New to Group

[Guest guest]

is, seems to me you need to see a doctor for a full work up. You don't

mention any medical care.

HCV can be very tiring and I'm sure it does suck trying to care for your

family when you're ill. Additionally, the pain meds are dragging you

down..I've been down that road.

Please see a doctor and get checked out if you haven't already done so. See

what genotype you are and what treatment they recommend. It may not be as

bad as you think and you may end up feeling a whole lot better in 6 to 12

months. I finished treatment in February and despite other medical issues,

the tiredness disappeared very quickly.

Hope you'll keep reading and take some positive steps to improve your health

for yourself and your family.

_____

From: Hepatitis C

[mailto:Hepatitis C ] On Behalf Of alexis0819

Sent: Thursday, April 24, 2008 11:01 PM

Hepatitis C

Subject: new to group

hi i have been reading emails for sometime now and have tried to get

info on how people deal with HepC .It really sucks because i have 3

kids and have to work to support my family. Always tired but i keep on

going ,dont have any idea how long until my liver explodes it feels

swollen and causes stomach and chest pain. I have back problems so i

take lortabs and feel ok until they wear off than im really out of

it.this is my first time to email to anyone so not sure who's getting

this .well i guess i'll find out soon enough.

[Guest guest]

Yes I feel for you too and my heart goes out to you. I am in agreement that you

need to see a doc. Work will always be there and you will be surprised what

just seeing a physician to understand your situation can do.

I thought treatment was hopeless and I had no insurance and I would never be

able to afford any of this and worried worried worried about how I would help my

husband take care of my family while I was on treatment.

It is difficult but somethings I have to just let go. I dont get my nails done

every week anymore no gym fees I walk . just those was enough to pay for a

supplemental health benefits plan. I am fortunate my income was low enough I

qualified for a program that helps with medications. I know some of the lab fees

will be coming and I have put aside a little money to help pay for labs.

Sometimes you just have to take life on lives terms and part of that for me is

taking care of myself because before I did not take care of myself at all. I do

talk now (boy dont you know it) and I ask for help when I need it. I do ask my

parents to help with the kids some and I do ask sometimes to help pay for

daycare if I am short and I dont like doing those things but feel blessed I am

in the situation they trust me again and know I would not ask if I really did

not need the help.

Now on a lighter note my moms just came over brought a walker for my little one

I wish I you all could see him sitting up in this walker all smiles thinking he

is king of the mountain!

I wish all a blessed day and good health!

new to group

hi i have been reading emails for sometime now and have tried to get

info on how people deal with HepC .It really sucks because i have 3

kids and have to work to support my family. Always tired but i keep on

going ,dont have any idea how long until my liver explodes it feels

swollen and causes stomach and chest pain. I have back problems so i

take lortabs and feel ok until they wear off than im really out of

it.this is my first time to email to anyone so not sure who's getting

this .well i guess i'll find out soon enough.

[Guest guest]

Yes I feel for you too and my heart goes out to you. I am in agreement that you

need to see a doc. Work will always be there and you will be surprised what

just seeing a physician to understand your situation can do.

I thought treatment was hopeless and I had no insurance and I would never be

able to afford any of this and worried worried worried about how I would help my

husband take care of my family while I was on treatment.

It is difficult but somethings I have to just let go. I dont get my nails done

every week anymore no gym fees I walk . just those was enough to pay for a

supplemental health benefits plan. I am fortunate my income was low enough I

qualified for a program that helps with medications. I know some of the lab fees

will be coming and I have put aside a little money to help pay for labs.

Sometimes you just have to take life on lives terms and part of that for me is

taking care of myself because before I did not take care of myself at all. I do

talk now (boy dont you know it) and I ask for help when I need it. I do ask my

parents to help with the kids some and I do ask sometimes to help pay for

daycare if I am short and I dont like doing those things but feel blessed I am

in the situation they trust me again and know I would not ask if I really did

not need the help.

Now on a lighter note my moms just came over brought a walker for my little one

I wish I you all could see him sitting up in this walker all smiles thinking he

is king of the mountain!

I wish all a blessed day and good health!

new to group

hi i have been reading emails for sometime now and have tried to get

info on how people deal with HepC .It really sucks because i have 3

kids and have to work to support my family. Always tired but i keep on

going ,dont have any idea how long until my liver explodes it feels

swollen and causes stomach and chest pain. I have back problems so i

take lortabs and feel ok until they wear off than im really out of

it.this is my first time to email to anyone so not sure who's getting

this .well i guess i'll find out soon enough.

[Guest guest]

Don't feel alone. I've got hep C and have known since the mid 90s. I

believe I received this during Vietnam. I did have an endoscopy and a cat

scan (both came back negative). Due to low platelet count, a biopsy is out.

