Coping with Prednisone

[Guest guest]

" Coping with Prednisone " is a very good book. It was written by a

woman with a chronic illness w hich required high doses of pred and

her doctor sister. It gives a lot of good info, as well as ideas and

recipes for how to fight those cravings and not gaino much weight.

Addy

Group co-owner

Just finished losing the 10 pounds I put on in October from taking

pred for 5 weeks. Oh well, at least it was only 10 lbs.

>

> *snip!*

>

> I am really tired of

> > taking pulse doses

> > of Prednisone to provide temporary relief and afterwards

> > having all the

> > crap come back within a week. Any suggestions anyone

> > would have in

> > this regard would be benefical to me.

>

> Welcome to my world. I have Oral Allergy Syndrome, and had

> a reaction to Tomatos last week. I LOATHE pulse dosing,

> but am rather fond of breathing and avoiding an escalating

> allergic reaction.

>

> > Does anyone get the aches and pains to joints and legs

> > after being off

> > of Prednisone for a week or so? I do and during this

> > time I can hardly

> > walk.

>

> I feel like total hell today, since this is day 5 from my

> taper. Started on 40mgs and down to 5mgs today. I have

> felt better from being in a car accident. There is not one

> muscle that isn't just throbbing.

>

> FWIW....If I'm on a Pred for a month, it takes me a good

> two months before I totally feel 100%.

>

> Oh, and the " bloat " . Gotta love that Pred bloat.

>

> BLAH....

>

> Wish I could give you a med suggestion...One friend ordered

> me the book " Coping With Prednisone " . Is it any good? I

> hope she didn't waste her money.

>

> Nan

>

> ****Ordinary life is pretty complex stuff***

> -=Harvey Pekar=-

>

>

>

>

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[Guest guest]

I agree with Addy about this book. recommended it to me and I

borrowed it from the library last year (and just re-borrowed it again

last week). It does discuss taper/withdrawal symptoms as well as ideas

for exercise and weight control. I do have to say though, that I

haven't exercised any of the dietary guidelines that are recommeded! I

am down to 10mg pred one day and alternating with 7.5mg pred. I am not

happy with the " Cushoid " appearance I present and it will take a couple

of months after being off prednisone to lose some of the facial and

abdominal bloating (just in time for another round of prednisone!!!)

Pamela

>

> " Coping with Prednisone " is a very good book. It was written by a

> woman with a chronic illness w hich required high doses of pred and

> her doctor sister. It gives a lot of good info, as well as ideas and

> recipes for how to fight those cravings and not gaino much weight.

>

> Addy

> Group co-owner

> Just finished losing the 10 pounds I put on in October from taking

> pred for 5 weeks. Oh well, at least it was only 10 lbs.

>

[Guest guest]

--- pjboucher2001 <pjboucher2001@...> wrote:

> I agree with Addy about this book. recommended it

> to me and I

> borrowed it from the library last year (and just

> re-borrowed it again

> last week). It does discuss taper/withdrawal symptoms as

> well as ideas

> for exercise and weight control. I do have to say

> though, that I

> haven't exercised any of the dietary guidelines that are

> recommeded! I

> am down to 10mg pred one day and alternating with 7.5mg

> pred. I am not

> happy with the " Cushoid " appearance I present and it will

> take a couple

> of months after being off prednisone to lose some of the

> facial and

> abdominal bloating (just in time for another round of

> prednisone!!!)

>

> Pamela

Thanks for all the critiques about the book. Sometimes the

medical self help books are a crap shoot. Can't wait for

the little beggar to show up in my mail.

Nan

****Ordinary life is pretty complex stuff***

-=Harvey Pekar=-

________________________________________________________________________________\

____

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[Guest guest]

I must say that this board helps me to cope with all of this--asthma, itching,

wheezing, rales, and evil candy. I am down to 6.5 which means my body is

starting to produce but I am so not the same person I used to be and no doctor

listens to me. Thank all of you so much.

pjboucher2001 <pjboucher2001@...> wrote: I agree with Addy about

this book. recommended it to me and I

borrowed it from the library last year (and just re-borrowed it again

last week). It does discuss taper/withdrawal symptoms as well as ideas

for exercise and weight control. I do have to say though, that I

haven't exercised any of the dietary guidelines that are recommeded! I

am down to 10mg pred one day and alternating with 7.5mg pred. I am not

happy with the " Cushoid " appearance I present and it will take a couple

of months after being off prednisone to lose some of the facial and

abdominal bloating (just in time for another round of prednisone!!!)

