rash?

[Guest guest]

Whoever is asking about the rash, Skyler and I are very well aquainted with it.

The rash is seen only in Systemic cases of JRA [stills disease] and is often

called a 'stills rash'. If you have any questions about it write me. We have

been used for photographic record for this rash now at two hospitals and I can

get links to a web site with a variety of stills sufferers showing their rash.

~

Re: Whats normal?

NO I am not in the same situation, but the JrA rash is a a salmon colored

rash, usually (circular)?, and srtangely enough it migrates before your eyes.

I have never seen it, but I have heard of it. Also Have you has his eyes

checkrd by an opthamalogist?? SHU Good Luck

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[Guest guest]

Hi

The rash you hear about mostly happens with the systemic children,

also known as still disease. It's a salmon coloured rash that would

appear just before Jordan's (5 systemic) fever would begin to rise.

It would cover the trunk of his body, up to his shoulders, wasn't

itchy, then would disappear as quick as it came as the fever went

down. When he was in the hospital and we didn't know what he had,

the nurses would ask me about a rash, and anytime that I looked at

him, of course he didn't have it. I did finally see what they were

talking about, and his ped happened to be in that night checking on

another child, and we called him in to look. That kinda cinched it

for him when he saw it, he said that's a " salmon rash " , very

consistent with a type of JRA, but didn't expand on it as he wasn't a

rheumatologist.

You can see what this rash looks like at:

http://www.stillsdisease.org/ These pictures are on adults,

but our kids get them too.

Hope this helps

Lori mom of Jordan 5 - systemic

> Hi all,

>

> I can tell it's gonna be another one of those winters here in New

> England - already ice in the horses water buckets!!!

>

> I have a question for all of you. I notice that some of your posts

> include symptoms of a rash. What does this rash look like? The

only

> rash Hannah has ever had was on her arms and trunk over this last

> summer. The doc said it looked like a contact dermatitis. It was

> tiny red dots, slightly raised, but it last about 2 weeks and

> benadryl did not touch it at all. It was not ichy either. Can

> someone inform me? This is the first I have heard about a rash

with

> JRA.

>

> Thanks,

>

> (Hannah, 10yr, CVID, JRA, Asthma)

[Guest guest]

Hi there,

My daughter has had systemic jra since she was 9 months and she will be 8 in december. She was in remission for a short time and is now flaring, my point being that i just recently took some great "rash" pics to show her doc, if anyone wants to see them, email me direct and i will send them to you, or i dunno georgina want to put them in with other pics?? AJ

[Guest guest]

hi my son brandon who now is 13 was diagnosed with systemic jra at age

of 6. but from the time he was 6 months he would get undiagnosed fevers

he was hospitalized at 6-9-months with high fevers,but could never find

a cause just chalk it up to virus. At about 3 we noticed rash lacey

looking at times, prickly heat looking at times, this lasted forever,

children in are area were getting something called 5th disease that had

a rash, figured maybe roseolla they said. brandon was never a very

active child, we would tell him to do something he would go half way up

steps sit down, spent a lot of time in room coloring, never rode his

bike, or roller bladed, we just figure he was lazy. Then just a few

days after he started kindergarten, he got sick fever sore throat,

common flu signs, took him to dr. sinus infection which he had many,

and flu he said, antibiotic, but on the way home he said mommy. u know

that thing daddy7 uses for his back, when we get home can i use it on my

knees they really hurt me. before we even got home he was in awful

pain. i called dr. they said again flu let the meds. work. that was on

a weds, thurs he was better and fri. u would never know he was sick,

went to school had a wonderful day, sat we all over slept, he had a

party to go to i went passed his room said he get up, he asked for

something to drink, i said ge up and get it your self, his reply was i

can't move and he started to trash from side to side, i ran in his room

you could smell him burning his fever was so high, call dr not in

called insurance co. they saw=id i had to wait hour for response from

on-call i said go to hell, to him to ER,they were so busy waited 4

hours to see dr. they were taking care of him, ice blanket, iv, blood

tests but dr was busy working another child seizing who later that day

died in pittsburgh childrens hospital. brandon was admitted and

diagnosed jra, but they could not get him therapeutic, giving him 49

baby aspirin aday so after 6 day the sent him to wvu hospital in

morgantown wv, no jra dr there so they call rainbow childrens hosp.

