nd. I am so lost at this point. Physically things just

continue down hill although I have learned to not let it be very consuming I

am sure getting tired of this. When I was given an epidural for my youngest'

birth (almost 18 yrs ago) it wouldn't take, just in spotty places. Mine

could have come from a number of things.

On Fri, Nov 12, 2010 at 7:08 AM, Janice <faraway1@...> wrote:

>

>

> I have met so many people with this disease. I have had 5 back surgeries. I

> am 60 and it all started when I was 20 so it's been 40 years of hell. I am

> pain free 99% of the time and I feel so guilty sometimes because I don't

> have the pain that some people have. I had 3 daughters all natural and when

> the last one was only 5 months old I had my first surgery. Mine came from a

> back injury although I have never been able to determine what happened to

> me.I really feel for everyone here I know it's not a party.

> Janice

>

> arachnoiditis

>

> Hi Janice. You took the words right out of my mouth. I was wondering the

> same thing just the other day and planned on posting the same question.

> Although I did have surgery on my cervical spine about 17 years ago the

> arachnoiditis is in the lumbar spine. I suspect it is a result of the two

> epidurals I had during childbirth 20 and 22 years ago, luckily I had my

> first child the good old fashioned way, natural, the way God intended.

> Unfortunately I read of a lot of women on these sites in the same boat but

> who knew? I met a gal on the Life with Arachnoiditis group on Facebook that

> is going to sue her doctor regarding the epidurals given during childbirth,

> I have no interest in going down that road.

>

> ----------------------------------------------------------

>

> No virus found in this incoming message.

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> 23:34:00

>

>

[Guest guest]

Sometimes we don't know why it happens to us I must have asked God a million

times " why me Lord " but I can't get an answer. For uncontrolled pain you

need to see a good pain doctor. There out there but you may have to look

hard to find the right one. No one has to suffer undullable pain any more.

It can be controlled. I have had some wonderful pain doctors every where I

have lived over the years. I make an appointmenta dn I go in and tell the

doctor up front I dont' want any drugs that day what I want is to interview

him/her.I make sure they will honor my wishes without a fight. I will not

allow any one to put another needle in my spine nor do I need more surgery I

want pain relief and if we can't agree then I go elsewhere until I find the

doctor that is going to be right for me. Try it as I have had 100% success.

Janice

arachnoiditis

>>

>> Hi Janice. You took the words right out of my mouth. I was wondering the

>> same thing just the other day and planned on posting the same question.

>> Although I did have surgery on my cervical spine about 17 years ago the

>> arachnoiditis is in the lumbar spine. I suspect it is a result of the two

>> epidurals I had during childbirth 20 and 22 years ago, luckily I had my

>> first child the good old fashioned way, natural, the way God intended.

>> Unfortunately I read of a lot of women on these sites in the same boat

>> but

>> who knew? I met a gal on the Life with Arachnoiditis group on Facebook

>> that

>> is going to sue her doctor regarding the epidurals given during

>> childbirth,

>> I have no interest in going down that road.

>>

>> ----------------------------------------------------------

>>

>> No virus found in this incoming message.

>> Checked by AVG - www.avg.com

>> Version: 9.0.869 / Virus Database: 271.1.1/3250 - Release Date: 11/10/10

>> 23:34:00

>>

>>

[Guest guest]

Janice, I am so glad you've gotten so much pain relief and would love to know

your regimen. Will you share it? Thanks, Kate

From: Janice

Sent: Friday, November 12, 2010 7:08 AM

spinal problems

Subject: Re: arachnoiditis

I have met so many people with this disease. I have had 5 back surgeries. I am

60 and it all started when I was 20 so it's been 40 years of hell. I am pain

free 99% of the time and I feel so guilty sometimes because I don't have the

pain that some people have. I had 3 daughters all natural and when the last one

was only 5 months old I had my first surgery. Mine came from a back injury

although I have never been able to determine what happened to me.I really feel

for everyone here I know it's not a party.

