doctor recommends no more xolair

[Guest guest]

I went to the doctor today to discuss the all over itching after the

first shot on Friday. He felt it was an anaphylactoid reaction to the

xolair, mild because I'd been pretreated with prednisone and

antihistamines before the shot, due to my anaphylaxis history. He

said I could possibly tolerate more xolair with the same protocol, but

the risks are too high to justify unknown potential benefit. So no

more xolair for me. I'm extremely disappointed, since this drug seems

to help so many people have more normal lives and I was hoping for the

same. Thank you for your thoughts about what was wrong and I will

definitely recommend this site to other patients who are considering

trying xolair. You have a lot of information here.

[Guest guest]

Oh, , my heart goes out to you. Your doctor's response does

make a lot of sense though. My hope for you is that a new treatment

comes down the pike very soon, one that you can tolerate much better

and that will give you back the healthy life you yearn for. I'm

sending a big hug,

Fran

--- In , " " <shuttsgirl@...>

wrote:

>

> I went to the doctor today to discuss the all over itching after

the

> first shot on Friday. He felt it was an anaphylactoid reaction to

the

> xolair, mild because I'd been pretreated with prednisone and

> antihistamines before the shot, due to my anaphylaxis history. He

> said I could possibly tolerate more xolair with the same protocol,

but

> the risks are too high to justify unknown potential benefit. So no

> more xolair for me. I'm extremely disappointed, since this drug

seems

> to help so many people have more normal lives and I was hoping for

the

> same. Thank you for your thoughts about what was wrong and I will

> definitely recommend this site to other patients who are

considering

> trying xolair. You have a lot of information here.

>

[Guest guest]

Hi ,

I wish you the best I know it is dissapointing. I'm glad you did not

have a major anaphylactic response though.

Thank you for your comments even though this is a great option for

treatment and most of the members have had success and little or no

side effects. Your post maybe important for someone who is having

symptoms and may want to belittle or ignore them because they want

the Xolair to work so bad.

I am new to the group and have only had one treatment so far. I

believe few people have this response but it is important to be aware

and prepared but not paranoid.

For others who are thinking about using this treatment to me the

benefit outweighed the risk. And I if I ever did have issues then I

would do the same thing as and follow my doctors advice.

I'm optimistic and waiting to see how the Xolair helps me.

Laurie

> >

> > I went to the doctor today to discuss the all over itching after

> the

> > first shot on Friday. He felt it was an anaphylactoid reaction

to

> the

> > xolair, mild because I'd been pretreated with prednisone and

> > antihistamines before the shot, due to my anaphylaxis history.

He

> > said I could possibly tolerate more xolair with the same

protocol,

> but

> > the risks are too high to justify unknown potential benefit. So

no

> > more xolair for me. I'm extremely disappointed, since this drug

> seems

> > to help so many people have more normal lives and I was hoping

for

> the

> > same. Thank you for your thoughts about what was wrong and I

will

> > definitely recommend this site to other patients who are

> considering

> > trying xolair. You have a lot of information here.

> >

>

[Guest guest]

Sorry to hear of your reaction and that you can no longer take

Xolair. I am in the same boat as you though! My doctor said no more

after my last shot because of itching and breathing problems a little

bit afterwards. I had itching after my previous shot BUT they said it

was most likely not the xolair because it didnt start til hours

afterwards. I also have a history of anaphylaxis (My allergy shots

put me in ICU on a ventilator right before this past Thanksgiving

after taking them for 6 months)

I didn't realize that I was actually having improvement from being on

Xolair til I was told no more though. Except for some improvement in

my spirometry results.

Hopefully something new will come along for us in the future.

(( HUGS )) Keep your head up.

--- In , " " <shuttsgirl@...>

wrote:

>

> I went to the doctor today to discuss the all over itching after

the

> first shot on Friday. He felt it was an anaphylactoid reaction to

the

> xolair, mild because I'd been pretreated with prednisone and

> antihistamines before the shot, due to my anaphylaxis history. He

> said I could possibly tolerate more xolair with the same protocol,

but

> the risks are too high to justify unknown potential benefit. So no

> more xolair for me. I'm extremely disappointed, since this drug

seems

> to help so many people have more normal lives and I was hoping for

the

> same. Thank you for your thoughts about what was wrong and I will

> definitely recommend this site to other patients who are

considering

> trying xolair. You have a lot of information here.

>