Guest guest Posted May 4, 1999 Report Share Posted May 4, 1999 My mother was diagnosed with pancreatic cancer and was treated by a doctor in Long Beach, CA (30 miles from Burbank) who has a rather aggressive approach to treatment of cancer. He takes a biopsy of the persons cancer and separates the fluids into several petrie dishes. He then experiments with various combinations of chemo treatments to determine which combination has the most impact on the cancerous cells, yet least impact on the good cells. The rationale is that we all have a unique chemistry and require a unique combination of drugs to bring the cancerous cells into remission. My mother was making great progress and the last test prior to her non-cancer related death showed a decrease in cancerous cells. Also, the doctor gave HOPE, which is so critical to the mental state of the patient. The name of the office is Rational Therapeutics, Dr. Nagorney. He can be reached at 562.989.6455. Website is //www.rational-T.com. Good luck Tom ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 1999 Report Share Posted May 4, 1999 sometimes people can beat lung cancer...but it's a tough one, and the statistics aren't good. My mom died of it....I forget what kind...she did chemo, and it wrecked her. I think...find out the statistical chance she would have with chemo...sometimes they experiment on them you know. Sometimes chemo works, but sometimes ti wrecks you. If the doctors are saying 2 to 4 months to live, then they can't really help her with their chemo or whatever. I know someone whose uncle was given short time to live and he lived for 4 years doing Chinese medicine. Check out Dr. Zhang's web site...he has success treating hepatitis...he treats cancer also...he is in New York and has web site. They gave my mom platinum...she lost her hearing and eyesight...but she was dying...cancer spread to her liver, and she was gone within 4 days. My mom smoked for many years, quit at 52, died at 60. They experimented on her with experimental drugs...they zapped all her energy...horrible...But check on the statistics...I wish I could suggest something...I don't know what to say for cancer, as I'm struggling with hep myself, but I'm doing acupuncture and herbs with a Chinese TCM with good results, improved energy, liver function, etc. I don't know about cancer right now. I would look up Naturopathic doctors an D.O.s on the web, contact as many of them as you can, and ask them for advice. Contact the alternative wellness clinics...there must be some that have web sites...do a search on the web...find cancer email groups...there might be an alternative one...you can find out how different people fared on alternative treatments versus traditional. You gotta do some fast research...the web is great for that....contact everybody you can.... I was going to one for ozone. But the results were slow. My enzymes lowered. But it sure didn't lower my viral load...or cure me. The Chinese medicine got rid of back pain, chronic fatigue, and many things. If she does do chemo, she can do chinese medicine to deal with the side effects....Acupuncture is good...Fell on tailbone and pain cured after 3 acupuncture treatments...also heel spur in foot is gone...fatigue is gone...after treatments for just udner 2 months, twice a week with Chinese TCM doctor. Good luck. Hang in there. I know how difficult this is.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 1999 Report Share Posted May 5, 1999 Doctors that use 714X, per Burton Goldberg's book " Alternative Medicine Definitive Guide go Cancer " include: Atkins NY, NY 212-758-2110 Etienne Callebout London, England 44-171-467-8300 fax 44-171-467-8312 Lawrence in Mexico, but Chula Vista contact number is 888-422-7434 (not sure if he uses it, but has precautions when using it: ie; when using 714X, don't take Vit E or Vit B12 at the same time) If you can get this book at a local library or bookstore, it has good info. If not, let me know an address or fax and I can send you relevant pages on it. They list top doctors and give info on their therapies. For a good clinic in Mexico, contact Manner Clinic at 877-676-5000 and tell the Cancer Cure Foundation referred you for a discount. Melinda www.cancure.org Cancer Cure Foundation ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 1999 Report Share Posted May 5, 1999 Dusan Stojkovic writes: After reading all the messages that I have got, my conclusion is that there has been some misunderstanding about the author of the " Re:PLEASE HELP ME " message. Though I have sent this message to the groups, I did not write that message ! I got that message from <mkmz01@...