Guest guest Posted January 1, 2011 Report Share Posted January 1, 2011 Actually, I think that away to many people blame everything that is wrong on the HepC. For instance, was I going to suffer from Fibromyalgia anyway and the treatment only hastened it?? I don't and probably never will know the answer to that question.However, I'm pretty damned positive that I would not have liver cancer if I never had HepC.Please, don't let the HepC issue ever come between the two of you!! I still believe that the trouble in my marriage actually came from interfering family members and not the HepC. However, it was destructive.Now that issue will never be resolved because of the husband's sudden death. I've always just wanted an opportunity to talk to his family face to face about my illness; but, even that will never happen now. They can believe whatever they want!! This whole past week was such a gong show, that I wish that I could just run and hide. Most of them don't get along with each other much and then, there was obviously sides being drawn, over a very few of them that had attitude about me. It was awful to witness. Lord knows what the actual service will look like with the family feud. Gloria Hi Happy New Year. Dont give up - I mean about bringing stuff up [your thoughts and opinions] to people.He is right, there are alot of other things that can cause conditions - BUT - we each know our own body best, dont we? Kinda sorta? You should not feel like you cant open your mouth and voice what you think....to anyone, about anything. Thats called - being bullied - and that is a form of abuse. But dont expect everyone to agree with your thoughts either, because expecting that - well, thats bullying the other way round. Do like me - open your mouth and let it out. Then stand back and watch the fun. Im so bad. LOL :-) love don in ks From: Gloria <gadamscan@...>Subject: Re: [ ] Brain fog Date: Tuesday, December 21, 2010, 6:55 PM TrudyI hate to say; but, I'm not sure to this day if my brain fog has ever lifted. I make a joke about it because I am a blond. However, it is so embarrassing I sure know. I think my short term memory has gotten better, I can almost tell you what I did last night; but, only because I do the same thing every night.Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2011 Report Share Posted January 1, 2011 I read an article the other day about brain fog and Hep C... I will try to find it again and post it. There is definitely a correlation between the two. People tend to blame the brain issues on age and all sorts of normal processes. People that know me well, see the difference in me. People who are around me that have to play charades to figure out what the Hell I am trying to say know it's the Hep C or the Fibromyalgia. I wasn't like this before treatment. My doctor told me that he could help me with a lot of aspects of the Fibromyalgia but NOT with the brain fog.. that is what it is and it will be better some days and worse on others. He seems to be right. Here is the thing, WE KNOW OUR BODIES... we are the ones inside this skin. Other people, even close other people, just aren't gonna get it sometimes and we have to accept that as one of their shortcomings. Sometimes it's us not being to explain it to them... Damn brain fog takes the right words away half the time! Sometimes I think it's as frustrating for those around us as it is for us.. so be gentle. Hugs,TeriOn Sat, Jan 1, 2011 at 8:08 PM, Christ <ludichrist2000@...> wrote: Hi Happy New Year. Dont give up - I mean about bringing stuff up [your thoughts and opinions] to people.He is right, there are alot of other things that can cause conditions - BUT - we each know our own body best, dont we? Kinda sorta? You should not feel like you cant open your mouth and voice what you think....to anyone, about anything. Thats called - being bullied - and that is a form of abuse. But dont expect everyone to agree with your thoughts either, because expecting that - well, thats bullying the other way round. Do like me - open your mouth and let it out. Then stand back and watch the fun. Im so bad. LOL :-) love don in ks From: Gloria <gadamscan@...>Subject: Re: [ ] Brain fog Date: Tuesday, December 21, 2010, 6:55 PM TrudyI hate to say; but, I'm not sure to this day if my brain fog has ever lifted. I make a joke about it because I am a blond. However, it is so embarrassing I sure know. I think my short term memory has gotten better, I can almost tell you what I did last night; but, only because I do the same thing every night. Gloria -- Teri Gottlieb MOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 Thanks I tried to warn my hubby I have brain fog and that it will change and be a different worse brain fog once on tx. He will need to be more understanding. That is when he flew into you can't blame everything on Hep C and tx. You are just looking for excuses for everything. I said okay it is what it is and I have it happening to me. He agreed with that. I am willing to let it rest at that. It is fair. I think he will understand more once tx starts. Thanks for the explaination Teri. Cinder From: Gloria <gadamscan@...