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Todd,

I read some of the other replies about keeping the water out. I

noticed some of the pros and cons of the specially fitted ear plugs.

My son has had to keep his ear dry since his surgery, so his doctor

recommended silicone ear plugs. We buy a 12 pack of them at the drug

store. They're pliable, and don't stick 'into' the ear canal - you

just roll it into a ball, put it over the canal, then stretch it out

until it covers any open spaces. It seems to just kind of stick to

the skin, and doesn't come off until you take it off. You might want

to ask your doctor if this is something that would work for you. The

directions say that you can re-use them, but I always just thrown the

used one out and use a new one the next time (they're about $5-$6 for

a pack of 12).

> Does anything work to keep the water out?, Todd

> Re: Re: Scar tissue

>

>

> " melissa2541 " <melissa2541@y...> writes:

>

> > Hi Pete,

> >

> > Welcome to the group!

>

> Thanks :-)

>

> > My first surgery was in March of last year. My scar was really

numb

> > at first and it twinged a lot. I also had the intermittent

pain that

> > felt like something sharp was poking into the side of my head

for

> > months. That was the worst! It never lasted very long - I

> > don't know, maybe 15-30 seconds. But, sometimes it was painful

> > enough to bring tears to my eyes. I personally never

experienced the

> > restricted head movement, however I can definitely understand

the

> > cold effecting you.

>

> I know what you mean with regard to the pain. Sometimes the pain

is

> in the ear, other times above the scar on the side of my head. I

> understand there's a second, small, scar where the camera goes in.

> That might be the cause of the pain on the side of my head.

>

> The other thing I noticed the other night was a ticking sound in

my

> ear. It almost felt and sounded like there was some activity

going on

> in there. Pretty weird, but it only happened that one night.

>

> > My scar is pretty much normal now, no more numbness and I can't

> > even remember when I last experienced the stabbing pain or any

> > twinges.

>

> :-)

>

> > The second operation on my ear was in August. My doctor was

able to

> > do it through the ear canal so I didn't have to start all over

on

> > the scar healing. Yea! I go back on Monday for my 4-month

checkup

> > (even though it has been 5 ½ months .. lol).

>

> Did you have the wall down op then? I've read differing opinions

on

> letting water into the ear canal after wall down surgery. Some

say

> don't do it, others that you may experience some nausea or

dizziness

> if the water is cold.

>

> I hope everything works out for you on Monday.

>

> > Hey, keep posting and don't worry about sounding " woe is

> > me " . We all understand and besides, you didn't moan or

> > complain too much at all!

>

> I will :-) Finding a group of people on the net who /really/

> understand is a godsend. I just wish I'd come across the group

last

> summer when I was worrying myself silly!

>

> --

> Pete

>

> pete@m...

> -------------------------------------------------------------

> MaVerick - Open Source MultiValue Database Management System

> Check out the website -> http://www.maverick-dbms.org

>

>

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dear lisa

what a fabulous idea....for numerous reasons.

first and foremost, when you are diagnosed you tend to make the jump from

numerous ear infections, which you are told will get sorted with

anti-biotics, or the simple insertion of a couple of plastic tubes in your

ear drums to help it dry up.....to suddenly being told that you have this

" rare type of benign tumour " that in ALL cases is " going to require surgical

removal " which by and large is going to involve a doctor " drilling in your

head " and with the possiblity that you " might lose some or all of hearing "

!!!!!

I'll say that there's a need for somewhere that explains what this is all

about!

secondly....it isnt until you start reading the posts, the masses of info out

there etc...that you start to understand what it all means. to have it

explained clearly and simply in understandable language is a MUST!

i had prior medical knowledge, but i was at a loss as to what to ask, without

some info first. the problem was deciphering the basic bits, to be able to

start building the picture up with the more complicated blocks/articles/info

etc that is available.

if there is anything i can do to help...let me know. i am based in the UK.

i also dont know of anyone famous with this condition, but i shall ask a UK

based charity called " defeating deafness " if they know? they are currently

the only organisation in the UK that actually deals with research on

cholesteatoma at the moment, or infact any medical research into deafness at

all. their web address is...

http://www.defeatingdeafness.org.uk/

they may be able to help you in your/our quest

kind regards

julie

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" lmazzarell " <lmazzarell@...> writes:

> To answer the first question, yes, I do envision it to become

> international. I've seen quite a few people from Europe and Canada

> write in to this group. I'll start close to home, with the United

> States, but would like to be able to expand the database of doctors,

> etc. to other countries if possible.

Perhaps the value of this database could be that it's contributions

are based on people's experiences. This would make including

regionally specific information from around the world easier,

perhaps. I would imagine that you might run into problems including

negative references though.

