New to Group

[Guest guest]

Hello Anne and welcome,

I was diagnosed with PBC Stage 4 in 1999 and then cross diagnosed with AIH in

2000.

I ,too ,was overwhelmed with the initial diagnosis and prepared myself for a

foreshortened life.

Once I became better informed ,I realised this was not the case.There are many

in this group who can help you .No symptom is too small for someone here to help

you with.

So fire away with questions ,symptoms ,moans ,worries,anything you think about.

Louise in Newcastle upon Tyne,England

[Guest guest]

Anne, have you been to PBCers.org? They have extensive information on PBC,

with and without, AIH overlap. For such a rare condition, more and more

PBCers are being dx with AIH. I also have the overlap and lots of other

'stuff'.

Patsy in AZ

[Guest guest]

Welcome, learn and share. You might also wish to check out the people on the

PBC list I think you can access it by going to :

PBC_Digest/

Good luck,

Clara from OR dx99

>

>

> Hi,

>

> I was diagnosed with an overlapping " syndrome " of Autoimmune Hepatitis

> and Primary Biliary Cirrhosis last Friday (April 30, 2010). I found

> this Group while researching my situation. Feeling overwhelmed, but

> hopeful. Thank you for the support.

>

> Anne

>

>

>

>

[Guest guest]

Hi Donna

Welcome to the group.

Everyone here helps one another with info, experiance, and support.

Please feel free to chip in anytime.

Your not alone here, we are all friends.

I am don in ks, 59, DX'd 2008, genotype 1B, no biopsy or TX yet.

I try to be the self appointed info guy for the group.

I am posting current news updates daily, and building the HCV Links Library.

http://health.dir./group/ /links <--- click here

Please feel free to use it, it is made for YOU.

I post stuff often on the new Protease Viral Inhibitors.

I just posted this yesterday.

http://Hepatitis Cnewdrugs.blogspot.com/2010/07/merck-is-hot-on-vertexs-heels-with-its.html

There is lots more in the HCV Links Library in the - 000C HCV News Archieve folders.

Look in the library near the top.

The new PI's are possibly mostly for genotypes 1, and non-responders [like you].

The Pharm companys claim 75%+ SVR rates in these two catigorys for people with HCV.

It is basically the same I/R treatment with the PI's added, thus attacking the virus from 3 directions, not just 2.

- Gloria, another member, did the clinical trial after failing the first TX, and cleared.

She can tell you about her experiance.

- in Hawaii is doing a clinical trial right now.

He can talk with you about his experiances.

Donna, I help find info for everyone.

If you need me to help you too, please ask.

I dont mind, its what I do.

Again, welcome to the group.

Stay well my friend.

love

don in ks

From: bostnbean <donnasikes1874@...>Subject: [ ] new to group Date: Sunday, July 4, 2010, 8:00 PM

Hi new to group. looking for info on new tx Teleprevir? anyone have any thouhgts?Little about myself, dx in 2004. genotype 1a, stage 2 fibrosis. Have tried tx 2 was unable to complete, rbc's would drop to low,and have to work. Looking forward to hearing some new info. After stopping tx the last time I just kinda gave up,and haven't paid attention to whats new. Gotta keep fighting.------------------------------------

[Guest guest]

, I'm sorry you're running into such a complex situation.

I wish I had some useful information for you, but I don't. I've been taking

Prednisone for 10 years, trying constantly to get off it.

About a year ago, my hep suggested CellCept instead of Prednisone/Imuran, and I

filled a prescription for it. Before I took the CellCept, I learned from an

unexpected biopsy that my AIH is in remission. So, I don't have any first-hand

" user " information for you. I did a lot of reading about CellCept before filling

the RX.

Incidentally, I have an appt with the hep next month. I hope to get better

information about my situation then. I don't understand why my liver panel

numbers are elevated in remission.

I'd like to know what choices you make on this.

Best wishes.

Harper

AIH dx 2000

CD dx 2002

Doing very well -- 2010

[ ] New to group

I am freaking out. After a year of prednisone and 6MP my liver enzymes still

are not " normalizing. "

Has anyone been on Prograf, Cellcept, or other transplant medications as an

alternative?

I am worried I am not a good transplant candidate, if it should come to that,

because I take a high dose of coumadin to prevent blood clots.

I'd appreciate any input. Thanks!

This is a summary from my doctor:

" About 10% of patients with autoimmune hepatitis do not have a complete response

to treatment; I believe you are in that 10% category. You have a higher risk of

eventually developing cirrhosis or liver failure (if the autoimmune hepatitis is

not adequately controlled). I recommend increasing the dose of prednisone to 15

mg a day (below this the liver inflammation may not be adequately controlled

(the goal is to keep the ALT below 100 if possible)).