Janice

arachnoiditis

Hi Janice. You took the words right out of my mouth. I was wondering the same

thing just the other day and planned on posting the same question. Although I

did have surgery on my cervical spine about 17 years ago the arachnoiditis is in

the lumbar spine. I suspect it is a result of the two epidurals I had during

childbirth 20 and 22 years ago, luckily I had my first child the good old

fashioned way, natural, the way God intended. Unfortunately I read of a lot of

women on these sites in the same boat but who knew? I met a gal on the Life with

Arachnoiditis group on Facebook that is going to sue her doctor regarding the

epidurals given during childbirth, I have no interest in going down that road.

----------------------------------------------------------

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23:34:00

[Guest guest]

I know in this group AT LEAST Janice, Kate, me, Deb and Sharon ALL have

arachnoiditis. I know Janice's form (and I believe Deb's too) is adhesive

arachnoiditis and so is mine. Is that what everyone else has too?

> >

> >>

> >>

> >> I have met so many people with this disease. I have had 5 back surgeries.

> >> I

> >> am 60 and it all started when I was 20 so it's been 40 years of hell. I

> >> am

> >> pain free 99% of the time and I feel so guilty sometimes because I don't

> >> have the pain that some people have. I had 3 daughters all natural and

> >> when

> >> the last one was only 5 months old I had my first surgery. Mine came from

> >> a

> >> back injury although I have never been able to determine what happened to

> >> me.I really feel for everyone here I know it's not a party.

> >> Janice

> >>

> >> arachnoiditis

> >>

> >> Hi Janice. You took the words right out of my mouth. I was wondering the

> >> same thing just the other day and planned on posting the same question.

> >> Although I did have surgery on my cervical spine about 17 years ago the

> >> arachnoiditis is in the lumbar spine. I suspect it is a result of the two

> >> epidurals I had during childbirth 20 and 22 years ago, luckily I had my

> >> first child the good old fashioned way, natural, the way God intended.

> >> Unfortunately I read of a lot of women on these sites in the same boat

> >> but

> >> who knew? I met a gal on the Life with Arachnoiditis group on Facebook

> >> that

> >> is going to sue her doctor regarding the epidurals given during

> >> childbirth,

> >> I have no interest in going down that road.

> >>

> >> ----------------------------------------------------------

> >>

> >> No virus found in this incoming message.

> >> Checked by AVG - www.avg.com

> >> Version: 9.0.869 / Virus Database: 271.1.1/3250 - Release Date: 11/10/10

> >> 23:34:00

> >>

> >>

[Guest guest]

each of us is different. If you are suffering so during hte day doesn't

your doctor give you anything to help with the pain? You sound so miserable.

Janice

Re: arachnoiditis

For the other people with this I have a couple of questions. Reading up on it

it says that it is normally worse when you get up and then it is supposed to

improve with exercise. Mine hurts when I get up and then goes downhill from

there during the day, with the pain getting worse. I am only 43 so this is

really hard to accept that this is it and that it won't get better. It also does

not mention much the nerve issues, I have the pins and needles in my legs and

also a lot of nerve pain and just wanted to see what symptoms other people had.

Thanks

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23:34:00

[Guest guest]

I have a huge concern here for those in chronic pain whose life is being ruled

by pain. There is help there is no reason fro anyone to have to suffer the way

some say they are sufering. A good pain doctor will not allow you to suffer all

day and night he/she will help you find the right drugs for you to get relief

from the pain. You also have to have the right doctor you must interview your

doctor to make sure he/she is on the same page as you and he/she must be willing

to do what ever it takes to help you.

Janice

Re: arachnoiditis

I'm sorry that you feel that way but please try to remember that there

are tons of people that are in worse shape than people like us are. We all have

our moments of why me. I was only 42 when I found out that I had arachnoiditis

and had my first tethered spinal cord surgery. Life doesn't end just because you

find out you have something that is chronic and progressive. DDD can actually be

a very slow progression. Try to focus on what helps like exercise and diet if

you have any weight issues and that will help a lot. Plus the exercise will help

with the depression that comes with pain.

Good luck and I hope you cheer up soon.

Barb

>

>

> I saw a neurosurgeon yesterday for a 2nd opinion, I do have ddd and have had

one back surgery and was truely hoping that he would be able to to something.

Turns out that is what I have and its really taken the wind out of my sails as I

thought finially when seeing him that something could be done for my pain. Now I

also feel why me, it seems life is so unfair. I am 43 and from what he was

saying it is progressive.

