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Steve,

Dr. Seastrunk used two drugs mainly. Neurontin first, and Lamictal second,

some people had wonderful responses to the Lamictal who did not do well with

the N. The downside of Lamictal is it can have a serious side effect called

- syndrome. Something to do with your skin, one of the few

dermatological emergencies apparently. If you get a rash while taking it,

you have to stop *immediately*. I've heard of some people doing well on

Depatoke (sp?) too.

Regards, .

PTSD

> From: " Dr. Steve " <moores@...>

>

> I have been looking at a new drug so that I can reduce my Neurontin. I

like what N does for me except for the edema. I understand that some have

had bad experiences with N & I have had some spells

> of that drunk feeling that folks talk about but it went away after a

while. The drug I am looking into is Topamax, I know that some who have

tried it (Mike here and others on the N web site) have

> found that T makes them sleepy. I just figure since I tolerate N

relatively well I might as well try T.

>

> T & N are both anti-seizure drugs and both make similar claims regarding

off-lable use -- both claim to be mood stabilizers and I think they are also

used in brain injury. One thing about T that

> may interest some is that it is also claimed to be a treatment for PTSD. I

recall that some individuals on this list have had a start or the relapse

of their CFS symptoms a traumatic experience. I

> also understand that other psych drugs are not effect in treating PTSD so

I thought this might of interest.

>

> I would appreciate any comments and I will let folks know how it goes. The

Topamax site is as follows.

>

> http://www.psycom.net/depression.central.topiramate.html

>

> Steve

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  • 2 years later...
Guest guest

Smile, you sound like me. My ex husband spent 3

tours in Nam, he was a Capt. in the Marines, he came

back certifiable. He had dreams also, about the

little children that had grenades etc... straped to

them and sent into the troops, and how they had to

shoot them. His good buddy picked one up and they

both died the child and him. You could not touch him

to wake him up, that is if you didn't want to get

slugged. He finally got out after being hit with

mortar in the abdomen. He was air lifted out from

Quang Tre (sp?)and after getting him stabilized he was

sent to Bethesda Naval Hospital, where he spent a

year. Thank G_D he did not get HCV.

Did you know if you burn the oleanders they give off

poisonuis fumes. When I was a kid we use to play with

the caterpillars off of Oleanders, they were orange

and black little things.

Yes, I am sure it was the fire with me. I don't

take anything now but the Elavil. The others always

seemed to make me feel worse.

Take Care, Connie

--- AVansi7465@... wrote:

> In a message dated 4/15/2002 12:34:53 PM Eastern

> Daylight Time,

> constance_clearwater_florida@... writes:

__________________________________________________

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Smile, you sound like me. My ex husband spent 3

tours in Nam, he was a Capt. in the Marines, he came

back certifiable. He had dreams also, about the

little children that had grenades etc... straped to

them and sent into the troops, and how they had to

shoot them. His good buddy picked one up and they

both died the child and him. You could not touch him

to wake him up, that is if you didn't want to get

slugged. He finally got out after being hit with

mortar in the abdomen. He was air lifted out from

Quang Tre (sp?)and after getting him stabilized he was

sent to Bethesda Naval Hospital, where he spent a

year. Thank G_D he did not get HCV.

Did you know if you burn the oleanders they give off

poisonuis fumes. When I was a kid we use to play with

the caterpillars off of Oleanders, they were orange

and black little things.

Yes, I am sure it was the fire with me. I don't

take anything now but the Elavil. The others always

seemed to make me feel worse.

Take Care, Connie

--- AVansi7465@... wrote:

> In a message dated 4/15/2002 12:34:53 PM Eastern

> Daylight Time,

> constance_clearwater_florida@... writes:

__________________________________________________

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In a message dated 4/15/2002 11:00:33 PM Eastern Daylight Time,

constance_clearwater_florida@... writes:

> Smile, you sound like me. My ex husband spent 3

> tours in Nam, he was a Capt. in the Marines, he came

> back certifiable. He had dreams also, about the

> little children that had grenades etc... straped to

> them and sent into the troops, and how they had to

> shoot them. His good buddy picked one up and they

> both died the child and him. You could not touch him

> to wake him up, that is if you didn't want to get

> slugged. He finally got out after being hit with

> mortar in the abdomen. He was air lifted out from

> Quang Tre (sp?)and after getting him stabilized he was

> sent to Bethesda Naval Hospital, where he spent a

> year. Thank G_D he did not get HCV.

