help please

[Guest guest]

Dear

thanks for your e-mail, please can you send me the e-mail address for the

group ciug2004 please.

all the best from sean waiting in the uk.

Re: help please

Hello ,

I think almost everyone who has a CI would tell you to accept an offer of

implantation if you get one.

For most people,it provides an improvement in their ability to hear, although

the actual degree of benefit is not predictable.Since you obviously have a

hearing memory, your learning curve ought to be shorter than someone who has

always been deaf.

Given your described medical conditions, there could obviously be issues with

the implant surgery, which would be investigated if an offer is made.

I am also in the UK, and you might also benefit from joining the group

CIUG 2004, which has an almost exclusively UK based CI user membership.

One important point: when your hearing is tested, do not not guess or

improvise - if you don't hear it, say so: guessing can give a false high result

you do not want.

Hope to see you perhaps on CIUG2004.

>

[Guest guest]

I ahve Diabetes, high blood pressure.  Both are regulated with meds.  I don't

have kidney or heart problems or other things.  My implant has not affected

anything.  Your best bet is to confer with your General Physician.  Or your

Heart and Kidney specialist.

Have a great day!

Debbie Cole

From: Virg <jvtomlin@...>

Subject: Re: help please

Date: Monday, May 31, 2010, 6:55 PM

 

Hi ,

That's kind of a tough question to answer. Your doctor would be the best

one to ask re the diabetes, etc. The cochlear implant has given many of us

a new life with restored hearing. It doesn't provide perfect hearing but

when your hearing is bad enough to consider you eligible for an implant it's

likely to benefit you.

It provided me with the ability to once again converse with other people,

hear birds, etc.

Virg

> Dear Friends

>

> I had an hearing test on the 22nd may in manchester which is in the uk,

> the hearing is down in the right ear and I am on the boarderline for a

> cochlear implant, also I have diabetes and high blood prshure, kidney

> problems and problems with my heart, is this going to put me of having a

> cochlear implant done what are the prose and cons of the cochlear implant

> please, I hope some one can answer my questions.

>

> all the best from sean waiting in the uk.

>

>

>

[Guest guest]

Dear Debbie

thanks for your e-mail.

all the best from sean waiting.

Re: help please

Date: Monday, May 31, 2010, 6:55 PM

Hi ,

That's kind of a tough question to answer. Your doctor would be the best

one to ask re the diabetes, etc. The cochlear implant has given many of us

a new life with restored hearing. It doesn't provide perfect hearing but

when your hearing is bad enough to consider you eligible for an implant it's

likely to benefit you.

It provided me with the ability to once again converse with other people,

hear birds, etc.

Virg

> Dear Friends

>

> I had an hearing test on the 22nd may in manchester which is in the uk,

> the hearing is down in the right ear and I am on the boarderline for a

> cochlear implant, also I have diabetes and high blood prshure, kidney

> problems and problems with my heart, is this going to put me of having a

> cochlear implant done what are the prose and cons of the cochlear implant

> please, I hope some one can answer my questions.

>

> all the best from sean waiting in the uk.

>

>

>

[Guest guest]

Dear ,

I was borderline candidate for a CI too when my hearing was tested three years

ago, but without your other health issues. After much research (following this

CIhHear group, meeting other CI implantees) and just plain frustration with

hearing, I finally decided to get a Cochlear Nucleus 5 implant November 2009.

All in all, I'm happy I did.

That said, I'd say the biggest issue- and this was temporary- in getting a CI

was giving up my good residual hearing in the low frequencies. I hadn't realized

how dependent I had become on my residual hearing and lip reading skills to

make it through life. After I was implanted and my residual hearing was gone(my

surgeon guaranteed me a 60% chance of preserving it), I felt I was starting to

learn how to hear completely from scratch again. Ironically, I was able to

understand words immediately at activation day. But there was a time lag in my

brain between hearing the sound and understanding the word. The electronic and

high pitched nature of the sounds are very new to the brain, and it has to

figure out what to make out of those sounds. That's where the " success " varies

from person to person who gets a CI.

It's been 6 months now and I am starting to see the benefits of the CI:

Understanding conversation in noise, children's voices, birds, environmental

sounds, etc. The quality of the hi pitched sounds are superior to anything I

heard through a hearing aid. Music however, sounds scratchy-not pleasant. I hope

that will improve. Everyday, I see that my brain is getting better at

understanding the sounds that the CI is giving it. I do wonder though, how I may

have done with a Hybrid CI. One that is geared for individuals like myself who

have good residual hearing. , if you have good residual hearing, you may

want to discuss with your surgeon getting one- it may offer the best of both

worlds.