in cleveland, ohio spoke to dr. there who sad sounds like a classic case

of stills disease, so they put him on 650 ml of ecotrin 4 times a day

and 1000 mlg of naperson daily after 7 day he was up and around the

flood around heart and all seemed to be gone he now could walk, so home

we went, two days later we went back to dr for a salisate level, brandon

was readmitted to our local hospital, now in those two days we were home

i did my own research calling nord. and ppl i thought might be able to

help, i found a boy who lived 2 miles away from us who had poly, his

parent were great to us they told he of this dr. in children hospital

columbus ohio who they took there son to who was a child jra dr. well

when brandon was re admitted to our hospital for evaluation,i asked to

go there they said no insurance wouldn't cover. well i truly think god

intervened that day , later that day brandon got critical he was semi-

coma he could not see, didn't know anyone our dr. was scared to death,

well brandon was than critical cared to columbus asap. so we got to see

this dr. robert rennenbogh,at first not for jra, because brandon was

dying on us that day from aspirin poisoning. they were giving him 3-1/2

times the dosage a child should have for his age, they told us

conditions were here for him to die. but god got us there to see this

dr. it took him several days to really evaluate bran because all the

aspirin in his body suppressed symptoms, we from critical care unit to

intensive care unit too the floor, we were in 4 hospital in 46 days i

forgot where we lived but this dr. rennbough is wonderful brandon has

never really reach a full remission level sedrated always in 30-40

percent when he was flaring they were 130, his lower mandibular jaw

hasn't grow , $6000.00 for orthodontist, we haven't had many major

flare ups over last3-4 yrs puberty they say will tell if he carries it

in to adult life, thank od he is a late bloomer. but this year brandon

decided he was going to wrestle for his jr high( his older brother who

is 32 was 3 time state wrestling champ) brandon never won a match, but

he gave it his all, right now he is playing football, i watch him run

afew steps and than kind of skip to relieve stress on knees when no one

is watching, is team hasn't won a game, but he says he's having a ball,

and every mam needs a football injury to tell about when they get old.

haha,typical man huh, bran takesno meds now, only when he's flaring and

napohexion dosn't work, than we go back on predisone, or meto. now that

i wrote this novel, i thank u for listening any questions just yell

[Guest guest]

Hi,My son has systemic onset JRA,meaning the disease affects his whole

body,fevers,rash,and organ inflamation.Rash sounds very familiar,before

was diagnosed he had a bike accident and fell in the wet grass.We thought he

sprained his ankle and had a contact rash on his leg.It didnt itch either and

benadryl didnt help at all.As his disease got worse his rash got worse also

it started as slightly raised red spots and at times looked like prickley

heat,then it progressed to large areas of his skin would be bright red and

welty by the time he got in to see rheumy he had long welts covering his back

he was covered in huge hives all over his body and small salmon colerd spots

everywhere that were transient(they moved around)Now that he receives

treatment he mainly gets a rash that looks like heat rash and the pale pink

spots called (rheumatoid rash)I hope more people respond because I think the

other types of JRA can cause a rash also.Try taking a pen and circling one

or two spots in the morning and see if they disapear or move duiring the day.

I hope i have helped a little.

Becki and 3systemic

mwheel99@... wrote:

> Hi all,

>

> I can tell it's gonna be another one of those winters here in New

> England - already ice in the horses water buckets!!!

>

> I have a question for all of you. I notice that some of your posts

> include symptoms of a rash. What does this rash look like? The only

> rash Hannah has ever had was on her arms and trunk over this last

> summer. The doc said it looked like a contact dermatitis. It was

> tiny red dots, slightly raised, but it last about 2 weeks and

> benadryl did not touch it at all. It was not ichy either. Can

> someone inform me? This is the first I have heard about a rash with

> JRA.

