Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 When the water is running, it seems all other sounds are muted. Do others have this experience? Re: Help please > > , > I am not one to suggest this because I myself am terrible at it > but try to hot down notes on what you hear or dont hear. Is the pain > more like nerves twitching? That can be mapped out too (I need to > have this done and may want to get an electrode or two turned off). > > There is no set number of maps or frequency of mapping sessions. > If you need a map, get one. But do try to get used to the current > map, too much playing around with the controls wont let the brain > adapt. > > *---* *---* *---* *---* *---* > We Repair what your husband Fixed. > --plumber sign > & Gimlet (Guide Dawggie) > Portland, Oregon > N24C 3G 8/2000 Hookup > rlclark77@... > http://home.comcast.net/~rlclark77/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 Hi , This is a common complaint but can be resolved somewhat. Please know that people with regular hearing have a problem with water running. It's just hard to hear over it. I thought you had the BWP and if so, turn on the sensitivity and lower the number on your processor. Let me know if I or anyone else on this list can help you do this. If you are using the 3G (which I don't think you are doing) ask the audiologist to give you a sensitivity map and when you are running water, you can turn the sensitivity down as far as you need to to silence the interruption. BTW - There is no rule as to how many mappings you can have. If you need one now - you can ask for it and you should get the appointment. Let us know how you make out with all of this. We'll help you as much as we can. > When the water is running, it seems all other sounds are muted. Do others > have this experience? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 Velvet, As the others said, you are in a weird time right now because you still feel hungry and yet you think you should not be. I was banded in May and had one fill in July and another in August. My August fill did the trick and I have been losing slowly and steadily since then. Before my August fill I was down only 20 pounds (in three months, modest by many bandster standards), and that was including the three weeks on liquids! Since that August fill I am down 15 more pounds. After banding, once I could eat again, I tried very hard to limit myself but it was difficult and I was losing very, very slowly. And I was hungry!!! Once you have the right fill, you will not agonize so much over your overeating because it will be darn near impossible to do it! One thing I have learned in this process is time is your friend, not your enemy. We all want results so quickly! Your body and your brain need time to adjust to the band. You will find a rhythm that works for you, a pattern to eating that is healthier. For me, a good fill means I will not put that piece of cake in my mouth because I know if I do I will not have room for anything else. A good fill means I will choose one glass of wine and not two because I want to eat my calories, not drink them. A good fill means I turn away from chips and salsa at the restaurant because I would like to be able to eat one third of that chicken enchilada and even three or four chips will prevent me from be able to do that. In my preband days, I would have eaten the whole enchilada (no pun intended!) and refilled the chips bowl twice! I am five months out and I am so grateful for the band. I have lost 35 pounds and I am so excited to know in another five months I will be even better than I am right now. I still eat things I shouldn't, I just don't do it very often because my fill won't allow it. That has helped me learn I really don't want to eat that stiff all the time. The band is helping me retrain my brain. Time is your friend in this process. You will get a great fill soon and you will start to find your path in this journey. You have already lost more in your short time than I have in the last five months! You are doing great and you need to remind yourself of that every day. mary dr. ortiz 05/21/04 -35 > > I'm at a total loss. I seem to have lost my momentum in doing this > weight loss programme. I have been eating non stop and I cannot seen > to get full. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 it's hard to get a map with them, their schedule is full. After I've completed the intial mapping, I can go to the one provided at my college. is this the same for others, for their audie's schedule to be full. I want to say thank you to everyone who's replied. I will mention it to my audie that one of the electrodes is hurting me. it's only when people are talking, then one of the words they say makes me wince and the pain seems to be lasting for like 10 min. i'll try to remember the words they say. thanks Alice <justagram@...> wrote: Hi , This is a common complaint but can be resolved somewhat. Please know that people with regular hearing have a problem with water running. It's just hard to hear over it. I thought you had the BWP and if so, turn on the sensitivity and lower the number on your processor. Let me know if I or anyone else on this list can help you do this. If you are using the 3G (which I don't think you are doing) ask the audiologist to give you a sensitivity map and when you are running water, you can turn the sensitivity down as far as you need to to silence the interruption. BTW - There is no rule as to how many mappings you can have. If you need one now - you can ask for it and you should get the appointment. Let us know how you make out with all of this. We'll help you as much as we can. > When the water is running, it seems all other sounds are muted. Do others > have this experience? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 Thanks everyone, you have given me the boost I needed. Yesterday was a better day for me and I stuck to the puree/soft food 100%. Today has been OK so far. I today received my new recipe book from Amazon called " Eating Well After Weight Loss Surgery " by Patt Levine and Michele Bontempo-Saray, which was recommended by another bandster group. I have not had a chance to look at it yet, but I will do this afternoon. The food looks delicious and they are low in fat and high in protein. Again thanks to everyone. Jackie 13/9/04 299/263/??? London, U.K. > > Velvet, > As the others said, you are in a weird time right now because you > still feel hungry and yet you think you should not be.>> [sNIPPED] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 Jackie, I think we have all felt what you are feeling right now. I know I am dealing with it too. The band does not do it's job until you get to the right fill level. I guess a person really don't understand that until you get to that level and know what it feels like? I am not sure because I am not at that level yet. I was banded on July 22nd and have had 3 fills but am still not at the right spot yet (I have the Vandguard (VG) band which holds more and is harder to get to the right fill level). I have to keep telling myself everyday that the band isn't working yet because I get frustrated at the fact that I have only lost about 10 pounds since banding. Somedays I try to " diet " and eat a whole lot less but I get so hungry. Then I get mad because I didn't get the band just to have to " diet " . Then I have to remind myself again that the band is not working yet. Then someone asks me how my weight loss is going and I get frustrated again. a in KC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 Thanks for that a. I also have the Vanguard band. I'm hoping I can go without a fill for a while. I see my consultant/advisor in about 5 weeks to discuss the fills. Here in the U.K. we are on 4 weeks liquid, 4 weeks pureed/soft food and then on solids. Regards. Jackie > Jackie, > > I think we have all felt what you are feeling right now. I know I am > dealing with > it too. The band does not do it's job until you get to the right fill > level. I guess > a person really don't understand that until you get to that level and know > what it > feels like? I am not sure because I am not at that level yet. I was > banded > on July 22nd and have had 3 fills but am still not at the right spot yet > (I have the Vandguard (VG) band which holds more and is harder to > get to the right fill level). > > I have to keep telling myself everyday that the band isn't working yet > because > I get frustrated at the fact that I have only lost about 10 pounds since > banding. > Somedays I try to " diet " and eat a whole lot less but I get so hungry. > Then I get > mad because I didn't get the band just to have to " diet " . Then I have to > remind myself again that the band is not working yet. Then someone asks > me how my weight loss is going and I get frustrated again. > > a in KC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 Probably you have autosensitivity on. Mine is autosensitivity on my BTE. Water is pretty noisy on wide range of frequencies, so it turns them down. -gs -- Greg Swager gswager@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2004 Report Share Posted October 28, 2004 Hi all, does anyone know of any research about the % of kids that will eventually outgrow epilepsy on their own as opposed to those who who will only outgrow it if they are medicated. My neurologist said that it was only 5% that will outgrow it on their own, and 80% will do so with meds. I think he's trying to scare me, but I'd really LOVE to see the research papers. HELP HELP HELP thanks elise --- mark hogue <markhogue2002@...> wrote: > CARLA,I WOULD STAY TOTALLY AWAY FROM ALL SODAS > REGULAR OR DIET.IF YOU MUST HAVE SOMETHING TO DRINK, > I'D SUGGEST LIKE HERBAL TEA'S,GREEN TEA'S PLUS > DRINKING THE TEA'S HELP FLUSH OUT BAD THINGS IN YOUR > BODY I'M TELLING THIS LIKE MYSELF,I DRANK PEPSI FOR > OVER 40 YEARS AND QUIT COLD TURKEY.LAST YEAR I HAD > MORE THAN 700 SEIZURES IN LESS THAN 6 MONTHS BEING > ON KEPPRA AS SOON AS I GOT OFF OF IT I STARTED > GETTING BETTER PLUS TAKING MY HERBS. CARLA,ALSO I > THANK GOD EVERYDAY I DON'T HAVE SEIZURES. CARLA,MAY > ALL YOUR DAYS BE BLESSED DAYS WITH LOVE,MARK FROM > HOUSTON,TEXAS > > Carla Forsgren <jinxie1945@...