Guest guest Posted November 26, 2002 Report Share Posted November 26, 2002 Hi to you too Although I do not have a problem with neck pain I also find myself more and more irritable. If you ask my family however I'm sure they will tell you that nothing has really changed and I was always that irritable! I'm also interested in finding out what everyone else has experienced. > Hi again All..... > > Seems like I have a mountain of questions, but I guess the only way to learn about this thing is to ask! > And everyone has been so patient with me so far... I thank you all..... > > I have developed a stiff, very sore neck. Not as bad on the right side, where I was diagnosed, but more severe on the left, where I am 100% deaf, and have been diagnosed many years ago with this being a *dead* ear... > I am truly hoping that the c-toma is not in that ear too..... I have some pain in the left ear, but nothing like the pain in the right. > > My main query being , is the neck/upper- shoulder pain part of the deal? Or maybe something seperate... > Has anyone else had similar symptoms? > > I also find myself becoming increasingly irritable, but I guess that goes without saying.....Luckily, I have an understanding family and loved ones.... > > Ok..all for now, > Best wishes to all, especially those recovering from recent surgery. > > from Oz. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2002 Report Share Posted November 26, 2002 My main query being , is the neck/upper- shoulder pain part of the deal? Or maybe something seperate... Hello I think I mentioned the neck in the other e-mail I sent you. Cranial Nerve VI passes through the ear and from there it has many branches - into your face, jaw, tongue, throat, and parts of your shoulder. No surprise then that all these areas can register transferred pain in. I certainly had many problems before surgery, particularly with a sore and swollen neck. Still some trouble, mostly mastoid, face and throat - I have bilateral canal c-toma at the moment. Phil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2002 Report Share Posted November 26, 2002 Cranial Nerve VI passes through the ear and from there it has many branches - Sorry that should read "Cranial Nerve VII" - The Cervical Branch goes down into the neck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 I deeply empathize with everyone who has written about neck pain. This is definitely one of the principle problems many of us flatbackers have had to live through. This is purely anecdotal, of course, but for what it's worth: My neck pain was getting steadily worse -- ever more wearisome and worrisome -- during the last year of my approximately 15 years of progressive flatback syndrome. As I have probably written previously, I was initially somewhat skeptical when my surgeon assured me last year that the upcoming flatback revision would also take care of the neck problem. Yes, the professional consensus was clear that my cervical deterioration and increasing cervical pain were largely or solely attributable to all the "hyperextending," that is, neck-craning, that I practiced intermittently so as to avoid major collisions while strolling down the sidewalk or grocery aisle. But at some point, the neck problem seemed to acquire a life of its own, so to speak -- it just "felt" to me like something that would need its own corrective operation. It was that intrusive, painful, and seemingly discrete from the degeneration and deformity in other spinal segments. If I may say so, my rough intuitive grasp of what is going on with my body tends to be pretty good -- at least at this point, in my early fifties, after quite a few decades of living inside my own skin. But happily, in this particular instance, my own "clinical" impressions were way off the mark. As my surgeon had foretold, the procedure that corrected my sagittal-plane thoracolumbar deformity also seemed to resolve the cervical problems -- if not for good (and only time will tell), at least for now. In fact, some of the earliest pain to vanish postoperatively was that oppressive and chronic pain in my neck. , this may not be at all practicable for you, but since you asked: What has worked for me, in terms of computer work, is heavy reliance on a laptop-- situated literally in my lap, on one of those "lap desks" to keep my legs from getting "overheated" -- while sitting in a recliner, or at least in a chair with complete support for my head and neck. Alternatively, you can rig up a desktop PC so that you are able to work on a keyboard in your lap, with everything supported that needs supporting, while your monitor sits on a separate table or desk nearby. I believe some people in this group may have specific ideas re how to do this most effectively and ergonomically. The laptop setup is equally comfortable for me in bed. ( I was fortunate that my insurance allowed for an adjustable bed at home.) I am a writer and, well before I was aware of having adult scoliotic problems, felt glued to my laptop (in terms of "needing" a keyboard on which to create and vent, from an existential or metaphysical perspective). Earlier, I had felt equally needful of a succession of electric and manual typewriters, ballpoints, well-sharpened #2 pencils, fat "first grade" pencils, and Crayolas. And just a little more, re inputting in bed: While urging people to avoid hospitalization as zealously as possible, I have had to resign myself, at times, to a few inpatient unpleasantries such as anterior and posterior spinal fusion and re-fusion. This has made me a great believer in toting along to the hospital