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Re: A new member's Xolair experience

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what an awesome testimony! thank you for sharing your story! doesn't

it feel great to get your life back?!

i can't imagine having to sell my house and move to afford any

medication, and i'm sorry you had to do that, but i'm glad you do

not regret it (and that your ins. company covers xolair in full

now).

heather

>

> Thank-you to everyone who has shared their experiences using

Xolair. I

> am from Central Ontario and have been using Xolair since last

June. I

> have allergies to trees, grasses, ragweed, cats, dust; and

anaphylatic

> allergies to natural latex rubber, kiwi, mango, gelatin; and oral

> allergy syndrome (hives in my mouth, face, etc. from eating fresh

> fruits/vegetables in the Birch, Grass and Ragweed families) which

> increased my asthma attacks. I was taking flovent, ventolin,

> predisone, reactine, nasonex, and pantonol daily.

>

> I started having reactions to predisone when I took a full

prescribed

> dose in one sitting.

>

> My allergist recommended Xolair. My insurance company would only

pay

> up to the first $5,000 then I was on my own for the balance.I sold

my

> house and moved to afford the drug. My insurance now covers the

> injections fully.

>

> I haven't regretted taking Xolair.

>

> I haven't required predisone for almost a year now, no anaphylatic

> reactions, and I don't have hives everyday from eating. The only

> asthma attacks that I have had in the last year have been with

viral

> infections and a bout of pneumonia. My other drugs have decreased

in

> volume as well.

>

> The only negative side effects that I have experienced was migraine

> headaches when I was on an antibiotic for a urinary tract

infection.

> The doctors believe it to be a drug interaction between the two.

>

> The positives outside of the respiratory systems has been:

>

> I had to use braces for my joints due to Elders-Danlos Syndrome to

> prevent hyperextension. The joints such as my knees have improved

so

> much that i haven't need the braces or my cane or walker for over

six

> months. My arthritis symptoms have lessened to the point that I now

> longer require medications for it.

>

> The other benefit has been that my husband, kids and I feel some

> freedom. Our quality of life has improved. Because of the Oral

Allergy

> Syndrome effecting the asthma, we all lived on an overly scheduled

> menu plan to rotate the fruits and vegetables to lessen the

effects. I

> still follow the rotation diet but have cheated for social

functions

> and have had very mild or no effects. I have been able to exercise

> with them as well. I can now go on the hike through the marsh or

> forest trail without worrying about an asthma attack.

>

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Guest guest

Every time I get on the Pity Pot and start feeling sorry for myself,

something inspirational comes along and brings me back to reality.

Thank you for sharing.

Ron

On Apr 29, 2007, at 7:10 PM, heather wrote:

> what an awesome testimony! thank you for sharing your story! doesn't

> it feel great to get your life back?!

>

> i can't imagine having to sell my house and move to afford any

> medication, and i'm sorry you had to do that, but i'm glad you do

> not regret it (and that your ins. company covers xolair in full

> now).

>

> heather

>

>

> >

> > Thank-you to everyone who has shared their experiences using

> Xolair. I

> > am from Central Ontario and have been using Xolair since last

> June. I

> > have allergies to trees, grasses, ragweed, cats, dust; and

> anaphylatic

> > allergies to natural latex rubber, kiwi, mango, gelatin; and oral

> > allergy syndrome (hives in my mouth, face, etc. from eating fresh

> > fruits/vegetables in the Birch, Grass and Ragweed families) which

> > increased my asthma attacks. I was taking flovent, ventolin,

> > predisone, reactine, nasonex, and pantonol daily.

> >

> > I started having reactions to predisone when I took a full

> prescribed

> > dose in one sitting.

> >

> > My allergist recommended Xolair. My insurance company would only

> pay

> > up to the first $5,000 then I was on my own for the balance.I sold

> my

> > house and moved to afford the drug. My insurance now covers the

> > injections fully.

> >

> > I haven't regretted taking Xolair.

> >

> > I haven't required predisone for almost a year now, no anaphylatic

> > reactions, and I don't have hives everyday from eating. The only

> > asthma attacks that I have had in the last year have been with

> viral

> > infections and a bout of pneumonia. My other drugs have decreased

> in

> > volume as well.

> >

> > The only negative side effects that I have experienced was migraine

> > headaches when I was on an antibiotic for a urinary tract

> infection.

> > The doctors believe it to be a drug interaction between the two.

> >

> > The positives outside of the respiratory systems has been:

> >

> > I had to use braces for my joints due to Elders-Danlos Syndrome to

> > prevent hyperextension. The joints such as my knees have improved

> so

> > much that i haven't need the braces or my cane or walker for over

> six

> > months. My arthritis symptoms have lessened to the point that I now

> > longer require medications for it.

> >

> > The other benefit has been that my husband, kids and I feel some

> > freedom. Our quality of life has improved. Because of the Oral

> Allergy

> > Syndrome effecting the asthma, we all lived on an overly scheduled

> > menu plan to rotate the fruits and vegetables to lessen the

> effects. I

> > still follow the rotation diet but have cheated for social

> functions

> > and have had very mild or no effects. I have been able to exercise

> > with them as well. I can now go on the hike through the marsh or

> > forest trail without worrying about an asthma attack.