Pamela

>

> " Coping with Prednisone " is a very good book. It was written by a

> woman with a chronic illness w hich required high doses of pred and

> her doctor sister. It gives a lot of good info, as well as ideas and

> recipes for how to fight those cravings and not gaino much weight.

>

> Addy

> Group co-owner

> Just finished losing the 10 pounds I put on in October from taking

> pred for 5 weeks. Oh well, at least it was only 10 lbs.

>

---------------------------------

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Go to the Q & A for great tips from Answers users.

[Guest guest]

I am ordering this book asap.  In a couple of weeks I will be at the Mayo

Clinic.  They say along with every other doctor that it is imperative that I

lower and then ultimately get off of evil candy.  My surgery may not be healing,

I have cushings, diabetes, etc.  Even the " prednisone skin. "   And I look like

Hades--truly--with the moon face and fatigue. 

I am hoping to keep my appointment at Mayo in 2 weeks with one of their 2 PGA

endocrinologists who specializes in Cushings.  Please keep your fingers crossed

for me.  As I said in an earlier post, I have been able to come down 10 per cent

over the past week and my body already feels better.  My lungs however may be a

different story. 

Thank all of you so much for your kindness. 

Leigh

________________________________

From: pjboucher2001 <pjboucher2001@...>

Sent: Saturday, January 13, 2007 8:56:41 AM

Subject: [ ] Re: " Coping with Prednisone "

I agree with Addy about this book. recommended it to me and I

borrowed it from the library last year (and just re-borrowed it again

last week). It does discuss taper/withdrawal symptoms as well as ideas

for exercise and weight control. I do have to say though, that I

haven't exercised any of the dietary guidelines that are recommeded! I

am down to 10mg pred one day and alternating with 7.5mg pred. I am not

happy with the " Cushoid " appearance I present and it will take a couple

of months after being off prednisone to lose some of the facial and

abdominal bloating (just in time for another round of prednisone!! !)

Pamela

>

> " Coping with Prednisone " is a very good book. It was written by a

> woman with a chronic illness w hich required high doses of pred and

> her doctor sister. It gives a lot of good info, as well as ideas and

> recipes for how to fight those cravings and not gaino much weight.

>

> Addy

> Group co-owner

> Just finished losing the 10 pounds I put on in October from taking

> pred for 5 weeks. Oh well, at least it was only 10 lbs.

>

[Guest guest]

Hi Leigh,

The book won't help you much with getting off. It does confirm everything you

already know probably about the evil candy. I have been trying for years to get

off. I do look like Hades too. Like the belly and the stretch marks? Those are

great.

The only thing that works is to go VERY slowly. I'm talking dropping 1 mg a

month once you are below 15 mg. That is basically the only way my lungs don't

pitch a fit. I'm on 10 mg now and to be honest, not feeling amazing. Do let us

know if they have any magic solutions. I am now being followed by one of the

world's asthma gurus and, well, I'm still on pred despite him saying it is

killing me slowly etc... He seems to say this takes time.

C

________________________________

From: Leigh McCall-Alton <mccallalton@...>

Sent: Monday, August 10, 2009 10:42:04 PM

Subject: Re: [ ] Re: " Coping with Prednisone "

 

I am ordering this book asap.  In a couple of weeks I will be at the Mayo

Clinic.  They say along with every other doctor that it is imperative that I

lower and then ultimately get off of evil candy.  My surgery may not be healing,

I have cushings, diabetes, etc.  Even the " prednisone skin. "   And I look like

Hades--truly- -with the moon face and fatigue. 

I am hoping to keep my appointment at Mayo in 2 weeks with one of their 2 PGA

endocrinologists who specializes in Cushings.  Please keep your fingers crossed

for me.  As I said in an earlier post, I have been able to come down 10 per cent

over the past week and my body already feels better.  My lungs however may be a

different story. 

Thank all of you so much for your kindness. 

