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I have seen the liquid oxygen (or whatever you call it) in health food

stores and such. I have looked into it a bit but it is costly. I have

always figured that the aerobic breathing technique in Lifelift is what

my body wants and needs. If you want to try it, then go right ahead.

Let us know what it's like :-).

Michele

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  • 9 months later...

In a message dated 2/28/01 12:57:04 PM Pacific Standard Time,

writes:

> Have you considered Cincinnati? (is it closer/cheaper to get there?) Bonnie

> is in Cincinnati and has as much understanding as Dr. Capone and

> is very compassionate.

>

> She'll return a phone call if you want to try and call her to talk to her

> about what her clinic would do for you. And, I think you should do the same

> with Kennedy Krieger. Make sure what they might offer for you is actually

> going to be helpful to you from a distance.

>

>

Joan, after what I've been through gathering medical records to send to Dr.

, you better believe I am going to thoroughly research before I make a

trip out there!!

Well, we are in Dallas/Fort Worth area of Texas.....guess Cincinatti is just

as far/close.....still a plane ride anyway!

Leah just IM'd me about Bonnie , how funny! The DS clinics down

here anyway, all they do is check for the health issues....nothing really has

been done for behavioral issues, other diagnoses combined with DS, things of

that nature. They DO know they exist, but not enough " bitching " about it to

start up a clinic for mental health issues! They ARE planning a clinic of

sorts for the older person with DS.....seems most places deal with children

and not adults......don't they know our children will soon be adults???? DUH!

Thanks for the info......I'm keeping notes....

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:

I have her number, but it's downstairs in the file cabinet. I'll get it

later.I got sidetracked today by the earthquake. :)

j

At 05:33 PM 2/28/01 EST, you wrote:

>In a message dated 2/28/01 12:57:04 PM Pacific Standard Time,

> writes:

>

>

>> Have you considered Cincinnati? (is it closer/cheaper to get there?) Bonnie

>> is in Cincinnati and has as much understanding as Dr. Capone and

>> is very compassionate.

>>

>> She'll return a phone call if you want to try and call her to talk to her

>> about what her clinic would do for you. And, I think you should do the same

>> with Kennedy Krieger. Make sure what they might offer for you is actually

>> going to be helpful to you from a distance.

>>

>>

>

>Joan, after what I've been through gathering medical records to send to Dr.

>, you better believe I am going to thoroughly research before I make a

>trip out there!!

>

>Well, we are in Dallas/Fort Worth area of Texas.....guess Cincinatti is just

>as far/close.....still a plane ride anyway!

>

>Leah just IM'd me about Bonnie , how funny! The DS clinics down

>here anyway, all they do is check for the health issues....nothing really

has

>been done for behavioral issues, other diagnoses combined with DS, things of

>that nature. They DO know they exist, but not enough " bitching " about it to

>start up a clinic for mental health issues! They ARE planning a clinic of

>sorts for the older person with DS.....seems most places deal with children

>and not adults......don't they know our children will soon be adults????

DUH!

>

>Thanks for the info......I'm keeping notes....

>

>

>

>

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:

I have her number, but it's downstairs in the file cabinet. I'll get it

later.I got sidetracked today by the earthquake. :)

j

At 05:33 PM 2/28/01 EST, you wrote:

>In a message dated 2/28/01 12:57:04 PM Pacific Standard Time,

> writes:

>

>

>> Have you considered Cincinnati? (is it closer/cheaper to get there?) Bonnie

>> is in Cincinnati and has as much understanding as Dr. Capone and

>> is very compassionate.

>>

>> She'll return a phone call if you want to try and call her to talk to her

>> about what her clinic would do for you. And, I think you should do the same

>> with Kennedy Krieger. Make sure what they might offer for you is actually

>> going to be helpful to you from a distance.

>>

>>

>

>Joan, after what I've been through gathering medical records to send to Dr.

