Re: Getting a SI injection

[Guest guest]

Many people have had the injection using the scope and I can tell you this is

very dangerous. It is one of a few things that can and does cause a terrible

life of pain disease. It's name is Arachnoiditis look it up and research it

throughly before you let them put that needle in your back. You could be setting

yourself up for a life time of intollerable pain.

Janice

Getting a SI injection

I am getting a SI injection through a scope on Tuesday and I am kind of

nervous on it, has anybody had it done and what can I expect?

Thanks

Nina Somers

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23:34:00

[Guest guest]

From my understanding, arachnoiditis is an inflammation of the arachnoid level

of the spine. 

The SI joint (or Sacro-iliac) joint does not have an arachnoid component so I

really am unsure as to how arachnoidits could occur in the SI joint. 

The " scope "  you are referring to is probably a " flouroscope " which is an xray

machine that allows for the doctor to inject the steroid.

I would hope that informed consumers would contact their doctor for medical

advice.  If you don't trust your doctor to answer questions that you have, then

don't allow them  to do an injection or procedure.

I would expect too that the members of this community are not

a representative

sample of patient's with back issues as patients with successful surgeries and

no ongoing problems really would not have a need to continue looking for

support.

________________________________

From: Janice <faraway1@...>

spinal problems

Sent: Sat, April 9, 2011 3:55:36 PM

Subject: Re: Getting a SI injection

 

Many people have had the injection using the scope and I can tell you this is

very dangerous. It is one of a few things that can and does cause a terrible

life of pain disease. It's name is Arachnoiditis look it up and research it

throughly before you let them put that needle in your back. You could be setting

yourself up for a life time of intollerable pain.

Janice

Getting a SI injection

I am getting a SI injection through a scope on Tuesday and I am kind of nervous

on it, has anybody had it done and what can I expect?

Thanks

Nina Somers

----------------------------------------------------------

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.894 / Virus Database: 271.1.1/3561 - Release Date: 04/08/11

23:34:00

[Guest guest]

>

> I am getting a SI injection through a scope on Tuesday and I am kind of

nervous on it, has anybody had it done and what can I expect?

> Thanks

> Nina Somers

>

Hi Nina,

I have had it done several times. I did not have any problems with it during or

after. When he hit the right spot, I felt pain for a few seconds and it went

away. I would have had another one done this month, but I have been diagnosed

having Sarcoidosis. I have joint pain all over plus other symptons. The si

injection has been postponed.

[Guest guest]

,

Where is the sarcoidosis affecting you?  My husband was diagnosed with it a few

years ago.  We did the natural component (worked with a nutritionist) for 6

months with no worsening of symptoms (but also no improvement). He had lesions

in his lungs and on his skin.  He was on low dose of prednisone for about 6

months and the skin lesions cleared up within about a week - and the lungs are

clear now almost two years out. Prednisone is not a picnic, but it did get rid

of my husband's illness without any long term problems.

Good luck!

________________________________

From: <mhs006@...>

spinal problems

Sent: Sat, April 9, 2011 4:17:50 PM

Subject: Re: Getting a SI injection

 

>

> I am getting a SI injection through a scope on Tuesday and I am kind of

nervous

>on it, has anybody had it done and what can I expect?

> Thanks

> Nina Somers

>

Hi Nina,

I have had it done several times. I did not have any problems with it during or

after. When he hit the right spot, I felt pain for a few seconds and it went

away. I would have had another one done this month, but I have been diagnosed

having Sarcoidosis. I have joint pain all over plus other symptons. The si

injection has been postponed.

[Guest guest]

Arachnoiditis is scar tissue that forms anywhere around the spine. It wraps

itself around nerves and squuzes until it puts great pressure on the nerve or

cuts in into . The reason most people get Arachnoiditis is multiple surgeries

and/or injections in the spine. It is grown in the arachnoid layer of the spine.

You can get Arachnoiditis anywhere in the spine but it's almost always found in

the low back. It can cause intractable pain that even the strongest pain meds

will not help you. The injections can cause Arachnoiditis even one of them can

cause you a life time of misery. I was told in 1996 that I had Arachnoiditid but

the doctor and I both feel it was there long before 96. I started having back

trouble nad back surgery in 1970 when I was only 20 years old then after the

first surgery every 8 to 10 years afterwards I would have to have another

operation. I would turn to the injections when the pain was so bad I would have

done anything to get rid of it. The effects of the injections usually only give

you a limited amount of pain relief that doesn't last very long. There is no

long term solutation except pain control.You may consider the pain pump if the

pain cannot be controlled with meds. I am sorry this is so long but I want to

give you information. You really need to look this disease up and get all the

information you can and while your at it make up a list of questions to talk

with your doctor about.