Cleo

>

> Dear Friends

>

> I had an hearing test on the 22nd may in manchester which is in the uk, the

hearing is down in the right ear and I am on the boarderline for a cochlear

implant, also I have diabetes and high blood prshure, kidney problems and

problems with my heart, is this going to put me of having a cochlear implant

done what are the prose and cons of the cochlear implant please, I hope some one

can answer my questions.

>

> all the best from sean waiting in the uk.

>

>

>

[Guest guest]

Web address for CIUG2004 is:

ciug2004/

or find it through via Health groups/ google

david

>

> Dear

>

> thanks for your e-mail, please can you send me the e-mail address for the

group ciug2004 please.

>

> all the best from sean waiting in the uk.

>

> Re: help please

>

>

>

>

>

>

[Guest guest]

Dear Dave

thanks for the e-mail address I will give it ago later.

all the best from sean waiting in the uk.

Re: help please

>

>

>

>

>

>

[Guest guest]

,

In terms of problems like this,a BTE processor is just like a hearing aid, as

its microphones behave in the same way.

Can you not perhaps slip a pad of foam between hat and ear, to hold the two

apart and eliminate the rubbing.

>

> Dear Friends

>

> I go horse riding one day a week and my hat is rubbingagainst my hearing aid

making a moise, I would like some ideas of how to stop it please I hope it is

not going to happen when I get my cochlear implant.

>

> all the best from sean waiting.

>

>

[Guest guest]

I put a 1 inch slice in my hat so I can put it on outside the hat.  You may

want to try that.

________________________________

From: bionear2 <bionear2@...>

Sent: Sat, June 19, 2010 3:34:31 PM

Subject: Re: help please

 

,

In terms of problems like this,a BTE processor is just like a hearing aid, as

its microphones behave in the same way.

Can you not perhaps slip a pad of foam between hat and ear, to hold the two

apart and eliminate the rubbing.

>

> Dear Friends

>

> I go horse riding one day a week and my hat is rubbingagainst my hearing aid

making a moise, I would like some ideas of how to stop it please I hope it is

not going to happen when I get my cochlear implant.

>

> all the best from sean waiting.

>

>

[Guest guest]

Dear

I did not think of that.

all the best from sean waiting.

Re: help please

,

In terms of problems like this,a BTE processor is just like a hearing aid, as

its microphones behave in the same way.

Can you not perhaps slip a pad of foam between hat and ear, to hold the two

apart and eliminate the rubbing.

>

> Dear Friends

>

> I go horse riding one day a week and my hat is rubbingagainst my hearing aid

making a moise, I would like some ideas of how to stop it please I hope it is

not going to happen when I get my cochlear implant.

>

> all the best from sean waiting.

>

>

[Guest guest]

Lucy,

I think you need you need to start considering non-wireless alternatives. You

shouldn't have any Wi-Fi for your computer. That can be wired, and the wireless

capability turned off.

It sounds daunting, to find alternative, non-wireless systems for your special

needs due to being deaf. That sounds very specialized. How did deaf people get

by, before electricity and wireless technologies? How did they get around these

housing issues?

All best wishes to you,

Sue

>

> Hello,

>

> I live in the UK and suffer from chronic fatigue with multiple chemical

sensitivity and electrical sensitivity and have frequent headaches, tinnitus,

disturbed sleep and brain fog.

>

> I'm deaf with a cochlear implant so am reliant on technology - the more so as

I live alone - both for safety and social contact.  

>

> Alongside the cochlear implant I use a Silent Alert 2000 system

(www.silent-alert.co.uk) which has phone, doorbell and smoke alarm transmitters

around the house. It has a vibrating pager that I need to wear during the day

and which is charged at night whilst attached to a vibrating pillow pad. I

have been advised that this is probably contributing to my problems and that I

should look for alternatives.

>

> I also have two Uniphones (textphones) for emergencies which require mains

power - one of these is beside my bed; an iMac with WiFi; microwave; tv, pvr dvd

and vhs player; etc. etc.    

>

> At present I use a Nokia smartphone for textmessages, email and internet

access for when I'm not well enough to sit at my iMac. (+ I would dearly love a

mac laptop or iPad - but that's another story!)

>

> I have a limited capacity to spend time researching online or to understand

technical information!

>

> I'm trying to limit my time online etc and would be very grateful if any of

you can advise me of any products that might help me offset the harmful effects

of unavoidable expose?

>

> Thankyou for your help,

>

> Kind Regards,

>

> Lucy

>

[Guest guest]

Dump the microwave. Most here watch TV, but I

don't see how an electrosensitive can be near

one. Try a 7 " portable DVD player for video

entertainment (run it on the battery). As for

computer use, limit your time on it to short

sessions - under an hour.

