Guest guest Posted February 22, 2009 Report Share Posted February 22, 2009 Hello Peacenow! Welcome! You will find this group to be wonderful, supportive, and very understanding. We talk about anything and everything here so feel free to speak your mind. I know I am very happy to be a part of this group, read others stories, and get feedback on whatever may be going on with me. I can tell you that I had herniated discs from C5 - C7 3 years ago. I was treated with all of the medications you have below and after a year of pain and anguish, they finally did surgery. I wished that I had not gone from doctor to doctor for so long. Typically herniation are what they are. They can not fix themselves like bulging discs can. I am not sure how old you are or how long you have had the herniations but I believe surgery is the only and final option to correct that aspect of your problem. Unfortunatley in my case I can't say that surgery cured me but it allowed to me to at least gain movement back in my arms and neck. I have just recently been informed that my surgery two years ago did not fix my problem but only made it more problematic. I have always been very active and once I gained complete movement in my neck, I took advantage of it and now I am paying for it. I have learned not only from my own experiences but from this wonderful group that once you have neck or back issues, you will ALWAYS have neck and back issues. With this in mind it is very important to educate yourself on what is wrong with you and what the best treatment options are for you. Never take the word of a first opinion but always get a second and even a third before you make any surgical decisions. Have you had any injections yet? What kind of doctor are you under the care of now? From: peacenow56 <yonilover@...> Subject: New to group neck pain Date: Saturday, February 21, 2009, 11:03 PM Hello everyone, I am new to this group and am so glad I found it. I have suffered with neck and back problems for years and other orthopaedic afflictions. In fact I had one of the PAs at my doctors office tell me I am an orthopaedic wreck.It is good to get input from others who are going through the pain and depression that comes from a chronic condition.I am in the midst of what is my worst flare-up ever. It has been about three months now and very intense.I had an MRI two weeks ago that showed ruptured disk at c5-6 and bilateral foraminal spinal stenosis and arthritis.Is anyone familiar with this? I knew I had the disk problem, but it has gotten much worse.My doctor has me on antiinflammatory medication,muscle relaxers,Loritab 10mg,and prednisone,but I am still in pain.If anyone can offer some insight into what I may be facing I would certainly appreciate it.Hope to hear from you soon, peacenow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2009 Report Share Posted February 22, 2009 Hello Peacenow! Welcome! You will find this group to be wonderful, supportive, and very understanding. We talk about anything and everything here so feel free to speak your mind. I know I am very happy to be a part of this group, read others stories, and get feedback on whatever may be going on with me. I can tell you that I had herniated discs from C5 - C7 3 years ago. I was treated with all of the medications you have below and after a year of pain and anguish, they finally did surgery. I wished that I had not gone from doctor to doctor for so long. Typically herniation are what they are. They can not fix themselves like bulging discs can. I am not sure how old you are or how long you have had the herniations but I believe surgery is the only and final option to correct that aspect of your problem. Unfortunatley in my case I can't say that surgery cured me but it allowed to me to at least gain movement back in my arms and neck. I have just recently been informed that my surgery two years ago did not fix my problem but only made it more problematic. I have always been very active and once I gained complete movement in my neck, I took advantage of it and now I am paying for it. I have learned not only from my own experiences but from this wonderful group that once you have neck or back issues, you will ALWAYS have neck and back issues. With this in mind it is very important to educate yourself on what is wrong with you and what the best treatment options are for you. Never take the word of a first opinion but always get a second and even a third before you make any surgical decisions. Have you had any injections yet? What kind of doctor are you under the care of now? From: peacenow56 <yonilover@...