I'm supposed to have a colonoscopy, but, like you, have to work. I lost my

job in 2003 when our plant was shipped to China and (I'll be 61 in May) I

can't find decent work.

I wish you the best.

Best regards from Rochester, NY

Jim

new to group

hi i have been reading emails for sometime now and have tried to get

info on how people deal with HepC .It really sucks because i have 3

kids and have to work to support my family. Always tired but i keep on

going ,dont have any idea how long until my liver explodes it feels

swollen and causes stomach and chest pain. I have back problems so i

take lortabs and feel ok until they wear off than im really out of

it.this is my first time to email to anyone so not sure who's getting

this .well i guess i'll find out soon enough.

No virus found in this outgoing message.

Checked by AVG.

Version: 7.5.524 / Virus Database: 269.23.4/1395 - Release Date: 4/24/2008

7:24 AM

[Guest guest]

Don't feel alone. I've got hep C and have known since the mid 90s. I

believe I received this during Vietnam. I did have an endoscopy and a cat

scan (both came back negative). Due to low platelet count, a biopsy is out.

I'm supposed to have a colonoscopy, but, like you, have to work. I lost my

job in 2003 when our plant was shipped to China and (I'll be 61 in May) I

can't find decent work.

I wish you the best.

Best regards from Rochester, NY

Jim

new to group

hi i have been reading emails for sometime now and have tried to get

info on how people deal with HepC .It really sucks because i have 3

kids and have to work to support my family. Always tired but i keep on

going ,dont have any idea how long until my liver explodes it feels

swollen and causes stomach and chest pain. I have back problems so i

take lortabs and feel ok until they wear off than im really out of

it.this is my first time to email to anyone so not sure who's getting

this .well i guess i'll find out soon enough.

No virus found in this outgoing message.

Checked by AVG.

Version: 7.5.524 / Virus Database: 269.23.4/1395 - Release Date: 4/24/2008

7:24 AM

[Guest guest]

> Hi alexsis What ever you do,please realize there are many

things you can do today that will make it easier to cope with the

disease ,diet exersize,proper support can all make it bearable !!This

is a slow moving disease if you take care of yourself you can live for

a long time !Think about it what good is a disease that kills its

host ,it kills itself also ! I remember when I was diagnosed in 87 I

was devastated and was sure I was going to die,since then I got

married,had kids and have built a nice life for my family and best of

all I waited for treatment for a long time because I didn't like the

odds back then ,now Iam in my fourth week of Pegasus and have just been

told its working YeeeeaaahaawaaawamongamongaT!!!!! Don't give up !!!

EVER !!!

Glenn

> hi i have been reading emails for sometime now and have tried to

get

> info on how people deal with HepC .It really sucks because i have 3

> kids and have to work to support my family. Always tired but i keep

on

> going ,dont have any idea how long until my liver explodes it feels

> swollen and causes stomach and chest pain. I have back problems so

i

> take lortabs and feel ok until they wear off than im really out of

> it.this is my first time to email to anyone so not sure who's

getting

> this .well i guess i'll find out soon enough.

>

[Guest guest]

> Hi alexsis What ever you do,please realize there are many

things you can do today that will make it easier to cope with the

disease ,diet exersize,proper support can all make it bearable !!This

is a slow moving disease if you take care of yourself you can live for

a long time !Think about it what good is a disease that kills its

host ,it kills itself also ! I remember when I was diagnosed in 87 I

was devastated and was sure I was going to die,since then I got

married,had kids and have built a nice life for my family and best of

all I waited for treatment for a long time because I didn't like the

odds back then ,now Iam in my fourth week of Pegasus and have just been

told its working YeeeeaaahaawaaawamongamongaT!!!!! Don't give up !!!

EVER !!!

Glenn

> hi i have been reading emails for sometime now and have tried to

get

> info on how people deal with HepC .It really sucks because i have 3

> kids and have to work to support my family. Always tired but i keep

on

> going ,dont have any idea how long until my liver explodes it feels

> swollen and causes stomach and chest pain. I have back problems so

i

> take lortabs and feel ok until they wear off than im really out of

> it.this is my first time to email to anyone so not sure who's

getting

> this .well i guess i'll find out soon enough.

>

[Guest guest]

Glen,

Greaaaaaaaattttttttt as Tony the Tiger says. So glad your doing good. I feel

yucky right now monday will be my forth shot of Peg but I am hopeful from your

message that it is working there has to be something good come out of sweating

and chills and fever lol. God bless you and your family.