Some have said the imac is terrible, but I recently

spoke to a friend who said he can actually use

one for an hour a week. Most other computers are

intolerable to him. Just shows that we all have

our own specific sensitivities.

For sleep try melatonin 5 mg, liquid calcium and

a sleep aid. That usually puts me out. Alprazolam

also helps.

There's not much that can be done about the tinnitus

other than avoid EMF. TVs, computers, cell phones

and driving cars are the worst offenders for me. I do

notice that daily power drinks help my tinnitus:

- organic carrots

- broccoli

- organic apple

- spinach

- Dr. Kims Greens

- Vitamin C

- Jay Rob egg white protein mix.

- organic wild blueberries

- a banana

Blend it all with water in a Vita Mix 5200

Perhaps you can move that vibrating pillow to some other

contrivance. You want to protect your head from the EMF. That's

where most of our diffuse damage is.

Eli

>

> Hello,

>

> I live in the UK and suffer from chronic fatigue with multiple chemical

sensitivity and electrical sensitivity and have frequent headaches, tinnitus,

disturbed sleep and brain fog.

>

> I'm deaf with a cochlear implant so am reliant on technology - the more so as

I live alone - both for safety and social contact.  

>

> Alongside the cochlear implant I use a Silent Alert 2000 system

(www.silent-alert.co.uk) which has phone, doorbell and smoke alarm transmitters

around the house. It has a vibrating pager that I need to wear during the day

and which is charged at night whilst attached to a vibrating pillow pad. I

have been advised that this is probably contributing to my problems and that I

should look for alternatives.

>

> I also have two Uniphones (textphones) for emergencies which require mains

power - one of these is beside my bed; an iMac with WiFi; microwave; tv, pvr dvd

and vhs player; etc. etc.    

>

> At present I use a Nokia smartphone for textmessages, email and internet

access for when I'm not well enough to sit at my iMac. (+ I would dearly love a

mac laptop or iPad - but that's another story!)

>

> I have a limited capacity to spend time researching online or to understand

technical information!

>

> I'm trying to limit my time online etc and would be very grateful if any of

you can advise me of any products that might help me offset the harmful effects

of unavoidable expose?

>

> Thankyou for your help,

>

> Kind Regards,

>

> Lucy

>

[Guest guest]

Hi, Lucy

Try this site below  for usful advise as well.It will get better, just make

your sleeping environment as safe as possible to start with.

Best

Giles

http://www.es-uk.info/

From: jaime_schunkewitz <jaime_schunkewitz@...>

Subject: Re: Help please

Date: Monday, 28 June, 2010, 22:48

 

Dump the microwave. Most here watch TV, but I

don't see how an electrosensitive can be near

one. Try a 7 " portable DVD player for video

entertainment (run it on the battery). As for

computer use, limit your time on it to short

sessions - under an hour.

Some have said the imac is terrible, but I recently

spoke to a friend who said he can actually use

one for an hour a week. Most other computers are

intolerable to him. Just shows that we all have

our own specific sensitivities.

For sleep try melatonin 5 mg, liquid calcium and

a sleep aid. That usually puts me out. Alprazolam

also helps.

There's not much that can be done about the tinnitus

other than avoid EMF. TVs, computers, cell phones

and driving cars are the worst offenders for me. I do

notice that daily power drinks help my tinnitus:

- organic carrots

- broccoli

- organic apple

- spinach

- Dr. Kims Greens

- Vitamin C

- Jay Rob egg white protein mix.

- organic wild blueberries

- a banana

Blend it all with water in a Vita Mix 5200

Perhaps you can move that vibrating pillow to some other

contrivance. You want to protect your head from the EMF. That's

where most of our diffuse damage is.

Eli

>

> Hello,

>

> I live in the UK and suffer from chronic fatigue with multiple chemical

sensitivity and electrical sensitivity and have frequent headaches, tinnitus,

disturbed sleep and brain fog.

>

> I'm deaf with a cochlear implant so am reliant on technology - the more so as

I live alone - both for safety and social contact.  

>

> Alongside the cochlear implant I use a Silent Alert 2000 system

(www.silent-alert.co.uk) which has phone, doorbell and smoke alarm transmitters

around the house. It has a vibrating pager that I need to wear during the day

and which is charged at night whilst attached to a vibrating pillow pad. I

have been advised that this is probably contributing to my problems and that I

should look for alternatives.

>

> I also have two Uniphones (textphones) for emergencies which require mains

power - one of these is beside my bed; an iMac with WiFi; microwave; tv, pvr dvd

and vhs player; etc. etc.    

>

> At present I use a Nokia smartphone for textmessages, email and internet

access for when I'm not well enough to sit at my iMac. (+ I would dearly love a

mac laptop or iPad - but that's another story!)