>, you better believe I am going to thoroughly research before I make a

>trip out there!!

>

>Well, we are in Dallas/Fort Worth area of Texas.....guess Cincinatti is just

>as far/close.....still a plane ride anyway!

>

>Leah just IM'd me about Bonnie , how funny! The DS clinics down

>here anyway, all they do is check for the health issues....nothing really

has

>been done for behavioral issues, other diagnoses combined with DS, things of

>that nature. They DO know they exist, but not enough " bitching " about it to

>start up a clinic for mental health issues! They ARE planning a clinic of

>sorts for the older person with DS.....seems most places deal with children

>and not adults......don't they know our children will soon be adults????

DUH!

>

>Thanks for the info......I'm keeping notes....

>

>

>

>

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At 02:47 PM 2/28/01 -0800, you wrote:

>:

Here you go:

She's with CCDD (Cincinatti Center for Dev. Disabled.) If the number

doesn't work, you're looking for the DS clinic or Bonnie .

513/636-4691

Try to create a tangible list of the things you want from a clinic visit.

What kinds of evals do you want, what topics do you want to discuss, etc.

j

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Guest guest

Joan.

This information is helpful. I am expecting a call from her. You actually

get her voice mail directly when you call the DS clinic there!

Lauri in MI

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>

> This information is helpful. I am expecting a call from her. You

> actually

> get her voice mail directly when you call the DS clinic there!

>

> Lauri in MI

>

Lauri,

I cant' tell you how many times I have called there, both when I lived in

Cincinnati and since moving to Vegas. I ALWAYS find Dr. easier

to get a hold of than our regular pediatrician. In fact, that was one

major complaint I have with Ped's. I tell them up front, that I dont'

want to spend hours upon hours trying to get in contact with them. If Dr.

can answer/return calls so quickly, I'm sure they can too.I

very rarely call the Ped with an " emergeny " type problem (fewer than once

every one to 2 years!), but when I do, I dont' want to be waiting one or

two days to get them!

Dr. is great!

S

________________________________________________________________

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At 05:39 AM 3/1/01 -0800, you wrote:

I ALWAYS find Dr. easier

>to get a hold of than our regular pediatrician.

>Dr. is great!

EAch physician/medical provider has a distinct personality when dealing

with parents/consumers. Dr. is very accessible. She is even more

knowledgeable. I think she expresses greater compassion for our struggles

as parents than most--though many have that compassion and don't express

it. Or, they have trouble saying things like, " I wish there was more I

could do...I wish I could help you, but I feel lost. " I would gather that's

what Dr. felt. He's a pretty nice guy, really.

Bonnie will talk straight talk to you. She'll tell you the pros and cons of

coming to see her. She'll tell you what she can and cannot do in the big

political world of hospitals. I found that so helpful, I just can't tell you.

j

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In a message dated 3/1/01 8:42:17 AM Eastern Standard Time,

stolzfamily@... writes:

<< If Dr.

can answer/return calls so quickly, I'm sure they can too.I

very rarely call the Ped with an " emergeny " type problem (fewer than once

every one to 2 years!), but when I do, I dont' want to be waiting one or

two days to get them!

Dr. is great!

S

____________________________________________________________ >>

,

I had my first conversation with her today. She was so helpful and very

kind. I actually set up an appointment for Gene to see her for an evaluation

when we are on our way to Florida for spring break. We just need to drive a

little further east than we usually do! It is exciting to me to know that at

last I will be bringing him to someone who has met kids like him before! I

think we are also going to be able to meet with the speech pathologist there

and also, maybe, the Dr. from the autism clinic as well. I am putting all

further meds on hold ( after the Adderal nightmare day ) until after we meet

with her the end of this month.

Lauri in MI

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Lauri:

Thanks for the good report!! I'll keep my fingers crossed. You will like

Bonnie. One thing I was surprised by is that she's a little

short......(about 4 feet 4, I'd say). After years of over-bearing, tall

MEN, it was hard for me to adjust!