Re: new to group

> Hi alexsis What ever you do,please realize there are many

things you can do today that will make it easier to cope with the

disease ,diet exersize,proper support can all make it bearable !!This

is a slow moving disease if you take care of yourself you can live for

a long time !Think about it what good is a disease that kills its

host ,it kills itself also ! I remember when I was diagnosed in 87 I

was devastated and was sure I was going to die,since then I got

married,had kids and have built a nice life for my family and best of

all I waited for treatment for a long time because I didn't like the

odds back then ,now Iam in my fourth week of Pegasus and have just been

told its working YeeeeaaahaawaaawamongamongaT!!!!! Don't give up !!!

EVER !!!

Glenn

> hi i have been reading emails for sometime now and have tried to

get

> info on how people deal with HepC .It really sucks because i have 3

> kids and have to work to support my family. Always tired but i keep

on

> going ,dont have any idea how long until my liver explodes it feels

> swollen and causes stomach and chest pain. I have back problems so

i

> take lortabs and feel ok until they wear off than im really out of

> it.this is my first time to email to anyone so not sure who's

getting

> this .well i guess i'll find out soon enough.

>

[Guest guest]

Glen,

Greaaaaaaaattttttttt as Tony the Tiger says. So glad your doing good. I feel

yucky right now monday will be my forth shot of Peg but I am hopeful from your

message that it is working there has to be something good come out of sweating

and chills and fever lol. God bless you and your family.

Re: new to group

> Hi alexsis What ever you do,please realize there are many

things you can do today that will make it easier to cope with the

disease ,diet exersize,proper support can all make it bearable !!This

is a slow moving disease if you take care of yourself you can live for

a long time !Think about it what good is a disease that kills its

host ,it kills itself also ! I remember when I was diagnosed in 87 I

was devastated and was sure I was going to die,since then I got

married,had kids and have built a nice life for my family and best of

all I waited for treatment for a long time because I didn't like the

odds back then ,now Iam in my fourth week of Pegasus and have just been

told its working YeeeeaaahaawaaawamongamongaT!!!!! Don't give up !!!

EVER !!!

Glenn

> hi i have been reading emails for sometime now and have tried to

get

> info on how people deal with HepC .It really sucks because i have 3

> kids and have to work to support my family. Always tired but i keep

on

> going ,dont have any idea how long until my liver explodes it feels

> swollen and causes stomach and chest pain. I have back problems so

i

> take lortabs and feel ok until they wear off than im really out of

> it.this is my first time to email to anyone so not sure who's

getting

> this .well i guess i'll find out soon enough.

>

[Guest guest]

That's a good question...why would your doctor prescribe meds that would

harm you???

Well, they do it all the time. Unfortunately, my experience has been that

doctors don't see the " big picture " and treat you for their particular

specialty.

I was also prescribed hydrocodone and oxycodone as pain meds for a

neurological problem in addition to some herniated discs. I was on these

for over 2 years and through the 24 weeks of tx for HCV. No doubt they were

not good for my liver...they did allow me to function however and then I

became dependent on them.

I also thought that I would slide by without experiencing illness from the

HCV after 35 years...usually doesn't happen. I chose to treat only after I

became ill and that was a huge mistake. If I had it to do over, I would

have been banging down the MDs doors for treatment 25 years ago! My advice

is don't wait...don't let the other issues get in the way. You can deal

with them as I did. I'm not suggesting that it will be easy because it's

not when you have a host of medical issues, but not dealing with them won't

make any of it go away nor will it get better.

My advice is to see a good gastro who will treat both the HCV and the side

effects. Keep reading and asking questions. Keep records and copies of all

your lab tests, etc. and demand the best of care for yourself. Evidently,

your family depends on you..treating your HCV could mean the difference

between continuing to have the ability to support your family and being

permanently disabled in the future.

Good luck, Dorothy

_____

From: Hepatitis C

[mailto:Hepatitis C ] On Behalf Of alexis0819

Sent: Sunday, April 27, 2008 2:58 AM

Hepatitis C

Subject: new to group

hey all Im New to the group even though I've been reading the

emails and not responding until last week when i finally decided to

open up and share my experiance with my HPc since it seems to be

getting worse .Im going on 50 this yr and have had it for over 23

yrs and alway tought im one of those who would just go on living and

not be affected by the hepc ,Well it seems to be kicking my rear

end if u no what i mean .7 yrs ago i had a biopsy , catscan, liver

looked good.test bloodcount every 6 months and has been fairly

OK ,herniated three discs at work and started taking

lortab,hydrocodine.valuim, ambien and flowmax for prostate problem

about one year ago.this seems to be taking its toll on my liver

..My email is [alex is 0819]so I think u all who read my last email

might think Im a female , im just a old fart who by the way was

very emotionally touched to have gotten a response and some good

advice from some of you in this group ,as I read more about others

problems My heart and prayer will go out to those who are going thru

soom really hard times .Im starting to wonder if my Doc knows what

he's doing.he does keep telling me I need to start my treatment but

im not sure if I can handle the side affects and keep my job ,i have

three kids to support.My real question is am i killing my liver by

taking those meds I've listed above if so why would my doc give them

[Guest guest]

That's a good question...why would your doctor prescribe meds that would

harm you???

