Guest guest Posted May 30, 2004 Report Share Posted May 30, 2004 Hi Debbie, Try www.paintrials.com, and use a search engine using "peripheral neuropathy" as the search words. That may get you started. You didn't say what kind of neuropathy - neuropathy basically means pains in the nerves, but doesn't narrow things down too much. Good luck. Tom from Edmonton ----- Original Message ----- From: Debbie Moran low dose naltrexone Sent: Sunday, May 30, 2004 7:19 AM Subject: [low dose naltrexone] Anyone know anything about Neuropathy? Hi, folks!!You all are always so helpful - I thought I'd turn to you for info. We have a very dear friend who has had neuropathy for years and has had a terrible time. We would love to be able to give them some ideas and forums that they could turn to for help and support. I can't find a specific forum here for this - do any of you know of a good one?Also, do any of you know anything about neuropathy and LDN? Or any other alternative treatments???Any ideas, etc. would be wonderfull!!!ThanksDeb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2004 Report Share Posted May 30, 2004 BrainTalk also has a Peripheral Neuropathy forum. see http://brain.hastypastry.net/forums/ There has been one person who answered the LDN survey, saying they have been taking LDN for Neuropathy. see http://home.earthlink.net/~dflomer/LDN/Surveys/298.htm > ----- Original Message ----- > From: Debbie Moran > low dose naltrexone > Sent: Sunday, May 30, 2004 7:19 AM > Subject: [low dose naltrexone] Anyone know anything about Neuropathy? > > > Hi, folks!! > > You all are always so helpful - I thought I'd turn to you for info. > We have a very dear friend who has had neuropathy for years and has > had a terrible time. We would love to be able to give them some > ideas and forums that they could turn to for help and support. I > can't find a specific forum here for this - do any of you know of a > good one? > > Also, do any of you know anything about neuropathy and LDN? Or any > other alternative treatments??? > > Any ideas, etc. would be wonderfull!!! > > Thanks > > Deb > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2005 Report Share Posted June 10, 2005 astrosue@... wrote: > I have developed what is called 'neuropathy' == tingling and painful legs > and > burning and tingling feet. I had an MRI which shows that it is not from > any > compromised nerves or stenosis in my lower back. Of course, I wish to > find > a non-medicinal way to get around this. It is very debilitating! > Any ideas? > Thanks, Sue > ============================ Hi Sue, I would ask the same question that Shari asked. Are you diabetic or prone to it? The best idea I have is fasting, as in a supervised fast. There is no better way to heal up any part of one's body than through fasting. What is your diet like Sue? Neuropathy is a toxic condition where the nerves are being irritated and may not be getting proper nutrition and nourishment. I wonder if you are you consuming lots of oils and fats in your diet? Avocados, nuts, seeds, cooking oils, salad oils? -- Peace be with you, Sue. Don " Quai " Eitner " Spirit sleeps in the mineral, breathes in the vegetable, dreams in the animal and wakes in man. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 I am assuming you drink alot of water?? If not, start. Also check the files under Dr. and Schulze for nerve formula.. Suziastrosue@... wrote: Thanks for all the replies regarding neuropathy.I do realize it could be a toxic reaction and cannot as yettell what did it. I don't eat a lot of fats and never cook anyoils. I am NOT diabetic at all.The neuropathy has healed, but it took about 3 weeks andwhen it was bad, it was quite painful and made it almostimpossible to walk.Although a supervised fast is ideal, I am unable to undertakethis at this time. My diet is quite healthy, I think. Lots of rawfruits and veggies and only a handful of almonds/day for thesake of calcium.I was wondering if there were some herbs known to heal thiscondition.....The whole episode was quite mysterious to say the least!Sue=============mysticalherbalist@... wrote:Hi Sue,I would ask the same question that Shari asked. Are you diabetic or prone to it? The best idea I have is fasting, as in a supervised fast. There is no better way to heal up any part of one's body than through fasting.What is your diet like Sue? Neuropathy is a toxic condition where the nerves are being irritated and may not be getting proper nutrition and nourishment. I wonder if you are you consuming lots of oils and fats in your diet? Avocados, nuts, seeds, cooking oils, salad oils?-- Peace be with you, Sue.-- I am using the free version of SPAMfighter for private users.It has removed 412 spam emails to date.Paying users do not have this message in their emails.Try www.SPAMfighter.com for free now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 Forgot to add capsicum (cayenne).. SuziSuzanne <suziesgoats@...