I was hoping that we could control the autoimmune hepatitis at a lower dose of

prednisone especially since you are also taking 100 mg of 6-mercaptopurine a

day.

There are other alternatives for immunosuppression to control the autoimmune

hepatitis, but these medications are not guaranteed to control it any better

than prednisone and they have their own set of side effects (I am referring to

medications that are used after an organ transplant to prevent the body from

rejecting the organ, such as Prograf, Cellcept, or other transplant

medications). I am hesitant to use one of those unless you absolutely

insisted. "

[Guest guest]

Hi

I'm sorry this sounds like a frustrating and scary time for you.

It sounds from the summary that you have a doctor that genuinely cares about

your wellbeing, which is a great thing.

I also was unresponsive to prednisone and imuran, andwas effectively

untreated for some years.

My specialist originally wanted to try cellcept but funding in my country

(New Zealand) was turned down and so we tried cyclosporine, it has

successfully managed my levels since. I don't say this to say 'hey take

cyclosporine' but to say, take heart , your doctor is invested in your

wellness, and responding differently to other people does not mean not

responding full stop. There are other answers - such as raising the dosage

of prednisone- that can, and do work for us 10 percenters.

take care

Amber

On Sun, Jul 11, 2010 at 8:56 AM, <lkondrick@...> wrote:

>

>

> I am freaking out. After a year of prednisone and 6MP my liver enzymes

> still are not " normalizing. "

>

> Has anyone been on Prograf, Cellcept, or other transplant medications as an

> alternative?

>

> I am worried I am not a good transplant candidate, if it should come to

> that, because I take a high dose of coumadin to prevent blood clots.

>

> I'd appreciate any input. Thanks!

>

> This is a summary from my doctor:

>

> " About 10% of patients with autoimmune hepatitis do not have a complete

> response to treatment; I believe you are in that 10% category. You have a

> higher risk of eventually developing cirrhosis or liver failure (if the

> autoimmune hepatitis is not adequately controlled). I recommend increasing

> the dose of prednisone to 15 mg a day (below this the liver inflammation may

> not be adequately controlled (the goal is to keep the ALT below 100 if

> possible)).

>

> I was hoping that we could control the autoimmune hepatitis at a lower dose

> of prednisone especially since you are also taking 100 mg of

> 6-mercaptopurine a day.

>

> There are other alternatives for immunosuppression to control the

> autoimmune hepatitis, but these medications are not guaranteed to control it

> any better than prednisone and they have their own set of side effects (I am

> referring to medications that are used after an organ transplant to prevent

> the body from rejecting the organ, such as Prograf, Cellcept, or other

> transplant medications). I am hesitant to use one of those unless you

> absolutely insisted. "

>

>

>

[Guest guest]

This is from Northern California. Thank you all for the kind and

supportive responses.

Myanxiety is somewhat diminshed. I do take heart there are some survivors.

-nitially, I am Miss Worst Case Scenario. Aaargh!

My grandmother died from hep in the late 60's. They tried unsuccessfuly to

treat it. - can' t get many details from my mom as it is still a very emotional

issue. Is AIH hereditary?

My doc is a GI not a hep. My sister is an RN and has access to a hep specialist

as does my brother. I will get free long distance 2nd opinions. I will keep you

posted!

Sent via BlackBerry from T-Mobile

[Guest guest]

Hi ,

I've been taking Cellcept for 7 years and it has been a wonder drug for me! It

does have risks, as do most drugs, but I've had no side effects.

I have PBC, and my numbers simply would not respond to medication. My hep

suspected an AIH overlap, and did another biopsy to confirm it, before

suggesting we try the Cellcept. Within 6 weeks ALL but one of my markers were

NORMAL range, the odd duck being the GGT. And they have stayed there. I had to

have blood tests every month initially to watch for signs of bone marrow

depression, but gradually increased the time between, and also have been able to

lower the dose over time.

It doesn't work that well for everyone, but I know of many cases where it has. I

also did a LOT of research before starting it (I'm a pharmacist and research

every med that passes my lips, LOL). I even got in touch with the doctor in The

Netherlands who had run trial studies on using it pre-transplant, and several

people who had been on it a while.

I don't read here regularly, so if you have questions please feel free to

contact me directly.

Jeannette

>

> I am freaking out. After a year of prednisone and 6MP my liver enzymes still

are not " normalizing. "

>

> Has anyone been on Prograf, Cellcept, or other transplant medications as an

alternative?

