Re: to pred or not to pred?

[Guest guest]

Appropriate treatment for some of us may not be appropriate treatment

for others. For example, I'm confident Terry's 8mg per day dose of

pred makes good sense for him. For me, I'm younger than he is, I

have several risk factors for osteoporosis and I already have

documented 5% bone loss in my spine and 7% in my hip. (Course, I

haven't gone back for a dexascan since 2003, since I don't want to

know how much worse it might be!) Anyhoo, my pulmo and my GP don't

want me on any pred if it can be helped for that reason. On the

other hand, if I was at the point of breathing with pred and not

breathing without it, both of them would say take the pred. Thank

goodness for Xolair; now I need less pred and I need it less

frequently.

Addy

Group co-owner, baseball widow

Hi Gail - just an aside - one

of

> my dox, whom I highly respect, keeps me on

> 8 mg of prednisone per day. He swears that amount will cause no

ill

> effects

> in any way, and it helps a lot with the sinusitis, keepling it

under

> control.

>

> Terry

>

> ----- Original Message -----

> From: jmbre926

>

> Sent: Wednesday, April 25, 2007 10:40 AM

> Subject: [ ] bronchieactisis and aspergillisosis

>

> Hi everyone. I am looking for some answers for my sister. I have

> been on Xolair myself for a year and have had great results except

> for a couple of pesky side affects. I am asking for some help for

> my sister.

>

> She has been diagnosed with both bronchieactisis and

> aspergillisosis. Partly because she had a crappy doctor who didn't

> do what he should have done when she first started getting

pneumonia

> and bronchitis. And with her being afraid to speak up it went on

and

> on until now she is dealing with this. The dr. has now told her

she

> will have to be on prednisone the rest of her life. That there is

> nothing more he can do. She is terrified, depressed and at her

wits

> end. I did some research and did look into National Jewish

Hospital

> and gave her that information but if any of you know have any more

> ideas I would appreciate some help. I told her there is no way she

> can stay on prednisone the rest of her life. She is already

> suffering all the side affects from the drug and her hope is

> starting to fade for any answers.

>

> Thanks, You can email at gaildaniels@... if you have and

> answers for me!

>

>