> As far as the other web site, you do have the right URL, I would try

> it again.

I tried the link from the group's bookmarks page, and it suddenly

worked! I'm slowly working my way through the testimonials - exactly

the type of information I was looking for :-)

--

Pete

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>

> Perhaps the value of this database could be that it's contributions

> are based on people's experiences. This would make including

> regionally specific information from around the world easier,

> perhaps. I would imagine that you might run into problems including

> negative references though.

>-

> Pete

Yes, I've thought about this, and I suppose once there is a board in

place this could be bounced around. Any suggestions are more than

welcome! I think that I would have to have some sort of guidelines

in place for doctors to be listed on the database. For example,

references from patients perhaps. Do we go so far as to only include

physicians that have gone to school for the extra training to be an

Otologist/Neurotologist? How much experience with this type of

surgery would be sufficient for listing -- 1 patient; 2 patients; 3

patients per week? Probably a subcommitte from the board of

directors that would include individuals (most likely from this

group) that have had cholesteatoma, and doctors that we know are well

trained in the field, would have to be formed to decide on the

guidelines, and once that is done start putting a list together. As I

mentioned before, I'd like everyone's input!

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Great idea, . I will have to talk to Troy's doctor and see what he

thinks (he's a neurotologist, and a very good one). Thanks for doing this.

Please let me know if there's anything I can do.

Re: Scar tissue

>

> Perhaps the value of this database could be that it's contributions

> are based on people's experiences. This would make including

> regionally specific information from around the world easier,

> perhaps. I would imagine that you might run into problems including

> negative references though.

>-

> Pete

Yes, I've thought about this, and I suppose once there is a board in

place this could be bounced around. Any suggestions are more than

welcome! I think that I would have to have some sort of guidelines

in place for doctors to be listed on the database. For example,

references from patients perhaps. Do we go so far as to only include

physicians that have gone to school for the extra training to be an

Otologist/Neurotologist? How much experience with this type of

surgery would be sufficient for listing -- 1 patient; 2 patients; 3

patients per week? Probably a subcommitte from the board of

directors that would include individuals (most likely from this

group) that have had cholesteatoma, and doctors that we know are well

trained in the field, would have to be formed to decide on the

guidelines, and once that is done start putting a list together. As I

mentioned before, I'd like everyone's input!

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Hi,

I am new to this chat room and I have never joined a chat room before,

but I really want to find out about other people's experience with cholesteatomas,

and let you know about mine. My son is seven years old and has had

ear infections his whole life. He had his first pair of tubes when

he was a year old. After that his infections seemed to subside for

awhile, but when he was about 3 he started getting more and more infections.

His pediatrician kept giving him antibiotics, and when I mentioned his

hearing loss he said it due to water in the ear and to wait it out.

When he started Kindergarten the teacher pushed the issue with me saying

that he was simply not hearing anything. Other kids had to tap him

on the shoulders, or look at him directly if they wanted to be heard.

At this I finally insisted that we see an ENT specialist. The pediatrician

never saw anything he felt was too out of the ordinary in his ear.

The ENT specialist immediately knew he had severe problems and arranged

for a CAT scan--he suspected cholesteaetomas in both ears. His suspicions

were confirmed by the scans but he felt the cholesteatomas were way too

extensive and we needed to go to another specialist at UCSF or Stanford.

The first specialist we saw at UC said that he had a cholesteatoma but

that the risk of going in and operating was more dangerous than the cholesteatoma

itself and that we should get him a hearing aid immediately. If the

cholesteatoma started growing again he would have to operate. This

prognosis was too difficult for us to take and we decided to get a second

opinion. We went to the California Ear Institute and we got an entirely

different opinon. His doctor said there is no way we could do nothing--he

would have to undergo four surgeries--two for each ear. The first

would be to remove his cholesteatoma, and to rebuild the ear drum and the

second would be to put in a prosthetic for his middle ear bones, which

were all destroyed by the tumor. To me his doctor is absolutely amazing,

and a godsend. He has undergone 2 of his 4 surgeries and his hearing

has improved dramatically . They will start to operate on his right

ear in February, and hopefully we will have the same outcome. I am

a bit nervous today because for the first since his operations I saw some

drainage coming from his left ear and I am just hoping that this is normal

and due to fluid in the ears that is being drained. Anyway I am just

curious to hear other people's stories and I am very curious to see if

these operations had long lasting positive results. If anyone has

a situation similar to mine I would love to hear from you, and of course

if anyone wanted to know about the doctors and my experiences with them

I would be happy to share that also.

lmazzarell wrote:

>

> Perhaps the value of this database could be that it's contributions

> are based on people's experiences. This would make including

> regionally specific information from around the world easier,

> perhaps. I would imagine that you might run into problems including

> negative references though.