>

> Thanks,

>

> (Hannah, 10yr, CVID, JRA, Asthma)

>

> For links to websites about arthritis and JRA, visit:

> http://www.geocities.com/Heartland/Village/8414/Links.html

>

>

[Guest guest]

,

The rash that accompanies systemic jra in my daughters case was not like that. It is sort of salmon colored and raised blotches. I used to say when it was full blown that she looked like she had been beaten with a horse whip. At times it was itchy and other times not. Now when she gets slight rash flare ups, it is not so bright, and not all over her body; just arms, legs, back, and stomach. I am so thankful that she no longer gets it on her face. I'm not sure what the pin point rash is. Maybe other systemic kids have presented like that. Good luck.

Christy

[Guest guest]

hello my name is karen and my daughter is 16 and was diagnosed with poly

jra..in Dec'89 with polyarticular jra. First sign of it was a stiff neck..of

course me not knowing any better thought it was from sleeping wrong..or

something. Well then the wonderful high fevers started..so i took her to

Somerset hospital(er) and was told she had a sore throat..i said no..she

tells me when her throat hurts..so they took blood, xrays of neck and a

middle finger she had bruised on a swing that didn't go down. Was in their a

week, then off to pittsburgh childrens hospital...the reason i responded to

your post is i can't believe that happened with the baby

aspirins..prescribing them for the jra or the fevers. See when Tabitha first

went to Pitts. children hospital the doctor she had at the time prescribed

her to take 32 baby aspirins a day..which is only 2 from a full bottle(i

think) all i know is there was only 2 left in the bottle. Tab started

getting nose bleeds for hours at a time..this was like 4 or 5 times a day(to

many to remember) so i made the decision myself..and stopped the aspirin i

figured her bleeding to death wasn't going to help things at all.

So I didn't go back there..well in return i got turned in to children

services..which was a blessing because they found this other doctor at

pitts. children hospital that was terrific. No baby aspirins were

prescribed..lol.

She now goes to hershey med. hospital because it is alot closer..Tabitha

also has had a tough life but it sure sounds like your son was blessed with

the same attitude she has. All the kids i have heard of and also, i have met

some with some kind of jra..are fighters and will go on life but with an

extra push..because they know that no matter what life goes on.

Hope i didn't ramble or bore ya..lol! Welcome to the group!

Take care and good luck

karen(tabitha16..poly)

From: PHIX-IT@...

Reply-

Subject: Re: rash?

Date: Tue, 9 Oct 2001 19:48:37 -0400 (EDT)

hi my son brandon who now is 13 was diagnosed with systemic jra at age

of 6. but from the time he was 6 months he would get undiagnosed fevers

he was hospitalized at 6-9-months with high fevers,but could never find

a cause just chalk it up to virus. At about 3 we noticed rash lacey

looking at times, prickly heat looking at times, this lasted forever,

children in are area were getting something called 5th disease that had

a rash, figured maybe roseolla they said. brandon was never a very

active child, we would tell him to do something he would go half way up

steps sit down, spent a lot of time in room coloring, never rode his

bike, or roller bladed, we just figure he was lazy. Then just a few

days after he started kindergarten, he got sick fever sore throat,

common flu signs, took him to dr. sinus infection which he had many,

and flu he said, antibiotic, but on the way home he said mommy. u know

that thing daddy7 uses for his back, when we get home can i use it on my

knees they really hurt me. before we even got home he was in awful

pain. i called dr. they said again flu let the meds. work. that was on

a weds, thurs he was better and fri. u would never know he was sick,

went to school had a wonderful day, sat we all over slept, he had a

party to go to i went passed his room said he get up, he asked for

something to drink, i said ge up and get it your self, his reply was i

can't move and he started to trash from side to side, i ran in his room

you could smell him burning his fever was so high, call dr not in

called insurance co. they saw=id i had to wait hour for response from

on-call i said go to hell, to him to ER,they were so busy waited 4

hours to see dr. they were taking care of him, ice blanket, iv, blood

tests but dr was busy working another child seizing who later that day

died in pittsburgh childrens hospital. brandon was admitted and

diagnosed jra, but they could not get him therapeutic, giving him 49

baby aspirin aday so after 6 day the sent him to wvu hospital in

morgantown wv, no jra dr there so they call rainbow childrens hosp.