Janice

Getting a SI injection

I am getting a SI injection through a scope on Tuesday and I am kind of

nervous

on it, has anybody had it done and what can I expect?

Thanks

Nina Somers

----------------------------------------------------------

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Checked by AVG - www.avg.com

Version: 9.0.894 / Virus Database: 271.1.1/3561 - Release Date: 04/08/11

23:34:00

[Guest guest]

I have had this done in both my neck and lumbar spine. it was done by a pain

management specialist.

I was only getting  a few months of relief, so I also had the radio frequency

procedure done too, which lasted about 2 yrs.

 

 

From: momof4sons31 <ninamsom33@...>

Subject: Getting a SI injection

spinal problems

Date: Saturday, April 9, 2011, 6:33 PM

 

I am getting a SI injection through a scope on Tuesday and I am kind of nervous

on it, has anybody had it done and what can I expect?

Thanks

Nina Somers

[Guest guest]

Janice,

 According to a google search, Wikipedia states, " Arachnoiditis is a

neuropathic

disease caused by the inflammation of the arachnoid, one of the membranes that

surround and protect the nerves of the central nervous system, including the

brain and spinal cord. The arachnoid can become severely inflamed because of

adverse reactions to chemicals, infection from bacteria or viruses, as the

result of direct injury to the spine, chronic compression of spinal nerves, or

complications from spinal surgery or other invasive spinal procedures.

Inflammation can sometimes lead to the formation of scar tissue and adhesions

which can cause the spinal nerves to " stick " together. This can be extremely

painful especially if the last stage " Adhesive Arachnoiditis " is diagnosed,

although clinical findings may not match pain levels. In other words it may

appear mild on an MRI scan but the patient may be experiencing a great amount of

pain. "

It is a multi-factorial process that also indicates that there are links to

auto-immune problems as well and typically people that have it also have prior

back problems hence the need for treatment. The SI joint is not part of the

spinal cord, so by your telling a patient to not get an SI joint injection

because it can cause arachnoidits seems to me to either be a scare tactic or

misinformation.  Again you state, " Many people have had the injection using

the

scope and I can tell you this is very dangerous. "   So when you say, " many "

where

are you getting your data from and how is it being compared to the total amount

of SI joint injections done yearly without complications?  Again, my

recommendation for a patient who is considering an SI joint injection and is

afraid of getting arachnoiditis or having another complication is to talk to the

doctor.

________________________________

From: Janice <faraway1@...>

spinal problems

Sent: Sat, April 9, 2011 4:54:58 PM

Subject: Re: Getting a SI injection

 

Arachnoiditis is scar tissue that forms anywhere around the spine. It wraps

itself around nerves and squuzes until it puts great pressure on the nerve or

cuts in into . The reason most people get Arachnoiditis is multiple surgeries

and/or injections in the spine. It is grown in the arachnoid layer of the spine.

You can get Arachnoiditis anywhere in the spine but it's almost always found in

the low back. It can cause intractable pain that even the strongest pain meds

will not help you. The injections can cause Arachnoiditis even one of them can

cause you a life time of misery. I was told in 1996 that I had Arachnoiditid but

the doctor and I both feel it was there long before 96. I started having back

trouble nad back surgery in 1970 when I was only 20 years old then after the

first surgery every 8 to 10 years afterwards I would have to have another

operation. I would turn to the injections when the pain was so bad I would have

done anything to get rid of it. The effects of the injections usually only give

you a limited amount of pain relief that doesn't last very long. There is no

long term solutation except pain control.You may consider the pain pump if the

pain cannot be controlled with meds. I am sorry this is so long but I want to

give you information. You really need to look this disease up and get all the

information you can and while your at it make up a list of questions to talk

with your doctor about.

Janice

Getting a SI injection

I am getting a SI injection through a scope on Tuesday and I am kind of nervous

on it, has anybody had it done and what can I expect?

Thanks

Nina Somers

----------------------------------------------------------

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Checked by AVG - www.avg.com

Version: 9.0.894 / Virus Database: 271.1.1/3561 - Release Date: 04/08/11

23:34:00

[Guest guest]

Ah, well as long time members of the list can tell you, any time anyone

has a problem with their back Janice suggests it might be from

Arachnoiditis or that injections (or insert therapy here)

will/might/could cause Arachnoiditis and should be avoided. As the

saying goes, sometimes if all you have is a hammer, everything looks

like a nail and this seems to be one of those cases.

and the gang -- jacdobe@...