[Guest guest]

>

>

> , I'm sorry you're running into such a complex situation.

>

> I wish I had some useful information for you, but I don't. I've been taking

Prednisone for 10 years, trying constantly to get off it.

>

............ I learned from an unexpected biopsy that my AIH is in remission.

,

The above is Harper's comments. I have been reading his comments for a long

time, and he has had his share of being scared and chasing after doctors.

Don't loose faith, keep plugging along, and hopefully, unexpectedly you too

may have a " remision " or at least a reduction of the very useful but awful

Prednisone. All I can say, is that a lot of us have gone through bad and worse

days, but a majority of us manage to hang in there somehow. In my old age I

seem to be getting better, or at least not getting worse with my liver. I have

just received a pacemaker, so that has become the focus of my attention.

Clara from OR

dx'99 NAFLD/PBC stage 4 in '99, and numerous other problems

now we don't know what stage!!!

[Guest guest]

Since you are in a long term antibiotic dose, you should expect recurrent

vaginal infections. Antibiotics disrupt the vaginal ecology giving the yeast

opportunity to growth. It is well known antibiotic inatake cause vaginal yeast

infections. You probably also have a fungal intestinal overgrowth. Candida is

also known to cause repeated UTIs. You should look at candida as a root cause of

those chronic problems.

.

>

> Hello I am new to the group. I am looking for information on stopping

recurrent yeast infections. I tend to get yeast infections after intercourse

and after wearing a bathing suit. I was recently was put on a maintenance dose

of low dose antibiotics for UTI's and I think that is where this began but I am

not sure. I also began reading about candida and believe there is a connection

with my intense craving for sweets. I have eaten a whole cake on several

occasions!! Please help, I am welcome to all ideas, stories and information on

how to battle this.

>

[Guest guest]

Another thing to consider is the long term effect of being on the antibiotics

which kill of a great portion of the microorganisms that actually keep the

candida in its natural parameters within the GI tract. And once the beneficial

microorganisms are gone the candida will most likely go systemic as it sounds

like in your case.

The only way to get the microorganisms back into your body is to supplement them

into your diet, with my program, which uses only natural elements the systemic

fungal issues will go away along with the UTI and vaginal yeast infections.

If your system was healthy it would not matter if your partner was infected or

not, your body would be able to fend off his infection even with frequent

intercourse.

In the files of this group is my book which I address the fungal issue in more

detail. If for some reason you can not find it just email me directly and I will

send you the PDF.

Welcome to the group!

Wil Spencer VMSP, Naturopath, author, researcher

www.bodyelectrician.com

________________________________

From: Happiness <ingod.happiness@...>

candidiasis

Sent: Sun, August 15, 2010 11:49:10 AM

Subject: New to Group

Hello I am new to the group. I am looking for information on stopping recurrent

yeast infections. I tend to get yeast infections after intercourse and after

wearing a bathing suit. I was recently was put on a maintenance dose of low dose

antibiotics for UTI's and I think that is where this began but I am not sure. I

also began reading about candida and believe there is a connection with my

intense craving for sweets. I have eaten a whole cake on several occasions!!

Please help, I am welcome to all ideas, stories and information on how to battle

this.

[Guest guest]

Can you describe her rash to me?

 

" PRECISION HEADLINER & AUTO TRIM "     Sandy Hanson- @ 281-487-1919

________________________________

From: P <jobobperry@...>

Sent: Wed, August 25, 2010 10:20:33 PM

Subject: New to group

 

Hi,

I am new to this group. My daughter Rose (10) has been diagnosed with JRA.

Previously to this problem, she was diagnosed with another autoimmune disease,

autoimmune hepatitis (not the contageuous hepatitis, it's just that her own

cells are attacking the liver.)

She has been on Naxproxen and right now she is doing well. However, when we

tried to take her off of it, she started limping again. The problem is finding

another med to put her on, because of her liver. Because of the potential

toxicity of Methatrexate to her liver(I don't know the spelling) she cant go on

this med which seems to be the med of choice. Before she was diagnosed she had

and is still taking Imuran for her liver and it should have help the JRA, but

obviously it didn't since she now has this new problem. Does anyone else here

have this dual diagnosis JRA and Autoimmune Hepatitis? What are you taking?

Other meds such as Cellcept have been mentioned and one other med, which name I

can't recall. Anyone have good results with any other meds.

She also livido recticular, a rash that I read doesn't go away and is related to

JRA. Interestingly, much of her rash appears to be gone except what is on her

feet. Anyone else have this rash?