> Subject: New to group neck pain Date: Saturday, February 21, 2009, 11:03 PM Hello everyone, I am new to this group and am so glad I found it. I have suffered with neck and back problems for years and other orthopaedic afflictions. In fact I had one of the PAs at my doctors office tell me I am an orthopaedic wreck.It is good to get input from others who are going through the pain and depression that comes from a chronic condition.I am in the midst of what is my worst flare-up ever. It has been about three months now and very intense.I had an MRI two weeks ago that showed ruptured disk at c5-6 and bilateral foraminal spinal stenosis and arthritis.Is anyone familiar with this? I knew I had the disk problem, but it has gotten much worse.My doctor has me on antiinflammatory medication,muscle relaxers,Loritab 10mg,and prednisone,but I am still in pain.If anyone can offer some insight into what I may be facing I would certainly appreciate it.Hope to hear from you soon, peacenow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2009 Report Share Posted May 3, 2009 Hi Amy: Welcome to the group. I'm a fairly new member as well. I am also very sensitive to fluorescent lights, feeling faint. There aren't any in my house. Fortunately, I am able to shop in stores without any negative health consequences. I get headaches from laptops and phones, both cell and land-line. I've made some adaptations and have no trouble working, at this point. All the best, Hoch > > I'm new to this group, but really glad I found you! For the past 3 years, I have had a terrible time with fluorescent lights. They make me feel weak, dizzy, disoriented and terribly anxious. It started when my health crashed with what seems to be endocrine (thyroid and adrenal problems), but as those labs have improved, my problems with fluorescent lights have not. The problem is worse in the morning than it is in the evening. Stores are virtually impossible to manage. I was a teacher and the last year I taught, I had to keep the lights off and just let the students work by natural light coming in the windows. I LOVE teaching, but have had to quit, not only because of the light problem, but the health mess in general. Before getting sick, I had no problems with the lights ever. Sometimes the sun bothers me, but not too badly because I spend a lot of time at the beach and can usually manage without sunglasses. I don't know anyone else with this > problem and am so tired of trying to explain it to people. : ( > > I would really appreciate any advice y'all can give. Thanks! Amy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2009 Report Share Posted May 3, 2009 Hi, This could be the possible explanation between emf sensitivity and metal poisoning, as I have understood it, having experienced both quite severely. In my case, living only 30 yards from a power tower for an extended period of time caused my body to become negatively polorized. A normal body is towards the positive end of this spectrum. As a result of the negative polorization I rapidly absorbed any metal that I touched, as metal is composed of positive ions. So my body became a metal magnet, so to speak. Hence I had metal poisoning so severe that by the age of 35 I was often so weak that I was in bed all day. Of course at that time I had no clue why I was so sick. Fortunatly a very knowledgeable health food store owner told me what was wrong and sold me chelation. I believe that she saved my life as no doctor would have ever diagnosed me with metal poisoning in all likelihood. I noticed that whenever I toched metal my skin broke out in terrible red rashes and I had to give up using silverware due to this. Has anyone else experienced this? Hope this info helps. Cheryl From: Marc <marc@...> Subject: Re: new to group Date: Sunday, May 3, 2009, 10:14 PM > Is there a general consensus on this forum for what causes fluorescent > light problems?? There is (somewhat) a consensus that EMF sensitivity has something to do with heavy metal poisoning, typically mercury is thought to be a culprit (with dental fillings and fish being the main sources). But I would also consider adrenal/thyroid problems, possibly nutritional deficiencies (perhaps iodine, or essential fatty acids, B vitamins, or vitamin D), also a possibility is chronic low level infections (or parasites) dragging down your immune system. These are all things that can be checked by doctors, although I think alternative health doctors (naturopaths, chiropracters) seem to better with this than regular doctors, if for no other reason than they generally take their patients more seriously, and not try to get them on anti-depressants. The downside is that the treatments may not be covered by insurance. The upside is that they can work, as evidenced by several people here who have improved considerably (including myself). Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2009 Report Share Posted May 4, 2009 > That's an adrenal pattern, so I'm guessing the connection may be > adrenal, but I don't know and doctor's seem to have no idea. You can have your cortisol levels checked -- it's a saliva test which is done 4 times in a day to see if you are in adrenal fatigue, and at what stage. I've had this done a couple times. When I was more sensitive, my cortisol levels were too high throughout the day (which means the body was constantly in " fight or flight " mode). When I became less sensitive, my cortisol levels were normal. To become normal, I was taking various herbs and glandular pills/capsules for adrenal support. The test and the pills were provided by a local chiropractor who focuses on nutrition. Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2009 Report Share Posted May 4, 2009 Marc -- Could that include candida?? Thanks, Amy ________________________________ also a possibility is chronic low level infections (or parasites) dragging down your immune system. Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2009 Report Share Posted May 4, 2009 Cheryl -- Wow, you've really been through it! What kind of chelation stuff did the health food store owner give you? I just bought an intestinal cleanse kit and I do have some milk thistle (that I've never used). I can't wear watches that have any kind of metal in them or I get a real itchy rash where the metal touches -- same for earrings etc. Would that be at all connected? I have also read the Adrenal Fatigue book. It's wonderful. His program and supplements brought me from low cortisol levels up to pretty much normal levels -- but it didn't solve all my health issues, so I'm trying to dig deeper than just adrenals. Thanks! Amy ________________________________ Hence I had metal poisoning so severe that by the age of 35 I was often so weak that I was in bed all day. Of course at that time I had no clue why I was so sick. Fortunatly a very knowledgeable health food store owner told me what was wrong and sold me chelation. I believe that she saved my life as no doctor would have ever diagnosed me with metal poisoning in all likelihood. I noticed that whenever I toched metal my skin broke out in terrible red rashes and I had to give up using silverware due to this. Has anyone else experienced this? Hope this info helps. Cheryl ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2009 Report Share Posted May 4, 2009 Marc -- I've done the saliva tests several times. Interestingly, when my light sensitivity was at it's worst (WalMart would make me so dizzy and disoriented that I could barely manage to get myself out of there), my cortisol levels were low. I guess low cortisol messes with you as badly as high cortisol. Even though my cortisol tests out as being in the normal range, I still feel like I'm in constant fight or flight mode -- I felt that way too when it was low. The beach (and outside in general) is the only time when I really can feel relaxed. Your explanations about the beach made a lot of sense to me. Should we be using negative ion generators in our homes? Thanks for all your help! Amy ________________________________ From: Marc <marc@...> Sent: Monday, May 4, 2009 9:10:47 AM Subject: Re: new to group > That's an adrenal pattern, so I'm guessing the connection may be > adrenal, but I don't know and doctor's seem to have no idea. You can have your cortisol levels checked -- it's a saliva test which is done 4 times in a day to see if you are in adrenal fatigue, and at what stage. I've had this done a couple times. When I was more sensitive, my cortisol levels were too high throughout the day (which means the body was constantly in " fight or flight " mode). When I became less sensitive, my cortisol levels were normal. To become normal, I was taking various herbs and glandular pills/capsules for adrenal support. The test and the pills were provided by a local chiropractor who focuses on nutrition. Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2009 Report Share Posted May 4, 2009 > I guess low cortisol messes with you as badly as high cortisol. Yes, low cortisol readings can be even worse than when they are high, as that can indicate a more advanced case of adrenal exhaustion. > Should we be using negative ion generators in our homes? You would think so, but I have personally found negative ion generators to be more trouble than they are worth. I never found any real benefit from them, but I did find plenty of drawbacks, including a " pins & needles " reaction on my skin (an ES reaction?), plus they blacken all furniture and walls in their immediate vicinity, which indicates to me that there are way too many ions next to the device, but probably none further away from the device. I know that there is a really expensive ionizer that I have not tried that claims to be better than all other ionizers (made by Elanra), but it costs more than I'm willing to pay. However, I have found benefits from using low-powered ozone air purifiers. Now, you may have read that ozone is a harmful component of pollution, but I