> wrote: > Im looking for info on Keppra (info that isnt > tainted by drug > companies). After more than 30 yrs on meds I went > off them and was > seizure free for 3 years. I had a seizure on June > 3rd. After doing > a lot of reading I found info on aspartame and I > believe that is what > caused the seizure. Shortly before it occurred I > started drinking > diet soda, which I never drank before. I also > started having auras. > As soon as I stopped so did the auras. I have been > fine since that > time (late June). However, I lost my driving > privileges of course! > > My doctor doesnt believe the aspartame had anything > to do with it > and insists I go on Keppra. He told me it had > little to no side > affects other than slight drowsiness, and that it > was one of the > newest and mildest on the market. > > What really gets me is this is exactly what the > doctors told me about > Viox--Luckily I couldnt handle their mildest > arthritis meds because I > had immediate stomach reactions. The last time they > wanted to give > me an antiinflammatory they said that I couldnt take > anything if I > couldnt handle Viox! > > I have spent over 30 yrs half dead on my feet > because of phenobarb > and a few years with acid reflux because of > dilantin. I have changed > my diet--I eat all whole, organic foods, no sugar, > excercise > regularly and I feel better than I have in many > years. I dont want > to go on meds, but I need my drivers license back! > > If I dont take the Keppra, I dont get my license > back. Any > suggestions or info on Keppra including personal > experience would be > greatly appreciated! > > Thanks, > > Carla in PA > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2004 Report Share Posted October 28, 2004 Elise, Someone once told me " It is like making a trail in grass, if you keep walking on it, it will stay bald but if you stop walking on it , the grass will grow back. Finding the right meds is the key. By controlling the seizure " pathway " with meds for an extended time will teach the brain not to seize. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2004 Report Share Posted October 29, 2004 Well, yes I agree, in a perfect world finding the perfect meds would be ideal. But, this being the " real " imperfect world- it's not as easy said as done. Josiah has been on four meds and had more seizures on those meds than with nothing (how's that for some grass fertilizer?) at this point I am told that we (as do all pt's who have failed at 2 or more meds) have a 10% chance of EVER getting a medication to work for us. So here we sit. trying alternative stuff, considering a diet option and trying to figure out whether psychosis will be better or worse than liver failure if we have to try drugs again. FYI I found two articles today at pub-med. Both concluded that roughly 50% of people with epilepsy will have it end on it's own with no intervention. Best of luck to each and every one of us and our kids. There is no pain like watching your child suffer and feeling powerless. aloha --- Traceygrubbs@... wrote: > Elise, > Someone once told me " It is like making a trail in > grass, if you keep walking > on it, it will stay bald but if you stop walking on > it , the grass will grow > back. > > Finding the right meds is the key. By controlling > the seizure " pathway " with > meds for an extended time will teach the brain not > to seize. > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2004 Report Share Posted October 29, 2004 Elise, I don't know, but I do believe that it is much higher than 5%. I do believe that this doctor is trying to scare you and the only way to find out is to keep doing what you are doing and see. How is it going? Grace Elise Strong <elisestrong@...> wrote: Hi all, does anyone know of any research about the % of kids that will eventually outgrow epilepsy on their own as opposed to those who who will only outgrow it if they are medicated. My neurologist said that it was only 5% that will outgrow it on their own, and 80% will do so with meds. I think he's trying to scare me, but I'd really LOVE to see the research papers. HELP HELP HELP thanks elise --- mark hogue <markhogue2002@...> wrote: > CARLA,I WOULD STAY TOTALLY AWAY FROM ALL SODAS > REGULAR OR DIET.IF YOU MUST HAVE SOMETHING TO DRINK, > I'D SUGGEST LIKE HERBAL TEA'S,GREEN TEA'S PLUS > DRINKING THE TEA'S HELP FLUSH OUT BAD THINGS IN YOUR > BODY I'M TELLING THIS LIKE MYSELF,I DRANK PEPSI FOR > OVER 40 YEARS AND QUIT COLD TURKEY.LAST YEAR I HAD > MORE THAN 700 SEIZURES IN LESS THAN 6 MONTHS BEING > ON KEPPRA AS SOON AS I GOT OFF OF IT I STARTED > GETTING BETTER PLUS TAKING MY HERBS. CARLA,ALSO I > THANK GOD EVERYDAY I DON'T HAVE SEIZURES. CARLA,MAY > ALL YOUR DAYS BE BLESSED DAYS WITH LOVE,MARK FROM > HOUSTON,TEXAS > > Carla Forsgren <jinxie1945@...> wrote: > Im looking for info on Keppra (info that isnt > tainted by drug > companies). After more than 30 yrs on meds I went > off them and was > seizure free for 3 years. I had a seizure on June > 3rd. After doing > a lot of reading I found info on aspartame and I > believe that is what > caused the seizure. Shortly before it occurred I > started drinking > diet soda, which I never drank before. I also > started having auras. > As soon as I stopped so did the auras. I have been > fine since that > time (late June). However, I lost my driving > privileges of course! > > My doctor doesnt believe the aspartame had anything > to do with it > and insists I go on Keppra. He told me it had > little to no side > affects other than slight drowsiness, and that it > was one of the > newest and mildest on the market. > > What really gets me is this is exactly what the > doctors told me about > Viox--Luckily I couldnt handle their mildest > arthritis meds because I > had immediate stomach reactions. The last time they > wanted to give > me an antiinflammatory they said that I couldnt take > anything if I > couldnt handle Viox! > > I have spent over 30 yrs half dead on my feet > because