>-

> Pete

Yes, I've thought about this, and I suppose once there is a board

in

place this could be bounced around. Any suggestions are more

than

welcome! I think that I would have to have some sort of guidelines

in place for doctors to be listed on the database. For example,

references from patients perhaps. Do we go so far as to only

include

physicians that have gone to school for the extra training to be

an

Otologist/Neurotologist? How much experience with this type

of

surgery would be sufficient for listing -- 1 patient; 2 patients;

3

patients per week? Probably a subcommitte from the

board of

directors that would include individuals (most likely from this

group) that have had cholesteatoma, and doctors that we know are

well

trained in the field, would have to be formed to decide on the

guidelines, and once that is done start putting a list together.

As I

mentioned before, I'd like everyone's input!

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" Terri Potts " <tpotts@...> writes:

> Great idea, . I will have to talk to Troy's doctor and see what he

> thinks (he's a neurotologist, and a very good one). Thanks for doing this.

> Please let me know if there's anything I can do.

I concur Terri - I'm due to see my consultant in February, so will

mention this too him also. I'm also determined to give him the url's

of this list and 's website, as having these at the outset would

have helped me immensely.

--

Pete

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Thanks for sharing your information . I would be interested in

knowing the doctors names for use when we start putting together a

database. I think it is as important to know which doctors we want

to avoid as it is to know which doctors to review for inclusion in

the database. (We won't list the ones we want to avoid) It sounds

like you finally were able to find an excellent doctor for your

child, as we did. My son's was very extensive in his left ear, and

was removed just in time before reaching his brain. His ear canal

was re-built, new bones of hearing, and new ear drum. His last

hearing test showed that his hearing is about perfect in that ear!

They'll go back in June to make sure they got everything, but this

doctor has an excellent track record so we're very optimistic.

Sounds like your son will have the same outcome.

>

> > >

> > > Perhaps the value of this database could be that it's

contributions

> > > are based on people's experiences. This would make including

> > > regionally specific information from around the world easier,

> > > perhaps. I would imagine that you might run into problems

including

> > > negative references though.

> > >-

> > > Pete

> >

> > Yes, I've thought about this, and I suppose once there is a board

in

> > place this could be bounced around. Any suggestions are more than

> > welcome! I think that I would have to have some sort of

guidelines

> > in place for doctors to be listed on the database. For example,

> > references from patients perhaps. Do we go so far as to only

include

> > physicians that have gone to school for the extra training to be

an

> > Otologist/Neurotologist? How much experience with this type of

> > surgery would be sufficient for listing -- 1 patient; 2 patients;

3

> > patients per week? Probably a subcommitte from the board of

> > directors that would include individuals (most likely from this

> > group) that have had cholesteatoma, and doctors that we know are

well

> > trained in the field, would have to be formed to decide on the

> > guidelines, and once that is done start putting a list together.

As I

> > mentioned before, I'd like everyone's input!

> >

> >

> >

> >

> >

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Thank you so much! I am definitely going to check out there web site

and try to get in touch with them. I've been in touch with the

Children's Hearing Institute here in America, and would like to see

how I can get them involved. It would be nice to have a similar

organization in the Uk that could help out! keep in touch!

> dear lisa

>

> what a fabulous idea....for numerous reasons.

>

> first and foremost, when you are diagnosed you tend to make the

jump from

> numerous ear infections, which you are told will get sorted with

> anti-biotics, or the simple insertion of a couple of plastic tubes

in your

> ear drums to help it dry up.....to suddenly being told that you

have this

> " rare type of benign tumour " that in ALL cases is " going to require

surgical

> removal " which by and large is going to involve a doctor " drilling

in your

> head " and with the possiblity that you " might lose some or all of

hearing "

> !!!!!

>

> I'll say that there's a need for somewhere that explains what this

is all

> about!

>

> secondly....it isnt until you start reading the posts, the masses

of info out

> there etc...that you start to understand what it all means. to

have it

> explained clearly and simply in understandable language is a MUST!

> i had prior medical knowledge, but i was at a loss as to what to

ask, without

> some info first. the problem was deciphering the basic bits, to be

able to

> start building the picture up with the more complicated

blocks/articles/info

> etc that is available.

>

> if there is anything i can do to help...let me know. i am based in

the UK.

> i also dont know of anyone famous with this condition, but i shall

ask a UK

> based charity called " defeating deafness " if they know? they are

currently

> the only organisation in the UK that actually deals with research

on

> cholesteatoma at the moment, or infact any medical research into

deafness at

> all. their web address is...