> and as message begins with " Please send this out to everyone.. " I did it. I sent it to " " , " oxyplus " , " cures for cancer " . As I have instructed <mkmz01@...> to join the groups in order to receive your answers, please send your answers to the groups or directly to the <mkmz01@...>. Please, do not send answers to my address <dusan@...>. I do not have time to forward all your messages to <mkmz01@...>. Thank you for understanding and for helping to <mkmz01@...>. Dusan Stojkovic Norway Here is the original messsge that I have received: _______________________________________________________________ _______________________________________________________________ From: mkmz01@... Date: Mon, 3 May 1999 18:10:35 -0500 (CDT) dusan@... Subject: Re:PLEASE HELP ME X-Mailer: Netcomplete v4.0, from NETCOM On-Line Communications, Inc. Please send this out to everyone...I NEED YOUR HELP BADLY AND IN A HURRY. MY MOM HAS BEEN GIVEN 2-4 MONTHS TO LIVE. The doctors have just diagnosed small cell lung cancer that may have spread to her skull and beyond. She has been healthy and into herbs and vitamins for years. However, she stated smoking at 13 and didn't stop until into her 50's she lives in Burbank CA, which has recently come out as the most toxic/highest cancer rate in entire LA area. She is being frightened/cooreresed into chemo, but this violatess everything she has ever believed and she feel forced according to what she is telling me. Well meaning family members are putting a lot of presure, as are the doctors, on her. I need facts, figures, test result, studies to help us support the possition of alternative treatment we have heard wonderful things about oxygen/ozone therapy out of Germany, but have not been able to find supporting data. Also about a Dr.Stanislaw Burzinski in houson, Tx, but the I have been tring to reach the number listed in a book for him, for 3 weeks with only a message promising a speedy cxall back and st6ill nothing. Ifear time is running out PLEASE HELP ME IF YOU CAN. I CAN'T TYPE MY TERROR AND PAIN. PLEASE SOMEONE, PLEASE HELP. _______________________________________________________________ _______________________________________________________________ ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 1999 Report Share Posted May 5, 1999 Dusan Stojkovic writes: After reading all the messages that I have got, my conclusion is that there has been some misunderstanding about the author of the " Re:PLEASE HELP ME " message. Though I have sent this message to the groups, I did not write that message ! I got that message from <mkmz01@...> and as message begins with " Please send this out to everyone.. " I did it. I sent it to " " , " oxyplus " , " cures for cancer " . As I have instructed <mkmz01@...> to join the groups in order to receive your answers, please send your answers to the groups or directly to the <mkmz01@...>. Please, do not send answers to my address <dusan@...>. I do not have time to forward all your messages to <mkmz01@...>. Thank you for understanding and for helping to <mkmz01@...>. Dusan Stojkovic Norway Here is the original messsge that I have received: _______________________________________________________________ _______________________________________________________________ From: mkmz01@... Date: Mon, 3 May 1999 18:10:35 -0500 (CDT) dusan@... Subject: Re:PLEASE HELP ME X-Mailer: Netcomplete v4.0, from NETCOM On-Line Communications, Inc. Please send this out to everyone...I NEED YOUR HELP BADLY AND IN A HURRY. MY MOM HAS BEEN GIVEN 2-4 MONTHS TO LIVE. The doctors have just diagnosed small cell lung cancer that may have spread to her skull and beyond. She has been healthy and into herbs and vitamins for years. However, she stated smoking at 13 and didn't stop until into her 50's she lives in Burbank CA, which has recently come out as the most toxic/highest cancer rate in entire LA area. She is being frightened/cooreresed into chemo, but this violatess everything she has ever believed and she feel forced according to what she is telling me. Well meaning family members are putting a lot of presure, as are the doctors, on her. I need facts, figures, test result, studies to help us support the possition of alternative treatment we have heard wonderful things about oxygen/ozone therapy out of Germany, but have not been able to find supporting data. Also