Guest guest Posted January 2, 2011 Report Share Posted January 2, 2011 Trudy & Cinder,Gotta piggyback on Teri's comments here from my perspective.A good friend of mine had a neighbor that went through treatment before I did, so he was kind of familiar with some of the effects. When I started treatment and began experiencing some of that, he told me about his neighbor. He said the neighbor was pretty similar to me, but that a year later you wouldn't know he'd been through treatment. At the time I had a hard time believing that. After treatment, I had a hard time believing that. I've always been fairly articulate, but during and after treatment I had to search for words, and if I searched long enough I lost the whole line of the conversation. I couldn't run up a couple flights of stairs until almost a year after treatment, and still get winded easier now.However, it does all pass. Almost two years after testing cured, I still lose a word sometimes. I don't have the same stamina I had before treatment, but it's come back 80% and yes, I am getting older...that's the rumor anyway! In the group that Teri and I were part of, you couldn't look around the room and say who treated and who hadn't until you talked with them for a bit...yes, it passes, and gets better.What Teri's talked about is a common thread for most that treat. If somehow I reinfected, would I treat again? I think yes, but I'd do it from a position of greater knowledge this time. In "Master & Commander", the old sea dog has "H O L D F A S T" tattooed on his fingers, and that's where you're at. There are days that you'll get through by the skin of your teeth, nothing but grit and fingernails, but you'll get through.Trudy, I really hope you can finish treatment the first time around, that things will improve with anti-d's and all that. If you don't, though, you've still made a helluva dent in the dragons health.We had misspoken about telaprivir earlier. It is for type-2's and 3's also, and if you have to re-treat and can do the new drug, the cure rate of riba, interferon and telaprivir was 100% in clinical studies. So there's hope either way.I've been in the background with some personal stuff going on recently, but have been following both of you and keep you in my heart and mind.SteveLife is much more fun when thought of as a scavenger hunt as opposed to a surprise party. Jimmy Buffett Re: [ ] Foggy... Trudy,It's really just the drugs.. It goes away when you stop taking them. Granted it will take a few weeks to a month or so for the fog to lift but it will lift. It will get better. This too shall pass. It's real easy to get caught in that cycle of thinking that the side effects are actually symptoms of something else. It's just normal fear. Just hang on if you can, you are almost done with this 24 weeks of craziness.. Now you just have to brace yourself and hold tight til the end. You are kicking this dragon's ass and you are doing it in epic proportions.. You are going to be okay. I promise. Hugs,Teri On Sat, Jan 1, 2011 at 9:47 PM, trudykinsey@... <trudykinsey@...> wrote: Thanks Gloria & Don. I just needed to hear that it gets better. Quess I just have so many things wrong right now, just hoping this isn't " something else " Ya know, right about now MS would feel like a gift. What I feared two months ago seems like nothing compared to what I fear now. Started my higher dose Elavil tonight. Hope it helps. Maybe even calm the stuttering. http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae West http://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx -- Teri Gottlieb MOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2011 Report Share Posted January 2, 2011 Good to have you back Steve... Missed you on here.On Sun, Jan 2, 2011 at 4:08 PM, <schandler21@...> wrote: Trudy & Cinder,Gotta piggyback on Teri's comments here from my perspective.A good friend of mine had a neighbor that went through treatment before I did, so he was kind of familiar with some of the effects. When I started treatment and began experiencing some of that, he told me about his neighbor. He said the neighbor was pretty similar to me, but that a year later you wouldn't know he'd been through treatment. At the time I had a hard time believing that. After treatment, I had a hard time believing that. I've always been fairly articulate, but during and after treatment I had to search for words, and if I searched long enough I lost the whole line of the conversation. I couldn't run up a couple flights of stairs until almost a year after treatment, and still get winded easier now. However, it does all pass. Almost two years after testing cured, I still lose a word sometimes. I don't have the same stamina I had before treatment, but it's come back 80% and yes, I am getting older...that's the rumor anyway! In the group that Teri and I were part of, you couldn't look around the room and say who treated and who hadn't until you talked with them for a bit...yes, it passes, and gets better. What Teri's talked about is a common thread for most that treat. If somehow I reinfected, would I treat again? I think yes, but I'd do it from a position of greater knowledge this time. In " Master & Commander " , the old sea dog has " H O L D F A S T " tattooed on his fingers, and that's where you're