New and needing support from people who know what I 'm going through

[Guest guest]

I am so greatful to have found the group and be able to make friends that are

going thru the same/similar health issues that I am going thru. I was diagnosed

w/ HEP. C in 1999 and w/ CRYOGLOBULINEMIA due to the HEP. C in 2003. Since then

my life has been PAIN. I have been on PEGASYS 0.5 ml. once a week and RIBASPHERE

200 MG TAB 3 in the a.m. and 2 in the p.m. daily for 6 months now, but it's not

to treat the HEP. C ., it's actually to treat the CRYOGLOBULINEMIA b/c I've done

treatment 2 prior times in the past and it didn't do anything for my HEP. C.

There are days that I feel exhausted and other days I feel fine. If it's too hot

or too cold I itch all over really bad. Right now a new symptom has began and it

is that my hands feel tight/swollen,they keep going numb and have severe

burning/pain in them. I have tried wearing winter gloves even in the house to

see if it helps any, but there is no relief. I usually try not to take

prescribed pain medicines, but I've had to take some this morning b/c of how

strong the pain is and it still didn't take all the pain away. I'm a single mom

of 2 kids which makes it even harder on me and on my kids b/c on my very bad

days I hardly am able to cook for them and take care of them the way I really

need to be. Thank God for family! If you or anyone you know is having the

same/similar symptoms (specially the new one) pls. let me know what you or they

are doing to relieve the tightness/swolleness, numbness and burning

sensation/pain. I need some relief. Thanks for taking the time to

read my post.

God bless you,

Margo

[Guest guest]

you need to get to a doc as soon aas you can about that. it can be a symptom of the blood not being pumped through there the waay it needs to. sign of a blood clot too. Please get it looked at. that can be pretty serious. By the way hi I am . I am from Kansas. I am a Med aide. I have Hep c also waiting on tx. i am type 1 grade 2. or B.

From: rivera.m7938 <rivera.m7938@...>Subject: [ ] New and needing support from people who know what I 'm going through Date: Sunday, January 9, 2011, 11:06 AM

I am so greatful to have found the group and be able to make friends that are going thru the same/similar health issues that I am going thru. I was diagnosed w/ HEP. C in 1999 and w/ CRYOGLOBULINEMIA due to the HEP. C in 2003. Since then my life has been PAIN. I have been on PEGASYS 0.5 ml. once a week and RIBASPHERE 200 MG TAB 3 in the a.m. and 2 in the p.m. daily for 6 months now, but it's not to treat the HEP. C ., it's actually to treat the CRYOGLOBULINEMIA b/c I've done treatment 2 prior times in the past and it didn't do anything for my HEP. C. There are days that I feel exhausted and other days I feel fine. If it's too hot or too cold I itch all over really bad. Right now a new symptom has began and it is that my hands feel tight/swollen,they keep going numb and have severe burning/pain in them. I have tried wearing winter gloves even in the house to see if it helps any, but there is no relief. I usually try not to take prescribed pain

medicines, but I've had to take some this morning b/c of how strong the pain is and it still didn't take all the pain away. I'm a single mom of 2 kids which makes it even harder on me and on my kids b/c on my very bad days I hardly am able to cook for them and take care of them the way I really need to be. Thank God for family! If you or anyone you know is having the same/similar symptoms (specially the new one) pls. let me know what you or they are doing to relieve the tightness/swolleness, numbness and burning sensation/pain. I need some relief. Thanks for taking the time to read my post.God bless you,Margo

[Guest guest]

Altho I'm not a Doc, I would bet 100% that your new symptom is Renaulds Syndrome (sp?). It is often associated with Cryo. Cold effects your hands, especially fingers. With me, even air conditioning or holding a glass of tea, soda etc. My doc tested me for Cryo; we both were surprised that I tested negative! Also, do your fingers go deathly white , then blue- purple as they warm back up? First coupla times I saw the blue spreading as I watched it was freaky. Good luck... Ask your doc about renaulds syndrome. http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae Westhttp://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx On Jan 9, 2011, at 9:41 PM, Cinder <datagrey@...> wrote:

you need to get to a doc as soon aas you can about that. it can be a symptom of the blood not being pumped through there the waay it needs to. sign of a blood clot too. Please get it looked at. that can be pretty serious. By the way hi I am . I am from Kansas. I am a Med aide. I have Hep c also waiting on tx. i am type 1 grade 2. or B.

From: rivera.m7938 <rivera.m7938@...>Subject: [ ] New and needing support from people who know what I 'm going through Date: Sunday, January 9, 2011, 11:06 AM

I am so greatful to have found the group and be able to make friends that are going thru the same/similar health issues that I am going thru. I was diagnosed w/ HEP. C in 1999 and w/ CRYOGLOBULINEMIA due to the HEP. C in 2003. Since then my life has been PAIN. I have been on PEGASYS 0.5 ml. once a week and RIBASPHERE 200 MG TAB 3 in the a.m. and 2 in the p.m. daily for 6 months now, but it's not to treat the HEP. C ., it's actually to treat the CRYOGLOBULINEMIA b/c I've done treatment 2 prior times in the past and it didn't do anything for my HEP. C. There are days that I feel exhausted and other days I feel fine. If it's too hot or too cold I itch all over really bad. Right now a new symptom has began and it is that my hands feel tight/swollen,they keep going numb and have severe burning/pain in them. I have tried wearing winter gloves even in the house to see if it helps any, but there is no relief. I usually try not to take prescribed pain

medicines, but I've had to take some this morning b/c of how strong the pain is and it still didn't take all the pain away. I'm a single mom of 2 kids which makes it even harder on me and on my kids b/c on my very bad days I hardly am able to cook for them and take care of them the way I really need to be. Thank God for family! If you or anyone you know is having the same/similar symptoms (specially the new one) pls. let me know what you or they are doing to relieve the tightness/swolleness, numbness and burning sensation/pain. I need some relief. Thanks for taking the time to read my post.God bless you,Margo