Well, they do it all the time. Unfortunately, my experience has been that

doctors don't see the " big picture " and treat you for their particular

specialty.

I was also prescribed hydrocodone and oxycodone as pain meds for a

neurological problem in addition to some herniated discs. I was on these

for over 2 years and through the 24 weeks of tx for HCV. No doubt they were

not good for my liver...they did allow me to function however and then I

became dependent on them.

I also thought that I would slide by without experiencing illness from the

HCV after 35 years...usually doesn't happen. I chose to treat only after I

became ill and that was a huge mistake. If I had it to do over, I would

have been banging down the MDs doors for treatment 25 years ago! My advice

is don't wait...don't let the other issues get in the way. You can deal

with them as I did. I'm not suggesting that it will be easy because it's

not when you have a host of medical issues, but not dealing with them won't

make any of it go away nor will it get better.

My advice is to see a good gastro who will treat both the HCV and the side

effects. Keep reading and asking questions. Keep records and copies of all

your lab tests, etc. and demand the best of care for yourself. Evidently,

your family depends on you..treating your HCV could mean the difference

between continuing to have the ability to support your family and being

permanently disabled in the future.

Good luck, Dorothy

_____

From: Hepatitis C

[mailto:Hepatitis C ] On Behalf Of alexis0819

Sent: Sunday, April 27, 2008 2:58 AM

Hepatitis C

Subject: new to group

hey all Im New to the group even though I've been reading the

emails and not responding until last week when i finally decided to

open up and share my experiance with my HPc since it seems to be

getting worse .Im going on 50 this yr and have had it for over 23

yrs and alway tought im one of those who would just go on living and

not be affected by the hepc ,Well it seems to be kicking my rear

end if u no what i mean .7 yrs ago i had a biopsy , catscan, liver

looked good.test bloodcount every 6 months and has been fairly

OK ,herniated three discs at work and started taking

lortab,hydrocodine.valuim, ambien and flowmax for prostate problem

about one year ago.this seems to be taking its toll on my liver

..My email is [alex is 0819]so I think u all who read my last email

might think Im a female , im just a old fart who by the way was

very emotionally touched to have gotten a response and some good

advice from some of you in this group ,as I read more about others

problems My heart and prayer will go out to those who are going thru

soom really hard times .Im starting to wonder if my Doc knows what

he's doing.he does keep telling me I need to start my treatment but

im not sure if I can handle the side affects and keep my job ,i have

three kids to support.My real question is am i killing my liver by

taking those meds I've listed above if so why would my doc give them

[Guest guest]

,

You know I see this all the time. I work in a nursing home and I have meds given

that just kill an elderly liver. ONe that is over prescribed and never enough

lab tests for the liver is lipitor. Lortab and Oxy those and any drugs with

" good old tylenol in them are not good for the liver "

Any real doctor knows this but in agreement with Dorothy they are taught to

treat symptoms and the only way you can know if something is not good for your

liver is by your own research or a good gi doctor. Sad but true.

I went into the hospital a few months back after having my son and they kept

giving me darvocet, and lortabs I really think this is partly why my liver

enzymes are up again but after having a c-section I just wanted pain relief.

Sometimes we have to educate our doctors.

It is ok to ask your doctor do you think this medication is hurting my liver? Is

there an alternative ?

Also I have seen another thing I dont like some drug reps go hound a doctor give

the doctor the best samples and luncheons etc.. and guess what that is the

mediction they are apt to prescribe. Sicking but I have seen some prescribe the

heck out of a medication after a drug rep passes thru.

This is why pharmacuetical companies and insurance companies need to be

regulated in my book.

There are alternative medications that are not as harmful for your liver.

God bless,

new to group

hey all Im New to the group even though I've been reading the

emails and not responding until last week when i finally decided to

open up and share my experiance with my HPc since it seems to be

getting worse .Im going on 50 this yr and have had it for over 23

yrs and alway tought im one of those who would just go on living and

not be affected by the hepc ,Well it seems to be kicking my rear

end if u no what i mean .7 yrs ago i had a biopsy , catscan, liver

looked good.test bloodcount every 6 months and has been fairly

OK ,herniated three discs at work and started taking

lortab,hydrocodine.valuim, ambien and flowmax for prostate problem

about one year ago.this seems to be taking its toll on my liver

.My email is [alex is 0819]so I think u all who read my last email

might think Im a female , im just a old fart who by the way was

very emotionally touched to have gotten a response and some good

advice from some of you in this group ,as I read more about others

problems My heart and prayer will go out to those who are going thru

soom really hard times .Im starting to wonder if my Doc knows what

he's doing.he does keep telling me I need to start my treatment but

im not sure if I can handle the side affects and keep my job ,i have

three kids to support.My real question is am i killing my liver by

taking those meds I've listed above if so why would my doc give them

to me?

