Re: New to the forum...

[Guest guest]

Welcome and thanks for joining

Most of us have never had any reactions whatsoever. If you are

concerned about how you personally reacted to your first shot, you

need to talk to your doctor asap. There have been one or two people

who have reported to this group that they did not react well to xolair

and had to stop treatment.

Personally, I have been on it over 3.5 years and have never had any

kind of hint of a reaction. It took a year to see any results but I

now have a 90% decrease in my asthma symptoms and have been able to

stop ALL Prednisone and Advair.

Talk to your doctor!

and once again, Welcome

Doug

Group founder

[Guest guest]

Hope you feel better soon! I also had headaches and extreme fatigue in the

early stages

of taking xolair. I still have fatigue for a few days post injections (I have 3

every two

weeks) but it is defintiely better, as are the headaches. Fingers crossed it

will improve for

you. My asthma health is a world away from where it was...

>

> After finally working my way through the insurance maze, I finally got

> my first shot, 150 mg (low dose) and I am tired and have a headache.

>

> Let me back up a bit. After skin testing and blood work, I am allergic

> to molds, dust and cats. Kind of already knew that and my job is

> exposing me to them. After failing all of the meds. my doctor

> prescribed, we arrive at Xolair. My asthma is fairly mild, by goes

> crazy when I am exposed to a high concentration of allergy triggers. I

> am still on all the meds. (Nasonex, prednisone 20mg daily, Advair

> 500/50, Nexium, Allegra, Singular, etc.) including my weekly allergy

> shots.

>

> Now back to the first shot last Friday. Everything went fine and I

> stayed for two hours. About five hours after the shot I started

> getting sleepy and tired. Unusual for me to be sleepy at 3:00pm. I

> toughed it out and went to sleep around 9:00pm. At 10:00am on Saturday

> (13 hours later) I am still sleeping and my wife comes in to see if I

> am going to wake up. After about 30 minutes I drag myself to the

> shower. She has some shopping to do, so I go out with her for some

> fresh air. I am very tired during the day and I have a moderate

> headache from temple to temple that I cannot get rid of. Sleep for 10

> hours on Saturday night.

>

> Fast forward to Sunday. I drag myself out of bed early for church and

> the headache remains. Throughout the day I am not as tired, but my

> headache gets worse and I become a grumpy old man. I am 42 years old

> and not that way usually. By the end of the day Sunday, the headache

> feels like a migraine and I try and sleep. Not going to happen. I get

> an hour or two. Cannot sleep at all as my head hurts, a bit nauseous

> and light sensitive. I may get a headache like this once a year?

>

> It is now Monday morning. Not a chance of going to work today.

> Headache is finally starting to break, I am super tired from no sleep

> and I write this new topic.

>

> Is what I experienced this weekend a possible result of the Xolair

> shot? Maybe it is a result of me beginning a new therapy and my body

> just not used to it? I know that when I get my next shot in a month, I

> am going to take it very easy and hope this does not repeat itself. I

> am very much wanting the Xolair to work and get off the rest of the

> med's. This is a workers comp. case and I am glad I am not paying for

> all the meds (about $1,000 per month, not including the Xolair and

> allergy shots).

>

> I have been reading the topics for a month now. I guess I just had the

> normal side effects? Wow, I was not expecting to be this tired and

> develope a migraine headache? Anyone have any thoughts? Thanks.

>

[Guest guest]

Hi .

My exhaustion lasts nearly a week. But that is just

me. Others don't have the same symptoms. I get a bit

grumpy too. I have always had headaches so that is no

different for me. It is hard to go to work but I

muddle through. It might be best to get your shots on

a thursday or friday that way you can rest during the

weekend. The only thing I would say is that all that

extra sleep may be part of the reason you are having

headaches so severely. I would make sure you get up at

your normal times even though you don't feel like it.

When you get too much sleep it can make you even more

exhausted. You might consider getting out for a brisk

walk or some sort of excersise just to perk up. It

helps me. I know you won't feel like doing it because

you are tired right? But believe me it does help

lessen the lethargy. It doesn't make it go away but

reduces it to manageable levels.

Dont give up. Once you start seeing results in your

asthma you will realize it is a small price to pay.

Jeannie

--- Boychuck <sboychuck@...> wrote:

> After finally working my way through the insurance

> maze, I finally got

> my first shot, 150 mg (low dose) and I am tired and

> have a headache.

>

> Let me back up a bit. After skin testing and blood

> work, I am allergic

> to molds, dust and cats. Kind of already knew that

> and my job is

> exposing me to them. After failing all of the meds.

> my doctor

> prescribed, we arrive at Xolair. My asthma is fairly

> mild, by goes

> crazy when I am exposed to a high concentration of

> allergy triggers. I

> am still on all the meds. (Nasonex, prednisone 20mg

> daily, Advair

> 500/50, Nexium, Allegra, Singular, etc.) including

> my weekly allergy

> shots.