Birds: Sadie (GW) Cookie (MMxBuffons) Nissa (LJ) Sylvie (RB2) ie (CAG)

Cats: Sully(DSH) Shadow(DMH) Sanouk, Gabi, Cami(Siamese) Dogs: Skye

(Dobe/Husky) Reece (Dobe)

Bridge kids: Jaderbug, Flirt, Tia, Munchkin, Jasmine, Chuckles, Angel,

Indi, Kayla, Sabien and our heart, Bubba.

Pics of the gang: http://community.webshots.com/user/jacdobe

Allparrots: http://pets./group/allparrots

The Coalition of PA Aviculturists: TCOPA

On 4/9/2011 7:03 PM, The Carr's wrote:

> > From my understanding, arachnoiditis is an inflammation of the arachnoid

level

> of the spine.

>

> The SI joint (or Sacro-iliac) joint does not have an arachnoid component so I

> really am unsure as to how arachnoidits could occur in the SI joint.

>

>

> The " scope " you are referring to is probably a " flouroscope " which is an xray

> machine that allows for the doctor to inject the steroid.

>

> I would hope that informed consumers would contact their doctor for medical

> advice. If you don't trust your doctor to answer questions that you have,

then

> don't allow them to do an injection or procedure.

>

> I would expect too that the members of this community are not a representative

> sample of patient's with back issues as patients with successful surgeries and

> no ongoing problems really would not have a need to continue looking for

> support.

>

>

>

>

>

> ________________________________

> From: Janice <faraway1@...>

> spinal problems

> Sent: Sat, April 9, 2011 3:55:36 PM

> Subject: Re: Getting a SI injection

>

>

> Many people have had the injection using the scope and I can tell you this is

> very dangerous. It is one of a few things that can and does cause a terrible

> life of pain disease. It's name is Arachnoiditis look it up and research it

> throughly before you let them put that needle in your back. You could be

setting

> yourself up for a life time of intollerable pain.

> Janice

> Getting a SI injection

>

> I am getting a SI injection through a scope on Tuesday and I am kind of

nervous

> on it, has anybody had it done and what can I expect?

> Thanks

> Nina Somers

>

> ----------------------------------------------------------

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 9.0.894 / Virus Database: 271.1.1/3561 - Release Date: 04/08/11

> 23:34:00

>

>

[Guest guest]

THANK YOU. I just joined this group last week after having a minimally invasive

surgery and was trying to go to sleep amidst nerve sensations and was terrified

I was beginning to have this syndrome until I did adequate research. None of

the injections and or surgery breached my arachnoid level so I dont see how I

could get it, but I gathered from this message board postings that many people

have it.

Patients deserve accurate information and not scare tactics

----------

Sent from AT & T's Wireless network using Mobile Email

- Re: Getting a SI injection

>

>

> Many people have had the injection using the scope and I can tell you this is

> very dangerous. It is one of a few things that can and does cause a terrible

> life of pain disease. It's name is Arachnoiditis look it up and research it

> throughly before you let them put that needle in your back. You could be

setting

> yourself up for a life time of intollerable pain.

> Janice

> Getting a SI injection

>

> I am getting a SI injection through a scope on Tuesday and I am kind of

nervous

> on it, has anybody had it done and what can I expect?

> Thanks

> Nina Somers

>

> ----------------------------------------------------------

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 9.0.894 / Virus Database: 271.1.1/3561 - Release Date: 04/08/11

> 23:34:00

>

>

[Guest guest]

Everyone who is considering the injection or any back surgery to make a detailed

list of questions for their doctor and do not leave his office until he has

answered every one of them to your satisfaction. Although the S-1 is not part of

the spinal cord it is the scar tissue that effects the S-1 joint and the whole

spine. It can be located in one small area or spread out in a very large

section. Yes it does tend to stick together thus the name adhesive

arachnoiditis.I am in stage 3 now and the only way you know what stages your in

has to be acessed by a doctor according to your symptoms. I belong to a group of

2000 people who have Arachnoiditis in one degree or another. We have talked and

researched about his disease for the past 9 years. I am by no means an expert

but I do have enough knowledge to be able to tell anyone the injections are not

safe. It is caused mainly by the chemicals that are injected into the spine they

irritate and inflame the area they are injected in. Read about the chemicals in

those injections they are poisonious to the system. One of the componetents is

called polyethelene glycol it is an active ingredient in most laxatives but

mostly it is found in anti-freeze. Once the nerves are inflamed they tend to

begin to form scar tissue it can move slowly or very quickly depending on the

individual. One lady that I know had the epidural to have her baby and while she

was still in the hospital she began to have pain in her back and within 6 months

was in a wheelchair for probably the rest of her life. I would not wish this

disease on anyone and I will speak out loud and clear about the effects of these

injections. They only give temporary relief for short periods of time so why

risk it? I wish someone had been around to tell me all of this before I let them

do the first injection 40 years ago.That's all I am doing tonight just giving

out information that I believe to be accurate. If I can prevent one person from

going through what I and many others have to go through each day for the rest of

our lives them I have saved one more person.