I have loads of questions, but I guess, that's it for now. Thanks for listening.

Jo

[Guest guest]

Welcome to the group! I don't have hepatitis but there are some medications that

are not as harsh on the liver as methotreaxate. If you go on google you can

google medications and see how they affect the body. Here is a link of a website

that has a table that lists side affects etc. I think it may be helpful to you.

http://www.webmd.com/rheumatoid-arthritis/guide/rheumatoid-arthritis-medications

I hope that Rose feels better soon! (beautiful name by the way)

Best wishes!Shea Reasoner

________________________________

From: P <jobobperry@...>

Sent: Wed, August 25, 2010 11:20:33 PM

Subject: New to group

Hi,

I am new to this group. My daughter Rose (10) has been diagnosed with JRA.

Previously to this problem, she was diagnosed with another autoimmune disease,

autoimmune hepatitis (not the contageuous hepatitis, it's just that her own

cells are attacking the liver.)

She has been on Naxproxen and right now she is doing well. However, when we

tried to take her off of it, she started limping again. The problem is finding

another med to put her on, because of her liver. Because of the potential

toxicity of Methatrexate to her liver(I don't know the spelling) she cant go on

this med which seems to be the med of choice. Before she was diagnosed she had

and is still taking Imuran for her liver and it should have help the JRA, but

obviously it didn't since she now has this new problem. Does anyone else here

have this dual diagnosis JRA and Autoimmune Hepatitis? What are you taking?

Other meds such as Cellcept have been mentioned and one other med, which name I

can't recall. Anyone have good results with any other meds.

She also livido recticular, a rash that I read doesn't go away and is related to

JRA. Interestingly, much of her rash appears to be gone except what is on her

feet. Anyone else have this rash?

I have loads of questions, but I guess, that's it for now. Thanks for

listening.

Jo

[Guest guest]

Shea,

Thanks for the info.

Jo

>

> Welcome to the group! I don't have hepatitis but there are some medications

that

> are not as harsh on the liver as methotreaxate. If you go on google you can

> google medications and see how they affect the body. Here is a link of a

website

> that has a table that lists side affects etc. I think it may be helpful to

you.

>

>

http://www.webmd.com/rheumatoid-arthritis/guide/rheumatoid-arthritis-medications

> I hope that Rose feels better soon! (beautiful name by the way)

> Best wishes!Shea Reasoner

>

>

>

> ________________________________

> From: P <jobobperry@...>

>

> Sent: Wed, August 25, 2010 11:20:33 PM

> Subject: New to group

>

>

> Hi,

>

> I am new to this group. My daughter Rose (10) has been diagnosed with JRA.

> Previously to this problem, she was diagnosed with another autoimmune

disease,

> autoimmune hepatitis (not the contageuous hepatitis, it's just that her own

> cells are attacking the liver.)

>

>

> She has been on Naxproxen and right now she is doing well. However, when we

> tried to take her off of it, she started limping again. The problem is

finding

> another med to put her on, because of her liver. Because of the potential

> toxicity of Methatrexate to her liver(I don't know the spelling) she cant go

on

> this med which seems to be the med of choice. Before she was diagnosed she

had

> and is still taking Imuran for her liver and it should have help the JRA, but

> obviously it didn't since she now has this new problem. Does anyone else here

> have this dual diagnosis JRA and Autoimmune Hepatitis? What are you taking?

> Other meds such as Cellcept have been mentioned and one other med, which name

I

> can't recall. Anyone have good results with any other meds.

>

> She also livido recticular, a rash that I read doesn't go away and is related

to

> JRA. Interestingly, much of her rash appears to be gone except what is on her

> feet. Anyone else have this rash?

>

> I have loads of questions, but I guess, that's it for now. Thanks for

> listening.

>

> Jo

>

>

>

>

>

>

>

>

[Guest guest]

Hi Jo and welcome to the group, although we always hate to hear of another child

with this disease. I am pretty sure there is someone else's child on Cellcept. I

remember some discussion on this med, but can't seem to recall exactly who it

is. Perhaps they will be able to post soon. It is kind of a slower time for the

list, with people busy getting kids back to school.

Many of our kids have other auto immune diseases - asthma, allergies, etc. - but

I do not recall anyone with the hepatitis issue your daughter unfortunately has.

But there have been others where the liver levels become out of whack due to the

meds. I am not sure which meds they switched to. Many of the kids do take drugs

other than MTX, with the advent of biologics those are often the meds the kids

are taking. Things like Enbrel, Remicade, etc. I am sure those probably also

affect the liver in some way, but perhaps they could be used. Also would

cortisone injections be a possibility? I know many kids have gotten at least

some temporary relief with joint injections.