about a Dr.Stanislaw Burzinski in houson, Tx, but the I have been tring to reach the number listed in a book for him, for 3 weeks with only a message promising a speedy cxall back and st6ill nothing. Ifear time is running out PLEASE HELP ME IF YOU CAN. I CAN'T TYPE MY TERROR AND PAIN. PLEASE SOMEONE, PLEASE HELP. _______________________________________________________________ _______________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 1999 Report Share Posted June 6, 1999 The website for Cancell is: http://www.best.com/~handpen?Cancell/cancell. I am taking this as a preventative and my husband is taking it to prevent a recurrence of Non-Hodgkins lymphoma, which he had two years ago. This stuff works! I live in Michigan where we have a very strong support group. We personally kow of many people it has helped. Please look into it. Let me know if you need additional info. Marcie MSUMMERS11@... ------------------------------------------------------------------------ eGroups.com home: cures for cancer - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 1999 Report Share Posted June 7, 1999 In addition to the eMail you intended for Rodney, I also received the message below. I told you I live in Clinton Twp. but failed to give you my eMail address. It is hcfrancala@.... I also failed to mention that I was going to try Dr. ph Gold's regimen, namely hydrazine sulfate. I have some but have not started it yet. Another consideration is the program offered by Genesis Laboratories located in Warren, MI but I have not been in contact with them yet. <<In a message dated 6/6/99 10:21:02 AM Eastern Daylight Time, MSUMMERS11@... writes: << Subj: Re: Re:PLEASE HELP ME Date: 6/6/99 10:21:02 AM Eastern Daylight Time From: MSUMMERS11@... Reply-to: cures for canceregroups cures for canceregroups The website for Cancell is: http://www.best.com/~handpen?Cancell/cancell. I am taking this as a preventative and my husband is taking it to prevent a recurrence of Non-Hodgkins lymphoma, which he had two years ago. This stuff works! I live in Michigan where we have a very strong support group. We personally kow of many people it has helped. Please look into it. Let me know if you need additional info. Marcie MSUMMERS11@... ------------------------------------------------------------------------ FREE email Newsletters delivered right to your in-box. CNET, USAToday, RollingStone, and more… Click Here Now! http://clickhere./click/314 eGroups.com home: cures for cancer - Simplifying group communications ----------------------- Headers -------------------------------- Return-Path: <cures for cancer-return-1256-hcfrancala=aol.comreturns (DOT) > Received: from rly-zc04.mx.aol.com (rly-zc04.mail.aol.com [172.31.33.4]) by air-zc01.mail.aol.com (v59.34) with SMTP; Sun, 06 Jun 1999 10:21:02 2000 Received: from ml. (ml. [207.138.41.146]) by rly-zc04.mx.aol.com (8.8.8/8.8.5/AOL-4.0.0) with SMTP id KAA15154 for <hcfrancala@...>; Sun, 6 Jun 1999 10:21:01 -0400 (EDT) Received: from [10.1.1.22] by ml. with NNFMP; 06 Jun 1999 15:19:16 -0000 Mailing-List: contact cures for cancer-owneregroups X-Mailing-List: cures for canceregroups X-URL: list/cures for cancer/ Reply-cures for canceregroups Delivered-listsaver-egroups-cures for canceregroups Received: (qmail 28919 invoked by uid 7770); 6 Jun 1999 14:19:13 -0000 Received: from imo27.mx.aol.com (198.81.17.71) by vault. with SMTP; 6 Jun 1999 14:19:13 -0000 Received: from MSUMMERS11@... (14455) by imo27.mx.aol.com (IMOv20) id aUKRa13485 for <cures for canceregroups>; Sun, 6 Jun 1999 10:18:53 -0400 (EDT) From: MSUMMERS11@... Message-ID: <8262a2c7.248bdd4c@...> Date: Sun, 6 Jun 1999 10:18:52 EDT cures for canceregroups MIME-Version: 1.0 X-Mailer: AOL 4.0 for Windows sub 11 Subject: Re: Re:PLEASE HELP ME Content-Type: text/plain; charset= " us-ascii " Content-Transfer-Encoding: 7bit >> ------------------------------------------------------------------------ eGroups.com home: cures for cancer - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Hang tough girl. Get to the doctor and get on the right meds and then go directly to cognitive therapy. Do not do anything else. Do not stop, do not get distracted from your goal. And most importantly PRAY. Pray like you have never prayed in your life. God bless you. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Liz, What a miserable day you have had! Take a deep breath, perhaps have a nap, and start again. There isnt much else I can suggest to you, you understand what you need to do. I would like to suggest that you join a list which may be helpful to you: LIST NAME: OCDSupport CONTACT: Dana Zellers - dana@... SUBSCRIBE: /subscribe/OCDSupport PURPOSE: Extended support community for ocd sufferers MEMBERSHIP: Individuals with OCD DESCRIPTION: This list provides a support environment for those suffering from OCD. Postings can range in topic from symptoms to strategies, or any other OCD-related support area needed. Can be used in conjuction with the OCD-L list. Please, only those suffering from OCD (Obsessive Compulsive Disorder) are asked to join. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ wendy in canada ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Dear Liz, Feelings aren't fact. Feelings will pass. Say an affirmation " My life is unfolding as it should " . You're getting " flooded " right now, take a deep breath, try and detach and let it float by. This WILL pass and you ARE okay. The feeling that nothing is ever right is just a feeling. Feelings aren't fact. Feelings will pass. Hold on. Write more if you need to. You are okay. Love and Peace Dana in NC CHeErGaL02@... wrote: > From: CHeErGaL02@... > > Hi. Well, I have never really written to the list when I am upset, but here > goes. My OCD is getting out of hand and I don't know what to do. I am so > depressed and anxious, and miserable, and I can't stand it anymore. Today, I > bitched out the social worker that helps me because she wouldn't help me with > a ritual. Then I left a message for her two hours ago, but she hasn't called > back. Oh my gosh! OK, well, I don't know what to do. Do any of you have any > ideas? Right now I am so depressed, and so so so very sick of my life, and > how nothing is ever right. Today, I wrote a paragraph over 4 times, and I > handed it in, feeling like it is horrible. I hope someone has an idea for me. > Thanks. > -Liz > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 In a message dated 1/28/00 1:27:49 AM !!!First Boot!!!, PWe2904102@... writes: << Hang tough girl. Get to the doctor and get on the right meds and then go directly to cognitive therapy. Do not do anything else. Do not stop, do not get distracted from your goal. And most importantly PRAY. Pray like you have never prayed in your life. God bless you. Sue >> I'm trying. I am supposed to go to therapy tomorrow, but I was going to have my mom cancel it. I guess I should go, though. Thanks for responding! I am going to pray. -Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 Hi Liz: It sounds like your OCD is going through a waxing phase right now. How I help my son when this happens for him is first we say that things seem like they are a bit rough right now and that soon the waning phase will come and things will be easier. Then we look at getting some exercise going, a walk, a hike, a run, hitting wiffle ball, pulling weeds. Others have written about the HALTE approach, the E is the exercise part. I usually check this first before the hungry, anxious, lonely and tired part. If you recognize these worries and emotions are OCD sending error messages with your brain and not the real you this can help with your feelings of depression and upset. It is time to treat yourself and remember how precious you are and how you need TLC even more than usual right now. Reward yourself with one fun thing every day, this can be very simple, sitting outdoors with the sun on your face, picking a fragrant flower and sniffing it a while, petting a cat, etc. Please write again and let us know how you are doing. This is a good time to call your p-doc and see if a medication adjustment is in order. Take care, aloha, kathy (H) kathyh@... At 05:57 PM 01/27/2000 EST, you wrote: >From: CHeErGaL02@... > >Hi. Well, I have never really written to the list when I am upset, but here >goes. My OCD is getting out of hand and I don't know what to do. I am so >depressed and anxious, and miserable, and I can't stand it anymore. Today, I >bitched out the social worker that helps me because she wouldn't help me with >a ritual. Then I left a message for her two hours ago, but she hasn't called >back. Oh my gosh! OK, well, I don't know what to do. Do any of you have any >ideas? Right now I am so depressed, and so so so very sick of my life, and >how nothing is ever right. Today, I wrote a paragraph over 4 times, and I >handed it in, feeling like it is horrible. I hope someone has an idea for me. >Thanks. >-Liz > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 Liz: Please do not cancel