New to this list

[Guest guest]

Hi everyone,

I am new to this list, but not to the whole vaccination issue. My name is

Lauri and we live in Az. MY oldest son received all of his shots till 15

months (my ignorance at the time), when he recd his MMR. He had an

anaphylatic (sp?) reaction, spiked a fever at least to 106 (at which point I

threw the thermometer down and put him in a lukewarm bath), was difficult to

awaken from his nap, turned grey including his lips. I was able to get the

fever down relatively quickly to 102 with the bath and tylenol, but then

noticed in the days and weeks afterward that he was no longer talking, kept to

himself etc. he didn't utter another word for 7 months. Finally, right

before his 2nd bday he started to talk again. Altho the doc wouldn't

attribute this to the vaccine, I felt that there was a connection. After much

research over the last 5 yrs I feel for sure there is a connection.

My son is 6 now and is doing ok, but is " differnent " somehow. Some people

have said that certain times his behavior is reminding them of autism. He is

developmentally right on track, but has lots of trouble following verbal

directions, and is very obsessive compulsive. Change is a major problem for

him etc.

Now we only selective vaccinate (we now have another boy 9mo). And before I

agree to any vaccine I research it until I feel confident of my decision. At

his point we only vaccinate for polio, tetanus, and Hib.

Anyway, just wanted to say hello to everyone and I'm looking forward to lots

of great info and conversation.

Lauri

[Guest guest]

hi julie. i am also new to the list, i found it about 3 days ago. i have a 2

year old son (almost 3) that has polyarticuar JRA. his name is tristan and he

was diagnosed at 16 months old.his right toe, both knees and ankles are

severely affected and he is getting the cortisone injections jan 14 (next

friday) im praying harder than ever that they help so he can atlest be taken

off his prednisone and ibuprofen, as they have hurt his stomach and the pred.

is starting to stunt his growth.i know what you mean about it being

heartwrenching seeing your child in so much pain. im sure every parent here

has cried more often than we should! each day is making my hope grow stronger

and finding this list was the best thing to happen to me so far! good luck!

cheri

[Guest guest]

hell

yes it can go into the back has had it there a couple of times it

was hard to watch her in that kind of pain that and the hands are what seem

to bother me the most I do not know why to me it just seems to hurt more

there for her ???? well good luck

>From: " WILLIAM PRICE " <william.e.price@...>

>Reply- onelist

>< onelist>

>Subject: Re: [ ] New to this list

>Date: Fri, 7 Jan 2000 12:26:01 -0800

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>

>Dear Cheri and , Both welcome to the list. I am also fairly new.

>n , just turning 11, was diagnosed in November with systemic JRA. Her

>symptoms are still changing daily, but we see some improvement week to

>week.

>The arthritis is in her wrist, shoulders, and now her back is hurting her.

>Does anyone know if it can go into the back? Her fevers have been gone for

>a month now, but we still have the rash. I have learned a lot from this

>list, and find it very supportive. in Portland

> Re: [ ] New to this list

>

>

> >hi julie. i am also new to the list, i found it about 3 days ago. i have

>a

>2

> >year old son (almost 3) that has polyarticuar JRA. his name is tristan

>and

>he

> >was diagnosed at 16 months old.his right toe, both knees and ankles are

> >severely affected and he is getting the cortisone injections jan 14 (next

> >friday) im praying harder than ever that they help so he can atlest be

>taken

> >off his prednisone and ibuprofen, as they have hurt his stomach and the

>pred.

> >is starting to stunt his growth.i know what you mean about it being

> >heartwrenching seeing your child in so much pain. im sure every parent

>here

> >has cried more often than we should! each day is making my hope grow

>stronger

> >and finding this list was the best thing to happen to me so far! good

>luck!

> > cheri

> >

> >---------------------------

[Guest guest]

Dear Cheri and , Both welcome to the list. I am also fairly new.

n , just turning 11, was diagnosed in November with systemic JRA. Her

symptoms are still changing daily, but we see some improvement week to week.