>

>

>

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23:34:00

[Guest guest]

Of course life must go on, we just deal and carry on with what we can. It could

be a lot worse, a friend of mine has colon cancer and is being treated for that

at the moment.

the cold weather does not help, I feel like a weather man. I have a 6 and a 16

year old still at home and I get the house and stuff done it, just takes a long

time. I still do things I enjoy and you sort of get used to the pain.

[Guest guest]

Janice, Thanks so much for sharing your regime. I really appreciate knowing

about it. Hope you are feeling well. Kate

From: Janice

Sent: Friday, November 12, 2010 4:28 PM

spinal problems

Subject: Re: arachnoiditis

Hi Kate I take 30mg.s of methadone in the morning and 20 mgs. at night before

bed. If I should do something that makes me hurt during the day I take 40mg.s of

oxycodone but I very seldom use it. I probably tried at least 10 pain drugs

before I got the methadone and it was like a miracle to me with no side effects

either. I get a little sleepy once in a while but it's nothing I can't deal

with. I am not saying that methadone is everyones answer but you have to find a

doctor who is willing to experiment with you until you find the right drug at

the right dose.I only know it works for me.

Janice

arachnoiditis

Hi Janice. You took the words right out of my mouth. I was wondering the same

thing just the other day and planned on posting the same question. Although I

did have surgery on my cervical spine about 17 years ago the arachnoiditis is in

the lumbar spine. I suspect it is a result of the two epidurals I had during

childbirth 20 and 22 years ago, luckily I had my first child the good old

fashioned way, natural, the way God intended. Unfortunately I read of a lot of

women on these sites in the same boat but who knew? I met a gal on the Life with

Arachnoiditis group on Facebook that is going to sue her doctor regarding the

epidurals given during childbirth, I have no interest in going down that road.

----------------------------------------------------------

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Checked by AVG - www.avg.com

Version: 9.0.869 / Virus Database: 271.1.1/3250 - Release Date: 11/10/10

23:34:00

[Guest guest]

If I can help in any way please just let me know.

Janice

arachnoiditis

Hi Janice. You took the words right out of my mouth. I was wondering the same

thing just the other day and planned on posting the same question. Although I

did have surgery on my cervical spine about 17 years ago the arachnoiditis is in

the lumbar spine. I suspect it is a result of the two epidurals I had during

childbirth 20 and 22 years ago, luckily I had my first child the good old

fashioned way, natural, the way God intended. Unfortunately I read of a lot of

women on these sites in the same boat but who knew? I met a gal on the Life with

Arachnoiditis group on Facebook that is going to sue her doctor regarding the

epidurals given during childbirth, I have no interest in going down that road.

----------------------------------------------------------

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.869 / Virus Database: 271.1.1/3250 - Release Date: 11/10/10

23:34:00

[Guest guest]

Hi again ,

Who treats you? Your primary doctor, a pain management doctor or a neuro/ortho?

Have you discussed with them that your pain is not adequately covered by

whatever medication you are on? I hope you get your medication straightened out

and that will help a lot.

I hurt 24/7 so wherever you read that it hurts more in the mornings and then

eases off is wrong and must just be the experience of one person. The pain of AA

is all nerve pain because that is what Adhesive Arachnoiditis is. That is the

reason that typical pain medications don't work that well at controlling the

pain.

So please don't feel like you are " different " because you don't feel better as

the day goes on. As far as exercise goes. I believe that everybody should stay

active because the more toned your muscles are the better equipped they are to

deal with the pain. The lower your weight is the better your body will feel.

So sorry if I ignored your actual question. I have nerve pain all day/night

long. It does NOT get better during the day and it does not get better with

exercise. Who told you that it does? Has anyone ever explained to you what AA?

If you understand what it is and how it effects your body you would know that

whoever said these things to you don't know anything about AA. The ONLY relief I

have ever heard of anyone having from AA is with medication, an experimental

holistic approach taken by Kovak (sp?), and now a surgery by a Dr. Warnke

in Germany, but apparently that is more for people who have Tarlov Cysts.

I hope that answers your question and I'm sorry I read your post so quickly I

skipped over your question.

I hope you are feeling better.

Barb

>

> Of course life must go on, we just deal and carry on with what we can. It

could be a lot worse, a friend of mine has colon cancer and is being treated for

that at the moment.

