Re: bms

April 30, 2003

> What does very pale looking bms indicate?

For my kids, their bms were pale while they were gfcf. Once I was

able to add back gluten, the bms darkened.

Now, if they are pale and spongy, means yeast

http://www.danasview.net/yeast.htm

Dana

June 21, 2003

if its sulphury its a certain type of bacteria doing well on partly

digested food

re pyroluria and methylation i am not sure that these concepts are

that valid, i tend to look at them from the point of what can be done

like zinc and molybdenum to lower copper for pyroluria.........

methlylation just never seems to have added up as a working concept

for me.............

> H's bms are so foul smelling last few days - stink the house out. I

thought this would be bacteria but I see a couple of spots below his

nose that look like candida. Also his behaviour is fine. What does

everyone think? BTW they look normal!

> TIA

> Prue

>

May 31, 2005

Hi ,

I think you have the right idea about addressing this to the BMS CEO,

that is what Suzan McNamara did with the Novartis petition. As for

the publicity, I can get something started here in Montreal and we

can certainly coordinate it with some PR activity in the states.

As you know has volunteered to start up the petition and I

know she will be working on that today.

Cheers,

Cheryl-Anne

> Hi All,

>

> I've been off-air the whole Memorial Day weekend, only now catching

up on

> emails and planning my work week. I'll start working on reaching

my BMS

> contact tomorrow, but I agree with what someone said, that a letter

campaign

> should proceed in parallel, and will probably be more productive in

the long

> run anyway.

>

> Any letters we send should probably be short because otherwise they

won't

> get read. The more varied they are the better - though I know it's

a

> nuisance writing so many different letters. Mention of these

listservs role

> in moving Novartis to action a few years ago might also be

worthwhile - to

> give our recipient a sense of our potential clout. I don't know

whether or

> not we'd ever want to go to the media with this little campaign,

but mention

> of such a possibility would only help in getting BMS's attention.

>

> We need to think about whom to address the letters to. BMS's CEO?

>

> More tomorrow.

>

> Cheers,

> R

May 31, 2005

There is a thread on Jerry's BMS board addressing a petition. Two

list members report that their doctors have said that Phase II will

close, but a then immediately re-open with a more relaxed criteria.

The thread is called " Petition for BMS "

> > Hi All,

> >

> > I've been off-air the whole Memorial Day weekend, only now

catching

> up on

> > emails and planning my work week. I'll start working on

reaching

> my BMS

> > contact tomorrow, but I agree with what someone said, that a

letter

> campaign

> > should proceed in parallel, and will probably be more productive

in

> the long

> > run anyway.

> >

> > Any letters we send should probably be short because otherwise

they

> won't

> > get read. The more varied they are the better - though I know

it's

> a

> > nuisance writing so many different letters. Mention of these

> listservs role

> > in moving Novartis to action a few years ago might also be

> worthwhile - to

> > give our recipient a sense of our potential clout. I don't know

> whether or

> > not we'd ever want to go to the media with this little campaign,

> but mention

> > of such a possibility would only help in getting BMS's attention.

> >

> > We need to think about whom to address the letters to. BMS's

CEO?

> >

> > More tomorrow.

> >

> > Cheers,

> > R

May 31, 2005

Hi ,

One of the list members is Sao , and she has since

then thought that it mgith be a good idea to do a petition and a

letter writing campaign. made a good point in reminding us

how long it took for the phase II trials to start up and the risk in

having to go throught that sort of waiting period again for people

who need access right now.

THanks for your input.

Best Regards,

Cheryl-Anne

> > > Hi All,

> > >

> > > I've been off-air the whole Memorial Day weekend, only now

> catching

> > up on

> > > emails and planning my work week. I'll start working on

> reaching

> > my BMS

> > > contact tomorrow, but I agree with what someone said, that a

> letter

> > campaign

> > > should proceed in parallel, and will probably be more

productive

> in

> > the long

> > > run anyway.

> > >

> > > Any letters we send should probably be short because otherwise

> they

> > won't

> > > get read. The more varied they are the better - though I know

> it's

> > a

> > > nuisance writing so many different letters. Mention of these

> > listservs role

> > > in moving Novartis to action a few years ago might also be

> > worthwhile - to

> > > give our recipient a sense of our potential clout. I don't

know

> > whether or

> > > not we'd ever want to go to the media with this little

campaign,

> > but mention

> > > of such a possibility would only help in getting BMS's

attention.

