asthma as a symptom of rare disorder

[Guest guest]

>

> Hi ,

>

> What rare disorder is asthma a symptom of?

>

> Thanks for sharing!

>

1) Churg-Strauss (an auto-immune disorder of small and medium vascular

systems),

2) eosinophilic leukemia or

3) 'idiopathic' hypereosinophilic syndrome.

These are illnesses where my bone marrow produces too many

Eosinophils ( a type of white blood cell). You should have less than

4% of your total blood count be these types of cells. A slightly

elevated EOS level could be because of parasites or an allergy but

once you get past a certain threshold they begin to look into other

factors. Sudden onset of asthma seems to be a symptom of at least 2

of the 3. The EOS cells like to go out and party and attack organs

and nerve systems. They also have to find EOS cells in at least two

organ systems. (ie: skin, heart, digestive track, lungs (hence the

asthma), nerves, kidneys.....and others....)

Good news is that a patient can be on Xolair and have one of these

disorders. I know at least one other person, on this board, who is in

a similiar situation to mine and has used Xolair effectively to help

with the asthma/allergies.

email me more offline if you want/need more info.

karen

[Guest guest]

There are 4 people with Churg-Strauss syndrome and 3 with eosinophilic

gastroenteritis that I know of personally and they are all doing very well.

People/children with severe food allergies, skin diseases and disorders are on

Xolair also and doing phenomenally well!

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