>

> the cold weather does not help, I feel like a weather man. I have a 6 and a 16

year old still at home and I get the house and stuff done it, just takes a long

time. I still do things I enjoy and you sort of get used to the pain.

>

>

>

[Guest guest]

Barb you were right on in your message to . I think she either needs to

have a good open discussion with her current doctor and if he/she doesn't feel

they can do anymore or offer the stronger drugs needed to relieve the pain of

this disease then it might be time to look for another pain specialist. No one

should have to live with the pain this disease brings with it. I have heard

Arachnoiditis pain is associated with the pain from cancer. I know that before I

found the right doctor and medications for me I was a laying on the floor

screaming maniac a lot of the time the pain was horrible now I have virtually no

pain. This may not happent o others but there has to be some sort of relief for

those who are in unbearable pain. Just my opinion.

Janice

Re: arachnoiditis

Hi again ,

Who treats you? Your primary doctor, a pain management doctor or a

neuro/ortho? Have you discussed with them that your pain is not adequately

covered by whatever medication you are on? I hope you get your medication

straightened out and that will help a lot.

I hurt 24/7 so wherever you read that it hurts more in the mornings and then

eases off is wrong and must just be the experience of one person. The pain of AA

is all nerve pain because that is what Adhesive Arachnoiditis is. That is the

reason that typical pain medications don't work that well at controlling the

pain.

So please don't feel like you are " different " because you don't feel better as

the day goes on. As far as exercise goes. I believe that everybody should stay

active because the more toned your muscles are the better equipped they are to

deal with the pain. The lower your weight is the better your body will feel.

So sorry if I ignored your actual question. I have nerve pain all day/night

long. It does NOT get better during the day and it does not get better with

exercise. Who told you that it does? Has anyone ever explained to you what AA?

If you understand what it is and how it effects your body you would know that

whoever said these things to you don't know anything about AA. The ONLY relief I

have ever heard of anyone having from AA is with medication, an experimental

holistic approach taken by Kovak (sp?), and now a surgery by a Dr. Warnke

in Germany, but apparently that is more for people who have Tarlov Cysts.

I hope that answers your question and I'm sorry I read your post so quickly I

skipped over your question.

I hope you are feeling better.

Barb

>

> Of course life must go on, we just deal and carry on with what we can. It

could be a lot worse, a friend of mine has colon cancer and is being treated for

that at the moment.

>

> the cold weather does not help, I feel like a weather man. I have a 6 and a

16 year old still at home and I get the house and stuff done it, just takes a

long time. I still do things I enjoy and you sort of get used to the pain.

>

>

>

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23:34:00

[Guest guest]

I had a 2nd mri done after my surgery 2 years ago and the surgoen basically told

me my nerves were agravated. He really blew me off on my symptoms and did

nothing. So the 2 years went by with more pain and that is why I got a 2nd

opinion. The 2nd neurosurgeon was the one that told me what I had. He had

ordered another mri and it was the same herniated and bulging disks, it would

have been nice if the 1st one had listened better and not left me like this for

2 years.

My primary care physician is the one who manages my pain, she is really good but

its not working too well. So now I know what is going on I am going to see a

pain management doctor and get it better under control.

Thank you all

[Guest guest]

Hooray for you you defunately need a pain specialist the primary doctors

are reluctant to prescribe the stronger drug you will need to help with all that

pain. Make sure you have an open conversation with the pain doctor before you

make them your doctor. Tell them your not interested in injections in your spine

of any kind. Ask their opinion they like it when you ask them questions.

Janice

Re: arachnoiditis

I had a 2nd mri done after my surgery 2 years ago and the surgoen basically

told me my nerves were agravated. He really blew me off on my symptoms and did

nothing. So the 2 years went by with more pain and that is why I got a 2nd

opinion. The 2nd neurosurgeon was the one that told me what I had. He had

ordered another mri and it was the same herniated and bulging disks, it would

have been nice if the 1st one had listened better and not left me like this for

2 years.

My primary care physician is the one who manages my pain, she is really good

but its not working too well. So now I know what is going on I am going to see a

pain management doctor and get it better under control.

Thank you all

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23:34:00

[Guest guest]

_Arachnoiditis Symptoms, Causes, and Treatments_

(http://www.webmd.com/pain-management/guide/pain-management-arachnoiditis)