> > >

> > > We need to think about whom to address the letters to. BMS's

> CEO?

> > >

> > > More tomorrow.

> > >

> > > Cheers,

> > > R

May 31, 2005

At 01:05 PM 5/31/05 +0000, you wrote:

>Hi ,

>

>One of the list members is Sao , and she has since

>then thought that it mgith be a good idea to do a petition and a

>letter writing campaign. made a good point in reminding us

>how long it took for the phase II trials to start up and the risk in

>having to go throught that sort of waiting period again for people

>who need access right now.

Hi , Cheryl and all,

I think even though BMS might have the 'best of intentions' about getting

the new trials started as soon as the present phase 2 trials close

down......the letters and petition are still needed and important to put

them on notice that WE ARE HERE and we will be a force to recon with!

Of course we will do this with a friendly reminder that we are ALL part of

an active internet CML family......that we already know a lot about BMS

(more than most local oncologists) and that we want this drug available for

those who need it, without a lapse. That we want the trial expanded so that

those who fell through the gaps with the phase 2 patient criteria but need

this drug now will have access to it.....etc.

I also agree with 's comment to keep the letters short and to the

point, but personal....so that they are actually read.

I am sure that Sao will do an excellent job of putting a

petition together for us all to sign. So, for everyone asking when and

where.....just stay tuned......you will get the information that you need

to participate.

C.

May 31, 2005

Hi again Cheryl and .....

Count me in ! I believe in strength in numbers and will sign, and/or

write!

Will wait to hear where to send!

Thanks....

> >Hi ,

> >

> >One of the list members is Sao , and she has since

> >then thought that it mgith be a good idea to do a petition and a

> >letter writing campaign. made a good point in reminding us

> >how long it took for the phase II trials to start up and the risk

in

> >having to go throught that sort of waiting period again for people

> >who need access right now.

>

> Hi , Cheryl and all,

>

> I think even though BMS might have the 'best of intentions' about

getting

> the new trials started as soon as the present phase 2 trials close

> down......the letters and petition are still needed and important

to put

> them on notice that WE ARE HERE and we will be a force to recon

with!

>

> Of course we will do this with a friendly reminder that we are ALL

part of

> an active internet CML family......that we already know a lot

about BMS

> (more than most local oncologists) and that we want this drug

available for

> those who need it, without a lapse. That we want the trial

expanded so that

> those who fell through the gaps with the phase 2 patient criteria

but need

> this drug now will have access to it.....etc.

>

> I also agree with 's comment to keep the letters short and

to the

> point, but personal....so that they are actually read.

>

> I am sure that Sao will do an excellent job of

putting a

> petition together for us all to sign. So, for everyone asking when

and

> where.....just stay tuned......you will get the information that

you need

> to participate.

>

> C.

>

October 27, 2005

It is specifically for this reason that i take a few Intestinal cleanse caps with me when i travel.

When you are away from home and eating out, and out of your normal habits (both eating a sleeping) this is the perfect time for your system to go out of "whack". At least keeping your BM's regular can help your body handle the other stresses of traveling (even if you are on "vacation" )

Sylvia

MorningGlory113@... wrote:

Don't those people with infrequent bms pass a lot of gas constantly?This is so true. One of my co-workers confided to me that one time she went on vacation and just couldn't move her bowels the whole time.....16 days!!!! She said it was terrible and, even worse, she farted constantly!! She said when she got home she took a laxative and she got back to normal, but she'll never forget what a horrible, embarrassing, experience it was.Gloria

October 27, 2005

Back in the day when my bowels moved too infrequently (funny, though, I knew that wasn't quite right) I never farted or burped. Still don't much. All my hot air comes out as words, heh heh

Janelle

Anne Bird <irishfox@...> wrote:

Don't those people with infrequent bms pass a lot of gas constantly? Better known as farting? LOL Not exactly the kind of people I want to take home with me.

Anne

FareChase - Search multiple travel sites in one click.

May 13, 2006

It does not hurt or burn at all, you may get very itchy upon submersion but

that is just the toxins being liberated from your pores. Your skin will be

very soft afterwards too.

Shirley G

>From: Maggie McQuade <maggs914@...>

>Hi Peggy,

>

> Did the bath hurt or burn ? I am a little afraid to take the

>hydro/epsom bath.

> I am in pain now. Very tight skin, very itchy and flaky but also raised

>up

> areas that are soft to the touch AFTER the scabby stuff falls off.