Janice.

Getting a SI injection

I am getting a SI injection through a scope on Tuesday and I am kind of

nervous

on it, has anybody had it done and what can I expect?

Thanks

Nina Somers

----------------------------------------------------------

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.894 / Virus Database: 271.1.1/3561 - Release Date: 04/08/11

23:34:00

[Guest guest]

I wish you all luck

Getting a SI injection

I am getting a SI injection through a scope on Tuesday and I am kind of

nervous

on it, has anybody had it done and what can I expect?

Thanks

Nina Somers

----------------------------------------------------------

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.894 / Virus Database: 271.1.1/3561 - Release Date: 04/08/11

23:34:00

[Guest guest]

I don't mean to scare anyone and I have not ever given false information to

anyone. I always tell the person to consult with their doctor and reasearch what

is happening to you. It's your life and your back

Good night

Janice

Getting a SI injection

>

> I am getting a SI injection through a scope on Tuesday and I am kind of

nervous

> on it, has anybody had it done and what can I expect?

> Thanks

> Nina Somers

>

> ----------------------------------------------------------

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 9.0.894 / Virus Database: 271.1.1/3561 - Release Date: 04/08/11

> 23:34:00

>

>

[Guest guest]

Hi. I don't know. My doctor has order a chest Xray. She said we would start

there. She also did an xray of my hands. Found osteoarthritis

in my finger joints in both hands. They are very tender. She changed my med to

Nabumetone 500mg 2x a day. I was already on pain meds for the si joint pain. My

symptoms are joint pain all over,low grade fever that comes and goes,extreme

fatigue and weight loss. I lost 25lbs in 4 months without trying. And my vitamin

d level was 12 instead of level 20, the normal level. She said we may have to go

with the prednisone if this does not work.

In spinal problems , The Carr's <klcmcc@...> wrote:

>

> ,

>

> Where is the sarcoidosis affecting you?  My husband was diagnosed with it a

few

> years ago.  We did the natural component (worked with a nutritionist) for 6

> months with no worsening of symptoms (but also no improvement). He had lesions

> in his lungs and on his skin.  He was on low dose of prednisone for about 6

> months and the skin lesions cleared up within about a week - and the lungs are

> clear now almost two years out. Prednisone is not a picnic, but it did get rid

> of my husband's illness without any long term problems.

>

> Good luck!

>

>

>

>

> ________________________________

> From: <mhs006@...>

> spinal problems

> Sent: Sat, April 9, 2011 4:17:50 PM

> Subject: Re: Getting a SI injection

>

>  

>

>

>

> >

> > I am getting a SI injection through a scope on Tuesday and I am kind of

nervous

> >on it, has anybody had it done and what can I expect?

> > Thanks

> > Nina Somers

> >

> Hi Nina,

> I have had it done several times. I did not have any problems with it during

or

> after. When he hit the right spot, I felt pain for a few seconds and it went

> away. I would have had another one done this month, but I have been diagnosed

> having Sarcoidosis. I have joint pain all over plus other symptons. The si

> injection has been postponed.

>

>

>

>

>

>

[Guest guest]

It is mostly in my lower back going into hips, recently it is radiating down

into my legs.  They already said that I have osteoarthritis in my spine.  I am

hoping that this works

>

> ,

>

> Where is the sarcoidosis affecting you?  My husband was diagnosed with it a

few

> years ago.  We did the natural component (worked with a

nutritionist) for 6

> months with no worsening of symptoms (but also no improvement). He had lesions

> in his lungs and on his skin.  He was on low dose of prednisone for about 6

> months and the skin lesions cleared up within about a week - and the lungs are

> clear now almost two years out. Prednisone is not a picnic, but it did get rid

> of my husband's illness without any long term problems.

>

> Good luck!