The arthritis is in her wrist, shoulders, and now her back is hurting her.

Does anyone know if it can go into the back? Her fevers have been gone for

a month now, but we still have the rash. I have learned a lot from this

list, and find it very supportive. in Portland

Re: [ ] New to this list

>hi julie. i am also new to the list, i found it about 3 days ago. i have a

2

>year old son (almost 3) that has polyarticuar JRA. his name is tristan and

he

>was diagnosed at 16 months old.his right toe, both knees and ankles are

>severely affected and he is getting the cortisone injections jan 14 (next

>friday) im praying harder than ever that they help so he can atlest be

taken

>off his prednisone and ibuprofen, as they have hurt his stomach and the

pred.

>is starting to stunt his growth.i know what you mean about it being

>heartwrenching seeing your child in so much pain. im sure every parent here

>has cried more often than we should! each day is making my hope grow

stronger

>and finding this list was the best thing to happen to me so far! good luck!

> cheri

>

>---------------------------

[Guest guest]

Dear Kathy, Welcome to the list. You will receive lots of info. and

support here. It broke my heart to read your message, because it brought

back vivid memories. Our daughter, n age11, was just diagnosed in

November. She has been slowly improving, but last night all of the feelings

came back to me, as she had a bad night with the itching and was up for most

of the night. As a parent we can feel so helpless. We give the children

the medicine prescribed, but there is still pain, and then what do we do.

It is a drag to see your child in pain or uncomfortable night after night.

We all have to have hope. I truly believe that there is a cure for this

disease, and it will be found at least in their lifetimes. We will probably

look back and think how stupid we were not knowing what caused it. What

is MSM?

We are new to this disease as are you, but I can say that from our

experience that we see bits of improvement week to week. Many times it is

small, but we keep notes and when we go back to read them, we can see the

small improvements. This was the first week that n went to school full

time in 2 months. I guard her closely so she gets lots and lots of rest.

Good luck.

[ ] New to this list

>Hello,

> My name is Kathy and my son was recently diagnosed with Still's disease.

>For about a week, they thought it was just a viral infection that went into

>his joints because he had bad diarhea. Then he started with the rash and

>fever around 2 pm every day. The RD finally diagnosed it as classic

Still's.

> Tally just turned 5 yesterday.

> I suppose I'm lucky as right now Tally doesn't have any damage to his

>joints or heart or anything. He's on prednisone once a day as well as

>ibuprofen and MTX once a week. He's only been on the prednisone since last

>saturday and so far, his rashes have disappeared. He had been sleeping so

>much but tonight he stayed up until 7 and fell asleep and now he's bad up

and

>running around. I also give Tally MSM. That's not prescribed but it can't

>hurt.

> I'm still scared but I'm a single mother who went back to school last

>year. The way I figure it, I beat the odds by just going back to school

as

>a single parent so Tally can beat the odds with this disease. I know it

>won't be easy and I still get awful weepy when he cries out in pain but at

>least I know that he is fighting as much as I am. The carrying him up the

>stairs is getting tiring but now, at least, he's moving again on his own

>which is something that he didn't do before.

> I've read so many sad stories on the web about this disease and even

>though it's a tough one, I have to believe that we will get through this.

>Tally is my whole life.... I won't let him go without a fight.

> I'm stilll terrified. When I went back to school, I was leaving a

great

>paying job to go into uncertainty. I heard a song from a folk singer about

a

>tough decision he had to make and he said, " God, please give me a sign. I

>know that if I always get one, I'll have no need to trust you... " So

>instead, I took a leap of faith and jumped off that hypothetical mountain

>and prayed that God would cushion my fall and he did. When Tally was

>diagnosed with this I said a prayer to God that I'm sure burned his ears.

I

>think I called him every naughty name in the book but I went to sleep and

>woke up with a whole new resolve of hope. I'm sure God isn't use to being

>called such words so maybe that helped ( not that I would recommend

>it....LOL). I look at Tally when he's sore and whiny and I just hold him

>and tell him that I love him. When he goes to sleep, I tell him that in

his

>body are little power rangers that have to fight the bad guys and to dream

of

>fighting them. Tally usually always wakes up limber it's when he comes

back

>from school that he's sore and sleepy.