> http://www.defeatingdeafness.org.uk/

> they may be able to help you in your/our quest

> kind regards

> julie

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  • 1 year later...
Guest guest

Hi joyce, this could be a valid point, however I don't

see it being the problem in all cases, especially

children. My daughter diagonsed with this condition

when she was 11. Was very rarely sick prior to this

and was perscribed medicine not tablets which would be

the case with most children. So the tablet theory

would not cause the scar tissue in their e's. So there

must be some other cause for A.

Sharon

Mother of Amy

--- joychasfaith <joychasfaith@...> wrote:

---------------------------------

When I had my surgery June 4th my easy laproscopic

turned into an

open procedure. One of the reasons (of several) was

the immense

scar tissue I had. It was more than usual, which does

not hinder

good results, but really makes surgery and recovery

more complicated.

My Mayo surgeon said I did all the right things prior.

He said it

was appropriate to try dilatation (2), and botox (I

had 3), so they

don't want to put too much emphasis on that being the

main problem,

because they all first treat " A " with these

procedures.

My Milw general GI (Achalasia research team) is very

suspicious that

there is a deeper issue that causes " hidden " scar

tissue not seen or

caused by their treatments. In my case he believes it

was

MEDICATION that never completely passed through the

" E " , (a reason

could be by not drinking enough water to flush it

through). It then

scared the " E " lining and over time it was covered up

by new tissue

trying to heal itself. So, when they go down to look

around with

their endoscope, they really can't see any scares that

have healed,

so everything appears normal. This scaring could have

damaged the

nerves in the " E " or " LES " which also could have

caused " A " . This

team is having a medical convention in a couple weeks

to discuss new

findings and my Dr. asked if he could present my case

history to

them to demonstrate his theory.

With my back scholiosis, since 13, I have been popping

IBPROPHEN

pills in my mouth for years w/or/without water (seeing

as they are

so tiny). But my onset of " A " came on instantly one

weekend, not

gradual over years, and within a 2 yrs time the LES

completely

closed and I had my myotomy - which by the way I feel

is a total

success. Prior to one of my botox treatments I popped

2 Ibprophen

pills in my mouth with one or two gulps of water

because I had a

severe headache from regergitation, that just wouldn't

go away.

When my GI got ready to do the botox " 6 days

later " ...he saw 2 tiny

red burn marks on my " E " and really scolded me for

taking those

pills. So, he may be onto something here.

Do any of you recall taking any particular medication

on a regular

basis, that may have stuck in your " E " ? But then, how

would you

know, especially if your symptoms were gradual over

many years? Sure

would be nice if they figure out what causes " A " soon,

and how to

reverse the damage.

Joyce - WI

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Guest guest

Joyce,

I have suffered with A. for a very long time. Before I was actually

dignosis with A. I was treated at a NYC hospital for dehydration

and GERD. But one thing the Doctor told me was about the amount of

mortin (IBPROPHEN) I took. That it caused my whole problem. Anyway,

when I came back to Florida I saw my primary doctor who ordered a

swallow study. Where the Radiologist dignosised me with A. But

before that I had taken the medication with or with out water. I

think you may be on to something. I still take my beloved mortin.

- In achalasia , " joychasfaith " <joychasfaith@y...>

wrote:

> When I had my surgery June 4th my easy laproscopic turned into an

> open procedure. One of the reasons (of several) was the immense

> scar tissue I had. It was more than usual, which does not hinder

> good results, but really makes surgery and recovery more

complicated.

>

> My Mayo surgeon said I did all the right things prior. He said it

> was appropriate to try dilatation (2), and botox (I had 3), so

they

> don't want to put too much emphasis on that being the main

problem,

> because they all first treat " A " with these procedures.

>

> My Milw general GI (Achalasia research team) is very suspicious

that

> there is a deeper issue that causes " hidden " scar tissue not seen

or

> caused by their treatments. In my case he believes it was

> MEDICATION that never completely passed through the " E " , (a reason

> could be by not drinking enough water to flush it through). It

then

> scared the " E " lining and over time it was covered up by new

tissue

> trying to heal itself. So, when they go down to look around with

> their endoscope, they really can't see any scares that have

healed,

> so everything appears normal. This scaring could have damaged the

> nerves in the " E " or " LES " which also could have caused " A " . This

> team is having a medical convention in a couple weeks to discuss

new

> findings and my Dr. asked if he could present my case history to

> them to demonstrate his theory.

>

> With my back scholiosis, since 13, I have been popping IBPROPHEN

> pills in my mouth for years w/or/without water (seeing as they are

> so tiny). But my onset of " A " came on instantly one weekend, not

> gradual over years, and within a 2 yrs time the LES completely

> closed and I had my myotomy - which by the way I feel is a total

> success. Prior to one of my botox treatments I popped 2 Ibprophen

> pills in my mouth with one or two gulps of water because I had a

> severe headache from regergitation, that just wouldn't go away.