> Did you know if you burn the oleanders they give off

> poisonuis fumes. When I was a kid we use to play with

> the caterpillars off of Oleanders, they were orange

> and black little things.

> Yes, I am sure it was the fire with me. I don't

> take anything now but the Elavil. The others always

> seemed to make me feel worse.

> Take Care, Connie

>

elavil is good, but just as a thought you might want to look into Klonopin.

It can be addictive, but we've all learned to take our meds correctly.

was at An Hoa. I think I spelled that right. The good news is that

neither of our husbands have HCV. If Lyndon made it to heaven and I

do too, I hope God grants us the ability to forgive.

Are the sides any better?

LOL,

Anne

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  • 5 months later...

Just to add to this:

Dr. Jay Goldstein -- who I don't necessarily endorse but do think has some

good ideas -- believe that trauma can predispose people to CFIDS because of

its effects on the limbic system. I am paraphrasing here, but trauma --

which often is the cause of PTSD -- is known to cause permanent brain

changes, just like a brain injury, so these connections make sense.

People who are survivors of severe trauma seem predisposed to a lot of

diseases, and it is important to look at the physiological factors of this --

survivors of trauma are blamed enough for their own circumstances. I was

thinking about how my friend -- who works with battered women -- noted that

many battered women seemed to suffer from CFIDS and fibromyalgia, and she was

wondering if I knew why (this is something that has been noted by researchers

as well). Then later I was reading a website for Chiari malformation, and

read a story about one battered woman who was brutally beaten on her head,

and then it suddenly occurred to me that many battered women must sustain

awful head injuries. I thought about it and realized that no CFIDS

researcher had made this connection.

Peggy

*********************************

web page: www.angelfire.com/ri/strickenbk

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  • 6 months later...
Guest guest

The approach I have found most useful is:

1. assess the client and brain (since PTSD is a pretty broad category)

2. train the items which seem most basic and which empirically have the best effect

3. finish the training with alpha/theta after the client has stabilized.

Pete

VanDeusen

Practical Brain Training.

305/251-0337

pvdadp@...

PTSD

Does anyone have an approach they find has worked well in treating PTSD?Thanks!Lynn

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Guest guest

Pete:

What is your preferred

method of doing Alpha/Theta in terms of software and setup?

Mark

RE: PTSD

The approach I have

found most useful is:

1. assess

the client and brain (since PTSD is a pretty broad category)

2. train

the items which seem most basic and which empirically have the best

effect

3. finish

the training with alpha/theta after the client has stabilized.

Pete

VanDeusen

Practical Brain

Training.

305/251-0337

pvdadp@...

PTSD

Does anyone have an approach they find has worked well

in treating PTSD?

Thanks!

Lynn

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It used to be using WaveWare, since this is obviously sound-based training. Now I tend to use BioExplorer and set up a sound for alpha over theta, one for theta over alpha and one for 2-5 Hz activity.

Pete

VanDeusen

Practical Brain Training.

305/251-0337

pvdadp@...

PTSD

Does anyone have an approach they find has worked well in treating PTSD?Thanks!Lynn

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Pete,

I know this is a very basic question but I am going to ask it anyway because I

am not sure of the answer:

When refering to alpha/theta training you say not to begin such training until

" after the brain has stabilized " --what constitutes stabilization?

Thanks,

-- RE: PTSD

>

T. Lindsey

mtlindsey@...

The approach I have found most useful is:

1. assess the client and brain (since PTSD is a pretty broad category)

2. train the items which seem most basic and which empirically have the best effect

3. finish the training with alpha/theta after the client has stabilized.

Pete

VanDeusen

Practical Brain Training.

305/251-0337

pvdadp@...

PTSD

Does anyone have an approach they find has worked well in treating PTSD?Thanks!Lynn

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Guest guest

Pete, how does this work exactly? Which are reward sounds? Thanks.