think the media has it wrong in this case. Ozone is also found in high amounts in the most freshest of airs -- in the mountains, by the beach and waterfalls, and after thunderstorms (negative ions are also high in these environments). Ozone is simply an unstable configuration of 3 oxygen molecules, and as soon as it runs into a pollutant, it destroys (oxidizes) it. So I have found ozone good for reducing odors in the house from chemicals, pets, etc. and it also can make the air smell cleaner/fresher indoors. And without destroying the walls of furniture! Many of the ozone devices sold today actually put out way too much ozone (as in more than a natural amount found outdoors), which can be irritating, but with some experimentation I've found appropriately sized models or added on/off recycle timers to limit the amount of ozone added to a room. If you want to experiment, a cheap good one is the Fresh Air Focus from EcoQuest, which I've seen for only $30 - $40 online and on eBay. I also have used more expensive models from BioZone Scientific and the Aranizers (although the Aranizers seems to always self-destruct after about a year or two). I don't consider any of these to be the " perfect " solution for indoor air, but they are certainly better than all of the ionizers I've tried. Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2009 Report Share Posted May 4, 2009 Yes, candida can be a factor. It is one of the numerous items that falls into the category of things that put a strain on your body and immune system. I forgot to mention that Sue's original problem (10 years back) was candida resulting from heavy antibiotic doses after a wisdom teeth infection. This gave her chronic fatigue type ME, i.e. unable to walk for than 100 yards. A severe anti-candida diet apparently cured it, but also left behind some residual damage to the gut (which much later mainfested itself as leaky gut syndrome and food allergies). She still gets periodic recurrences of candida, though pretty moderate (usually if she has eaten sugar or chocolate ...) Most people cope with candida naturally (it is part of our normal gut flora) but for people with a weakened immune system, the gut seems to lose some of its normal ability to self-heal after a candida overgrowth. Ian _____ From: [mailto: ] On Behalf Of Amy Green Sent: 04 May 2009 16:24 Subject: Re: new to group Marc -- Could that include candida?? Thanks, Amy ________________________________ also a possibility is chronic low level infections (or parasites) dragging down your immune system. Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2009 Report Share Posted May 4, 2009 Nope : ) What kind of treatment are you getting for the hashimoto's? Amy ________________________________ That is so very strange-our similar circumstances in life Amy! Gee, you don't have a husband named Dave do ya?! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2009 Report Share Posted May 5, 2009 Hi Amy, I can't remember the brand of chelation I used way back when I was much sicker than I am now as that was in the early 1990's. However, I now use the one from " Health Resources " (www.healthresources.net) 1-800-471-4007 to order, or order online. This seems to be a very good brand. Allergy to metal does seem to be one one the symptoms of Electrical sensitivity. A book I read that convinced me that that was my problem is " Electrical Sensitivity " by Lucinda Grant. That may answer many questions you may have. It is the best book I have found on this subject. Good luck with your healing process. I know from my own experiences how difficult it can be. Cheryl From: Amy Green <amygreen53@...> Subject: Re: new to group Date: Monday, May 4, 2009, 8:30 AM Cheryl -- Wow, you've really been through it! What kind of chelation stuff did the health food store owner give you? I just bought an intestinal cleanse kit and I do have some milk thistle (that I've never used). I can't wear watches that have any kind of metal in them or I get a real itchy rash where the metal touches -- same for earrings etc. Would that be at all connected? I have also read the Adrenal Fatigue book. It's wonderful. His program and supplements brought me from low cortisol levels up to pretty much normal levels -- but it didn't solve all my health issues, so I'm trying to dig deeper than just adrenals. Thanks! Amy ____________ _________ _________ __ Hence I had metal poisoning so severe that by the age of 35 I was often so weak that I was in bed all day. Of course at that time I had no clue why I was so sick. Fortunatly a very knowledgeable health food store owner told me what was wrong and sold me chelation. I believe that she saved my life as no doctor would have ever diagnosed me with metal poisoning in all likelihood. I noticed that whenever I toched metal my skin broke out in terrible red rashes and I had to give up