Joan

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lauri,

i hope you and gene have a great visit with dr. patterson...ashton has never

seen her, but i have met her at conferences and she is very kind and

compassionate and an expert at her work....good luck,leah

ps does anyone know what she charges for a visit

>

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  • 11 months later...

bonnie, a physical therapy designed stretch and strengthen program has

helped me. you have to work up gradually. then you ahve to keep doing the

stretches everyday at home to see a benefit. I was also a violinist in

addition to fibro/shoulder blades or whatever we ahve and it helped me .

physical therapy is usually paid by insurance including medicare. amy

>From: bonnieraepoet@...

>Reply-

>

>Subject: Re: Costochondritis

>Date: Sun, 3 Feb 2002 20:47:08 EST

>

>Hello Hud,

>

>Yes, my pain is often between my shoulder blades, too. It is so bad lately

>that I am taking percoset. The costo website is helpful -- you might want

>to

>look into it.

>

>Does anything help your pain? My plan is to see the pulmonologist to rule

>out another cause of the pain (I have had breast cancer and have to look

>out

>for metastases; also a history of mycoplasma pneumonia, which was the

>beginning of this nightmare). If the pulmo. is unable to help then I'll go

>to

>a pain center. I can't live this way anymore.

>

>Working at the computer is hard for me, too, but not impossible. It's

>ironic

>because the computer is where I'm learning about my various maladies, yet

>spending any time on it exacerbates the pain.

>

>Take care, Hud, and please stay in touch.

>

>Bonnie

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  • 5 months later...
Guest guest

Thank you Sandy,

I have been here for one day and I have learned so much. You can get

infor from books and websites but the best info is from poeple going

through it. the Dr can only tell you so much.

Bonnie

> Welcome Bonnie: This is a loving, good hearted group

> of people. Keep the faith.

>

> God Bless

> Sandy

>

> __________________________________________________

>

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Guest guest

Thank you Sandy,

I have been here for one day and I have learned so much. You can get

infor from books and websites but the best info is from poeple going

through it. the Dr can only tell you so much.

Bonnie

> Welcome Bonnie: This is a loving, good hearted group

> of people. Keep the faith.

>

> God Bless

> Sandy

>

> __________________________________________________

>

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Guest guest

bonnie can I have your e-mail addie, I have been trying to send links to places

u might be interested in and it sends them as a attachment and this group will

not accept attachments!! sigh

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Guest guest

bonnie can I have your e-mail addie, I have been trying to send links to places

u might be interested in and it sends them as a attachment and this group will

not accept attachments!! sigh

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Sure thing,

my email is bonniestormcloud@...

Bonnie

> bonnie can I have your e-mail addie, I have been trying to send

links to places u might be interested in and it sends them as a

attachment and this group will not accept attachments!! sigh

>

>

>

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Sure thing,

my email is bonniestormcloud@...

Bonnie

> bonnie can I have your e-mail addie, I have been trying to send

links to places u might be interested in and it sends them as a

attachment and this group will not accept attachments!! sigh

>

>

>

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  • 9 months later...
Guest guest

> Pat, you want me to go through my pics for any I have of you?

>

> Marta

> ~~~~~~~~~~~~~~~

Maybe I will look at them at the pool party.

Thanks...

Pat

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  • 3 months later...

Dear Bonnie,

Good for you - 42 lbs is wonderful. I like the points program but went off last winter when it took so long to find out that I had h-pylori ulcer. It was tough to follow the program because I couldn't eat fresh fruit or veggies and my attitude fell right off. You all are inspiring me to get to it again. Thanks for sharing good news.

Amy

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  • 6 months later...
Guest guest

Bonnie - is quite right - as I said in my first reply to you, doubling

time of white count and lymphocytes is an important measure - these would

likely be tied to increases in node size, as that is where these guys wind up -

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