whatever item(s) -- no matter how idiosyncratic, "inappropriate," tempting to thieves, etc. -- may make the whole thing more bearable or cozy for you personally; may nurture and nudge you along to healing and wholeness. Hence, for revision surgery in December 2001, I made sure to recruit a robust relative or two, with no back problems, willing to carry the old laptop up to my hospital room (and also, to plug my modem into the nearest phone line, thus enabling me to write online as well as off- ). This made all the difference for me. I get wholly absorbed in my writing. I have had some times of pain -- even moderate to severe pain -- when losing myself in the "flow" at my keyboard has augmented the analgesic effect of pain meds pretty dramatically. I suppose this runs counter to mindful awareness of one's pain, as in some forms of meditation which I also find useful. It is more a handy technique for checking out of one's pain, out of one's body -- sometimes (perhaps especially during post-op recovery) just as appropriate as "going into it" might be under other circumstances. Especially at such times, good body mechanics, e.g., optimal neck support, is imperative. Otherwise, you might "come to" after a couple hours of immersion in your writing -- as I have all too often! -- aglow with satisfaction at your latest poem or email or outline for a screenplay or whatever, while simultaneously realizing that you are ready to start howling in agony at some fiendish muscle spasm or other torment that sneaked up on you while you were "out." Eliana Post to Feisty Flatbackers' group. [Note: This is not medical advice.] Re: neck and revision questions Hello Suzy (sorry I spelled your name wrong last post!),I am horrified that the disks in your neck have become so bad! I am so sorry and I fear mine will also! I agree with you that this needs a closer look. In my previous post, I commented that 2 of the 3 specialist I saw discounted my neck also (including LaGrone). Of course my neurosurgeon says "No problem, I can fix the neck", but do I really want to go through a separate surgery if it is a piece of the big puzzle?Dr. Shelokov in Dallas is the only one that made me feel the neck was connected to my Harrington rod imbalance. I did not suggest it before he launched into his explanation!I will continue to explore this with those I have already seen and please let me know what you find out. It has to be connected!I got the flu last year and was in bed for 4 days. Boy my neck felt better also! Interesting observation on your part.I really appreciate your time responding to me and numberous others on this list, it is invaluable.Hey by the way, computer time wrecks havok on my neck....any tips to help with that? - Rodsapain in my back AND my neck! Adult scoliosis support; focus on fixed sagittal imbalance. WE DO NOT ENDORSE ANY PRODUCT OR SERVICE ADVERTISED HERE AND HAVE NO CONTROL OVER ADS. 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Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 Eliana, Your last couple of posts were great and very encouraging. Good luck with the computer problems BTW. I think the fact that my neck feels better with rest is a good sign that the flatback revision will help it in itself. As far as computers, I think an ergonomic expert told me that one's eyes should be even with the top of the monitor screen. I'm short, so this has always been a problem for me. But I recently bought an adjustable chair and it seems to help my neck. Not my legs though because my feet dangle a bit. It would have been smarter for me to get an adjustable computer stand. Oh well, hindsight is 20/20. The thought of wrestling with a heavy new computer table is pretty daunting. I'll probably just get a stool for under the computer stand to put my feet on! Nobody can say we feisties are not resourceful, huh? Best wishes, loriann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 Well, my son complained a lot about his neck hurting for about 1 week after surgery. I mentioned it to the doc and he said that they really torq the neck around to get the patient in position for the surgery (mastoidectomy) and then, of course, it stays torqed like that for five hours or so. Sounds painful to me. Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2004 Report Share Posted August 23, 2004 Hi is, My wife has had her chin pretty much frozen down onto her chest for months and nothing with the QXCI seems to help her. I have an appointment to take her to an orthopedist, but I am a very leery of taking her to an allopathic medical person. Allopathic medicine has not been at all kind to her the past few years. Where can I find the BioSET DISC AND JOINT enzyme supplement that you mentioned? Maybe it would have some benefit for her. Thank you, Dave Trent neck pain Well, after over a year of having a frozen neck and having spentthousands on massage and cranial sacral and chiropractic, I startedtaking BioSET DISC AND JOINT enzyme supplement and within a day, myneck unthawed quite a bit. My husband started taking it at the sametime for his two year bout with frozen shoulders and voila, the guy isas happy as a clam. Seems that all the manipulation in the worldwasn't helping until the inflammation was addressed. Lactic acid canbe a bear.is Rotella, M.Ac.Arnold, Md............................................. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 Where can it be purchased? neck pain Well, after over a year of having a frozen neck and having spent thousands on massage and cranial sacral and chiropractic, I started taking BioSET DISC AND JOINT enzyme supplement and within a day, my neck unthawed quite a bit. My husband started taking it at the same time for his two year bout with frozen shoulders and voila, the guy is as happy as a clam. Seems that all the manipulation in the world wasn't helping until the inflammation was addressed. Lactic acid can be a bear. is Rotella, M.Ac. Arnold, Md. ............................................. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 u mean...qxci did not fix it??? wow. >From: "is Rotella" <a.rotella@...> >Reply-qxci-english >qxci-english >Subject: neck pain >Date: Fri, 20 Aug 2004 21:12:29 -0000 > >Well, after over a year of having a frozen neck and having spent >thousands on massage and cranial sacral and chiropractic, I started >taking BioSET DISC AND JOINT enzyme supplement and within a day, my >neck unthawed quite a bit. My husband started taking it at the same >time for his two year bout with frozen shoulders and voila, the guy is >as happy as a clam. Seems that all the manipulation in the world >wasn't helping until the inflammation was addressed. Lactic acid can >be a bear. > >is Rotella, M.Ac. >Arnold, Md. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2005 Report Share Posted February 11, 2005 I just got one of those memory foam pillows though not a tempurpedic. I just got it today in the mail, and it seems so hard. Not at all like the soft pillows I am used to. But glad to hear hope, Sharon, that it may help some of my neck pain. I will be trying it for the first time tonight. I am also waiting for a Memory foam mattress topper that ordered. That I heard is supposed to help, and I should be getting that on Tuesday. Does anyone have one of those toppers, and if so how do you like it? Any pain relief? better nights sleep? Jeanine ;0) In neck pain , " darkstarzz1019 " <darkstarzz1019@y...> wrote: > > -I always found that it helped my neck to recline waaayyy back so > all pressure was off my neck. I used to live in my recliner too. > Also a good neck pillow will help our your neck too, support it more > and take the pressure off. I got a tempurpedic one and I LOVE > IT!!!!!! I even take it when I get to travel its been worth its > weight in gold to me. Hope this helps some. Sharon Group owner > > eNeck-Back , " boxersinc20042004 " > <boxersinc20042004@y...> wrote: > > > > Having a real rough day painwise today same yesterday. Pain all > > through my neck and into both shoulders. Also have headaches. > > Seeing PM doctor on Friday. Seeing a NS on Tuesday. > > > > MRI is showing disc protrusion at most levels of my Cervical spine > > and evidently this is occuring at my thoracic spine too. Hand is > > numb and I have arm weakness. I'm at wits end. I'm going to work > > each day, but it is getting harder to function and at night I'm > > dead. all I can do is sit on a recliner and rest my neck. > > > > Any suggestions? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 , three grain s is the lowest dose that most people can feel well on, but MOST of the gals on the list (ask them!) are taking more than 3 grains. I think the average is probably 4.5 -5 grains! -- Artistic Grooming * Hurricane, WV My Ebay Jewelry Store http://stores.ebay.com/valeriescrystalcreations The BEST thyroid website! http://www.stopthethyroidmadness.com NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 But, why does my neck hurt? Should I cut down on the Iodine? That's what I'm trying to figure out (and worried about, of course). Best, Handcrafted Jewelry ~ http://www.ChestnutHillDesigns.com Curly Horse Rescue ~ http://www.CurlyRescue.com ~Flashlights are tubular metal containers for the purpose of storing dead batteries.~ > , three grain s is the lowest dose that most people can feel > well on, but MOST of the gals on the list (ask them!) are taking more > than 3 grains. I think the average is probably 4.5 -5 grains! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 Alyce, I am indeed sorry to hear of your neck pain, and know firsthand how painful it can be at times. As the creator, and one of the owner/moderators, I encourage you and other LP's enduring chronic pain, to join our very unique group. We have an extensive file section which includes tons of information on medications, both prescribed and OTC's, besides a great deal of other needful information. If you are seeking those who know and understand chronic pain, and are those who are also very caring and supportive, then this is the place for you--we would love to have you. Here is our link if you would like to join: _aplaceforlpsinchronicpain _ (mailto:aplaceforlpsinchronicpain ) Adelaide Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2007 Report Share Posted July 7, 2007 Hi Barb, I had my scoliosis surgery in November of 1979. During the past 3-5 years I've started to have more severe lower back pain and also some neck stuff going on. A couple years ago while at work I was looking way up and when I went to lower my head I got the strangest sensation and could not easily lower my head. I went to the emergency room but they found nothing wrong. My neck cracked for quite a while after that. To make a long story short, I recently saw an orthopedic doctor because of my neck cracking and feeling strange when I turned it too far. He said it was degenerative discs above my rod area and also arthritis. He said since your thoracic area is held so stable with the rods, the discs above and below the rods have had to overcompensate and work harder all these years; so they tend to wear out. He told me my neck was not unstable; it was just something