You can check on the list site for the folder of rashes. Parents have posted

pics of the rashes their kids have had and you can see if anything looks like

what Rose has.

Once again welcome. You have found a place with a lot of support and info.

Please feel free to post any questions you have and to vent when needed. The

folks here are pretty understanding - they know what you are going through.

Sorry I have not been too much help with your questions. I'll keep searching to

see if I have any info on the drug you are talking about. Let us know how Rose

is doing, Michele ( 23, spondy)

From: [mailto: ] On Behalf Of

P

Sent: Wednesday, August 25, 2010 10:21 PM

Subject: New to group

Hi,

I am new to this group. My daughter Rose (10) has been diagnosed with JRA.

Previously to this problem, she was diagnosed with another autoimmune disease,

autoimmune hepatitis (not the contageuous hepatitis, it's just that her own

cells are attacking the liver.)

She has been on Naxproxen and right now she is doing well. However, when we

tried to take her off of it, she started limping again. The problem is finding

another med to put her on, because of her liver. Because of the potential

toxicity of Methatrexate to her liver(I don't know the spelling) she cant go on

this med which seems to be the med of choice. Before she was diagnosed she had

and is still taking Imuran for her liver and it should have help the JRA, but

obviously it didn't since she now has this new problem. Does anyone else here

have this dual diagnosis JRA and Autoimmune Hepatitis? What are you taking?

Other meds such as Cellcept have been mentioned and one other med, which name I

can't recall. Anyone have good results with any other meds.

She also livido recticular, a rash that I read doesn't go away and is related to

JRA. Interestingly, much of her rash appears to be gone except what is on her

feet. Anyone else have this rash?

I have loads of questions, but I guess, that's it for now. Thanks for listening.

Jo

[Guest guest]

Hi Jo,

I am sorry that Rose has had to deal with this disease. My daughter's name is

Rose, and she is 9. At one point in the early onset of her systemic JIA

she had problems with her liver and was tested for autoimmune hepatitis,

but the test came back negative. 's ALT was 2000 and AST was 1000 and the

doctors didn't know what was causing it. After we reduced the daily prednisone

dose a bit and also switched her NSAID suddenly the liver functions started

normalizing. I believe the doctors think it might have been a viral hepatitis

or maybe just too many meds for her liver at once. Or it could have been early

signs of MAS, but the fact that the LFTs starting going down after reducing

prednisone didn't fit with this. It's a little bothersome to me that we just

don't know what it was. But her ALT/AST has been normal since - with only one

bump during a seasonal virus. For many months after that however was not

a candidate for methotrexate because of her past liver issues. But has

now been on methotrexate for almost 4 months, with labs every 3-4 weeks just to

make sure her liver is okay. I would think your doctors would introduce a

biologic if Rose cannot try methotrexate? I know early on when we didn't think

could have methotrexate the doctors told us we might need to jump right to

the biologics without first trying methotrexate.

Best of luck to you and your daughter.

nn, mom to , age 9, systemic

>

> Hi,

>

> I am new to this group. My daughter Rose (10) has been diagnosed with JRA.

Previously to this problem, she was diagnosed with another autoimmune disease,

autoimmune hepatitis (not the contageuous hepatitis, it's just that her own

cells are attacking the liver.)

>

> She has been on Naxproxen and right now she is doing well. However, when we

tried to take her off of it, she started limping again. The problem is finding

another med to put her on, because of her liver. Because of the potential

toxicity of Methatrexate to her liver(I don't know the spelling) she cant go on

this med which seems to be the med of choice. Before she was diagnosed she had

and is still taking Imuran for her liver and it should have help the JRA, but

obviously it didn't since she now has this new problem. Does anyone else here

have this dual diagnosis JRA and Autoimmune Hepatitis? What are you taking?

Other meds such as Cellcept have been mentioned and one other med, which name I

can't recall. Anyone have good results with any other meds.

>

> She also livido recticular, a rash that I read doesn't go away and is related

to JRA. Interestingly, much of her rash appears to be gone except what is on

her feet. Anyone else have this rash?

>

> I have loads of questions, but I guess, that's it for now. Thanks for

listening.

>

> Jo

>

[Guest guest]

Thanks for everyone's comments.

The rash is actually more under the skin and appears to be more vascular in

nature. It does appear to come and go with the weather and is somewhat purple

and mottled. Rose has also had red rashes that appeared when she took a bath

when her arthritis first appeared, but this " rash " seems more permanant, even

though it can fade and return in one day.