> I'm rambling but that is nothing new for me. I terrified and scared but

>also stubborn. He's all I have and my life has been so tough already. I

>tell myself that God made my life especially tough to prepare me to fight

>this disease with my son. Tally and I have already fought so hard in life

>and I'll be damned if I'll let this defeat us. I have a professor who does

>research on rheamatoid arthritis so hopefully he'll have some good pointers

>next week.

> I love my son more than anything and to think anything but success I

>can't do. It's funny, I wasn't sure what type of graduate school I was

>going to go through. Wasn't sure if it would be research or medical

school.

>Tally's disease has given me a direction that I wouldn't have had before.

So

>God, if your listening and reading this... I see your sign now in big,

bold

>letters of what I should do with my life... now it's up to you to insure

>Tally grows to be tall and strong and healthy and intelligent.

>

> kathy

>

>

>---------------------------

[Guest guest]

Hi ,

I hope n is having some better days. I'm glad that her fevers are

subsiding. Maybe things are slowly starting to work. I sure hope so.

I'm continually being amazed by the stories I read. As far as I know,

arthritis can affect just about every single joint in the body, as well

as lots of different organs and body parts that we wouldn't ordinarily

think of. Seems to be able to go wherever it pleases, wreaking it's

havoc.

Take care,

Georgina

WILLIAM PRICE wrote:

>

> Dear Cheri and , Both welcome to the list. I am also fairly new.

> n , just turning 11, was diagnosed in November with systemic JRA. Her

> symptoms are still changing daily, but we see some improvement week to week.

> The arthritis is in her wrist, shoulders, and now her back is hurting her.

> Does anyone know if it can go into the back? Her fevers have been gone for

> a month now, but we still have the rash. I have learned a lot from this

> list, and find it very supportive. in Portland

[Guest guest]

Hi Cheri,

I was just wondering how the injections went. I sure hope that it wasn't

too traumatic for either of you, that they help Tristan's joints and

that things will start getting easier. Let us know, when you get a

chance.

Take care,

Georgina

Cheri97706@... wrote:

>

> hi julie. i am also new to the list, i found it about 3 days ago. i have a 2

> year old son (almost 3) that has polyarticuar JRA. his name is tristan and he

> was diagnosed at 16 months old.his right toe, both knees and ankles are

> severely affected and he is getting the cortisone injections jan 14 (next

> friday) im praying harder than ever that they help so he can atlest be taken

> off his prednisone and ibuprofen, as they have hurt his stomach and the pred.

> is starting to stunt his growth.i know what you mean about it being

> heartwrenching seeing your child in so much pain. im sure every parent here

> has cried more often than we should! each day is making my hope grow stronger

> and finding this list was the best thing to happen to me so far! good luck!

> cheri

[Guest guest]

Hi ,

I just wanted to say hello and welcome, once again, to our little list

Yes, the onset of JRA can be such a very saddening time in our lives.

It's so hard to have to see our children struggle with ordinary

activities, like walking. I'm glad the steroid injections were able to

help so well and I hope that your daughter's current treatment keeps

everything in check. Nice to 'meet' you!

Aloha,

Georgina

Dulwichdiva@... wrote:

>

> First of all, hello to AMY('s mom) from Oregon!! This is from

the small loop. I guess we are thinking alike!

> Hi everyone: My name is Lang and my 41/2 year old daughter Hayden was

diagnosed with pauciarticular JRA at age 18months. She certainly has had her ups

and downs. This spring she was unable to walk and need to be carried from her

bed to the table until she got her am meds. Talk about heartwrenching as a

mom!!!!!She had cortisone injections at that time and is now doing well(fingers

crossed). The rheumy stopped her Indocin a few months ago as she is currently

asymptomatic. She remains on Sulfasalazine 400mg twice a day. I live in

Minnesota and my husband and I also have a 12month old named . I am

pleased to have found this list. While family and friends are supportive, it is

nice to have a place to talk with other parents who are going thru the same

thing. Thanks for having me and I look forward to getting to know all of you.