[Guest guest]

,

You know I see this all the time. I work in a nursing home and I have meds given

that just kill an elderly liver. ONe that is over prescribed and never enough

lab tests for the liver is lipitor. Lortab and Oxy those and any drugs with

" good old tylenol in them are not good for the liver "

Any real doctor knows this but in agreement with Dorothy they are taught to

treat symptoms and the only way you can know if something is not good for your

liver is by your own research or a good gi doctor. Sad but true.

I went into the hospital a few months back after having my son and they kept

giving me darvocet, and lortabs I really think this is partly why my liver

enzymes are up again but after having a c-section I just wanted pain relief.

Sometimes we have to educate our doctors.

It is ok to ask your doctor do you think this medication is hurting my liver? Is

there an alternative ?

Also I have seen another thing I dont like some drug reps go hound a doctor give

the doctor the best samples and luncheons etc.. and guess what that is the

mediction they are apt to prescribe. Sicking but I have seen some prescribe the

heck out of a medication after a drug rep passes thru.

This is why pharmacuetical companies and insurance companies need to be

regulated in my book.

There are alternative medications that are not as harmful for your liver.

God bless,

new to group

hey all Im New to the group even though I've been reading the

emails and not responding until last week when i finally decided to

open up and share my experiance with my HPc since it seems to be

getting worse .Im going on 50 this yr and have had it for over 23

yrs and alway tought im one of those who would just go on living and

not be affected by the hepc ,Well it seems to be kicking my rear

end if u no what i mean .7 yrs ago i had a biopsy , catscan, liver

looked good.test bloodcount every 6 months and has been fairly

OK ,herniated three discs at work and started taking

lortab,hydrocodine.valuim, ambien and flowmax for prostate problem

about one year ago.this seems to be taking its toll on my liver

.My email is [alex is 0819]so I think u all who read my last email

might think Im a female , im just a old fart who by the way was

very emotionally touched to have gotten a response and some good

advice from some of you in this group ,as I read more about others

problems My heart and prayer will go out to those who are going thru

soom really hard times .Im starting to wonder if my Doc knows what

he's doing.he does keep telling me I need to start my treatment but

im not sure if I can handle the side affects and keep my job ,i have

three kids to support.My real question is am i killing my liver by

taking those meds I've listed above if so why would my doc give them

to me?

[Guest guest]

Nikki,

So sorry to you and your family. I can not imagine having 2 children with jra,

as 1 is more

than enough to deal with. I just wanted to say hi, and I am also new to the

group. I have

found this group to be soooo helpful. I hope it is helpful to you as well. I

wish the best to you

and your family.

Kellie mom to Jae 2 systemic, and Roan 11 mos

[Guest guest]

Hi Debbie,

& nbsp;

I live in Nebraska too! & nbsp; I am 51 and was diagnosed with Graves Disease

just & nbsp;6 weeks ago. & nbsp; I went through all of the tests too and my RAI

uptake was at 82%. & nbsp;My TSH was .01 and is now .02, but the important thing

is that after taking methimazole for 5 weeks, my FT4 went from 2.62 all the way

down to .99 which is & nbsp;in the normal range. & nbsp; I am already down to just

one 5 mg pill a day and was taking & nbsp;15 mg a day. I feel so much better and

have absolutely no side effects from the methimazole with the exception of a

little tummy upset at first while I was adjusting to the medicine.

& nbsp;

Definitely, quit taking the vitamin. & nbsp; The extra iodine can't be helping

you, but I'm not certain it can & nbsp;actually cause & nbsp;hyperthyroidism. & nbsp;

Maybe someone else will chime in as I am very new to all of this. & nbsp; Avoid

foods with high iodine content and eat goitrogens such as brocolli, cabbage,

brussel sprouts, kale, peaches, pears. & nbsp; There should be a list online if

you google it.

& nbsp;

Do you have alot of the symptoms of hyperthyroidism? & nbsp; Don't worry, you will

be fine. & nbsp; I was just as scared as you are and had & nbsp;lots of questions

too. & nbsp;The people in this group are very insightful and sympathetic. & nbsp;

Just educate yourself and be your own health advocate.

& nbsp;

Take care.