Also, Rose had a cortisone shotthat worked immediately. The only problem was,

her limping soon came back. Unfortunately, at school they ignored her doctor's

note and let her run in school shortly after the shot was given, so this might

have caused the relapse.

Jo

Jo

>

> Can you describe her rash to me?

>  

> " PRECISION HEADLINER & AUTO TRIM "     Sandy Hanson- @ 281-487-1919

>

>

>

>

> ________________________________

> From: P <jobobperry@...>

>

> Sent: Wed, August 25, 2010 10:20:33 PM

> Subject: New to group

>

>  

> Hi,

>

> I am new to this group. My daughter Rose (10) has been diagnosed with JRA.

> Previously to this problem, she was diagnosed with another autoimmune disease,

> autoimmune hepatitis (not the contageuous hepatitis, it's just that her own

> cells are attacking the liver.)

>

>

> She has been on Naxproxen and right now she is doing well. However, when we

> tried to take her off of it, she started limping again. The problem is finding

> another med to put her on, because of her liver. Because of the potential

> toxicity of Methatrexate to her liver(I don't know the spelling) she cant go

on

> this med which seems to be the med of choice. Before she was diagnosed she had

> and is still taking Imuran for her liver and it should have help the JRA, but

> obviously it didn't since she now has this new problem. Does anyone else here

> have this dual diagnosis JRA and Autoimmune Hepatitis? What are you taking?

> Other meds such as Cellcept have been mentioned and one other med, which name

I

> can't recall. Anyone have good results with any other meds.

>

> She also livido recticular, a rash that I read doesn't go away and is related

to

> JRA. Interestingly, much of her rash appears to be gone except what is on her

> feet. Anyone else have this rash?

>

> I have loads of questions, but I guess, that's it for now. Thanks for

listening.

>

> Jo

>

>

>

>

>

[Guest guest]

>

> Hello,

> I am new to this group...and the diet seems very tough to follow. However, I

will go for it.

>

> Just wondering, can we eat brown rice...if not what can I replace it with?

>

> Also, I eat all the time....but am very thin....so, what type of easy snacks

are there to eat. Celery and water will not do it for me.

>

> I am totally confused there doesn't seem like much to eat?

>

> Eggs everyday for breakfast is also extremely difficult for me as well...I

know I will miss my bowl....but I need to do something to get rid of my yeast

problem that has been going on for years.

+++Hi there. Welcome to our group. Is your name ina?

Yes this program can seem very tough to follow, but that is because we are so

used to eating Modern processed foods, most of which are unhealthy for anyone.

After awhile everyone gets used to the diet, and it becomes 2nd nature.

You don't need to replace brown rice with anything else, since there are no

nutrients in it that are special or necessary. You get all of the nutrients

your body needs with only the foods on this program.

In fact carbs, which are all foods not classified as protein and fat, are

totally unnecessary for human health. That's why the Eskimos and Masai tribe

that Dr. Weston A. Price researched were perfectly healthy consuming only meat

and fat. But of course they were all natural meats and fats since they didn't

have any food industry.

There's more to eat than you may realize right now.

It isn't good to snack between meals because food travelling through your

intestines from your last meal will interfere with the production of stomach

acid. Also your body needs time to digest a meal, so that's why we eat meals

about 5 hours apart.

Until you can get over needing to snack here are some safer ones:

http://www.healingnaturallybybee.com/recipes/menu6.php

To help handle food cravings and withdrawal symptoms see these articles:

http://www.healingnaturallybybee.com/articles/menu_2_5_3.php

Since you are new, ensure you read two important articles so you know what you

need to do and why:

How to Successfully Overcome Candida:

http://www.healingnaturallybybee.com/articles/intro2.php

Curing Candida, How to Get Started:

http://www.healingnaturallybybee.com/articles/intro1.php

For encouragement and inspiration see these wonderful Success Stories by members

of this group:

http://www.healingnaturallybybee.com/success/index.php

The best in health, Bee

[Guest guest]

Hi Sara,

Welcome to Bee's group! If you don't have candida, you can follow her healthy

foods program:

http://www.healingnaturallybybee.com/weight/index.php

http://www.healingnaturallybybee.com/weight/foodslist2.php

With the candida program, there isn't really different phases. Once a person

switches over to her program, they pretty much stay there since we know that the

foods we ate when we were sick will make us sick once again.

It takes one month for every month a person is sick to get healthy again. For

most people this is from the date of their conception. So if you are 28 years

old, you would have to be on the diet for nearly 29 months in order to heal.