> >

>

>

>

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Guest guest

Thanks so much for sharing how much Xolair has changed your life!

Maybe you are SO allergic that all the arthritis symptoms were due to

inflammation that was allergy-caused!!!! Wow. Congratulations - I

wish you and your family many happy, healthy, worry-free meals

together!

Addy

Group co-owner

>

> Thank-you to everyone who has shared their experiences using

Xolair. I

> am from Central Ontario and have been using Xolair since last June.

I

> have allergies to trees, grasses, ragweed, cats, dust; and

anaphylatic

> allergies to natural latex rubber, kiwi, mango, gelatin; and oral

> allergy syndrome (hives in my mouth, face, etc. from eating fresh

> fruits/vegetables in the Birch, Grass and Ragweed families) which

> increased my asthma attacks. I was taking flovent, ventolin,

> predisone, reactine, nasonex, and pantonol daily.

>

> I started having reactions to predisone when I took a full

prescribed

> dose in one sitting.

>

> My allergist recommended Xolair. My insurance company would only pay

> up to the first $5,000 then I was on my own for the balance.I sold

my

> house and moved to afford the drug. My insurance now covers the

> injections fully.

>

> I haven't regretted taking Xolair.

>

> I haven't required predisone for almost a year now, no anaphylatic

> reactions, and I don't have hives everyday from eating. The only

> asthma attacks that I have had in the last year have been with viral

> infections and a bout of pneumonia. My other drugs have decreased in

> volume as well.

>

> The only negative side effects that I have experienced was migraine

> headaches when I was on an antibiotic for a urinary tract

infection.

> The doctors believe it to be a drug interaction between the two.

>

> The positives outside of the respiratory systems has been:

>

> I had to use braces for my joints due to Elders-Danlos Syndrome to

> prevent hyperextension. The joints such as my knees have improved so

> much that i haven't need the braces or my cane or walker for over

six

> months. My arthritis symptoms have lessened to the point that I now

> longer require medications for it.

>

> The other benefit has been that my husband, kids and I feel some

> freedom. Our quality of life has improved. Because of the Oral

Allergy

> Syndrome effecting the asthma, we all lived on an overly scheduled

> menu plan to rotate the fruits and vegetables to lessen the

effects. I

> still follow the rotation diet but have cheated for social

functions

> and have had very mild or no effects. I have been able to exercise

> with them as well. I can now go on the hike through the marsh or

> forest trail without worrying about an asthma attack.

>

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  • 2 weeks later...
Guest guest

Thanks , It does feel great to get my life back. I wish that I had found

this group last year as I was trying to decide if it was worth it. With the

black listing I'm spending close to 3 hours of quality time with my allergist's

office. In Ontario, we can't self inject.

Happy Mother's Day!

Tammy

heather <heaven1975@...> wrote: what an

awesome testimony! thank you for sharing your story! doesn't

it feel great to get your life back?!

i can't imagine having to sell my house and move to afford any

medication, and i'm sorry you had to do that, but i'm glad you do

not regret it (and that your ins. company covers xolair in full

now).

heather

>

> Thank-you to everyone who has shared their experiences using

Xolair. I

> am from Central Ontario and have been using Xolair since last

June. I

> have allergies to trees, grasses, ragweed, cats, dust; and

anaphylatic

> allergies to natural latex rubber, kiwi, mango, gelatin; and oral

> allergy syndrome (hives in my mouth, face, etc. from eating fresh

> fruits/vegetables in the Birch, Grass and Ragweed families) which

> increased my asthma attacks. I was taking flovent, ventolin,

> predisone, reactine, nasonex, and pantonol daily.

>

> I started having reactions to predisone when I took a full

prescribed

> dose in one sitting.

>

> My allergist recommended Xolair. My insurance company would only

pay

> up to the first $5,000 then I was on my own for the balance.I sold

my

> house and moved to afford the drug. My insurance now covers the

> injections fully.

>

> I haven't regretted taking Xolair.

>

> I haven't required predisone for almost a year now, no anaphylatic

> reactions, and I don't have hives everyday from eating. The only

> asthma attacks that I have had in the last year have been with

viral

> infections and a bout of pneumonia. My other drugs have decreased

in

> volume as well.

>

> The only negative side effects that I have experienced was migraine

> headaches when I was on an antibiotic for a urinary tract

infection.

> The doctors believe it to be a drug interaction between the two.

>

> The positives outside of the respiratory systems has been:

>

> I had to use braces for my joints due to Elders-Danlos Syndrome to

> prevent hyperextension. The joints such as my knees have improved

so

> much that i haven't need the braces or my cane or walker for over

six

> months. My arthritis symptoms have lessened to the point that I now

> longer require medications for it.

>

> The other benefit has been that my husband, kids and I feel some

> freedom. Our quality of life has improved. Because of the Oral

Allergy

> Syndrome effecting the asthma, we all lived on an overly scheduled

> menu plan to rotate the fruits and vegetables to lessen the

effects. I

> still follow the rotation diet but have cheated for social

functions

> and have had very mild or no effects. I have been able to exercise

> with them as well. I can now go on the hike through the marsh or

> forest trail without worrying about an asthma attack.

>

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