& nbsp;

& nbsp;

Rochelle

From: debbie26111 & lt;debbie26111@... & gt;

Subject: new to group

hyperthyroidism

Date: Wednesday, June 4, 2008, 10:52 AM

Hi I am new the group, and due to my daughter who is a Rn at a

hospital they had a health fair I went and then was called to the

doctor a few days later my tsh was .02 so I have to go in for more

test. Due to my mulitvitiman having iodine I have to wait for 2 weeks,

I have a question having iodine in my multi, did that cause this, and

going off of the vit. will it get better. Is there any thing I should

not be eating or drinking ?? How about vit. is there anything I should

take?? I have many questions and am confused. Thanks so much by the way

I am 47 female. Debbie in Nebr

[Guest guest]

Hi Debbie,

Welcome to the group! It's a good one, with lots of people with

different perspectives and treatment paths. Whatever you decide,

there's someone out there who has done something similar.

Hyperthyroidism can be a weird, scary thing to go through, but you can

go through it!

I agree with the idea that iodine can speed things up for you... if you

balance out after removing iodine from your diet, then good for you! If

not, there is some really good information on ithyroid.com that helped

me very much. It's also important to find a good doctor who will

partner with you on this journey and listen to you and your body. I was

headed down the road for surgery, but was able to turn things around

with very careful nutrient management. Copper was my number one

deficiency, but everyone is different.

As far as food goes, my suggestion (only a suggestion), would be to

avoid fruits, grapefruit, coconut oil, and anything that makes you feel

crummy. No sugar would be a given, but good luck with that one! I

used to eat a lot of sugary things in an effort to gain weight. There

was a time I would eat entire pizzas (rice pizzas, since I'm allergic to

wheat) every night and still lose weight! I couldn't believe it!

That's all very different now. My TSH is back within normal range, and

I'm loving it. I carry five extra pounds just for fun. I could switch

up and lose it if I want to, but I'm very happy just holding onto the

curves for now after going so long being underweight.

Ask questions, share symptoms, and share your story anytime!

Take care,

-Tana

>

> Hi I am new the group, and due to my daughter who is a Rn at a

> hospital they had a health fair I went and then was called to the

> doctor a few days later my tsh was .02 so I have to go in for more

> test. Due to my mulitvitiman having iodine I have to wait for 2 weeks,

> I have a question having iodine in my multi, did that cause this, and

> going off of the vit. will it get better. Is there any thing I should

> not be eating or drinking ?? How about vit. is there anything I should

> take?? I have many questions and am confused. Thanks so much by the

way

> I am 47 female. Debbie in Nebr

>

[Guest guest]

,

Hi, my name is Kellie and my almost 3yr old has systemic JRA. She was Dx. at 20

mos. and

currently is doing well.

I just wanted to say hi, and I'm glad you joined this group. I have found it to

be very

supportive, and full of great info. Sorry to her about you son.

If you have any questions, feel free to ask.

Kellie, Mom to Jae( 2yr old systemic) and Roan 1 yr old

[Guest guest]

Hi Tracey! My son also has Systemic JIA - diganosed at age 22 months.

He is 3 1/2 now and doing amazing! Runs, jumps, climbs like any

other 3 year old. We have weaned him off his MTX but con't his daily

injection of anakinra. The anakinra has been a miracle drug for us.

12 hours after giving his first does he was jumping in his bed that

was March 10, 2007 and so far no flares since! Hang in there! There

is a lot of good meds and MD's out there.

I don't check this site a ton but if you want to chat more feel free

to email me at chuckmason @hotmail.com (delete the space)

Good luck!

Caroline

-- In , " ijsg_mom " <tbird227@...> wrote:

>

> Hi,

>

> My name is Tracey and my youngest son ph is currently being

> treated for systemic JRA. He is on naproxen and they added

> prevacid. Jo has had many challenges since birth but no dx until

> recently. He is 14 months old and has been recieving PT/OT since 6

> weeks of age. He has had MRIs, CTs, EEG, EKG, genetics testing, and

> more blood work then I can remember.

>

> A couple of months ago the lymph nodes at the base of his skull

> swelled to half dollar size then he started spiking very high fevers

> 105. After extensive lab work, two rounds of different antibiotics,

> a catscan, chest xray, and EEG. We were referred to infectious

> diseases, who did more extensive lab work and came up with the JRA dx

> (after he also called in a rheumotoid doctor) Jo's ESR was over 84,

> his platlets were 30k over where they should be and he is anemic.

> Other then that all his titres and cultures were neg. We repeated

> some other labs looking for certain " markers " and several of these

> came back supporting the dx of systemic JRA.

>

> JoJo has improved greatly on the naproxen and actually has made great

> strides in areas that he lacked since birth. Using his left leg and

> arm alot more, being able to lift both his legs, etc.