This is also dependent on how sick a person is and how precisely they follow the

program.

Hope that helps!

(a group moderator)

>

> HI everyone,

> I just wanted to introduce myself. My name is Sara, and I have decided to

try to improve my health, candida or no candida. I believe strongly that most

grains are evil (haha) and weaken the immune system. I am trying the Candida

plan as recommended on Bee's site (thank you!) I am just wondering...does

anyone ever eat properly prepared rice, nuts or starch after doing an

elimination period????

> How long does the limination period last?

> Best to all,

> Sara

>

[Guest guest]

>

> Hi Bee,

>

> I am new to the group after recently having found your site. I

> am familiar with Weston A. Price's work and like to think I have been

> on a healthy diet for at least the last 12 years, when I read

> Nourishing Traditions and switched from a vegetarian diet to one

> including lots of good animal protein and fats, soaked grains, etc.

+++Hi . Welcome to our group. You've certainly got a good start on your

health by following Nourishing Traditions. However, many people come here since

that way of eating hasn't helped them heal naturally, so they still aren't doing

well.

>

<snip>

+++Thank you for sharing your story with us.

> I took the Candida questionnaire and scored 47 or 8 percent, so I

> don't know whether or not I might have candida and should follow the

> candida diet or maybe should just up my fat intake and cut out grains or

sugar. My current symptoms are Athlete's foot (off and on for years), headaches

(once or twice per month - also stress-related since I just got divorced this

past year and that was stressful), and premenstrual tension/irritability.

>

> Also, about two years ago now I started experiencing pulsatile

> tinnitus in my left ear. I have seen the doctor twice with no other >

diagnosis and the next step would be to see an ENT and do an MRI or whatever,

but I don't really feel like it. It sometimes goes away for short periods at a

time, but then returns.

>

> I started doing the Candida Diet and taking the supplements and would love to

get rid of headaches and the tinnitus, as those are the most troublesome health

issues - I'd also like to lose about 15 pounds. I weigh 157 at 5'6.5 " and would

like to weight more like 140. I just turned 40 in December.

>

> Does it sound to you like following the Candida Diet and supplements would be

the thing I need to be doing in order to heal?

+++Athlete's foot is a fungus just like candida. Our bodies create fungus in

order to clean itself up, mainly of toxins, and sometimes it is created in

specific areas like the feet, or in the mouth, called thrush, etc.

+++Headaches are also caused by toxins being released. PMS is more complicated

but it also related to toxins and hormones. See the article: Toxins Cause Cell

Membrane Defects:

http://www.healingnaturallybybee.com/articles/cabout1.php

+++My moderator, Zack, had tinnitus when he started on my program and he no

longer has it. Tinnitus involves the nerves in the ears, and I believe it is

also because of toxins.

+++This program isn't just for candida, since it has proved to be an overall

healing program that improves anyone's health. Many people lose weight on it,

but there are other factors involved in it.

+++So yes, you would be wise to eliminate grains, nuts, seeds, legumes (peas and

beans in pods), sugars, high carb foods, etc. and just have foods on my list,

along with taking only the supplements recommended. Increasing your good fats

is going to help you a lot too.

>

> Thanks. You're website is very educational and wonderful! Thanks for sharing.

+++Thank you!

The best in health, Bee

[Guest guest]

Hi there!

Welcome to Bee's group! Could you give us a name so we know what to call you?

) This forum is for those who are following Bee's program which I will link

you to below.

We have all been where you've been - questioning whether a diet will work for us

and fearful that all our efforts will be in vain. That is one reason why I

waited so long to start Bee's diet and you know what? I'm now kicking myself

because Bee's program was a lot easier to follow than I first thought and I've

been able to stay on track and heal my body. Try not to think of it as a diet;

it's a program that will heal your body.

Having limited taste for different foods won't hurt you. As you progress on

Bee's program, your taste buds will actually change and the foods you now crave

will become unappealing to you. I know that sounds crazy, but it's true!

So, if you are ready to get your health and your life back, I highly recommend

Bee's program. To begin with, you need to understand candida, what you need to

do and why. The more you read and understand, the better you will be able to

incorporate her program into your every day life.

First, you need to understand that candida is not cured by " killing it off. " It

just doesn't work that way. Candida is only cured by building up the immune

system, which is done by:

1) Consuming " proper nutrients " (diet plus supplements),

2) Eliminating toxins and foods that feed candida (they also feed bacteria and

cancer),

3) Eliminating damaging foods, and

4) Eliminating toxins in general.