of phenobarb > and a few years with acid reflux because of > dilantin. I have changed > my diet--I eat all whole, organic foods, no sugar, > excercise > regularly and I feel better than I have in many > years. I dont want > to go on meds, but I need my drivers license back! > > If I dont take the Keppra, I dont get my license > back. Any > suggestions or info on Keppra including personal > experience would be > greatly appreciated! > > Thanks, > > Carla in PA > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2004 Report Share Posted October 29, 2004 Elise, Where did you find that article as I would love to show it to my neuro. That is great news and I hope that it is right since, as you know, I also want to take off of the meds. He also tried to scare me once when I mentioned this to him. I also just found out from my in laws that my brother in law also had seizures while growing up and that he outgrew them without meds. I didn't know anyone in the family had seizures so this was a big shock to me. This, of course, doesn't mean that will also outgrow them, but I hope to God that she does. How's Josiah doing off the meds? I hope he's doing GREAT! Grace Elise Strong <elisestrong@...> wrote: Well, yes I agree, in a perfect world finding the perfect meds would be ideal. But, this being the " real " imperfect world- it's not as easy said as done. Josiah has been on four meds and had more seizures on those meds than with nothing (how's that for some grass fertilizer?) at this point I am told that we (as do all pt's who have failed at 2 or more meds) have a 10% chance of EVER getting a medication to work for us. So here we sit. trying alternative stuff, considering a diet option and trying to figure out whether psychosis will be better or worse than liver failure if we have to try drugs again. FYI I found two articles today at pub-med. Both concluded that roughly 50% of people with epilepsy will have it end on it's own with no intervention. Best of luck to each and every one of us and our kids. There is no pain like watching your child suffer and feeling powerless. aloha --- Traceygrubbs@... wrote: > Elise, > Someone once told me " It is like making a trail in > grass, if you keep walking > on it, it will stay bald but if you stop walking on > it , the grass will grow > back. > > Finding the right meds is the key. By controlling > the seizure " pathway " with > meds for an extended time will teach the brain not > to seize. > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2004 Report Share Posted October 29, 2004 Elise, Trust me, I know your frustrations and I know your pain (just thinking back brings tears to my eyes). My child started having seizures out of the blue at nine years old, nocturnal epilepsy (frontal lobe- the hardest kind to control). Eleven months my child had between 3 and 9 seizures a night, every night. I went through hell. The worst part was that b/c there are so many stupid doctors out there that have never heard of nocturnal seizures she went 4-5 months misdiagnosed. We went through if I remember right 5-6 meds, two at a time-nothing, I mean absolutely nothing helped. Mega side affects and still plenty of seizures. So, I know what it feels like when you are helpless and to top it off, the stupid doctors are saying there is nothing wrong with your child, you are the one with the problem. Elise, most of us in this group have experienced what you are going through right now. It is hell on earth. But don't give up hope and for God sakes don't deprive that child of meds, if he needs them. I know, I don't know your cicumstances all the way, but learn, find the info just as you are doing and make your self knowledgeable on treatment meds. Send me a fax number and I'll send you some info I found useful in decidding what meds to use with mine. We ended up with the combination of Depakote and Zonegram and she is not 100% seizure free but her seizures are down to a couple of seconds and they consist of a grunt. God bless, Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2004 Report Share Posted October 30, 2004 Tracey, You said that your son had nocturnal seizures, how did you find this out and what exactly was he doing during these seizures. Thanks! Grace Traceygrubbs@... wrote: Elise, Trust me, I know your frustrations and I know your pain (just thinking back brings tears to my eyes). My child started having seizures out of the blue at nine years old, nocturnal epilepsy (frontal lobe- the hardest kind to control). Eleven months my child had between 3 and 9 seizures a night, every night. I went through hell. The worst part was that b/c there are so many stupid doctors out there that have never heard of nocturnal seizures she went 4-5 months misdiagnosed. We went through if I remember right 5-6 meds, two at a time-nothing, I mean absolutely nothing helped. Mega side affects and still plenty of seizures. So, I know what it feels like when you are helpless and to top it off, the stupid doctors are saying there is nothing wrong with your child, you are the one with the problem. Elise, most of us in this group have experienced what you are going through right now. It is hell on earth. But don't give up hope and for God sakes don't deprive that child of meds, if he needs them. I know, I don't know your cicumstances all the way, but learn, find the info just as you are doing and make your self knowledgeable on treatment