in cleveland, ohio spoke to dr. there who sad sounds like a classic case

of stills disease, so they put him on 650 ml of ecotrin 4 times a day

and 1000 mlg of naperson daily after 7 day he was up and around the

flood around heart and all seemed to be gone he now could walk, so home

we went, two days later we went back to dr for a salisate level, brandon

was readmitted to our local hospital, now in those two days we were home

i did my own research calling nord. and ppl i thought might be able to

help, i found a boy who lived 2 miles away from us who had poly, his

parent were great to us they told he of this dr. in children hospital

columbus ohio who they took there son to who was a child jra dr. well

when brandon was re admitted to our hospital for evaluation,i asked to

go there they said no insurance wouldn't cover. well i truly think god

intervened that day , later that day brandon got critical he was semi-

coma he could not see, didn't know anyone our dr. was scared to death,

well brandon was than critical cared to columbus asap. so we got to see

this dr. robert rennenbogh,at first not for jra, because brandon was

dying on us that day from aspirin poisoning. they were giving him 3-1/2

times the dosage a child should have for his age, they told us

conditions were here for him to die. but god got us there to see this

dr. it took him several days to really evaluate bran because all the

aspirin in his body suppressed symptoms, we from critical care unit to

intensive care unit too the floor, we were in 4 hospital in 46 days i

forgot where we lived but this dr. rennbough is wonderful brandon has

never really reach a full remission level sedrated always in 30-40

percent when he was flaring they were 130, his lower mandibular jaw

hasn't grow , $6000.00 for orthodontist, we haven't had many major

flare ups over last3-4 yrs puberty they say will tell if he carries it

in to adult life, thank od he is a late bloomer. but this year brandon

decided he was going to wrestle for his jr high( his older brother who

is 32 was 3 time state wrestling champ) brandon never won a match, but

he gave it his all, right now he is playing football, i watch him run

afew steps and than kind of skip to relieve stress on knees when no one

is watching, is team hasn't won a game, but he says he's having a ball,

and every mam needs a football injury to tell about when they get old.

haha,typical man huh, bran takesno meds now, only when he's flaring and

napohexion dosn't work, than we go back on predisone, or meto. now that

i wrote this novel, i thank u for listening any questions just yell

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Christy,I replied to also ,but your post helped me. was diagnosed

late june of this year,he also looked like he had been horse whipped,he

was also covered in HUGE hives all over his body and face.Now that s

on prednisilone he only gets the salmon spots,sometimes small,red raised

welts especially when arthur is being nasty and his rash does present itself

as prickley heat he had it all under his chin and neck mon at rheumy.The

one thing I dont understand he has it all the time,sometimes you have to

hunt for it,but you always find something.

Becki and 3systemic

gazelle34@... wrote:

,

The rash that accompanies systemic

jra in my daughters case was not like that. It is sort of salmon colored

and raised blotches. I used to say when it was full blown that she looked

like she had been beaten with a horse whip. At times it was itchy and other

times not. Now when she gets slight rash flare ups, it is not so bright,

and not all over her body; just arms, legs, back, and stomach. I am so

thankful that she no longer gets it on her face. I'm not sure what the

pin point rash is. Maybe other systemic kids have presented like that.

Good luck.

Christy

For links to websites about arthritis

and JRA, visit:

http://www.geocities.com/Heartland/Village/8414/Links.html

[Guest guest]

Hi there PHIX-IT, my mane is, well I go by the handle of Rusty Limbs ,

because I've had jra since I was 13 and I'm, well lets just say its more

than double your brandons' age, plus a few years! Sounds like you've got

a guy with a lot of heart and courage there. But then since I first

jouned the group, I've come to realize that there isn't any of these

kids, in this group that doesn't have a heart the size of the moon and

more courage, than 100 solders in battle.

It never seases to amaze me the abundance of courage these young people

display, in dealing with this decease.

God Bless them all!

Rusty Limbs creaking in Michigan!

33 yrs. survivor of jra!

[Guest guest]

I am really surprised at the use of aspirin in young children. 20 years ago when

I first worked as a Navy Corpsman on a pediatric ward I was taught that we

stopped giving aspirin to children because of the risk of Reyes Syndrome - which

I knew a lot about then - but my memory fails me now.