using silverware due to this. Has anyone else experienced this? Hope this info helps. Cheryl ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2009 Report Share Posted May 5, 2009 Hi, Cheryl, I have found polarity to be an issue in my illness too. Do you do polarity exercises? They seem to help me. I can send you a site, if you don't know how to do these. I am mcs, too, so I didn't ever see my metal reactions in the same light as you. I am certainly not as sensitive to metals as you are (tho Loni here possibly could be). I seem however to be an " electric magnet " . (I might be considered also a toxin magnet!) Diane From: Marc <marcufoseries (DOT) com> Subject: Re: new to group groups (DOT) com Date: Sunday, May 3, 2009, 10:14 PM > Is there a general consensus on this forum for what causes fluorescent > light problems?? There is (somewhat) a consensus that EMF sensitivity has something to do with heavy metal poisoning, typically mercury is thought to be a culprit (with dental fillings and fish being the main sources). But I would also consider adrenal/thyroid problems, possibly nutritional deficiencies (perhaps iodine, or essential fatty acids, B vitamins, or vitamin D), also a possibility is chronic low level infections (or parasites) dragging down your immune system. These are all things that can be checked by doctors, although I think alternative health doctors (naturopaths, chiropracters) seem to better with this than regular doctors, if for no other reason than they generally take their patients more seriously, and not try to get them on anti-depressants. The downside is that the treatments may not be covered by insurance. The upside is that they can work, as evidenced by several people here who have improved considerably (including myself). Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2009 Report Share Posted May 26, 2009 , I'd like to hear details about your yeast cleanse diet. Many yeast diets are off the mark enough they don't help much. Ours is different. Duncan > > Morning, > > I'm new to the group. I just started a yeast cleanse diet 2 weeks ago. > I did ok the first week, just tired and not feeling 100%, some > belching. But this week I'm really not well. I woke up last Sunday was > pains in my chest area. Lots of belching and pain. After consulting > with my Doctor, he said this is yeast kill off stuck in my digestive track. > > Anyone else have this? It's been a week now and it's still here. Some > days are better then others. I can feel it moving through the digestive > track, it's in the large intestines today and painful. With sharp pains. > > Any ideas how to elivate the pain? I'm doing all the enzymes, juices > ect that I'm supposed to. > > in MN > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2009 Report Share Posted May 26, 2009 Hi I'm new too and on my 2nd week and my chest is terrible can hardly get the phlegm up and feel like total crap, i wasn't sick before i started the diet, feel like i have the flu too, like my whole defences are down, just not well and have skin coming off the palms of my hands i've never had before so ,i dont know whats wrong with me, i havnt been to a doctor on 2 and a half yrs also temperatures and runny nose so i thought maybe its hayfever, i live in N.IRELAND, i have no-one giving me any guidance at all, i'd a rather someone had a plan for me to follow, the man in my health food shop who tested me for candidas was going to monitor me and slowly introduce me back into foods again, but he closed up shop and is gone now, so i'm still really lost, i came off absolutely everything and just eat salads veg and meat, nothing else, its really hard. Elaine candidiasis From: Lhunhen@... Date: Sun, 24 May 2009 06:37:46 -0500 Subject: new to group Morning, I'm new to the group. I just started a yeast cleanse diet 2 weeks ago. I did ok the first week, just tired and not feeling 100%, some belching. But this week I'm really not well. I woke up last Sunday was pains in my chest area. Lots of belching and pain. After consulting with my Doctor, he said this is yeast kill off stuck in my digestive track. Anyone else have this? It's been a week now and it's still here. Some days are better then others. I can feel it moving through the digestive track, it's in the large intestines today and painful. With sharp pains. Any ideas how to elivate the pain? I'm doing all the enzymes, juices ect that I'm supposed to. in MN _________________________________________________________________ Share your photos with Windows Live Photos – Free. http://clk.atdmt.com/UKM/go/134665338/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2009 Report Share Posted May 27, 2009 Hi Heidi, Welcome to Bee's group! You are certainly not alone here. At the latest count we have over 5,000 members! The best way to overcome candida is to read and understand so that you