>

[Guest guest]

Hi ,

Welcome to the list.

I know you will love all the wonderful caring people on our list.

Welcome to all the other new members too! I am so glad you are here.

Take care,

Rashelle

new to this listhello... i am new here and trying to figure out this board!i am also trying to decide whether i should get this program or not? first i am very impressed that rashelle responds to people. secondly, since the breathing basics is the same for LL as BF and O, how canone work better than the other?i was also wondering if there was a book instead of a video. i am ina financial situation unable to " throw away " money - or even purchase something i would love!any info and help would be appreciated! now, i just hope i can figure out how to check for any replies!LOLeveryone have a wonderful daycindyYour List Owners/Moderators:Rashelle - rashelle@...Karma - karma@...Darlene - dar77y@...List Web Sites:http://www.lifelift.comhttp://www.angelmagic.comhttp://loaves-n-fishes.comhttp://www.amazon.com/exec/obidos/redirect-home/karmasrecommerea/

[Guest guest]

Hi ,

I love this program. Honestly, it's the best thing I have ever done

for myself, and it's something I know I can stick with for the rest

of my life. I started out with BF and it did work well for me (17 "

and 6 lbs.). But after 3 months, I really wasn't enjoying it anymore

because of the harsh breathing (there were times I dreaded doing

it). But, I love the gentle breathing of LifeLift. You will feel so

energized, but relaxed too.

The breathing steps are similar to BF, but the technique is entirely

different. BF is quick and done with force, whereas LL is slower and

gentle. When I was a BFer, I thought the breath had to be done

quickly and with force to see results. But after I tried LL, it

didn't take long to prove that theory wrong. I lost 4.5 " and 3 lbs.

in the first 5 days!! Plus, my energy stays higher longer now!

I am noticing all kinds of changes in my body, even if it doesn't

reflect on the measuring tape. Like today, I noticed that my legs

were really taking on a nice shape. I never really paid much

attention to them because I was always more concerned about getting

rid of my stomach! I can't help but notice them now ...especially

because they are almost cellulite free!!

Also, I had a hard time understanding how to get around the board at

first too. This is what I did to help me get around: If you want to

see a list of all the new messages, then click on " view by date " (the

most recent will be on the last page at the bottom). If you want to

view the messages with the replies listed underneath it, then click

on " view by thread

Good Luck to you,

ë Tara

> hello... i am new here and trying to figure out this board!

>

> i am also trying to decide whether i should get this program or

not?

> first i am very impressed that rashelle responds to people.

secondly,

> since the breathing basics is the same for LL as BF and O, how can

> one

> work better than the other?

>

> i was also wondering if there was a book instead of a video. i am in

> a

> financial situation unable to " throw away " money - or even purchase

> something i would love!

>

> any info and help would be appreciated! now, i just hope i can

figure

> out how to check for any replies!LOL

>

> everyone have a wonderful day

> cindy

[Guest guest]

Hi ,

Welcome! Glad your here! I am new too on this board and finding my

way

around. What I usually do is sign in and find myself on the " Main

Page " (where it lists all the months) Clic on August (where it lists

the emails) and then do the " Jump to # " (fill in a number towards the

end ...for the most recent emails). Say I wanted to read yours, I

would put " JUMP TO # 6931 " and then when I get your email I would

clic

to open and read and then if I wish to reply, I would hit reply and

write above your email and send a message. If I wanted to read the

lastest emails and the last one is # 6983...I guessimate a number

like

JUMP TO #6979...giving me a list of the lastest emails. Maybe someone

knows an easier route, but this is what's working for me. Hope it

helps you.

I wish to tell you, like Tara mentioned, I was a diehard BF'er for 3

months when I finally gave up. I had some successes, but then I found

I was going up and down in inches and " gaining " ! This bothered me. I

tried to return to it, but I lost interest when discovering LifeLift.