at. There are days that you'll get through by the skin of your teeth, nothing but grit and fingernails, but you'll get through. Trudy, I really hope you can finish treatment the first time around, that things will improve with anti-d's and all that. If you don't, though, you've still made a helluva dent in the dragons health. We had misspoken about telaprivir earlier. It is for type-2's and 3's also, and if you have to re-treat and can do the new drug, the cure rate of riba, interferon and telaprivir was 100% in clinical studies. So there's hope either way. I've been in the background with some personal stuff going on recently, but have been following both of you and keep you in my heart and mind.SteveLife is much more fun when thought of as a scavenger hunt as opposed to a surprise party. Jimmy Buffett Re: [ ] Foggy... Trudy,It's really just the drugs.. It goes away when you stop taking them. Granted it will take a few weeks to a month or so for the fog to lift but it will lift. It will get better. This too shall pass. It's real easy to get caught in that cycle of thinking that the side effects are actually symptoms of something else. It's just normal fear. Just hang on if you can, you are almost done with this 24 weeks of craziness.. Now you just have to brace yourself and hold tight til the end. You are kicking this dragon's ass and you are doing it in epic proportions.. You are going to be okay. I promise. Hugs,Teri On Sat, Jan 1, 2011 at 9:47 PM, trudykinsey@... <trudykinsey@...> wrote: Thanks Gloria & Don. I just needed to hear that it gets better. Quess I just have so many things wrong right now, just hoping this isn't " something else " Ya know, right about now MS would feel like a gift. What I feared two months ago seems like nothing compared to what I fear now. Started my higher dose Elavil tonight. Hope it helps. Maybe even calm the stuttering. http://facebook.com/people/andTrudy-Kinsey/1340460877 " " A well- behaved woman never made history " ...Mae West http://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx -- Teri Gottlieb MOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2011 Report Share Posted January 2, 2011 Steve,the Hdoc wants to stop at week 17. Not because it's not working; I have been undetectable since wk 5. But the sides and stress are mounting up . When Hdoc first said this I was "Hell No!". But like I said sides & stress are getting to be too much. We all have a wall, insurmountable wall. Hopefully most never reach that point . But I have. Also I quess Hdoc expects the results from oncoligist to be bad. I see oncologist on the 10 th. I probably could have finished if it wasn't for the extreme stress the " oncologist stuff". And Hdoc hadn't seen me for awhile. He was taken aback by my extreme stutter. We all know it's a real manifestation of stress. But I don't know what else to do, to help myself. Thanks for being here for all of us.http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae Westhttp://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx On Jan 2, 2011, at 4:08 PM, schandler21@... wrote: Trudy & Cinder,Gotta piggyback on Teri's comments here from my perspective.A good friend of mine had a neighbor that went through treatment before I did, so he was kind of familiar with some of the effects. When I started treatment and began experiencing some of that, he told me about his neighbor. He said the neighbor was pretty similar to me, but that a year later you wouldn't know he'd been through treatment. At the time I had a hard time believing that. After treatment, I had a hard time believing that. I've always been fairly articulate, but during and after treatment I had to search for words, and if I searched long enough I lost the whole line of the conversation. I couldn't run up a couple flights of stairs until almost a year after treatment, and still get winded easier now.However, it does all pass. Almost two years after testing cured, I still lose a word sometimes. I don't have the same stamina I had before treatment, but it's come back 80% and yes, I am getting older...that's the rumor anyway! In the group that Teri and I were part of, you couldn't look around the room and say who treated and who hadn't until you talked with them for a bit...yes, it passes, and gets better.What Teri's talked about is a common thread for most that treat. If somehow I reinfected, would I treat again? I think yes, but I'd do it from a position of greater knowledge this time. In "Master & Commander", the old sea dog has "H O L D F A S T" tattooed on his fingers, and that's where you're at. There are days that you'll get through by the skin of your teeth, nothing but grit and fingernails, but you'll get through.Trudy, I really hope you can finish treatment the first time around, that things will improve with anti-d's and all that. If you don't, though, you've still made a helluva dent in the dragons he! alth.We had misspoken about telaprivir earlier. It is for type-2's and 3's also, and if you have to re-treat and can do the new drug, the cure rate of riba, interferon and telaprivir was 100% in clinical studies. So there's hope either way.I've been in the background with some personal stuff going on recently, but have been following both of you and keep you in my heart and