to live with. I hope that helps you in some way! Patty Food fight? Enjoy some healthy debatein the Answers Food Drink Q&A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2007 Report Share Posted July 8, 2007 Hi Barb, Yes, neck pain is pretty common for those of us with flatback syndrome. How far down into the lumbar region does your lower rod go? Does your upper rod go up to the cervical (neck) area? Groups such as ours devoted to discussion about flatback syndrome definitely know what you are talking about, as many of us have similar histories to yours. Looking through the databases on our site will give you a quick idea of the situations of many of the members on our group. My scoliosis fusion was at age 17 in 1977 with two Harrington Rods (one lumbar and one that spans the lumbar plus some of the thoracic) and I now have neck pain and a range of other symptoms of flatback syndrome. I didn't have to have the pre-op traction like you, though, but I remember my roommmate did. I think I was in the hospital for about 3 weeks total. The body casts were terrible. I was in a series of at least three of them for something like 19 months. Please know you can always come here to vent or ask questions or " reminisce " any time, loriann > > Hello friends, > I had my spinal fusion on July 5, 1972, 35 years ago, when I was 15.I > had my surgery at Gillette Hospital in St. , MN. Back in those days > there ws no air conditioning and I remember sweating in my bed! I had a > week in traction before the surgery, a week in ICU and then a week of > rehab, before discharge. Then 9 months in a body cast..... Now, 35 > years later, my biggest problem is chronic, medium- severe neck pain, > which is above my Harrington rod. I actually have two rods, one lumbar > and one thoracic (neck). I have seen doctors about this and I have disc > degeneration right above the rod. Ouch. > Has anyone else experienced this? I take Ibuprofen for the pain and try > to keep my neck supported most of the time. I do water aerobics, > instead of running, which is hard on the joints. > I don't know if what I have is part of flatback, but I don't know of > any other group that would even understand what I am talking about. > Many thanks, > > Barb > Minneapolis, MN > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2007 Report Share Posted July 16, 2007 Hi, Barb -- It's great to hear from you again. I appreciate your story about the hospital with no air conditioning. We really should collect some of these picturesque (and sometimes hair-raising) stories about what we went through back in the " golden- oldie days " of scoliosis surgery. Bravo to you for sticking to an aquatics program! I am still nudging myself to sign up. I had one brief exposure to this kind of therapy and thought it was wonderful. I just have some timidity about committing to anything at a regular time out there in " the real world " since becoming something more of a homebody with my spinal conditions. I wish I knew what to advisea about your neck. I do know that neck pain is very common with flatback syndrome, at least when you reach the stage at which you have to crane your neck (in medical terms, hyperextend your neck) to see things ahead of you as you are walking along. My neck hurt like crazy -- and the pain was on the increase -- up to the time of my initial flatback revision surgery. Dr. Rand told me this pain should subside following revision, and he was right. I do have some permanent disk degeneration in the cervical area, but my neck pain is now rare and mild. I do like to use a small neck pillow (filled with buckwheat, I believe, which makes it very malleable and " form-fitting " ) when I am sitting around, going to bed, whatever. Best, > > Hello friends, > I had my spinal fusion on July 5, 1972, 35 years ago, when I was 15.I > had my surgery at Gillette Hospital in St. , MN. Back in those days > there ws no air conditioning and I remember sweating in my bed! I had a > week in traction before the surgery, a week in ICU and then a week of > rehab, before discharge. Then 9 months in a body cast..... Now, 35 > years later, my biggest problem is chronic, medium- severe neck pain, > which is above my Harrington rod. I actually have two rods, one lumbar > and one thoracic (neck). I have seen doctors about this and I have disc > degeneration right above the rod. Ouch. > Has anyone else experienced this? I take Ibuprofen for the pain and try > to keep my neck supported most of the time. I do water aerobics, > instead of running, which is hard on the joints. > I don't know if what I have is part of flatback, but I don't know of > any other group that would even understand what I am talking about. > Many thanks, > > Barb > Minneapolis, MN > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2007 Report Share Posted July 16, 2007 Thank you, . i am so grateful to have this group. I am surprised that there are not more Minnesota people on this list. It seems like there were many surgeries done here back when I was having my treatment--kind of makes me wonder where they all have gone!! Barb - In , " Rasche " <feistyfounder@...