>Subject: Re: [ ] Brain fog Date: Tuesday, December 21, 2010, 6:55 PM TrudyI hate to say; but, I'm not sure to this day if my brain fog has ever lifted. I make a joke about it because I am a blond. However, it is so embarrassing I sure know. I think my short term memory has gotten better, I can almost tell you what I did last night; but, only because I do the same thing every night.Gloria -- Teri GottliebMOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 Hubby is very patient with me;brain fog & stuttering like a sob. Yesterday I had the urge to go smoke...then I sat there a couple of minuites trying to remember IF I smoked. Kinda a lost feeling; brain fog etc.http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae Westhttp://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx On Jan 6, 2011, at 6:11 PM, Cinder <datagrey@...> wrote: Thanks I tried to warn my hubby I have brain fog and that it will change and be a different worse brain fog once on tx. He will need to be more understanding. That is when he flew into you can't blame everything on Hep C and tx. You are just looking for excuses for everything. I said okay it is what it is and I have it happening to me. He agreed with that. I am willing to let it rest at that. It is fair. I think he will understand more once tx starts. Thanks for the explaination Teri. Cinder From: Gloria <gadamscan@...>Subject: Re: [ ] Brain fog Date: Tuesday, December 21, 2010, 6:55 PM TrudyI hate to say; but, I'm not sure to this day if my brain fog has ever lifted. I make a joke about it because I am a blond. However, it is so embarrassing I sure know. I think my short term memory has gotten better, I can almost tell you what I did last night; but, only because I do the same thing every night.Gloria -- Teri GottliebMOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2011 Report Share Posted January 15, 2011 Thanks Don. That is good to know in case I get to town and something goes horribly wrong and I can't make it home. I can make it to your house. That will help. It is closer than 12 miles or 30 miles to the base. Rick will be under less stress now. He changed jobs now. He asked me how I felt about it. I felt it would be great due to the job he was doing before the guy he was under was a jack ass and was really stressing Rick and everyone who works for him out. So I know 3 or 4 guys are bidding out from under him. I am glad Rick will have less stress so when I go through tx he will be calmer. That is good. I thought I was pretty calm but everytime I get calm he comes back and makes me worry. He leaves me feeling insecure a lot then tells me everything will be okay a okay. But that was after telling me all our finacial problems. I think I will be taking time off and doing it even if I have to do it without telling him. I will just do it and he will find out after the fact. Do what I have to for me. I will wait though till tx time of course. lol. Rick is a dear to love me so much and he would do anything but he is having a hard time. This is a whole new kind of ball game for him. He is just learning. Wow that is pretty bad about your ex doing that. You have a right to put your pic on there with hers. It was a part of your life. My daughter did that with me too. I told her well kiddo you were my kid and are my kid so I can have my own kids pick up as a part of my family. So suck it up. Don't let her get to you Don. It was a time of your life that at one time was special so why not. I still have my exhusbands pictures. Nothing wrong with it. Thanks for being such a wonderful friend Don. Hey I could lay on your futon and listen to a concert and dream of deserts and flying saucers lmao. Rock and Roll. The money problem is if we don't have enough we lose our homes. That is a lot to worry about for Rick. What we are doing is trying to get the misslebase in shape enough to move our storage stuff over there so I can pack some more and move the rest over and get the trailer fixed up the rest of the way and fix this house up and rent or sell it. Then we only have to pay for one home a month. We are making two home payments a month. That is a lot. My paycheck covers the misslebase and his the house. So without mine it is going to suck. The job change to help with his stress gave him less money. But I wanted him to do it before he got a heart attack. I was worried about the amount of stress he was under every single day. Lately I have had a lot of stress because of one little patient I take care of has gone ape shit. He is violent. I swear he gets any worse I may can him with a frying pan or something. He is horrible to me. Not just me but everybody