Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 It's my understanding that there ARE people out there with levels above the " accepted range " getting treatment. Ask your doc to contact the Xolair rep about how to get approval and dosing info. Addy Group co-owner --- In , " papabean553 " <papabean553@...> wrote: > > Hi all! I am so glad to have found this group > My IgE levels are too high to start Xolair now. My immunologist will > start treatment with prednisone Monday to lower these levels. My > latest IgE levels were 2445 IU/ML. > > It was hard for me to understand why I had to have lower IgE levels in > order to start this treatment!!! Now I know and I guess all of you > here know. I haven't did any reading here yet. I just wanted to > introduce myself, or make a post. > > Now I will start reading and try to learn from experienced people. > Thanks so much for this opportunity to join this group. > > Brelady > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Hi All! My IgE was 1100 and my pulmo/allergist/immuno I think told a little lie to get me approved for Xolair to my insurance co. (I'm on 150mg every 2 weeks, the largest dose on the Xolair website). I've been taking Xolair for 21 months and have not noticed a big difference, but my doctor says that without the Xolair I would be a lot worse, so I guess I just have to trust him on that one. I'm still on 15mg of pred every other day, so maybe that's why I haven't noticed a big change. But anyway just wanted to share that people with IgE's above the reccomended dosage range can still be treated with Xolair. <3 Meagan > > > > Hi all! I am so glad to have found this group > > My IgE levels are too high to start Xolair now. My immunologist > will > > start treatment with prednisone Monday to lower these levels. My > > latest IgE levels were 2445 IU/ML. > > > > It was hard for me to understand why I had to have lower IgE levels > in > > order to start this treatment!!! Now I know and I guess all of you > > here know. I haven't did any reading here yet. I just wanted to > > introduce myself, or make a post. > > > > Now I will start reading and try to learn from experienced people. > > Thanks so much for this opportunity to join this group. > > > > Brelady > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2007 Report Share Posted January 12, 2007 Correction - my dose is 375mg every 2 wks. not 150mg as I stated before its 150mg per box. <3 Meagan > > > > Hi all! I am so glad to have found this group > > My IgE levels are too high to start Xolair now. My immunologist > will > > start treatment with prednisone Monday to lower these levels. My > > latest IgE levels were 2445 IU/ML. > > > > It was hard for me to understand why I had to have lower IgE levels > in > > order to start this treatment!!! Now I know and I guess all of you > > here know. I haven't did any reading here yet. I just wanted to > > introduce myself, or make a post. > > > > Now I will start reading and try to learn from experienced people. > > Thanks so much for this opportunity to join this group. > > > > Brelady > > > Quote Link to comment Share on other sites More sharing options...
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