Foxx

----------

From: " VanDeusen " <pvdadp@...>

Subject: RE: PTSD

Date: Wed, May 14, 2003, 6:19 AM

It used to be using WaveWare, since this is obviously sound-based training. Now I tend to use BioExplorer and set up a sound for alpha over theta, one for theta over alpha and one for 2-5 Hz activity.

Pete

VanDeusen

Practical Brain Training.

305/251-0337

pvdadp@... <mailto:pvdadp@...>

PTSD

Does anyone have an approach they find has worked well in treating PTSD?

Thanks!

Lynn

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Guest guest

With Bio-Explorer I can set up multiple sounds in the same (or different) keys and in different voices, so they are all reward sounds. For example, in one of these protocols, there is a kind of drone chord in the key of C which plays louder or softer when alpha is higher or lower, so that is on most of the time. Then there is a higher, soft sound which is pitch variable that plays whenever theta is higher than alpha (crossover), kind of like drops of subconscious thought, and there is a deep rumbling sound which comes on (rarely) when 2-5 Hz activity rises too high. All are in the same key, so they fit together, but they are very different voices, so the brain easily distinguishes them.

Pete

Re: PTSD

Pete, how does this work exactly? Which are reward sounds? Thanks.Foxx

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Guest guest

I have a BrainMaster, and no other equipment. Could you explain how to do

this with the Bmr? And if it isn't really even possible, how much does this

other equipment cost?

Thanks!

Lynn

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Lynn,

The other items are software packages that work with a BrainMaster (among other machines).

You can do the training with a BrainMaster, but it is not as nice as with software which gives you more sound options (since A/T training is done with eyes closed). I believe I've outlined this earlier in the list, and I'm on the road now, so I can't re-do it at present. Perhaps someone else can do so.

Most important though, you should take a look at your alpha and theta levels at the P or O sites where you want to train and make sure you are producing alpha around 1.5 times theta. Otherwise you'll just do theta/theta training, which is NOT the same thing.

Pete

Re: PTSD

I have a BrainMaster, and no other equipment. Could you explain how to do this with the Bmr? And if it isn't really even possible, how much does this other equipment cost?Thanks!Lynn

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Guest guest

Would this be in the library that is being assembled?

> Re: PTSDWith Bio-Explorer I can set up multiple

sounds in the same (or different) keys and in different voices, so

they are all reward sounds. For example, in one of these protocols,

there is a kind of drone chord in the key of C which plays louder or

softer when alpha is higher or lower, so that is on most of the

time. Then there is a higher, soft sound which is pitch variable

that plays whenever theta is higher than alpha (crossover), kind of

like drops of subconscious thought, and there is a deep rumbling

sound which comes on (rarely) when 2-5 Hz activity rises too high.

All are in the same key, so they fit together, but they are very

different voices, so the brain easily distinguishes them.

>

> Pete

> Re: PTSD

>

>

> Pete, how does this work exactly? Which are reward sounds? Thanks.

>

> Foxx

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Steve,

I'm not sure exactly what you mean by "library that's being assembled". I'm working on a training CD that takes users through the program and teaches them (at least the parts of it that I have learned so far) about using it effectively. That will include a number of protocols. I know others are also working on protocol sets, and I'm sure a package of them will be released witt the final version of the program.

Pete

Re: PTSD> > > Pete, how does this work exactly? Which are reward sounds? Thanks.> > Foxx

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Pete,

Are you saying you are making a CD which teaches others how to use

Bio-explorer? I was wondering about how to be trained since it seems to be a

nice addition to the BM. Or how about a hands on training in LA area? Those

of us computer brain dead might need more practical, hand-holding kinds of

training.

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Yes, I'm working on a CD that I think will actually be easier than learning hands-on, since it demos on the screen exactly what you do (with voice over explanation). You could have it open in a window on your computer and be working with BioExp at the same time. It looks like I'll be able to package BioExplorer with the training materials at a reduced price as well.

