Re: Getting a SI injection

[Guest guest]

Thatks for the info on RFA. I want my doc to do it. CCF doctor refused. mmmm

wonder if I'll make it without damage? Am in so much pain am willing to risk it

I think.

________________________________

From: Smokie1952 <smokie1952@...>

spinal problems

Sent: Sat, April 9, 2011 8:00:25 PM

Subject: Re: Getting a SI injection

 

I have had this done in both my neck and lumbar spine. it was done by a pain

management specialist.

I was only getting  a few months of relief, so I also had the radio frequency

procedure done too, which lasted about 2 yrs.

 

 

From: momof4sons31 <ninamsom33@...>

Subject: Getting a SI injection

spinal problems

Date: Saturday, April 9, 2011, 6:33 PM

 

I am getting a SI injection through a scope on Tuesday and I am kind of nervous

on it, has anybody had it done and what can I expect?

Thanks

Nina Somers

[Guest guest]

messages at top are last in. This is an old message. I see you are giving your

experience and warning for each to discuss with their doctors. I would do the

same. I'm still going for the  RFA. Because...I hope to recover with PT

someday...at least be better so I don't have to take so many opiods. If it were

a permanent condition I would go forr the drug pump. There is one by medtronics

and maybe others that don't require batteries so no additional surgeries to

change batteries unless the unit malfunctions...? Anyone know what the stats are

on failure of this ISO...? pump? But since I MAY improve I'd rather do RFA for

now and hopefully it will last a couple of years and I can improve enough to

avoid the pump. To each their own.

Thanks if anyone can advise about this battery less pump.

Lynne  

________________________________

From: Janice <faraway1@...>

spinal problems

Sent: Sat, April 9, 2011 7:54:58 PM

Subject: Re: Getting a SI injection

 

Arachnoiditis is scar tissue that forms anywhere around the spine. It wraps

itself around nerves and squuzes until it puts great pressure on the nerve or

cuts in into . The reason most people get Arachnoiditis is multiple surgeries

and/or injections in the spine. It is grown in the arachnoid layer of the spine.

You can get Arachnoiditis anywhere in the spine but it's almost always found in

the low back. It can cause intractable pain that even the strongest pain meds

will not help you. The injections can cause Arachnoiditis even one of them can

cause you a life time of misery. I was told in 1996 that I had Arachnoiditid but

the doctor and I both feel it was there long before 96. I started having back

trouble nad back surgery in 1970 when I was only 20 years old then after the

first surgery every 8 to 10 years afterwards I would have to have another

operation. I would turn to the injections when the pain was so bad I would have

done anything to get rid of it. The effects of the injections usually only give

you a limited amount of pain relief that doesn't last very long. There is no

long term solutation except pain control.You may consider the pain pump if the

pain cannot be controlled with meds. I am sorry this is so long but I want to

give you information. You really need to look this disease up and get all the

information you can and while your at it make up a list of questions to talk

with your doctor about.

Janice

Getting a SI injection

I am getting a SI injection through a scope on Tuesday and I am kind of nervous

on it, has anybody had it done and what can I expect?

Thanks

Nina Somers

----------------------------------------------------------

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.894 / Virus Database: 271.1.1/3561 - Release Date: 04/08/11

23:34:00

[Guest guest]

Thjat is where you should ask your doctor for statitistics. HIs statistics will

be based on the literature .  Any statistics provided by us will most likely be

anecdotal and not a true represenation. 

________________________________

From: Lynneat <lynnet20022002@...>

spinal problems

Sent: Sun, April 10, 2011 8:54:42 AM

Subject: Re: Getting a SI injection

 

Thanks for the data. I've read this before. But again, where are the

statistics...out of how many injections does one get this condition?

Can anyone provide that? So we can decide for ourselves...and close the subject?

That is MY last question anyway. You've provided the rest....thank you. Lynne

________________________________

From: The Carr's <klcmcc@...>

spinal problems

Sent: Sat, April 9, 2011 8:07:01 PM

Subject: Re: Getting a SI injection

 

Janice,

 According to a google search, Wikipedia states, " Arachnoiditis is a

neuropathic

disease caused by the inflammation of the arachnoid, one of the membranes that

surround and protect the nerves of the central nervous system, including the

brain and spinal cord. The arachnoid can become severely inflamed because of

adverse reactions to chemicals, infection from bacteria or viruses, as the

result of direct injury to the spine, chronic compression of spinal nerves, or

complications from spinal surgery or other invasive spinal procedures.