>

> I also have eczema and can not tell sometimes which is which (eczema vs.

>candidia).

>

>Thanks.

> Maggie

May 14, 2006

Maggie,

I have what my dermatologist said was eczema on my scalp. They are 2

small patches of flaky skin and like you, the skin under it is raised. (Like

inflammation) I’ve had it for years and it seems like they are getting

bigger. I had posted before I went to Israel one year and floated in the

Dead Sea. I made sure I got the spot on the back of my neck in the water.

Amazingly my eczema went away for 1 ½ years. I purchased some Masada Dead

Sea Salts (Unscented) a month ago and have use it as a hot compress (hot

water plus Dead Sea salt, mix well, soak a washcloth, wring out and let sit

on skin) I used it for a large rash on my inner thigh which was part

heat/friction rash but also severely itchy. I can say it took away the

itching immediately. I was quite shocked! Dead Sea Salt is not the same as

Epsom Salt. Both are supposed to be detoxifying but I have never used Epsom

salt so I can’t say if it works. The think is you have to exfoliate after

words with a washcloth to get the dead skin off. Then apply a good

moisturizer (Personally I’d use Organic Coconut Oil). The rash has one away

slowly but I haven’t used the compress again which I should do. I hope this

helps!

Alison, Chicago

_____

From: candidiasis [mailto:candidiasis ] On

Behalf Of Maggie McQuade

Sent: Saturday, May 13, 2006 10:37 AM

candidiasis

Subject: Re: BMS

Hi Peggy,

Did the bath hurt or burn ? I am a little afraid to take the hydro/epsom

bath.

I am in pain now. Very tight skin, very itchy and flaky but also raised

up

areas that are soft to the touch AFTER the scabby stuff falls off.

I also have eczema and can not tell sometimes which is which (eczema vs.

candidia).

Thanks.

Maggie

peggypooh1@... wrote:

Thanks Tony and Berrywell.

I am taking a break from GSE, garlic, yeast defense (acylic acid),

acidophilus capsules, followed by probiotics,

psyllum husks, bentonite (colon cleanse), and all those supplements for

now.

I am putting them aside to give me body a break.

tonight I took a hydrogen peroxide and epsom salt bath followed with

coconut oil.

I had a nice big glass of Kombucha tea..... yum yum

I have a question about that....

1) After the bath do I rinse off?

My scabs fell right off my body!

2) the coconut oil..... can it be the cooking kind? I bought it from the

cooking oil section in the

Whole Foods store. The other kinds was way too expensive. The consultant

said it would work and on the bottle it says I can use it on my body. So

any suggestions on this and what others have used.

I feel pretty good. The itching has subsided. I have internal itching all

over my body.

Please don't refer me to internet purchasing....that is not my style. I

like to visit a store

where I can speak to someone who knows about the product personally.

Right now I am doing Biotin (vitamin) and olive oil. I bought Vitamin A

and E, calcium, Zinc.

I bought some 100% cranberry organic juice from Whole Foods.

Thanks everyone for your suggestions and ideas.

-Peggy

On Thu, 11 May 2006 20:56:12 -0700 (PDT) " Tony R. " <westxan005@...>

writes:

To Beth,, Peggy and the rest of the group. First I want to thank all

of you for welcoming me to the group and the support I am getting from

you guys. I have read some of the posts from other long time sufferers of

this devilish affliction and it breaks my heart as I know what it is to

struggle with it day after day.

I have been on candex for 7 days. The first three days I felt a

little relief, but then the symptoms came back. That seems to be the

pattern of all the supplements that I have taken up to now. Of course

the SF722( caster been oil) was the only one that I have taken for a

whole month. when I stopped, I was taking 15 capsules a day. The die-off

(itching all over) if that what if was, was killing me. I order those for

modern herbalist out of Cal. I have tried eating raw garlic and that

seems to help but my stomach just can handle it. As I have posted, I

tried GFSE 125mg too. Tea Tree oil for my burning lips, peppermint oil,

and have rinsed and swallow colloidal silver too.

I am presently taking vitamins C 1000 mgs, B1 100mgs, stress tabs

w/zinc, biotin 1000mcg. I have been taking the bentonite and psylliam and

l-gutamine to help the itching. I have not taken the Caproyl yet as

suggested by Ken, I believe is his name.