> wrote: > > Hi, Barb -- > > It's great to hear from you again. > > I appreciate your story about the hospital with no air conditioning. > We really should collect some of these picturesque (and sometimes > hair-raising) stories about what we went through back in the " golden- > oldie days " of scoliosis surgery. > > Bravo to you for sticking to an aquatics program! I am still nudging > myself to sign up. I had one brief exposure to this kind of therapy > and thought it was wonderful. I just have some timidity about > committing to anything at a regular time out there in " the real > world " since becoming something more of a homebody with my spinal > conditions. > > I wish I knew what to advisea about your neck. I do know that neck > pain is very common with flatback syndrome, at least when you reach > the stage at which you have to crane your neck (in medical terms, > hyperextend your neck) to see things ahead of you as you are walking > along. My neck hurt like crazy -- and the pain was on the increase - - > up to the time of my initial flatback revision surgery. Dr. Rand told > me this pain should subside following revision, and he was right. I > do have some permanent disk degeneration in the cervical area, but my > neck pain is now rare and mild. I do like to use a small neck pillow > (filled with buckwheat, I believe, which makes it very malleable > and " form-fitting " ) when I am sitting around, going to bed, whatever. > > Best, > > > > > > > Hello friends, > > I had my spinal fusion on July 5, 1972, 35 years ago, when I was > 15.I > > had my surgery at Gillette Hospital in St. , MN. Back in those > days > > there ws no air conditioning and I remember sweating in my bed! I > had a > > week in traction before the surgery, a week in ICU and then a week > of > > rehab, before discharge. Then 9 months in a body cast..... Now, 35 > > years later, my biggest problem is chronic, medium- severe neck > pain, > > which is above my Harrington rod. I actually have two rods, one > lumbar > > and one thoracic (neck). I have seen doctors about this and I have > disc > > degeneration right above the rod. Ouch. > > Has anyone else experienced this? I take Ibuprofen for the pain and > try > > to keep my neck supported most of the time. I do water aerobics, > > instead of running, which is hard on the joints. > > I don't know if what I have is part of flatback, but I don't know > of > > any other group that would even understand what I am talking about. > > Many thanks, > > > > Barb > > Minneapolis, MN > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Hi Deborah, I read your message and I know what it is like to be in so much pain. I started out in pain since I was 10 and it gradually became worse. It started out as 2 bad knees (had 2 knee operations, countless months in PT, no help) and eventually was diagnosed with degenerative disc disease in 4 disc in my back and neck at the age of 29 (I'm 34 now). After I received my diagnosis in my back from my Dr., I remember walking out of the office asking myself if I can emotionally handle living the rest of my life knowing it was pretty much only going to get worse. I didn't want any more surgeries. I didn't want to take medication, so I started seeking alternatives. Amazingly, and pretty much miraculously, I found one that worked so well I can't believe it. It's something called Internal Energy Plus and it's derived from Kung Fu and other martial arts. I know, it seems like the craziest alternative, but when I first started training I couldn't last for more than 20 minutes without having to stop and get on my hands and knees because of the pain. Now, though, I can train for 6 hours during seminars, barefoot, on hardwood floors, with no back or knee pain. If I do experience pain, my recovery time is just a few hours whereas it used to be 3 days or more of limping. It works very similar to acupuncture but with no needles because the meridians can be activated without the needles (there are Japanese forms that use only the thought of using the needle as the actual treatment). It might be worth checking out because it's helped me out tremendously... > > Hello All, > I started reading emails from the group in late 2006 in Jan I had > surgery on C5-C6 & C6-C7, recovery was great mostly pain free > until... I went back to work. Pain came back within 6 months my > doctor sent me to get another MRI now I have issues at C3-4 & C4- > C5. He sent me for epidural injections and facet joint injections > which unfortunately didn't work for me. I have gone back to the > Chiro and massage and will set an appointment for acupuncture soon. > After major surgery and then finding out you have other issues and > you are still in pain, now I have almost migraine like headaches and > for some reason I am getting cramps in my legs often... Anyone have > any ideas for ways to improve, medication does almost nothing and I > can't live with this pain, I am not able to work and just started my > own business. I left corp. America for less stress and now this is > causing me more stress than ever because I can't work with the > pain... Anyone with any ideas please let me know. BTW, I have TMJ, > and a herniated disk in my lower back and have degenerative disk > disease. I am only 39 and feel like I am just falling apart. > > Thank you, I wish you all a hour, day or week or more without pain! > Deborah > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Hi Deborah, I read your message and I know what it is like to be in so much pain. I started out in pain since I was 10 and it gradually became worse. It started out as 2 bad knees (had 2 knee operations, countless months in PT, no help) and eventually was diagnosed with degenerative disc disease in 4 disc in my back and neck at the age of 29 (I'm 34 now). After I received my diagnosis in my back from my Dr., I remember walking out of the office asking myself if I can emotionally handle living the rest of my life knowing it was pretty much only going to get worse. I didn't want any more surgeries. I didn't want