>

>

>

>

> ________________________________

> From: <mhs006@...>

> spinal problems

> Sent: Sat, April 9, 2011 4:17:50 PM

> Subject: Re: Getting a SI injection

>

>  

>

>

>

> >

> > I am getting a SI injection through a scope on Tuesday and I am kind of

nervous

> >on it, has anybody had it done and what can I expect?

> > Thanks

> > Nina Somers

> >

> Hi Nina,

> I have had it done several times. I did not have any problems with it during

or

> after. When he hit the right spot, I felt pain for a few seconds and it went

> away. I would have had another one done this month, but I have been diagnosed

> having Sarcoidosis. I have joint pain all over plus other symptons. The si

> injection has been postponed.

>

>

>

>

>

>

[Guest guest]

Again the si joint does not have an arachnoid membrane and therefore cannot get

arachnoiditis

----------

Sent from AT & T's Wireless network using Mobile Email

- Re: Getting a SI injection

Everyone who is considering the injection or any back surgery to make a detailed

list of questions for their doctor and do not leave his office until he has

answered every one of them to your satisfaction. Although the S-1 is not part of

the spinal cord it is the scar tissue that effects the S-1 joint and the whole

spine. It can be located in one small area or spread out in a very large

section. Yes it does tend to stick together thus the name adhesive

arachnoiditis.I am in stage 3 now and the only way you know what stages your in

has to be acessed by a doctor according to your symptoms. I belong to a group of

2000 people who have Arachnoiditis in one degree or another. We have talked and

researched about his disease for the past 9 years. I am by no means an expert

but I do have enough knowledge to be able to tell anyone the injections are not

safe. It is caused mainly by the chemicals that are injected into the spine they

irritate and inflame the area they are injected in. Read about the chemicals in

those injections they are poisonious to the system. One of the componetents is

called polyethelene glycol it is an active ingredient in most laxatives but

mostly it is found in anti-freeze. Once the nerves are inflamed they tend to

begin to form scar tissue it can move slowly or very quickly depending on the

individual. One lady that I know had the epidural to have her baby and while she

was still in the hospital she began to have pain in her back and within 6 months

was in a wheelchair for probably the rest of her life. I would not wish this

disease on anyone and I will speak out loud and clear about the effects of these

injections. They only give temporary relief for short periods of time so why

risk it? I wish someone had been around to tell me all of this before I let them

do the first injection 40 years ago.That's all I am doing tonight just giving

out information that I believe to be accurate. If I can prevent one person from

going through what I and many others have to go through each day for the rest of

our lives them I have saved one more person.

Janice.

Getting a SI injection

I am getting a SI injection through a scope on Tuesday and I am kind of

nervous

on it, has anybody had it done and what can I expect?

Thanks

Nina Somers

----------------------------------------------------------

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.894 / Virus Database: 271.1.1/3561 - Release Date: 04/08/11

23:34:00

[Guest guest]

Nina, I also have arthritis in my spine. I had back surgery to remove some disk

bone off my spinal cord so I could walk without severe pain. The doctor saw the

arthritis and told me.

> > >

> > > I am getting a SI injection through a scope on Tuesday and I am kind of

nervous

> > >on it, has anybody had it done and what can I expect?

> > > Thanks

> > > Nina Somers

> > >

> > Hi Nina,

> > I have had it done several times. I did not have any problems with it during

or

> > after. When he hit the right spot, I felt pain for a few seconds and it went

> > away. I would have had another one done this month, but I have been

diagnosed

> > having Sarcoidosis. I have joint pain all over plus other symptons. The si

> > injection has been postponed.

> >

> >

> >

> >

> >

> >

[Guest guest]

This may seem off the wall and might not be the case, but have you been

tested for Lyme's disease? Joint pain, fever, and extreme fatigue are

all symptoms of the disease.

and the gang -- jacdobe@...

Birds: Sadie (GW) Cookie (MMxBuffons) Nissa (LJ) Sylvie (RB2) ie (CAG)

Cats: Sully(DSH) Shadow(DMH) Sanouk, Gabi, Cami(Siamese) Dogs: Skye

(Dobe/Husky) Reece (Dobe)

Bridge kids: Jaderbug, Flirt, Tia, Munchkin, Jasmine, Chuckles, Angel,

Indi, Kayla, Sabien and our heart, Bubba.

Pics of the gang: http://community.webshots.com/user/jacdobe

Allparrots: http://pets./group/allparrots

The Coalition of PA Aviculturists: TCOPA

On 4/9/2011 8:45 PM, wrote:

> My symptoms are joint pain all over,low grade fever that comes and

goes,extreme fatigue and weight loss.

[Guest guest]

Yes. My rheumatology doctor check for every auto immune disease that she should

check for. The only one that came back positive was the one for sarcoidosis.