Leigh

____________ _________ _________ __

From: pjboucher2001 <pjboucher2001@ .ca>

Sent: Saturday, January 13, 2007 8:56:41 AM

Subject: [ ] Re: " Coping with Prednisone "

I agree with Addy about this book. recommended it to me and I

borrowed it from the library last year (and just re-borrowed it again

last week). It does discuss taper/withdrawal symptoms as well as ideas

for exercise and weight control. I do have to say though, that I

haven't exercised any of the dietary guidelines that are recommeded! I

am down to 10mg pred one day and alternating with 7.5mg pred. I am not

happy with the " Cushoid " appearance I present and it will take a couple

of months after being off prednisone to lose some of the facial and

abdominal bloating (just in time for another round of prednisone!! !)

Pamela

>

> " Coping with Prednisone " is a very good book. It was written by a

> woman with a chronic illness w hich required high doses of pred and

> her doctor sister. It gives a lot of good info, as well as ideas and

> recipes for how to fight those cravings and not gaino much weight.

>

> Addy

> Group co-owner

> Just finished losing the 10 pounds I put on in October from taking

> pred for 5 weeks. Oh well, at least it was only 10 lbs.

>

[Guest guest]

I went from 20 to 18 over 3 days.  Would you believe just 2 mg decrease dropped

my bp?  This is kinda serious....so I am going back to 19.  FOR A MONTH.

I will let you know what DR. Carpenter says. 

Take good care.

Leigh

________________________________

From: <carrie72583@...>

Sent: Tuesday, August 11, 2009 11:03:15 AM

Subject: Re: [ ] Re: " Coping with Prednisone "

 

Hi Leigh,

The book won't help you much with getting off. It does confirm everything you

already know probably about the evil candy. I have been trying for years to get

off. I do look like Hades too. Like the belly and the stretch marks? Those are

great.

The only thing that works is to go VERY slowly. I'm talking dropping 1 mg a

month once you are below 15 mg. That is basically the only way my lungs don't

pitch a fit. I'm on 10 mg now and to be honest, not feeling amazing. Do let us

know if they have any magic solutions. I am now being followed by one of the

world's asthma gurus and, well, I'm still on pred despite him saying it is

killing me slowly etc... He seems to say this takes time.

C

____________ _________ _________ __

From: Leigh McCall-Alton <mccallalton>

Sent: Monday, August 10, 2009 10:42:04 PM

Subject: Re: [ ] Re: " Coping with Prednisone "

 

I am ordering this book asap.  In a couple of weeks I will be at the Mayo

Clinic.  They say along with every other doctor that it is imperative that I

lower and then ultimately get off of evil candy.  My surgery may not be healing,

I have cushings, diabetes, etc.  Even the " prednisone skin. "   And I look like

Hades--truly- -with the moon face and fatigue. 

I am hoping to keep my appointment at Mayo in 2 weeks with one of their 2 PGA

endocrinologists who specializes in Cushings.  Please keep your fingers crossed

for me.  As I said in an earlier post, I have been able to come down 10 per cent

over the past week and my body already feels better.  My lungs however may be a

different story. 

Thank all of you so much for your kindness. 

Leigh

____________ _________ _________ __

From: pjboucher2001 <pjboucher2001@ .ca>

Sent: Saturday, January 13, 2007 8:56:41 AM

Subject: [ ] Re: " Coping with Prednisone "

I agree with Addy about this book. recommended it to me and I

borrowed it from the library last year (and just re-borrowed it again

last week). It does discuss taper/withdrawal symptoms as well as ideas

for exercise and weight control. I do have to say though, that I

haven't exercised any of the dietary guidelines that are recommeded! I

am down to 10mg pred one day and alternating with 7.5mg pred. I am not

happy with the " Cushoid " appearance I present and it will take a couple

of months after being off prednisone to lose some of the facial and

abdominal bloating (just in time for another round of prednisone!! !)

Pamela

>

> " Coping with Prednisone " is a very good book. It was written by a

> woman with a chronic illness w hich required high doses of pred and

> her doctor sister. It gives a lot of good info, as well as ideas and

> recipes for how to fight those cravings and not gaino much weight.

>

> Addy

> Group co-owner

> Just finished losing the 10 pounds I put on in October from taking

> pred for 5 weeks. Oh well, at least it was only 10 lbs.

>