know how to deal with it effectively. Curing the candida is about giving your body proper nutrients so that it can heal itself; it's not about trying to kill off the candida. Bee will tell you that eating a 'rotational diet' is not necessary and it is likely that some of the foods you are 'sensitive' to are actually good for you to eat since they help to enable healing (but are often mistaken as a negative reaction). Take a look at Bee's recommendations for foods we can eat: http://www.healingnaturallybybee.com/articles/foodslist.php The reason that you feel hungry is likely because you are not getting enough fat. Bee recommends a high fat, low carb diet as well as supplements that you can buy on your own. The good fats are really important for overall health and they help keep you feeling satiated. The coconut oil is also antifungal, so it helps to lower the numbers of candida. For you, the first task is to start reading Bee's website so that you understand how to heal yourself. Here are some articles that will help you to do that: -How to Successfully Overcome Candida http://www.healingnaturallybybee.com/articles/intro2.php -Curing Candida, How to Get Started http://www.healingnaturallybybee.com/articles/intro1.php For inspiration and motivation, check out these Success Stories written by some of our members: http://www.healingnaturallybybee.com/success/index.php Once you've had a chance to read, please get back to us with any questions you have. All the best, > > Hello all, I am new to the group and very happy that I found it. I have been sick with candida for years now but have just recently figured out what it was I am dealing with. The past year I went from it being a nuisance to life changing. <snip>. I have so many of the symptoms on the list and finally found some folks who know something about it and how to get rid of it. I'll probably have many questions as I read through the site and transition to the diet. I am just very glad that I am not alone in this and have others dealing with it to talk to finally. > thanks, > Heidi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2009 Report Share Posted May 28, 2009 Yes it's die-off, I've been through it over and over with my various infections (Lyme, babesiosis, candida). It will end eventually but with me they sometimes lasted for two months. It does mean your diet is working! Try activated charcoal or Benadryl, these may help you get through it. > > > Hi > > > > I'm new too and on my 2nd week and my chest is terrible can hardly get the phlegm up and feel like total crap, i wasn't sick before i Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2009 Report Share Posted May 28, 2009 , belching usually comes from insufficient stomach acidity; it's called hypochlorhydria or achlorhydria. The cure is to increase stomach acid. Your yeast cleanse diet may be aggravating it. What's in it? Duncan > > Morning, > > I'm new to the group. I just started a yeast cleanse diet 2 weeks ago. > I did ok the first week, just tired and not feeling 100%, some > belching. But this week I'm really not well. I woke up last Sunday was > pains in my chest area. Lots of belching and pain. After consulting > with my Doctor, he said this is yeast kill off stuck in my digestive track. > > Anyone else have this? It's been a week now and it's still here. Some > days are better then others. I can feel it moving through the digestive > track, it's in the large intestines today and painful. With sharp pains. > > Any ideas how to elivate the pain? I'm doing all the enzymes, juices > ect that I'm supposed to. > > in MN > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 Unfortunately no there is not a change of environment that can help. Some with osteoarthritis do better in a warmer climate but rheumatoid arthritis is the body attacking itself. Methotrexate (mtx) is a very good drug--an oldie but a goodie. Sorry you have to be here but glad you found this group. Lots of great people with lots of great advice. e, mom to 'joe' 22 poly/lupus who just got hired with her first teaching job. Woohoo! Now bring on the medical insurance!!! From: jhill9424 <jennifershill@...