> > My symptoms are joint pain all over,low grade fever that comes and

goes,extreme fatigue and weight loss.

>

[Guest guest]

Hi Janice....i am so new to spinal problems discussion groups that any and

all information is helpful! I have spinal problems for years but will, I am

afraid, be forced to do something about them other than PT and pilates! I

am having problems with motor control and gait but not so much the pain...

it is totally up to the person to do his research, learn all they can good

and bad and find a great doctor be it pain management or surgeon or

neurologist and make what ever you choose be an informed decison on your

part and not one of the surgeons.....thank you so much for all of the posts

...i had never heard to arachnoiditis before this board and now i will

research this.....thanks all for all of your postings and an exchange of

information.

-- Re: Re: Getting a SI injection

I don't mean to scare anyone and I have not ever given false information to

anyone. I always tell the person to consult with their doctor and reasearch

what is happening to you. It's your life and your back

Good night

Janice

Getting a SI injection

>

> I am getting a SI injection through a scope on Tuesday and I am kind of

nervous

> on it, has anybody had it done and what can I expect?

> Thanks

> Nina Somers

>

> ----------------------------------------------------------

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 9.0.894 / Virus Database: 271.1.1/3561 - Release Date: 04/08/11

> 23:34:00

>

>

[Guest guest]

I suspect each of us wants to let others know what worked and didn't work

for us, or to think about things they might not be thinking about. (My own

" thing " is the perpetual question of how much of this is hip pain, how

much spine?).

And my own issue with various injections is they seem to be at best,a very

short-lived " solution. " Around here it's not easy to find a pain

management doctor who doesn't just see this as the way to go though, leaving on

to

ponder the economics of it.

In a message dated 4/10/2011 11:51:37 A.M. Eastern Daylight Time,

lynnet20022002@... writes:

p..s. I don't think anyone is trying to scare anyone but people tend to

want to

help others see what happened to them and don't want anyone else to

suffer. That

is good. But we want to decide for ourselves so....statistics please?

risks

please? How often does this A thing happen when doing shots/RFA's etc?

Thanks.

Lynne

[Guest guest]

Okay, just wanted to make sure since the symptoms matched up. Hopefully

you will get what you need soon.

and the gang -- jacdobe@...

Birds: Sadie (GW) Cookie (MMxBuffons) Nissa (LJ) Sylvie (RB2) ie (CAG)

Cats: Sully(DSH) Shadow(DMH) Sanouk, Gabi, Cami(Siamese) Dogs: Skye

(Dobe/Husky) Reece (Dobe)

Bridge kids: Jaderbug, Flirt, Tia, Munchkin, Jasmine, Chuckles, Angel,

Indi, Kayla, Sabien and our heart, Bubba.

Pics of the gang: http://community.webshots.com/user/jacdobe

Allparrots: http://pets./group/allparrots

The Coalition of PA Aviculturists: TCOPA

On 4/9/2011 9:42 PM, wrote:

> Yes. My rheumatology doctor check for every auto immune disease that she

should check for. The only one that came back positive was the one for

sarcoidosis.

>

[Guest guest]

Thanks Jean.

> > Yes. My rheumatology doctor check for every auto immune disease that she

should check for. The only one that came back positive was the one for

sarcoidosis.

> >

>

[Guest guest]

My dr. wants to do an epidural. I asked for a RFA because I want the nerves

burned to stop the pain. Which is more dangerous/helpful? I don't want to make

the nerves WORSE. I'm in enough pain!!! (from surgery).

Also because the sacrum was partially removed, muscles and nerves were moved

around so one doc said he would not do RFA because if he hit the wrong nerve I

would be paralyzed. This was from Cleveland Clinic, a reputable source. So....I

wonder if I should push. I just want OFF these opiods/constipation etc. SO BAD!

What are my chances of success/worsening of nerve pain? Are there

statistics please? Does anyone know? (numbers)

Thank you. Lynne   

________________________________

From: Janice <faraway1@...>

spinal problems

Sent: Sat, April 9, 2011 8:33:48 PM

Subject: Re: Getting a SI injection

 