> When my GI got ready to do the botox " 6 days later " ...he saw 2

tiny

> red burn marks on my " E " and really scolded me for taking those

> pills. So, he may be onto something here.

>

> Do any of you recall taking any particular medication on a regular

> basis, that may have stuck in your " E " ? But then, how would you

> know, especially if your symptoms were gradual over many years?

Sure

> would be nice if they figure out what causes " A " soon, and how to

> reverse the damage.

>

> Joyce - WI

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  • 10 months later...
Guest guest

I don't know if it is serious or routine, but after my partial CWD,

my doc told me I had scar tissue and I usually have to get my ear

cleaned at every appointment.

~

> Has anyone else had problems with scar tissue growing back? I had

a

> 4 week post op(CWD) appt today he removed some scar tissue. I had

> scar tissue form from previous surgery 5 years ago also. Can he

keep

> cleaning it out if it keeps coming back? I don't believe everyone

> gets it, I am just hoping it is not serious. Also, is scar tissue

> removal part of the routine cleanings that are needed after a CWD?

> Thanx for your feedback!

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  • 7 months later...

Boy, does that sound like my son's story. He too had to have his canal enlarged because it kept closing up. His canal opening was totally relocated in the last reconstruction. That was last December (2003). But now, so far, so good. About the swimming, my son uses an earplug but is not a competitive swimmer, he just like to body surf in the ocean and swim in the pool. His custom made ear plug works fine for this. My oldest son swims competitively but since my c-toma son was diagnosed at 6 years old, it was not an option for him. There was 2 years he could not swim at all. That was a bummer.

I don't believe the ctoma can form behind the canal because our sons no longer have a canal (The canal is basically the mastoid bone that has little air pockets that the c-toma loves to live. ) My son's doc told us that he can now see and clean out the c-toma.

Hope that helps

Dorothy

scar tissue

My son is 14. He has had 4 surgeries. Before the third surgery we were told with some certainty that the doctor would be putting in the prosthetic bones which the CT had destroyed. Durring surgery the doctor was astonishted at the progression of the CT. He had never seen one grow so much in 6 months. With that the doctor resolved to do CWD. The problem with my son now is that scar tissue grows exponetially constantly closing his canal. His forth surgery was to basically carve out the canal to see in. After the last surgery the doc. put an even larger wick (plug). This seemed to work well the canal formed well and that was it. By the time two months had passed My sons ear started to close again forcing the doctor to have to put in another wick (not fun). My concern is that although the CT formed behind the eardrum initially can it be behind the canal. After the forth surgery we were reassured that tha CWD really takes the need for surgery down. Which we told my son. Sometimes I dont want to tell him any good news because he is crushed everytime or so it seems. Dont worry his spirits are better than mine.

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  • 3 months later...
Guest guest

Hi Tamara - no one has mentioned it before to my knowledge. Tell us more.

Who has been told they have scar tissue in that way? When were they operated

on and what was done. There is not usually scar tissue unless there is

surgery or trauma of some sort. Scar tissue is the body's way of healing a

cut or tear, but some people have a problem in that their body makes excess

scar tissue.

Hope this helps.

Joan

Scar Tissue

>I was wondering if anyone has had scar tissue form to the back of your

> heart from the E? Wondering if this was fairly common or not? Thank

> you Tamara in Utah

>

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Guest guest

I had my open hellers in 95' and when they opened me up they said scar

tissue had formed to the back of my heart from my E. I have been

having alot of nccp's and my husband is worried that the scar tissue

is reforming and is making go to my doc for an MRI to see if it is or

not I was just wondering if anyone else has had this happen thank you

Tamara in Utah

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  • 8 months later...

Thank you, for how long?

Re: Scar tissue

MSM capsules taken daily (about six 1,000mg caps a day) will get rid of

internal scar tissue.

Yours truly,

Victorio

.............................................

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> MSM capsules taken daily (about six 1,000mg caps a day) will get rid

> of internal scar tissue. Yours truly, Victorio

I disagree with Victorio's assertion that MSM dissolves scar

tissue. MSM supplies organic sulphur needed to form sulphur-based

amino acids. It tends to improve and mainain tissue flexibility,

but this has nothing to do with scar tissue dissolution and

resorption, which will progress on its own, taking many years.

This resorption process can be speeded up by breaking down the

scar tissue with metabolic enzymes taken on an empty stomach.