Val

Rob's Mom (4,systemic)

In a message dated Wed, 10 Oct 2001 10:25:29 AM Eastern Daylight Time, " karens

tribe " <nutsomom5@...> writes:

> hello my name is karen and my daughter is 16 and was diagnosed with poly

> jra..in Dec'89 with polyarticular jra. First sign of it was a stiff neck..of

> course me not knowing any better thought it was from sleeping wrong..or

> something. Well then the wonderful high fevers started..so i took her to

> Somerset hospital(er) and was told she had a sore throat..i said no..she

> tells me when her throat hurts..so they took blood, xrays of neck and a

> middle finger she had bruised on a swing that didn't go down. Was in their a

> week, then off to pittsburgh childrens hospital...the reason i responded to

> your post is i can't believe that happened with the baby

> aspirins..prescribing them for the jra or the fevers. See when Tabitha first

> went to Pitts. children hospital the doctor she had at the time prescribed

> her to take 32 baby aspirins a day..which is only 2 from a full bottle(i

> think) all i know is there was only 2 left in the bottle. Tab started

> getting nose bleeds for hours at a time..this was like 4 or 5 times a day(to

> many to remember) so i made the decision myself..and stopped the aspirin i

> figured her bleeding to death wasn't going to help things at all.

> So I didn't go back there..well in return i got turned in to children

> services..which was a blessing because they found this other doctor at

> pitts. children hospital that was terrific. No baby aspirins were

> prescribed..lol.

> She now goes to hershey med. hospital because it is alot closer..Tabitha

> also has had a tough life but it sure sounds like your son was blessed with

> the same attitude she has. All the kids i have heard of and also, i have met

> some with some kind of jra..are fighters and will go on life but with an

> extra push..because they know that no matter what life goes on.

> Hope i didn't ramble or bore ya..lol! Welcome to the group!

> Take care and good luck

> karen(tabitha16..poly)

>

>

> From: PHIX-IT@...

> Reply-

>

> Subject: Re: rash?

> Date: Tue, 9 Oct 2001 19:48:37 -0400 (EDT)

>

> hi my son brandon who now is 13 was diagnosed with systemic jra at age

> of 6. but from the time he was 6 months he would get undiagnosed fevers

> he was hospitalized at 6-9-months with high fevers,but could never find

> a cause just chalk it up to virus. At about 3 we noticed rash lacey

> looking at times, prickly heat looking at times, this lasted forever,

> children in are area were getting something called 5th disease that had

> a rash, figured maybe roseolla they said. brandon was never a very

> active child, we would tell him to do something he would go half way up

> steps sit down, spent a lot of time in room coloring, never rode his

> bike, or roller bladed, we just figure he was lazy. Then just a few

> days after he started kindergarten, he got sick fever sore throat,

> common flu signs, took him to dr. sinus infection which he had many,

> and flu he said, antibiotic, but on the way home he said mommy. u know

> that thing daddy7 uses for his back, when we get home can i use it on my

> knees they really hurt me. before we even got home he was in awful

> pain. i called dr. they said again flu let the meds. work. that was on

> a weds, thurs he was better and fri. u would never know he was sick,

> went to school had a wonderful day, sat we all over slept, he had a

> party to go to i went passed his room said he get up, he asked for

> something to drink, i said ge up and get it your self, his reply was i

> can't move and he started to trash from side to side, i ran in his room

> you could smell him burning his fever was so high, call dr not in

> called insurance co. they saw=id i had to wait hour for response from

> on-call i said go to hell, to him to ER,they were so busy waited 4

> hours to see dr. they were taking care of him, ice blanket, iv, blood

> tests but dr was busy working another child seizing who later that day

> died in pittsburgh childrens hospital. brandon was admitted and

> diagnosed jra, but they could not get him therapeutic, giving him 49

> baby aspirin aday so after 6 day the sent him to wvu hospital in

> morgantown wv, no jra dr there so they call rainbow childrens hosp.