Pete

Re: Re: PTSD

Pete, Are you saying you are making a CD which teaches others how to use Bio-explorer? I was wondering about how to be trained since it seems to be a nice addition to the BM. Or how about a hands on training in LA area? Those of us computer brain dead might need more practical, hand-holding kinds of training.

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Will this include consideration of Pocket neurobic?

> Yes, I'm working on a CD that I think will actually be easier than

learning hands-on, since it demos on the screen exactly what you do

(with voice over explanation). You could have it open in a window

on your computer and be working with BioExp at the same time. It

looks like I'll be able to package BioExplorer with the training

materials at a reduced price as well.

>

> Pete

> Re: Re: PTSD

>

>

> Pete,

>

> Are you saying you are making a CD which teaches others how to

use

> Bio-explorer? I was wondering about how to be trained since it

seems to be a

> nice addition to the BM. Or how about a hands on training in LA

area? Those

> of us computer brain dead might need more practical, hand-holding

kinds of

> training.

>

>

>

>

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I don't think Bio-Explorer particularly cares which hardware platform is driving it. There will be some segments which relate to specific platforms, but most relate to all.

Pete

Re: PTSD

Will this include consideration of Pocket neurobic?

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  • 2 months later...

Gene,

I like that about treating what is smaller first. I do consulting work, and

that's what I have been trying to get my clients to focus on - identify and

address some of your smaller issues first. They will seem less overwhelming,

you'll get used to the steps you have to take, and when you work on bigger

issues, they won't be quite as big because you broke through some of the

surrounding issues, and you'll be more used to the work that needs to be done,

and be

able to make more progress quicker and easier.

I had some great results to BF years ago, but they went away and I haven't

been able to regain them. I was using some EFT this morning to ask my body a

few questions, including where I should treat, and what frequencies, and how

many treatments in each location. I'm looking forward to getting started.

But here's my latest theory on why I no longer respond to what used to work:

That area is fixed. That probably was my less significant area, and is now

" cured " or stabilized. But that has allowed my next unstable area to become

more significant, and I need to address that one, then the next, and then the

next. And I think I have an assortment of unstable areas, so that telling folks

my symptoms doesn't really mean much. The symptoms seem pretty much the

same, but the area needing focus/care has changed.

Anyway, that's my latest theory, and we'll see if I get the results I'm

hoping for if I try the frequencies, locations and number of treatments my body

told me to do today via EFT. It's amazing how much the body knows if we just

learn to ask it and trust it!

Thanks!

Lynn

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  • 1 year later...

In a message dated 10/20/04 12:41:57 PM Mountain Daylight Time,

SSRI medications writes:

> Coping with bad memories may be pill away

> Researchers working on drugs that they say could prevent post-traumatic

> stress

>

Oh, great, another pill to cure me from the PTSD I got from taking Paxhell.

Are these people kidding???? I wish I coudl forget the horrible memories of

the nightmares I had, the ones where I eviscerated my loved ones, or the

memories of having been locked up against my will in a squirrel farm with people

who

drooled and peed in their pants. But take another drug. Uh, I don't think

so.

" Blind Reason "

a novel of pharmaceutical intrigue

Think your antidepressant is safe? Think again. It's

Unsafe At Any Dose

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In a message dated 10/20/04 12:41:57 PM Mountain Daylight Time,

SSRI medications writes:

> Coping with bad memories may be pill away

> Researchers working on drugs that they say could prevent post-traumatic

> stress

>

Oh, great, another pill to cure me from the PTSD I got from taking Paxhell.

Are these people kidding???? I wish I coudl forget the horrible memories of

the nightmares I had, the ones where I eviscerated my loved ones, or the

memories of having been locked up against my will in a squirrel farm with people

who

drooled and peed in their pants. But take another drug. Uh, I don't think

so.

" Blind Reason "

a novel of pharmaceutical intrigue

Think your antidepressant is safe? Think again. It's

Unsafe At Any Dose

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Share on other sites

  • 3 months later...

In a message dated 1/28/05 8:44:19 PM Mountain Standard Time,

SSRI medications writes:

> His grandfather has/had (we don't know him) severe PTSD from the

> Korean War. We believe our son has a genetic predisposition to PTSD.