Inflammation can sometimes lead to the formation of scar tissue and adhesions

which can cause the spinal nerves to " stick " together. This can be extremely

painful especially if the last stage " Adhesive Arachnoiditis " is diagnosed,

although clinical findings may not match pain levels. In other words it may

appear mild on an MRI scan but the patient may be experiencing a great amount of

pain. "

It is a multi-factorial process that also indicates that there are links to

auto-immune problems as well and typically people that have it also have prior

back problems hence the need for treatment. The SI joint is not part of the

spinal cord, so by your telling a patient to not get an SI joint injection

because it can cause arachnoidits seems to me to either be a scare tactic or

misinformation.  Again you state, " Many people have had the injection using

the

scope and I can tell you this is very dangerous. "   So when you say, " many "

where

are you getting your data from and how is it being compared to the total amount

of SI joint injections done yearly without complications?  Again, my

recommendation for a patient who is considering an SI joint injection and is

afraid of getting arachnoiditis or having another complication is to talk to the

doctor.

________________________________

From: Janice <faraway1@...>

spinal problems

Sent: Sat, April 9, 2011 4:54:58 PM

Subject: Re: Getting a SI injection

 

Arachnoiditis is scar tissue that forms anywhere around the spine. It wraps

itself around nerves and squuzes until it puts great pressure on the nerve or

cuts in into . The reason most people get Arachnoiditis is multiple surgeries

and/or injections in the spine. It is grown in the arachnoid layer of the spine.

You can get Arachnoiditis anywhere in the spine but it's almost always found in

the low back. It can cause intractable pain that even the strongest pain meds

will not help you. The injections can cause Arachnoiditis even one of them can

cause you a life time of misery. I was told in 1996 that I had Arachnoiditid but

the doctor and I both feel it was there long before 96. I started having back

trouble nad back surgery in 1970 when I was only 20 years old then after the

first surgery every 8 to 10 years afterwards I would have to have another

operation. I would turn to the injections when the pain was so bad I would have

done anything to get rid of it. The effects of the injections usually only give

you a limited amount of pain relief that doesn't last very long. There is no

long term solutation except pain control.You may consider the pain pump if the

pain cannot be controlled with meds. I am sorry this is so long but I want to

give you information. You really need to look this disease up and get all the

information you can and while your at it make up a list of questions to talk

with your doctor about.

Janice

Getting a SI injection

I am getting a SI injection through a scope on Tuesday and I am kind of nervous

on it, has anybody had it done and what can I expect?

Thanks

Nina Somers

----------------------------------------------------------

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.894 / Virus Database: 271.1.1/3561 - Release Date: 04/08/11

23:34:00

[Guest guest]

True. Thank you.

________________________________

From: The Carr's <klcmcc@...>

spinal problems

Sent: Sun, April 10, 2011 12:03:56 PM

Subject: Re: Getting a SI injection

 

Thjat is where you should ask your doctor for statitistics. HIs statistics will

be based on the literature .  Any statistics provided by us will most likely be

anecdotal and not a true represenation. 

________________________________

From: Lynneat <lynnet20022002@...>

spinal problems

Sent: Sun, April 10, 2011 8:54:42 AM

Subject: Re: Getting a SI injection

 

Thanks for the data. I've read this before. But again, where are the

statistics...out of how many injections does one get this condition?

Can anyone provide that? So we can decide for ourselves...and close the subject?

That is MY last question anyway. You've provided the rest....thank you. Lynne

________________________________

From: The Carr's <klcmcc@...>

spinal problems

Sent: Sat, April 9, 2011 8:07:01 PM

Subject: Re: Getting a SI injection

 

Janice,

 According to a google search, Wikipedia states, " Arachnoiditis is a

neuropathic

disease caused by the inflammation of the arachnoid, one of the membranes that

surround and protect the nerves of the central nervous system, including the

brain and spinal cord. The arachnoid can become severely inflamed because of

adverse reactions to chemicals, infection from bacteria or viruses, as the

result of direct injury to the spine, chronic compression of spinal nerves, or

complications from spinal surgery or other invasive spinal procedures.

