Guest guest Posted August 8, 2008 Report Share Posted August 8, 2008 YOU ARE SOOO RIGHT...IT IS OUR RIGHT TO ASK AS MANY QUESTIONS AS WE NEED TO FEEL COMFORTABLE...AND IF THIS PARTICULAR DR HAS A PROBLEM...THEN HE OR SHE IS NOT THE ONE FOR ME!!! GOOD FOR YOU FOR STICKING UP FOR YOU.....CAUSE IF YOU DON'T ....GOD ONLY KNOWS WHAT WILL HAPPEN!!! **************Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017 ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 The injection you are getting are called steriod injection it brings down inflamation. I hade 9 epidural steriod injections before I had back surgery. Mike Group Owner > > > > It depends on who you are talking to. It took me a year to get > back on the > > right track from steroids and other pain killers but you know I > did discover > > something while doing this. The doctor whom I was seeing prior had > his hooks > > in me for a few reasons. One, money. Two, the doctor who sent me > two him > > were working together. Think about it. A back doctor and a pain > doctor > > working together and sending their patients. You rub mine, I'll > rub your's.. > > oh never mind....Anyway. > > > > Here is the breakdown of my doctor's visit to the University of > Nebraska > > Medical Center when I saw the neurosurgeon. > > > > He did a few pokes on my back, took a look at the scan and > Neurosurgeon > > said, " you don't need surgery " . > > > > Me: huh? You're S@#$% me! > > Neurosurgeon: " Absolutely, and I'll gladly show you why, step off > the > > table " . > > > > My husband helped me down from the table. As I'm standing there he > presses > > on my hip and > > > > Neurosurgeon: " you feel that? " > > Me " YEOW! HELL yes I felt it and it went click didn't it?! " > > > > Neurosurgeon: " yes it did and the reason why it did that is > because you are > > out of alignment. " > > Me: " Well, have to be taking after dealing with all these issues " > > > > Neurosurgeon: " Now, for your lower back problem " > > Me: Yes, it feels like a burning sensation. > > Neurosurgeon: (pokes on lower back above area) > > Me: how did you do that? > > Neurosurgeon: What this doctor said is not true, your lower disc > is just > > fine. The issue lays with your trigger points as they are the ones > causing > > the damage. I'll show you if I may > > Me: Okay, I guess. (he pokes me and I jumped off the table and > about went > > through the sink into the next room - literally because of the > pain) I > > scream out a HOLY @#$%!! > > Neurosurgeon: See, That area is where the issue lies So, to remedy > this is > > water therapy. Sorry for the discomfort. > > Me: That's okay but glad you showed me what's going on and I don't > need > > surgery. > > > > The neurosurgeon had given me the name of a pain management doctor > within > > UNMC to work with who can guide me through water therapy and such. > > Unfortunately at the time, I was in a situation of 1) in so much > pain I > > didn't want to deal with anything else and 2) I was going to full > time > > classes (15 credit hours) so it was a little difficult. I ended up > taking > > some time off. At any rate, I went back to see the pain management > doctor I > > was directed to at UNMC for a consultation, got the information I > needed for > > water therapy so I can start it. Now it's a matter of when, > everything is a > > little crazy right now with classes but eventually when things > settle down I > > will. One thing at a time. > > > > One thing I learned with doctors especially in the area of pain > management > > and the area of neurology and neurosurgery is it is a MUST to find > the right > > ones and not settle. I am quite anal about that issue and ask a > lot of > > questions. Luckily, I have been blessed so if ever I do need > someone of this > > nature I know where to turn. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 i hope the water therapy helps.....every time I try it I pass out from the pain of the water touching my legs. I will keep trying though, sinnce you never know when you will be able to handle something, if you don't keep trying, right?!?? As for the shots....good luck, ...I hope they help you!!! **************Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017 ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 Actually let me see as far as injections.. I've had epidurals - I had one twice a week. They didn't work. Then we went onto Bi-laterals I had one twice a week and I had three of them. They didn't work either. Then we went onto The Z formation was next which required ambulatory surgery. Which is where you lay on your tummy in the operating room, you're wide awake. You are given a local anesthetic for it but not completely knocked out for this procedure. There is a complete team which works with the doctor however. The pain doctor inserts this long needle into your back with a long syringe on the end. In the syringe it allows him to inject a bluish dye. On this huge screen he watches where the dye goes. Depending where the dye goes will determine what the next step is. After those results I went to the neurosurgeon because we knew nothing was going to fix it. I could keep taking pain killers and nothing would make it better. The only way to make it better was therapy. So, I did it on my own. I've made more progress in last two years that I was able to make with the combination of the drugs and PT. I can actually flatten my hips and my back where before if I even made that attempt it was pure agony. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 Thanks Deborah!! Liquid morphine sounds good!! > > HI, and yes, the hospital gave me two medications to take, > some liquid morphine in a bottle and some vicodin. I took > teaspoons of the morphine at night so I could sleep and it > helped enormously, the vicodin not so much. > But it was about a little over a week and I felt pretty good, > tired, but not all that much pain. Mostly fatigue. Of course, > my surgery was just the Heller Myotomy. > You will do great! > I wish you all the best, and happy recuperating, too! > Deborah > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2010 Report Share Posted February 8, 2010 I am on an immunosuppressant, NSAIDS, and Lyrica. Lyrica really helped me with my pain and swimming. Like you, I have found the water to be very therapeutic and a way for me to get all of my joints moving without putting extra stress on them. Hope this helps ________________________________ From: on behalf of BILL Sent: Mon 2/8/2010 1:48 PM Subject: Pain management I am in severe pain, it keep me immobile. If I do move it makes the pain worse, so I find myself staying in bed and on the couch. the one thing that seems to help is hot hot baths. It seems I am watchign life go by through a window. I came down with retiers syndrome in 2004. I am hla-b27 reactive. last may I told the neuro I couldnt watch life go by anymore and he said the first thing he would try is going off the boatload of narcotics I was on, so I stopped them immediately. they werent working anyway. I am still in severe pain. we have tried cyclobenzaprine, zanaflex, meloxicam, tramadol, nsaids and others for the pain. seroquel and sumtriptan for the headaches. i have ringing in the ears, loud. the headaches never go away and are always at least a 5. my question is what meds have provided relief for all of you? I cannot do meds that weaken the immune system. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2010 Report Share Posted February 8, 2010 rub wintergreen alcohol on your sore spots.use extra strenght tylenol and use a heat pad.i had to be taken off of remicade because of drug induced ms.started back with basics of tylenol and prednisone and voltaren.it makes the pain tolerable.the baths with the wintergreen alcohol are pure heaven.the wintergreen is a natural analgesic.if you could find some wintergreen oil,it's fantastic. From: BILL <bshuttlesworthjr@...> Subject: Pain management Date: Monday, February 8, 2010, 12:48 PM  I am in severe pain, it keep me immobile. If I do move it makes the pain worse, so I find myself staying in bed and on the couch. the one thing that seems to help is hot hot baths. It seems I am watchign life go by through a window. I came down with retiers syndrome in 2004. I am hla-b27 reactive. last may I told the neuro I couldnt watch life go by anymore and he said the first thing he would try is going off the boatload of narcotics I was on, so I stopped them immediately. they werent working anyway. I am still in severe pain. we have tried cyclobenzaprine, zanaflex, meloxicam, tramadol, nsaids and others for the pain. seroquel and sumtriptan for the headaches. i have ringing in the ears, loud. the headaches never go away and are always at least a 5. my question is what meds have provided relief for all of you? I cannot do meds that weaken the immune system. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2010 Report Share Posted November 8, 2010 Hi Lily, I don't live in that State, but here are some things that I hope may help your friend. These are things below that have helped me. Dr. Weil's Anti-Inflammatory Foods that he recommends.http://www.drweil.com/drw/u/ART02012/anti-inflammatory-diet Potent Anti-Inflammatory Herbs that Dr. Weil Recommends http://www.drweil.com/drw/u/QAA142972/Anti-Inflammatory-Herbs.com The Anti-Inflammatory Diet and Recipe Book http://www.amazon.com/Anti-Inflammation-Diet-Recipe-Book-Arthritis/dp/0897934857/ref=sr_1_1?ie=UTF8 & s=books & qid=1289231320 & sr=1-1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2011 Report Share Posted January 26, 2011 I do not know for sure. However, I might strongly consider finding Dr.'s who can help you. Prayers are going up for your pain to ease. Walter Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 Lord save us all from these people that think they know everything. A - You didn't suffer from a whole lot of pain, before treatment, so why would they think that tx has nothing to do with it???It can take several months before all that shit is out of our systems. Let's see, I totally completed tx on January 14, 2010. I went for surgery on April 7th. I can tell you that I was not feeling much different when I trucked off for that experience. It was July when I could finally say that I felt pretty good. Even almost as good as I did, prior to even learning that I had Hep C.Gloria I had the day from HELL!!I had to go to the pain management people, they have taken me off ALL drugs, this sucks, now I will have nothing to help with the pain, and no sleep aids. why are these people trying to ruin my life so much, isn't everything I suffered all ready enough! I am told I will need to suffer and learn how to live with the pain naturally. When after the meds are gone/out of my system what is your plan, they could not answer. I was told I have chronic pain syndrome and this has nothing to do with the Hep C treatment. Nobody has ever gotten body ache, fatigue, headaches, etc. post treatment , everything is all in my head they think. I hate all doctors from now on!!I have to go to the Liver Center to meet with the docs there, if I don't reply tomorrow I am in prison. ny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 And we haven't heard anything from ny so far today yet...  