>

> I have a limited capacity to spend time researching online or to understand

technical information!

>

> I'm trying to limit my time online etc and would be very grateful if any of

you can advise me of any products that might help me offset the harmful effects

of unavoidable expose?

>

> Thankyou for your help,

>

> Kind Regards,

>

> Lucy

>

[Guest guest]

Many thanks to you all for your suggestions - much appreciated.

From: jaime_schunkewitz <jaime_schunkewitz@...>

Subject: Re: Help please

Date: Monday, 28 June, 2010, 22:48

 

Dump the microwave. Most here watch TV, but I

don't see how an electrosensitive can be near

one. Try a 7 " portable DVD player for video

entertainment (run it on the battery). As for

computer use, limit your time on it to short

sessions - under an hour.

Some have said the imac is terrible, but I recently

spoke to a friend who said he can actually use

one for an hour a week. Most other computers are

intolerable to him. Just shows that we all have

our own specific sensitivities.

For sleep try melatonin 5 mg, liquid calcium and

a sleep aid. That usually puts me out. Alprazolam

also helps.

There's not much that can be done about the tinnitus

other than avoid EMF. TVs, computers, cell phones

and driving cars are the worst offenders for me. I do

notice that daily power drinks help my tinnitus:

- organic carrots

- broccoli

- organic apple

- spinach

- Dr. Kims Greens

- Vitamin C

- Jay Rob egg white protein mix.

- organic wild blueberries

- a banana

Blend it all with water in a Vita Mix 5200

Perhaps you can move that vibrating pillow to some other

contrivance. You want to protect your head from the EMF. That's

where most of our diffuse damage is.

Eli

>

> Hello,

>

> I live in the UK and suffer from chronic fatigue with multiple chemical

sensitivity and electrical sensitivity and have frequent headaches, tinnitus,

disturbed sleep and brain fog.

>

> I'm deaf with a cochlear implant so am reliant on technology - the more so as

I live alone - both for safety and social contact.  

>

> Alongside the cochlear implant I use a Silent Alert 2000 system

(www.silent-alert.co.uk) which has phone, doorbell and smoke alarm transmitters

around the house. It has a vibrating pager that I need to wear during the day

and which is charged at night whilst attached to a vibrating pillow pad. I

have been advised that this is probably contributing to my problems and that I

should look for alternatives.

>

> I also have two Uniphones (textphones) for emergencies which require mains

power - one of these is beside my bed; an iMac with WiFi; microwave; tv, pvr dvd

and vhs player; etc. etc.    

>

> At present I use a Nokia smartphone for textmessages, email and internet

access for when I'm not well enough to sit at my iMac. (+ I would dearly love a

mac laptop or iPad - but that's another story!)

>

> I have a limited capacity to spend time researching online or to understand

technical information!

>

> I'm trying to limit my time online etc and would be very grateful if any of

you can advise me of any products that might help me offset the harmful effects

of unavoidable expose?

>

> Thankyou for your help,

>

> Kind Regards,

>

> Lucy

>

[Guest guest]

I am not sure if yours had padding inside but on my motorcycle helmet my husband

made a small cut out in the padding to keep it from rubbing.

From: Waiting <sean.waiting@...>

Subject: help please

Date: Tuesday, July 6, 2010, 5:52 AM

 

Dear Friends

when I go horse riding my helmet keeps rubbing can any body please help, some

one did put a website address on this list or annother list but I can not find

it so if any body help me I would be very happy.

all the best from sean waiting in the uk.

[Guest guest]

I keep going on prescription antifungals and they work for a few months (the

brain fog clears, fatigue gets better, vision clears, etc) and then they quit

working.

I have a disease that complicates everything. I have gastroparesis, literally

paralysis of the stomach, so food moves food my digestive system very very

slowly. I have been on drugs for this with varying degrees of success.

So, I need help. I have to be an all liquid diet.... no solids. This is so

hard to do with a candida diet, and this candida is killing me. Right now I am

eating whey protein (lactose free) shakes with unsweetened coconut milk and a

nut butter twice a day, and veggie soup with butter and coconut milk in the

evenings. I have to keep my calories up or I face a feeding tube, which would

be horrible for the candida. I need 1500 calories a day and can only ingest

very little volume. I am also juicing green leafy veggies.

Any suggestions? These shakes used to make me feel fine, but now I feel I am

reacting to them.. I know that soy protein is bad. Not sure about the whey or

unsweetened coconut milk. Or the nut butter (almond, sunflower-seed). I have

two shakes a day and they each need to be around 750 calories. Blending meats

and veggies does not work.... I wish. Just too much for my tummy.

Please help!