to take medication, so I started seeking alternatives. Amazingly, and pretty much miraculously, I found one that worked so well I can't believe it. It's something called Internal Energy Plus and it's derived from Kung Fu and other martial arts. I know, it seems like the craziest alternative, but when I first started training I couldn't last for more than 20 minutes without having to stop and get on my hands and knees because of the pain. Now, though, I can train for 6 hours during seminars, barefoot, on hardwood floors, with no back or knee pain. If I do experience pain, my recovery time is just a few hours whereas it used to be 3 days or more of limping. It works very similar to acupuncture but with no needles because the meridians can be activated without the needles (there are Japanese forms that use only the thought of using the needle as the actual treatment). It might be worth checking out because it's helped me out tremendously... > > Hello All, > I started reading emails from the group in late 2006 in Jan I had > surgery on C5-C6 & C6-C7, recovery was great mostly pain free > until... I went back to work. Pain came back within 6 months my > doctor sent me to get another MRI now I have issues at C3-4 & C4- > C5. He sent me for epidural injections and facet joint injections > which unfortunately didn't work for me. I have gone back to the > Chiro and massage and will set an appointment for acupuncture soon. > After major surgery and then finding out you have other issues and > you are still in pain, now I have almost migraine like headaches and > for some reason I am getting cramps in my legs often... Anyone have > any ideas for ways to improve, medication does almost nothing and I > can't live with this pain, I am not able to work and just started my > own business. I left corp. America for less stress and now this is > causing me more stress than ever because I can't work with the > pain... Anyone with any ideas please let me know. BTW, I have TMJ, > and a herniated disk in my lower back and have degenerative disk > disease. I am only 39 and feel like I am just falling apart. > > Thank you, I wish you all a hour, day or week or more without pain! > Deborah > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Hi Deborah, I read your message and I know what it is like to be in so much pain. I started out in pain since I was 10 and it gradually became worse. It started out as 2 bad knees (had 2 knee operations, countless months in PT, no help) and eventually was diagnosed with degenerative disc disease in 4 disc in my back and neck at the age of 29 (I'm 34 now). After I received my diagnosis in my back from my Dr., I remember walking out of the office asking myself if I can emotionally handle living the rest of my life knowing it was pretty much only going to get worse. I didn't want any more surgeries. I didn't want to take medication, so I started seeking alternatives. Amazingly, and pretty much miraculously, I found one that worked so well I can't believe it. It's something called Internal Energy Plus and it's derived from Kung Fu and other martial arts. I know, it seems like the craziest alternative, but when I first started training I couldn't last for more than 20 minutes without having to stop and get on my hands and knees because of the pain. Now, though, I can train for 6 hours during seminars, barefoot, on hardwood floors, with no back or knee pain. If I do experience pain, my recovery time is just a few hours whereas it used to be 3 days or more of limping. It works very similar to acupuncture but with no needles because the meridians can be activated without the needles (there are Japanese forms that use only the thought of using the needle as the actual treatment). It might be worth checking out because it's helped me out tremendously... > > Hello All, > I started reading emails from the group in late 2006 in Jan I had > surgery on C5-C6 & C6-C7, recovery was great mostly pain free > until... I went back to work. Pain came back within 6 months my > doctor sent me to get another MRI now I have issues at C3-4 & C4- > C5. He sent me for epidural injections and facet joint injections > which unfortunately didn't work for me. I have gone back to the > Chiro and massage and will set an appointment for acupuncture soon. > After major surgery and then finding out you have other issues and > you are still in pain, now I have almost migraine like headaches and > for some reason I am getting cramps in my legs often... Anyone have > any ideas for ways to improve, medication does almost nothing and I > can't live with this pain, I am not able to work and just started my > own business. I left corp. America for less stress and now this is > causing me more stress than ever because I can't work with the > pain... Anyone with any ideas please let me know. BTW, I have TMJ, > and a herniated disk in my lower back and have degenerative disk > disease. I am only 39 and feel like I am just falling apart. > > Thank you, I wish you all a hour, day or week or more without pain! > Deborah > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Hi Deborah, I read your message and I know what it is like to be in so much pain. I started out in pain since I was 10 and it gradually became worse. It started out as 2 bad knees (had 2 knee operations, countless months in PT, no help) and eventually was diagnosed with degenerative disc disease in 4 disc in my back and neck at the age of 29 (I'm 34 now). After I received my diagnosis in my back from my Dr., I remember walking out of the office asking myself if I can emotionally