your therapy appointment. Can you talk to your Mom and let her know how upset you are? If not, please call a crisis hotline to discuss your feelings. While prayer is useful, it sounds like you need some outside help and support. Do you have another adult (teacher, minister, aunt, grandparent) that you can talk to? Please, please get some help. You don't need to go through this feeling all alone. There are medications that can change your life. But you need to reach out. Jule Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 In a message dated 1/28/00 8:33:42 AM !!!First Boot!!!, kathyh@... writes: << Hi Liz: It sounds like your OCD is going through a waxing phase right now. How I help my son when this happens for him is first we say that things seem like they are a bit rough right now and that soon the waning phase will come and things will be easier. Then we look at getting some exercise going, a walk, a hike, a run, hitting wiffle ball, pulling weeds. Others have written about the HALTE approach, the E is the exercise part. I usually check this first before the hungry, anxious, lonely and tired part. If you recognize these worries and emotions are OCD sending error messages with your brain and not the real you this can help with your feelings of depression and upset. It is time to treat yourself and remember how precious you are and how you need TLC even more than usual right now. Reward yourself with one fun thing every day, this can be very simple, sitting outdoors with the sun on your face, picking a fragrant flower and sniffing it a while, petting a cat, etc. Please write again and let us know how you are doing. This is a good time to call your p-doc and see if a medication adjustment is in order. Take care, aloha, kathy (H) kathyh@... >> Thanks for responding. You had some good advice. I have another question. I know that this is a list for parents of kids with OCD, and I am a kid with OCD. I just would like to know how you help your kids deal with it at school, and stuff? Thanks! -Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2000 Report Share Posted January 29, 2000 In a message dated 1/28/00 4:36:08 PM !!!First Boot!!!, j.monnens@... writes: << Liz: Please do not cancel your therapy appointment. Can you talk to your Mom and let her know how upset you are? If not, please call a crisis hotline to discuss your feelings. While prayer is useful, it sounds like you need some outside help and support. Do you have another adult (teacher, minister, aunt, grandparent) that you can talk to? Please, please get some help. You don't need to go through this feeling all alone. There are medications that can change your life. But you need to reach out. Jule >> I am on Paxil, but I guess that it isn't working. I've been on it since November. My mom called my doctor, and I think that he is going to give me Buspar, which should help. My mom wouldn't let me cancel my therapy appointment, and we are leaving in an hour and a half. -Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2000 Report Share Posted January 29, 2000 HI Liz: When Steve was very sick with his OCD we did not send him to school as it was too much. As he started to get better we sent him back to school but negotiated accommodations with the school through the " 504 " process which can protect children and teens with OCD in school. We also talked to his teachers, counselor and administrators about his OCD and how it might affect his schoolwork. We had to work hard on regular communication with the school about what was going on re: homework, interactions with teachers and other classmates, OCD symptoms interfering with school, etc. This we did with a dog-tag system with the teachers and us signing off on it every day. What kinds of things at school would you like to get help with? We explained to the teachers how hard dealing with teasing was for Steve, and how he might need to take a time out and leave the classroom and go to a safe place. As he got better, we asked the teachers to treat him just like the other kids pretty much no matter what. We still ask them to communicate regularly with us about how he is doing. Another thing that helped was to get Steve's CBT therapist to come and talk to the teachers and administrators at the school. This way they accepted there really was something the matter, otherwise Steve was very good at hiding his problems with OCD. After struggling to keep his OCD under wraps at school all day he would be very tired and come home in a