> in cleveland, ohio spoke to dr. there who sad sounds like a classic case

> of stills disease, so they put him on 650 ml of ecotrin 4 times a day

> and 1000 mlg of naperson daily after 7 day he was up and around the

> flood around heart and all seemed to be gone he now could walk, so home

> we went, two days later we went back to dr for a salisate level, brandon

> was readmitted to our local hospital, now in those two days we were home

> i did my own research calling nord. and ppl i thought might be able to

> help, i found a boy who lived 2 miles away from us who had poly, his

> parent were great to us they told he of this dr. in children hospital

> columbus ohio who they took there son to who was a child jra dr. well

> when brandon was re admitted to our hospital for evaluation,i asked to

> go there they said no insurance wouldn't cover. well i truly think god

> intervened that day , later that day brandon got critical he was semi-

> coma he could not see, didn't know anyone our dr. was scared to death,

> well brandon was than critical cared to columbus asap. so we got to see

> this dr. robert rennenbogh,at first not for jra, because brandon was

> dying on us that day from aspirin poisoning. they were giving him 3-1/2

> times the dosage a child should have for his age, they told us

> conditions were here for him to die. but god got us there to see this

> dr. it took him several days to really evaluate bran because all the

> aspirin in his body suppressed symptoms, we from critical care unit to

> intensive care unit too the floor, we were in 4 hospital in 46 days i

> forgot where we lived but this dr. rennbough is wonderful brandon has

> never really reach a full remission level sedrated always in 30-40

> percent when he was flaring they were 130, his lower mandibular jaw

> hasn't grow , $6000.00 for orthodontist, we haven't had many major

> flare ups over last3-4 yrs puberty they say will tell if he carries it

> in to adult life, thank od he is a late bloomer. but this year brandon

> decided he was going to wrestle for his jr high( his older brother who

> is 32 was 3 time state wrestling champ) brandon never won a match, but

> he gave it his all, right now he is playing football, i watch him run

> afew steps and than kind of skip to relieve stress on knees when no one

> is watching, is team hasn't won a game, but he says he's having a ball,

> and every mam needs a football injury to tell about when they get old.

> haha,typical man huh, bran takesno meds now, only when he's flaring and

> napohexion dosn't work, than we go back on predisone, or meto. now that

> i wrote this novel, i thank u for listening any questions just yell

>

>

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

>

>

>

> For links to websites about arthritis and JRA, visit:

> http://www.geocities.com/Heartland/Village/8414/Links.html

>

>

[Guest guest]

Wow, Phix-it-Our story sounds almost the same, but yours happened years ago when they probably didn't even really know what it was or what to do. Luckily, we are in almost the best of times for medicines and doctors knowledge. My daughter is only 7, I hope it goes away. I really don't want to think that I'll be here 6 years from now, still reading and watching and wondering.

Pat & (1 year Systemic)

[Guest guest]

In a message dated 1/12/04 12:47:58 PM Eastern Standard Time,

sylvan_luvr@... writes:

<<

The Stills Rash has been described as Erethyma

Multiforma [sp?]. It rather unique & appears

something like mild ringworm in appearance in that the

outer edge of each spot is darker red while the center

can be light pink or allmost normal. It will appear

suddenly and seem to move across the body allmost

visibly. In an hour or two it can appear, be gone and

found visible on other parts of the body. Primarily

it appears on the trunk, legs & upper arms. In some

cases it itches. In some intense episodes it will

leave a sort of shadow for several days or a few weeks

afterwards. >>

Hi :

Thanks for the description of the Still's rash. It's the best one I have

seen. I keep looking at Caitlin's rash and wonder is it or isn't it. Time will

tell I guess.

Take care.

Patty

[Guest guest]

Is histamine release involved in the rash? Quercetin might help with it if

so. J.

Re: benadryl

Not Saul:) But the first question was in general I think.. so....

personally, if it was me, I wouldn't take any over the counter anti-itch

medications at all. It might give you relief from the itch, but it will only

be suppressing your symptoms and adding to your toxic load in the long run.

Temporary relief with long term loss in my opinion. Have you tried protease?

It really helped me to ease the itch. Saul has a list of things that can

ease the itch without interfereing with the healing process.

Sherri-Lee

Looking for safe and natural health products?

http://www.aloeessence.com

[Guest guest]

Rash is NOT common for ... There are a couple of children here at the

site who do get rashes... I am sure their parents will comment. However just

to let you know it is NOT a common symptom... at least the rashes described

are for the most part different... no common thread....