>

> Now back to the first shot last Friday. Everything

> went fine and I

> stayed for two hours. About five hours after the

> shot I started

> getting sleepy and tired. Unusual for me to be

> sleepy at 3:00pm. I

> toughed it out and went to sleep around 9:00pm. At

> 10:00am on Saturday

> (13 hours later) I am still sleeping and my wife

> comes in to see if I

> am going to wake up. After about 30 minutes I drag

> myself to the

> shower. She has some shopping to do, so I go out

> with her for some

> fresh air. I am very tired during the day and I have

> a moderate

> headache from temple to temple that I cannot get rid

> of. Sleep for 10

> hours on Saturday night.

>

> Fast forward to Sunday. I drag myself out of bed

> early for church and

> the headache remains. Throughout the day I am not as

> tired, but my

> headache gets worse and I become a grumpy old man. I

> am 42 years old

> and not that way usually. By the end of the day

> Sunday, the headache

> feels like a migraine and I try and sleep. Not going

> to happen. I get

> an hour or two. Cannot sleep at all as my head

> hurts, a bit nauseous

> and light sensitive. I may get a headache like this

> once a year?

>

> It is now Monday morning. Not a chance of going to

> work today.

> Headache is finally starting to break, I am super

> tired from no sleep

> and I write this new topic.

>

> Is what I experienced this weekend a possible result

> of the Xolair

> shot? Maybe it is a result of me beginning a new

> therapy and my body

> just not used to it? I know that when I get my next

> shot in a month, I

> am going to take it very easy and hope this does not

> repeat itself. I

> am very much wanting the Xolair to work and get off

> the rest of the

> med's. This is a workers comp. case and I am glad I

> am not paying for

> all the meds (about $1,000 per month, not including

> the Xolair and

> allergy shots).

>

> I have been reading the topics for a month now. I

> guess I just had the

> normal side effects? Wow, I was not expecting to be

> this tired and

> develope a migraine headache? Anyone have any

> thoughts? Thanks.

>

>

__________________________________________________

[Guest guest]

Steve - from what I've experienced myself and read about on the forum, I'd

say the one thing you can be sure of about Xolair is you can't be sure of

how it's going to affect you. For me, after the first series of three

shots, it was a mild anaphylactic type reaction the next morning, which may

well have been because I discontinued prednisone a couple of days prior to

the Xolair - I didn't know one has to wean oneself off the stuff. Since

then, they've put me on a low maintenance dosage of 8 mg per day, and all is

well. I do get a mild headache the next day that lasts most of the day.

I'm tired, have no energy and am a crabby old fart - more so than usual -

for about two days, and then it's back to normal.

Terry

----- Original Message -----

From: Boychuck

Sent: Monday, April 23, 2007 1:46 PM

Subject: [ ] New to the forum...

After finally working my way through the insurance maze, I finally got

my first shot, 150 mg (low dose) and I am tired and have a headache.

Let me back up a bit. After skin testing and blood work, I am allergic

to molds, dust and cats. Kind of already knew that and my job is

exposing me to them. After failing all of the meds. my doctor

prescribed, we arrive at Xolair. My asthma is fairly mild, by goes

crazy when I am exposed to a high concentration of allergy triggers. I

am still on all the meds. (Nasonex, prednisone 20mg daily, Advair

500/50, Nexium, Allegra, Singular, etc.) including my weekly allergy

shots.

Now back to the first shot last Friday. Everything went fine and I

stayed for two hours. About five hours after the shot I started

getting sleepy and tired. Unusual for me to be sleepy at 3:00pm. I

toughed it out and went to sleep around 9:00pm. At 10:00am on Saturday

(13 hours later) I am still sleeping and my wife comes in to see if I

am going to wake up. After about 30 minutes I drag myself to the

shower. She has some shopping to do, so I go out with her for some

fresh air. I am very tired during the day and I have a moderate

headache from temple to temple that I cannot get rid of. Sleep for 10

hours on Saturday night.

Fast forward to Sunday. I drag myself out of bed early for church and

the headache remains. Throughout the day I am not as tired, but my

headache gets worse and I become a grumpy old man. I am 42 years old

and not that way usually. By the end of the day Sunday, the headache

feels like a migraine and I try and sleep. Not going to happen. I get

an hour or two. Cannot sleep at all as my head hurts, a bit nauseous

and light sensitive. I may get a headache like this once a year?

It is now Monday morning. Not a chance of going to work today.

Headache is finally starting to break, I am super tired from no sleep

and I write this new topic.

Is what I experienced this weekend a possible result of the Xolair

shot? Maybe it is a result of me beginning a new therapy and my body

just not used to it? I know that when I get my next shot in a month, I

am going to take it very easy and hope this does not repeat itself. I

am very much wanting the Xolair to work and get off the rest of the

med's. This is a workers comp. case and I am glad I am not paying for

all the meds (about $1,000 per month, not including the Xolair and

allergy shots).

I have been reading the topics for a month now. I guess I just had the

normal side effects? Wow, I was not expecting to be this tired and

develope a migraine headache? Anyone have any thoughts? Thanks.