It would be 4 in the afternoon there now.  On Wed, Jan 26, 2011 at 10:04 PM, Gloria <gadamscan@...> wrote:  Lord save us all from these people that think they know everything. A - You didn't suffer from a whole lot of pain, before treatment, so why would they think that tx has nothing to do with it??? It can take several months before all that shit is out of our systems. Let's see, I totally completed tx on January 14, 2010. I went for surgery on April 7th. I can tell you that I was not feeling much different when I trucked off for that experience. It was July when I could finally say that I felt pretty good. Even almost as good as I did, prior to even learning that I had Hep C. Gloria  I had the day from HELL!!I had to go to the pain management people, they have taken me off ALL drugs, this sucks, now I will have nothing to help with the pain, and no sleep aids. why are these people trying to ruin my life so much, isn't everything I suffered all ready enough! I am told I will need to suffer and learn how to live with the pain naturally. When after the meds are gone/out of my system what is your plan, they could not answer. I was told I have chronic pain syndrome and this has nothing to do with the Hep C treatment. Nobody has ever gotten body ache, fatigue, headaches, etc. post treatment , everything is all in my head they think. I hate all doctors from now on!! I have to go to the Liver Center to meet with the docs there, if I don't reply tomorrow I am in prison. ny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2011 Report Share Posted January 30, 2011 Hi Everybody,yeah I was probably doing to many drugs, if the doctors knew enough to have 1 pain killer, etc I would need less. Yes quitting cold turkey like they said was bad, it made me so much worse, not only did they help with pain, but also kept me normal, which I am far from now.I will be going downtown to find some pot, I hope this helps.they are looking to blame something on this, so they are not liable I should bomb the liver center!yes they too me everything, except the antibiotics, but they have no fucking plan! I am not sure why they use this term instead of Fibromyalgia I see commercials all the time for Fibromyalgia seems like there is at least medication for this FibromyalgiaThe director of the liver center says he was no idea why I am having these pains, that what I am going through is very unique. He was quite a different attitude wince all the letters to the WIRB & FDA from my lawyer friend.I never made it t the physc docs, as their was a bus accident on my way. I should call the crisis hotline, but they will call the police and put me in jail, it is not right! ny On Jan 26, 2011, at 9:14 AM, Theresa Gottlieb wrote: That's not what I expected to hear.... wow. I don't like pain management people normally... now I know why. So they took you off of everything... like all at once? Are they suggesting physical therapy? Chronic Pain Syndrome... sounds like the doctor's don't want to use the term Fibromyalgia.... which can set in during treatment and explain the post treatment symptoms you are having as well. They said "nobody" huh? Am I nobody? I had all those symptoms post treatment... took a few years for the doctors to figure it out... but they did. Now, you were taking way too much on the pain medication/sleeping medication side of things... WAY too much. But that sounds like a doctor wasn't watching what he was prescribing and that's not your fault. What does they psych doctor say? Hugs,Teri On Wed, Jan 26, 2011 at 7:34 AM, Barrett <barrjohnm@...> wrote: I had the day from HELL!! I had to go to the pain management people, they have taken me off ALL drugs, this sucks, now I will have nothing to help with the pain, and no sleep aids. why are these people trying to ruin my life so much, isn't everything I suffered all ready enough! I am told I will need to suffer and learn how to live with the pain naturally. When after the meds are gone/out of my system what is your plan, they could not answer. I was told I have chronic pain syndrome and this has nothing to do with the Hep C treatment. Nobody has ever gotten body ache, fatigue, headaches, etc. post treatment , everything is all in my head they think. I hate all doctors from now on!! I have to go to the Liver Center to meet with the docs there, if I don't reply tomorrow I am in prison. ny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2011 Report Share Posted April 27, 2011 I was wondering if anyone is from the Baltimore area and knows of a good Pain Mgmt specialist, as that is all the Dr's want to send me too. I do not have insurance, my rent is 1300 and my monthly check is 1283 lol so I have no money to pay with. Any help would appreciated. Thanks in advance Sandy Quote Link to comment Share on other sites More sharing options...
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