> Subject: New to group Date: Monday, June 1, 2009, 9:46 PM Hi, My daughter, Isabella (4), was diagnosed about 9 months ago with JIA and was given a steroid shot in her knee for it. She looked good in November at her follow up visit, but during her visit last week her rheumatologist said her hips are now affected and needed to be put on MTX injections once a week starting this Friday. We're going to do it, of course. I've spent so much time researching since then what could be causing this and there is very limited information, which all of you already know. There's nothing conclusive out there, which is incredibly frustrating. Has anyone found that a change in their living environment helps? The reason I ask is that I happen to know that the previous owner of our house suffered from debilitating arthritis. He was an older gentleman so it could just be a coincidence but I can't stop thinking it's related somehow. This is a wonderful forum that I've never used before and it's very comforting to read about others going through this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 Hi, and welcome. Sounds like your rheumy is being aggressive which is good. Getting started on mtx will hopefully get the arthritis under control and prevent the damage that may occur. It is not an easy decision to make, but many kids have had a good response to the drug and it can help. As to the environment, I don't think it will really affect the JA. The only thing I can think of is if something is causing an allergic reaction, then the arthritis can be triggered by allergies. But it really is another auto immune disease like allergies, so once it is triggered by whatever cause, you have it. It can be affected by things like weather but that is on the level of feeling more pain or not. The underlying disease is there. Hope this makes sense, Michele ( 22, spondy) ________________________________ From: [mailto: ] On Behalf Of jhill9424 Sent: Monday, June 01, 2009 11:46 PM Subject: New to group Hi, My daughter, Isabella (4), was diagnosed about 9 months ago with JIA and was given a steroid shot in her knee for it. She looked good in November at her follow up visit, but during her visit last week her rheumatologist said her hips are now affected and needed to be put on MTX injections once a week starting this Friday. We're going to do it, of course. I've spent so much time researching since then what could be causing this and there is very limited information, which all of you already know. There's nothing conclusive out there, which is incredibly frustrating. Has anyone found that a change in their living environment helps? The reason I ask is that I happen to know that the previous owner of our house suffered from debilitating arthritis. He was an older gentleman so it could just be a coincidence but I can't stop thinking it's related somehow. This is a wonderful forum that I've never used before and it's very comforting to read about others going through this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 JIA is not connected with the arthritis that old people get - it's the body's immune system going into overdrive and attacking the joints as opposed to old person's arthritis where the joints and worn and old Love xxxxxxxxxxx From: [mailto: ] On Behalf Of jhill9424 Sent: 02 June 2009 05:46 Subject: New to group Hi, My daughter, Isabella (4), was diagnosed about 9 months ago with JIA and was given a steroid shot in her knee for it. She looked good in November at her follow up visit, but during her visit last week her rheumatologist said her hips are now affected and needed to be put on MTX injections once a week starting this Friday. We're going to do it, of course. I've spent so much time researching since then what could be causing this and there is very limited information, which all of you already know. There's nothing conclusive out there, which is incredibly frustrating. Has anyone found that a change in their living environment helps? The reason I ask is that I happen to know that the previous owner of our house suffered from debilitating arthritis. He was an older gentleman so it could just be a coincidence but I can't stop thinking it's related somehow. This is a wonderful forum that I've never used before and it's very comforting to read about others going through this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Hi e, Yay! Congrats to Jo!!! How exciting! What kind of school? What age are the kids? Is she just thrilled about this?!? Awesome ... first and now, Jo!!!! I just got back from the doctors. Strep throat and possible pink eye and I'm really not feeling well at all but this message definitely made me smile : ) Lots of Aloha, Georgina New to group Date: Monday, June 1, 2009, 9:46 PM Hi, My daughter, Isabella (4), was diagnosed about 9 months ago with JIA and was given a steroid shot in her knee for it. She looked good in November at her follow up visit, but during her visit last week her rheumatologist said her hips are now affected and needed to be put on MTX injections once a week starting this Friday. We're going to do it, of course. I've spent so much time researching since then what could be causing this and there is very limited information, which all of you already know. There's nothing conclusive out there, which is incredibly frustrating. Has anyone found that a change in their living environment helps? The reason I ask is that I happen to know that the previous owner of our house suffered from debilitating arthritis. He was an older gentleman so it could just be