Everyone who is considering the injection or any back surgery to make a detailed

list of questions for their doctor and do not leave his office until he has

answered every one of them to your satisfaction. Although the S-1 is not part of

the spinal cord it is the scar tissue that effects the S-1 joint and the whole

spine. It can be located in one small area or spread out in a very large

section. Yes it does tend to stick together thus the name adhesive

arachnoiditis.I am in stage 3 now and the only way you know what stages your in

has to be acessed by a doctor according to your symptoms. I belong to a group of

2000 people who have Arachnoiditis in one degree or another. We have talked and

researched about his disease for the past 9 years. I am by no means an expert

but I do have enough knowledge to be able to tell anyone the injections are not

safe. It is caused mainly by the chemicals that are injected into the spine they

irritate and inflame the area they are injected in. Read about the chemicals in

those injections they are poisonious to the system. One of the componetents is

called polyethelene glycol it is an active ingredient in most laxatives but

mostly it is found in anti-freeze. Once the nerves are inflamed they tend to

begin to form scar tissue it can move slowly or very quickly depending on the

individual. One lady that I know had the epidural to have her baby and while she

was still in the hospital she began to have pain in her back and within 6 months

was in a wheelchair for probably the rest of her life. I would not wish this

disease on anyone and I will speak out loud and clear about the effects of these

injections. They only give temporary relief for short periods of time so why

risk it? I wish someone had been around to tell me all of this before I let them

do the first injection 40 years ago.That's all I am doing tonight just giving

out information that I believe to be accurate. If I can prevent one person from

going through what I and many others have to go through each day for the rest of

our lives them I have saved one more person.

Janice.

Getting a SI injection

I am getting a SI injection through a scope on Tuesday and I am kind of nervous

on it, has anybody had it done and what can I expect?

Thanks

Nina Somers

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23:34:00

[Guest guest]

When one is in pain, one tends to want to warn others. Maybe to excess but it's

out of concern. I am in pain and want people to know spinal surgery can cause

nerve damage/pain. I tell my story. People do need to know. I'm sure that's her

intent. Just the facts people. Statistics. Facts. Risks/percentage of failure

etc. I think we all have the word that any invasive procedure CAN lead to this

condition (the A word...can't spell ) I'm sure Janice is just making sure

that everyone knows about it. The pain for her must be terrible. I felt the same

way when I found that neurontin and lyrica caused tumors/cancer in mice. I was

so relieved to find Zonafran didn't! I told people...began taking it....and my

pulse and blood pressure went WILD! Then my attitude was goofy...I got

aggressive, impatient, pointed...people started pointing it out to me. It was

caused by zonafran (sp?) Now I'm off of it. Have less pain relief but am rid of

that medicine! Now not all people will get these side effects but people do

share when they hit a rock in treatment. Now that we all know about this A

condition, what are the risks/percentage of it happening so we can decide for

ourselves if we want to risk it or not.  

p..s. I don't think anyone is trying to scare anyone but people tend to want to

help others see what happened to them and don't want anyone else to suffer. That

is good. But we want to decide for ourselves so....statistics please? risks

please? How often does this A thing happen when doing shots/RFA's etc? Thanks.

Lynne 

________________________________

From: A. <jacdobe@...>

spinal problems

Sent: Sat, April 9, 2011 8:19:11 PM

Subject: Re: Getting a SI injection

 

Ah, well as long time members of the list can tell you, any time anyone

has a problem with their back Janice suggests it might be from

Arachnoiditis or that injections (or insert therapy here)

will/might/could cause Arachnoiditis and should be avoided. As the

saying goes, sometimes if all you have is a hammer, everything looks

like a nail and this seems to be one of those cases.

and the gang -- jacdobe@...

Birds: Sadie (GW) Cookie (MMxBuffons) Nissa (LJ) Sylvie (RB2) ie (CAG)

Cats: Sully(DSH) Shadow(DMH) Sanouk, Gabi, Cami(Siamese) Dogs: Skye

(Dobe/Husky) Reece (Dobe)

Bridge kids: Jaderbug, Flirt, Tia, Munchkin, Jasmine, Chuckles, Angel,

Indi, Kayla, Sabien and our heart, Bubba.

Pics of the gang: http://community.webshots.com/user/jacdobe

Allparrots: http://pets./group/allparrots

The Coalition of PA Aviculturists: TCOPA

On 4/9/2011 7:03 PM, The Carr's wrote:

> > From my understanding, arachnoiditis is an inflammation of the arachnoid

>level

> of the spine.

>

> The SI joint (or Sacro-iliac) joint does not have an arachnoid component so I

> really am unsure as to how arachnoidits could occur in the SI joint.

>

>

> The " scope " you are referring to is probably a " flouroscope " which is an xray

> machine that allows for the doctor to inject the steroid.

>

> I would hope that informed consumers would contact their doctor for medical

> advice. If you don't trust your doctor to answer questions that you have, then

> don't allow them to do an injection or procedure.