I did go see a dentist about 2 months ago and he gave me a mixture of

nystatin and a numbing agent. I was to swished it in my mouth and

swallow. All it did was numb my mouth temporary.

Tuesday, Out of desperation I went to see a doctor Whom a pharmacist

recommended who was supposed to have some knowledge of yeast/Candida

infections. He tooked blood samples which came back normal. He also put

me on depression pills! Now I can't sleep and am awake at 4am every

morning. It has help to keep me for being irritable. One Person that I

can give credit to for putting up with at this time is my Wife, who is

always encouraging me to not give up and to keep seeking help.

Again, sorry for the long post and I will try to keep everyone inform

of anything that I find helpful in the struggle and I will appreciated

the same.

Wishing everyone a healthy future, Tony

p.s. I as yet to find a doctor who will test me to see if I do have

Candida,although I have been tested for just about everything else and I

am about broke.

---------------------------------

Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using

Messenger with Voice.

May 14, 2006

" I have a question about that....

1) After the bath do I rinse off?

My scabs fell right off my body! "

I definitely would. I would also exfoliate while you are in the bath with a

washcloth.

" 2) the coconut oil..... can it be the cooking kind? I bought it from the

cooking oil section in the

Whole Foods store. The other kinds was way too expensive. The consultant

said it would work and on the bottle it says I can use it on my body. So

any suggestions on this and what others have used. "

I like the Extra Virgin Coconut Oil Better.

Alison. Chicago

May 14, 2006

I am definitely exfoliating during and after my bath.

I used Hydro-peroxide and Epsom salts again last night

and I barely had itching bouts.

I put the coconut oil on and it works great so no problem with the

type of oil .....it's all good.

The hydrogen peroxide seems to be lightening up my skin tone.

I wonder how long I should soak?

My feet itch a lot too so I got some Gold Bond foot powder and it is

working nicely.

I bought me some new Sketcher tennis shoes that air out my feet as I am

wearing them

and try to keep my feet dry.

I owe my itching mostly to menopause. Not candida. My period feels like

it is going to

start again which means it is not over. I had a period Mar. 25 that

lasted over 20 days.

Doctor did not seem to think much of it.

But she wants me to do an Ultra sound to check out the lining in my

uterus.

I bleed excessively for like 4 days and the rest of the days blood is

black color.

In April the day I started my garlic, probiotics, GSE, and yeast defense

with acylic acid....

my period stopped on a dime. Just stopped. I don't know if was my making

the decision

to stop HRT or the candida regime. But I was thankful to stop my period.

Now I feel some cramps coming on and bloating. Man, it hard being a

women!!!\

Have a blessed MOTHER'S DAY!!!

-Peggy

On Sun, 14 May 2006 02:22:51 -0500 " Alison, Chicago "

<Callesto71@...> writes:

Maggie,

I have what my dermatologist said was eczema on my scalp. They are 2

small patches of flaky skin and like you, the skin under it is raised.

(Like

inflammation) I’ve had it for years and it seems like they are getting

bigger. I had posted before I went to Israel one year and floated in the

Dead Sea. I made sure I got the spot on the back of my neck in the water.

Amazingly my eczema went away for 1 ½ years. I purchased some Masada Dead

Sea Salts (Unscented) a month ago and have use it as a hot compress (hot

water plus Dead Sea salt, mix well, soak a washcloth, wring out and let

sit

on skin) I used it for a large rash on my inner thigh which was part

heat/friction rash but also severely itchy. I can say it took away the

itching immediately. I was quite shocked! Dead Sea Salt is not the same

as

Epsom Salt. Both are supposed to be detoxifying but I have never used

Epsom

salt so I can’t say if it works. The think is you have to exfoliate after

words with a washcloth to get the dead skin off. Then apply a good

moisturizer (Personally I’d use Organic Coconut Oil). The rash has one

away

slowly but I haven’t used the compress again which I should do. I hope

this

helps!

Alison, Chicago

_____

From: candidiasis [mailto:candidiasis ] On

Behalf Of Maggie McQuade

Sent: Saturday, May 13, 2006 10:37 AM

candidiasis

Subject: Re: BMS

Hi Peggy,

Did the bath hurt or burn ? I am a little afraid to take the

hydro/epsom

bath.

I am in pain now. Very tight skin, very itchy and flaky but also

raised

up

areas that are soft to the touch AFTER the scabby stuff falls off.

I also have eczema and can not tell sometimes which is which (eczema

vs.