(This is NOT the same as 'digestive' enzymes you take with a

meal)

Some metabolic enzymes are fibrinolytic; that is, they reduce

bruising, thick blood and spontaneous clotting that often occurs

with age; this will eliminate the need for dangerous

anticoagulants like warfarin. Other enzymes are proteolytic,

which means they handily dissolve other proteins than the

fibrinolytics do. Together they have been proven to dissolve

adhesions, fibroids, fibrosis, all of which are components of

scar tissue.

I've attached below a newspaper article from October 2005 that

explains it more fully.

BlockBuster All Clear contains several of these enzymes; its main

uses are to dissolve clotting and plaque, improve circulation,

and save diabetic limbs from amputation, and dissolve scars and

fibrosis. This blend can be compared to anything else on the

market, in price, potency and effect, including the Neprinol

mentioned below. BlockBuster All Clear is available in four or

five countries. http://www.goodhealth.nu/us/1400

Duncan Crow

-------------------------------------------------------

Ladies' cure for the discomfort of endometriosis, fibroids and

adhesions

Body Electric

I used the 'cure' word deliberately because, while researching

this for a friend who has adhesions and cysts, I found that this

class of therapy is unsurpassed, medical, natural or otherwise,

for safely dissolving fibrosis and adhesions. Fibromyalgia

patients would be impressed to learn the therapy does not

discriminate between fibrosis and arterial blockages, but the

therapy should interest everyone of both sexes.

This subject is of general interest because after about age 27 or

so EVERYONE experiences a reduced output of anti-clotting

enzymes, so tissues begin to lose their elasticity and organs

begin to shrink, harden and reduce function as fibrosis begins to

accumulate. Fibrosis is the leading cause of organ failure in

aging, and enzyme therapy to reduce this occurrence represents a

very powerful ounce of prevention that makes tissues, organs and

arteries more resilient, less blocked and more functional again

in a very short time.

A diagram of adhesions, online at tinyurl.com/blc28, comes with

the description, " Adhesions are strands of scar tissue that form

in response to abdominal surgery and extend beyond the specific

site of incision. Scar tissue that mends the incision is normal,

but the adhesions form additionally under some circumstances that

are not fully understood. "

How adhesions are formed may not be fully researched, but we

know they occur particularly in older patients who do not have

enough enzymes to dissolve the fibrin, and we also know that the

peer-reviewed journals have contained information on preventing

and dissolving adhesions and scars for many years. " The

prevention of peritoneal adhesions by papain " was published in

ls of Surgery in 1936, " Use of papase in prevention of

experimental peritoneal adhesions " came up in 1969 in Surgery,

" Bromelain therapy for the prevention of episiotomy pain appeared

in Obstetrics and Gynecology in 1967, and a study called " Plant

enzymes in oral surgery " appeared in Oral Surgery in 1965. Papain

and other digestive enzymes have been used to treat ulcers,

dissolve membranes in diphtheria, and reduce swelling, fever and

adhesions after surgery for about 50 years all told, and it's

commonly accepted that protein-digesting enzymes reduce fibrosis

with no side effects.

On an adhesions support group MLWhitworth, MD wrote, " I use

serracea (extract of the Pitcher plant) in the form of Serapin

(High Chemical Co) and hyaluronidase (Wydase) for scar tissue " .

Although Dr. Whitworth and many other doctors inject enzymes,

oral enzyme supplements have been proven to be effective, and the

market has risen to the occasion by providing quality products

such as Vitalzym for example, an oral enzyme formula that

contains the proteolytic enzymes protease, serrapeptase,

nattokinase, bromelain, papain, and a few nutrients.

Dr. Serafini says in an article titled Neprinol and

Endometriosis http://www.arthurandrew.com/neprinol, " The (oral)

enzymes in Neprinol work swiftly to break apart fibroids, improve

circulation, stimulate the immune system, and reduce

inflammation. Neprinol's two foremost ingredients (Serrapeptase

and Nattokinase) help remove fibroids by dissolving the fibrous

part of the fibroid tumor. Clinical studies have shown that

Serrapeptase and Nattokinase work fast and effectively to

dissolve fibrin safely with no adverse side effects. Neprinol is

extremely effective at removing toxins from the bloodstream, and

then helping to pass the emulsified fibrous tissue. Fibrin and

inflammation remain consistent among patients that have fibroids,

arthritis, heart disease, and several other diseases " . Selection

is important; you need the right enzymes in the right dosage. A

discussion group member writes: " I had several tender very

painful fibroadenomas in my breasts as well as 3 fibroids. My

Gynecologist suggested that I take Neprinol for my fibroids

because she had tremendous success using the product herself. I

had been using Vitalzym for the past 6 months with very little

success. After using Neprinol my stomach seems to be softer where

I used to be able to feel my largest fibroid. I went back to the

doctor for a sonogram. As it turns out my largest fibroid is

about half the size. I have been taking 4 pills 3 times a day

religiously for the past 3 months. My menstrual cycles are back

to normal and I am not cramping as much anymore. The pain and

size of my fibroadenomas are no longer noticeable. My father has

been taking Neprinol, which contains Serrapeptase, for about 8

weeks now to reduce blood pressure. He has lowered his LDL

cholesterol substantially; his doctor was amazed he dropped 50

points! His total cholesterol went from 268 to 218 and LDL

cholesterol went from 182 to 125. He is no longer taking Lipitor.