> http://www.eurekalert.org/pub_releases/2002-09/mp-iot091702.php

>

HAHAHA! It never occurred to me that it was a typo! Please don't buy into

the genetic predisposition for PTSD. If YOU went through the Korean War, or

the Vietnam War, or WWII, or taken Paxil, or Prozac, or any drug that messed

with your mind, you'd have PTSD, too!! I have PTSD (my official disability dx)

from taking Paxil. There is NOBODY in my family with PTSD, but if someone is

traumatized severely enough, they will develop this disorder, genetic influence

or not. A few years ago all diseases were caused by bacteria. That proved

to be wrong. Now they want to prove that all diseases are genetically based.

They will be proven wrong on that too. The only NORMAL reaction to having

your mind scrambled and being tossed into an abyss of pure and utter hell would

be to develop PTSD. Ir really has nothing at all to do with predisposition.

" Blind Reason "

a novel of pharmaceutical intrigue

Think your antidepressant is safe? Think again. It's

Unsafe At Any Dose

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Glitter...i totally agree.

Predisposition IMHO is a load of bunk. What is more likely genetic....or

passed along...is the bad behavior that contributes to a particular dis-ease.

" diabetes runs in the family " .....well....no...probably a bad diet runs in the

family.

But especially with things like PTSD....its all based on personal experience.

> In a message dated 1/28/05 8:44:19 PM Mountain Standard Time,

> SSRI medications writes:

>

>

> > His grandfather has/had (we don't know him) severe PTSD from the

> > Korean War. We believe our son has a genetic predisposition to PTSD.

> > http://www.eurekalert.org/pub_releases/2002-09/mp-iot091702.php

> >

> HAHAHA! It never occurred to me that it was a typo! Please don't buy into

> the genetic predisposition for PTSD. If YOU went through the Korean War,

or

> the Vietnam War, or WWII, or taken Paxil, or Prozac, or any drug that

messed

> with your mind, you'd have PTSD, too!! I have PTSD (my official disability

dx)

> from taking Paxil. There is NOBODY in my family with PTSD, but if someone

is

> traumatized severely enough, they will develop this disorder, genetic

influence

> or not. A few years ago all diseases were caused by bacteria. That proved

> to be wrong. Now they want to prove that all diseases are genetically

based.

> They will be proven wrong on that too. The only NORMAL reaction to

having

> your mind scrambled and being tossed into an abyss of pure and utter hell

would

> be to develop PTSD. Ir really has nothing at all to do with predisposition.

>

>

> " Blind Reason "

> a novel of pharmaceutical intrigue

> Think your antidepressant is safe? Think again. It's

> Unsafe At Any Dose

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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Well I guess that is what you get when you call it PTSD and not POST

TRAUMATIC STRESS DISSORDER! Losses it's meaning somehow.. Didn't

Carlin do a bit about it all starting out as Shell-Shock?

Stella

Re: PTSD

In a message dated 1/28/05 8:44:19 PM Mountain Standard Time,

SSRI medications writes:

> His grandfather has/had (we don't know him) severe PTSD from the

> Korean War. We believe our son has a genetic predisposition to PTSD.

> http://www.eurekalert.org/pub_releases/2002-09/mp-iot091702.php

>

HAHAHA! It never occurred to me that it was a typo! Please don't buy into

the genetic predisposition for PTSD. If YOU went through the Korean War, or

the Vietnam War, or WWII, or taken Paxil, or Prozac, or any drug that messed

with your mind, you'd have PTSD, too!! I have PTSD (my official disability

dx)

from taking Paxil. There is NOBODY in my family with PTSD, but if someone

is

traumatized severely enough, they will develop this disorder, genetic

influence

or not. A few years ago all diseases were caused by bacteria. That proved

to be wrong. Now they want to prove that all diseases are genetically

based.

They will be proven wrong on that too. The only NORMAL reaction to having

your mind scrambled and being tossed into an abyss of pure and utter hell

would

be to develop PTSD. Ir really has nothing at all to do with predisposition.

" Blind Reason "

a novel of pharmaceutical intrigue

Think your antidepressant is safe? Think again. It's

Unsafe At Any Dose

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