[Guest guest]

, that's also what happens with Reynaulds. The blood vessels shrink ( or the clotting from Cyro impedes blood travel) due to reaction to cold and no blood gets to fingers( in my case feet also). As blood flow returns the area will spread with dark blue color. And it can be very painful. Like " slamming fingers in a car door".http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae Westhttp://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx On Jan 9, 2011, at 9:41 PM, Cinder <datagrey@...> wrote:

you need to get to a doc as soon aas you can about that. it can be a symptom of the blood not being pumped through there the waay it needs to. sign of a blood clot too. Please get it looked at. that can be pretty serious. By the way hi I am . I am from Kansas. I am a Med aide. I have Hep c also waiting on tx. i am type 1 grade 2. or B.

From: rivera.m7938 <rivera.m7938@...>Subject: [ ] New and needing support from people who know what I 'm going through Date: Sunday, January 9, 2011, 11:06 AM

I am so greatful to have found the group and be able to make friends that are going thru the same/similar health issues that I am going thru. I was diagnosed w/ HEP. C in 1999 and w/ CRYOGLOBULINEMIA due to the HEP. C in 2003. Since then my life has been PAIN. I have been on PEGASYS 0.5 ml. once a week and RIBASPHERE 200 MG TAB 3 in the a.m. and 2 in the p.m. daily for 6 months now, but it's not to treat the HEP. C ., it's actually to treat the CRYOGLOBULINEMIA b/c I've done treatment 2 prior times in the past and it didn't do anything for my HEP. C. There are days that I feel exhausted and other days I feel fine. If it's too hot or too cold I itch all over really bad. Right now a new symptom has began and it is that my hands feel tight/swollen,they keep going numb and have severe burning/pain in them. I have tried wearing winter gloves even in the house to see if it helps any, but there is no relief. I usually try not to take prescribed pain

medicines, but I've had to take some this morning b/c of how strong the pain is and it still didn't take all the pain away. I'm a single mom of 2 kids which makes it even harder on me and on my kids b/c on my very bad days I hardly am able to cook for them and take care of them the way I really need to be. Thank God for family! If you or anyone you know is having the same/similar symptoms (specially the new one) pls. let me know what you or they are doing to relieve the tightness/swolleness, numbness and burning sensation/pain. I need some relief. Thanks for taking the time to read my post.God bless you,Margo

[Guest guest]

Do you know if that is hereditary? I know my youngest sister has that, but it never occurred to me that I may have Renaulds Syndrome. My dr. appt. is this Thurs. w/ the liver specialist so I will make sure to ask him if I could have RS. Thanks so much!

God bless,

Margo

From: "trudykinsey@..." <trudykinsey@...>" " < >Sent: Mon, January 10, 2011 1:10:53 AMSubject: Re: [ ] New and needing support from people who know what I 'm going through

Altho I'm not a Doc, I would bet 100% that your new symptom is Renaulds Syndrome (sp?). It is often associated with Cryo. Cold effects your hands, especially fingers. With me, even air conditioning or holding a glass of tea, soda etc. My doc tested me for Cryo; we both were surprised that I tested negative! Also, do your fingers go deathly white , then blue- purple as they warm back up? First coupla times I saw the blue spreading as I watched it was freaky. Good luck... Ask your doc about renaulds syndrome. http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae West

http://oktravels.wordpress.com

http://allrecipes.com/cook/TrudyK/profile.aspx

On Jan 9, 2011, at 9:41 PM, Cinder <datagrey@...> wrote:

you need to get to a doc as soon aas you can about that. it can be a symptom of the blood not being pumped through there the waay it needs to. sign of a blood clot too. Please get it looked at. that can be pretty serious. By the way hi I am . I am from Kansas. I am a Med aide. I have Hep c also waiting on tx. i am type 1 grade 2. or B.

From: rivera.m7938 <rivera.m7938@...>Subject: [ ] New and needing support from people who know what I 'm going through Date: Sunday, January 9, 2011, 11:06 AM

I am so greatful to have found the group and be able to make friends that are going thru the same/similar health issues that I am going thru. I was diagnosed w/ HEP. C in 1999 and w/ CRYOGLOBULINEMIA due to the HEP. C in 2003. Since then my life has been PAIN. I have been on PEGASYS 0.5 ml. once a week and RIBASPHERE 200 MG TAB 3 in the a.m. and 2 in the p.m. daily for 6 months now, but it's not to treat the HEP. C ., it's actually to treat the CRYOGLOBULINEMIA b/c I've done treatment 2 prior times in the past and it didn't do anything for my HEP. C. There are days that I feel exhausted and other days I feel fine. If it's too hot or too cold I itch all over really bad. Right now a new symptom has began and it is that my hands feel tight/swollen,they keep going numb and have severe burning/pain in them. I have tried wearing winter gloves even in the house to see if it helps any, but there is no relief. I usually try not to take prescribed pain

medicines, but I've had to take some this morning b/c of how strong the pain is and it still didn't take all the pain away. I'm a single mom of 2 kids which makes it even harder on me and on my kids b/c on my very bad days I hardly am able to cook for them and take care of them the way I really need to be. Thank God for family! If you or anyone you know is having the same/similar symptoms (specially the new one) pls. let me know what you or they are doing to relieve the tightness/swolleness, numbness and burning sensation/pain. I need some relief. Thanks for taking the time to read my post.God bless you,Margo