really crabby condition and just fall apart. A lot of the time we encourage Steve about how well he has learned to " boss " OCD around. This helps him keep determined to control his OCD in the ways he has learned through CBT. Sometimes we have to remind him something is OCD, because it just sneaks up on him and seems nothing unusual. IT really helped us to learn a lot about OCD and how to help Steve, there is a lot a family can do to help their beloved OCDer. Take care, aloha, Kathy (H) kathyh@... You wrote: >Thanks for responding. You had some good advice. I have another question. I >know that this is a list for parents of kids with OCD, and I am a kid with >OCD. I just would like to know how you help your kids deal with it at school, >and stuff? Thanks! >-Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2000 Report Share Posted January 29, 2000 I just got a 504, and so far it has been working out pretty well. I just get so stressed at school, because I want to go to Cornell for college, and it is so hard to get in! I am such a perfectionist. It drives me crazy! I am in all advanced classes, and I have a B in Advanced Chemistry and it making me feel horrible! -Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2000 Report Share Posted January 29, 2000 In a message dated 1/29/00 10:58:58 PM !!!First Boot!!!, kathyh@... writes: << HI Liz: Very good job dealing with the anxiety with your B. If you can, try to think of it as some exposure therapy. My son, Steve, also has these problems with perfectionism. I think the meds and CBT have really helped a lot - he is not nearly as worried about good grades as he was. We feel very guilty because we are very grade-oriented parents and have been feeding his OCD for years! He is always pleased when he does well and we say a B represents the balance in his life. That is great that the 504 is working well. Would you share with us what accommodations you find most useful? Take care, aloha, Kathy H) kathyh@... >> Let's see. One of the best accommodations is not having to use the scantron sheets for tests. I get so stuck with the circles, and it is simply to hard. SAT and ACT may let me have accommodations, which will really help my scores. If I need to, I will also get more time on tests, but I don't need that often, if I don't have to use the scantron thing. I also need to be limited on my work, because I do too much, in efforts to please the teacher. My 504 says I can go to the counselor if I need to, but lately it has become a problem, because I go too much. It is like a compulsion now, and if no one can talk to me, I get angry. -Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2000 Report Share Posted January 29, 2000 HI Liz: Very good job dealing with the anxiety with your B. If you can, try to think of it as some exposure therapy. My son, Steve, also has these problems with perfectionism. I think the meds and CBT have really helped a lot - he is not nearly as worried about good grades as he was. We feel very guilty because we are very grade-oriented parents and have been feeding his OCD for years! He is always pleased when he does well and we say a B represents the balance in his life. That is great that the 504 is working well. Would you share with us what accommodations you find most useful? Take care, aloha, Kathy H) kathyh@... At 09:00 AM 01/29/2000 EST, you wrote: >From: CHeErGaL02@... > >I just got a 504, and so far it has been working out pretty well. I just get >so stressed at school, because I want to go to Cornell for college, and it is >so hard to get in! I am such a perfectionist. It drives me crazy! I am in all >advanced classes, and I have a B in Advanced Chemistry and it making me feel >horrible! >-Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2000 Report Share Posted January 29, 2000 HI Liz: Sounds like you need to change your 504 to limit the number of visits you can have to the counselor. Perhaps your CBT therapist can suggest some graduated exposures along this line. Thanks for sharing your accommodations, this really helps us parents know what to ask for for our kids. Steve was in a school of over 900 kids and they told me he was the first case of OCD they ever had!!!!! We had to research a lot to come up with accommodations, Steve really got into the re-reading more than the re-writing stuff. Doing things on the computer has helped him a lot. What do you find helps when you get angry because people won't participate in your OCD? For us humor (mostly paradoxical