>

> He does not yet have any specific joint swelling, but seems to have

> the most trouble in his ankles (this is as far as he paws at them and

> will rub them often) We were told that he may eventually have

> swelling in some or many joints.

>

> I look forward to getting to know all of you and appreciate this

> support group being here.

>

> Thank you and blessings,

> Tracey

>

[Guest guest]

I am so sorry to hear about the dx. My daughter abi has systemic also. She started having swelling in her joints about a year ago. She has seen infectious disease, and her rheumy and they also made her see onc. also. She had to have a bone marrow biopsy to R/O lymphoma I know that all the test and drs are overwhelming. Everyone on this site is awesome and some of the smartest people around. Good luck and I am hera if u need to talk. gina abi 3 systemicijsg_mom <tbird227@...> wrote: Hi,My name is Tracey and my youngest son ph is currently being treated for systemic JRA. He is on naproxen and they added prevacid. Jo has had many challenges since birth but no dx until recently. He is 14 months old and has been recieving PT/OT since 6 weeks of age. He has had MRIs, CTs, EEG, EKG, genetics testing, and more blood work then I can remember.A couple of months ago the lymph nodes at the base of his skull swelled to half dollar size then he started spiking very high fevers 105. After extensive lab work, two rounds of different antibiotics, a catscan, chest xray, and EEG. We were referred to infectious diseases, who did more extensive lab work and came up with the JRA dx (after he also called in a rheumotoid doctor) Jo's ESR was over 84, his platlets were 30k over where they should be and he is anemic. Other then that all his

titres and cultures were neg. We repeated some other labs looking for certain "markers" and several of these came back supporting the dx of systemic JRA.JoJo has improved greatly on the naproxen and actually has made great strides in areas that he lacked since birth. Using his left leg and arm alot more, being able to lift both his legs, etc. He does not yet have any specific joint swelling, but seems to have the most trouble in his ankles (this is as far as he paws at them and will rub them often) We were told that he may eventually have swelling in some or many joints. I look forward to getting to know all of you and appreciate this support group being here.Thank you and blessings,Tracey

[Guest guest]

You not alone. I work through treatment and all , then last year it got so bad

had to cut back on my hours from 8 till 6 a day. Company was fine with that then

in December got my call and had a transplant. Company had gone through a buy

out with new owners . So only took a little over a month off after the operation

and have been working half days (against doc's orders),but doing a full days

work since . On Monday went it and was told no longer needed after 20 day short

of 19 years.

Luckily My side business picked up this week also, not enough to pay bills but

will get by. As severance they did say they would pay for my cobra insurance for

18 months time will tell.

rich

www.rslaserkits.com

[Guest guest]

Thank you for responding. I admire you for working thru treatment because my

body does not repsond well to interferon. I had to take the first two months off

with each treatment because I was so, so sick. Then I went back and did the best

I could and to get thru I had to take injections for my white cell and red cell

count. I don't know how you went back to work after only a month after your

surgery and I can't believe they let you go. But yet it does not surprise me at

all. I have been going thru this the entire 12 years working at the casino and

in front of me they always act like they understand and will work with me. But

yet I hear things later and can tell they get upset when I call in. I never take

advantage of my FMLA and when I call in it's because I literally cannot get out

of bed and am so sick. My boss will ask me " Oh is it your stomach " or something

like that, they don't get it when I say I'm just sick from the inside out and

can't function

as a human. My concern is the insurance, so after 18 months on the Cobra, what

are you going to do? No one wil insure us when they hear we have Hepatitis C.

Have you applied for Disability yet? I have been seriously thinking about it and

if I get approved, then I can work part time. I just can't work full time

anymore, it's killing me.

From: shepard richard <yenko_stinger65@...>

Subject: Re:New to Group

Hepatitis C

Date: Friday, July 11, 2008, 5:02 PM

You not alone. I work through treatment and all , then last year it got so bad

had to cut back on my hours from 8 till 6 a day. Company was fine with that then

in December got my call and had a transplant. Company had gone through a buy out

with new owners . So only took a little over a month off after the operation and

have been working half days (against doc's orders),but doing a full days work

since . On Monday went it and was told no longer needed after 20 day short of 19

years.

Luckily My side business picked up this week also, not enough to pay bills but

will get by. As severance they did say they would pay for my cobra insurance for

18 months time will tell.

rich

www.rslaserkits. com

[Guest guest]

This is rather 'wordy' but I think it applies here.

http://nationalhepatitis-c.org/living.htm

>

> From: shepard richard <yenko_stinger65@...>

> Subject: Re:New to Group

> Hepatitis C

> Date: Friday, July 11, 2008, 5:02 PM

>

>

>

>

>

>

> You not alone. I work through treatment and all , then last year

it got so bad had to cut back on my hours from 8 till 6 a day.