Inflammation can sometimes lead to the formation of scar tissue and adhesions

which can cause the spinal nerves to " stick " together. This can be extremely

painful especially if the last stage " Adhesive Arachnoiditis " is diagnosed,

although clinical findings may not match pain levels. In other words it may

appear mild on an MRI scan but the patient may be experiencing a great amount of

pain. "

It is a multi-factorial process that also indicates that there are links to

auto-immune problems as well and typically people that have it also have prior

back problems hence the need for treatment. The SI joint is not part of the

spinal cord, so by your telling a patient to not get an SI joint injection

because it can cause arachnoidits seems to me to either be a scare tactic or

misinformation.  Again you state, " Many people have had the injection using

the

scope and I can tell you this is very dangerous. "   So when you say, " many "

where

are you getting your data from and how is it being compared to the total amount

of SI joint injections done yearly without complications?  Again, my

recommendation for a patient who is considering an SI joint injection and is

afraid of getting arachnoiditis or having another complication is to talk to the

doctor.

________________________________

From: Janice <faraway1@...>

spinal problems

Sent: Sat, April 9, 2011 4:54:58 PM

Subject: Re: Getting a SI injection

 

Arachnoiditis is scar tissue that forms anywhere around the spine. It wraps

itself around nerves and squuzes until it puts great pressure on the nerve or

cuts in into . The reason most people get Arachnoiditis is multiple surgeries

and/or injections in the spine. It is grown in the arachnoid layer of the spine.

You can get Arachnoiditis anywhere in the spine but it's almost always found in

the low back. It can cause intractable pain that even the strongest pain meds

will not help you. The injections can cause Arachnoiditis even one of them can

cause you a life time of misery. I was told in 1996 that I had Arachnoiditid but

the doctor and I both feel it was there long before 96. I started having back

trouble nad back surgery in 1970 when I was only 20 years old then after the

first surgery every 8 to 10 years afterwards I would have to have another

operation. I would turn to the injections when the pain was so bad I would have

done anything to get rid of it. The effects of the injections usually only give

you a limited amount of pain relief that doesn't last very long. There is no

long term solutation except pain control.You may consider the pain pump if the

pain cannot be controlled with meds. I am sorry this is so long but I want to

give you information. You really need to look this disease up and get all the

information you can and while your at it make up a list of questions to talk

with your doctor about.

Janice

Getting a SI injection

I am getting a SI injection through a scope on Tuesday and I am kind of nervous

on it, has anybody had it done and what can I expect?

Thanks

Nina Somers

----------------------------------------------------------

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 9.0.894 / Virus Database: 271.1.1/3561 - Release Date: 04/08/11

23:34:00

[Guest guest]

Well, kinda back to the question. From my perspective and what it is worth-I had

terrible pain in my lower back (we won't go into the c and t spine issues that

are way worse) but anyway I couldn't sit, stand, sleep, walk, it was

excruciating. I had left and right si inj with flouroscopy.  I felt some

pressure with it but not what you would really call pain. My left side had held

up from the end of Dec til now, my right side I had to get a second inj but am

doing good now. Yes I still get pain sometimes but at least now I can walk

across the room. I would say it improved at least 80 percent. It was totally

worth it. I will tell you medicare doesn't cover the flouroscopy part, and

because my medicare wouldn't my secondary wouldnt either but it was only about

180 dollars. Let me know if you have any other questions-by now you may have

already have had it done. Hope it went well and keep us updated.

...........Lora  in Michigan but moving to Florida next

week YEAH

We who choose to surround ourselves with lives even more temporary than our own

live within a fragile circle, easily and often breached. Yet still, we would

choose to live no other way. - Irving Townsend

[Guest guest]

Doctors tend to under report AA and they also tend to call it " failed back

surgery " or many other things because if they called it what it is many times it

is CAUSED by the doctor themselves. I have to wonder if they don't want us to

know the real statistics because they don't want to admit that they broke their

own oath " first do no harm. "

http://www.gaia-health.com/articles/000005-Arachnoiditis-The-Deep-Dark-Secret-Of\

-The-Medical-System.shtml

>

> Thjat is where you should ask your doctor for statitistics. HIs statistics

will

> be based on the literature .  Any statistics provided by us will most likely

be

> anecdotal and not a true represenation. 

>

>

>

>

>

> ________________________________

> From: Lynneat <lynnet20022002@...>

> spinal problems

> Sent: Sun, April 10, 2011 8:54:42 AM

> Subject: Re: Getting a SI injection

>

>  

> Thanks for the data. I've read this before. But again, where are the

> statistics...out of how many injections does one get this condition?

>

> Can anyone provide that? So we can decide for ourselves...and close the

subject?