mind.SteveLife is much more fun when thought of as a scavenger hunt as opposed to a surprise party. Jimmy Buffett Re: [ ] Foggy... Trudy,It's really just the drugs.. It goes away when you stop taking them. Granted it will take a few weeks to a month or so for the fog to lift but it will lift. It will get better. This too shall pass. It's real easy to get caught in that cycle of thinking that the side effects are actually symptoms of something else. It's just normal fear. Just hang on if you can, you are almost done with this 24 weeks of craziness.. Now you just have to brace yourself and hold tight til the end. You are kicking this dragon's ass and you are doing it in epic proportions.. You are going to be okay. I promise. Hugs,Teri On Sat, Jan 1, 2011 at 9:47 PM, trudykinsey@... <trudykinsey@...> wrote: Thanks Gloria & Don. I just needed to hear that it gets better. Quess I just have so many things wrong right now, just hoping this isn't " something else " Ya know, right about now MS would feel like a gift. What I feared two months ago seems like nothing compared to what I fear now. Started my higher dose Elavil tonight. Hope it helps. Maybe even calm the stuttering. http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae West http://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx -- Teri Gottlieb MOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2011 Report Share Posted January 2, 2011 Sorry to hear this Trudy. That is scary. Can't it mutate if you quit prematurely. That is what one of my fears is. That is what my doc stressed to me. Then you would have even more to fight. Am I wrong? I hope. Thanks Gloria & Don. I just needed to hear that it gets better. Quess I just have so many things wrong right now, just hoping this isn't " something else " Ya know, right about now MS would feel like a gift. What I feared two months ago seems like nothing compared to what I fear now. Started my higher dose Elavil tonight. Hope it helps. Maybe even calm the stuttering.http://facebook.com/people/andTrudy-Kinsey/1340460877 ""A well- behaved woman never made history"...Mae Westhttp://oktravels.wordpress.comhttp://allrecipes.com/cook/TrudyK/profile.aspx -- Teri GottliebMOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2011 Report Share Posted January 2, 2011 Chances are, Trudy has been on tx long enough to have stopped the dragon dead in it's tracks. There is always the outside chance that she will rebound. If Trudy were to rebound, then yes there is also a chance that the virus can mutate. Neither of these is a given. The hope is that Trudy has taken enough of the meds to be clear. Her other issues have made treatment way too difficult to tolerate and the idea is that the Hep C even if it were to come back is less of a threat than the rest of the medical issues she is dealing with. And actually, Trudy would only be stopping treatment 3 weeks early. So hopefully, she's good. Hugs,Teri On Sun, Jan 2, 2011 at 7:32 PM, Cinder <datagrey@...> wrote: Sorry to hear this Trudy. That is scary. Can't it mutate if you quit prematurely. That is what one of my fears is. That is what my doc stressed to me. Then you would have even more to fight. Am I wrong? I hope. Thanks Gloria & Don. I just needed to hear that it gets better. Quess I just have so many things wrong right now, just hoping this isn't " something else " Ya know, right about now MS would feel like a gift. What I feared two months ago seems like nothing compared to what I fear now. Started my higher dose Elavil tonight. Hope it helps. Maybe even calm the stuttering.http://facebook.com/people/andTrudy-Kinsey/1340460877 " " A well- behaved woman never made history " ...Mae Westhttp://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx -- Teri Gottlieb MOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2011 Report Share Posted January 2, 2011 Your not wrong. I asked Hdoc about that. He was very adamant that I would be fine as far as virus goes. But I don't think he was bring candid with me. Maybe after I see oncologist on 10th , maybe some of this stress will go away. Maybe I will be in a better frame of mind to finish the last 9 weeks.http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae Westhttp://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx On Jan 2, 2011, at 7:32 PM, Cinder <datagrey@...> wrote: Sorry to hear this Trudy. That is scary. Can't it mutate if you quit prematurely. That is what one of my fears is. That is what my doc stressed to me. Then you would have even more to fight. Am I wrong? I hope. Thanks Gloria & Don. I just needed to hear that it gets better. Quess I just have so many things wrong right now, just hoping this isn't " something else " Ya know, right about now MS would feel like a gift. What I feared two months ago seems like nothing compared to what I fear now. Started my higher dose Elavil tonight. Hope it helps. Maybe even calm the stuttering.http://facebook.com/people/andTrudy-Kinsey/1340460877 ""A well- behaved woman never made history"...Mae Westhttp://oktravels.wordpress.comhttp://allrecipes.com/cook/TrudyK/profile.aspx -- Teri GottliebMOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page. Quote Link to comment Share on other sites More sharing options...
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