therapy) was the most helpful, it really seemed to diffuse the anger faster than distraction or us calmly applying consequences. Good luck, take care, aloha, Kathy (H) kathyh@... At 06:13 PM 01/29/2000 EST, you wrote: >From: CHeErGaL02@... > >In a message dated 1/29/00 10:58:58 PM !!!First Boot!!!, kathyh@... >writes: > ><< > HI Liz: > > Very good job dealing with the anxiety with your B. If you can, try to > think of it as some exposure therapy. My son, Steve, also has these > problems with perfectionism. I think the meds and CBT have really helped a > lot - he is not nearly as worried about good grades as he was. > > We feel very guilty because we are very grade-oriented parents and have > been feeding his OCD for years! He is always pleased when he does well and > we say a B represents the balance in his life. > > That is great that the 504 is working well. Would you share with us what > accommodations you find most useful? Take care, aloha, Kathy H) > kathyh@... >> > >Let's see. One of the best accommodations is not having to use the scantron >sheets for tests. I get so stuck with the circles, and it is simply to hard. >SAT and ACT may let me have accommodations, which will really help my scores. >If I need to, I will also get more time on tests, but I don't need that >often, if I don't have to use the scantron thing. I also need to be limited >on my work, because I do too much, in efforts to please the teacher. My 504 >says I can go to the counselor if I need to, but lately it has become a >problem, because I go too much. It is like a compulsion now, and if no one >can talk to me, I get angry. >-Liz > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2000 Report Share Posted January 30, 2000 In a message dated 1/29/00 11:54:04 PM !!!First Boot!!!, kathyh@... writes: << HI Liz: Sounds like you need to change your 504 to limit the number of visits you can have to the counselor. Perhaps your CBT therapist can suggest some graduated exposures along this line. Thanks for sharing your accommodations, this really helps us parents know what to ask for for our kids. Steve was in a school of over 900 kids and they told me he was the first case of OCD they ever had!!!!! We had to research a lot to come up with accommodations, Steve really got into the re-reading more than the re-writing stuff. Doing things on the computer has helped him a lot. What do you find helps when you get angry because people won't participate in your OCD? For us humor (mostly paradoxical therapy) was the most helpful, it really seemed to diffuse the anger faster than distraction or us calmly applying consequences. Good luck, take care, aloha, Kathy (H) kathyh@... >> We are going to limit my visits to the counselor to once a week. Next year, I am going to a new high school that won't have a social worker, so I have to learn how deal with things now. The scary thing is, I'm always going to remember my Sophomore year as one of the worst times of my OCD in my life. Next year, I have to get myself on track, because Junior year is the most important year for college. I have gotten really good grades though. I have a 4.2, but that is probably because I am a perfectionist. I don't have a CBT. Is there a difference between that and a regular therapist? I do have a regular therapist. When I get angry because someone won't fulfill my rituals, it helps to just talk. I talk to my mom, or whoever is there. -Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2000 Report Share Posted January 31, 2000 In a message dated 1/31/00 8:16:49 PM !!!First Boot!!!, kathyh@... writes: << HI Liz: Sounds like you are on the right track with limiting counselor visits. You are doing an excellent job right now in your sophomore year of learning to boss back your OCD with this E & RP. Perhaps the memory of your " scary " year will help to keep you motivated in the future as it will remind you of how far you have come and that you do not wish to return there. Yes, in our experience there is a massive difference between a CBT therapist and a therapist using the typical form of psychotherapy, or " talk therapy " . Talk therapy can be very helpful for some of the comorbid disorders but has shown very little efficacy for OCD in scientific studies. CBT therapists, particularly those trained in exposure and response prevention techniques, are the kind who can help the most with OCD. In fact, talk therapy can even be counterproductive as it encourages OCDers to find the hidden meaning behind their