handle living the rest of my life knowing it was pretty much only going to get worse. I didn't want any more surgeries. I didn't want to take medication, so I started seeking alternatives. Amazingly, and pretty much miraculously, I found one that worked so well I can't believe it. It's something called Internal Energy Plus and it's derived from Kung Fu and other martial arts. I know, it seems like the craziest alternative, but when I first started training I couldn't last for more than 20 minutes without having to stop and get on my hands and knees because of the pain. Now, though, I can train for 6 hours during seminars, barefoot, on hardwood floors, with no back or knee pain. If I do experience pain, my recovery time is just a few hours whereas it used to be 3 days or more of limping. It works very similar to acupuncture but with no needles because the meridians can be activated without the needles (there are Japanese forms that use only the thought of using the needle as the actual treatment). It might be worth checking out because it's helped me out tremendously... > > Hello All, > I started reading emails from the group in late 2006 in Jan I had > surgery on C5-C6 & C6-C7, recovery was great mostly pain free > until... I went back to work. Pain came back within 6 months my > doctor sent me to get another MRI now I have issues at C3-4 & C4- > C5. He sent me for epidural injections and facet joint injections > which unfortunately didn't work for me. I have gone back to the > Chiro and massage and will set an appointment for acupuncture soon. > After major surgery and then finding out you have other issues and > you are still in pain, now I have almost migraine like headaches and > for some reason I am getting cramps in my legs often... Anyone have > any ideas for ways to improve, medication does almost nothing and I > can't live with this pain, I am not able to work and just started my > own business. I left corp. America for less stress and now this is > causing me more stress than ever because I can't work with the > pain... Anyone with any ideas please let me know. BTW, I have TMJ, > and a herniated disk in my lower back and have degenerative disk > disease. I am only 39 and feel like I am just falling apart. > > Thank you, I wish you all a hour, day or week or more without pain! > Deborah > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2007 Report Share Posted September 19, 2007 Hey Deborah, did you have a head injury before all this started, or was that part of what happened to bring on the cervical stuff? Reason that I ask is, I've heard/read that TMJ and some of the problems you're describing are usually associated with this. I don't know what your injury history is, but it sounds like some of what I did. As if the spine/back stuff going on with me isn't enough, I hurt myself (totally my fault, can't blame anybody else!) a few years ago and that's one of the keys that started my chain of problems. I'll spare the details, but I allowed something movable to hit me on the top back right side of my head and the jaw/neck problems started showing up. Where the vertebra meet the skull is the area that messes this up. Did you have an injury there? On the leg cramps, I use something called Hyland's Leg Cramps and it's OTC, a tiny bottle with quinine tablets in it. When I get Charlie Horse pains, I take this stuff and it helps with the residual pain. I'm thinking it came from Wal-Mart or a local store. I can relate to your problems from top and bottom of the spine . . . seems like injury " travels " and then we have to figure out what to do about it. My crooked spine (lordosis, among other things) really is having a hard time, working out how to be straight again after so many years of being " wrong " . The muscles have to figure how to work all over again. It just takes time! The " new " thing I'm hearing about now is the core muscles and how to get them working properly. Have you done any strengthening exercises or anything like that? I'd like to know what works for you, if anything, because I'm headed the same direction that you are. Don't worry about what age you are; hey, everybody is different. When my MIL passed away last year, we brought home some of her medical files and sorted through them. I picked up her CT scans/films. At 66, she had a better spine than I do now at age 46! But that's not relevant, because she died from cancer. Having a straight spine after all the chemo that she went through is totally amazing to me. Debbie Dahl Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2007 Report Share Posted September 19, 2007 Hey Deborah, did you have a head injury before all this started, or was that part of what happened to bring on the cervical stuff? Reason that I ask is, I've heard/read that TMJ and some of the problems you're describing are usually associated with this. I don't know what your injury history is, but it sounds like some of what I did. As if the spine/back stuff going on with me isn't enough, I hurt myself (totally my fault, can't blame anybody else!) a few years ago and that's one of the keys that started my chain of problems. I'll spare the details, but I allowed something movable to hit me on the top back right side of my head and the jaw/neck problems started showing up. Where the vertebra meet the skull is the area that messes this up. Did you have an injury there? On the leg cramps, I use something called Hyland's Leg Cramps and it's OTC, a tiny bottle with quinine tablets in it. When I get Charlie Horse pains, I take this stuff and it helps with the residual pain. I'm thinking