Company was fine with that then in December got my call and had a

transplant. Company had gone through a buy out with new owners . So

only took a little over a month off after the operation and have

been working half days (against doc's orders),but doing a full days

work since . On Monday went it and was told no longer needed after

20 day short of 19 years.

> Luckily My side business picked up this week also, not enough to

pay bills but will get by. As severance they did say they would pay

for my cobra insurance for 18 months time will tell.

>

> rich

> www.rslaserkits. com

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Once you complete the 18 months on Cobra, you then automatically become eligible

for HPPA.  Under HPPA, you can go to any insurance company and they CAN NOT turn

you down even with pre-existing conditions.  You must complete the COBRA first,

and then purchase your own insurance under HPPA.

Deron

Re:New to Group

> Hepatitis Csupportgr oupgroups (DOT) com

> Date: Friday, July 11, 2008, 5:02 PM

>

>

>

>

>

>

> You not alone. I work through treatment and all , then last year

it got so bad had to cut back on my hours from 8 till 6 a day.

Company was fine with that then in December got my call and had a

transplant. Company had gone through a buy out with new owners . So

only took a little over a month off after the operation and have

been working half days (against doc's orders),but doing a full days

work since . On Monday went it and was told no longer needed after

20 day short of 19 years.

> Luckily My side business picked up this week also, not enough to

pay bills but will get by. As severance they did say they would pay

for my cobra insurance for 18 months time will tell.

>

> rich

> www.rslaserkits. com

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Once you complete the 18 months on Cobra, you then automatically become eligible

for HPPA.  Under HPPA, you can go to any insurance company and they CAN NOT turn

you down even with pre-existing conditions.  You must complete the COBRA first,

and then purchase your own insurance under HPPA.

Deron

Re:New to Group

> Hepatitis Csupportgr oupgroups (DOT) com

> Date: Friday, July 11, 2008, 5:02 PM

>

>

>

>

>

>

> You not alone. I work through treatment and all , then last year

it got so bad had to cut back on my hours from 8 till 6 a day.

Company was fine with that then in December got my call and had a

transplant. Company had gone through a buy out with new owners . So

only took a little over a month off after the operation and have

been working half days (against doc's orders),but doing a full days

work since . On Monday went it and was told no longer needed after

20 day short of 19 years.

> Luckily My side business picked up this week also, not enough to

pay bills but will get by. As severance they did say they would pay

for my cobra insurance for 18 months time will tell.

>

> rich

> www.rslaserkits. com

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

The HIPPA (Health Insurance Portability and Accountability Act) has

provisions protecting those who have lost coverage.

You don't have to complete 18 months of COBRA coverage. You just have to

show continuity of coverage. If you are currently covered under your

previous employer's plan through COBRA and you get a job, you can go onto

the new employer's plan as soon as you qualify there & can't be denied.

Once you go without coverage for a specified period (63 days), then you can

be denied coverage for pre-existing.

If you do get health insurance through a new employer and did have a lapse

of more than 63 days without insurance, they can make you wait 12 months

before covering a pre-existing condition. As long as you can show the prior

insurance (get a certificate of creditable coverage from prior insurance),

you get credit for those months.

And note that this will only be an advantage if you find a job - then you

get coverage under a group plan so they can't turn you down. However, if

your COBRA coverage ends and you need to find health insurance on your own,

you could be denied for individual coverage. An insurance company is under

no obligation to cover anyone if they are applying for individual coverage.

_____

From: Hepatitis C

[mailto:Hepatitis C ] On Behalf Of Deron Giuliani

Sent: Saturday, July 12, 2008 1:14 PM

Hepatitis C

Subject: Re: Re:New to Group

Once you complete the 18 months on Cobra, you then automatically become

eligible for HPPA. Under HPPA, you can go to any insurance company and they

CAN NOT turn you down even with pre-existing conditions. You must complete

the COBRA first, and then purchase your own insurance under HPPA.

Deron

Re:New to Group

> Hepatitis Csupportgr oupgroups (DOT) com

> Date: Friday, July 11, 2008, 5:02 PM

>

>

>

>

>

>

> You not alone. I work through treatment and all , then last year

it got so bad had to cut back on my hours from 8 till 6 a day.

Company was fine with that then in December got my call and had a

transplant. Company had gone through a buy out with new owners . So

only took a little over a month off after the operation and have

been working half days (against doc's orders),but doing a full days

work since . On Monday went it and was told no longer needed after

20 day short of 19 years.

> Luckily My side business picked up this week also, not enough to

pay bills but will get by. As severance they did say they would pay

for my cobra insurance for 18 months time will tell.

>

> rich

> www.rslaserkits. com

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>