meds. Send me a fax number and I'll send you some info I found useful in decidding what meds to use with mine. We ended up with the combination of Depakote and Zonegram and she is not 100% seizure free but her seizures are down to a couple of seconds and they consist of a grunt. God bless, Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2004 Report Share Posted October 30, 2004 Grace, , my daughter, started out with what I thought were nightmares. She would sit up in the bed, eyes real wide and most of the time she would say " momma, momma ...They first thought it was night terrors. B/c honestly they looked like she woke up from a bad dream. But the worst part was, these were partial seizures she was having, they soon became generalized and lasted 5min. And as I mentioned, it was hell getting her diagnosed b/c in order for her to have a seizure she had to be asleep. We finally ended at Bowman Gray- Winston Salem, NC at the emergency room one night and I bassically told them that I was not leaving until they did something. They let her go to sleep right there in the ER and she had a total of 3 seizures withing about 2 1/2 hrs. and the doctor told me that he did not blame me for not taking her home. A couple of hours later we were on the epilepsy unit, she has frontal lobe seizures. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 Leela, Thank you for the advice. I will go exercise this afternoon, even though it seems like it will be the most difficult thing ever. I don't want to lose this guy, but you are right, perhaps the rain will help me see the sun shine brighter. Any other pieces of advice--friends are few and far between right now. Leela <leelawrites@...> wrote: Dear , I'm so sorry you're having such a rough week. Did something happen to trigger a recurrence of your depression?--the same thing happened to me a week ago when I moved to a new apartment, my depression came back. It was so frustrating and upsetting, just when I was started to feel good again. Once the initial stress was gone, it receded again. Maybe you've built up tolerance to your 15mg of Lex and need to raise it a bit. I hope you will talk to your doctor about your recurrence of depression--it's so difficult to deal with it alone! A relationship that's meant to be will survive an episode of depression, even if it causes temporary strain. I know it's really hard not to worry about it, but when you're depressed you have to focus on taking care of yourself. I thought I was doing terrible damage to my relationship with my latest episode of depression--but once I recovered we emerged closer than before. Everything looks so much worse when you're depressed. Some things that helped me out of my latest episode of depression: taking a break, doing positive things with friends, exercising, breaking tasks down into very small, manageable steps. I hope you feel better soon! Leela --- Moser wrote: > > I've been on lex for 6 months for depression. > Things were great for a while. The last few > days--horrible. How in goodness name do you explain > a disease like this to someone you love. The last > time I tried he left just as quickly as the words > can come out of my mouth. Now I am ruining a > wonderful relationship with my hopelessness and > inability to stop crying. I am so afraid of losing > him, it is making me sick to my stomach. How do all > of you find happiness in a relationship when you are > unable to find happiness in yourself? > > > alisonjoan@... wrote: > Dear , > > I am so sorry you are having such a hard week . > When did you start > taking lex would be my first question and also are > you taking it for > depression or anxiety or both? the reason I ask is > because I have been on > lex a little over a month and I noticed that I > cannot stop crying and I > feel depressed more often. I did not have that > before the lex. I am > taking it for anxiety. Really you need to tell your > dr. this is > happening to you. or have you? Please keep writing > here. I am here for > you . Alison > On Thu, 9 Dec 2004 05:30:21 -0800 (PST) Moser > writes: > > > > I am having a tough week--crying constantly, not > feeling happy at > > all ever, despondent, without hope, etc. I am > ruining a great > > relationship and my work is suffering. I talk to > my therapist--but > > it is a slow process. I am on 15 mg lex. Any > helpful ideas or > > words of advice? > > > > > > ruadhdarragh wrote: > > > > I am SO sorry to hear about all you've gone > through. I can't even > > imagine. I can try to offer hope, though. > > > > Before I started taking Lex, I was considering > just quitting my job, > > > > not applying to school for next year's term like I > had been planning > > > > to, the housecleaning was piling up, all I wanted > to do was sleep > > all > > day, etc. > > > > Since I started on the Lex I'm back to my old self > again, and I'm so > > > > glad I didn't make any rash decisions. I'm still > employed, > > application to school has been sent, and I can see > the floor again > > in > > my house. LOL > > > > Please encourage your wife not to make any > decisions just yet. For > > > > that matter, neither of you should make any big > decisions right now. > > > > Depression often wreaks havoc on our perception > and decision-making > > > > skills. > > > > Stick with the medication and the counselling. I > hope everything > > turns out for the best. > > > > Blessings > > > > > > > > > > My wife and I tried for 3 years to have > children. We finally > > found > > > out that we were pregnant last year at > Thanksgiving. We lost the > > > > > pregnancy at 11 weeks. Then we found out that > we were pregnant > > again > > > in July only to lose that one as well. > > > > > > My wife has slipped into depression and started > taking lexapro one > > > > > week ago. I also started two days after her. A > month a go she > > said > > > she was not sure if she loved me and was wanting > to consider a > > trial > > > separation. I am terrified about this. > > > > > > Anyway our counselor said that when suffering > from depression you > > can > > > question everything and can sometimes lose the > ability to love and > > > > > she maybe associating me with the sadness. > > > > > > I am looking for positive stories regarding > lexapro. I need to > > hear > > > good things to give me hope. Thanks for you > stories in advance. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 , I know that things seem very grim right now, but you just need to keep talking. Communication is the #1 way for you to let us know how you feel & how we can help you feel better. I am availible any time day or night to help support you & anyone else who needs someone to talk to. Lots & lots of love & huggs, __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2004 Report Share Posted December 10, 2004 It may sound silly, but something that helped me was looking for things to be thankful for. Some days this is a difficult thing, but I always manage to find something, even if it's just that the day is over. I keep a journal, and write one thing in it every day. It helps you to realize that there are still good things in your life, and helps you to focus a bit less on the negative things that are happening. Kathy > Leela, > Thank you for the advice. I will go exercise this afternoon, even though it seems like it will be the most difficult thing ever. I don't want to lose this guy, but you are right, perhaps the rain will help me see the sun shine brighter. Any other pieces of advice-- friends are few and far between right now. > > > Leela <leelawrites@y...> wrote: > > Dear , > > I'm so sorry you're having such a rough week. Did > something happen to trigger a recurrence of your > depression?--the same thing happened to me a week ago > when I moved to a new apartment, my depression came > back. It was so frustrating and upsetting, just when > I was started to feel good again. Once the initial > stress was gone, it receded again. > > Maybe you've built up tolerance to your 15mg of Lex > and need to raise it a bit. I hope you will talk to > your doctor about your recurrence of depression--it's > so difficult to deal with it alone! > > A relationship that's meant to be will survive an > episode of depression, even if it causes temporary > strain. I know it's really hard not to worry about > it, but when you're depressed you have to focus on > taking care of yourself. I thought I was doing > terrible damage to my relationship with my latest > episode of depression--but once I recovered we emerged > closer than before. Everything looks so much worse > when you're depressed. > > Some things that helped me out of my latest episode of > depression: taking a break, doing positive things > with friends, exercising, breaking tasks down into > very small, manageable steps. I hope you feel better > soon! > > Leela > > > > --- Moser wrote: > > > > > I've been on lex for 6 months for depression. > > Things were great for a while. The last few > > days--horrible. How in goodness name do you explain > > a disease like this to someone you love. The last > > time I tried he left just as quickly as the words > > can come out of my mouth. Now I am ruining a > > wonderful relationship with my hopelessness and > > inability to stop crying. I am so afraid of losing > > him, it is making me sick to my stomach. How do all > > of you find happiness in a relationship when you are > > unable to find happiness in yourself? > > > > > > alisonjoan@j... wrote: > > Dear , > > > > I am so sorry you are having such a hard week . > > When did you start > > taking lex would be my first question and also are > > you taking it for > > depression or anxiety or both? the reason I ask is > > because I have been on > > lex a little over a month and I noticed that I > > cannot stop crying and I > > feel depressed more often. I did not have that > > before the lex. I am > > taking it for anxiety. Really you need to tell your > > dr. this is > > happening to you. or have you? Please keep writing > > here. I am here for > > you . Alison > > On Thu, 9 Dec 2004 05:30:21 -0800 (PST) Moser > > writes: > > > > > > I am having a tough week--crying constantly, not > > feeling happy at > > > all ever, despondent, without hope, etc. I am > > ruining a great > > > relationship and my work is suffering. I talk to > > my therapist--but > > > it is a slow process. I am on 15 mg lex. Any > > helpful ideas or > > > words of advice? > > > > > > > > > ruadhdarragh wrote: > > > > > > I am SO sorry to hear about all you've gone > > through. I can't even > > > imagine. I can try to offer hope, though. > > > > > > Before I started taking Lex, I was considering > > just quitting my job, > > > > > > not applying to school for next year's term like I > > had been planning > > > > > > to, the housecleaning was piling