God Bless,

Fran

PS Has your child been genetically tested and is this the first rash like

the one you see today?

Fran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

[Guest guest]

Rash is NOT common for ... There are a couple of children here at the

site who do get rashes... I am sure their parents will comment. However just

to let you know it is NOT a common symptom... at least the rashes described

are for the most part different... no common thread....

God Bless,

Fran

PS Has your child been genetically tested and is this the first rash like

the one you see today?

Fran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

[Guest guest]

Hi although they have told me that my son probably does not have , we

are still trying to diagnose his problem. We have been seen DR at

Stanford and he ran a bunch of tests which came back negative, thank God!!! Two

doctors diagnosed him with and two have said it sounds like he does not

have

it. I stay on this board to read if there are any similar symptoms between

my son and others. Back to your rash question, my son gets rashes with almost

every fever. He also gets mouth sores with or without fevers (every month) I

attached a picture of one kind of rash he gets, if you can see it is a purple

rash, up close it looks like someone poked him with a needle filled with

purple ink. Normally his rashes are red, raised and about an inch long. They

are

almost always on his back. Unfortunately I do not have a picture of that

one. What does your child rashes look like?

Have a great day

Ang

[Guest guest]

Hi although they have told me that my son probably does not have , we

are still trying to diagnose his problem. We have been seen DR at

Stanford and he ran a bunch of tests which came back negative, thank God!!! Two

doctors diagnosed him with and two have said it sounds like he does not

have

it. I stay on this board to read if there are any similar symptoms between

my son and others. Back to your rash question, my son gets rashes with almost

every fever. He also gets mouth sores with or without fevers (every month) I

attached a picture of one kind of rash he gets, if you can see it is a purple

rash, up close it looks like someone poked him with a needle filled with

purple ink. Normally his rashes are red, raised and about an inch long. They

are

almost always on his back. Unfortunately I do not have a picture of that

one. What does your child rashes look like?

Have a great day

Ang

[Guest guest]

Robin

Thanks for the response!

Do you think the rash could be related to the height of the fever?? Or an

allergy? Just wondering?

Is it still there today??

Fran

Fran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

[Guest guest]

Robin

Thanks for the response!

Do you think the rash could be related to the height of the fever?? Or an

allergy? Just wondering?

Is it still there today??

Fran

Fran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

[Guest guest]

Looks like my picture didn't attach. Does anyone know how to do it??? I

attached file and then it downloaded it. Let me know if it does not download

and

how I might be able to do it.

Thanks

[Guest guest]

Looks like my picture didn't attach. Does anyone know how to do it??? I

attached file and then it downloaded it. Let me know if it does not download

and

how I might be able to do it.

Thanks

[Guest guest]

Hi,

Sometimes Ata's mouth smells very bad in the good times as he's sick.Have you

experienced that? Beside that we've faced this type of rash problems a few times

as Robin .But I think it is random. The attack times may affect the child

negatively Because my son's skin is very sensitive.He sweats so much in the

normal times and much more during decrease of fever after using medicine.

Begüm,Ata's mother (23 months)

Re: rash?

Robin

Thanks for the response!

Do you think the rash could be related to the height of the fever?? Or an

allergy? Just wondering?

Is it still there today??

Fran

Fran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

[Guest guest]

Hi,

Sometimes Ata's mouth smells very bad in the good times as he's sick.Have you

experienced that? Beside that we've faced this type of rash problems a few times

as Robin .But I think it is random. The attack times may affect the child

negatively Because my son's skin is very sensitive.He sweats so much in the

normal times and much more during decrease of fever after using medicine.

Begüm,Ata's mother (23 months)

Re: rash?

Robin

Thanks for the response!

Do you think the rash could be related to the height of the fever?? Or an

allergy? Just wondering?

Is it still there today??

Fran

Fran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

[Guest guest]

Oh, thanks Fran. Well, maybe she can give me her email if she would like to

see it. It sounds different from the rash that her child has.

Have a great day

[Guest guest]

Oh, thanks Fran. Well, maybe she can give me her email if she would like to

see it. It sounds different from the rash that her child has.

Have a great day