obsessions. This can become a compulsion in itself and inadvertently worsen the OCD. One of the amazing things about OCD is that you don't need to know how it is caused or what might be behind the symptoms to treat them successfully. Some OCDers have a compulsion to confess about their OCD and this can be reinforced in talk therapy. At first it feels good but actually it worsens the OCD in the long run. Treating OCD through CBT is all about learning to live with uncertainty. This is a hard thing to do, but very rewarding for those willing to risk it. Take care, good luck, aloha, Kathy (H) kathyh@... >> Oh, living with uncertainty is one of my biggest issues. I simply cannot handle the unknown, and drive myself crazy with my speculations. I try to tell myself that there is no way of knowing what will happen in the future, and knowing what other people think of me. I think that I also have a control problem, because I had an abusive father. I was always doing what I was told, and now I rebel from that. -Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2000 Report Share Posted January 31, 2000 HI Liz: Sounds like you are on the right track with limiting counselor visits. You are doing an excellent job right now in your sophomore year of learning to boss back your OCD with this E & RP. Perhaps the memory of your " scary " year will help to keep you motivated in the future as it will remind you of how far you have come and that you do not wish to return there. Yes, in our experience there is a massive difference between a CBT therapist and a therapist using the typical form of psychotherapy, or " talk therapy " . Talk therapy can be very helpful for some of the comorbid disorders but has shown very little efficacy for OCD in scientific studies. CBT therapists, particularly those trained in exposure and response prevention techniques, are the kind who can help the most with OCD. In fact, talk therapy can even be counterproductive as it encourages OCDers to find the hidden meaning behind their obsessions. This can become a compulsion in itself and inadvertently worsen the OCD. One of the amazing things about OCD is that you don't need to know how it is caused or what might be behind the symptoms to treat them successfully. Some OCDers have a compulsion to confess about their OCD and this can be reinforced in talk therapy. At first it feels good but actually it worsens the OCD in the long run. Treating OCD through CBT is all about learning to live with uncertainty. This is a hard thing to do, but very rewarding for those willing to risk it. Take care, good luck, aloha, Kathy (H) kathyh@... At 08:52 AM 01/30/2000 -0500, you wrote: >From: CHeErGaL02@... > We are going to limit my visits to the counselor to once a week. Next year, I >am going to a new high school that won't have a social worker, so I have to >learn how deal with things now. The scary thing is, I'm always going to >remember my Sophomore year as one of the worst times of my OCD in my life. >Next year, I have to get myself on track, because Junior year is the most >important year for college. I have gotten really good grades though. I have a >4.2, but that is probably because I am a perfectionist. I don't have a CBT. >Is there a difference between that and a regular therapist? I do have a >regular therapist. When I get angry because someone won't fulfill my >rituals, it helps to just talk. I talk to my mom, or whoever is there. >-Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2000 Report Share Posted January 31, 2000 HI Liz: Learning how to live with uncertainty (a very tough assignment) is what controlling OCD is all about. Good luck, take care, aloha, Kathy (h) kathyh@... At 03:26 PM 01/31/2000 -0500, you wrote: >From: CHeErGaL02@... >Oh, living with uncertainty is one of my biggest issues. I simply cannot >handle the unknown, and drive myself crazy with my speculations. I try to >tell myself that there is no way of knowing what will happen in the future, >and knowing what other people think of me. I think that I also have a >control problem, because I had an abusive father. I was always doing what I >was told, and now I rebel from that. >-Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2000 Report Share Posted March 29, 2000 Hi Carolann: Did your endo say why your only choices were rai and surgery? Did he say why you couldn't go back on the tapazole? Joyce Quote Link to comment Share on other sites More sharing options...
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