a coincidence but I can't stop thinking it's related somehow. This is a wonderful forum that I've never used before and it's very comforting to read about others going through this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Get well soon, Georgina! and Rob 20, JAS New to group > > Date: Monday, June 1, 2009, 9:46 PM > > Hi, > > My daughter, Isabella (4), was diagnosed about 9 months > ago with JIA and was given a steroid shot in her knee for it. > She looked good in November at her follow up visit, but during > her visit last week her rheumatologist said her hips are now > affected and needed to be put on MTX injections once a week > starting this Friday. We're going to do it, of course. I've > spent so much time researching since then what could be causing > this and there is very limited information, which all of you > already know. There's nothing conclusive out there, which is > incredibly frustrating. Has anyone found that a change in their > living environment helps? The reason I ask is that I happen to > know that the previous owner of our house suffered from > debilitating arthritis. He was an older gentleman so it could > just be a coincidence but I can't stop thinking it's related somehow. > > This is a wonderful forum that I've never used before and > it's very comforting to read about others going through this. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 Hi Bee, No, I am not on your program, but am very interested. I signed up for this group a while ago, but the emails were bouncing. I thought there just was no activity in the group. I got an iPhone the other day, so I changed my email to my account and now I'm getting your emails. What a wonderful thing you are doing. I've just recently been reading up on yeast. I'm pretty sure I have it. I took birth control pills for 10 years without missing a day. I've been asking doctors for over 10 years now what those spots are and no one could every answer me. I read The Body Ecology diet and tried to follow it, but I didn't do very well. It seems a little overwhelming to and I don't get overwhelmed that easy. Where can I read more about your program? For some reason the yeast has gotton worse over the last 3 or 4 years as well as the cravings for sugar. Becuase of that, my weight has sky rocketed and it is starting to affect everything in my life. I can't even sleep well because I've gained so much weight. My feet hurt, my knees hurt, and my back hurts. I have two beautiful kids, 6 and 11, and it's starting to affect me doing things with them. I don't want that. I want to take back control, but it just seems so hard. Carlyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 Hi Carlyn, You can find all the information on Bee's website: http://www.healingnaturallybybee.com/ The best thing you can do for yourself is to read and understand what candida is and what you need to do to get rid of it. You're right, it isn't easy, but we are here to help and support you and as you progress, it gets so much easier. Not only that, but you will start to feel better than you have in years, so it is well worth the time and effort. Here are two important articles to start with: 1. How to Successfully Overcome Candida http://www.healingnaturallybybee.com/articles/intro2.php 2. Curing Candida, How to Get Started http://www.healingnaturallybybee.com/articles/intro1.php For encouragement and inspiration see these wonderful Success Stories by members of this group: http://www.healingnaturallybybee.com/success/index.php All the best, (a group moderator) > > Hi Bee, > > No, I am not on your program, but am very interested. I signed up for this group a while ago, but the emails were bouncing. I thought there just was no activity in the group. I got an iPhone the other day, so I changed my email to my account and now I'm getting your emails. What a wonderful thing you are doing. I've just recently been reading up on yeast. I'm pretty sure I have it. I took birth control pills for 10 years without missing a day. I've been asking doctors for over 10 years now what those spots are and no one could every answer me. > > I read The Body Ecology diet and tried to follow it, but I didn't do very well. It seems a little overwhelming to and I don't get overwhelmed that easy. Where can I read more about your program? For some reason the yeast has gotton worse over the last 3 or 4 years as well as the cravings for sugar. Becuase of that, my weight has sky rocketed and it is starting to affect everything in my life. I can't even sleep well because I've gained so much weight. My feet hurt, my knees hurt, and my back hurts. I have two beautiful kids, 6 and 11, and it's starting to affect me doing things with them. I don't want that. I want to take back control, but it just seems so hard. > > Carlyn > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.