>

> That is MY last question anyway. You've provided the rest....thank you. Lynne

>

> ________________________________

> From: The Carr's <klcmcc@...>

> spinal problems

> Sent: Sat, April 9, 2011 8:07:01 PM

> Subject: Re: Getting a SI injection

>

>  

> Janice,

>

>  According to a google search, Wikipedia states, " Arachnoiditis is a

neuropathic

>

>

> disease caused by the inflammation of the arachnoid, one of the membranes that

> surround and protect the nerves of the central nervous system, including the

> brain and spinal cord. The arachnoid can become severely inflamed because of

> adverse reactions to chemicals, infection from bacteria or viruses, as the

> result of direct injury to the spine, chronic compression of spinal nerves, or

> complications from spinal surgery or other invasive spinal procedures.

> Inflammation can sometimes lead to the formation of scar tissue and adhesions

> which can cause the spinal nerves to " stick " together. This can be extremely

> painful especially if the last stage " Adhesive Arachnoiditis " is diagnosed,

> although clinical findings may not match pain levels. In other words it may

> appear mild on an MRI scan but the patient may be experiencing a great amount

of

>

>

> pain. "

>

> It is a multi-factorial process that also indicates that there are links to

> auto-immune problems as well and typically people that have it also have prior

> back problems hence the need for treatment. The SI joint is not part of the

> spinal cord, so by your telling a patient to not get an SI joint injection

> because it can cause arachnoidits seems to me to either be a scare tactic or

> misinformation.  Again you state, " Many people have had the injection using

the

> scope and I can tell you this is very dangerous. "   So when you say, " many "

where

>

>

> are you getting your data from and how is it being compared to the total

amount

> of SI joint injections done yearly without complications?  Again, my

> recommendation for a patient who is considering an SI joint injection and is

> afraid of getting arachnoiditis or having another complication is to talk to

the

>

>

> doctor.

>

> ________________________________

> From: Janice <faraway1@...>

> spinal problems

> Sent: Sat, April 9, 2011 4:54:58 PM

> Subject: Re: Getting a SI injection

>

>  

> Arachnoiditis is scar tissue that forms anywhere around the spine. It wraps

> itself around nerves and squuzes until it puts great pressure on the nerve or

> cuts in into . The reason most people get Arachnoiditis is multiple surgeries

> and/or injections in the spine. It is grown in the arachnoid layer of the

spine.

>

>

> You can get Arachnoiditis anywhere in the spine but it's almost always found

in

> the low back. It can cause intractable pain that even the strongest pain meds

> will not help you. The injections can cause Arachnoiditis even one of them can

> cause you a life time of misery. I was told in 1996 that I had Arachnoiditid

but

>

>

> the doctor and I both feel it was there long before 96. I started having back

> trouble nad back surgery in 1970 when I was only 20 years old then after the

> first surgery every 8 to 10 years afterwards I would have to have another

> operation. I would turn to the injections when the pain was so bad I would

have

> done anything to get rid of it. The effects of the injections usually only

give

> you a limited amount of pain relief that doesn't last very long. There is no

> long term solutation except pain control.You may consider the pain pump if the

> pain cannot be controlled with meds. I am sorry this is so long but I want to

> give you information. You really need to look this disease up and get all the

> information you can and while your at it make up a list of questions to talk

> with your doctor about.

> Janice

>

> Getting a SI injection

>

> I am getting a SI injection through a scope on Tuesday and I am kind of

nervous

> on it, has anybody had it done and what can I expect?

> Thanks

> Nina Somers

>

> ----------------------------------------------------------

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 9.0.894 / Virus Database: 271.1.1/3561 - Release Date: 04/08/11

> 23:34:00

>

>

[Guest guest]

SI Injections are nowhere near the spinal cord dura so they are pretty safe. I

had one of those too the only problem I had was the usual side effects of

steroids.

>

> Well, kinda back to the question. From my perspective and what it is worth-I

had terrible pain in my lower back (we won't go into the c and t spine issues

that are way worse) but anyway I couldn't sit, stand, sleep, walk, it was

excruciating. I had left and right si inj with flouroscopy.  I felt some

pressure with it but not what you would really call pain. My left side had held

up from the end of Dec til now, my right side I had to get a second inj but am

doing good now. Yes I still get pain sometimes but at least now I can walk

across the room. I would say it improved at least 80 percent. It was totally

worth it. I will tell you medicare doesn't cover the flouroscopy part, and

because my medicare wouldn't my secondary wouldnt either but it was only about

180 dollars. Let me know if you have any other questions-by now you may have

already have had it done. Hope it went well and keep us updated.