who works there. He is meaner than hell. I got offered extra hours I normally would have taken but did not because of him. I did not want to go put up more with him. The doc won't give us any thing to help put him to sleep at night and help his anxiety and his viscious cycle. He is very mean. He hits punches. kicks, Wakes other people up pees on every thing in site. He runs out in all weather He is scary. I hate being at work where he is. I am scared of him and have told the boss so. I told her I hate him and if he comes at me I will slam a door into him before letting him hurt me. He has already punched me in the back and stomach. I can't hack anymore. I told her I am about to quit if she can't do anything. So she came over at 12am and gave him something the doc probably did not order to help him calm down. He was back up at 3 am again. I don't know how on the pills she gave him. There is something just clicking wrong in his brain. He is evil. I would quit if I did not need the money so bad. I need a rich uncle or something. We need a goldmine. lol. Guess that won't happen. Oh well. Anyway thanks Don. I am so scatter brained. Every time I write I end up all over the place. That is how I am about everything now. At work I have to do one little thing at a time to make sure I don't mess up on the pills. I shut the door to the med room and do that in quiet. That is one thing I still do good. My house shows it too. I can't concentrate on one thing hardly before another pops up and then another and another. I was talking to my boss the other night and mid sentence I could not remember what I was talking about. I went blank. hm. I told her someone borrowed my brain and forgot to bring it back. lol. oops. I was embarrased. That is not what you want your boss to see when she needs to trust you to take care of those peoples lives and medicines. Later Cinder hugs too -- On Fri, 1/14/11, Christ <ludichrist2000@...> wrote: From: Christ <ludichrist2000@...>Subject: [ ] Brain fog - Date: Friday, January 14, 2011, 5:11 PM Hi I know your scared, and full of questions, what if's, and doubts. Everything is going to be ok. Youve got a good head on your shoulders, and your backed up by a good man. You have a loving family and friends nearby. Everyone in the group will stand by you all the way. I personally think you should take a leave of absence from your job for awhile, but that is just my opinion. [i have never liked to see you stressing.] The money problem.....whats more important - the money or your health? The brain fog - welcome to the club. Now what was I saying....LOL :-) Oh yeah - My ex from 3 years ago messaged me today in Facebook, and told me to take down the picture of me and her, or she was going to report me. I blocked, and reported her for harrassment. Gee, I wonder how that will work out. LOL :-) , you have my email, phone number, and know where I live. I am still your friend. I even have a futon in the back bedroom should you need to camp out. It aint much but its there. I am blasting you with love, peace of mind, and tons of good energy, my friend. Everything is going to be ok . I promise. love don in ks From: Cinder <datagrey@...>Subject: Re: [ ] Brain fog Date: Friday, January 14, 2011, 1:06 PM I have talked to Rick to let him know whether I am able to walk around and look normal or not if I am this confused on and off already that it will be worse and it wont be me looking at it in a negative way it is a part of tx that happens. It is just something that is expected. Something that you cannot get by. It can be barely to real bad. I have problems and I haven't done tx so mine may not be fun. I have a house I am suppose to be packing and I am so lost in this mess. I feel like crying most the time. He said I could have some help. When I get help I don't know what to tell the girl to do. I handle work. I can do that. I am good at that. I can make it to work. I can cook real good still.I can still take care of my pets and I shop for groceries well. When I had to shop for a pair of pants and a top for the funeral it took me a whole damn day. I had no idea. I was clueless. I even took that girl with me. I do , do those games constantly on my computer. I also joined the sofa club and several others Eva does that she does mind sharpening games on. I do them on the nights off. I know my skills at work are not lacking. My boss asked me what pills this one man did not take and I laid them out and was able to tell her right off what all ten pills were and few of them were herbs. So still trust myself there. I can tell which pills belong to any of my six pts. I am finding it hard to plan a menu ahead for food though now. I am always leaving something out forgetting things. I found out I have narrowing of the spine in the neck. That was causing the legs giving out. So going to a spinal surgeon. I refuse to let him do surgery on me till