up, all I wanted > > to do was sleep > > > all > > > day, etc. > > > > > > Since I started on the Lex I'm back to my old self > > again, and I'm so > > > > > > glad I didn't make any rash decisions. I'm still > > employed, > > > application to school has been sent, and I can see > > the floor again > > > in > > > my house. LOL > > > > > > Please encourage your wife not to make any > > decisions just yet. For > > > > > > that matter, neither of you should make any big > > decisions right now. > > > > > > Depression often wreaks havoc on our perception > > and decision-making > > > > > > skills. > > > > > > Stick with the medication and the counselling. I > > hope everything > > > turns out for the best. > > > > > > Blessings > > > > > > > > > > > > > > My wife and I tried for 3 years to have > > children. We finally > > > found > > > > out that we were pregnant last year at > > Thanksgiving. We lost the > > > > > > > pregnancy at 11 weeks. Then we found out that > > we were pregnant > > > again > > > > in July only to lose that one as well. > > > > > > > > My wife has slipped into depression and started > > taking lexapro one > > > > > > > week ago. I also started two days after her. A > > month a go she > > > said > > > > she was not sure if she loved me and was wanting > > to consider a > > > trial > > > > separation. I am terrified about this. > > > > > > > > Anyway our counselor said that when suffering > > from depression you > > > can > > > > question everything and can sometimes lose the > > ability to love and > > > > > > > she maybe associating me with the sadness. > > > > > > > > I am looking for positive stories regarding > > lexapro. I need to > > > hear > > > > good things to give me hope. Thanks for you > > stories in advance. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2005 Report Share Posted February 12, 2005 Hi Jody, Are you on any antibiotics? Have you seen or talked to the doctor who did the surgery? My husband was put on Floxin drops for post surgical infection. Please keep in mind that drainage after surgery is normal. Please contact the doctor who did the surgery. He/she should be able to put your mind at ease. I hope this isn't too hard considering that you are in Austrailia. Good luck to you and keep us posted. Michele, Group Moderator pottersgotthesnitch <bolter6@...> wrote: Me again,I am in desperate need of information about POST OP infection. I have had a mastoidectomy 31st Jan and ear is now infected.Has anyone had similar, I really need some help as to what I should be doing.ThanksJody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2005 Report Share Posted February 13, 2005 Jody: I would go and see your Doc again, the drange should be more of a clear fluid. Weither or not you have private ins or public the Doc should have done the same quality of a job regardless how he got payed. It would not hurt if after you see your Doc again if not happy with what you hear to get a 2nd opinion. Normally I would not be alarmed by the drainge as that will happen for about a year or so after a mastoidectomy but it should not be more green than clear. The blood would be normal to be mixed into the drainage especially this close to being post op... tom hansen --- Jody <bolter6@...> wrote: > Hi Michele, > > Thanks for the answer. I was experiencing blood > discharging from my ear but now the discharge is a > gunky green colour. It looks and feels the same as > when I suffered from chronic middle ear infection. > I went to the emergency department at the hospital > as my ear dr is on holidays. The other doctor who > operated did not come and have a look but told the > ER doctor to prescribe oral antibiotics just in > case. The ER doctor thought it looked infected > (it's actually pretty gross looking) but didn't want > to play around with it in case she got into trouble. > > All of a sudden I understand the value of private > health insurance!! > > Thanks for your help > Jody > > > " Humans have a knack for choosing precisely the > things that are worst for them. " - Albus Dumbledore > > > > Re: HELP please > > > Hi Jody, > > Are you on any antibiotics? Have you seen or > talked to the doctor who did the surgery? My > husband was put on Floxin drops for post surgical > infection. Please keep in mind that drainage after > surgery is normal. > > Please contact the doctor who did the surgery. > He/she should be able to put your mind at ease. I > hope this isn't too hard considering that you are in > Austrailia. Good luck to you and keep us posted. > > Michele, Group Moderator > > > pottersgotthesnitch <bolter6@...> wrote: > > Me again, > > I am in desperate need of information about POST > OP infection. > I have had a mastoidectomy 31st Jan and ear is > now infected. > > Has anyone had similar, I really need some help > as to what I should > be doing. > > Thanks > Jody > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2005 Report Share Posted February 13, 2005 Hi Jody The first time I had ctoma surgery, it was open cavity operation and the ear was filled with gauze packing. A couple of days post-surgery it stared to bleed quite heavily and I panicked and ran off to see my GP. He also found it alarming and sent me straight off to the hospital. They told me that such a thing was perfectly normal at this stage following surgery. A day or two later the drainage turned into a messy yellow-brown gunge (a mixture of