I think Serrapeptase is great. " Another testimonal reads, " I have

had fibroids in the past. Had a myomectomy with seven lemon size

fibroids, but they came back. The pain was starting to get

unbearable again and when they told me I would have to have a

hysterectomy, I opted to take Neprinol instead. I have been using

neprinol for a few months now starting with 15 pills and

gradually tapered off to 4 pills a day. I feel no pain. I say its

better to take Neprinol than Morphine pills or surgery " .

Enzymes can be found at your local health shop; look for

something with at least nattokinase, (preferably NSK-SD) and

serrapeptase in it. Can you afford NOT TO take enzyme therapy for

a couple of months to clear what can be cleared?

Duncan Crow BlockBuster All Clear:

http://www.goodhealth.nu/us/1400

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  • 6 months later...

Hummm, I never heard of that but it does make sense and actually right now it sounds darn good to my aching body. Eleanor>> I was talking to my PT as I'm due for a THR in the next six months.> She said so many people on in pain long after surgery because the > doctor does no prescribe deep tissue massage over the wound.> I had elbow surgery a few years ago, and had that type of massage, > which is really painful, but boy does it work.> The PT gets in there deep and just breaks down all that scar tissue, > all the lumps and bumps, so joint movement is so much improved and > eventually pain free.> Not sure if insurance pays for this as my doctor does not accept > insurance. Cash only. Of course his clients are very active people > as well as very well off.> > Anyone had this type of procedure?> >

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My incision was only 4 inches long and it got a bit sore after I sat

on it for a while, but no real pain.

Grace

>

> I was talking to my PT as I'm due for a THR in the next six months.

> She said so many people on in pain long after surgery because the

> doctor does no prescribe deep tissue massage over the wound.

> I had elbow surgery a few years ago, and had that type of massage,

> which is really painful, but boy does it work.

> The PT gets in there deep and just breaks down all that scar

tissue,

> all the lumps and bumps, so joint movement is so much improved and

> eventually pain free.

> Not sure if insurance pays for this as my doctor does not accept

> insurance. Cash only. Of course his clients are very active people

> as well as very well off.

>

> Anyone had this type of procedure?

>

>

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My PT showed me how, and recommended a locally made cream to keep the scars from drying out and hardening. Thanks to her, I never had any trouble with either scar.

Greywolf - RTHR-2003; LTHR-2004

mdavison@...

From: Joint Replacement [mailto:Joint Replacement ] On Behalf Of EleanorSent: 17 August, 2006 2:58 PMJoint Replacement Subject: Re: scar tissue

Hummm, I never heard of that but it does make sense and actually right now it sounds darn good to my aching body. Eleanor>> I was talking to my PT as I'm due for a THR in the next six months.> She said so many people on in pain long after surgery because the > doctor does no prescribe deep tissue massage over the wound.> I had elbow surgery a few years ago, and had that type of massage, > which is really painful, but boy does it work.> The PT gets in there deep and just breaks down all that scar tissue, > all the lumps and bumps, so joint movement is so much improved and > eventually pain free.> Not sure if insurance pays for this as my doctor does not accept > insurance. Cash only. Of course his clients are very active people > as well as very well off.> > Anyone had this type of procedure?> >

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I haven't, but my physical therapists have frequently recommended doing it myself. The last one suggested using a new pencil eraser & cream so you can get down into the little places.

Ann

scar tissue

I was talking to my PT as I'm due for a THR in the next six months.She said so many people on in pain long after surgery because the doctor does no prescribe deep tissue massage over the wound.I had elbow surgery a few years ago, and had that type of massage, which is really painful, but boy does it work.The PT gets in there deep and just breaks down all that scar tissue, all the lumps and bumps, so joint movement is so much improved and eventually pain free.Not sure if insurance pays for this as my doctor does not accept insurance. Cash only. Of course his clients are very active people as well as very well off.Anyone had this type of procedure?

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There are the external scars and the internal scars. Does that cream help soften the internal scars?