it came from Wal-Mart or a local store. I can relate to your problems from top and bottom of the spine . . . seems like injury " travels " and then we have to figure out what to do about it. My crooked spine (lordosis, among other things) really is having a hard time, working out how to be straight again after so many years of being " wrong " . The muscles have to figure how to work all over again. It just takes time! The " new " thing I'm hearing about now is the core muscles and how to get them working properly. Have you done any strengthening exercises or anything like that? I'd like to know what works for you, if anything, because I'm headed the same direction that you are. Don't worry about what age you are; hey, everybody is different. When my MIL passed away last year, we brought home some of her medical files and sorted through them. I picked up her CT scans/films. At 66, she had a better spine than I do now at age 46! But that's not relevant, because she died from cancer. Having a straight spine after all the chemo that she went through is totally amazing to me. Debbie Dahl Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2007 Report Share Posted September 19, 2007 Hey Deborah, did you have a head injury before all this started, or was that part of what happened to bring on the cervical stuff? Reason that I ask is, I've heard/read that TMJ and some of the problems you're describing are usually associated with this. I don't know what your injury history is, but it sounds like some of what I did. As if the spine/back stuff going on with me isn't enough, I hurt myself (totally my fault, can't blame anybody else!) a few years ago and that's one of the keys that started my chain of problems. I'll spare the details, but I allowed something movable to hit me on the top back right side of my head and the jaw/neck problems started showing up. Where the vertebra meet the skull is the area that messes this up. Did you have an injury there? On the leg cramps, I use something called Hyland's Leg Cramps and it's OTC, a tiny bottle with quinine tablets in it. When I get Charlie Horse pains, I take this stuff and it helps with the residual pain. I'm thinking it came from Wal-Mart or a local store. I can relate to your problems from top and bottom of the spine . . . seems like injury " travels " and then we have to figure out what to do about it. My crooked spine (lordosis, among other things) really is having a hard time, working out how to be straight again after so many years of being " wrong " . The muscles have to figure how to work all over again. It just takes time! The " new " thing I'm hearing about now is the core muscles and how to get them working properly. Have you done any strengthening exercises or anything like that? I'd like to know what works for you, if anything, because I'm headed the same direction that you are. Don't worry about what age you are; hey, everybody is different. When my MIL passed away last year, we brought home some of her medical files and sorted through them. I picked up her CT scans/films. At 66, she had a better spine than I do now at age 46! But that's not relevant, because she died from cancer. Having a straight spine after all the chemo that she went through is totally amazing to me. Debbie Dahl Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2007 Report Share Posted September 19, 2007 Hey Deborah, did you have a head injury before all this started, or was that part of what happened to bring on the cervical stuff? Reason that I ask is, I've heard/read that TMJ and some of the problems you're describing are usually associated with this. I don't know what your injury history is, but it sounds like some of what I did. As if the spine/back stuff going on with me isn't enough, I hurt myself (totally my fault, can't blame anybody else!) a few years ago and that's one of the keys that started my chain of problems. I'll spare the details, but I allowed something movable to hit me on the top back right side of my head and the jaw/neck problems started showing up. Where the vertebra meet the skull is the area that messes this up. Did you have an injury there? On the leg cramps, I use something called Hyland's Leg Cramps and it's OTC, a tiny bottle with quinine tablets in it. When I get Charlie Horse pains, I take this stuff and it helps with the residual pain. I'm thinking it came from Wal-Mart or a local store. I can relate to your problems from top and bottom of the spine . . . seems like injury " travels " and then we have to figure out what to do about it. My crooked spine (lordosis, among other things) really is having a hard time, working out how to be straight again after so many years of being " wrong " . The muscles have to figure how to work all over again. It just takes time! The " new " thing I'm hearing about now is the core muscles and how to get them working properly. Have you done any strengthening exercises or anything like that? I'd like to know what works for you, if anything, because I'm headed the same direction that you are. Don't worry about what age you are; hey, everybody is different. When my MIL passed away last year, we brought home some of her medical files and sorted through them. I picked up her CT scans/films. At 66, she had a better spine than I do now at age 46! But that's not relevant, because she died from cancer. Having a straight spine after all the chemo that she went through is totally amazing to me. Debbie Dahl Oklahoma Quote Link to comment Share on other sites More sharing options...
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