>

> I would expect too that the members of this community are not a representative

> sample of patient's with back issues as patients with successful surgeries and

> no ongoing problems really would not have a need to continue looking for

> support.

>

>

>

>

>

> ________________________________

> From: Janice <faraway1@...>

> spinal problems

> Sent: Sat, April 9, 2011 3:55:36 PM

> Subject: Re: Getting a SI injection

>

>

> Many people have had the injection using the scope and I can tell you this is

> very dangerous. It is one of a few things that can and does cause a terrible

> life of pain disease. It's name is Arachnoiditis look it up and research it

> throughly before you let them put that needle in your back. You could be

>setting

> yourself up for a life time of intollerable pain.

> Janice

> Getting a SI injection

>

> I am getting a SI injection through a scope on Tuesday and I am kind of

nervous

> on it, has anybody had it done and what can I expect?

> Thanks

> Nina Somers

>

> ----------------------------------------------------------

>

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> 23:34:00

>

>

[Guest guest]

Thanks for the data. I've read this before. But again, where are the

statistics...out of how many injections does one get this condition?

Can anyone provide that? So we can decide for ourselves...and close the subject?

That is MY last question anyway. You've provided the rest....thank you. Lynne

________________________________

From: The Carr's <klcmcc@...>

spinal problems

Sent: Sat, April 9, 2011 8:07:01 PM

Subject: Re: Getting a SI injection

 

Janice,

 According to a google search, Wikipedia states, " Arachnoiditis is a

neuropathic

disease caused by the inflammation of the arachnoid, one of the membranes that

surround and protect the nerves of the central nervous system, including the

brain and spinal cord. The arachnoid can become severely inflamed because of

adverse reactions to chemicals, infection from bacteria or viruses, as the

result of direct injury to the spine, chronic compression of spinal nerves, or

complications from spinal surgery or other invasive spinal procedures.

Inflammation can sometimes lead to the formation of scar tissue and adhesions

which can cause the spinal nerves to " stick " together. This can be extremely

painful especially if the last stage " Adhesive Arachnoiditis " is diagnosed,

although clinical findings may not match pain levels. In other words it may

appear mild on an MRI scan but the patient may be experiencing a great amount of

pain. "

It is a multi-factorial process that also indicates that there are links to

auto-immune problems as well and typically people that have it also have prior

back problems hence the need for treatment. The SI joint is not part of the

spinal cord, so by your telling a patient to not get an SI joint injection

because it can cause arachnoidits seems to me to either be a scare tactic or

misinformation.  Again you state, " Many people have had the injection using

the

scope and I can tell you this is very dangerous. "   So when you say, " many "

where

are you getting your data from and how is it being compared to the total amount

of SI joint injections done yearly without complications?  Again, my

recommendation for a patient who is considering an SI joint injection and is

afraid of getting arachnoiditis or having another complication is to talk to the

doctor.

________________________________

From: Janice <faraway1@...>

spinal problems

Sent: Sat, April 9, 2011 4:54:58 PM

Subject: Re: Getting a SI injection

 

Arachnoiditis is scar tissue that forms anywhere around the spine. It wraps

itself around nerves and squuzes until it puts great pressure on the nerve or

cuts in into . The reason most people get Arachnoiditis is multiple surgeries

and/or injections in the spine. It is grown in the arachnoid layer of the spine.

You can get Arachnoiditis anywhere in the spine but it's almost always found in

the low back. It can cause intractable pain that even the strongest pain meds

will not help you. The injections can cause Arachnoiditis even one of them can

cause you a life time of misery. I was told in 1996 that I had Arachnoiditid but

the doctor and I both feel it was there long before 96. I started having back

trouble nad back surgery in 1970 when I was only 20 years old then after the

first surgery every 8 to 10 years afterwards I would have to have another

operation. I would turn to the injections when the pain was so bad I would have

done anything to get rid of it. The effects of the injections usually only give

you a limited amount of pain relief that doesn't last very long. There is no

long term solutation except pain control.You may consider the pain pump if the

pain cannot be controlled with meds. I am sorry this is so long but I want to

give you information. You really need to look this disease up and get all the

information you can and while your at it make up a list of questions to talk

with your doctor about.

Janice

Getting a SI injection

I am getting a SI injection through a scope on Tuesday and I am kind of nervous

on it, has anybody had it done and what can I expect?

Thanks

Nina Somers

----------------------------------------------------------

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Checked by AVG - www.avg.com

Version: 9.0.894 / Virus Database: 271.1.1/3561 - Release Date: 04/08/11

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