...........Lora  in Michigan but moving to Florida next

> week YEAH

>

> We who choose to surround ourselves with lives even more temporary than our

own live within a fragile circle, easily and often breached. Yet still, we would

choose to live no other way. - Irving Townsend

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

I hate the words failed back syndrome. It implies that the surgery failed

somehow. It made me feel as if it were somehow my fault which was not true. Your

right also a lot of diagnosis that state failed back syndrome are actually

Arachnoiditis. If doctors would look at the MRI's and see Arachnoiditis they

should tell the patient and give them a few options as to how they are going to

get help.

Janice

Getting a SI injection

>

> I am getting a SI injection through a scope on Tuesday and I am kind of

nervous

> on it, has anybody had it done and what can I expect?

> Thanks

> Nina Somers

>

> ----------------------------------------------------------

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 9.0.894 / Virus Database: 271.1.1/3561 - Release Date: 04/08/11

> 23:34:00

>

>

[Guest guest]

just for information sake...

http://www.spineuniverse.com/conditions/arachnoiditis

hoping and praying for pain free days for you all!

Mark

________________________________

From: Me <ellijaygal@...>

spinal problems

Sent: Mon, April 11, 2011 10:34:17 AM

Subject: Re: Getting a SI injection

SI Injections are nowhere near the spinal cord dura so they are pretty safe. I

had one of those too the only problem I had was the usual side effects of

steroids.

>

> Well, kinda back to the question. From my perspective and what it is worth-I

>had terrible pain in my lower back (we won't go into the c and t spine issues

>that are way worse) but anyway I couldn't sit, stand, sleep, walk, it was

>excruciating. I had left and right si inj with flouroscopy. I felt some

>pressure with it but not what you would really call pain. My left side had held

>up from the end of Dec til now, my right side I had to get a second inj but am

>doing good now. Yes I still get pain sometimes but at least now I can walk

>across the room. I would say it improved at least 80 percent. It was totally

>worth it. I will tell you medicare doesn't cover the flouroscopy part, and

>because my medicare wouldn't my secondary wouldnt either but it was only about

>180 dollars. Let me know if you have any other questions-by now you may have

>already have had it done. Hope it went well and keep us updated.

>..........Lora in Michigan but moving to Florida next

> week YEAH

>

> We who choose to surround ourselves with lives even more temporary than our

own

>live within a fragile circle, easily and often breached. Yet still, we would

>choose to live no other way. - Irving Townsend

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

THANK YOU. Great link! Will take to my doc.

________________________________

From: Mark R Hardin <gilachub@...>

spinal problems

Sent: Wed, April 13, 2011 4:06:31 PM

Subject: Re: Getting a SI injection

 

just for information sake...

http://www.spineuniverse.com/conditions/arachnoiditis

hoping and praying for pain free days for you all!

Mark

________________________________

From: Me <ellijaygal@...>

spinal problems

Sent: Mon, April 11, 2011 10:34:17 AM

Subject: Re: Getting a SI injection

SI Injections are nowhere near the spinal cord dura so they are pretty safe. I

had one of those too the only problem I had was the usual side effects of

steroids.

>

> Well, kinda back to the question. From my perspective and what it is worth-I

>had terrible pain in my lower back (we won't go into the c and t spine issues

>that are way worse) but anyway I couldn't sit, stand, sleep, walk, it was

>excruciating. I had left and right si inj with flouroscopy. I felt some

>pressure with it but not what you would really call pain. My left side had held

>up from the end of Dec til now, my right side I had to get a second inj but am

>doing good now. Yes I still get pain sometimes but at least now I can walk

>across the room. I would say it improved at least 80 percent. It was totally

>worth it. I will tell you medicare doesn't cover the flouroscopy part, and

>because my medicare wouldn't my secondary wouldnt either but it was only about

>180 dollars. Let me know if you have any other questions-by now you may have

>already have had it done. Hope it went well and keep us updated.

>..........Lora in Michigan but moving to Florida next

> week YEAH

>

> We who choose to surround ourselves with lives even more temporary than our

own

>

>live within a fragile circle, easily and often breached. Yet still, we would

>choose to live no other way. - Irving Townsend

>

>

>

>

>

>

>

>

>

>

>