blood and pus) and the packing became brittle and started to break off. Eventually the discharge turned into a clear liquid that had a curious medicinal smell to it and started to form crystals in the outer ear. It's worth checking with your doctor if only to ease your mind but I wouldn't be surprised if what you are experiencing isn't just part of the initial healing process. It's looks alarming because the ear is such a mess in the beginning. If your doctor isn't available it might be better just to go back to the clinic and talk to other ENT staff. They would know far more about what happens after ear surgery than a GP or doctor in A & E. It would save a lot of worry if the doctors told us what to expect imeediately after the surgery. Phil Hi Michele, Thanks for the answer. I was experiencing blood discharging from my ear but now the discharge is a gunky green colour. It looks and feels the same as when I suffered from chronic middle ear infection. I went to the emergency department at the hospital as my ear dr is on holidays. The other doctor who operated did not come and have a look but told the ER doctor to prescribe oral antibiotics just in case. The ER doctor thought it looked infected (it's actually pretty gross looking) but didn't want to play around with it in case she got into trouble. All of a sudden I understand the value of private health insurance!! Thanks for your help Jody "Humans have a knack for choosing precisely the things that are worst for them." - Albus Dumbledore Re: HELP please Hi Jody, Are you on any antibiotics? Have you seen or talked to the doctor who did the surgery? My husband was put on Floxin drops for post surgical infection. Please keep in mind that drainage after surgery is normal. Please contact the doctor who did the surgery. He/she should be able to put your mind at ease. I hope this isn't too hard considering that you are in Austrailia. Good luck to you and keep us posted. Michele, Group Moderator pottersgotthesnitch <bolter6@...> wrote: Me again,I am in desperate need of information about POST OP infection. I have had a mastoidectomy 31st Jan and ear is now infected.Has anyone had similar, I really need some help as to what I should be doing.ThanksJody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2005 Report Share Posted February 13, 2005 Hi Michele, Thanks for the answer. I was experiencing blood discharging from my ear but now the discharge is a gunky green colour. It looks and feels the same as when I suffered from chronic middle ear infection. I went to the emergency department at the hospital as my ear dr is on holidays. The other doctor who operated did not come and have a look but told the ER doctor to prescribe oral antibiotics just in case. The ER doctor thought it looked infected (it's actually pretty gross looking) but didn't want to play around with it in case she got into trouble. All of a sudden I understand the value of private health insurance!! Thanks for your help Jody "Humans have a knack for choosing precisely the things that are worst for them." - Albus Dumbledore Re: HELP please Hi Jody, Are you on any antibiotics? Have you seen or talked to the doctor who did the surgery? My husband was put on Floxin drops for post surgical infection. Please keep in mind that drainage after surgery is normal. Please contact the doctor who did the surgery. He/she should be able to put your mind at ease. I hope this isn't too hard considering that you are in Austrailia. Good luck to you and keep us posted. Michele, Group Moderator pottersgotthesnitch <bolter6@...> wrote: Me again,I am in desperate need of information about POST OP infection. I have had a mastoidectomy 31st Jan and ear is now infected.Has anyone had similar, I really need some help as to what I should be doing.ThanksJody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2005 Report Share Posted February 13, 2005 I had massive infection after my op back in 99, and was given double dose antibiotics. In any case, you need to see your GP. Kazzy :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Hi everyone, Thanks all for your help. It is much(!) appreciated, as you said Phil, it would help if they warned us about all this! I'm sure they did a great job during the op, it's getting someone to look at it now that has been the problem. My post op check is in one week and I feel better having had some advice from you guys (it really does help to know that your not the only one!). Thanks again Jody "Humans have a knack for choosing precisely the things that are worst for them." - Albus Dumbledore Re: HELP please Hi Jody, Are you on any antibiotics? Have you seen or talked to the doctor who did the surgery? My husband was put on Floxin drops for post surgical infection. Please keep in mind that drainage after surgery is normal. Please contact the doctor who did the surgery. He/she should be able to put your mind at ease. I hope this isn't too hard considering that you are in Austrailia. Good luck to you and keep us posted. Michele, Group Moderator pottersgotthesnitch <bolter6@...> wrote: Me again,I am in desperate need of information about POST OP infection. I have had a mastoidectomy 31st Jan and ear is now infected.Has anyone had similar, I really need some help as to what I should be doing.ThanksJody Quote Link to comment Share on other sites More sharing options...
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