I saw results quickly within the first week that amazed me! Not only

was I losing inches, but pounds too! That never happened with BF. I

do

my LL faithfully every morning because it makes me feel so good. I

love it! I am thrilled by my results. I continue to get a nice

workout

and it relaxes me. I like the steps which are slower, but more

comfortable. I don't believe in " no pain no gain " theory because

obviously, comfort with LL is working for me! Without killing myself

in the process. I have read enough to know that " the weight in our

lives is the stress in our lives " its difficult to lose when we are

all uptight in our routines of the day and our personal problems.

When

you are calm and relaxed, your body responds better and releases not

only the stress, but the weight from those burdens carried on our

shoulders. Many things don't have the affect on me as they did

before.

I am more at peace with myself. LL has restored my hope in achieving

my goal because every day I " see and feel " a difference in my body. I

THANK YOU le Haines for creating LifeLift and for giving me a

renewed faith in a breathing technique that WORKS!

We're all behind you .

You've come to the right place.

All the very best,

Tij

> hello... i am new here and trying to figure out this board!

>

> i am also trying to decide whether i should get this program or

not?

> first i am very impressed that rashelle responds to people.

secondly,

> since the breathing basics is the same for LL as BF and O, how can

> one

> work better than the other?

>

> i was also wondering if there was a book instead of a video. i am in

> a

> financial situation unable to " throw away " money - or even purchase

> something i would love!

>

> any info and help would be appreciated! now, i just hope i can

figure

> out how to check for any replies!LOL

>

> everyone have a wonderful day

> cindy

[Guest guest]

Also guys, You COULD get the e-mails sent directly to you. Unless you want to go to the group

site :-) I know some of us get paid for surfing the web and so get our messages at the board so we can get paid while reading messages.

{{{HUGS}}} & God bless, Bonnie

*****************************With God, ALL things are possible.*****************************

[Guest guest]

Welcome Jeff and Pam! Finally someone else from Chattanooga here! : )

You'll love this list, does not have the fighting of the other lists.

Amy P.

[Guest guest]

Hello everyone,

I am new to these crafts but have been wanting to do my own for a long

time as I find myself indulging in nice soaps and sea salt scrubs quite

frequently.

This list has already been helpful, thank you all.

C.J. (Phoenix)

[Guest guest]

Hey all.

I've been dealing with the 'light-headedness' and fogged in, kinda

'out of it' thing for over five years now and medical doctors (at

least in this case - in my own experience) have proven next to useless.

I was at my wits' end when finally I went to a Naturopathic doctor in

my city. After she interviewed/examined me she told me that it was

very likely I had a form of Candidiasis. She put me on a restrictive

diet and on supplements (pro-flora, etc.)

I'm on week three of all of this, yet not feeling really much better

than before. I've been following the diet and taking the supplements

quite strictly.

Can I ask those of you out there with similar experiences how long

the cleansing- good yeast/bacteria re-population takes?

Maybe I'm just being impatient here.

Thanks in advance.

Mike

in vancouver

[Guest guest]

Mike:

Some Health Care Providers think that a good diet, just leaves out sugar and

desserts and so on, but it goes much further than that.

I live on meat, fish, the odd egg, salad and veggies and that's about it. I

can't even have a slice of toast.

Bonnie

New to this list

Hey all.

I've been dealing with the 'light-headedness' and fogged in, kinda

'out of it' thing for over five years now and medical doctors (at

least in this case - in my own experience) have proven next to useless.

I was at my wits' end when finally I went to a Naturopathic doctor in

my city. After she interviewed/examined me she told me that it was

very likely I had a form of Candidiasis. She put me on a restrictive

diet and on supplements (pro-flora, etc.)

I'm on week three of all of this, yet not feeling really much better

than before. I've been following the diet and taking the supplements

quite strictly.

Can I ask those of you out there with similar experiences how long

the cleansing- good yeast/bacteria re-population takes?

Maybe I'm just being impatient here.

Thanks in advance.

Mike

in vancouver