Please ensure you read two important articles, so you understand candida, and

know what you need to do and why:

1) How to Successfully Overcome Candida

http://www.healingnaturallybybee.com/articles/intro2.php

2) Curing Candida, How to Get Started

http://www.healingnaturallybybee.com/articles/intro1.php

For encouragement and inspiration see these wonderful Success Stories by members

of this group: http://www.healingnaturallybybee.com/success/index.php

I know it's a lot of reading, but those two articles above will lay out how to

get started. I suggest you follow them carefully as they are very important.

You can do this!

Group Moderator

>

> Hello fellow sufferers. It's unfortunate to meet this way, but it's good to

have someone understand what I am going through. I have been reluctant to start

any candida program as for fear of failure. Then I found this website after

years of searching the web for help. I have had horrible symptoms for 6 years

now, so it's hard to say how long I have been sick with this yeast. This is my

first and foremost fear-DIET. I have very limited tastebuds for different foods.

I don't like many veggies and and this seems to be the norm for eating. I'm

afraid I won't be able to stick with the diet as I am used to country eating,

fried chicken, potatoes, gravy, and I love bread.... Do any of you have any

advice as to where I should start?

[Guest guest]

Heya,

I have AIH/PBC as well. I am 35, live in CO, was dx last month. I have a five

year boy with autism, am married and soon to getting my LPN. I joined this group

recently. I am just on urso right now, they wanna wait and see how respond to

that first before considering adding other things, like maybe Imuran.

Anyways,  nice to meet you, Missy

________________________________

From: <arielprncs@...>

Sent: Sat, March 12, 2011 11:34:52 AM

Subject: [ ] New to group

 

Hi,

My name is . I am 41 and I have AIH/PBC. I wanted to meet people like me

because I don't have alot of support.

[Guest guest]

Hi Missy,

I am on a drug like Imuran it is called Mercaptopurine. I tried Urso and my

stomach couldn't handle it. How is it working for you?

Sent from my iPhone

On Mar 12, 2011, at 11:01 AM, Missy Kay <kay.missy@...> wrote:

> Heya,

>

> I have AIH/PBC as well. I am 35, live in CO, was dx last month. I have a five

> year boy with autism, am married and soon to getting my LPN. I joined this

group

> recently. I am just on urso right now, they wanna wait and see how respond to

> that first before considering adding other things, like maybe Imuran.

>

> Anyways, nice to meet you, Missy

>

> ________________________________

> From: <arielprncs@...>

>

> Sent: Sat, March 12, 2011 11:34:52 AM

> Subject: [ ] New to group

>

>

> Hi,

> My name is . I am 41 and I have AIH/PBC. I wanted to meet people like me

> because I don't have alot of support.

>

>

[Guest guest]

Heya,

I don't have side effects or stomach problems on urso. I don't know if its

working yet or not, because they are waiting a few months before taking my liver

test. But I will let you know if it helped or not, once I get that test taken.

Missy, 35, CO, PBC/AIH

________________________________

From: <arielprncs@...>

" " < >

Sent: Sat, March 12, 2011 3:40:50 PM

Subject: Re: [ ] New to group

 

Hi Missy,

I am on a drug like Imuran it is called Mercaptopurine. I tried Urso and my

stomach couldn't handle it. How is it working for you?

Sent from my iPhone

On Mar 12, 2011, at 11:01 AM, Missy Kay <kay.missy@...> wrote:

> Heya,

>

> I have AIH/PBC as well. I am 35, live in CO, was dx last month. I have a five

> year boy with autism, am married and soon to getting my LPN. I joined this

>group

>

> recently. I am just on urso right now, they wanna wait and see how respond to

> that first before considering adding other things, like maybe Imuran.

>

> Anyways, nice to meet you, Missy

>

> ________________________________

> From: <arielprncs@...>

>

> Sent: Sat, March 12, 2011 11:34:52 AM

> Subject: [ ] New to group

>

>

> Hi,

> My name is . I am 41 and I have AIH/PBC. I wanted to meet people like me

> because I don't have alot of support.

>

>

[Guest guest]

Good evening.

I had a bilateral laminectomy for L5S1 on the 17th. The surgery was an out

patient procedure (minimally invasive). I had lost my ability to move my toes on

the left foot due to compression on my nerve root and spinal stenosis.

I am 44 and otherwise healthy. I exercise several times/week and have so far

had an uneventful recovery. I have done my walking every day and am up to 30

minutes with no difficulty. Just a bit tired from surgery, I think.

Today, I noticed that both my legs feel very achy (sort of like the flu

achiness). I have no fever and I'm wondering if anyone has any insights on

this?

Thanks.