> wrote: I am assuming you drink alot of water?? If not, start. Also check the files under Dr. and Schulze for nerve formula.. Suziastrosue@... wrote: Thanks for all the replies regarding neuropathy.I do realize it could be a toxic reaction and cannot as yettell what did it. I don't eat a lot of fats and never cook anyoils. I am NOT diabetic at all.The neuropathy has healed, but it took about 3 weeks andwhen it was bad, it was quite painful and made it almostimpossible to walk.Although a supervised fast is ideal, I am unable to undertakethis at this time. My diet is quite healthy, I think. Lots of rawfruits and veggies and only a handful of almonds/day for thesake of calcium. Suzi What is a weed? A plant whose virtues have not yet been discovered. http://suziesgoats.wholefoodfarmacy.com/__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 I was wondering if it truly was neuropathy or maybe plantar fasciatis (sp). I have times when my feet feel like they are going to either break or implode; especially when I first get up in the morning. That has gone away since going raw, however. Shari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 Anyone familiar with NAET....it has to do with allergies elimination? I can't speak on the subject cause I don't know but bite size info. I do know a friend who had tons of jaw and dental problems and after thousands of $, went to TX, got tested and is now working with a practioner for NAET. She's getting great results she said. Marilyn Chernoff is the person she consults with and you don't have to be local as it can be over phone. I have no experience in this area. carolastrosue@... wrote: Thanks for all the replies regarding neuropathy.I do realize it could be a toxic reaction and cannot as yettell what did it. I don't eat a lot of fats and never cook anyoils. I am NOT diabetic at all.The neuropathy has healed, but it took about 3 weeks andwhen it was bad, it was quite painful and made it almostimpossible to walk.Although a supervised fast is ideal, I am unable to undertakethis at this time. My diet is quite healthy, I think. Lots of rawfruits and veggies and only a handful of almonds/day for thesake of calcium.I was wondering if there were some herbs known to heal thiscondition.....The whole episode was quite mysterious to say the least!Sue=============mysticalherbalist@... wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 Hi Toni, I might not have said on this group that I went to a neurologist and they give me blood tests and a lowback MRI to rule out those things as causes of neuropathy/burning feet. These are not invasive tests and can rule out some dire cause. Don't let them give you EMG tests--they're terrible and unnecessarily irritating. If you know a good acupuncturist, I would try that. It worked for me. I have had this type of thing on and off, too. But this was by far the worst 'attack'. Toxins can cause it for sure. Do you take any medications??? They all have side effects unfortunately. It took about 3 weeks to get over the neuropathy. I am going to look into Dr. Schulze remedies. This kind of thing is definitely to do with the nerves themselves. All the best to you and keep up that great sense of humor, Sue -- I am using the free version of SPAMfighter for private users. It has removed 413 spam emails to date. Paying users do not have this message in their emails. Try www.SPAMfighter.com for free now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 Whenever I make it, before I add the beeswax, I set some of the oil aside and use it on food. Tastes great and has a great burn. Peace, love, laughter --- Suzanne <suziesgoats@...> wrote: > Either... they make a cream you can buy... fairly > decent... or take some cayenne and olive or other > oil... let it sit or slow/low cook for a bit.. and > then while warm add beeswax to thicken.. or just use > cayenne and oil after you've let it sit for a week > or so. > Suzi __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 Hi , My doctor and physiotherapist both quoted Chinese medicine: the numb toe could be related to the liver being challenged by the medication. But when I looked for peripheral neuropathy something else strucked me: it causes a feeling of pins and needles and I do get that feeling sometimes near my hands, very lightly (fyi my uric acid is normal). I think I have had CML for more than a year before my diagnosis, the numbed toe appeared only in the first months of Gleevec. http://en.wikipedia.org/wiki/Peripheral_neuropathy I will discuss this with my hemato and will ask to see a neurologist if possible. Will share the results with you. All my best, Myriam (age 35) Montreal, Quebec Now: Doing my best to finish writing my thesis for a Master's Degree in Film Studies dxd MAR/24/07 (severe splenomegaly,WBC:306,PLT:1203) Hydrea MAR/24/07 to APR/23/07 Gleevec 400mg since APR/26/07 CHR and CBR(spleen) after 3 weeks of Gleevec FISH BCR/ABL ES: 95% APR/25/07 FISH BCR/ABL ES: 8% JUL/30/07 On Sun, 16 Sep 2007 19:54:39 -0000, " Israel " <peisrael@...> said: > This is an interesting line. About a year ago, I was diagnosed > with " tarsal tunnel syndrome " --like carpal tunnel syndrome, but in the > feet. I'd been having a progressive numbing in my toes for about 2 > years prior to that. After diagnosis, I was prescribed orthodic > devices, which I have used, and don't really see any improvement but at > least the numbness seemed to stop growing. Since I've been on Gleevec > (about 3 months) I seem to have a little more numbness. So--1) could > the increasing numbness be related to the Gleevec? 2) More afield-- > could the numbmess in the first place be related to the CML? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Re: [ ] Neuropathy Hi , My doctor and physiotherapist both quoted Chinese medicine: the numb toe could be related to the liver being challenged by the medication. But when I looked for peripheral neuropathy something else strucked me: it causes a feeling of pins and needles and I do get that feeling sometimes near my hands, very lightly (fyi my uric acid is normal). I think I have had CML for more than a year before my diagnosis, the numbed toe appeared only in the first months of Gleevec. http://en.wikipedia <http://en.wikipedia.org/wiki/Peripheral_neuropathy> ..org/wiki/Peripheral_neuropathy I will discuss this with my hemato and will ask to see a neurologist if possible. Will share the results with you. All my best, Myriam (age 35) Montreal, Quebec Now: Doing my best to finish writing my thesis for a Master's Degree in Film Studies dxd MAR/24/07 (severe splenomegaly,WBC:306,PLT:1203) Hydrea MAR/24/07 to APR/23/07 Gleevec 400mg since APR/26/07 CHR and CBR(spleen) after 3 weeks of Gleevec FISH BCR/ABL ES: 95% APR/25/07 FISH BCR/ABL ES: 8% JUL/30/07 On Sun, 16 Sep 2007 19:54:39 -0000, " Israel " <peisraelwinfirst (DOT) <mailto:peisrael%40winfirst.com> com> said: > This is an interesting line. About a year ago, I was diagnosed > with " tarsal tunnel syndrome " --like carpal tunnel syndrome, but in the > feet. I'd been having a progressive numbing in my toes for about 2 > years prior to that. After diagnosis, I was prescribed orthodic > devices, which I have used, and don't really see any improvement but at > least the numbness seemed to stop growing. Since I've been on Gleevec > (about 3 months) I seem to have a little more numbness. So--1) could > the increasing numbness be related to the Gleevec? 2) More afield-- > could the numbmess in the first place be related to the CML? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 For those of you participating in this topic, you may think I this is unrelated by I'm starting to think about it again. Prior to gleevec I was on interferon and ARC. I had this annoying numbness in my temples which would sometimes go up the sides of my head. It would at times seem painful but probably because it was just so darn annoying. I told my Onc and he hadn't heard of it so he sent me for a CT scan. Nothing was revealed so we left it alone and shortly after I went on Gleevec. Once on Gleevec it stopped. Recently it has started again but it kind of comes and goes. And yes it feels like pins and needles in my temples? I for one have never heard of neuropathy there but could it be? ez Dx 5-2000 PCRU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2008 Report Share Posted April 30, 2008 NellI was on Arava and it was causing symptoms of neuropathy. Once I went off, it resolved. Just wanted to let you know my experience. I was also on Enbrel at the time...but it was the Arava that was causing my neuropathy..just my experience. Hope you get on something that helps very soon!----- Original Message -----From: dearhunterbebe <dearhunterbebe@...>Date: Wednesday, April 30, 2008 1:34Subject: Re: Update: Getting Nowhere FastRheumatoid Arthritis > , I think Ros is on to something. I have > all the > illnesses that she has. She is right about the pain. > You don't > know what is the cause since you have the other pains going > on. > When you see your doctor discuss this posibility with him. > Yesterday and today my fibro has been really bad. I am > also in the > process of trying to gen on another bialogic. My embrell > was making > my neuropathy worse, so I had to be taken off it. It was > working > with my RA. I was put on areva but had to stop because I > am > alergic to it. Now I have to wait until it gets out of my > system > befor I can start something else. I am on prednesone and > plaquenil. > They are not doing the job. I hope you get some > relief. Just > because they can't see the cause, It doesn't mean it is in your > head. Take care Jo Nell> >> > Hi All,> > > > I last checked in 2 or 3 months ago. Last month I got > laid off, > which was really awful > > because it was totally based on personal reasons and > jealousy! DH > is also not working due > > to health problems. We have some money in the bank, but > the only > income is my > > unemployment!> > > > During that time, actually since October, the Humira that I > have > been taking pretty > > successfully for 4 years started failing me. I have some > deformity, plus Osteopenia in my > > hands, actually all over, and I am just 38. > > > > I have been on a lot of pain medication am currently taking 25 > mg > Opana, twice a day, > > plus 4 Percocet's 10/325, and it still doesn't cut the > pain! > > > > I advocated to go on Rituxan but my Rheum. and another Rheum. > are > against it. The > > feeling is that I am not swollen enough, that my RA doesn't > look > that bad! So, now I > > compromised and wish to go on Orencia.> > > > My doc is ordering MRIs of my left and right hands and wrists > as > he does not see why I am > > in so much pain.> > > > My feeling is who cares that you don't see it?! Should I > wait to > become a cripple?> > > > In the meantime, I am down to being in too much pain to drive, > great fatigue, and memory > > and concentration problems as I wait. I need to go back > to work > but it has become > > impossible!> > > > I feel like if the Humira worked than why would it hurt to try > another RA drug, even if they > > don't think the pain is RA? Seems logical.> > > > A big problem is that the doctor who originally diagnosed my > RA > has passed away and he > > has seen me at my worst. > > > > Any thoughts? Thanks,> > > > > >> > > Quote Link to comment Share on other sites More sharing options...
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