Ann

RE: Re: scar tissue

My PT showed me how, and recommended a locally made cream to keep the scars from drying out and hardening. Thanks to her, I never had any trouble with either scar.

Greywolf - RTHR-2003; LTHR-2004

mdavisonnetvision (DOT) net.il

From: Joint Replacement [mailto:Joint Replacement ] On Behalf Of EleanorSent: 17 August, 2006 2:58 PMJoint Replacement Subject: Re: scar tissue

Hummm, I never heard of that but it does make sense and actually right now it sounds darn good to my aching body. Eleanor>> I was talking to my PT as I'm due for a THR in the next six months.> She said so many people on in pain long after surgery because the > doctor does no prescribe deep tissue massage over the wound.> I had elbow surgery a few years ago, and had that type of massage, > which is really painful, but boy does it work.> The PT gets in there deep and just breaks down all that scar tissue, > all the lumps and bumps, so joint movement is so much improved and > eventually pain free.> Not sure if insurance pays for this as my doctor does not accept > insurance. Cash only. Of course his clients are very active people > as well as very well off.> > Anyone had this type of procedure?> >

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Ann-

The stuff she mentioned (with glycerine & Vitamin E) seems to have done the trick. I don't know how it works, but it seems to do the job. Sometimes it's hard to do the massage without it hurting, but you have to persevere... it's worth it.

Greywolf - RTHR-2003; LTHR-2004

mdavison@...

From: Joint Replacement [mailto:Joint Replacement ] On Behalf Of Ann Sent: 17 August, 2006 8:49 PMJoint Replacement Subject: Re: Re: scar tissue

There are the external scars and the internal scars. Does that cream help soften the internal scars?

Ann

RE: Re: scar tissue

My PT showed me how, and recommended a locally made cream to keep the scars from drying out and hardening. Thanks to her, I never had any trouble with either scar.

Greywolf - RTHR-2003; LTHR-2004

mdavisonnetvision (DOT) net.il

From: Joint Replacement [mailto:Joint Replacement ] On Behalf Of EleanorSent: 17 August, 2006 2:58 PMJoint Replacement Subject: Re: scar tissue

Hummm, I never heard of that but it does make sense and actually right now it sounds darn good to my aching body. Eleanor>> I was talking to my PT as I'm due for a THR in the next six months.> She said so many people on in pain long after surgery because the > doctor does no prescribe deep tissue massage over the wound.> I had elbow surgery a few years ago, and had that type of massage, > which is really painful, but boy does it work.> The PT gets in there deep and just breaks down all that scar tissue, > all the lumps and bumps, so joint movement is so much improved and > eventually pain free.> Not sure if insurance pays for this as my doctor does not accept > insurance. Cash only. Of course his clients are very active people > as well as very well off.> > Anyone had this type of procedure?> >

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Vit E is what I use and it did lessen the scar. I got the liquid Vit

E. at the pharmacy.

On Aug 17, 2006, at 1:36 PM, on wrote:

> Ann-

>  

> The stuff she mentioned (with glycerine &  Vitamin E) seems to have

> done the trick.  I don't know how it works, but it seems to do the

> job.  Sometimes it's hard to do the massage without it hurting, but

> you have to persevere... it's worth it.

>  

> Greywolf - RTHR-2003; LTHR-2004

> mdavison@...

>  

> From: Joint Replacement

> [mailto:Joint Replacement ] On Behalf Of Ann

>

> Sent: 17 August, 2006 8:49 PM

> Joint Replacement

> Subject: Re: Re: scar tissue

>

> There are the external scars and the internal scars.  Does that cream

> help soften the internal scars?

>  

> Ann

>  

>> Re: scar tissue

>>

>> Hummm, I never heard of that but it does make sense and actually

>> right now it sounds darn good to my aching body.  Eleanor

>>

>> >

>> > I was talking to my PT as I'm due for a THR in the next six months.

>> > She said so many people on in pain long after surgery because the

>> > doctor does no prescribe deep tissue massage over the wound.

>> > I had elbow surgery a few years ago, and had that type of massage,

>> > which is really painful, but boy does it work.

>> > The PT gets in there deep and just breaks down all that scar tissue,

>> > all the lumps and bumps, so joint movement is so much improved and

>> > eventually pain free.

>> > Not sure if insurance pays for this as my doctor does not accept

>> > insurance. Cash only. Of course his clients are very active people

>> > as well as very well off.

>> >

>> > Anyone had this type of procedure?

>> >

>> >

> My mailbox is spam-free with ChoiceMail, the leader in personal and

> corporate anti-spam solutions. Download your free copy of ChoiceMail

> from www.digiportal.com.

>

>

" Relying on God has to begin every day as if nothing had yet been done. "

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