after the tx. I don't want to be trying to recover from that at the same time as tx. My hubby is behind me all the way in all of this now. He said whatever we need to do. He is being more understanding. His step mother is going to help me when I need it with rides or picking stuff up. She said she would go in with me to my first shot at the docs if I want. Rick says no but he won't be there. He has no more time off he can take now. So I may anyway. I am really not all that afraid of the shot itself. Well I say that but when it comes to that yeah I have never done a shot ever. Yeah I am wierd about giving myself a shot. ewww. Kind of makes my stomach turn. If I know it is one I am suppose to give myself I feel I will be okay with it. I would be more afraid if it were something I wasn't suppose to do like drugs. I could never have shot up drugs. Too squirmish. I about fainted once cleaning my daughters ear. Anyway I know I will be okay. I will have everything set up at home to relax. I will go for the shot and go home and prepare for the sleep and sleep all day. I will be taking mine first thing in the morning. I sleep in the daytime. I work at night. The doc asked that I ask for a couple of three weeks or so off. Rick is feeling different about that. He says just take the shot see how it goes and then if over the weekend it doesn't get better you can call and tell her you can't work yet. Her mom and her both know I am seeing the doc about whether I start in April. He did not want me to tell her. I wanted to be as honest as I could be. I just haven't been honest about what exactly I have. I am getting more nervous as time gets closer. Rick is stressing more and making me worry more by talking to me about how money is going to be such a problem and we are going to go bankrupt and lose everything ect. I told him just move everything to the misslebase the lower paying house payment and fix the trailer and make it liveable before april and quit messing around with making me worry about stuff I can't do anything about except get sicker worrying about it. I told him it was mean to make me worry about it. He is trying not to do that now. He cares he is just scared as I am too. He has his Mom talking to him in one ear telling him what he should do all the time and it isnt' right. His brother Barry wants him to help with all his stuff and his friend Randy wants help with all his stuff. His friend Goat wants help with his stuff. Everyone wants Ricks help and he don't know how to say no. He is a nice guy. I told him he has to quit being nice for awhile and help ourselves. They need to help us. For all we have done for everyone else it is time we should get some help. So I got way too much on my mind. This is probably why I cannot concentrate. I have my mind going a hundred different ways. Then Rick walks in and there is even more to think about. lol. Okay. It is cold outside. My dogs are great. I am going to go drown myself in a nice tub of hot water and try to quit hurting as bad. I feel wound up for no good reason and nobody has even talked to me today and I am not pms because no period. I am menopausal. I feel like a strange mood and full of pain. My feet have started hurting when I first get up and walk on them. That is in the last month or so. They are not swollen when I get up. I think there is not a right side of the bed today. I will get better though. Thank you so much Gloria. I hope you are doing okay too. That must have really been a shock to find out your husband passed. I am sorry for your loss. I am sorry you had and have to go through that crap with the step kids and other family members who were not nice to you. You deserved to be treated so much better than that. Hugs Cinder From: Gloria <gadamscan@...>Subject: [ ] Brain fog Date: Sunday, January 2, 2011, 11:26 PM As usual, Teri has said it all in this post!! One of the sites that I went to once, recommended some games that are actually very easy; but, it's likely they will be the only ones that your brain will be able to get around. Even forms of solitaire could be difficult; but, recommended.I'm still getting run down by folks that never bothered to get informed about treatment to begin with. Don't let that happen to you!! You might as well get Rick used to the fact that you will be incapable of being super-woman, right now. Then perhaps it won't come as a blow to him.Now here's one for a laugh. I am a bookkeeper for small businesses in my area of the world. Something that a bookkeeper needs the most is her/his mind!!! There were many days during both treatments that I simply didn't have a mind. I didn't contemplate my toes; but, I would stare at the computer and not know what I was supposed to do. I was very busy doing nothing most of the time.Gloria Quote Link to comment Share on other sites More sharing options...
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